Hodgkin Lymphoma | Katie's Story

Katie had just graduated from college with her nursing degree when she was diagnosed with Hodgkin lymphoma. Thanks to Dr. Lisa Roth and the Weill Cornell Medicine Adolescent and Young Adult (AYA) Lymphoma Program, Katie’s cancer is in remission. As a registered nurse, Katie now uses her own experience to better support her patients during their time in the hospital.
Learn more about the Weill Cornell AYA Lymphoma Program:
weillcornell.or...

[@ghostgunholster6957]

Our daughter was diagnosed last night...Watching this really helped

[@BlackblondieTv]

I’m going through Hodgkin’s lymphoma currently. I finished radiation in June. I’m going to get A Pet Scan In September to see if I’m cancer free. I’m really nervous seeing this is inspiring!

[@giorgidolidze593]

Hello, how are you feeling now?❤

[@ammaamedi2965]

How old r u? And how r u now❤️how u feel

[@jacksonboy7432]

Did you cure ?

[@mkeegan3205]

During the mid-late summer of 1986, I I started to develop some symptoms. It started with a very nagging dry cough, that my mother threatened to send me to a tuberculosis sanitarium. Then I noticed a swelling above my left collarbone, and I also had begun to have a fever of 101 degrees every afternoon , starting at 1:00 pm. I was very tired, and lost my appetite, and maybe about 15 pounds. About 7 years before that, my sister in law had some of the same symptoms, and was diagnosed with Hodgkin’s lymphoma. I figured that’s what I had. I went to a local doctor, who was very nice. He scheduled me for a CT scan and a biopsy at a local hospital . I was sort of prepared that the biopsy would prove to be malignant, and that’s what the surgeon said to me in the recovery room. I went home, and started to make phone calls. My brother called my sister in law’s oncologist, who agreed to see me on Thursday (I later found out he never saw new patients on Thursday, but agreed to see me as a favor to my brother). Another brother drove me to his office in the lower level of a brownstone. Dr. Lacher was wonderful-he outlined exactly what his plans for me might be, after a few more tests. I had another CT scan, a lymphangiogram, a chest x ray, a bone marrow biopsy, and lots of blood taken. He also gave me a prescription for an old arthritis drug called Indocin, which he said would alleviate some of my symptoms , and he told me to come back in a week. At that next appointment, he outlined my treatment for Stage 2B modular sclerosing Hodgkin’s lymphoma. The B means that you’ve experienced symptoms such as fevers, night sweats, etc. My chemo treatment regiment would be TVPP (thiotepa, vincristine, prednisone, procarbizine), and I would have about 8 weeks of radiation treatments in the middle of treatments. All of my chemo treatments were administered in the doctor’s office by the doctor himself . He did have a lab tech who drew your blood, though. There were always other patients to talk to, which was nice, and plenty of sweets, particularly near the holidays. I did experience a premature menopause about midway through the treatment. I was about 34 at the time,. I lost some hair, not all, but it was during radiation and only on the right side behind my ear. When my hair grew back, my hair dresser noticed it was a different texture than the rest of my hair. My last chemotherapy treatment was on 9/28/87. So, I have been a survivor for just over 36 years, and as time has gone by, I look at how my life has changed. I became a teacher in NYC, and was able to retire a few years ago . I have premium free health care,and pretty good drug care when supplemented with Medicare. As patients are becoming long term survivors, they are developing other health problems that may or may not be related to their treatment . I have developed cataracts in both eyes at a relatively early age, probably due to all of the prednisone (steroids) I took during chemotherapy. I also experienced a decrease in thyroid function (hypothyroid) due to the radiation . I take a thyroid hormone pill daily. I experienced premature menopause, and I was probably through with that when I was about 40 or so. No treatment for that. I also developed asthma-the damage is mostly in my bronchial area, which was where the original growth was located. You know, it sounds bad, but all in all, I’ve had a pretty good life over these past 36 years. There have been ups and downs, but I think I’ve managed ok. You can do it too! I would recommend that you bring a notebook and pen to each doctors or clinic visit. If they say something you don’t understand-stop and ask questions. Tell the doctor that you would like to record his/her instructions on your phone. This way you won’t miss any important information. Sorry for this LONG note-I just wanted to let you know that other people have been through this, and that we are carrying the lantern to light the way for those that follow.

[@Weekend658]

You speak far too frequently about the story and ignore the important aspect; the symptoms. Saying she had a neck mass, is really immature to clinical diagnostics. Was it a supraclavical node ? Was it a Lima bean sized node in the cervical chain that didn’t go down? Was it the size of a baseball? These are all very important for people who might not be aware of potential cancer symptoms. There are plenty of viruses that keep lymph nodes palpable permanently. But if it’s the size beyond a Lima bean, that’s the concern.

[@goback3spaces]

Chill out, man, it's just cancer! I'm a veteran of ABVD, RICE and BEAM and I never felt a single "palpable" lymph node.

[@kS-yw6sg]

Thank you, was thinking the same thing

[@goback3spaces]

I met with Dr. @$#!@$ at CINJ and I was like ... I definitely DON'T want to be treated here. Ended up being treated for Hodgkin's in Hackensack. Not bad. Good luck to Katie. There's something sickening about the smooth professional quality of this video.

[@PremaGranite]

My brother faced similar situation and its type 4, he died...its the mistake of doctors who didnt diagnosed properly, They reported Tuberculosis and he ate all those medicines and atlast he was suffering from Hodgkins lymphoma after consulting with another doctor found out. 😢

[@PremaGranite]

Its very hard to remembering his last breath, his face and his reaction looking at me was painful after imagining now, Sorry my dear brother, Rest in peace 🙏 😢

[@akilsrg1580]

For how many months he was taking tb meds??and after diagnosis why you don't go with chemo immunotherapy treatment??

[@nelmariehernandez5422]

i was diagnosed aslo Hodgkin lymphoma...thank you for this story❤️❤️❤️

[@LUSTROUSAsMr]

When your doctor confirmed that was hodgkin is it after scan ?or?

[@chilo9689]

@American Fighter I'm so sorry to hear this, how are you now?

[@mrbossandbeast]

@American Fighter I recently was givin news of possible lymphoma as well, my biopsy is next week. If you have any contact information and would like to talk to someone, let me know.❤️

[@somnathmukherjee6829]

Hello

[@nelmariehernandez5422]

@@LUSTROUSAsMr yeah,after scan.

[@theoggaming8890]

Can a hogskin lymphoma cancer survivor go to lift weight in the gym??

[@heatherrose9484]

I certainly hope so! I went on to have 2 children :)

[@ashlingiza]

This is soo uplifting ,giving so much hope!!

[@mariusz9374]

After 6 chemo cycles, should lymphoma, swollen lymph nodes be completely squeezed or only partially ? - NHL

[@timstort8223]

My buddy was just diagnosed with those, so amazing to see such great treatments there are these days!

[@margittasaager7238]

Pull down the music a notch or two. Sadly distracting from wanting to listen to people's story. If I want music I go somewhere else.

[@sanjanagorrepati1276]

Hey, I’m currently undergoing ABVD, how does the treatment affect fertility?

[@syedshah4147]

Bless you guys

[@binks_jim]

I just finished my last treatment for bulky Hodgkin's lymphoma. Right now my biggest battle is my stomach.

[@LUSTROUSAsMr]

Congratulations don’t worry

[@thecomeback018]

Hey things will get easier when it gets harder. Its a blessing to survive as many don't get that chance. I had bulk as well but beat it two months ago constantly fighting fatigue even today. You are important this experience is not a bad part of you its shows how strong you are in bad times. I wish you nothing but glory and luck have a blessed recovery.

[@tomtran270]

Hi/ I have same problem with you , you now OK ? I am thing king about my case ? hope so hear from you / God bless you

[@binks_jim]

@@tomtran270 im one year in remission. I gain all the weight i lost back. My hair is patchy at best but im exercising and eating normally. I guess i got back to normal or "new" normal about 2 weeks after my final treatment. Sorry about being absent, i forgot i commented.

[@cheninewalid5279]

any news ?

[@henrylucas75]

what causes Hodgkins Lymphoma

[@abbygentry5349]

When the b cell goes out of control.

[@Haidarali-cl4ht]

which type of hodgkins lymohoma

[@jesussaves1827]

Turn to Jesus He loves you, He is the healer of the body, And savior of the soul, There is True Hope in Jesus, He is the God of miracles, Acts 2:21 And everyone who calls on the name of the Lord will be saved, Jesus alone saves Trust Him with your salvation Take care

[@bungeegum9286]

@@jesussaves1827 I am muslim so I don't believe Jesus was God but just a prophet (PBUH). Even if he follows the path of God, which would be great, he should still seek medical treatment.

[@KasumiTendo1]

@@bungeegum9286 Me too, May ALLAH grant us cure and health.

[@heatherrose9484]

I had nodular sclerosis lymphoma back in 1988