Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers

[@MP-py7pt]

Should be up for an award in investigative journalism as well as public health!

[@RUNDMC1]

Haha, thank you!

[@alexhey8277]

@@RUNDMC1 Do you have any website as a source to recommend?

[@eleanorcoleman284]

Thank you for doing this. It’s difficult to deal with long covid symptoms and be treated like you’re anxious or crazy. You provide a glimpse of hope for people like me.

[@markchristensen9783]

@@RUNDMC1 important question . My issues are primarily body aches . Is MCAS protocol primarily only applicable to People with respiratory issues ? I’m taking the supplements but for last few days went back to high histamine foods and it’s not affecting me negatively . Having said that , if it’s not a good idea , how long does it take to get bad symptoms again if high histamine Foods are reintroduced. It’s been 3 days and not feeling worse .. any feedback is greatly appreciated!!

[@truthseeker6688]

long covid is a leaky gut syndrome. A doctor in pakistan is treating people long covid by prescribing them proton pump inhobitor like pantaprazole, eatung honey and yougurt in morning, eating raw onion and garlic with rice veggies, avoiding gluten, sugar, fast food, using olive oil etc. And people are healing in about 1 month of doing this

[@lacisz]

Hey Gez, I know you are hearing it all the time, but your work is essential. You are doing what governments should do - collecting scientific data and making it palatable for all of us. Your way of presenting is objective and trustworthy. I'm also in the club, but after 8 months, I'm using my running shoes again. The brain fog is still persistent, but I'm hopeful. There are some clear minutes daily which wasn't true a few months before. Keep hangin' on, we need you. Thank you.

[@RUNDMC1]

Hey, thank you :) And congrats on getting those running shoes on - I’m eagerly awaiting the day I can do the same thing.

[@christinechin1909]

💯 % agree 👍

[@detectivewiggles]

To eliminate brain fog, make sure you're not taking synthetic D.

[@lacisz]

@Will Gmail Hey Will. Thanks for your question. It was a long journey, I was constantly monitoring my symptoms, stopped running and other sports, gained a few kilograms :) Physically I'm 100%, but the brain fog still persists. Strangely it's worse when I'm passive. I'm about 65-70% of my old self. A few more years to go :) How about you?

[@PATHAN_writes19]

@@lacisz How are you now ?? Hope you feel better and get your normal life back ???

[@janealbinson7190]

I have had ME/CFS for 14 years. I’m aware of the similarity between Long Covid and ME and when I heard Dr Peers talking about MCAS the symptoms were almost exactly those I suffer from. Thank you for your work and for this very useful video. I’ll be following the recommendations and reporting back.

[@kenziemackmusic]

common conditions miss diagnosed MCAS x

[@ebaldwin-charles9804]

Hi @janealbinson7190 any update? Thanks so much

[@charlieb9144]

Hi @Jane Albinson - did you follow this and has any worked? I've been diagnosed with ME since 2012 but had it years before. Has anything worked for you? I'm so fed up of the fatigue. I'm currently trying nega dosing B1 (Elliot overton yt and Dr Eric Berg.) To see if that's a piece of the puzzle. Hope you're doing ok

[@celestine.love88]

​@@charlieb9144hi, is B1 works for you?

[@krg9942]

I followed this regime and I feel so much better! THANK YOU! After my first night time Benadryl, I felt 75% better. After a week, I feel 90% better with my energy! Before, I was so exhausted, I went from the bed to the couch for over 2 years. Gez, you and your research saved my life! Forever grateful, Kim. Update 9/16/22: After learning that benadryl is super bad for your brain, I switched to Allegra, unfortunately it only helps about 60%. At this point anything is still appreciated, but I went back to bed / couch, unless I need to struggle along in a task. I have added in Nasalcrom nose spray & Alaway eye drops, as they are mast cell stabilizers. Desperately trying to get back into life.

[@renovatingspaces7067]

I take 1 chewable children benadryl and seems to enough! Sometimes 2.

[@RunningWithSauce]

Hey KRG, I'm a systemic mastocytosis patient. We have this same problem for years. What is prescribed is TWO antihistamines for us. Whats called an H1 and an H2. It takes time to figure out the right combination for you. I'm currently taking Famotindine 20mg every 12 hours and Xyzal 5mg every 12 hours as needed. NSAIDS are triggers for many of us, so I stay away from them, but many also take a baby aspirin with this combination. Hope that helps. Benadryl is reserved as a "rescue med" only for a really bad flare up or before any invasive procedures like surgery. I hope that helps

[@pattijesinoski1958]

Sadly, long term use of benadryl can cause long term constipation.

[@pattijesinoski1958]

Taking allerga above suggested dosage by manufacturer can cause tachycardia, sleep deprevation, and heart palpitations. I had patients using toxic dosages.

[@RunningWithSauce]

@@pattijesinoski1958 i take up to 12 times the recommended dose of antihistamines. This is my prescription from doctors because I have a very rare incurable disease called systemic mastocytosis. It causes the same cytokine storms that covid has only I get them constantly. I have zero issues. I get blood work every 3 months plus a dexa and PET scan to be sure. Zyrtec or Xyzal plus Pepcid up to 4 times a day. No side effects at all.

[@Asdfghjklzxcvb-u5p]

I do not understand why all doctors 4 years into this are not on the same page? I wish I had seen this video two years ago.

[@tacocat8608]

Right? I’ve been saying the same thing!

[@stevenjames5419]

Because doctors have been threatened and if they say the wrong thing they can lose their license

[@MegaLeoben]

Doctors arent scientists... duh. they follow procedure.

[@a.g.9919]

@RUN-DMC I had post viral fatigue or ME in the early 90's for 2 years full time, and then relapses, pre internet and i had everything - from shortness of breath to brain fog, diarrhoea, insomnia and crippling exhaustion.Yes and very poor tolerance to exercise. Any exercise would set me back for weeks apart from very gentle walking if i had the energy. Big meals would also set me back for weeks, i would ache all over for days after a big meal. When i finally found a book in a library explaining about post viral, chronic fatigue, i cried with relief just to know I was not alone, but trying to convince a doctor was something else entirely. Also everyone around me thought i was making it up because i always looked so well. I tried exclusion diets, and very strict regimes and whilst they helped the game changer for me was total fasting and acceptance. People talk of acceptance but somehow that really does allow the body to heal.It's like you have to tell your own body ' I know i am ill and very tired, and i accept that, I give in, I will not fight against it, and i will be better in the future' And fasting helps very quickly, well it did for me. One supplement really helped me too, and that was Q10. I would even say that with a very good diet that was the only one i needed. But certainly I did try all sorts of vitamins and supplements. I did not find anti - histamine foods the culprit. Avocado, tomato etc, these things are fine. And white rice was very healing for me. Heavy oils and raw onion was bad for me. But the main thing was to have very little food. To fast. And when eating to eat very slowly and to learn to stop before being full, and then eat more if needed after it was properly digested. And if i felt a bad bout of exhaustion etc coming on - to fully fast. I know its boring but so better than being unwell. I highly recommend when you can (when we are allowed) going to thailand and doing a 7 day fast and having some colonics. I swear this will really help you heal. It's a miracle (well it was for me) Another thing very good for ME or Post Viral - is cold showers and a sauna followed by cold water plunge pool - i think it has been proven to regenerate the immune system (also was good for me)

[@kevinagee5085]

has the viral fatigue went away since then?

[@janne2744]

Cold showers😱

[@Texasgirlinacrazyworld]

Cold plunge actually puts the body into Fight or Flight lol

[@sinnombre-wy5fv]

Thank you for this video. I am at the end of my rope here with 2 yrs of long covid and vids like these keep me going.

[@latestlindsey5620]

My doctor told me that quote "my husband and I do not look like people who have mast cell syndrome" and he does nothing for us, thank God for your videos! Since I started treated us, my rashes went away, the chronic fatigue went away, and my flair-ups are a lot less! I really am grateful your sharing this and I've been telling everyone I meet with long covid to look into mast cell syndrome.

[@latestlindsey5620]

@Elizabeth Fondse it was sort of a weird white peeling rash all over my arm. I ended up using milkweed from a plant and it took it away, but I heard it can have a reverse effect for different people. I basically followed her advice, low histamine diet, Quercetin, zinc, vitamin B and vitamin C and I'm on a 0 histamine probiotic and I'm finally healing. 😊 I also did a 2 week cleanse and it worked wonders. For the first time in 13 months, I can drink coffee again!

[@sonofherne]

I don't have LC but my health was ruined by a terrible virus 18 years ago. Very similar symptoms. One single dr decided to try giving me H1 and H2 blockers for Mast Cell. Since then, my fatigue has lifted enough to give me a far greater quality of life. Not perfect but I don't need to sleep every afternoon anymore. My brain fog is less, my skin rashes are gone.

[@NoesKicker]

@@latestlindsey5620 YOOOO Congrats! I still drink coffee even though I can tell its a trigger for me. I really need to stop or at least get my health back in order first lol

[@latestlindsey5620]

@@NoesKicker thanks so much! I know it sucks but now I'm back to 5 cups a day lmao, you'll get there 😂😂

[@joeorler4097]

Get a new Dr

[@MR-hr6pp]

I successfully improved my post COVID immune response with a water fast. On the second day migraines occurred which disappeared after drinking a small glass of distilled water as mast cells burst consequently. At least in my case the symptoms improved tremendously after water fasting for three days and it had a sustainable effect. I know there are so many different remedies being praised on the internet what makes people sigh and resign, but this is what helped me speeding up the recovery process. I was struck by the coronavirus two times in 2023 and still struggle with the consequences. Maybe this is helpful to at least someone, so I just wanted to share this.

[@tacocat8608]

Can you tell me exactly how to conduct a successful three day water fast? I was literally thinking this is something I need to try, just earlier today. 🙏🏼

[@MR-hr6pp]

@@tacocat8608 Don’t eat but drink water instead. My body told me with intense feelings of hunger when to quit. When I felt weak I did push ups because this stabilized my cardiovascular system. You need to drink plenty of water. I drank about 4-5 liters per day. A pinch of salt without additives a few times per day did also help me stabilize. It also helped me with headaches. When they got heavy on day two and three I had a small glass of distilled water to ease the pain. The distilled water destroys mast cells in your blood which build histamine what is responsible for your headaches during the fast. But be careful with the amount you take because distilled water can be dangerous when consumed in large quantity.

[@funghouls5498]

For the past few months, I have been experiencing fatigue, lightheadedness, tinnitus, and lately, heart arrhythmias, and palpitations. It got to the point where after working out I felt like I was having a heart attack, but with no pain just extremely hard to breathe and very rapid heart rate so I rushed to the hospital twice, and they could find no problems with my heart . I was sent to a cardiologist for observation over the course of a month and they also could find no heart problems so I was dumbfounded until I found out about POTS/long Covid, histamine intolerance. This is what I needed today. Thank you so much for doing your research. I realize this is from three years ago, but it is relevant to me today as I got Covid in December 2023 and I have all the symptoms of MCAS, histamine intolerance, Long Covid. Incidentally, Dr. Sanjay Gupta Has videos on this as well and he’s using a saline IV solution to help clear out histamines in people with POTS.

[@RUNDMC1]

I’m assuming you’ve been told this already, but lay off the working out for a bit!

[@funghouls5498]

@@RUNDMC1 yes. Thank you.

[@brittanymlanders]

This was so validating to hear… everything I’ve been experiencing was stayed so eloquently & simply. Makes me feel relief that I am not “crazy” or whatever.

[@LauraPazzaglia]

This video was EXTREMELY helpful! My post-exercise long-covid symptoms were worsening (fatigue, muscle aches, weakness febrile pains) week after week and I couldn't figure out why. This video made it clear. I was reducing my hi-dose Vitamin C that I had been taking during COVID, and fresh tomatoes just came into season and I was gorging on those every day, twice a day - the absolute opposite of what is recommended here (and I was feeling it!). Going to re-up my Vitamin C, double my Vitamin B dosage (I have MTHFR gene mutation) and add Quercetin. I am already taking the other supplements but right after watching this video I also ran out to my terrace, stripped down, and got 15 mins of sun top and then bottom to increase Vitamin D production. I am so relieved to have found the reason I was getting worse and look forward to improving!!!! I was really scared. THANK YOU!!! Ciao from Italy, L

[@Aaaaaalex09]

How are you tiday Laura 9 months later??

[@oldArmyVet]

I had long covid, I used copious amounts of vitamin c, pineapple juice, lemon, honey, cinnamon, plus everyday I made a tumeric, milk,and black pepper drink in the morning. I pushed myself everyday, walk until I couldn't walk anymore, rest repeat. I'm now in better shape than I was before I got long covid.

[@naturespleasantries]

What we’re your symptoms

[@oldArmyVet]

Shortness of breath, fatigue, weak, loss of smell, taste, joint pain, brain fog wich I still have that symptom and still have some smell deficit.

[@downtoearth1982]

Hi how are you doing nowadays and did you keep yourself on any antihistamines.H1 and H2 blockers

[@oldArmyVet]

@@downtoearth1982 doing pretty good, still get winded randomly. No , I just kept the same regiment as above

[@nancymccall5209]

@@oldArmyVet 3:59

[@scsu11iv]

Gez - this entire series is totally amazing and has helped me get back onto my feet after suffering for over 6 months with long-COVID, including getting blown-off by several doctors. Can I send you some money or something? I mean - this work is absolutely fantastic! Please keep up the great work - you are truly serving humanity and you work is greatly appreciated!

[@RUNDMC1]

No need to send money, just get better - that’s all I want for all of us!

[@celestine.love88]

how is your progress now?

[@GlamandFabQueenTV]

Pls share what you did. What supplements you took? How much mg a day? What food to avoid etc Thanks

[@scsu11iv]

@@GlamandFabQueenTV I did the vitamin stack for NAD+ deficiency. It's in one of Gez's videos. For me, the nicotinic acid was the key. I've actually been increasing the dosage of that lately, as it truly helps with my fatigue after physical activity.

[@marisademore468]

@@scsu11iv What is the name of the video please?

[@mariarooney6262]

Unbelievable. I never heard of long COVID. I just went to the doctor today and he said I have it, with all the symptoms I have. This video is excellent. Thank you. I already do the diet and vitamins but I eat alot of Avacados and bananas so I will stop them and do the rest of the protocol. The best health to all who have this and hoping you will be well sooner than you think. ❤️

[@kaylabryson1932]

My son is a year long Covid sufferer. He’s on a strict low histamine diet and doing supplements. He is still struggling …. He’s found the answers trial and error after his MD just brushed him off as anxiety problem.

[@ezzovonachalm9815]

kaylabrison anxiety is the normal reaction to the postcov syndrome and its bunch of symptoms. A medic who diagnoses PCS as a manifestation of anxiety should be obliged to restitue his medical diplome and go back to the medical faculty to renew his / her medical diplome.

[@novaaahd4834]

I had covid in October with few symptoms and was nothing more than a bad cold, then I got worse with headaches, heart palpatation, body twitches, chest pain, fatigue ,anxiety and depression.I had a severe headache for 3 months after which led to me having a brain MRI but everything was normal, it does get better, im 5 months down the line and am a lot better but still got a bit more to go👍🏻

[@RUNDMC1]

Glad to hear you’re recovering!

[@aminagundes6234]

Happy to hear that you are recovering

[@caelyndisanti5595]

Did you follow a low histamine diet or what did you do that helped you get better? I am suffering with daily headaches everyday for going on 3 months now and am thinking of starting a LH diet.

[@lukesmith3283]

Hi Novaaa how are you doing?

[@jadedavis6961]

I know exactly how your feeling I’ve been going through the same exact symptoms including internal tremors. My headaches have improved and I no longer have palpitations. We will get through this!

[@ryancparker]

I was suffering from long Covid. Going on a low histamine diet with vitamin D, C and Zinc supplements worked wonders for me. I felt better every single day until after a week all my symptoms were completely gone. Thank you!

[@samanthar5123]

What were your symptoms

[@ryancparker]

@@samanthar5123 chest pain, numbness in my left arm, tightness in my shoulder, nausea, diarrhea, and just generally feeling like hot garbage every day

[@andrewjones3826]

Did you eat any meat?

[@ryancparker]

@@andrewjones3826 my primary meal every day has consisted of eggs and broccoli cooked in olive oil with an orange on the side. I’ve started eating some chicken breast and apples as well. I’ve been experimenting with other foods to mixed results. Peanut butter and tomato soup are off limits, but pizza surprisingly seemed okay. Alcohol is off limits. One of my worst nights during long covid was when I got home after drinking five beers. At the time I had no idea why I felt so horrible. Before I went on a strict antihistamine diet I was eating a banana every morning along with tomatoes, avocados, spinach, whole wheat, and sliced chicken breast unaware that they were high in histamine or that histamine could affect my body the way it did. Something else to note is that I had an allergic reaction to the J&J vaccine as well. The side effects were very similar to what I experienced from long covid and lasted about five months.

[@andrewjones3826]

@@ryancparker glad for you. I'm only 4 weeks in but I know I'm not shifting it. Been on low Hist diet for 3 days and the vit stack. Feeling better I think but still have moment I feel like death for an hour. I too was pounding down the spinach and avos, plus bread. Hopefully in time I'll feel normal

[@dedesunbeam9361]

This video may well have changed my life. As soon as I saw it my partner and I started to follow the advice. We are both long-haulers (since March/April) and both have mild asthma, bad allergies, and he has rheumatoid arthritis. He developed covid toes/fingers which were diagnosed by our doctor as eczema and successfully treated with a topical cream. We are changing our diet and buying the supplements. I can't begin to tell you now important this video was for us. I think even if it's not a perfect cure, it will improve our health. Of all the media sources on L-H Covid, you are the single one who's helped us. Please keep posting - I look for a new video from you every day.

[@RUNDMC1]

Hi Dede, gosh I’m so pleased to hear it’s helped but do wait on improvement in symptoms before you offer me any credit! And if you subscribe you don’t have to look every day 😊 Best of luck with your recovery.

[@teresa4957]

I'm so tired of feeling terrible. So grateful to hear what some of the triggers are for long covid as well as what vitamins can address my symptoms. It's exhausting to not feel good all the time. Thanks for your information and expertise.

[@RUNDMC1]

That’s ok - I know how you feel Teresa. Best of luck with your recovery.

[@KathleenHanrahan-p1u]

I’m the same 4 years no one can understand how bad it is 🙏

[@ysbyttybedbug]

In some ways, this is good news in that it may provide a way forward, but I have to say, my heart sank when that list of supplements/over the counter meds came up. The problem is, many, if not most, people with a chronic illness end up on low incomes. All those supplements & antihistamines are therefore not an affordable option.

[@shiningoutlight]

I am low income and I prioritize. Many of these supplements are cheap.

[@alicequayle4625]

They should really be available on prescription.

[@carolenmarch-williams7417]

Piping Rock are an online company in US who do the cheapest best quality for your money. I use to use other more expensive UK based companies until l discovered this . Look at their prices, cheaper than others.

[@heide-raquelfuss5580]

@@alicequayle4625 most doctors would not be willing to prescribe them. Because insurance would make it more difficult to get them in the first place. Doctors would only prescribe them if you have tested you need them. And there you probably will fail too. Because their tests are also ecpensive. So the doctor would not test you. Because again the insurance does not want to pay it. The medical system together with insurance companies and pharma and share holders and investesters are complicated issues. People do not understand this topics yet.

[@qingdaogrrl]

first treat anxiety/depression / calming vagus nerve and limbic system. the other stuff is just fluff. if all i could get was RX meds - then singulair or xolair and ativan or klonopin would be my go to. LDN and ketotifen (and or cromonlyn) are nice to haves. luteolin and anti histamines (try to get them RX so insurance pays instead of otc out of pocket) - but doing anything you can to calm your nervous system / mental health is the most effective part of all of this. and it's not for forever. once it clicks, your body takes over and heals. it doesn't get rid of igE allergies, but most of the sensitivities caused by stress = gone. (in my experience)

[@miguelnunez2623]

Had mild covid in January then in February I got pots symptoms and shortness of breath . And couldn't exercise . I would get short of breath and weird anxiety after trying to exercise even lightly. Fast foward to this may and I decided to take benadryl cause I got shortness of breath after eating food. Took it cause I heard it was good for anxiety and it helped me breathe ALOT better . She's definitely spot on. This is a mast cell issue

[@felipejotz7054]

How are you doing today, Miguel?

[@meirwilenkin9218]

You’ve been so incredibly helpful to many of us suffering from this. Thank you thank you thank you

[@wematter4870]

I became better by cutting wheat , coffee , spinach , I take multivitamins with minerals , vit D , zinc Spring is my favourite season The worst symptoms were anxiety , palpitations, mood swings , tinnitus , arthritis, GI problems . When I am under its spell , I fast , then I feel much better . I had long covid , same symptoms but more debilitating . I think now I had these symptoms all my life , and managed them by fasting , or cutting food I felt affected me badly , supplements. Thank you for this eye opening video

[@cliffolson3229]

The symptoms you explain are so similar to the ones I have had for the last 10 years after recovering from alcohol induced pancreatitis,it's unreal.The fatigue,itching,brain fog,stomach,rapid pulse,.....I was diagnosed with Fibromyalgia but have always thought it much more to it than that.Thank you so much for this video.

[@Tinyteacher1111]

Dr. Frid in NY claims that fibromyalgia is actually a symptom of something larger. I believe her. I have it, and I didn’t get it until I got breast implants, which are so toxic inside the body, I got sicker and sicker with autoimmune diseases, mold toxicity (saline), and infections. I lost so much, I’ll never recover my family, friends, relationships, money, etc. 🥲

[@charlieb9144]

Hi, hope you're well now. Alcohol really depletes B1 thiamine - which causes fibro symptoms. If you still need help check out Elliot overton on KZbin he talks all about high doses of B1 also Dr Eric Berg has a few good videos on it. Wish you well

[@kaylacarpenter272]

I have MCAS from black mold poisoning and Lyme. I was at the best I've been in years, then got Covid. Recovered great, but then MCAS came back with a vengeance. Suicide fuel. Haven't slept in days. Already had severe insomnia. Not even a bar if xan knocks me out after this Covid MCAS.

[@marycolhenry]

So how do you no mold caused the mcas and it wasn’t your nervous system.😊

[@AndyConwaySinger]

I've had literally every symptom on this list. Some have gone away, some have went and come back. So shortness of breath and fatigue, gastric issues have been the ones that are lingering the last 2 years. I'm taking PPIS for GERD (Post Covid) and antihistamine. I'm also trying a low histamine diet. Sick of it. Agony. Also I'm 35 and was very fit before covid.

[@RUNDMC1]

Know how you feel Andy!

[@christopherm6725]

Yep same Andy! I was healthy before except for some anxiety issues. Fatigue is brutal. Heavy eyes, muscle issues. It’s awful. Praying for healing for u

[@tinker3962]

Brilliant analysis. Finally a coherent post infection strategy.Thank you so much for sharing this

[@RUNDMC1]

Pleasure Tristin!

[@sleepsmartsmashstress740]

There is no single perfect post infection strategy Humans are a not homogenous cluster so there are subgroups and outliars . Even if an approach works for most it may not work for a quarter to half of the population. Tailoring is required. Rules of thumb to not work on all ten digits as only two of them are thumbs

[@tinker3962]

@@sleepsmartsmashstress740 You are your own laboratory. At birth no one came with an owner's manual. However, we do learn through the shared experiences with each other. In undertaking a healing journey, a great deal of therapeutic insight can be gained through the personal testimonies of others that have sorted out things that worked for them.I value greatly the efforts of others in bringing health to those around them.

[@caroliner2029]

Thank you! Thank you! Thank you! I have a chronic mast cell activation syndrome from the first dose of AZ "vaccine" which I lined up for seven weeks ago. Brain fog, fatigue, lightheadedness, headache, eye pain, swelling and itchiness, nausea, neck stiffness and pain, and tingling in my face, tingling in my arms to fingers.

[@joannarichards6245]

This was so so helpful. My symptoms had improved until I stopped taking the vitamins and I feel like I’m back to stage one and I couldn’t remember the regimen. Thanks so much for doing all the work you have compiling this resource, I always trust what is here amongst all the endless information. X

[@evanmaxwell4649]

Thank you so much for posting this!!! I’ve had debilitating long hauler covid for almost six months! The brain fog is INSANE!!

[@drew2fast489]

I'm sorry, man. I know that has to be tough.

[@merrick51]

Yeah it’s completely paralyzing

[@LordVeroeven]

What’s up Evan - So I just recently nearly passed from Covid Delta 2 SARS 2, or whatever they want to call it. Anyways, I am now in recovery phase, but some things I’m dealing with are Confusion, Irritability, Anger, getting worked up easily and my hands / head / body will start sort of shaking, maybe like nervousness, etc. How long did the fog last? I call it Covid Confusion / Feeling Lethargic.. I’ve never been sick before, so this has all been a culture shock for me.. Thanks, Brother

[@PATHAN_writes19]

@@LordVeroeven how are you now ?? Did you recover fully and get your normal life back ?

[@PATHAN_writes19]

Did you feel any improvement ?

[@visamedic]

I got COVID during the Delta wave in 2021. I attribute me catching it to a lapse in the preventive protocol I had put myself on, combined with added stress and a lot of extra shifts. I was taking NAC, Vit D, Vit C, Niacin (every other day) and Turmeric. I ended up in the ICU for 10 days. When released I was on O2 for an additional 3-4 months. I was unable to return to work for 11 months. I’ve dealt with Long COVID since. The tachycardia and the extreme SOB has lessened. I pushed myself with higher elevations while I was out. I still have issues with any exertion. I still have issues with elevations over 7000’, and any exertion over 8000’ is very hard to recover from. I actually keep a few of those oxygen cans in my truck just in case. I’ve found that Turmeric and Glycine have helped. I am going to add back in NAC and vitamin D as well as the rest of my original protocol because I firmly believe something much bigger is coming.

[@jdragyn720]

WOW. I am the person with the MCAS before the COVID. I got COVID in March, was super sick, got a bit better, then worse again. Repeat x 2. Started finally feeling better, until 2-3 weeks ago, started low grade fever with worsening of cough. Cannot express how fatigued I am. I have Fibro, MCAS, Eh-Los Danlos, Hashimoto's etc... Yeah, having the MCAS helped, because I was already on meds. Harder, because all my symptoms were to the Nth degree. I identified with everything she said- totally hit the spot. Would like to add Mangosteen power is a Mast cell stabilizer, and so is marijuana. I use both daily. I am getting better, just the 2 step forward, 1 back is, well, adding to fatigue. It will get better. Slow and sure. Just wanted to let you know I hear you- and I needed to hear you. thank you all- JAFO

[@RUNDMC1]

Great to hear that JAFO :)

[@2000disneyland]

Thank you for your post, including the marijuana bit. I have access to it, but didn’t know if it would help. I’m willing to try, along with the other protocols. I’ve been to the point of giving up, but this channel has given me hope.

[@EmuEmi]

Thank you so much for this video. 7 months in and am miserable. I’ve lost so much weight because of the mcas symptoms. Hoping to recover and get my life back

[@tonymack66]

Maybe it was coincidental, but I started to feel consistently better after starting to eat more fresh fruit on a daily basis; I had been unwell with long Covid symptoms for 4 months up until that point. All in all it took me six months to get my fitness levels back up to where I was prior to being unwell, that is, from the end of March to the end of September this year. I wish all long Covid sufferers an eventual recovery and soon !!!! Peace.

[@petinapowers2869]

I am happy for you. Seriously. I had a timeline for building my health back. But, it is not working. I have tried several paths. Right now, it seems, I have to focus on my physical activity level or my cognitive activity level. I am going with the cognitive level for now. However, over winter break I am going to experiment more with my physical activity level.

[@tonymack66]

@@petinapowers2869 I roadwalk every day up to 10 miles a day and this I could not do anywhere near a few months ago when I was unwell; even mild exertion would set me back almost a week every time. So, with regards to physical activity I say take it easy and don't push yourself too hard. Good luck.

[@lacisz]

It's good to hear, that you are better. For me, It was almost 8 months to get back to running (5km, daily). But the "brain fog" is not lifted. I still feel if I'm away from my life. I just wonder, will it go away?

[@petinapowers2869]

@@tonymack66 It is a lovely day in north Texas. I just finished a short walk. One block. That is all I can manage. Thank you for giving me hope.

[@petinapowers2869]

@@lacisz Lacisz. I am the opposite. My brain fog is less frequent. I can mentally multi-task at times. I am still disorganized though. That is not normal for me. My physical activity is the primary issue. So, perhaps one area recovers first, and the other later? Also, congratulations on your physical recovery!

[@sputster]

Finally, there is a light at the end of the tunnel! Been sick with covid since March 2020 and I showed this to my doctor!

[@RUNDMC1]

Best of luck with your recovery!

[@myopinonz]

Yes, I had it as well since March, I get extreme fatigue, bit the main issue is I can't catch my breath, I feel chest crushing tightness as if I ran a marathon and I just got moving!!

[@manindermanku8667]

@@myopinonz how are you how is your breathing do you feel breathless when you walk around or when you even sitting down

[@manindermanku8667]

Sputster how are you feeling now I am also suffering from nearly four months

[@sputster]

@@manindermanku8667 I used to do cardio twice a week and weights three times a week. Today I feel far from how I used to be. I have days where I can run with no issues and other days where I can't even go up the stairs without being out of breath. I have started the intake of antihistamines to confirm what they say in the video. It might not work for everyone, but I am no doctor.

[@InnerLantern7]

I'm an MCAS/Ehlers-Danlos patient. My MCAS is FORTUNATELY well managed now, but it took a long time and lots of suffering to get the treatment right. Thank you to my great immunologist, biweekly Dupixent injections, quercetin, vitamins C&D, H1 & H2 blockers, famotidine, and taking precautions before eating/drinking that might trigger my mast cells.

[@JamieGerig]

i have been researching my nightmare symptoms for 8 months now... and in 5 minutes this video has nailed it... thank you so much!

[@celestine.love88]

how is your progress now?

[@LongCOVIDAdvocator]

I know for a fact I have long COVID. I've had repeated wet dreams and nightmares every night. I've never had it before in my life. Covid really did me dirty.

[@19grand]

How you doing now?

[@marshapple]

I believe vitamins C and D, zinc, melatonin has help me a bit. However, it was after I received electrolytes via IV fluid, did my extreme fatigue became more manageable. The dizziness lingered for a bit but I never stopped taking my vitamins, melatonin, drink a lot of fluids, and eat more fruits. Now, I am alot better eventhough sometimes I still feel a little unwell. Thank you for the info.

[@jeanettevalencia1975]

How long were you struggling with severe fatigue prior the IV fluid?

[@marshapple]

@@jeanettevalencia1975 15days before the IV. I am still fatigue, though not at bad as when I was positive for covid. I wouldn't call it severe since I wasn't hospitalized

[@shrutipandey2]

Howr are you now

[@marshapple]

@@shrutipandey2 i am doinf great. Thanks

[@imsocheeky1220]

Hello are you doing better ?

[@barbiegott8847]

I don't have the energy to pull out all my vitamins

[@Saara-ci7bx]

oh my god yess I don't even have the energy to drink water

[@jondavies1593]

Literally have nearly all these symptoms. GP is absolutely adamant theres nothing wrong!

[@jzinser-mandala9117]

My doctor is less than helpful. Decided I had sleep apnea though I have no symptoms for that. I had COVID before the recognition and so, no positive test months later. Testing was rare for some time anyway. Without a positive test, but most of the symptoms, I am treated like a hypochondriac. That attitude certainly doesn’t help my determination to recover.

[@jondavies1593]

@@jzinser-mandala9117 I've had blood tests, ecgs and chest xrays, all have come back absolutely clear yet I'm still getting bad headaches, keep going light headed, stomach ache , ribs ache and chest aches and get short or breath easily, along with being constantly tired. GP says theres too many symptoms to diagnose me with anything!

[@christiangranqvist2350]

Jon Davies Seems like the doctors are leaving the battlefield on walkover. I guess some other professions will have to take up the slack. A lot of money in this if one would have a protocol for recovery.

[@melanieberlier8487]

I went undiagnosed until my late forties. There are some wonderful supportive groups on Facebook and www.TMS.org (the mastocytosis society) is a wealth of information and lists of doctors who work with us mast cell patients. This is how I finally got help that put me into remission. I still have flares and need to take extra care but I’ve been able to have a mostly normal life.

[@jamiedorn4105]

@@jondavies1593 I too have had rib aches/ chest aches along with shortness of breath etc. My pulminologist diagnosed the rib and sternum pain as costochondritus. It can be triggered by respiratory viruses or harsh coughing. If you look it up on you tube there are stretches that if done consistently should help along with anti- inflammatory supplements like turmeric.

[@janicemaceachern1004]

This makes so much sense to me. I always believed there were a few common denominators that were stirring up so much misery in my life.

[@santoshingle3989]

This guy deserve noble prize, what a useful information

[@RUNDMC1]

Haha, thank you Santosh!

[@2000disneyland]

I agree! I was close to giving up until I found this channel. His research & information have given me hope.

[@MrsMac3099]

What an eye opener. I have delt with this for 4 months now. Doctors didn't know what is wrong. I have been miserable, fatigue is so bad , hives, itchy all over. Idk if I have new food allergies, or the lip swelling is involved. They had me on prednisolone, antihistamines for H1, and H2. I am going to try the diet and supplements. I did have HSP as a child , and different food allergies that come and go, bad fall allergies, with severe migraines.

[@RUNDMC1]

Wishing you the best in your recovery!

[@MrsMac3099]

@@RUNDMC1 thank you so much. The last couple days I have taken Zyrtec, pepcid, and ate low histamine foods and taken my vitamins. I feel almost like myself. Still drained, but better. Thank you again for all of these videos !!!! I do have one condition that I don't think other people in your study have. Spinal cord injury, nerve damage. l5-S1 and other complications that go along with that.

[@amyjoon4687]

Thank you for this ibfo!! Altho, if your MCAS has salicylate triggers, watch the quercetin. And im so grateful for this information. I've been watching long covid triggering mast cell issues and since covid, I'm now ragingly reactive to salicylates. And my quercetin was giving me raging nerve pain. You are an ANGEL!!!

[@RUNDMC1]

I’m glad you’re getting on top of it Amy!

[@tuulalarson2625]

I´m salicylate sensitive, plus I´m diagnosed with histamine intolerance by my allergy doctor. I have had covid for 8 months now and my main symptom right now is vertigo. I walk like a penguin. When my covid started, I had a huge histamine release with itchy rash on the inside of my arms and on my back. Recently, I bought the enzyme DAO, diamine oxidase (made of kidneys from pigs), and I noticed an improvement after only one day! After five days the itchy rash was gone! Then I tested what happened without DAO and the itchy rash came back. And then I started to take three pills DAO per day again and the itchy rash disappeared again. Now I´m trying to find cheaper replacements for DAO.

[@hc6747]

Hi, I know this was years ago, but what did you use instead of quercetin? Or did you just follow the rest of the protocol and leave out quercetin? I also suspect salicylate intolerance. Thank you!

[@omarbradford6130]

Thank you so much Tina and RUNDMC. I've been experiencing long covid symptoms for around 7 months and this series as well as this video in particular has given me a lot of hope.

[@edayenii]

Did you follow their suggestions? How are you feeling?

[@Ma1efcent]

How are you doing Omar?

[@frantapolak]

Yes, how are you doing? :)

[@fearless6947]

hello?

[@carolenmarch-williams7417]

Very interesting. Yet another excellently produced educative film on Long Covid, sighting MCAS as the probable major underlying culprit , with very accessible advice on how to manage it via diet and supplements. Hopefully, this advice will be a major breakthrough for many. Thank you so much for doing the research to elucidate this for Long Haulers but also for those of us that have EDS

[@RUNDMC1]

Thank you Carol! :)

[@carolenmarch-williams7417]

@@RUNDMC1 Keep taking the tablets! Cx

[@Whistlewalk]

Thank you so much!! I've been feeling so abandoned. I'll be on this tomorrow for sure.

[@kimberlysullivan2187]

My daughter is an elite athlete with long COVID symptoms. She can't get back to her normal workouts and is having all sorts of issues. She has been on niacin 2 weeks and is seeing a lot of improvement.

[@RUNDMC1]

Really good to hear that. She’s going to have to be careful about getting back to workouts though - even easy ones.

[@rootsandvulture]

Please could you tell me how.many mg of Niacin she took?

[@kimberlysullivan2187]

@@rootsandvulture I don't recall the dose now. I think we found the information from this page though on what people were taking.

[@AlejandroLopez-rs6qt]

@@RUNDMC1 wdym ?

[@katherineb9815]

Niacinamide or niacin? How much? Can you recommend a brand?

[@ShayneWolfe]

I got diagnosed with Menieres Disease a few weeks after getting sick with what I thought was a common cold around the time that the first lock downs happened for Covid (Early 2020). I was getting vertigo 1-2 times a week, and was dizzy almost 24/7. I had to quit flight training, completely change my life, etc. It sucked. Doctors bascially said good luck to me and offered no real options. I was on my own. Nearly 2 years later, I'm almost vertigo free. I've only had 2 episodes this whole year, no more ear fullness, no more hearing loss, very little tinnitus. My theory now is that I actually had covid when I was sick in early 2020, and my long haul symptoms closley resembled menieres disease.

[@CaliHummel]

%100 cause this is me. What did you do to help?

[@ShayneWolfe]

@@CaliHummel Check out the John of Ohio regimen (google it). Like I said, I'm not sure if I just had long covid or if the regime is what helped...maybe a culmination of them both?

[@michellemoore7053]

This was really helpful! Thank you. I was fortunate to stumble on MCAS as a possibility in late April and strictly followed a low histamine diet (and vitamin/antihistamine routine) for 6 months. As a former tea addict I feel for you :). I went 6 months without a cup of tea, but have finally reintroduced 1 cup a day in November (major victory.) Good luck!

[@RUNDMC1]

Thank you Michelle!

[@ApprendreSansEcole]

Do you feel completely recovered ?

[@RUNDMC1]

Apprendre Sans Ecole No, I’m a long way from that!

[@michellemoore7053]

@@ApprendreSansEcole I am really close. Just very minor things left.

[@sharonproctor4079]

Why no tea?

[@carmenwheatley5376]

With MCAS you need to work on damping down the sympathetic nervous system. Low dose naltrexone and intensive breathing exercises, together with gentle exercise like Qi Gong, can work wonders. Cobalamin is essential because it is a key regulator of the immune system and directly impacts on mast cells.

[@sabinecohen8369]

So that explains why Famotine -taking covid patients had better out come than PPI-taking covid patients who developed severe covid:. The mass cells were somewhat inhibited producing histamine by Famotines' competition for H2 receptor sites.

[@jaisarmiento1188]

I still have prescription,Should we start taking famotine?

[@starlinguk]

I take it (I've had long Covid since March). It does nothing whatsoever. I'm going to stop, it's not worth the money. Tbh, a lot of the MCAS symptoms don't sound familiar at all. Oh, I take cetirizine as well, was already taking it before I got ill. It helps a bit with the rashes but that's it.

[@pattijesinoski1958]

as a pharmacist, i am against valium(dependency) and toxic SSRI'S for treatment. Many elderly end up with tons of longterm toxic results of SSRI, including chronic diarrhea leading to dehydration, sleep issues,

[@jessicam807]

Thanks for your hard work! I noticed a difference in some of my neuro symptoms following a low-histamine diet so I'm sticking to it. But I'm really worried about the virus lingering in our bodies, in my case this is month 8 and the cough came back. GP has no clue about it. I think it's pretty obvious at this point that we need massive research about viral persistence ASAP.

[@RUNDMC1]

Agreed.

[@headfullofmusic422]

how are you doing now? are you feeling like your normal self again? and could you share some anti histamine recipes?

[@jessicam807]

@@headfullofmusic422 hello! I am feeling much better since I started taking Famotidine (h2 blocker), honestly I am a really lazy and bad cook, I just eat simple things like chicken and steak, potatoes, I can manage to include tomatoe a few times a week. That's pretty much it. Cereals or porridge for breakfast. I also stopped coffee and tea 100%, which was super hard but I feel the difference. I still have some symptoms but I reached a point where I am able to work/clean/have a pseudo normal life.

[@teddybearroosevelt1847]

@@jessicam807 So tomato is high histamine. You may wanna avoid it altogether if you wanna alleviate your symptoms

[@ikyathay2998]

I'm trying to follow it. But I'm already underweight. So I don't know where this will go

[@micheleclark59]

I’ve had fibromyalgia for 15 years, in speaking to my sister who Has Long Covid, a Loud bell went off in my head. When she made it to the rheumatologist BINGO, She developed fibromyalgia. My point being if you HAVE a crappy chronic illness that runs in your family, (Also 2 1st cousins, total 5 of us with it) Covid tends to stress your body enough for it to surface.

[@nomebear]

I have directed my physician to view your interview with Dr. Tina Peers. This video answered so many questions.

[@judygmiller]

I followed the suggestions and my long covid symptoms lifted 95% across 2+ weeks. I didn't know about low histamine diet and needed very simple due to brain fog, so I just ate fresh cooked beef 2x a day while I studied. Now trying one new food a day. But I feel great!

[@RUNDMC1]

Very glad to hear it!

[@judymiller5154]

@@RUNDMC1 surprising benefit - the bedtime tachycardia I've suffered in clusters for years and was quite constant in past 6 months has disappeared suddenly with the low histamine approach! I was told by a doc 30 yrs ago my heart is fine, avoid alcohol (only trigger mentioned) and learn to live with it. May God abundantly bless you for all your effort helping us and bring you total healing! ❤🙏❤

[@jamesmurphy8676]

@@judymiller5154hi Judy how long did you do it for please reply. Hope you’re still better

[@marilialevacov2939]

It would be VERY HELPFUL to know the ideal DOSAGE for each of the supplements, please!

[@RUNDMC1]

I think it’s all in the video? Let me know which ones aren’t if so

[@Lolipop59]

She didn't say them properly . I mean , she said how much vitamin C to take ,she said selenium from supplement or brazil nuts ..one or two brazil nuts per day or selenium 100 mcg .. But I do not recall how much niacin , how much quercitin .so , I agree ,it would be nice a list of them with the dosage maybe in the description of the video ? And if those doses are safe to take them long term. Like zinc for example . It's ok to take 30 mg zinc for many month in a row ? Thank you for the good work

[@RUNDMC1]

dita4911 500mg niacin and quercetin daily

[@Lolipop59]

@@RUNDMC1 Thank you very much

[@GR1MMDJ]

I’m so glad I found this channel. Thank you for all your information and encouragement. I had a question if anyone knows if coffee / caffeine is ok to drink. I feel like it enhances my mood in the morning but sometimes seems to trigger some symptoms after.

[@RUNDMC1]

Different for everyone - but can certainly be a trigger for some. You can mitigate with antihistamines to some degree

[@nomorel7884]

Hallelujah for this interview!!!!!!!! Finally someone that is saying what I have been thinking all a long with my 5 years of ME/CFS Dr Peers you are a godsend

[@JenDez-2017]

I would REALLY like to talk to Dr Peers. I'm not even half way through this video and she's hitting everything on my checklist. She even mentioned exercise intolerance. As an elementary student, I'd get a swollen throat filled with mucus and heart beating out of my chest (I was not an obese child). I was the fastest child in my class, for short distances only. The longer the distance, the more intolerable. I was eventually diagnosed with "Asthma", but my doctor said it was really "Exercise Induced Bronchial Spasms". Also, pre-covid, my lips would swell up with odd reactions to normal things, like to COLD (I was eating ice cream and was playing with it as a 3-4 year old, just cupping my lips around it), my lips were noticeably swollen for 2-3 hours afterward - enough for my uncle to make fun of me. I also had lip swelling after playing the "watch your mouth" game where you put a plastic dental appliance in your mouth and try to say words on a card. Same thing, my lips were swollen for hours afterward. I was also hospitalized with Anaphylactic shock for 3 days after a medicine reaction. Just lots and lots of scenarios like that over the years. Once having Covid, my entire system is haywire!!! Doctors here in the NW United States don't know what to do with me. They discharged me from the Cardiac Rehab clinic because they could see that my exercise threshold was declining and they diagnosed me with Post Exertional Malaise. I've also been diagnosed with POTS after experiencing PVCs, racing heartrate, dizziness, loss of balance, etc . . . They also suspect MCAS. I've also been found to have a soft tissue lesion, my hormone cycles are now extremely painful. The muscle and joint pain can be intolerable. But no one knows how to treat this.

[@revelation12_1]

How are you doing now? ❤

[@JenDez-2017]

@@revelation12_1 I was eventually dismissed with Long Covid and bedridden. I could only talk through gasps. After a month in bed, I began getting up, but pacing and doing only essential things (showers were only 1xper week) otherwise strength gives out completely. I got into a groove and was able to cope with a seated walker and could sit when I felt syncope coming. Now I'm walking a bit without my walker. It's been over a year and 3 months since I had Covid.

[@merrynhopkins1162]

Thank you Gez I’m a long hauler in Australia - treating myself watching and reading as much as I can You both have given me hope There’s absolutely no long covid understanding or MCAS here even at the clinics - the UK and northern hemisphere countries are so far ahead !!! Many thanks Merryn

[@RUNDMC1]

Best of luck to you Merryn!

[@BrandonGreenShow]

be careful who you tell your symptoms to in Australia... These MTHFR' Doctors wouldnt know what a MTHFR was if it hit them in the head! kzbin.info/www/bejne/qHfOh3h4h8uXr9U - getting taken to Psyche ward kzbin.info/www/bejne/bHXQc5SGmqyXn9E - Dont go telling your crazy symptoms to just anybody

[@briechilli4496]

How are you now ? I am in Australia too 😢

[@richardbriseno3032]

Long Hauler syndrome, otherwise known as ME/CFS, MCAS, Dysautonomia, Post Viral Fatigue Syndrome, Yuppie Flu, etc. is due to the virus persisting in the brain, Neurons and Glial cells. This prevents the immune system from clearing the infection completely. As a result, the histamine alarm remains ON and Histamine buckets stay full or near full causing symptoms that do not go away and vary with time. Watch her mention persistent infection at 12:15. I know about post viral illness because I got sick in April 2005 and still remain sick to this day with a stomach flu virus, Im awaiting antiviral development due out soon. Ive participated in 3 clinical trials out of Columbia, Ithaca and the NIH. Im glad to see this illness is getting much attention now, hopefully a cure will come soon. Ive been told its all in my head, be glad im not suffering from a "Real" illness, Eat better, take vitamins, etc.

[@drclareharley]

We have two 9 month long haulers in the family, this is incredibly helpful and high quality info, thank you so much!

[@RUNDMC1]

That’s alright! Got some very good data on the efficacy of the treatment too to show in my next film

[@TheBushRanger.]

How are they now Clare?

[@TALKCalgary]

This has to be some of the most informative information I've come across throughout this entire pandemic. So refreshing to to know that there are still a few people capable of thinking outside of the box and not just regurgitating government propaganda.

[@danmarquez3971]

Interesting!! Great tips, too! Chilis and red onions allegedly help stabilize mast cells. (Interestingly, they are loaded with quercetin). Regarding the low histamine diet, I think the low-histamine plant diet rocks. A problem with meat, fish, eggs, and dairy is that they allegedly increase TMAO via the gut flora. TMAO reportedly increases inflammation, which calls to question the validity of the low-histamine cookbooks that promote animals products. (If you got bit by a lone star tick, meat can potentially give you anaphylactic shock !) If you have Type 2 diabetes or are prone to Type 1 diabetes, better follow PCRM guidelines! Despite all this, I do take the listed supplements (D3, zinc, etc.) and drink mineralized water (not sparkling) to keep kidney pH up. (COVID flourishes rapidly at pH 6...).

[@mariakristinahawl1640]

Would've been easier to follow this without all of the abbreviations.

[@lynnehill652]

I've had long covid for 2 1/2 years, with all the usual symptoms. Breathing and heart palpitations are the worst symptoms, but I also had severe fatigue until I discovered the amino acid, glycine. I take a spoonful three times a day in warm water. It has been the only thing that has helped me. I still am out of breath and I take metoprolol for my heart, but my energy is much better.

[@Anamaria-ew8lh]

Thank you again for the most important research for us, the long haulers! Hope we get better, soon!

[@jaisarmiento1188]

What are you issues?

[@Anamaria-ew8lh]

@@jaisarmiento1188 At 8 months after Covid, I still have troubles with fatigue, chest tighteness and, sometimes, digestive issues.

[@Carolann17]

I was in the hospital with covid pneumonia and I’m 15 months out and still have so much fatigue and brain fog. It’s so debilitating.

[@cindyritmeester]

I am a Covid long-hauler and have flare-ups with pain in lungs, pain in joints, pain in spleen and occasional eye infection. A friend of mine who works in the medical sector says my symptoms and triggers of long Covid remind her of an auto-immune disease. I was perfectly healthy before Covid, working out etc. I am looking at natural medicine now for possible support

[@ThànhTrần-333]

How are you now?

[@nancyblake1679]

No mention of ME/CFS, yet ‘fatigue’ is a major symptom. (ME/CFS fatigue is more correctly described as ‘muscle failure after minimal exertion’. And the IOM Committee reporting on ME/CFS went further..’the central characteristic of this disease is that exertion of any type - physical, cognitive or emotional - may adversely affect many systems ....’. Exertion can do multisystem damage.). ME/CFS , like polio, occurs after a viral infection. Covid is a viral infection, although from a different family. It is typical of ME/CFS patients that the previous life-style was a high exertion one...atheletes, marathonners, back-packers - and those involved in physically demanding care roles - women with small children, or looking after elderly or disabled family members. I suspect that this will be found true of many long-haul covid sufferers...it is notable that they tend to be younger, fit individuals whose actual illness may have been apparently mild. Melvin Ramsay, Infectious Diseases consultant at the Royal Free who treated and recorded patients from the 1955 outbreak, concluded that complete rest from the inception gave the best prognosis, and many patients at that time (also from the 1932 Los Angeles outbreak) fully recovered. He recommended six months of complete rest, and even now there is an occasional patient reporting full recovery fromME/CFS after a brave GP told them to just go home and rest for six months. One interesting piece of research would be to study whether long-haul covid was more likely to occur in patients who tried to maintain an active life-style during and after their illness. And whether a relatively lengthy period of convalescence focusing on conserving energy would be more helpful than attempts at ‘rehabilitation’...encouraging increases in activity, and even exercise.. ME/CFS does include immune system disorders...either over- or under-activity. Many patients ‘catch everything that’s going’, and are sicker than most when they do. Others, (I am one of them) suffer a more or less permanent state of immune activation (a bit of exertion brings on a sore throat...hard to offer a psychoanalytic explanation for that!) but almost never get sick, or only mildly, when the usual run of colds or ‘sickness and diarrhoea’ are going around. The continued immune activity, and the fact that the illness fluctuates in relation to exertion throughout its very long course: activity continues to bring on relapse; concentrated rest continues to create some level of improvement - suggests that there is some level of viral potential hiding away..possibly in muscle fibre. People with ME/CFS tend to have discovered for themselves many of the supplements you suggest, which again seems to point to common features. Finally, I was struck by your remark that mast cells are renewed in six months. It quite possible that this is nothing more than a coincidence, but could the six months of rest prescribed by Ramsay have permitted the active mast cells finally to overcome whatever element of pathogen still remaining, and to have produced new cells no longer overstimulated by that, so able to function normally? That would be a complete recovery.

[@stephieg]

This totally makes sense. I have long covid and was diagnosed with MCAS about a year after I got covid. Also have had autoimmune diseases and allergies for years although my immunologist says my immune system is very peculiar and based on biopsy results and so on my autoimmune dieases are not tied to my MCAS - he says it is almost like I have two different immune systems.

[@EmuEmi]

Did you try the low histamine diet? Did it help?

[@petinapowers2869]

RUN-DMC, MCAS as a part of the problem makes sense. I brought this up to my PCP (GP) and he just brushed the idea it off. (Honestly, as most of you know, it is exhausting to work and study, much less be your own monitoring device and specialist.) I cook with chilies on a daily basis, but I also eat bananas and citrus on a daily basis. So, maybe they were counteracting each other. On another note, I believe my recent episodes with hypersomnia were triggered by increased activity. The upside is that every time I emerge from one of these episodes I improve cognitively. I am still disorganized though, and out of breath after a block or so of walking.

[@lillimay5]

I cannot thank you enough. My doctors who even know MCAS couldn’t figure out why I wasn’t responding to my normal meds after my illness

[@RUNDMC1]

Hope that this helps you - my symptoms have definitely been improving since changing diet and taking supplements

[@MrLuca18]

@@RUNDMC1 what diet you on and supplements

[@paulp1372]

I absolutely relate to the 'getting of histamine high foods' . When Long Covid hit me hard for three months from early January 2022 - it was straight after a slightly binge based Christmas period - of increased dairy, meats and alcohol

[@jzinser-mandala9117]

Wow. This was really helpful.I have been eating some things I thought were really good for me, but are not. And, no tea for now. Your podcasts have been more helpful than many others..or even my doctor. Thank you!

[@RUNDMC1]

It’s a pleasure.

[@emilianosintarias7337]

Dear Gez, If possible can you keep asking the following question: a low histamine diet is extremely unrealistic for most people, particularly in Asia which is where the average person lives, but also in many parts of Europe and the southern hemisphere. Whole national cuisines can't exist without vinegar, soy sauce, chilies,spinach, tomatoes, cheese, etc. How can MCAS be treated without such a diet?

[@RUNDMC1]

With antihistamines but you’re on a bit of a losing battle! You basically have to prepare all of your own food.

[@victoriahaines5877]

I was fine before COVID but been struggling ever since

[@MrLuca18]

Same here 😭😭

[@victoriahaines5877]

@@MrLuca18 it’s pityriasus rosea. Awful. Been going on for 4 months. Amongst a host of other things

[@MrLuca18]

@@victoriahaines5877 have u tested positive for Covid, all my test have been negative this year

[@victoriahaines5877]

@@MrLuca18 yes. I had it in March.

[@MrLuca18]

@@victoriahaines5877 all my tests have been negative it’s so wired and antibody test negative too

[@minituremarvels]

I made a comment a while back on experimenting with water fasting to combat my Long Covid. I was suffering with debilitating fatigue and PEM that would leave me unable to do the laundry. Breathlessness, the lot. Life felt on hold for the best part of a year. I did a 3 day water fast (with salt/electrolytes), and can now happily say my condition is cured. Resolved 95% within a week of the fast, brief minor recurrence of very mild fatigue for a few days here and there, now 100% gone. Just a case of rebuilding strength and cardio now. Can do full strength training sessions as per pre Covid, no PEM to speak of. I’d highly recommend people to try this, with proper research and advice from a doctor. Any questions, I’ll do my best to help. May everyone recover as fast as possible. Cheers 🙂

[@abdielmata]

Great you recovered! I’m on my second bout with Covid and second bout with Long Hauler symptoms. Have your symptoms come back since then, did you follow an antihistamine diet and did you take any supplements?

[@minituremarvels]

@@abdielmata I feel really lucky to have recovered with this method! No, I have not had any relapse since March when I did the fast. Waited this long before posting as I wanted to be sure it wasn't just a temporary fix. Just did a heavy gym session last night, no PEM to speak of. I didn't undertake the antihistamine diet. The other things I did were acupuncture, niacin (which helped a bit), and meditation.

[@cryptocurrency2312]

@@minituremarvels what supplements/vitamins/medications you took while fasting?

[@minituremarvels]

@@cryptocurrency2312 Nothing other than the essential electrolytes; salt (sodium chloride), magnesium, potassium (be very careful with this as you can overdose!), and calcium. Electrolytes are essential when fasting as you can easily become imbalanced and start getting symptoms that will force you to end the fast without them.

[@abdielmata]

@@minituremarvels thank you! I’ve seen your testimony comment on several videos. On day 3 and going for 7! If I feel good, I may keep going. My muscles don’t hurt as much anymore, but the fatigue is still there.

[@BarryOGrady]

Thanks again, Gez. Great video. Three months with Long Covid (and have asthma since childhood). Fatigue is the main thing. Hits me at about 4pm every day and the legs have that feeling you get when you've got lactic acid built up after a series of uphill sprints. Tina is right - I go for a walk, and the next day I am wiped. Anyway, I will give this three/four step plan a go. You need a rack for your nice marathon medals! Can't wait to be back up training for one ...

[@RUNDMC1]

Thanks Barry - Tina is right, you have to really reduce the amount you’re trying to do. And yes those running medals are a mess, I ought to sort them out!

[@captmorgan2063]

Barry how are you doing now?

[@BarryOGrady]

@@captmorgan2063 Thanks for asking. Still fatigued with sore muscles and the ankle and hip joints are sore each evening. Got ultrasounds (to check heart), X-ray (lungs) and bloods twice, nothing showing. Going to long covid clinic next week. Paying, coz you'd need a detective to find any long covid services in the public side. Regarding work, I have v understanding staff, so they are taking work off me :-) and have a lot of good projects going on with great people, so lots to distract me. Wiped every evening so bed at 9ish.. (not that I sleep). Am running - but no marathon in 2021 (real or virtual). Hopeful! And aware there are others who are a lot worse, so not complaining!

[@captmorgan2063]

@@BarryOGrady hate to hear that but keep the positive attitude I'm going through the same thing I am 9 months post covid still can't work out and dealing with mcast histamine like issues

[@BarryOGrady]

@@captmorgan2063 You able to get help? As per Gez's suggestion to me, I took it real handy and upped my running v v gradually. Now and then I crash for a few days by overdoing it, though. Yeah, stay positive. I have continued on the Vit D and C and then a generic every-vitamin tablet each day.

[@jeanettevalencia1975]

Excellent video! Im 2 months in, my only lingering symptoms now are severe fatigue and physical weakness. I’m told it gets better for most people at about month 4. Anyone else here finding improvement with their fatigue?

[@alicequayle4625]

I think most people find fatigue lifts a bit then but it's very important to take it very easy and not push yourself - eg best to avoid any cardio exercise. Physios for ME have some handy resources. I and others have found if you overdo it then you can get a big relapse. or even develop chronic fatigue. Look up info on pacing. Eg Purely Pacing. :) Hopefully this MCAS rehab will help too.

[@jeanettevalencia1975]

@@alicequayle4625 my doctor said I have chronic fatigue but to give it time. It’s just very frustrating when you think you’re making progress and hit a brick wall. At 2 months I’m still early though so I have to be more gentle on myself.

[@smokinace1383]

Hey I hope you are improving. I'm barely figuring this out had covid on new years. Can't even work. It sucks.lol you got Instagram btw?

[@robynboyleart8889]

I've had long covid for over 10 months. I've been on a low histamine diet and the supplements you recommended for a month now and I've had a massive improvement in my symptoms!

[@RUNDMC1]

So glad to hear that Robyn!

[@Dragonfly20233]

Could you say how much no flush niacin you take?

[@robynboyleart8889]

@@Dragonfly20233 I take 100mg no-flush Niacin from Holland and Barret. Looking back now at his previous video i think he said he started at a low dose of it 10-20mg. I just started with the 100mg ones and didn't have any issues but I don't know if it's better to start lower.

[@minuteinfo7567]

@@robynboyleart8889 Can you please tell me what your long covid symptomes ??

[@robynboyleart8889]

@@minuteinfo7567 extreme fatigue, brain fog, difficulty concentrating, post exertional malaise, whole body pain particularly in lower arms and legs, swollen hands and wrists, muscle cramps, chest pain and chest tightness, breathlessness, dizziness, tinnitus, insomnia, headaches, heart palpitations, migraines. I had covid exactly a year ago and I've only started to feel better since following the low histamine diet starting about two months ago and taking the supplements recommended in this video. I've recently been prescribed an inhaler which has helped too. The low histamine diet allowed me to feel well enough to start doing daily stretching exercises and box breathing exercises and now I've moved on to doing daily yoga. Finally feel like I'm healing

[@kd2533]

Her protocol has helped me immensely with long covid from both the virus itself and the shots,, EDS and MCAS. I'm grateful.

[@sabinecohen8369]

I have mild Raynaud's and some OA. I think anyone prone to autoimmune disorders will be prone to long haul covid.

[@llathem2212]

Yep. Correct, I have lupus and 10 months later I got better in August, but am now worse. I think it’s bc I had food allergies prior to COVID.

[@wicksandsticks]

I’ve always had post viral fatigue after having bad viruses (mono and the flu). Now I have long covid. Rheumatoid Arthritis runs in my family as well so I suppose I’m prone to autoimmune disorders. Maybe that has something to do with why I always get post viral syndrome. Immune system attack. I’m not a doctor but this is all very interesting.

[@jedbennett4912]

I’ve been at my wits end for months after countless Doctors visits and 6+ trips to the E.D when my symptoms spiral out of control. 12+ blood tests 24 hour ECG + Cardio Angiogram and still all the Doctors and my GP have been stumped and telling me this must be Psychological. I’m so happy I’ve come across your video tonight and finally have some answers as this condition has scaring the cr*p out of me - Even more so with the lack of information available! I’m the last week I’ve started taking NAC, prior to that it was B vitamins, Magnesium and ZMA, CQ10 so I was nearly on the right path and was seeing some improvements. Thank you so much for your time and effort in researching this. I’m going to adjust the vitamins and add in some antihistamines and 🤞🏻 the symptoms start to disappear! I’ve heard fasting is great to reset the mitochondria but I’ve been reluctant due to the symptoms I’ve been suffering but it might be worth giving it a go this week. Thanks again!

[@revelation12_1]

How are you doing now? ❤

[@lauwebeats]

Please make the PeopleWith app available outside of the UK. Nobody is collecting data about longhaulers here!! And we need those data, not a youtube video.

[@pezo1919]

+1

[@susipp335]

Definalty. I live in Spain...

[@kellycollins8228]

In the US there is covid.joinzoe.com/us It is a study of people self-reporting their COVID symptoms daily via the app. Unfortunately, it doesn’t have the features of the PW app but it collects important data. I report every day. Cheers.

[@sluggobear]

I've been using the app called "Bearable" to track my own symptoms, medications, foods and mood. It's been VERY helpful to me, even if it doesn't feed back to a broader database with other users.

[@ebaldwin-charles9804]

Just come across this. I am a PT and pilates instructor I WAS a strong very fit 49 year old… I competed in duathlons trained 6 / 7 days. I now struggle to get through my day I just teach my clients and then I go to bed… I am so low… I’m also vegan… but also drink coffee and green tea… so they’re out. I need everything that I can to try to get back to health. It’s been more than 12 months.

[@magdachrzastek2340]

Hi, I Home you got better, but just in case, acupuncture, homeopathy and craniosacral therapy might help too. It did help me. Still dealing with some symptoms, but I also got bad cold in between that set me back a bit.

[@ebaldwin-charles9804]

@@magdachrzastek2340 thank you. I’m getting there… slowly. I might add some of those in in case they help. 🥰

[@teddybearroosevelt1847]

It seems that taking N Acetyl Cysteine, which is the precursor to the antioxidant glutathione, as well as glutathione itself has significantly improved my condition. Anyone else who has this experience? Let’s spread the word!

[@RUNDMC1]

Great to hear it!

[@kaypresley6446]

YES!!!.... I cannot drink even a FEW sips of iced coffee before the immune response kills me! My worst symptoms are shortness of breath, gastrointestinal problems and Heart rhythm..... I used to drink coffee and tea and now it's got to go! I had an attack today, thought I would have to do to the ER?

[@RUNDMC1]

You’re not the only one Kay!

[@tanyawieczorek6603]

How are you doing now? Do you have POTS, by any chance?

[@michelleg4895]

Nice one Gez. As always, articulate, succinct and full of information. Thanks!

[@RUNDMC1]

Thanks Michelle!

[@kieronmccorquodale33]

I have all the symptoms of long Covid, if never been physically unwell in my life. I saw my Dr told him the symptoms he just " Dont know what that is" Without any blood tests or anything. I wonder how many are struggling the same with GOs who either havnt got a clue or really dont care, this as been my experience ere in the Wirral.

[@RUNDMC1]

Huge numbers - although there is guidance for GPs now so they should know what it is

[@DeirdreSM]

Looking at the low histamine diet…that's already what I'd been doing for the most part, though I do like my legumes. This could explain why I feel better when I'm taking antihistamines regardless of whether I have active "allergy" symptoms or not.

[@leannshort2211]

I acquired Covid in April 2021. I recovered after about 2 weeks and then 3 months later all my symptoms exploded, mostly respiratory. Severe congestion, chronic productive cough, tons of mucus, itchy/ tickle in my throat all the time, hard to breathe, loss of taste and smell, Constantly blowing my nose, post nasal drip, little red allergic pustules that pop up on my face from time to time, usually after eating something with histamine. Severe fatigue and brain fog, (that has actually gotten better recently) Here are my questions. I am doing the GAPS diet to heal a leaky gut because I definitely had some issues for years before Covid. I had been going to an ENT and allergist for years because of “allergy” type symptoms or so I thought! I believe I had MCAS for years before Covid. I was also diagnosed last year with Chronic Lyme disease which I believe was the actual trigger for the MCAS as I have probably had Lyme since I was a kid! I tried a low histamine diet before starting the GAPS diet, this January 2023. It actually made me worse and I was down to eating like 8 foods! I believe the GAPS diet is what will heal my leaky gut. However, the GAPS diet has you introduce a lot of homemade probiotic foods like sauerkraut, different fermented vegetables, Kefir, Kombucha to help reestablish good bacteria. It’s like a double edged sword for people who have MCAS! How are you supposed to stay away from high histamine foods so as not to trigger your Mast Cells, but still be able to re-populate your gut with good bacteria?! I’m so confused and feel very helpless. Also, all these vitamins, supplements and medications are great for helping manage symptoms but aren’t going to heal you. Also, your genes can be switched on and off. I believe that also depends on your gut health. I believe healing my leaky gut is what is going to actually heal the MCAS and other issues I have. Should I just go VERY slowly on the fermented foods? This is very confusing when you’re being told to stay away from high histamine foods but want to repopulate the gut for healing when I believe a leaky gut is the real cause of MCAS. I believe Lyme made it worse and then Covid was the icing on the cake! 😔

[@RUNDMC1]

Yes - go very slowly on the fermented foods - and just add one at a time - you may find some you react to and some you have absolutely no problem with!

[@leannshort2211]

@@RUNDMC1 Ok thank you, that simplified that greatly for me! I appreciate your content and advice!

[@ivocx2228]

Thanks to your info and the long covid FB group, where I learned about it, I managed to move from lying flat on my back for whole day to functioning almost normaly within months. I am able to do long walks again :-). Another thing that worked for me was fasting. I used to fast 2 days a week before Covid and as soon as I switched to low histamine diet and started to feel better, my body kinda required it again. What I find interesting is that in the days when I fast, I can push myself physicaly without negative effects the next day. This is how I was building my stamina: normal days taking things very easy, fasting days exercising more (within limits, after spending 2,5 months in bed, even a brisk walk is an exercise). Perhaps this may help with your running.. BIG THANKS for your tremendous work!

[@RUNDMC1]

So glad to hear you’re recovering! Fasting does seem to work for a lot of people

[@switzerstudio]

Can we get a follow up please?

[@hebejeebee]

I've had good response to taking Niacin over the past few days. Not sure if it's a blip or genuinely making a difference but I've definitely felt more energised and mentally alert. Take 50mg multiple times daily..

[@rhyothemisprinceps1617]

Niacin will increase NAD+, so maybe not a blip; some say you also need to take a methyl donor since making NAD+ uses up methyl groups. kzbin.info/www/bejne/hma4fpl5jMRladk

[@shrutipandey2]

You okay now ....plzzz reply

[@hebejeebee]

@@shrutipandey2 no, still suffering... 😔

[@shrutipandey2]

@@hebejeebee tachycardia???

[@hebejeebee]

@@shrutipandey2 no, mostly brain fog and fatigue

[@alisonreed4408]

This is brilliant as always Gez, thank you! One thing that wasn't so clear in regards to MCAS - is it a lifelong management? I know the partial answer was that once the mast cells are replaced in 6 months they can be less sensitive, but wasn't quite clear if that means they would no longer need to be managed..

[@DeadlyCyanide1]

I am eds, mcas and pots I can't thank you enough for this. This is the best ever and I learned somethings as well

[@RUNDMC1]

Thanks Amanda, I really hope it makes a difference for you!

[@DeadlyCyanide1]

@@RUNDMC1 thank you me too

[@josephinethornton3823]

The trifecta! I too have the trifecta and am here for this man's work. Both SO and I got Covid-19 and it's been fascinating to see the way it's been affecting us differently. He's experiencing dysautonomia for the first time, and mine is WILDLY out of control, as is my mast cell. I often wake up with parts of my face swollen, which is shocking to see in the mirror. SO notices the chest tightness right before he leaves for work (he was bedridden for 3 months, and it's 6 months he's upright since then. He can work, but that's all the energy he has, and back to bed until work again). I suspect his chest pain right before work is due to the stress of trying to get ready for work, rushing to try not to be late, etc, and the stress of it causes a mast cell reaction.

[@DeadlyCyanide1]

@@josephinethornton3823 if you're mast cells are going out of whack you might not be on the right protocol and if you're not on a protocol you must be you have to find the right doctor to get you on the right protocol everybody is different so different protocols for different people it's all about trial and error in the beginning . If you don't have a Mast Cell Doctor please get one and the pots need to be taken care of by a cardiologist first and then a neurologist afterward if everything is okay with cardiology.

[@caroliner2029]

The FLCCC treatment plan has fluvoxamine on it for brain fog, but it's been discontinued here in Australia. It's disappointing.