How a scientific breakthrough sped up Casey’s recovery - LONG COVID RECOVERY STORY

Casey’s Long Covid recovery success story - how increasing serotonin was an effective treatment for Long Covid
Casey’s life was turned upside down after he caught Covid in January 2022. From running and cycling regularly he now struggled to walk 500m. His Long Covid symptoms included heart palpitations, brain fog and hard to control emotions. He found himself becoming angry easily and couldn’t understand why.
Learning about pacing and having therapy to deal with the trauma of chronic illness helped him feel much better within himself. After reading a scientific study that discovered many people with Long Covid have low serotonin levels Casey thought this could apply to him. Within 48 hours of beginning treatment he went from feeling 20% to 70%. Within a week he was able to walk 4-5km and hasn’t had brainfog since taking the supplements!
0:00 Casey’s symptoms
3:44 Depression
4:16 Loss & Acceptance
5:20 Learning how to pace
7:53 Serotonin study
CONNECT WITH CASEY
Facebook group - Long Covid Recovery Stories groups/93818...
RESOURCES MENTIONED IN THE VIDEO
Serotonin study www.pennmedicine.org/news/new...
The serotonin test Casey used gettested.co.uk/product/serot...
Working to Wellbeing www.working2wellbeing.com
This is part of a series of videos discussing long haul Covid symptoms and treatment. People share their experience of Long Covid functional medicine, long Covid recovery using neuroplasticity and reveal new Long Covid treatments. It is an evolving area so we try to keep up with the latest Long Covid news in the hope scientists will not only discover a treatment for Covid long haulers but a treatment for chronic fatigue syndrome too.
LIVING WITH ME WEBSITE
livingwithmecfs.co.uk/
CFS RECOVERY PROGRAMS
Free downloadable guide to 6 of the most popular recovery programs
livingwithmecfs.co.uk/me-cfs-...
SHARE YOUR STORY
If you would like to make a video sharing what has helped you recover, or significantly improve, from ME/CFS or Long Covid email [e-mail]
Living With ME CFS
We share practical tips, helpful resources and recovery stories for people living with myalgic encephalomyelitis chronic fatigue syndrome and Long Covid.
Whether you identify as a spoonie, chronically ill, disabled or as having an invisible illness you are welcome in our community. Think of us as on online chronic fatigue support group.
We share alternative treatments for chronic fatigue syndrome. This includes chronic fatigue syndrome therapies which are holistic and scientific.
People talk about the CFS symptoms they experienced and the chronic fatigue treatment they tried. They share how to cure chronic fatigue syndrome naturally. Their ME CFS recovery story will inspire you with your chronic fatigue recovery journey.
We understand healing chronic fatigue is your priority. We do our best to provide tips for everyone from those living with mild chronic fatigue to those with severe ME CFS.
And let's not forget about chronic fatigue in children. Losing your childhood to this debilitating illness is one of the cruelest things that can happen. Hopefully some of the advice we share will help facilitate their recovery from chronic fatigue syndrome.
#cfs #chronicfatigue #chronicfatiguesyndrome #mecfs #myalgicencephalomyelitis #cfsrecovery #mecfsrecovery #longcovid #postcovidsyndrome #covidlonghaulers #covidlonghauler #postviralfatigue #pacing #postexertionalmalise #pem

[@Joe-bh7pf]

I'm concerned about the profit motive of pharmaceutical companies that produces vaccines. I don't want to support an industry that prioritizes profits over people's lives.

[@elmerhernandez3780]

The pandemic also exposed weaknesses in our global response and preparedness. We were caught off guard, and it's cost us dearly.

[@dorathyfoster1459]

I totally agree! The economic effects of Covid have been devastating. It's such a challenging time.

[@uncle-nice6556]

The economic fallout is also catastrophic. Businesses shut down, jobs lost, and economies in shambles.

[@ChrisMinorOfficial]

@@elmerhernandez3780we were not unprepared for a pandemic. The majority were sabotaged by the decisions made by their own governments who decided to do the exact opposite of anything rational for 2+ years. What you witnessed was a controlled demolition which was used to restructure society and bring about rapid changes under the guise of safety and emergency preparedness. This happens continually throughout history and has happened multiple times in our lifetime already - I don't understand why there are still many of you who are repeating main stream talking points. The only certainty is that we were all lied to about everything that happened with whatever Covid was. There are only so many mistakes that can be logically dismissed as incompetence, before one must confront the fact that corruption is at the core of a situation.

[@anniemoureaux4839]

Thank you so much, Casey. I'm 83 and developed Covid...a mild case the first of March, '24. Around the first of May I developed extreme fatigue (I'd been walking 2 miles per day since a heart attack a year ago) and have been sleeping 10 hours/night plus a couple of two hour naps daily. And definitely brain fog..difficulty making decisions and no motivation. I've been watching medical discussions, but they were so technical and honestly offered little hope. Deep down I KNEW that alternative treatment was available somewhere and you have experienced this. I will talk to my cardiologist before starting 5-HTP etc., but just know that you have given me HOPE and I am so very grateful 💖

[@livingwithmecfs]

So glad Casey’s story gave you hope 😊

[@lindahardacre925]

What is 5htp

[@graetelsullivan1612]

Sorry that you have gone through LC only us people who have had it know how horrible you feel.

[@cybco]

Totally have the same things. I'm dealing with this for exactly 2 years now. Can't work, have to sell my house now. Not sure what I'll be doing. People say, just push through it, not realizing when you do this, you double your time in bed and brain fog.

[@livingwithmecfs]

oh no, I’m sorry you have having such a hard time. This illness can be so tough to deal with and people don’t always realise how it impacts every part of your life

[@gail5794]

You can’t push through Long Covid. Doing that makes it worse.

[@robertbell6313]

At 78 I have experienced all these following COVID . Your experience has been so helpful on understanding what the majority denied in the medical world and in government . Only now has it been accepted and fortunately some experts have both revealed and advised what you and I have experienced . Thank you so much and may your recovery continue .

[@livingwithmecfs]

I’m glad you found the video helpful 😊

[@nelgoncalvesgoncalves3508]

Gut problemas,extreme fatig,depression,brain fog,palpitations,bad sleep,,many more....

[@michaelrobertson7397]

It sounds like you are having a classic reaction to the deadly poison in the liquid reagent of the Binax Now Covid-19 take home test. The CDC website tells us that the reagent, Sodium Azide, kills us in the same manner as does cyanide. You have the exact symptoms of exposure to the fumes from this test, which also include severe weakness, breathing problems, no energy, severe headaches, anger, brain fog, depression, poor sleep, and just feeling horrible. Hundreds of millions of these test kits have been sent out to homes in the U.S. Welcome to the club.

[@michaelrobertson7397]

You are being exposed to the deadly poison in the Binax Now rapid test.

[@Ytdeletesallmycomments]

Most symptoms go away by changing your dieet to low histamine and fasting and taking Tulsi Milkthistle Woodworm soursop moringa vit d Nac and charcoal. I started with omad, low histamine no sugar and processed food. Now three months later the gut and stomach dont hurt anymore. Naussea is gone. After two days i felt better with brainfog and sleep very good. When i eat something bad now i get the panic attacks and depression. it is a puzzle 😂😂. Toxic human stress brought me in a new crash. Avoid them too. 😂😂 I use a diffuser with pure rose oil and helichrysum to be relaxed. Tulsi also calms the nerves. The oils didnt restore my smell yet unfortunaly. I have the Visible app now too for pacing. Also a good tool. When i have legcramps and could not walk for days i use charcoal. I dont know why it works. I was so desperate i tried a lot. Maybe it was toxic in my muscle? Never came back. So i am good with it. 😂😂 Good luck on your journey.

[@nataliiazhukova9624]

O, my God! Finally I found a software engineer, who suffers from long COVID! I am also software engineer and have been living with LC since march 2021. I can't be back to half time work with great symptoms management, which my neurologist prescribed me. All the best to you! Thanks a lot for sharing:)

[@Kathyahedrick3]

I have all the symptoms and have been feeling hopeless, I am having trouble with my thyroid, I am very tired, but have hard getting to sleep at night. Thank you for sharing, this is very important for me to know now, that I’m not alone or crazy!!!

[@livingwithmecfs]

Sorry to hear that you are struggling. Thyroid issues can make the exhaustion so much worse so hopefully when you are able to get your thyroid levels stabilised things will improve a bit 😊

[@richguard5167]

Thanks for your story...would you mind telling us the dosage of 5-HTP, L-Tyrosine and Choline you took daily and what time of day? Thanks

[@FlaGrown1955]

My son's wellness doctor also prescribed NAC 600 [pure encapsulations],Methyl-balance [Klaire labs], antihistamines [zyrtec], and florassist balance[Life Extension]. LDN .5 and raised every two weeks until 2.5. My son got covid several times but not the shot. This doctor said to ALWAYS treat covid with an antibiotic, do not think you will build an immunity to it. This was created in a lab, and you will not beat it.This creates inflammation, so a low histamine diet was also suggested. We went off red meat,pork,wheat, and dairy,and went to plant based. Also, dairy and gluten free.He is doing great now. Once in a while, he gets a little dizzy. We also found out he had hasimotos during this. The virus, long covid attacks the thyroid first because of the ACE2. Symptoms are the same. It has been a year and a long battle. He got myocardits in April 2023 from so many covid infections that went untreated,they think. The hospital ran a bunch of viruses test and found nothing.

[@CaseyGoodhew]

So sorry I missed this comment. I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@lindahardacre925]

What is 5htp

[@longcovidwarrior]

@@CaseyGoodhewhow’s it going Casey? Still going strong?

[@J.A.706]

Thank you, this described my experience almost exactly. I'm sorry you had to go through that. Glad you're feeling better.

[@venusvassar2201]

Thank you so much for sharing your journey to recovery!!

[@JustLovinLife360]

Thanks Casey valuable information, wishing you continued good health ❤

[@mr.matiss]

Thank you for sharing your story.

[@Keithzzzzt]

Choline is also a methyl doner. Undermethylated people will have a wide variety of issues including fatigue , depression and low serotonin. Anyone with the mthfr gene is at risk of low methylation. Choline and Tmg are excellent additional methyl doners. Eggs are a great source of choline.

[@Truerealism747]

So true found out I have autism why I have low serotonin and thus for 27 years what is tmg

[@rangerdoc1029]

MTHFR, but supplementing messed me up. Severe anxiety & depression.

[@Keithzzzzt]

@@rangerdoc1029 thats unfortunate...10% of mthfr people will not respond well to b vits, especially folate. The extra folate seems to trigger yet another gene that increases the rate of clearance of serotonin from the brain which can exacerbate depression or anxiety. Have you tried choline and Tmg to raise your methylation status? Agmatine ...an amino acid , haa been shown to cure depression in as little as three days. It puts a blanket on my racing thoughts...but again, it depends on the genetics of the person. I gave a friend some agmatine to try and it made her jittery. It can increase epinephrine in the brain and if you are already a high adrenaline person it will make it worse. I suspected she also had the COMT genes. It results in poor clearance of epinephrine and dopamine from the brain. Its called the " warrier or worrier gene" depending on what combo you have. These people are wired but tired. Are you on a ketogenic diet? A ketogenic diet is now proven to cure depression, anxiety, bi polar disorders and even schizophrenia. It rebuilds mitochondria by 400% and reduces oxidative stress and immune reactions in the brain. 2 good books are " Brain Energy" by Dr Chris Palmer and " Nutrient Power" by Dr William Walsh. There are many causes of depresssion and you almost have to become your own naturopath to find the solution. Carbohydrates and suger are the brains enemy because they result in oxidative stress in the brain and insulin resistence. Anything that lowers this stress...like a keto or carnivore diet...omega 3s, various supplements amino acids will help. Exercise will also help by increasing BDNF. Good luck.

[@arleneharvey1677]

Folate deficit also. Taking l’methylfolate and B12 shots. Will be starting ldnaltrexone soon for anxiety and no motivation also walking issues.

[@Truerealism747]

@@arleneharvey1677 any muscle pain

[@eheh3802]

Your story is just too similar to my own. Your success is inspiring. Thanks for sharing!

[@tinalyon4606]

I had exactly same issues with long covid. I also had a bad headache for a year. MRI showed white matter damage. I did many many things to get back to health. Eventually a course of ivermectin and hydroxichloroquine helped get me over the hump. Focus on gut biome was useful. Curcumin, B3, etc. Fortunate to b a stay at home mom with good prior health, physically active my whole life, & with financial resources. Homeschooling & gardening became difficult where before they were my passions. The scary thing is I got covid again in dec and weeks after , I started noticing mild long covid symptoms again. This spike is going to kill so many.

[@livingwithmecfs]

glad it helped you ☺️

[@livingwithmecfs]

thanks for sharing some of the things which helped you 😊

[@lando2755]

@@tinalyon4606 do you exercise now with no PEM?

[@marymarsh7633]

This was very helpful and I appreciate your candor. This has been hell. Life changing .

[@livingwithmecfs]

Glad it was helpful! 😄

[@taranehrohani]

So glad to hear you’re in your journey to full recovery. Thanks for sharing your experience and the resources with us!❤️

[@livingwithmecfs]

Glad you enjoyed the video

[@graetelsullivan1612]

Thanks for doing this I’ve had LC for over a year and half ago, I still have brain fog, still have palpitations, my hair continues to fall, my vision has diminished greatly😊 and variations with BP. Yes, thankfully it’s now that the government and people are saying that this is real. I had MOI multiple organ injury.

[@livingwithmecfs]

Sorry to hear you have had such a tough time. It is good Long Covid is recognised as real, hopefully all the research being done on it will bring some solutions 🤞

[@golfaholic6325]

I have suffered with long covid for 15 months now. 5 er trips in the beginning with high heart rate and palpitations. I have spent a few thousand on supplements trying to get myself back. Palpitations, internal tremors, trouble sleeping and anxiety that I never had in my life. All my symptoms are now gone or managed except for the anxiety that is my biggest issue now. I found many studies how low iron is a major player in long covid. Not that we don't have enough just our bodies cant use what we have properly. So we need to add more and try to use what we have better. Once I started supplementing Iron my palpitations went away. Your hair loss and palpitations are iron deficiency symptoms. I take an iron supplement and lactoferrin which helps the body use the iron we have better. This is not medical advice but worth trying. Also Magnesium taurate is great for palpitations.

[@CorckyS]

Thanks for your message. I took your advice and my fatigue en brainfog has been changed. We are feeling must better than before.😊

[@livingwithmecfs]

That is great news!

[@davidhochman4524]

Hi, which advice exactly did you take and now that it is 2 months later how do you feel?

[@sarahclark7974]

Thank goodness you're on the mend 🙂

[@ASquires-wc8ii]

This is exactly what I have gone through the past couple of years. It was horrific and no one could help me. I have gotten better over time but I am only 90%. I still have post exertional malaise and a bit of anxiety. I am going to try your protocol to see if I can get to my old self. I miss running and cycling. I got to where I couldn’t even pick up my small children and carry them. I couldn’t even cut my grass.

[@livingwithmecfs]

Sorry to hear how much you struggled but it is encouraging that you have found some improvement ☺️

[@rayannwaldron7895]

What a Victory after two years! Very inspiring and great info! 🙏🏽❤️

[@livingwithmecfs]

Glad you found it helpful 😊

[@moniryousefian8782]

​@@livingwithmecfs Did you mean 5htp ?! May I ask which brand did you use for your supplements?! Greatly appreciated 🙏

[@_f_6957]

Wow, I’m so sorry to hear you went through that 😢 your story sounds very familiar to mine.

[@magdachrzastek2340]

Thank you for this amazing sharing!!!!

[@livingwithmecfs]

You are welcome! Hope you found it helpful

[@5thingsididtoday]

Thank you!!!❤

[@agaglowala8608]

Thank you for sharing, wishing you all the best 🍀

[@swyllie30]

Great story!

[@Andrew.garza_]

I too experienced some symptoms but not to your extent sorry to hear you guys going through these symptoms and complications. I’m currently gonna try NAC and a 5 day fast.

[@randolphwilliams2365]

I can relate to your story. I've had it for 3 years. A new life.

[@semracalik3040]

How did you recover from it?

[@lando2755]

Are you recovered?

[@renaissance5300]

over 2 years for me plus lyme disease for 14 years spplements helped a bit mostly for lyme but now still exhausted. whoever created these dis--eases should rot in hell

[@SuperBC10]

3 years? Me too - and am still suffering. Thyroid issues, nerve damage and heart issues. Depression like nothing on earth. Tried loads of things and nothing has worked. Nothing. I’ve realised I’m gonna be like this always.

[@ssd9597]

I am suffering from these kinds of symptoms from 3 plus years and now i am dealing with extreme fatigue..... Even I can't drive a two wheeler for long distance...it feels like whole energy sucked with nausea and balance issues... problem in concentrating ..... can't think too much....and also experienced weight loss.….All blood test are done nothing is there ..in starting b12 vit was low which i fixed now Vit D is very low ......Other than this everything is normal....then also lot's of weird symptoms..

[@krachr1]

Thank You!!

[@livingwithmecfs]

Glad you enjoyed the video 😄

[@teriveee]

Well darn. I wish I'd known all this earlier. Thanks so much

[@livingwithmecfs]

Glad you found it helpful 😊

[@ANYTHING-AND-EVERYTHING.]

Myself, wife who was born with a heart condition and 2 daughters in their early 20s never had any of the jabs or wore masks etc, covid was never an issue, several of my friends and family that did take the jabs now have heart and other health issues requiring ongoing treatment and 3 of them hospitalised with blood clots, they also complain of constantly getting colds and other viruses, also 2 people in my village had heart attacks within a few weeks of first jab, both under 50 years old. My reason for not getting the jabs is something just didn't sit right with me after a few weeks into the so called pandemic, could see most of it was propaganda to create the fear for compliance....

[@jennycatlike]

I don't doubt your personal observations about the jab however want to note that the dangers of covid are far worse than the dangers of vaccination. We each have to weigh our risks in life though. Also for people who have long covid, getting vaccinated helps 60% BUT worsens the symptoms for 20% of those who have long covid. I don't know if Dr. Daniel Griffin talks about getting vaccinated for prevention in this video although he regularly references evidence about covid vaccinations helping reduce risk of illness from covid - but he has quite a bit of info on dealing with long Covid at the end. kzbin.info/www/bejne/g4GtpHSLoNN7l6s

[@JeannieIsLauraIsJeannie]

Stop, just please stop with your politicised opinion ... try some compassion instead ...

[@AS-gj9hs]

i didnt get the jab either... yet here i am.

[@TheCurriepower]

What your saying is anecdotal. I didn‘t get a single jab yet have had long covid since Christmas last year. Had it early 2022 as well with no problems. Most of the people I know who have it are UNVACCINATED. I also don’t know many people with problems from the jabs despite living in Austria where it was mandatory. Ofcourse there are some but I believe more who developed long covid than post vaccination syndrome

[@avasmith3451]

Yes its long j@b

[@derekp.1516]

Congratulations on doing much better. Could you share supplement brands and dosages?

[@seattledutch]

Have you found this information? Please share if you did.

[@ghadahanna1222]

Congratulations 🎉

[@vernabryant2894]

I'm having long covid for 3 years know.Im having problems with my memory.I can't remember words to talk.

[@livingwithmecfs]

I am sorry to hear you are struggling. I think brainfog and cognitive issues can be a problem for many people

[@opinionsarelike3865]

This seems to be a very useful lead, thank you. I already was taking choline and it surely helped, I will get the other two (L-tyrosine and 5-HTP).

[@livingwithmecfs]

Glad it was helpful! 😊

[@annemiller6360]

I tried it and got worse....

[@lynetteprice8519]

NAC really helps with emotions, and helps stabilize ups and downs. LDN really works to heal brain fog. My issue yet to resolve is muscle weakness, and neuropathy. I believe that the issue is a blood flow problem since I have POTS. I believe the theory in microclots and damage to the endothelium. I'm going to try Nattokinase and vit K2. One thing...plz keep trying to find solutions. Healing IS possible and we don't have to accept this low quality of life. I like the idea of managing expectations, and not being to hard on ourselves, but I really believe we can find solutions if we help each other. LDN, black seed oil, and NAC made a huge difference. There has to be other solutions

[@livingwithmecfs]

Thanks for sharing your experience and what has helped you, it’s always interesting to learn about what is working for others. I have heard lots of people find improvement with LDN, particularly for brain fog, pain and energy If you are thinking of trying Nattokinase you maybe interested in this video. Steve shares how it had a dramatic effect on his recovery kzbin.info/www/bejne/mXSXnpptjqtpj5o

[@amyperdue3957]

I added magnesium to my supplements. It helped with muscle weakness and brain fog within 24 hours. I take 250mg at night.

[@Truerealism747]

​@@amyperdue3957upper body pain my worst symptom do you have much pain

[@Truerealism747]

​@@amyperdue3957I have autism heds why we have low serotonin

[@marcelguldemond2523]

this is great, thanks for sharing. I've been taking 5-htp for a while, and I think it corresponded with an improvement in my mood and sleep, but not really a change in physical energy. I agree that acceptance is a crucial step in the recovery process. Would you say that it was important to get your pacing sorted before you found the serotonin supplement changes? I have a suspicion that the supplements' benefits might not have stuck if you weren't so good at pacing when you started them. I suspect that I haven't been pacing well enough, going over 50% too frequently, but I also just started ADHD medication so I'm trying to adjust to that too. It might make it a little too easy to over do it. I'm hoping to take a neurotransmitter test soon, and will definitely ask my doctor about adding l-tyrosine, since people with ADHD often have low dopamine.

[@CaseyGoodhew]

Pacing helps and I still rely on it (although not as much as before). I still get wiped out and need to recover, but the cycle is much shorter now. My biggest contributor is sleep, and I've completely cut alcohol out of my life. I found that even one drink gives me a two day hangover.

[@marcelguldemond2523]

@@CaseyGoodhew Yes, I'm finding sleep to be really important too. I had to cut out alcohol too, about 10 years ago because I think my fatigue issues were already starting then. (I suspect The fatigue was Possibly related to neurotransmitter issues) Alcohol has a very negative effect on your gut microbiome, which then affects your physical and mental health. How much 5-htp were you taking? I'm currently taking 100mg 2x per day, but I'm wondering if I've more or less corrected the serotonin levels and can cut back on it. (Will ask my doctor when they get back from vacation)

[@ssd9597]

I am suffering from these kinds of symptoms from 3 plus years and now i am dealing with extreme fatigue..... Even I can't drive a two wheeler for long distance...it feels like whole energy sucked with nausea and balance issues... problem in concentrating ..... can't think too much....and also experienced weight loss.….All blood test are done nothing is there ..in starting b12 vit was low which i fixed now Vit D is very low ......Other than this everything is normal....then also lot's of weird symptoms..

[@livingwithmecfs]

I’m sorry to hear you are struggling. Unfortunately it is a common problem that tests come back saying nothing is wrong yet we feel really ill and something is definitely wrong. I have found online support groups can be helpful for learning management strategies and sometimes finding out what tests may show up some issues

[@gleynnugent9356]

Thanks for sharing, I would consider my symptoms to be very mild, the fatigue brain fog etc. but the heart palpitations are an ongoing concern, just wondering how you are doing in that regard?

[@CaseyGoodhew]

Sorry for the delayed reply - brain fog and palpitations are completely gone now

[@ilovesketching1]

Oh yeah I soooo can relate a 100 percent to this video As it’s been about 3 or maybe it’s been 4 years 👀 that has gone by and I’m still battling through it’s the craziest thing to go through as weeks and even a month gos by then boom 💥 relapse 😮” I do try to pace it helps but sometimes I get so excited and then boom I guess over did it!!! 😒😔

[@livingwithmecfs]

pacing can be tricky, I think it’s normally to sometimes accidentally overdo it and have a set back but that does also help you know where your baseline is 😊

[@pamforrester844]

I'm in the same boat, only relief I've found is OTC Claritin and saline nasal spray, not a cure but gives me a few good days here and there,don't know how it helps but it did for me

[@raloufen4292]

Glad you didn't get that sick

[@tomslover7512]

Would be very helpful to know the amounts of each supplement you took. It could serve as a baseline for me in getting started on the program. Any info greatly appreciated.

[@seattledutch]

Have you found this information? Please share if you did.

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@seattledutch]

@@CaseyGoodhew thank you!!!

[@seattledutch]

Very interesting! Can you please share supplements and dosages? That will be really helpful. Thanks and congrats for finding a way out!

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@seattledutch]

@@CaseyGoodhew thank you!!!

[@NRCave1]

WE CAN & WILL HEAL!!!!!❣️🌻 ~Nick 26♌/Long Hauler for 3½ years.

[@livingwithmecfs]

I’m totally with you on this ❤️😄

[@breezylyn2168]

I get a horrible adrenaline/ panic attack type feeling ,extreme gut issues , horrible hormone issues ,chest pain , histamine issues ....

[@kaydlc11]

I got that awful anxiety too.... Still have it 1.5 years later. I hate it.

[@marcelloceccarelli4195]

Provavo sensazione adrenalina euforia confusione ma se parli con i medici ti guardano come un alieno questo è il long COVID

[@susanmorgan4151]

Same.❤

[@sheahun3284]

Eat healthy & take vitamins

[@sheahun3284]

Yes My progesterone went low and it gave me a low positive ana

[@clauthequeen]

Pacing is budgeting your energy for doing very important things only. 5 htp works because it helps with serotonin production. Also used as anti-depressant. I recovered after taking 5-htp and acetyl-L-Carnitine.

[@livingwithmecfs]

So great you recovered! And thanks for sharing what helped you. If you ever fancy making a video or writing a blog article about your experience and recovery journey then let me know - we are always on the look out for people willing to share their story 😊

[@sharoninks8468]

Same experience.

[@simonpkershaw]

I’ve asked some questions on the Facebook channel about use of 5-HTP, thanks really useful info

[@livingwithmecfs]

Glad it was helpful!

[@VsyoVklucheno]

Please tell us the dosage of 5-HTP, L-Tyrosine and Choline. THank you!

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@rosannazaffiro8075]

Just be careful with the serotonin. I was placed back on Cymbalta for nerve pains, I also live with chronic pain, while I was still on Busbar. After 12 or more days, I felt like I was on cloud 9. I couldn't remember ever feeling so good, but a few days later, everything came crashing down. I went a month on 3 to 4 hours of sleep a night. I then began getting very manic!! By now, I'm off the Busbar and just taking 60 mgs of Cymbalta. My doctor lowered my Cymbalta and will gradually increase it to 60 mgs. Just be careful of too much serotonin!!!

[@michaelb1621]

Samething here, got it oct 2020, feel like im almost better though. Started with breathlessness and went from there. Lots 3 years of work, trying to go back now.

[@livingwithmecfs]

Glad to hear you are feeling better, I hope your return to work goes well 😊

[@michaelb1621]

@@livingwithmecfs i still get the sweats and fatigue pain if i push too hard, any advice on that one? My sob improved alot over the year. Thank you.

[@livingwithmecfs]

@@michaelb1621 fatigue is a sign from your body you are pushing to hard. Try increasing your activity level at a slower rate. eg. Try 10 mins walk instead of 20 minutes, and increase by 1 minute at a time instead of 5. Recovery is a slow and steady process…think of yourself as a tortoise rather than a hare! You will get there but slowly does it!

[@browneyedgirlFL67]

What did you take that helped? Choline, L-Tyrosine and 5 HTP? Sound like HTC?

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@lynnbuczek8151]

I have had exactly what your discribing for a year now😢

[@rangerdoc1029]

You're describing me. ME/CFS, severe muscle aches, brain fog, POTS. LDN helped, but it takes very little to relapse: a cold, an insect sting, weather.

[@livingwithmecfs]

I’m glad LDN helped you ☺️ I have quite a few people say it has given them some improvements

[@browneyedgirlFL67]

How do I find you on the FB group?

[@livingwithmecfs]

if you search “Casey” previous posts he has written about his experience will come up so you could comment on one of those

[@user-hd6ux2xg8x]

I know ive been dealing with lc for a year now, i had wierd shits, and heart palpatations, and felt off balance, and all the doc told me was anxiety, and put me on meds, the palpatations are finally gone, znd i can now just start to exercise, it was wierd if i exerted any effort my heart rate would go crazy, shit sux so much, even affected my urine and ejaculation too

[@rowaneisner6802]

what I was taking was a food 9:54 supplement for 5htc which is what you 9:57 need to uh build your serotonin um L 10:01 tyrosine which uh builds dopamine 10:03 serotonin and dopamine work together so 10:05 if you boost one you want to boost the 10:07 other for um good balance in your system 10:11 and then Coline which is uh kind o improves your um cognitive function in

[@johnCjr4671]

Are there natural serotonin regulators ?

[@lynnbuczek8151]

I was laid off last Feb just when I got long covid how do I pay my bills if I can't train for new job which according to my son's girl friend who told my son that I should be getting a job😢🤯

[@MarkMelchior-lb6vv]

Try periodic 36 hr. Fasting. It flushes your body of the spike proteins. It works.

[@stevehisey389]

5htp or 5htc ? My son has long covid and I would like to try these 3 supplements and interested in brands and dosages? God bless.

[@livingwithmecfs]

5 HTP

[@5thingsididtoday]

Hi there. What is integration therapy? I do t seem to be able to find it anywhere. Do you have a name of a therapist you worked with?

[@livingwithmecfs]

I’m not sure what therapist Casey worked with but this is a directory of therapists in the UK. You can search by type of therapy they offer www.counselling-directory.org.uk/

[@fugginchit1]

Could you share your stack and amount? I don't think it was mentioned fully.

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@vinodkumarhypothisis2532]

I have pain in right side from brain to hand and 1st finger nerve pain test my heart is ok . How i manage it please help me . Thanks lots .

[@livingwithmecfs]

maybe try finding a Long Covid support group in your country. They may have contacts with health professionals who are able to asses you and advise you further

[@jeanbuchanan1660]

Long Jab

[@everyonehasvaids4980]

At Least Someone Gets It Here Theres Is No Long Spoof19 Its Aids 2.0 There Immune Systems Are Done From The Shot But They All Want To Live In Fantasy Land Believing In Something That Does Not Exist You Cannot Make It Up Mate Crazy.

[@christinerussell1132]

Not necessarily, I didn't get the jab & got covid REALLY BAD, suffering from long covid for over 3yrs now,not fun!!

[@everyonehasvaids4980]

The Towers That They Build From Day 1 From All This Nonsense . Our Diet Lots Of Our Food Is Poison So Body Detoxing. Also Seasonal Change. + Stay Away From Testing. There So Much Out There That We Have Been Lied To With Lots Of Different Things Its Beyond Crazy.@@christinerussell1132

[@kathb1683]

What “Food” supplements could someone take? I’ve never heard of them!

[@CaseyGoodhew]

In the UK, vitamins etc are considered food supplements (i.e. a non-regulated medicine)

[@EllaSloman]

What supplements did you take ? I'm taking 5htp ATM

[@wzupppp]

He's taking choline and L-tyrosine

[@EllaSloman]

@@wzupppp thanks 🙏👍

[@zonnebloem100]

​@@EllaSloman helpt the 5htp and and what doses?

[@joealitz4157]

How many mg of 5htp did you start with?? And the tyrosine

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@joealitz4157]

@@CaseyGoodhew thank you! How have you been feeling?!

[@mvann5]

Casey, is there some way to contact you? Don't see you on fb.

[@livingwithmecfs]

In the description there is a link to a Long Covid Facebook group that Casey is in. If you join the group and search his name you should be able to find him

[@wzupppp]

Would you consider yourself fully recovered? Do you feel like you did before the virus?

[@jaswinters]

we have similiar causes i had it bad in 2020 fevers of 104 for 2 weeks and have been dealing with extreme anxiety i think i was never depressed until i realized how bad my anxiety was and how it is changing my life daily my job my relationships, it gave me Fear for no reason and claustrophobia maybe what they call the fight or flight syndrome but i have a theory about the brain like you, i am a multitasker i write code, and engineer/tool and die , bought a bar then covid hit dealt with my dad getting sick and dying, friends passing away and i think even tho we only use a small % of the brain i think its like a harddrive and gets full and when it needs a scandisk or defrag it runs like shit, also covid effected the Vagus Nerve and definately some gut issues... so i am taking meds hopefully this will help

[@jaswinters]

what meds did you take?

[@livingwithmecfs]

Sorry to hear everything you have been through, it sounds tough. Hopefully the meds you are trying will help

[@jrose4209]

I got denied from this FB group. I felt disappointed . It’s hard enough doctors and friends don’t believe me.

[@livingwithmecfs]

oh no! Did you answer all the questions? Some Facebook groups deny people if they don’t answer the entry questions. FYI - I don’t think Casey is an admin of the group, he is just a member who uses it as a place to connect with people who have Long Covid

[@callaghanhurley4202]

Just got covid for 1st time but im worried bc i have heart condition ,fever went away but cant sleep at night with palpatations and then uf i fall asleep i wake 2 hrs laters with more papatations😢

[@livingwithmecfs]

Oh no, palpations can be very distressing. 😞 Quite a few people with Long Covid develop POTS or dysautonomia which can cause heart issues. Perhaps it is something you can discuss with your doctor

[@ChrisKadaver]

Your "blood levels in your urine"? What does that mean? What suppliment for "5htc"?

[@markleonard4452]

Levels of serotonin in the blood were low

[@deborahd.7281]

He may mean 5-HTP, sounds like he said 5_HTC though

[@EllaSloman]

I couldn't hear what the one you took for dopamine was

[@gumbymick]

I believe he said L-Tyrosine although I find DL-Phenylalanine a bit more effective (they're both dopamine precursors).

[@Sarah-1a2j3l]

I just found out it’s called long-haul. I have what I have always called long mono or Epstein-Barr. I also have Ehlers Danlos syndrome. And have developed POTS, IBD, high rheumatoid factor, and have lived with chronic pain and fatigue for seven years. I have tried to slowly work up my endurance several times and I always end up crashing really hard for about a week. I can’t figure out how to do more without hurting myself. Chronic UTIs, calcific tendinitis all over joints and everything else under the umbrella of Dysautonomia. Happy to hear it has helped you.

[@livingwithmecfs]

Sorry to hear you are having so many health challenges, it must be tough! I have found that as I have been able to get some of my health conditions under control (eg improving gut health and balancing hormones) I am able to increase my activity level without crashing. As though as my body improves in function it can naturally do more. Whereas when I tried to increase my levels by gradually pushing myself to do more it often ended in a crash. Perhaps taking a similar approach may help you

[@Sarah-1a2j3l]

@@livingwithmecfs I wear an estrogen patch, and it seems to help my night sweating bit. I also have sensitivities to most foods so I eat a very bland and small diet eating the same thing pretty much every day. I do not eat sugar, flour, beef, or pork. Only dairy product is cheese randomly. Also, I’m allergic to almost all dark green vegetables, and fruits as well. I can do green pepper and cucumber, carrots, and celery, blueberries, and apples. I do a protein shake every day to get more calories and eat mostly chicken and rice in the evening with raw veggies . Do you have any other suggestions of foods I should try to add into my diet.

[@devinweil4325]

I have long hual covid and a collapsed vein caused from covid and micro bloodclots from covid I would recommend people looking into this

[@chuckmalin]

why

[@genegarneau3822]

Sound like the UK is way ahead of the US.

[@ChrisMinorOfficial]

Not trying to ask a loaded question but how many of those here suffering from long covid have taken the Covid jabs?

[@africanqueenmo]

So sorry for Casey was he vaccinated?

[@BasicBeachCommunity1]

my wife has this .....She's going nuts

[@livingwithmecfs]

Sorry to hear your wife is struggling

[@douggrant3431]

So you used food or supplements to get better

[@livingwithmecfs]

supplements were what he used to increase his serotonin levels

[@douggrant3431]

@@livingwithmecfs what kind

[@livingwithmecfs]

@@douggrant3431 5HTP, l-tyrosine and choline

[@KityKati]

😢this is me now! I had in 2021 sars-2 covid. Hospital gave me Sotrovimab antibodies. I got covid last week and now I am suffering again. Had all vaccines. Taking NAC supplement hoping it helps. What supplements are you taking?

[@azaanhayat2667]

Has anyone lost muscle mass and get really slow breathing and anxious you keep going to hospitals and their basic blood tests tell you your fine and nothing to worry about and also really dry skin and feels like brain is dehydrated

[@livingwithmecfs]

I have lost muscle mass because I use a wheelchair most of the time. I have also experienced periods of anxiety, I think it is a common symptom with Long Covid and ME/CFS. Anna Marsh’s website and podcast has lots of helpful information explaining symptoms and how to manage them

[@mvann5]

You say 5 htp and choline helped?

[@CaseyGoodhew]

I'm currently taking: 100mg of 5-HTP on Mon, Wed, Fri, Sat 500mg of L-Tyrosine daily 500mg of Choline daily

[@daliblose9061]

Low iron deficiency brainfog fatigue muscle weakness sneezing like allergies chest lung ..i take supplements vit c

[@livingwithmecfs]

Vitamin C has been helpful for me too

[@ezza1236]

Chest tightness and short breath are the most annoying ones

[@user-ks1uk3zo4g]

Me too

[@kathydoell5571]

I’d have to say critical insomnia is one of the worst.

[@ghassenbohli4056]

@@kathydoell5571I would say Sfn from covid

[@FlaGrown1955]

Neltrexone treats long covid.Look it up.

[@lynetteprice8519]

LDN. Low dose naltrexone, right?

[@FlaGrown1955]

@lynetteprice8519 Yes, a wellness doctor Keith Berkowitz from New York prescribed .5 and then raised it every 2 weeks.He is now at 2.5. There have been a lot of studies on this, and it's helped. Also, take an antihistamine like claritin or zertyc., go on a low histamine diet.

[@xge555]

Nicotine patches?

[@cherrybb3888]

Casey, I don’t do facebook. Can you list here in comments the 3 supplements you took, and in what amounts? And how to spell them? I might be turning into a long hauler, too soon to tell 10 weeks in. Have palpitations, muscle weakness, severe fatigue. I’ve seen several doctors and am doing physical therapy, acupuncture and meditation, breath work, vagus nerve stimulation etc. just crashed after feeling better and trying to exercise. I am housebound. Thanks! I got it. Read what the supplements are from another commenter.

[@Min-mo3kh]

Long covid same as fibromyalgia, l take 5-hip for fibromyalgia supplement and it’s work will.

[@livingwithmecfs]

Glad it helps you 😊

[@stevehisey389]

Congrats !!! You earned a youtube CDC disclaimer. You're over the target.

[@yerasmus4025]

Can you not just summarise in the description for tired people not to have to watch all this...

[@livingwithmecfs]

There is quite a bit of info on his story in the description and there are time stamps on the video so you can skip to the bits that interest you. Hope these help

[@cristilaye5912]

Your electrolytes went low. Im betting magnesium.

[@KimJordan-yg2yo]

Long covid or jab injury. You decide

[@AIRMANBEAR]

DID YOU ALSO HAVE POST NASAL DRIP FOR A LONG LONG TIME WITH YELLOW MUCOS ..

[@user-oq7xr7mi1v]

Me CFS , could be caused by undiagnosed crypto infection KZbin jack Lambert Lyme disease and pots

[@livingwithmecfs]

thanks for suggestion

[@user-oq7xr7mi1v]

@@livingwithmecfs if your in America contact Dr Richard Horowitz's or any ilads Dr who works with Lyme disease

[@deemisquadis9437]

It isn't done yet. The sun is still sending radiation down through us.

[@JJs2121]

😂 well if you took the clot shot expect long long long long man made covd

[@adrianwilson2635]

Why dose anybody want to tell world about their unhealthy body."Get a life"

[@tinalyon4606]

I wanted to hear his story. Long covid sufferers r being gas lit.

[@ruckyrawg7659]

@adrianwilson2635 You’re telling the world about your unhealthy narcissistic mental health issues without even knowing it. Difference between you and him is that he’s actually helping people. Seems like he “got a life”.

[@chuckmalin]

perhaps you are the one that needs to get a life! I bet you are spending time trolling on others pain on a lot of sites