How Healthcare Peer Support Fortifies Medical Professionals.

Рет қаралды 843

Күн бұрын

Пікірлер: 30

@albertattard5611 Жыл бұрын

Thankyou so much for all your work. You really helped alot when i had my Cathater put in. It was a horrible experience especially the horrible spasms it caused. Your videos helped so much thanks. I was prescribes combodart that worked really well but after 8 weeks and messing with my hormones I got depression and panic attacks. I had to stop medication but unfortunatley my next appointment is on 24th October so in the meantime im trying to keep a good urine flow with natural means. Its just a waiting game and unfortunatley not much i can do. Trying to remain positive as stress (cortisol) makes things worse

@maletenance Жыл бұрын

Awww man! I'm so freakn happy the videos helped. You've been through it and I know what it's like. I felt broken and lost and worried and full of anxiety. I was by myself too. I had to dig deep into the reservoir to get me through it. I really didn't know I was stronger than I thought. That said I never posted the videos with me bawling my eyes out.....somethings best left out. But it's human and it's tough and I feel for ya. Hang in there and if you ever wanna talk, email me and we'll set it up. I've done this a bunch of times. I just got off the phone with a guy in Florida, a few days ago with a guy in Shanghai. I don't have all the answers but I know it's therapeutic to talk with someone who knows what it's like. Hang in there, .Cheers. Tony.alcindor@Maletenance.com

@DavidMendez-g3j Жыл бұрын

Your information is real helped me out so much thank you , been to the ER 5 times with infections blocked tube . Soon I’ll be having surgery for enlarged prostate

@maletenance Жыл бұрын

It makes me really happy and humbled to know I've been able to help you during this rough time. It's not easy to navigate but it's doable and an ends to a means. How long have you had the catheter and which prostate surgery are you getting?

@leedawson22 8 ай бұрын

100% right on this... happened to me, sent home with a catheter with no explanation outside of following up with a urologist. No instruction on signs of infection, were to get new catheter bags,etc... I really had to figure out a lot on my own. Thank you for creating these videos 😊

@maletenance 8 ай бұрын

You are so welcome and I'm glad the videos are helping you through this time. Your experience, like so many is not unique, unfortunately. It's really a shame and the definition of adding insult to injury by not providing any information whatsoever. I'm working hard to get the pamphlets I produced that lead you to the channel, into hospitals and ERs as it would help so many. Cheers, and wishing you great health. Tony

@nancylanderson8012 Жыл бұрын

My husband got no information and the doctor wanted me to remove it! NO WAY. What if I gave him an infection because I did it wrong? Who'd be to blame if I caused an infection? No one told us how to clean it, change it, remove it, etc. Good for you for making the brochure.

@maletenance Жыл бұрын

Thank you. Your comment is further confirmation that I'm on the right path. There are brochures, pamphlets and instructions for literally everything else. I don't have all the answers and I'm not a medical professional, however I know what it's like to live with that archaic device and all that goes with it physically and the emotional toll it takes of feeling lost, scared, broken and full of anxiety. If I can ease that just a little, it makes me happy.

@Bibledefender4u 9 ай бұрын

They did show me how to remove it deflate the water bag completely

@drywinddotnet Жыл бұрын

Thank you. Your heart is in the right place. It's not pleasant going through a condition where you need an indwelling catheter, but you have turned your experience into something that helps others, including me. I too had very little info out of the ER, but thank God I found your info on the InterWebs.

@maletenance Жыл бұрын

You are so welcome and thank you for the kind words. I am truly humbled to have helped in a small way during this trying time. I am working hard to get the pamphlets out urology office and in the ER, where many people unfortunately encounter their first urinary catheter. So many people who have commented here had it put in and then were discharged with no information on how to live with the archaic device. It's just so unfair, and unkind and it is literally adding insult to injury. I'm not a medical professional and certainly don't have all the answers.....just a person who knows what it's like to have anxiety and fear because of the unknown. All that would have been defused had there been just a little bit of information provided. I hope I can make a change to that. Cheers, and wishing you great health. Tony

@ohioh111b111y Жыл бұрын

great idea! I helped take care of a family member who had prostate removal surgery. At the hospital at 530 am and out the door at 130 or 200. Found out he had a catheter when I went back to visit and take him home. WTF??? Blew my mind. And toss in the syringe and blood thinner shots for the next 30 days. Toss in a grocery bag of medicines. We were given a packet of papers but it took me a couple days to go thru them all. Very little info. We found YOUR channel in the middle of the night while searching for ways to position the pee container to get proper flow while sleeping ( trying to sleep). THANK YOU FOR MAKING YOUR VIDEOS. Some people can break things down and simplify what needs done... you do a great job.

@maletenance Жыл бұрын

I'm so freak'n happy and humbled that the videos helped. Comments like yours makes me so proud that I put myself out there (I was scared shitless of becoming the catheter guy) on a topic that no one was talking about, yet where information is desperately needed. Especially from a person that has been through it. I'm not a doctor but I know what life's like living with that archaic torture device for months. Just some simple paperwork with some standard info would have been all that was needed to make a very very difficult situation, for both the patient and the caregiver, to navigate away from all the stress, anxiety and fear. It's not complicated and it's patient care for f%#@ sakes. Anyhow, let me know if you have any questions. Also, how are they doin? Cheers and wishing you both great health. Tony Ps. Anyone who helps a person in their time of need is a ROCKSTAR!!! Kudo's to you.

@mikereger1186 Жыл бұрын

Thank you for all this. It just doesn't get talked about. I had a catheter put in after a urethroscopy a few days ago. It's not been easy to find relief, although it ought to get less painful as things heal up. Sitting, standing, lying down - all done very gingerly to avoid pain from that inflated anchor in the bladder. It's bad enough feeling a need to pee and knowing that there's no "relief" until the catheter is out. Ten days to go. Anyway, seems that keeping any pressure off the "tailbone" and avoiding internal movement is key, esp in early days.

@maletenance Жыл бұрын

I'm sorry you have to deal with a catheter. Most of us don't even know what one is until we have to use one and then there is no information on how to live with daily. Definitely moving slower will reduce the pain. Did you watch the video on how best to sit...on a travel neck pillow worked great for taking the pressure off. Hang in there. Cheers Tony

@mikereger1186 Жыл бұрын

@@maletenance Yes - I found the video about an hour after I ordered a Doughnut pillow for relief - it's kind of helped, though its being a bit firm has maybe caused some exciting new problems with leg and hip circulation. Though it might be in combination with the Ibuprofen which I started taking; I started getting a numb leg. Going to cut back on the anti inflammatories for a bit and see what happens. Also found today that a longer tube to the leg bag is an absolute *must* to prevent the catheter being jolted so much - swapped the bag over after it got pulled loose (don't ask) and it's been far more comfortable to wear. Nine days to go now :)

@maletenance Жыл бұрын

@@mikereger1186 The longer tube is a great idea. The jolt was what prompted me to invent an improved indwelling catheter. I'm on the last part of getting a utility patent for it. It's taken years and $$$ but it's worth it cause it'll help millions of people with the jolt. Not much longer for you to go, hang in there bro. I'm a poet. LOL! Gotta have a lil humor to get through it all.

@Patrick-uf1cq 6 ай бұрын

Mike Reger: rWondering how things are going 6 months after your urethroplasty surgery. There is a dearth of personal experience info on this for anyone on the verge of this procedure or just going through recovery etc. There are couple of groups on Facebook but difficult to find many really positive longer term experiences or advice. Thanks and I get it if sharing where things are at now is not something you are to do. Stay well.

@mikereger1186 6 ай бұрын

@@Patrick-uf1cq Hi, of course I'll be happy to talk about it. So, there was debris coming through the tube for a few days, maybe a week? The first bag change was a relief as it got rid of that awful, manky looking thing. Just having it attached makes you feel dirty. At this point you're still lurching about with what feels like Borg implants stuck in you, so jumping in the shower isn't your first option; as a married man I had my wife helping me wipe down. There's a definite grunge to the first 5-7 days. Moving about with the bag and tube is awful. I cannot say how important it is to set yourself up right. You do NOT want that catheter being yanked around, that inflated ball is poking around in your bladder and it's not pleasant. Also, the end of the catheter pokes out of your "Johnson" quite a ways and it can slide in and out a bit. Expect to lurch about like Herr Flick for days. My final bag - I checked it long before I got to it - had a tube far too short. I simply got myself a better one from Amazon for the next day, no mucking about. Go for somewhere between 9-12". I also advise getting incontinence shorts with leg bag pockets. These reduced pull on my bag and tube massively. I got something akin to burning leg while I had my catheter in. It's due a trapped nerve down there. I still have some numbness in the top of my leg, but it mostly went though. I'm not young and expect things to slowly go wrong so it's not the end of the world as long as it's not painful. Finally a warning on the overnight bags. OMG these are a pain. Long tubes are vital to avoid pulling. My final night before catheter removal - I had to wait a weekend longer than expected - the bloody tube came undone, with the consequences you'd expect. *Use a rubber mattress protector* guys. Again I'm lucky to have a loving wife to help me and reduce the humiliation that naturally arises. That was with a through-and-through leg bag to night bag connector.

@Bibledefender4u 9 ай бұрын

Yes I had to go to the emergency room 700cc I was glad to get the pressure off me! I had it taken out peed great for 24 hours but eventually blocked back 📴😢 My prostate is 175cc about the size of an apple.. options I believe is HoLep or Urilift. Don't want Turp heard some bad stories 🤔

@maletenance 8 ай бұрын

Your story sounds familiar and I'm sorry you have to deal with all of this. I know that feeling, when you're so hopeful that you'll be able to pee on your own. It happened to me. I ended up having a prostatectomy. I've heard from so many people about the different procedures and it varies from person to person what is best and which has the most positive outcome. Take some time to research and talk to your doctor. Wishing you well.