HOW I AVOID BURNOUT | CALI HOSPITAL VISIT| TIPS FOR BUSY MOMS| MOTHERHOOD + MEDICAL NEEDS VLOG

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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here, • WHAT IS PFEIFFER SYNDR...
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[@user-bt3je5if5n]

There's a bunch of us that keep you and your family Lifted in prayer and we know he's gotcha!!!

[@tankelvis6255]

I wished i had a mothers love like she gets. God bless yall 🖤

[@ilenebrooks1814]

You are BLESSED and under HIS Wing ANGEL Cali 🙏🙏🙏💞❤❤

[@WeAreTheJohnsonFamily]

Very blessed!

[@vivianadell3155]

They so cute together 😂 Rome is enjoying his sister ❤❤

[@WeAreTheJohnsonFamily]

He loves his sister!

[@taneeka7107]

I haven't really any thought out regimen on a daily. That said, im learning to be "okay" with the things i cannot change. I'm learing to love to live in this 1 life given to each of us. And what you said,"one day @ a time" (these days one moment @ a time) ❤

[@WeAreTheJohnsonFamily]

Yes being okay with the things you cannot change is key. :-)

[@Felicia-Lewis]

Too cute look at Cali walking around the corner….lil Romey laugh is so contagious….just a blessing

[@WeAreTheJohnsonFamily]

They are the best lil duo.

[@Shelly_R]

I'm new to your channel but your videos are so good because you are honest and educational. I had never heard the term "medical mom" but that makes sense based on the episodes I have seen. Even though we may all not be medical moms, you are teaching us how you operate and what you and your family face on a daily basis. In turn, we can be more empathetic and hopefully helpful to medical moms in ways that we may not have previously known. I am learning a lot from your channel, and I am enjoying your videos!

[@altheataylor5487]

Bless your house with love

[@WeAreTheJohnsonFamily]

Thank you!!

[@sharonskipper1589]

You and your husband are such a blessing to these two beautiful babies. I can't say it enough they are truly with the right patents. Dad i agree i love how happy Cali is but more her courage and tenasity she is truly a fighter with a smile she encourages me so much and little Rome is such a happy baby and loves to interact with his big sister as do she with him i have so much love and respect for your family. May Gods favor and strength keep you always in good health to take care of these precious ones💙💞💙💞💙

[@WeAreTheJohnsonFamily]

Thank you for the love and kind words Sharon! I am so blessed to have my family.

[@v.sing.7407]

Awe...you two are awesome parents...the television interview invite for the Dad with the swag was everything 🖤🖤🖤

[@WeAreTheJohnsonFamily]

Right! I loved the interview and his hat!

[@taneeka7107]

One of the your Newly Ytube Aunties (self made myself lol😊) im gonna get whomever scaring our Cali girl😢.. Anywho, im happy to hear some of these things can be done @ home 🏡.. Love to you cali & lil brother! Congratulations to the dad & husband of the home! Jesus continue to bless them 🙏🏾

[@janettemcbean313]

Love seeing both kids in the crib bonding together...romen laughs heartily..

[@WeAreTheJohnsonFamily]

Me too! I am loving this stage of their relationship.

[@angeladenmark3164]

To think back about my two children with medical needs!!!! Living at the doctor's office & emergency room & hospital stays and physical therapy!!! I accepted a job at Meharry Medical College to be with my kids during my lunch breaks!!!! It is still shocking how I "did" it as a "divorced" single mom working a full time job!!! I thank God for their Godparents & Godgrandparents who kept them while they were sick and not able to go to school!!!! You need a "Village" to meet the needs of your life and the life of your medical need children!!! It is bad when you know the names of the staff at the emergency room!!!! God Bless!!!

[@WeAreTheJohnsonFamily]

Angela! You are amazing!! You really do need a village as a mom but especially as a medical parent.

[@karengreen4589]

You are doing just find God is giving you that strenght and you are so strong

[@WeAreTheJohnsonFamily]

Thank you Karen!

[@rwilson5669]

Thats to cute Cali making her brother laugh

[@WeAreTheJohnsonFamily]

So cute!

[@AbigailGreen-gd3oq]

Another great video..I love you all❤..Thank You for sharing your journey .Cali you keep smiling, your such a strong , beautiful little girl.Romey , I love your laugh, your so cute.Cali and Roney will always be best friends❤

[@WeAreTheJohnsonFamily]

Thank you so much!!

[@taneeka7107]

I wish i could afford to send so much for the kiddos! ❤ (monetary & gift wise)

[@mitcheleanderson1157]

You manage it all beautifully! You really are a super mom. For real. Love you.

[@WeAreTheJohnsonFamily]

Thank you so much! Love you!

[@binishbashir9544]

Hai cute family luv cali romey luv u so much your babies God bless him both babies for ever and ever.

[@WeAreTheJohnsonFamily]

Thanks so much

[@binishbashir9544]

@@WeAreTheJohnsonFamily my pleasure.

[@catiehays3361]

The purple hoodie was better then da black one mama! Go with your 1st pick.. lol

[@WeAreTheJohnsonFamily]

Lol!

[@moisesyann9166]

I love cali

[@WeAreTheJohnsonFamily]

I love her too :-)

[@jadalyte9965]

OMG, you guys are so super cute!

[@WeAreTheJohnsonFamily]

Thank you!

[@carolsimpson1572]

Good day for ❤ a little too many years ago ❤❤❤

[@reddiamond1431]

The Johnson family is soo,soo,Bless good Mother,Father, Blessed beautiful, wonderful children ❤️ 🙏🏿🙏🏿🙏🏿💘💯

[@WeAreTheJohnsonFamily]

Very blessed!

[@joydeensmith4277]

Keep up the good work may God continue to soround you and your family 👪 ❤

[@WeAreTheJohnsonFamily]

Thank you, I will :-)

[@sheisjacinta_]

Nice ❤

[@WeAreTheJohnsonFamily]

😊

[@jackiecameron2489]

Siblings❤

[@WeAreTheJohnsonFamily]

The best bond. :-)

[@clarahaywood9961]

💚💚💚💚💚💚

[@user-uv7ef3rc4d]

🤗

[@moniquerodarte]

Happy babies ❤

[@floraswennie5833]

7:14

[@iwonatarnowska3842]

Jak dobrze Wam się powodzi to wspierajcie swoich rodaków w Afryce bo tam dzieci chodzą głodne, brudne, obdarte. Cieszycie się dostatkiem a te biedne dzieci zjadają własne gile!!!