How to change the water in a mickey button balloon

  Рет қаралды 29,644

ParentXP

ParentXP

2 жыл бұрын

How to change the water in a mickey button balloon. Once a week it's time for a g-tube balloon check which I do by changing the water that keeps the balloon inflated
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
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Facebook: / parentxp
Website: www.parentxp.org

Пікірлер: 18
@teresasmith3689
@teresasmith3689 Жыл бұрын
Your doing a good job mom
@teresasmith3689
@teresasmith3689 Жыл бұрын
She's so beautiful
@lauralie9658
@lauralie9658 2 жыл бұрын
I love Elins smile and your hair. Tova your a strong loving good muma. You amaze me. Elin is a wonderful little girl God bless you both.
@clairelee2944
@clairelee2944 2 жыл бұрын
Ensure a beautiful girl she's so cute but mischievous
@ParentXP
@ParentXP 2 жыл бұрын
Thanks hon. I love the pink but it fades so fast.
@ParentXP
@ParentXP 2 жыл бұрын
Elin, mischievous...? Oh yes, she is!
@laurawhite1679
@laurawhite1679 2 жыл бұрын
Aww she is so happy when she wakes up. 💕💕
@ParentXP
@ParentXP 2 жыл бұрын
The HAPPIEST!!!
@maddielangdell6496
@maddielangdell6496 2 жыл бұрын
Aww elin looks so happy and your hair looks lovely tova
@ParentXP
@ParentXP 2 жыл бұрын
Thank you Maddie!
@junelynn63
@junelynn63 2 жыл бұрын
I adore ellin's smiles she seems so mischievous does she still get to eat a little or taste bits of food orally its such a big part of our lives I realize she didn't get enough calories to sustain herself and grow, but thought she could still eat?
@ParentXP
@ParentXP 2 жыл бұрын
Thanks June, yes she is extremely mischievous!!! She gets tasters, yes.
@binkybunnysway943
@binkybunnysway943 2 жыл бұрын
Aww you a dab hand at it all. Omg lol clamp off oooops. Well you handled that very well and got rid of the eeek quick lol! Ha ha if i leave my clamp off I get blood. Tubes too messy. Great job hi from us n a big hug . And your hair looks fabulous!!!!!
@ParentXP
@ParentXP 2 жыл бұрын
Thank you (swishes hair that is now sadly very faded). I've lost count of the number of times I've messed up with the tubes. Most embarrassing one was in a clothes store... 😳
@binkybunnysway943
@binkybunnysway943 2 жыл бұрын
@@ParentXP ha ha! Oops. Well my most embarrassing was walking through a church fate and my catheter detached from the valve! So I free peed all over the floor arghhhhhh
@pmatisse2483
@pmatisse2483 2 жыл бұрын
Love you guys
@ParentXP
@ParentXP 2 жыл бұрын
Thank you
@elenasfait8799
@elenasfait8799 Жыл бұрын
No problem mogdi
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