Huntington’s Disease | Generations of Care and Search for a Cure

The Johns Hopkins Huntington’s Disease Center for Excellence is honored to have served multiple generation of families for the past forty years in HD history. Join neurologist Jee Bang, Clinical Director of Johns Hopkins Huntington Disease Center of Excellence, and tune in to the recorded Facebook live session to learn more about Huntington’s Disease and efforts underway for families affected by the disease now and in the future. #HuntingtonsDisease #JohnsHopkins
Learn More www.hopkinsmed...

[@Lucarinho]

I pray every day that our great scientist really find a way to delay the onset of HD or possibly even a cure. I'm 28 and at risk of inheriting the gene from my father. As of now I'm not going to to a predictive test.

[@liveitlikeitloveall2746]

I pray everything is okay with you. I’m 41 and going through some pretty bad things, though I refuse to want to believe it. We all know what the symptoms are when our family has been through it . I’m 💯 % convinced I’m going to hell, being that I’m cursed with Yetzer Hara for being hateful towards Gods people.. With it and other mental issues I’m literally falling apart ..Yet know one believes me, they just just say it’s my mental issues and possibly early HD.. I’m sorry, Im going off topic.. I’m just really deteriorating. I love you, hang in there, they are coming out with lots of new medicine and technology.

[@winnermatt1180]

How did the test come out?

[@winnermatt1180]

I am studying this in biology so I’m very curious. I hope it came back negative.

[@NamzKay]

Same. My mum had it and my sister now has it too .... my uncles also have it ... but I’m choosing not to take the test either. God protect us x

[@tshioejeremy257]

I know a good doctor that can help you get rid of the Huntington's disease permanently without no side effects and no progeneration

[@modikiaisikitaisi5363]

Two people in my family have it. One is in her last stage of life and one is just beginning. Painful for the whole family. Finding a cure will be the best thing to happen.

[@ks8661]

see what they are doing with nutritional supplements and hd: d.tube/v/paywithlawv/j1hc70kwizj

[@amlanjyoti2]

One of my maternal uncles is also suffering since last 3 years and he is in his late 50s

[@tshioejeremy257]

I know a good doctor that can help you get rid of the Huntington's disease permanently without no side effects and no progeneration

[@tshioejeremy257]

@@amlanjyoti2 I know a good doctor that can help you get rid of the Huntington's disease permanently without no side effects and no progeneration

[@amlanjyoti2]

@@tshioejeremy257 any contact information??

[@Sara-wb2bs]

If HD is a clumpy mess of protein in the brain... would it be crazy to think that maybe there is an Enzyme that could cross the Blood-Brain barrier and dissolve the protein? Digestive enzymes do it in the stomach... why not an enzyme that could do the same thing in the brain? I checked this out and there is an enzyme that does cross the Blood-brain barrier. I could be wrong, but It may be as simple as that.

[@ZeldaKid5000]

Because how do you tell that Enzyme to differentiate between HD proteins and the normal proteins within the brain. You might smoke out the HD but you'll have burnt the brain in the process

[@Sara-wb2bs]

You have a good point:) @@ZeldaKid5000

[@ks8661]

see what they are doing with nutritional supplements ✅and hd: d.tube/v/paywithlawv/j1hc70kwizj

[@sakeenaalhajri5151]

Nice

[@robertmurphy8857]

Now that abortion is illegal in half the states, are IVF clinics in these states that help HD positive parents have HD-free children at risk of shut down?

[@MoizKhan-up1sx]

My grandfather died in Hd ,,grandfather's sisters died in Hd,, now my father Hd deases, and father sister Hd, Hd running in our all family. Plz we need help,,,moiz khan from Pakistan

[@ks8661]

see what they are doing with nutritional 🌈supplements and hd: d.tube/v/paywithlawv/j1hc70kwizj

[@tshioejeremy257]

I know a good doctor that can help you get rid of the Huntington's disease permanently without no side effects and no progeneration

[@simranmohakud3376]

@@tshioejeremy257 tell me about it

[@shakshisrivastava1106]

@@simranmohakud3376 hey can you please give me solution my mother suffer from this disease and I really want consult from dr but no one give me please if you know something then please tell what we do for predictive test or not

[@sallykim9953]

my sister's dr. thinks that she has HD, and when I see her symptoms it does look like HD. But if we have no family history of HD, Parkinds, Alzheimer's, or any similar disease in the family how rare it is that she is the patient 0. No HD for both my parents, they are 75 years old now. and both their parents had no HD and lived upto into their 80's except my mom's father who disappeared during the war; but him and my grandma had 4 kids, and they had 8 kids (my cousins) also they had many kids who has no HD or anything similar. Also, my father's side, he has 5 other siblings no HD nor similar disease, they had many kids (my cousins) and they also had many kids. no HD or similar disease found yet. my sister is 42 and I am 44 years old. we are waiting to get blood tested for HD for my sister. but it is taking a long time. so I am really curious. I know nothing is impossible, but how rare can this be?

[@JohnsHopkinsMedicine]

For answers to specific medical questions, we suggest reaching out directly to a doctor.