Vlogmas #6 - We have to go to Stanmore Hospital

We have to go to Stanmore Hospital and we have got to leave in half an hour! And before that we have to do a lateral flow test, as well as replacing the mic-key button so it's a very crazy morning. I've lost my ability to manage time.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

[@pamelagreenfield1899]

You crack me up tova good morning girls!

[@ParentXP]

Good morning

[@HopeAndSunshine]

I think we only had to change Raelynn's G button a handful of times ourselves, and I think it was always because it was clogged. Now that she has a G-J button, we can't change it oursleves. So she gets it changed at the hospital at least a couple times a year.

[@ParentXP]

The community nurse rang today to ask if I needed any help. No thanks, I've got this 😂

[@naomimathieson6817]

Elin

[@maddielangdell6496]

Last thing you need lateral flow test with no instructions hope the appointment goes well

[@ParentXP]

I know, right 😂. Finally got the instructions today...

[@beckyhammond525]

Good night elin and tova 🌃

[@ParentXP]

Nightynight

[@laurawhite1679]

Hope everything is going alright

[@ParentXP]

Thank you