High Grade Diffuse large B-cell Lymphoma: Carole's story

[@Eleanorsmum]

I am the Carole in the story - I am 10 years in remission next month (December 2023) I didn't realise there were so many comments here. Good luck to everyone out there who is having chemo, there is light at the end of the tunnel xx

[@LymphomaAction]

We're so pleased to hear from you Carole, and to hear you have been in remission for 10 years, coming up next month, as you say there is light at the end of the tunnel, and how amazing to share this with others, thank you. All the very best of wishes to you Carole, and as you say, to all having their treatment.

[@davinawonderling9361]

Carole, I was wondering how you are doing, now, and you answered my question without knowing it! I have just completed six rounds of chemo for DLBCL like you. My oncologist has referred me to a radiation doctor who will contact me shortly. My PET scan result was great 👍 Thank you for posting about your 10 remission! That gives all us cancer survivors hope ❤. It's so wonderful to know that the light at the end of the tunnel isn't the light of an approaching train!

[@Eleanorsmum]

Thanks for your comment Davina - I wish you a speedy recovery and don’t do too much too early. It took me a good year or so to feel ‘normal’ again. Congratulations on finishing that chemo and good luck with the remission. Carole ​@@davinawonderling9361

[@davinawonderling9361]

I hope Carole is enjoying good health now in 2024 ❤😊!

[@charleschidester6767]

I Have been diagnosed. Start treatment tomorrow. I've never been so scared in my life. My wife and doctor are very hopeful about the result. I am 59 and have never missed a day of work for illness in my life. My employer has a history of treating sick people like they need to go away. My best friend worked with me for 15 years and when he went home sick with cancer. They made things so hard for him. They terminated his employment two days before he died. His family was devastated by the funeral costs. My wife and I paid for it and now two years later they are loosing their home. So scared. Please pray for my wife.

[@brooke850]

Yes how are you doing now? 🙏🏻

[@ardianrahman4628]

I was diagnosed with this type of lymphoma in June 2021. Currently I'm still in process of 1st cycle of chemo. Wish me luck.

[@LymphomaAction]

We send our best wishes to you Ardian

[@faisaltanoli83]

My Father was diagnosed with Non Hodgkin's B cell Lymphoma on 2 August 2021 and he is on Stage 3 and had his 1st Session of Chemo in Sacramento California.. and He is doing Alright now.. I Wish you all the best Ardian Rahman

[@RAVENSandDOOMS]

best of luck, be strong my friend.

[@aswarmanoj1]

Best of luck. Good is with you

[@hudaali4554]

How are you now?

[@peteralessio1585]

So happy for you and love your attitude. I have recently been diagnosed with Lymphoma. Scared to death. Your spirit is uplifting. Bless You!

[@ChrisSh1984]

How are you doing? How did your treatment go? I hope you're happy and healthy in 2024 :)

[@billzhao1135]

I can feel the joy coming out of the screen. Congratulations!

[@FitnessToday5613]

Carole, thank you for your story. You are a true inspiration.

[@sedhumadhavann3292]

Lymphoma even with 4th stage is highly curable with R CHOP & Lenonlidimide

[@kellyindeedpositive9197]

Congrats on your remission!!!!

[@Epicalfiegaming123]

You are amazing carol! Well done to you for being so strong! See you in September, Charlotte lord xxx

[@LEAHkiera]

I was diagnosed with this in March age 21 and pregnant and I’m in remission now and turned 22 in may :). I lost all my hair too.. R-CHOP chemotherapy.

[@LymphomaAction]

Hello Leah, Great to hear your in remission from your Hodgkin lymphoma. The Lymphoma Association also have lots of information and support to offer young people like you who have finished treatment. If you are in the UK this includes our Live-You-Life program of events. Please feel free to have a look and see if you think this is something that you might be interested in: bit.ly/LA-Live-your-Life Best Wishes, Katherine

[@saadsohail6520]

Leah Groom How are u doing now??

[@shereehardin5783]

is the child ok?

[@abrazmaheer8504]

Is your child ok ?

[@LEAHkiera]

Sorry for the late response. My child is a healthy 4 year old :)

[@user-zx1ir7jt4c]

Very inspiring Carole...

[@denisejones9746]

So sorry to hear your story ,thank you for sharing,i was just woundering did you suffer with sweats all over

[@ivarunyon8534]

My wife, recently passed from diffused large B Cell Lymphoma and she would have to change her clothes because of the night sweats

[@fioweb123]

Thank you so much for sharing xxx

[@fletcherhamilton3177]

I’d love to know the likely 2- ~ 5-year prognosis for mantle cell lymphoma, ‘intermediate stage’, for any female age 80 receiving five rounds of chemotherapy . . .

[@LymphomaAction]

Hello, thank you for your comment. Unfortunately it's diffult for us to comment on prognosis, and the medical team are best placed to advise on somone's indidvudual situation, based on the knowledge they have about a person, their lymphoma and the test results they have. We have some information on our website about mantle cell lymphoma, with a section about outlook, and also mentions survival statistics, and what they can and can't tell you. If you feel this may be helpful to read to can find it here: lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/mantle-cell-lymphoma We send our best wishes to you,

[@zotzulu]

Thank you💜

[@holliss5]

I've been diagnosed with high grade lymphoma my taste buds are shot I don't enjoy anything now, I'm due for chemo in a few weeks

[@LymphomaAction]

Hi Beryl. We have lots of information and support services if you would like to get in touch at any point. You can find out more on our website: lymphoma-action.org.uk/support-you Best wishes.

[@cb-lk7jo]

My Dad too...his mouth been so sore

[@sonan2187]

My father has diffuse large b cell non hodgkin lymphoma stage 4.He is done with 5 RCHOP cycles now going for radiotherapy.Lymph nodes in neck are all swollen.He has really bad throat that doesnot go away. No antibiotics worked.Can you help how to treat this?

[@LymphomaAction]

I was sorry to learn about your Father's diagnosis, and can appreciate this is likely a difficult time. We cannot give medical advice, and suggest talking further with the doctor about your concerns. Our information on Diffuse large B cell lymphoma is here: lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/diffuse-large-b-cell-lymphoma and our information on side effects of treatment (which includes details on infection) is here: lymphoma-action.org.uk/index.php/about-lymphoma/side-effects-lymphoma-treatment we hope these will be helpful, and hope you will feel able to speak with the doctor soon. We send our best wishes to you, and to your father.

[@hangtownranger]

How is you father doing? And did they test his DLBC if it was GCB or ABC type? Cause that makes a difference in the the outcome. GCB has a good cure rate, ABC not as good and they need more studies on it. Also is antibiotics will not work alone. He needs things like menbenzole and an anti viral along with lots of other stuff. Read Janes McLleands How to Starve Cancer. I hope he is still fighting. And get him tested for Epstein Barr Virus

[@usmanhassan1212]

Eyebrows and eyelashes lose in what chemotherapy cycle? Plz tell me

[@deeneislam3141]

Its depend I patient to patient

[@halanemani3259]

Which stage are you

[@suzannefrancis4691]

Good 😇👌

[@crmbonnici]

tough chimo but its worth it

[@Duffan1]

I got night sweats because I've been heavily exposured by benzene, Toluene and Xylene. Im so scared :( anxoius.. gonna end my life

[@LymphomaAction]

Hello, Really sorry to hear you are so worried. You can find out lots more about this form of cancer, including its possible causes and its symptoms on our website lymphoma-action.org.uk/about-lymphoma or email [e-mail] with any questions or worries you might have. Remember you can always see a doctor about any symptoms like night sweats that are causing you to worrie about your health. Best Wishes.

[@wayneparker9164]

Please don't end your life we love you reach out

[@ng-np1ft]

Hubby has TCell lymphoma...

[@LymphomaAction]

We're sorry to learn that your husband has T Cell lymphoma, and I imagine this to likely be a difficult time. We have some information on T cell lymphoma specifically, written with UK treatments and protocols in mind, I hope this is helpful: lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/t-cell-lymphomas We send our best wishes to you both.

[@donnajohnson8035]

What a lovely lady 💗