🩸How I'm Feeling Post Iron Infusion

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Indigo Nili

Indigo Nili

Күн бұрын

Пікірлер: 311
@jakpot88
@jakpot88 Ай бұрын
I cant wait to feel the clearity in my mind again. So tired of the fog and memory problems.
@mariana473
@mariana473 Ай бұрын
me too
@janisdawnyoung64
@janisdawnyoung64 24 күн бұрын
I have low ferritin (5.4) without anemia. I literally can't wait to start mine. I am so tired and foggy! Thanks for your videos!
@audreyd6725
@audreyd6725 2 жыл бұрын
Just had my first infusion of 5 and I already feel like I can literally do anything. I feel like I have my old personality back, the color on my skin is back and I feel 22 (I am 22 years old) before I just felt like an empty shell. It was so funny, I said "i feel 17 again!" And was asked later today if I was a minor. 🤣for reference, people always assume I am much older than I actually am.. I had that "tired accountant" look. It is amazing how iron deficiency/anemia/hemoglobin levels can make or break your health. It is true, our life is in our blood
@audreyd6725
@audreyd6725 Жыл бұрын
Hi! I still feel amazing but I HAVE to stay on top of my iron supplements. I take Blood Builder with vitamin c infused into them. For some reason they work better for me than the generic kind. As far as your gastritis is concerned, have you ever done a black walnut or Paramax cleansing? My naturopath said it can clear H.P and potential parasites that could inhibit iron absorption
@CaramelkComedy
@CaramelkComedy Жыл бұрын
Hi mydaughter just fainted recently, then we learned “ iron deficiency” I feel like after speaking with her physician taking iron supplements, I make sure she gets spinach or iron enriched meal everyday. Vitamin c…… I just wonder how long it take to build back up because she went from 7.9 to 7 days later 8.4 currently. Any advice? Did you try on your own? What was your Hemoglobin?
@flowerflower4587
@flowerflower4587 11 ай бұрын
My hemoglobin was 3, so I had to get infusion
@annerandolph6000
@annerandolph6000 7 ай бұрын
I have another two weeks before my first infusion, and this helps so much! I am old, and tired!!!! This alleviates a lot of confusion about something I have never experienced.
@Lucky-dub
@Lucky-dub 2 ай бұрын
Did you do it again..? I had once and again iron become low
@stormwatch7245
@stormwatch7245 6 ай бұрын
I was one of the few that had the rare bad side effects. It spiked my bp to 185/110, had the awful flushing, got an instant headache the continued to worsen throughout that day, went home to lay down and couple hours later my family found me seizing. ( never had a seizure before in my life) they couldn't find a pulse, my pupils were fixed etc... lucky an ambulance arrived quickly and im still here at age 52.
@ashleymatthews2763
@ashleymatthews2763 Жыл бұрын
10:13 I cannot believe I thought this was normal. my infusion is next week. I thought I was losing everything about myself. Knowing there’s hope…. I’m so so grateful.
@maddieb2763
@maddieb2763 8 ай бұрын
How are you right now?
@EricaYE6
@EricaYE6 11 ай бұрын
My iron deficiency anemia is due to heavy periods every month. And the heavy periods are due to uterine fibroids. Especially, the big one I have that has caused my uterus to become enlarged. A Gynecologist told me it's pretty much like I'm 5 mo. pregnant. That's how big my uterus is right now. I was wondering for years why my stomach was poking out a little. I thought I was just getting fat, but NOPE. It's uterine fibroids. And I'm now in the process of getting them removed/shrunk. But, I can't do any of that if I'm anemic. It's like I'm in a nightmare cycle right now. So, I really hope these iron infusions help so I can get the fibroids removed asap! And start having lighter periods and less anemia.
@Joy-hw5im
@Joy-hw5im 7 ай бұрын
Praying everything goes well ❤️‍🩹
@EricaYE6
@EricaYE6 7 ай бұрын
@@Joy-hw5im Thank you so much. I'm doing much better. I had an open myomectomy this past December. The large fibroids are all gone. My periods are lighter. Finally, after years of suffering. God is awesome. 🙏💙
@h3royalty606
@h3royalty606 3 ай бұрын
It’s sad that I do not know if my period is too heavy or not 😢
@EricaYE6
@EricaYE6 3 ай бұрын
@@h3royalty606 Your doctor will ask you some questions to diagnose you with a heavy period or not. Track your flow by taking note of how many pads/tampons you go through on your heavier days and how often you have to change them. I was wearing the thickest pads I could buy (those long, thick overnight pads) and was soaking them every 1 1/2 to 2 hours. That's way too much, when the packaging says they last for 10 hours. Not for me they didn't.
@growinggenerationshomestea516
@growinggenerationshomestea516 Ай бұрын
Same but I gush and soak those pads in about 3 minutes. 6 years now no answers​@@EricaYE6
@emilywotton9765
@emilywotton9765 Жыл бұрын
Hey I just got my first iron infusion yesterday! And it was nice to I guess "talk to" someone about this or just hear about others experiences. Thank you!
@yesitsthattime
@yesitsthattime Жыл бұрын
Can you feel a big difference?
@emilywotton9765
@emilywotton9765 Жыл бұрын
@yes, its that time oh yeah. Even now it being 2 months ago I've had a huge improvement in my motor skills and energy :)
@emilywotton9765
@emilywotton9765 Жыл бұрын
@Penny only for the first week. I was feeling a bit weak and light headed for a while but after that I've been great 👍 absolutely no lasting negative effects
@sharonetheridge
@sharonetheridge 2 жыл бұрын
You look amazing! You sound amazing! Your thought process is faster! You are talking faster and thinking faster! How exciting! I’m so excited for your progress and even more good things are sure to come! ❤️❤️❤️
@VeldaE12
@VeldaE12 2 жыл бұрын
My first thought when I saw you today was, your color is better ! Heart rate elevated before makes sense because low iron means heart has to work harder/ faster to get enough oxygen to cells in body.
@melissaclark7141
@melissaclark7141 2 жыл бұрын
I know exactly what you mean about the mental hurdle! It can also be low dopamine, but a lack of energy for whatever reason. For me, it’s sleep apnea, which I’m treating. Despite your symptom of lack of clarity, I’ve always noticed how well said and effortless your videos seem.
@meerabakshi2676
@meerabakshi2676 Жыл бұрын
My husband has to get his iron infusion and that's why I watched this video to at least know what he might feel and what I should know about not to worry. But at the same time, even though I do not have low hemoglobin but have very similar pattern of feeling tired, not getting things done what I want to do and that makes me feel frustrated as this is not I was! I don't know what the reason is. Perhaps dealing with so many health issues to handle has affected my true personality. Our son's esophageal cancer, then my husband's lung's bacterial infection, (diagnosis took too long as much as 2 years! ) , thankfully he was out of that and we both had corona. It took a long time to get normal for both of us and now he is diagnosed with colon cancer, the reason we found out because of low hemoglobin in blood work, leading colonoscopy, colon cancer, surgery and still low hemoglobin, perhaps he might have to go for a chemo therapy, he need to have hemoglobin level up and so he will go for iron infusion. I hope I too can get one iron infusion to bring "ME" back! 😀 I love portrait painting and I have not been able to pick up my brushes and colors as my mind is not free! I wish I can get back to my passion. I have no regret for not being able to, because I am being there for my family in the tough time. I think myself being instrumental by the Divine powers to help heal my family members.
@shankar0cr
@shankar0cr Жыл бұрын
How are you feeling now? How are you treating your sleep apnea?
@kit2253
@kit2253 8 ай бұрын
iron helps produce dopamine and other neurotransmitters, so it makes sense!
@JHCWillis
@JHCWillis 2 ай бұрын
I am going in for iron infusion soon and everything you’re saying makes so much sense. I have the same symptoms I thought it was all normal.
@olderpennsylvanian-op2368
@olderpennsylvanian-op2368 2 жыл бұрын
My neighbor in her upper 80s and her daughter in her late 40s both have iron absorption issues which seem to be hereditary and they both get iron infusions on a regular basis. Both of them seem healthy otherwise (the mom has the usual age related issues but nothing horrible). They have not told me if there is a specific name for the cause but I can ask them. About 15 years ago I was treated with some vitamin infusions at a naturopathic clinic and reacted with extreme exhaustion. They had told me I might feel worse before I felt better and it took a few weeks and suddenly many things corrected. One doctor described the reaction to being thirsty and given water through a fire hose, that the body is grabbing for whatever it needs. Believing with you for complete wholeness. Thank you for sharing your journey.
@Vanessa-jr2mb
@Vanessa-jr2mb Жыл бұрын
I’m 38 weeks pregnant and I have an iron infusion scheduled this Thursday. Thank you for this video I’m very nervous 😟 I just want to feel better before my C-section in 3 weeks.🤞
@sazzlepop321
@sazzlepop321 Жыл бұрын
How did you feel shortly after? I’m having a c section in a month or so and just had my first infusion. I hope all went well
@Vanessa-jr2mb
@Vanessa-jr2mb Жыл бұрын
@@sazzlepop321 well sadly our county was booked out a month so I delivered with a hemo of 10.0 which dropped to 8.5 after delivery. I felt horrible, confused, so tired, dizzy, but in the hospital they kept me for a few days and gave me the infusions. On my first one I had a headache for 2 days accompanied with nausea nothing significant. After being released I went for labs and was still very low so they scheduled 3 more treatments. On my second my veins did hurt a bit but I got my color back with that one. (I was pale white and my eyes were yellowish) by the time I finished which was 2 months ago I felt so much better. I have my energy back (hence the sleep deprivation of a new baby). I will say this take someone with you if you need to go back just in case you get a little woozy if you’re done just keep eating leafy greens. That and lentils have been helping me. I did get both tubes cut at delivery, so I have had so much bleeding I doubt it’s normal but it’s only been 3 months since delivery so who knows. I hope you have a safe delivery. Is this your first cesarean?
@stephaniegarcia-ty5my
@stephaniegarcia-ty5my 5 ай бұрын
@@Vanessa-jr2mbI’m scared, I am due to have a c section in 7 weeks and my hemoglobin is at 8.5. They want me to get a few infusions before my c section.
@lorettaholliman3334
@lorettaholliman3334 10 ай бұрын
Thank You!!!!!!!!!!!! I just had my 1st infusion on Monday and I was trying to figure out how & what I was feeling!! Nobody tells you the long term effects of having Bariatric surgery!! I feel so much better and I'm awake!! Thank you for understanding how I'm feeling w/out even knowing me😁
@Ketohunters
@Ketohunters 2 жыл бұрын
I 100% agree with Sharon...You look amazing, your face is so clear and bright, and you sound fantastic as well!!
@CB-zv1ji
@CB-zv1ji 11 ай бұрын
I just had iron infusion # 2 today. The craziest thing I noticed the day after the first one was that I completely stopped craving ice !! For two straight years I ate ice all day every day. I would go through Chick-Fil-A several times a week just to get a huge cup of ice. I constantly ate crushed ice at home. Anytime we would go out to eat, I would automatically take a fork or spoon and start digging into the ice in my drink. Well, the day after my first infusion, I was in the car with my husband and he had a fountain soda he had just finished but the cup was full of ice. Normally I would grab it and go at it, but I just glanced at it and looked away. Then it hit me I didn’t want it!! CRAZY! I also noticed about five days post infusion that my legs weren’t shaking when I walked down the stairs anymore! My dr said my first couple of infusions would be eaten up by bone marrow and it would take a couple of weeks to see huge improvements in my exhaustion and functioning. I am SO excited to feel human again!!
@lindalentz3963
@lindalentz3963 2 жыл бұрын
So happy it helped you ! I had it in infusions in the past and they made me feel alive again.
@PinkLady54
@PinkLady54 2 жыл бұрын
You are describing my life with the heart stuff, motivation/ability or lack thereof & trouble with labor things like stairs & feeling lack of oxygen kind of... ?? Guess I will have my ferritin checked soon. Thank You for sharing. SOOO happy You have not had to wait 4-6 wks to know You are improving :-) But You accel at listening to Your body on the whole. MORE blessings upon You All!!
@supernanny49
@supernanny49 2 жыл бұрын
your skin & face colour has improved dramatically , good luck with your journey
@koachcarter5678
@koachcarter5678 10 ай бұрын
After getting infusions for a few months I've been dealing with nerve damage in my entire left arm. Be careful letting them poke you do much. Change your eating habits is the key
@keller8917
@keller8917 8 ай бұрын
Has this gotten better? I’m so sorry you’re dealing with that!
@laurahudson8210
@laurahudson8210 2 жыл бұрын
I think you're right about the color in your face. There's a glow that looks new. I had forgotten about this until you mentioned perhaps testing for parasites. My friend's husband went through several years of unexplained ill health that got explained in one test once a doctor thought to do it. He had giardia. A parasite
@TracyKMainwaring
@TracyKMainwaring 2 жыл бұрын
I had giardia. I started with symptoms about a week before I was leaving on my first cruise, but it was mainly rumbling and gas until we left somI didn’t go to the doctor. It was horrible on the trip and when we got home. I saw the doctor and got an antibiotic which was promising but didn’t cure it. It took 5 weeks from first symptoms until we got the diagnosis and a few more weeks until I felt better. I can’t imagine years!! The smell is so distinctive, doctors should ask about that right off!
@v-ellis728
@v-ellis728 9 ай бұрын
How did they check for parasites blood or stool
@laurahudson8210
@laurahudson8210 9 ай бұрын
@@v-ellis728 I think it was a combo. He went to a naturopath, because the regular docs rolled their eyes at his continued complaints. They kept diagnosing him with general depression which the two of them believed was secondary to something. It cleared up once the giardia was treated.
@dmoore519
@dmoore519 2 жыл бұрын
I noticed your skintone right away. I'm so happy for you that tyoure feeling better. Have you been tested for celiac disease? It can cause anemia and malabsorption
@carnivoredownunder
@carnivoredownunder Жыл бұрын
Also gluten intolerance alone can. Like me.
@Kelli5555
@Kelli5555 Жыл бұрын
I’m having my first time infusion in a couple of weeks. Your explanation of being exhausted with little motivation is exactly how I feel. I’m really hopeful my energy and motivation returns after the infusion!
@lovelybones6891
@lovelybones6891 6 ай бұрын
I just would work & sleep !! I use to be a out going person 😂ready to enjoy life again
@SpicyBricy
@SpicyBricy Ай бұрын
I feel there is a light at the end of the tunnel now! Thank you so much.
@catcassetta
@catcassetta 2 жыл бұрын
I see pink cheeks! Glad to hear you're feeling better 😊
@foncywoolsocksiii923
@foncywoolsocksiii923 Жыл бұрын
I'm currently in the research stage of this process. I've always struggled with iron deficiency most of my life, but literally yesterday got a referral to hematology for iron transfusions by my PCM. I just happened to stumble upon your channel and the content is great!
@debrakleid5752
@debrakleid5752 Жыл бұрын
They are infusions not transfusions as it’s not a blood product. I’ve been on IV iron for several years and get usually 2 rounds per year. I’ve been on IVIG for over 2 years and that comes from donors plasma and IV fluids and meds at home with a central line. IV iron burns. I used to bring a heating pad to put over my IV when I had a regular IV with the iron. When the PICC team was laid off and no one could come start my IV because I was a hard stick he started to order a PICC line for my IV iron. Now I’ve had a central line because I get IVIG every 28 days and I’m on IV fluids and meds at home. Be prepared for the medication to burn and I have bad reactions to IV Venofer which is IV iron. Ask for Benadryl prior especially with Venofer. Even with the premeds I still reacted during one of the 4 iron infusions. Always ended up spending the night on the floor in the hospital because of it. Know the reactions you may get. Most don’t get sick but I do. Can’t have IVIG and Iv iron because I really react and last time I ended up hospitalized for 5 days.
@toanla2817
@toanla2817 Жыл бұрын
How is the reaction pls? I am easy reaction to med
@stacyhackney6100
@stacyhackney6100 2 жыл бұрын
I'm happy you're feeling better.
@karenbelonoha8853
@karenbelonoha8853 2 жыл бұрын
Happy to hear that you are feeling better after your iron infusion 🤗
@kathysbiz2893
@kathysbiz2893 2 жыл бұрын
So glad to hear you’re seeing benefits from the infusion! 🤗
@synergyb3926
@synergyb3926 2 жыл бұрын
Thanks for the update, Nili. Very happy to hear that the infusion is helping. I hope you can learn the cause of the low iron soon.
@Sandrashideaway
@Sandrashideaway Жыл бұрын
My daughters isn't absorbing iron these past couple years and has iron defiency anemia with extreme exhaustion, 😫so I'm listening to yours and other's videos getting ideas. They just tested her for celiac which came back negative, thank the Lord, because her dad has it. Have you had that test? Celiac & Crohns disease are a common cause of iron not being absorbed. Also test for H Pylori -bacteria in the gut. Glad you are feeling better. 🥰
@OceanLife772
@OceanLife772 Жыл бұрын
So glad you found help. I am going insane looking for a good doctor. I am fatigued, no motivation, depression, as you said, just doing a load of laundry is a big effort. Heck, going on, is a big no no. Is anyone experiencing insomnia with low iron?? I get the fast heart rate when I lay down at night. I have been struggling with sleep for years. I am tired of having doctors tell me is everything is “Normal”. So, here I am playing doctor and trying to figure out what’s wrong. I may have an ulcer, going to an endoscopy in December. Who do you suggest I use for parasites testing? I have lost faith in our “Healthcare”. It’s Sickcare…
@kathyfanchi2557
@kathyfanchi2557 2 жыл бұрын
Nili, have you tried adding milk kefir to your diet? It really helps promote good gut bacteria which could help you absorb the iron you’re eating. Best of luck!
@rejanwashburn2760
@rejanwashburn2760 8 ай бұрын
Wow. You put it perfectly about the mental hurdle to do things. Thats how I feel all the time. Getting my 1st infusion sunday after a lifetime of being anemic
@Joy-hw5im
@Joy-hw5im 7 ай бұрын
Wow 👏🙌
@rikwen96
@rikwen96 2 жыл бұрын
So glad you are feeling better and getting over the brain fog. That can really drag one down.
@Connievillablanca
@Connievillablanca 9 ай бұрын
Thank you for this video ❤️ I got my infusion 4 days ago and I feel so bad , I get all the side effects even fever , I’m so sad but this it’s giving me hope, thank you again
@maddieb2763
@maddieb2763 8 ай бұрын
how are you feeling?
@Connievillablanca
@Connievillablanca 8 ай бұрын
@@maddieb2763 the next day after my post everything was way better , I feel really good, thank you for asking ❤️
@malbane2006
@malbane2006 Жыл бұрын
I have my first infusion later today, so thanks for sharing this because now I will have an idea of what to expect.
@3boysmom81
@3boysmom81 2 жыл бұрын
Glad you are feeling better.
@jeanmank6342
@jeanmank6342 7 ай бұрын
Omigosh you are exactly describing my depression and lack of motivation! I'm scheduled for Monday but terrified because they can never get an IV in me. Me language is messed up too. But I just had an ileostomy and I'm limited on certain foods. No caffeine! You look so well!
@EricaYE6
@EricaYE6 11 ай бұрын
Thanks for sharing and CONGRATS on your success with your iron infusions. I'll be getting mine soon. Just made an appointment earlier today.
@lovelybones6891
@lovelybones6891 6 ай бұрын
How did it go?
@EricaYE6
@EricaYE6 6 ай бұрын
@@lovelybones6891 They helped me a lot! I had so much more energy afterwards.
@EricaYE6
@EricaYE6 3 ай бұрын
@@lovelybones6891 Sorry for the late response. They went just fine. I totally had more energy afterwards. The doctor/specialist prescribed 5 iron infusions once a week for 5 weeks. I honestly felt better after the first infusion.
@mdketzer
@mdketzer 2 жыл бұрын
So happy for you!
@belaskc8801
@belaskc8801 8 ай бұрын
I will start with iron infusion tomorrow, 26.01.24 . My doctor told me that my iron level is 2, i am very scared about this. But i am also more scare about those injections ( i will have 10 applications, 1 application of 50 mg every second week ) . I really hope that i will get better soon 😢. Your video helped me to relax a bit, especially when you told about your side effects. Thank you ❤
@shonb989
@shonb989 3 күн бұрын
any update, hope you feel better
@momapes
@momapes 2 жыл бұрын
I just had a light bulb moment, Nilli. The things you are describing are so much of what I have gone thru my whole life but everyone said it was all in my head UNTIL I demanded my thyroid be looked at in tighter tolerances. Come to find out it was NOT all in my head and my thyroid was taken out (at that time it was all I had to do) and diagnosed with Hashimotos- which I have had since birth. But I have still fought all the symptoms I had before, especially not having energy/brain fog, etc.- always fighting to go on. Do you have a regular doctor you see or someone else? They always say it's my nutrition but I know it isn't. I don't mean to sound smug but I seem to know more about it than the nutritionists so I have given up on them. Also, are the test you are taking written up somewhere were we can get the tests you recommend and their names? I can't tell what they are with 3 letter acronyms. Also, are you paying out of pocket or is there a way to get your insurance to pay for at least some of the tests? I have spent $20,000 in the last 6 years and gotten nowhere accept what you have taught me along the way. Any help with these questions would possibly make the rest of my life easier- I'm turning 71 and would like to say the last part of my life was spent WELL. Thank you for all that you do on your channel and the time you take to do it. I know it is very much appreciated by everyone...... Mo
@debrakleid5752
@debrakleid5752 Жыл бұрын
There are different IV irons and I’ve had bad allergic reactions. I was on Venofer for a few years when I needed IV iron and before my first dose I was given IV Benadryl. Before I left I knew I wasn’t feeling well and I felt feverish and I was supposed to work a 12 hour shift that night at the hospital. I had to call out and go to the ER where I had a high fever, heart rate was around 160, and I was just really sick. I was admitted to the floor overnight. After that incident I had anaphylactic premeds that was Tylenol, IV Benadryl, IV steroid, IV Zofran, and IV fluids to avoid getting reactions. I usually also got IV iron for 3-4 rounds about every 2-3 weeks apart. Out of the 4 infusions I would always react once and some reactions happened several hours after I was done and others were almost right away. It was like playing a bad version of Russian Roulette and which infusion did I react to. One was a few hours after getting home I could tell my heart rate was 160 so my mom took me to the ER and I was taken back immediately where the doctor was waiting for me and they had a code cart. I was given Adenosine which is awful and we did 2 rounds and it didn’t work. I was put on IV fluids and given other meds and again admitted overnight on the floor. On another round of IV iron about 6 months later I had just finished up and they took the IV out. I went to the restroom and when I came out I could tell my heart rate shot up. Mom said to tell the nurse so they said to sit down. They had just checked my vital signs before the IV came out and it was normal. She rechecked it and my pulse ox was in the upper 80’s or low 90’s, heart rate was up to 187, and my blood pressure dropped. They called EMS and back to the ER and admitted to the hospital floor overnight. This is all with the pre meds. The next infusion my doctor admitted me to the PCU floor so I could be monitored overnight but thankfully nothing happened. After moving to FL I was switched to IV iron called Injectafer and I never had a reaction but I always had my premeds. That’s if all I got was IV iron and Iv fluids. Since moving to be back home to help my parents I saw a new hematologist. I started going on IVIG every 4 weeks and IV iron as needed and he also ordered Injectafer. So my first IV iron at the new infusion center we did IV iron first and then my IVIG right after on the same day. DON’T EVER DO THAT! I had a very bad reaction with a fever of almost 103, a high lactic acid, high white blood cell count, and high heart rate. I’m immunocompramised so anytime I have a fever of over 101.5 I’m supposed to be admitted to the hospital and they did that day for possible sepsis. I was admitted for 4 or 5 days. It was a reaction between the 2 meds. Only once was I sent home with a fever of over 101.5 and that’s when Ian was knocking on our back door. The hospital is about a mile from the beach and Ian was a major hurricane. When we left I was almost knocked over from the wind. So I react badly to some IV iron and with the one I can take fine with pre meds I can’t do it with IVIG (IVIG is made from donated plasma from blood donors). Bad reactions happen with IVIG. Im also on IV fluids at home and 2 IV meds (IV zofran and IV Benadryl) so I have a central line for my iron infusions, my IV fluids and meds at home, and my IVIG as well as IV antibiotics, steroids, and Lasix when I get pneumonia and my pulmonologist tries to treat me outpatient first even with those 3 IV meds. Still usually end up admitted so I go through a lot of infusions. Iron can be nasty and it BURNS with a regular IV. No burn with a central line and I’ve had a central line for 7 years now. Sorry this is so long but I struggle with IV iron.
@C-eq1tj
@C-eq1tj Жыл бұрын
What an awful time you’ve had! Why the IVIG? it is for immune diseases. Is that supposed to help you not react to the IV iron? Have you reacted to all the types of IV iron? I have Feraheme infusion, which has black box warning. I’ve not had pre-meds. I do the IV fluids afterwards. I’m not sure if I’ll continue. My body does not absorb iron. Feeling worse after the infusion. It’s been a week. I’m due for another one next week. Feeling worse can be because of phosphate levels or side affects of the drug Feraheme. Dr. Said my body destroys iron. I need to find root cause of malabsorption. Have you checked into what is causing all of your health struggles? I really hope things get better for you.
@debrakleid5752
@debrakleid5752 Жыл бұрын
@@C-eq1tj one thing that can cause you to not absorb iron is celiac disease. Have you had a blood test or endoscopy for it? I do have that and that could possibly be a cause for that. I am on IVIG because I have CVID (common variable immunodeficiency disorder) and that has nothing to do with celiac disease. It appears to be genetic in my family because it appears that my mom has it and I found a copy of her blood test a year or so ago but she is 79 and doesn’t want to do treatment as there isn’t a cure. Just IVIG. I got IVIG and IV iron back to back one day and I had to be admitted for a high fever. I’m supposed to be admitted for all fevers over 101.5 because I’m immunocompramised. I only get IV iron when my labs show I’m low. IVIG I get every 28 days via my central line. I’m still prone to certain types of infections such as pneumonia , sepsis, and GI infections and I’ve had all 3 numerous times and numerous hospitalizations especially the pneumonia’s and sepsis. I’ve had sepsis 4 times with one hospitalizing me for a month. That sucked. Pneumonia I’ve lost count and the hospital stays I’ve lost count. IVIG is made from plasma so we have to have enough blood donors to make the drugs. If you haven’t been checked for celiac disease at least ask for the blood test. If it tests positive then you can also ask for an endoscopy as well to make sure it’s that.
@konwaraima6120
@konwaraima6120 3 ай бұрын
O my god. Thank so much. I am from India. I feel relief now after watching your video. I have been going through all this symptoms especially heart rate. I am literally confused is it anxiety or due to iron infusion. Thank you for clarity.
@lovelybones6891
@lovelybones6891 6 ай бұрын
Just went today !! Still feel unbalanced some I am a diabetic sugar was 584 now 124 !! I want to sleep but can’t for some reason!so happy for u
@MK-kg5wp
@MK-kg5wp 14 күн бұрын
Any further health updates since you started infusions? I hope you are feeling fantastic still and 100% healthy!
@delladearest2511
@delladearest2511 2 жыл бұрын
Wow, so happy for your progress! This is so helpful for me, thanks for sharing ❣️🤩
@jmtx.
@jmtx. 2 жыл бұрын
Glad to hear things are getting better and better. How's your blood pressure throughout all this?
@txtorn8oh
@txtorn8oh 2 жыл бұрын
Discuss having your intrinsic factor checked. I was diagnosed with pernicious anemia along with iron deficiency anemia as well as something blood related to low B6 levels. Also hypothyroid, SIBO, NAFLD and gallbladder issues. I'm taking a supplement with intrinsic factor, vitamin B12 & folic acid as well as an iron supplement. The first thing I noticed was my skin texture and tone changed and that was on the next day after taking the iron supplement. No way can I absorb iron without taking intrinsic factor! PS - one of the iron supplements I take also has vitamin c. It's part heme and part non-heme iron.
@pamiamcanada4262
@pamiamcanada4262 2 жыл бұрын
Wow, your colour looks good!
@susanehrlich9292
@susanehrlich9292 7 ай бұрын
I have a large hiatal hernia. That means that acid from the stomach gets into your esophagus. After other tests like a normal colonoscopy they are pretty sure that this is the cause of my iron deficient anemia. I too take iron supplements but still suffer from the affects of deficiency like shortness of breath and fatigue especially lack of motivation that you describe. It just seems like I can’t absorb very well these supplements. I’ve had several infusions and they work great but the ferritin level always declines over the next few months.
@sazzlepop321
@sazzlepop321 Жыл бұрын
Thanks for sharing I had mine a few hours ago. I had no negative effects during or straight after. I’m excited to feel better I hope this week. My level was 5 and haemoglobin 105 😑
@sazzlepop321
@sazzlepop321 Жыл бұрын
Back to comment that after 10 days I felt back to normal energy levels. I had forgotten what it felt like! Relief.
@Omar-hh4rq
@Omar-hh4rq 6 күн бұрын
I would suggest you to check vitamin D B12 and magnesium this could affect your digestive system
@lavellnutrition
@lavellnutrition 2 жыл бұрын
Do you have Pernicious Anemia which can make you be lacking in Intrisic Factor in your stomach to uptake your iron? Also have you had Genetic Testing for Celiac Disease and not just endoscopies?
@IndigoNili
@IndigoNili 2 жыл бұрын
I've had genetic testing and do not have the celiac genes
@liap1293
@liap1293 2 жыл бұрын
I'm sooo happy for you!
@RosemarieHelus
@RosemarieHelus 2 жыл бұрын
I have to take A thyroid medication. I still occasionally get that fatigued feeling and it’s very hard for me to lose weight. I get pernicious anemia once in a while. Is that what you have? I’ve actually had to have a blood transfusion in the past but not for many years because I’ve been very careful and follow my doctor’s advice. You look wonderful and very healthy and beautiful. I love your recipes.
@jen4162
@jen4162 Жыл бұрын
Hey, how is your experience with thyroid ?? What were you symptoms before getting it?
@rosemariejanssen7790
@rosemariejanssen7790 Жыл бұрын
@@jen4162 I was diagnosed many years ago but I do remember that I had trouble losing weight no matter how little I ate. I had fatigue. I was always cold. I had dry skin. Hope this is helpful. It wouldn’t hurt to have your thyroid checked if you have symptoms. Merry Christmas or happy holidays. ❤️
@judyduran2306
@judyduran2306 2 жыл бұрын
Thanks for the update.
@karenh5985
@karenh5985 2 жыл бұрын
I’m so happy for you. 🤗 What a blessing to have a dr who knows how to test. My hair always sheds more right before I get new growth from treating a health issue I have. I’m interested in seeing what gut health test you choose. I love your videos. I find them relaxing and full of information and encouragement. Thank you.
@aleksandradabrowska1508
@aleksandradabrowska1508 Жыл бұрын
I did my infusion 4 days ago and can't see any difference 😢
@karenhelwig5939
@karenhelwig5939 Жыл бұрын
Thank you for talking about it I got my first one December I feel a little better when you hear some body talk about thankyou
@binaryspeaking
@binaryspeaking 7 ай бұрын
Found out my Ferritin is 33. Haven’t washed my hair in 8 days because I’m so exhausted. Not to mention it is thinning terribly. And the brain fog is out of this world. I have Celiac Disease and just reviewed my bloodwork going back to 2016 and it has always been low-as low as 11 and not one single doctor has addressed it until my most recent Dr. I can’t tolerate iron by mouth so I’m contracting my GP to discuss iron infusions. Thx for your video.
@SugaStarr
@SugaStarr 7 ай бұрын
My iron total is 23 and my ferritin is 5. I’m always in bed. I just got my first infusion yesterday. Good luck.
@anacanales9722
@anacanales9722 7 ай бұрын
Whao same here.. ferritin 4, took forever for my doctor to start the authorization for the iron infusion treatment, but will start next week. How many treatments are u getting for that low? They only approved me for two.. hope it works. Good luck!!!
@beegenuine1478
@beegenuine1478 Жыл бұрын
Thanks for sharing, very encouraging!!!
@HookerTheWriter
@HookerTheWriter Жыл бұрын
Thank you for sharing! I’m struggling and dr has offered infusion if I want. Everything feels so hard!
@sandy-mr5gj
@sandy-mr5gj 2 жыл бұрын
Gut health - my thing is yogurt and kimchi (or any ferment). A good gut rules the body. Also wondering if you take magnesium, a catalyst that runs the body, from my research (i didn't word that well, but you get it).
@dorriejunior4426
@dorriejunior4426 2 жыл бұрын
this is fantastic...so happy for you. Do some research and maybe a hematologist if there is no easy answer.
@desireeallyn8902
@desireeallyn8902 2 жыл бұрын
Pernicious anemia…..it means you can not absorb iron because of lacking b12 of sorts. It used to be very serious but it isn’t anymore you just need, usually b12 shots and then your iron is absorbed. Just passing that along.
@IndigoNili
@IndigoNili 2 жыл бұрын
If I had that I would assume that my B12 would show low on my labs, right? Mine was in a good range although I would like to get it a little higher
@desireeallyn8902
@desireeallyn8902 2 жыл бұрын
Please research it….it may not have as much to do with how much b12 you have as to how you are utilizing it.
@bo3abed395
@bo3abed395 2 жыл бұрын
@@IndigoNili There are 4 lab tests which by a person can be diagnosed with vitamin B12 deficiency, the serum vitamin B12 level being the weakest, and the last of the 3 other tests that shows a problem when a deficiency occurs.
@girlanonymous
@girlanonymous Жыл бұрын
I had b12 shots for a year and now my b12 levels are high but my ferritin levels and hemoglobin are still in the toilet. Just had my third iron infusion in 4 years today.
@strngenchantedgirl
@strngenchantedgirl Жыл бұрын
There’s many reasons for anemia. I have Crohn’s disease and that’s what causes mine. Also severe periods can cause it.
@donnielledonaldson996
@donnielledonaldson996 2 жыл бұрын
LOVE your front porch!!
@lucygouveia4571
@lucygouveia4571 Жыл бұрын
I was diagnosed with auto immune gastritis and Pernicious anemia. I had a endoscopy done and then was sent for labs to check antibodies for it. I will be having my first iron infusion next week. I have been nervous but watching your video made me feel better. I would have your Doctor refer you to GI.
@lindastorr1674
@lindastorr1674 4 ай бұрын
After years of being full of energy,I've just had all those symptoms especially the sleeping disturbance just as you are going of to sleep,then you lay awake,leaving you exhausted this has been going on 6months,but I push myself to walk everyday and my eating habits are healthy but when you are exhausted brain thinks its hunger,had blood tests and doctors tell me I'm not iton deficient.
@sootie23
@sootie23 Жыл бұрын
Great video! Thanks for sharing your experience and glad you feel better. I have my infusion in 2 days, wondering if there’s anything you prepared or asked the doctor beforehand? For eg, about the staining risks?
@demonlady7877
@demonlady7877 Жыл бұрын
I get mine soon...this video really helped me because I am worried...thank you
@1melissawhatnow
@1melissawhatnow 4 ай бұрын
I’m worried about myself. How did it go for you?
@doramather4729
@doramather4729 2 жыл бұрын
You look so healthy, you have a glow now, a light healthy sun tan. Your face color tells people you are healthy, just look at your videos you face looks so pale. Congratulations on your health improvement and hope your stay on your healthy journey forever. . 👍
@alaiaadam5767
@alaiaadam5767 Жыл бұрын
10:56 I feel as if after 1 iron infusion my skin has gone 1 tone darker 😥 any solution ❔
@MA-rn2xp
@MA-rn2xp 2 жыл бұрын
Hi how low were you before your infusion . I'm getting a referral but I have to wait another month to see my doctor again. I resonated with everything you've said !!
@guerareal7760
@guerareal7760 Жыл бұрын
Her ferritin was a 9 beforehand.
@chassidylewis3473
@chassidylewis3473 Жыл бұрын
Wow i have all these symptoms
@behrangabp8369
@behrangabp8369 5 ай бұрын
I just had an iron infusion, my iron level was 4. I'm really nervous whether I'm gonna feel better or not, although everyone says I'll feel better. So far feeling worst!
@LMMLR4
@LMMLR4 Жыл бұрын
Dealing with the same ! Thank you!
@radicalveg00
@radicalveg00 4 ай бұрын
I wonder if you had any concern for the preservatives used in infusions, usually benzyl alcohol.
@meerabakshi2676
@meerabakshi2676 Жыл бұрын
Hello Indigo Nili how are you doing now? Thanks for this video.
@ellie4395
@ellie4395 Жыл бұрын
ARE YOu telling me I don’t have executive dysfunction/emotional regulation- I’m just low on iron 🤦🏿‍♀️🤣
@92TampaChick813
@92TampaChick813 6 ай бұрын
Being anemic sucks it’s like having a hangover everyday 😢 my ferritin level is 3 and my hemoglobin is 8.7 I go for my infusion Sunday. I actually had them before when I was pregnant I was craving cleaning supplies smells. And when I started craving Clorox wipes fresh scent I knew I was anemic again but with no insurance I couldn’t afford to get the treatment at a hematologist/oncologist but I found an infusion center my doctor sent over the script and all my labs and I’m paying $140 per infusion total of 3 I got really lucky I’m excited to feel like a normal human being again. And stop sniffing Clorox wipes 😂
@imviiku
@imviiku Жыл бұрын
You got infused with Iron Sucrose or other iron like Carboxymaltose or iron isomaltoside ?
@tobytyler4897
@tobytyler4897 Жыл бұрын
I was considering this but when you casually mentioned thankfully it wasn't life threatening, I think I'm going to pass. If this could be life threatening then I have to pass.
@bettygadd2333
@bettygadd2333 2 жыл бұрын
I was thinking your color is better.
@samhaskins2506
@samhaskins2506 4 ай бұрын
Was very interested in the after effects of your IV infusion. Doctor Eric Berg recommends Betaine HCL to help with heme iron absorption, usually available from Amazon, could be worth a try?
@Lucky-dub
@Lucky-dub 2 ай бұрын
Hello.. Once the hb levels become okay, how long this will last..?
@elysemcdaniel8365
@elysemcdaniel8365 Жыл бұрын
Just wondering if these results were from the first infusion or after several? Thanks for sharing!
@turtle54797
@turtle54797 Жыл бұрын
I had my 2nd Venofer infusion almost a week ago. Unfortunately I haven't seen much improvement. Very disappointed.
@scclarke90
@scclarke90 Жыл бұрын
doctor said my iron was at 3 and is not changing with iron supplment so I have to get iron infusion and I am so nervous. i have been feeling awful for many months and i don't know if it is only because of my low iron, but i have pains, shortness of breath and high heart rate.
@vivianalauderdale7237
@vivianalauderdale7237 Жыл бұрын
I was just diagnosed with microcytosis and the Iron infusion might have to be a possibility… my platelets were also high :( my muscles hurt so bad. I want to feel well again
@skillsandthrills7054
@skillsandthrills7054 Жыл бұрын
Hi , my ferritin levels are : 18 now . Doctor wanted me to go for iron infusion based on my levels and symptoms . I am lil scared of side effects . Especially sleeplessness . You said you were also unable to sleep for few days right ? But it ll go off after few days right ?
@spirtgirl1
@spirtgirl1 8 ай бұрын
I wish I didn’t start reading these comments because I have my iron infusions in the morning & now I’m absolutely terrified and kind of regret agreeing to them. I’m anemic and get dizzy quite often. Should I cancel my appointment? I’m so scared now for these side effects everyone is talking about. :/
@angelinar8983
@angelinar8983 20 күн бұрын
What did you do in the end? Please. I'm the same position than you and super scared.... about to cancel my appointment.
@spirtgirl1
@spirtgirl1 20 күн бұрын
@@angelinar8983Hey! So I ended up going through with it because honestly I had no choice and I felt totally fine.. if anything I felt really tired after my infusions but that’s all! During the infusion itself I felt nothing!!! Trust me these side effects everyone is talking about for the most part dont happen. Everyone is different! I hope this is reassuring to you and gives you the sign you needed to go get your infusions! You got this.
@ruthrnk3826
@ruthrnk3826 2 жыл бұрын
Just had mine and got the reaction all over my legs.
@maishaanna8812
@maishaanna8812 6 ай бұрын
After the infusion are xou supposed to cobtinue taking iron supplements the next day?
@dillan735
@dillan735 2 жыл бұрын
I had my first one 3 days ago. Venafer
@Lucky-dub
@Lucky-dub 2 ай бұрын
How are you now
@binaryspeaking
@binaryspeaking 7 ай бұрын
Sorry. First time here. Were you ever tested for Celiac Disease? You have to eat gluten in order to do the test.
@srezzy1326
@srezzy1326 2 жыл бұрын
Do you have a discount code for ATHLETIC GREENS? I just found out they are made in New Zealand. And you’re review of them I wanna try them. Also having iron and ferritin, b12 tested too. Thank you.
@IndigoNili
@IndigoNili 2 жыл бұрын
Here you go! fbuy.io/ag/indigonili (using this referral link gets you a free bottle of Vitamin D and 5 free travel packs of AG1 with your subscription order)
@MysteryExodus
@MysteryExodus 11 ай бұрын
Would weight gain from iron infusion be from increased hunger or does it mess up your insulin?
@KatyatheBlack
@KatyatheBlack 8 ай бұрын
I want to know this too….?
@MysteryExodus
@MysteryExodus 8 ай бұрын
Update: I had an iron infusion 2 months ago while pregnant and did not gain any weight. I did feel hungrier after the infusions but I was conscious it and stuck to my normal way of eating.
@KatyatheBlack
@KatyatheBlack 8 ай бұрын
@@MysteryExodus thank you :)
@homehealthymama
@homehealthymama Жыл бұрын
Do you take liver pills? I’m looking for a good brand.
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