Bicuspid Aortic Valve & Aneurysm Treatment: What Should Patients Know? (with Dr. William Brinkman)

www.Heart-Valve-Surgery.com - Bicuspid aortic valves are one of the most common forms of congenital heart disease. A bicuspid aortic valve with aortic stenosis and/or aortic regurgitation can lead to symptoms (chest pain, shortness of breath, heart palpitations) and unwanted risks including heart failure and death. As bicuspid aortic valves are often associated with aortic aneurysms (a bulging of the aorta, that can potentially rupture), patients should actively monitor and/or get treatment for bicuspid aortic valves and aortic aneurysms if these cardiac conditions progress in severity. In this video interview with Dr. William Brinkman, a cardiac surgeon and the Director of Thoracic Aorta Clinic at Baylor Scott & White The Heart Hospital in Plano, Texas, you will learn about biology of bicuspid aortic valve, their association with aortic aneurysm and the different treatment approaches that Dr. Brinkman uses to help patients get healthy. Those treatment options including traditional aortic valve replacement, aortic valve repair, the David Procedure, the Ross Procedure, and transcatheter aortic valve replacement (TAVR). See patient reviews and a complete surgeon biography of Dr. William Brinkman at www.heart-valve-surgery.com/s....

[@reedermh]

I was also born with a bicuspid aortic valve, and I too had a dilating ascending aorta. On 9/7/2023 I had both replaced with the Bio Bentall procedure talked about by Dr. Brinkman (who also performed my surgery). I was discharged from the hospital 5 days after and am as of this posting recovering at home.

[@sawekoganti]

How old are you when you underwent the surgery?

[@reedermh]

@@sawekoganti I was 58.

[@sweetmev]

i am 39 and know that i have bicuspid aortic valve n dilation ascending aorta.

[@paralogregt]

Had mine repaired, luckily my bicuspid valve did not need replacement. In hospital for 5 days and back to work 6 weeks later.

[@adrianaguerrero598]

Thank you for sharing

[@javedbutt6111]

I am very worried about this

[@maxesfuerzo3573]

Any information on engineered tissue valves? Seems like a relatively new development but very exciting.

[@robertramclam3240]

Absolutely live this dictor. My mom has a valve aneurysm and id love foe him to do it for her. Ur amazing!❤

[@gfolkins1]

I have a bicuspid aortic valve with severe aortic stenosis and an enlarged ascending aorta. My cardiologist said he could hear the blood flowing back. I also have a very small PFO, that they said was not large enough to cause problems. My main symptom is breathlessness with doing very little activity. Very little dizziness and very little chest pain. But my shortness of breath is terrible. My angiogram showed normal arteries. They are supposed to be replacing it with an artificial heart valve this fall; they said the waitlist was 3-4 months. I live in Canada, so there is no cost to me for the tests and surgery, but the downside is that I have no choices in the doctor, and not a whole lot of information.

[@HeartValveSurgery]

Hi, Our thoughts and prayers are with you!!!

[@dana295]

How did the surgery go?

[@TravelsofAngel]

When do you think Ross procedure would work? I don't want mechanical valve

[@Thegeordiemonkey]

I have a bicuspid valve with stenosis and getting the Ross procedure in the next couple of weeks, this video answers a lot of questions i have, i have a fantastic surgeon in the UK doing it, Dr Asif Hasan.

[@HeartValveSurgery]

Great to hear the video with Dr. Brinkman helped you learn more about your bicuspid aortic valve! Here's a new video about 4D Flow MRI & Bicuspid Aortic Valve that you might want to check out - kzbin.info/www/bejne/a2TEqHiHZ5h2ha8. Very exciting new research!

[@deepaksinghsisodiya5690]

I have bicuspid aortic valve I'm 24 now and moderate AR .can I go through the Ross procedure?????

[@goatcontender3123]

@@deepaksinghsisodiya5690 same muje bhi hai

[@mohammadzamir9194]

Hi it was such a useful information, I m 42 years old and I had dubble chamber on right ventricle which creat narrowness to blood goes to lungs also minor aortic valve leakage, and my open heart surgery is due soon. My question is, is it possible these problems can be fixed without open heart surgery, I mean with keyhole surgery or any other procedure thanks.

[@mariarutz9842]

@ Adam, thank you for this channel and I am about to go through surgery for bicuspid aortic valve. I was a healthy 52-year-old female until February. 2023. I began to feel many of those symptoms. Can you please talk about the actual recovery of the skin and do you have current brave patients that can show us how their skin has recovered? I'm still frightened but feeling more empowered with this community you have created. Thank you. ❤❤💕💕

[@gregnettles3677]

I’m 52 old male it takes about 4 months for the skin to heal.

[@ikatsakiashvili5079]

i have bicuspid airta i am 31 i live in georgia 🇬🇪

[@MrMercman72]

I appreciate the information shared! I am right there needing to make those difficult potential life and death decisions and this really helped.

[@cvonpete]

I have bicuspid valve, diagnosed three weeks ago. I’m asymptomatic but have severe stenosis. The cardiologist told me that my heart is strong and healthy and to continue with my cycling regimen until I have symptoms while exercising. I’m watching videos and pretty frustrated. I have no aortic aneurysm so that’s good. I’m 51 and eager to get the valve replaced before I do damage to my heart.

[@ahmedkurtovic8333]

luck play big role here. Some people live 80+ without surgery.

[@marvinmagtuba6001]

I have bicuspid aortic valve, mild regurgitation, but without stenosis. 33yo wo symptoms. Do you have videos regarding this.

[@abelardocamp2353]

I received my new aortic valve in march 10, 2022 and I feel great.

[@maxhavels527]

Was it a tissue valve or the mechanical one?

[@abelardocamp2353]

@@maxhavels527 tissue

[@tanyabest319]

This sounds promising my granddaughter has had emergency surgery 10 weeks for balloons, has aortic valve stenosis and biscupid, was severe at 8 weeks, so got balloons inserted at 10 weeks in southern Ireland, (we in North) now moderate and we been told needs aortic valve replaced within year she was 2 in July and probs didn't show in sonograms during my daughter's pregnancy!! What can we expect surgery wise, mortality, and her recovery? Her uncle has mild leaky valve and murmur, her dad had murmur, her maternal grandfather, great grandfather died very young with angina at 53/54 her great gran on maternal side angina also but still alive at 86

[@danbutler7708]

What blood thinner can I use after being on eliquis for approximately 13 months and I was bleeding from my mouth my rectum with a loud ringing that is still in my ears what type of doctor should I see? Thank you for your webinar this is one that I watched before I did my surgery so I can better understand the surgery God bless you thank you and I am looking for your answer

[@MrGODINTHEMAKING]

I have regurgitation and need a valve replacement next month and aneurysm in ascending aorta. Im ready!!! November 2023 surgery

[@abhayshinde7691]

Are you alive now🙄

[@TravelsofAngel]

I have severe stenosis of my BAV, 60 in January and 2 aorta Annuerism ascending aorta. From CTA I was told that descending thoracic is Annuerism. I was told that I can't have TAVR because of the BAV but wonder why, other than BAV. My father's descending valve dissected they aren't sure when but lived to 84. They were trying to put a a pacemaker in his heart (he had AFib too, heart attack before 60). Very fatigued. Covid made me worse.

[@christospip5312]

What about weight training but with 60-70% of maximum weight without holding breath. Does it impact negatively the valve and aorta progression ?

[@travelsofangel7434]

Is stenosis and calcification the same? Have been both with BAV and root and ascending aorta annuerizm

[@HeartValveSurgery]

Hi Angel, Great question. You may want to visit this website to learn more about aortic stenosis and a calcified valve - www.heart-valve-surgery.com/aortic-stenosis-valve-heart-narrowing.php. Hope that helps!

[@travelsofangel7434]

Can you have TAVR with bicuspid valve (BAV) and your root and aa dialating

[@HeartValveSurgery]

Hi Angel, Great question. As each patient situation is unique, we would encourage you to discuss this with your medical team. While we are aware of patients with a bicuspid aortic valve getting TAVR, the presence of an aortic aneurysm could complicate the possibility of a stand-alone TAVR procedure. Again, please contact your medical team to discuss.

[@travelsofangel7434]

My father descending aorta annuerizm dissected. He had afib, enlarged heart and was getting a pace maker when it happened.

[@rahilaadnanskitchen]

Please sir I want to tell about my Yong brother. There Heart working 30 % what. I do Dr say the tapci is 11 if tapsi it 14 then we do operation? Please please you e mail address

[@thalasaranya5273]

Hi sir my baby scan report bicuspid aortic valve with moderate pulmonary artery hypertension Itha pathi detaila sollunga sir pls iam from tamilnadu

[@gregnettles3677]

How about pseudoaneurysms? I had my aortic valve changed in Dec of 22 and may of 23 had to had a redo surgery.because of a pseudoaneurysm we’re the they put the cannula for the heart lung machine.I had an pseudoaneurysm that was 2.9 cm found in the ER.went in because I presented with pneumonia fluid around the heart and in the lungs.Have you ever heard of this happening?

[@victorialondon769]

My son has type A quadricuspid aortic valve. No regurgitation or stenosis. Is he still at risk of complications in later life considering he has no issues now?

[@HeartValveSurgery]

Great question Victoria! As you may know, heart valve disease can progress at different rates for different patients. Some patients require therapy during their lifetimes. Some patients do not. That said, we strongly encourage your son to get regular echocardiograms to ensure that that any changes or disease progression are actively monitored. We hope that helps!

[@javedbutt6111]

My baby age 3 month diagnosed bicuspid aortic valve

[@rowdyyadav]

Sir Bicuspid Aortic Valve , MPG of 26 mm Hg, BAV with moderate AS, no AR. Baby boy age is 6 days. What will you suggest in this condition is it normal or we need balloon surgery? From India

[@HeartValveSurgery]

Hi Rowdy, As each patient situation is unique, we encourage you to discuss this very important question with your medical team! Our thoughts are with your baby boy, you, your family and your medical team as you figure out next steps!

[@fifztv3383]

Just asking my brother got bicuspid aortic valve replacement a year ago and they changed the valve with mechanical one question how safe is mechanical valve? How long the recovery of the patient because until now mostly he got dizzy is it normal? And is it also normal if the patient is so sensitive with smells? Hope somebody can answer me all these questions thank you….

[@HeartValveSurgery]

Hi Fifz, We hope you and your brother are doing well. You raise several excellent questions about aortic valve replacement with a mechanical device. We would encourage you to watch this video to learn more - kzbin.info/www/bejne/jZWQY4Z-ataZedE. We hope this helps you!

[@wilsontirado3732]

What if you have a stenosis and a leak

[@HeartValveSurgery]

Wilson, Great question. We would encourage you to talk with your medical team about the best specific surgical option for you. Oftentimes, patients with both stenosis and regurgitation will need an aortic valve replacement. So you know, we're hosting a webinar on Thursday that you might like to join. You can learn more about that at this link - register.gotowebinar.com/register/8316942763367593999. Hope that helps!!!

[@javedbutt6111]

Moderate to severe stanosis 55mm

[@bhupinderpalsingh1828]

There is any medicine to heal or recover bicuspid valve.

[@HeartValveSurgery]

Great question. Unfortunately, we are not aware of any medicine that can treat a bicuspid aortic valve.

[@rajvardhan7130]

Life expectancy after bentall procedure surgery

[@ivonvillaverde5077]

I am a heart failure do I need a change of value

[@danbutler3757]

🙂

[@wilsontirado3732]

What is the morality rate for the surgery?

[@HeartValveSurgery]

Hi Wilson, Great and important question. Here's a video that you might want to watch - kzbin.info/www/bejne/mXSnYqKLecenf7c. And here's some more data to consider - www.heart-valve-surgery.com/valve-mortality-surgery-repair-replacement.php. Hope that helps!

[@leeschultheis5407]

I'm a little surprised that they are still touting the Ross Procedure. I had that procedure in 1998, when I was 42 ... and it wasn't performed in large numbers at that point. The idea was, my high pressure valve (aortic) would be living tissue, and the low pressure valve (pulmonary) would be a donor human cadaver valve. [By the way, I have always been very athletic, in shape, and was actually skiing a black diamond slope a month before my already scheduled surgery thinking "I can't believe I need open-heart surgery", since I had no symptoms at that time. Fast forward 13 years, and in 2011 (at 55) I was having major symptoms. It seems the pulmonary valve they swapped into the aortic position is removed with a stub of the blood vessel it exits to, and that the whole low pressure valve was not build via a million years of Evolution to take extended high pressures. This stub root of what was now my Aorta, started to distend and dilate ... meaning the 3 valve leaflets couldn't come together any more to avoid significant regurgitation. So, I had to have another complicated procedure, replacing my Aorta with a Dacron sleeve, and a new Pig Valve. All of my cardiologists since had indicated that the Ross isn't that popular any more, and that many had my experience (I believe including Arnold Schwarzenegger). Also, since aortic valve surgery involves cutting near the nerve that fires the left side of the Heart's contraction, that nerve got damaged in the two surgeries, and I then needed a Pacemaker 2 years later.

[@nickmooreHDR]

Sorry you had to go through that. I'm 35 with a failing bicuspid aortic valve. If you could go back in time, what else would you do differently?

[@leeschultheis5407]

@@nickmooreHDR Well, everyone's situation is different. Mine wasn't "failing" at age 42, just gradually getting more leaky. The idea was the Ross Procedure was a "full lifetime" fix (i.e, I could live to 80+ without any additional intervention). Unfortunately, that wasn't true ... but that was the info I was given at the time, so that's why it made sense to do the "inevitable" operation when I was young and healthy. Given what I know now, I think I would have delayed surgery until much later, as it would likely have saved me at least 1 open heart procedure over the course of my lifetime.

[@Intellectualodysseyai]

​@@nickmooreHDR hi Nick also 35 here needing the procedure. I wonder if we can somehow get in touch to exchange ideas

[@anishaddadgg8591]

Hi sir , i have bicuspid aortic valve but without symptoms , i’m 22 , i don’t fume ,will i have problems in the future when i get older? I’ve been taking menaquinone7 for 2 years

[@a.g.hustlegarland4197]

Hi did you figure it out

[@anishaddadgg8591]

@@a.g.hustlegarland4197my doctor heard something so i did an echocardiography and …

[@a.g.hustlegarland4197]

@@anishaddadgg8591 how you doing today

[@anishaddadgg8591]

@@a.g.hustlegarland4197 im fine!! Well i don’t have symptoms, im just scared of the future 🤣

[@garycarrjr2884]

THEY SAY I HAVE A BAD AORAT VALUE SAID 50% BUT I BEEN WALKING AND MY BREATHING GETTING BETTER I KEEP WALKING AND CAN I BET THIS VAULE REPLACEMENT PLEASE GIVE ME SOME FEED BACK

[@travelsofangel7434]

Why ross limited to under 55-50.

[@TravelsofAngel]

I'll be 60 next month.

[@princekumar-jz4lw]

My son is one month old and just found out he have bicuspid aortic valve. Whole family is worried. I just want to ask about the life span of a person with this condition. Can he lead a normal, healthy and long life ?

[@bablipachauri4933]

Hi prince my son is also have same issues

[@acf894]

I'm 41 and very recently found out that I have a bicuspid aortic valve since birth along with an ascending aortic aneurysm. In reality it's better you know when your child is that young so they know to make the right health choices throughout their life and that it can be monitored for changes. I wish I had known.

[@mariarutz9842]

@princekumar I agree and similar to Adam I found out on May 10, 2023, at age 52, that this is my condition and that this has been from birth. In February 2023 I really started noticing some symptoms while at the gym. Shortness of breath, heavy chest pains, at times like someone is punching my heart. I will be having a mechanical valve in two weeks. I am grateful to have lived this much of life without issues. I am an active individual, ski, cycle, walk 5 miles a day, hike, and take dance classes. Life is about to change but from what I'm learning this is going to give me a second chance at life. I wish you all the best with your son and informed knowledge NOT fear! So as Adam stated good choices can be made to give him a better outcome later. Take care keep on ticking.

[@vics27TR]

Hi, I am sorry to hear about your precious baby, but how did you know did your baby present any early symptoms?