I'm Growing A Second Skeleton | Living Differently

Carli has a disease that is ‘turning her into stone.’ The incredibly rare condition known as Fibrodysplasia ossificans progressiva (FOP) has caused Carli’s muscles, tendons and ligaments to turn to bone, fusing her into a ‘frozen’ position. Carli’s hip has locked, forcing her to stand on one leg.
This intimate film shows how Carli battles with intense pain on a daily basis and has already lost significant mobility throughout her body. We see how she struggles to eat, because her jaw now only opens 2mm. There is currently no cure for FOP, but Carli is participating in a clinical trial to help treat the condition. But despite slowly turning into a human statue, Carli is refusing to let the condition stop her from moving in with her boyfriend and living life to the full whilst she can.
--
Click here to subscribe to BBC Three: bit.ly/BBC-Three-Subscribe
Did you know that we’re up to other things in other places too?
Best of BBC Three: www.bbc.co.uk/bbcthree
iPlayer: www.bbc.co.uk/tv/bbcthree
Twitter: / bbcthree
Facebook: / bbcthree
Instagram: / bbcthree
Tumblr: / bbcthree
Oh, we’re on Snapchat too - just incase you were wondering… add us, bbcthree.

[@lillytishagacha8243]

oh my god. i just realized how ungrateful i am.

[@juanluis21monsanto98]

That's part of being human and the learning process, there's more to life than the things we worry or complain about, and there are many things we take for granted, what matters is that we realize, and make the difference ourselves, as someone who didn't know what they had until it was gone, even if temporary, opened my eyes, and I hope it doesn't take something like that for others to open their eyes too.. though this video not only open many eyes as well, it opens their hearts, and I hope it leaves a positive impact on others to embrace themselves, and others.

[@luke_5187]

Can’t relate

[@FabiSZN]

Nonsense. That's just a word only humans made. We're still animals. People just aren't as lucky.

[@hi-sm4ej]

Farzaan Ali KZbin video about someone with a condition that could very much teach you how ungrateful people are.

[@shaundraoglesby5009]

Me to

[@addme3853]

After watching this I just want to slap my self for complaining everyday

[@raeisgay6850]

Don't

[@introvertedangel8524]

I feel like slapping myself too.

[@jeanhenly343]

yes if just been on the phone to my son complaining because I have head cold

[@yolandagomez4115]

Same!

[@getrektnoobgg5043]

I tore my acl and miniscus and got surgery and I can’t take not walking without crutches. I feel like shit for complaining

[@cherylkay9511]

The doctor that diagnosed her is incredible. Only 800 cases and he knew what it was.

[@eggsybenedict7014]

FOP is actually quite famous as a rare disease (check out Mutter Museum's collection). Even if the doctor didn't know about it, the symptoms are very distinctive, so it's relatively easy to look up.

[@rard2963]

@@eggsybenedict7014 you are right

[@marojiyam2258]

that’s what I was thinking!

[@ellenksong]

I honestly think the rarity of the case helps. When it’s something autoimmune sometimes it can mimic so many things so it takes a lot lot longer to diagnose. Cases like this are so distinct. I’m sure it’s in their books as a standout section as it’s so unique.

[@junipers-rings]

@@ellenksong That’s true. I was able to diagnose myself with this rare disease called Intercranial Hypertension because of how specific the symptoms were.

[@XMoonBoiii]

she has good really good balance, if i was talking to people with one lag up i would probably fall on them. I rly hope they find a cure. :)

[@andymanson3836]

Maybe they will. But they can't just remove the extra bone because it'll grow back and even worse like a tumor.

[@timmarkus6387]

No you wouldn’t fall, just like anyone else who gets this you would adapt she’s not special neither are you

[@joecollett2601]

Tim Markus jeez Tim, who hurt you?

[@timmarkus6387]

Joe Collett what does that have to do with anything? I’m just tired of people placing other people so high for normal things. Anyone in that condition would adapt like she has it what the human body does it adapts and it adapts very well.

[@POOPGOD999]

I mean, most people weren’t born with restrictive movements and not be adapted to standing on one leg so

[@praph8933]

I suppose nobody is going to say anything about how the doctor insta knew that she suffered from this extremly rare condition. What a legend

[@zazabrown732]

Well why else did he spend several years and a fortune in medical school if not to know this??

[@strange144]

@@zazabrown732 Enough doctors don't recognize conditions that are half as rare as this one.

[@DragosDomnara]

I was getting tested for cancer and now my doctor after just looking at me and my hormones found out I had a brain tumor.

[@hikomoron4991]

do you mean dr mike? where did you know it from btw?

[@mlgprussian7115]

Most doctors will just guess and give you some good ol prescribed Amphetamines

[@AngeKerr]

Who else just realized how ungrateful they are

[@baileyspeltbeefy1768]

AngeKerr nope

[@Surfacekilla1]

no one the world is ignorant

[@Gleepie]

Surfacekilla 1 but are u sure about that😐

[@jadabug8313]

Not ungrateful, but I need to rethink some things I’ve said and done.

[@piloctor15]

Bro same!!

[@Glickan]

If I was a billionaire I'll give this woman a lot of resources to find a cure.

[@slekdidwbfi8692]

J79 ❤❤❤

[@theamateurartist4572]

But how would it be cured?

[@Glickan]

@@theamateurartist4572 Well, smart researchers, scientists, and a support structure don't come for free. Give them a deadline and force them to do their best and I would be 100 % sure that they would come up with something.

[@theamateurartist4572]

J79 but how would they revert bone back to muscle

[@DavidThomas-yk8wh]

The government can cure most diseases now like cancer but it’s a business so they never will

[@dallunatic]

The balance she has, I can't even walk straight. That girl is a warrior.

[@swenpai]

She truly is!

[@zeorph]

how can you not walk straight?

[@dallunatic]

@@zeorph have you ever heard of laxiness and knee problems ?

[@zeorph]

@@dallunatic well you should probably state that then

[@stealtho]

cap

[@havenlewis6607]

“She was on the swim team, she wasn’t very good” *wife elbows husband* that’s the most dad thing ever

[@nelli7160]

oh yes

[@ginacrea7105]

Haven Lewis I absolutely love that moment I thought it was so truthful and so typical it made me laugh what a beautiful loving family she has

[@lazrahi1267]

Lol

[@gracelynnnm9799]

Best comment

[@introvertedangel8524]

It's a dad thing.

[@mwahhha226]

Honestly, there is so much we take for granted. Moving your limbs, bending your hips, opening your mouth. Simple things we can do that we don’t think is particularly important is a dream for others

[@mimihagger7250]

CAM so true!

[@diaryluminary1033]

True that

[@aradhyachoudhury3602]

Yes.

[@kgzezioauditore563]

I love you💛

[@rishabh5217]

so true

[@OddMoonlight_]

"Maybe your turning into a stone but your heart still will be a gold"

[@N1ghtH4wk86]

eventually her heart will turn to stone

[@ianloeb1672]

@@N1ghtH4wk86 make that oil

[@okay5668]

@@N1ghtH4wk86 weirdo

[@Sophie-jy9lo]

Anyone else watching this in 2021 and wondering how Carli is doing? She’s amazing and such an inspiration!

[@N1ghtH4wk86]

I think her skeleton is on display at museum along with John the elephant man, maybe that was a different lady..... Uhm... I'm hungry, I'm gonna to go get something to eat. Anyone want anything?

[@MySerpentine]

@@N1ghtH4wk86 That was Harry Eastlack, I think.

[@fikilesihlangu5770]

“Not very often that you talk to the ground.” Hahah she’s got an amazing sense of humour. Bless her ❤️

[@Drenamow]

Agreed.

[@jainanovelo4025]

I read total sadness. Sometimes people that make us laugh are the saddest.

[@xenondoro8573]

@@jainanovelo4025 People who have it hardest are often those with the best sense of humour. When life is hard u need to laugh and smile to carry on. That is why I can not take seriously all these SJW's online complaining about the weirdest things. Nothing screams privilege more than throwing a wobbly over something trivial.

[@kingo.t.r1004]

fikile sihlangu ntwana Yami

[@slavicbeech2048]

This will be out of context but you're really pretty 🙂

[@annireuwejeyan3818]

Use me as an “I’m Grateful to God for my life” button

[@OksanaChristie]

Annire Uwejeyan if there is a god why does this girl have such a life altering condition??? Why do children die of cancer God has nothing to do with genetics or the fact that your parents did it and created you.... sinning created you are you grateful for that 🙄🙄🙄🙄🙄🙄

[@esol1940]

@@OksanaChristie good doesn't cause bad things on people. And if people pass away it is because it's their time

[@OksanaChristie]

GSol Sol the notion of god was just a scandal they made People believe in during the renaissance to take control over the less educated people... People used to have to PAY ACTUAL MONEY to be relieved of their sins... how fucked is that

[@barryb.benson8565]

@@OksanaChristie but they really didn't have to. They could have done it themselves. Plus, nobody was meant to be deformed, it came from Adam and eve and the fruit.

[@OksanaChristie]

FizzDrip:3 you seriously believe in Adam and Eve??? How is that story even remotely possible ????? Have you ever heard of EVOLUTION

[@seakettle557]

She is so young, it’s heart breaking

[@cursedspider]

lmao when he went ‘she wasn’t very good at it’ and the mum nudged him with her elbow was so funny

[@ingridnineteen5566]

This girl is so strong and beautiful. Her illness has not made her a victim, but a fighter. ❤

[@siriolsen7805]

If you or anyone close to you are dealing with health issues, even if they are genetic, I would really encourage you to look into Andrew Cutlers work, it is so often missed as an underlying issue. You can start by reading the success stories and I would also recommend reading the article by Rebecca Rust Lee on the Weston Price site. Wish you all the best

[@raeisgay6850]

Wow...i ❤this comment

[@Hillary_Official_1]

@XxMerc050xX Her looks aren't what matter right now -_-

[@ditokoent]

@XxMerc050xX Beautiful doesn't need to be used to describe physical appeal. For me, the struggles this girl is facing and her journey to overcome those demerits are what's "beautiful". Her drive to not give up and despair is "beautiful".

[@veronicachristopher9321]

dito koent I’m with him as I agree. It’s unhealthy to call people what they’re not. You mean INNER beauty because the girl is not physically attractive. And no it’s not about looks; it’s a mere response to an invalid comment. In short- inner beauty is way different than beautiful. Beauty is special. By calling every woman beautiful takes away from those who actually are.

[@qylawahidah394]

Forget about insecurities.. She taught us to be grateful with ourselves😭😭❤❤

[@baileyspeltbeefy1768]

You can still feel free to have insecurities, worries, and complaints.

[@johnnyjoestar7595]

thats dtupid , you literally say "you have no right to be sad " ....

[@qylawahidah394]

@@johnnyjoestar7595 oh my ...don't misinterprete😭😭 I say that because I have a lot of insecurities for my own appearance...oh...sorry..🙇

[@qylawahidah394]

@@baileyspeltbeefy1768 yeah, I agree...But what I mean is for me..I have a lot of insecurities for my own appearance🙇❤

[@ishitasareen1160]

Look at all these comments making it all about themselves. She is amazing, a real hero for surviving! Go Carli!

[@goose-]

Yes! THANK YOU.

[@riverogue13]

“I WoULd hElP hEr” “iM gRAtEfUl”

[@shycat5905]

@@riverogue13 what?

[@riverogue13]

Shy Cat I’m mocking the people making it abt themselves

[@ninectstay_]

This is them sympathizing. People express themselves differently. Not everyone would fit your criteria

[@willrobinson1229]

She's a ray of sunshine in this troubled world.

[@MusicalK93]

She really is. 😊

[@LondonHasFallin]

Here I am complaining about *walking* across the parking lot.

[@00Senhora00]

Karreil2525 I complain about walking home from work which is only 15 mins. Time to stop complaining....

[@redox_reaction_phox]

Im complaining about how heavy im getting and jogging isnt helping.

[@LaLeslie101]

I complain about everything...lol lol ;)))

[@huckleberry7481]

i mean.. everyone has their own problem..

[@LaLeslie101]

@@huckleberry7481 agreed

[@thevirgotay]

“she was on the swim team, she wasn’t good” then that nudge lmfaooo parents.

[@bitx4441]

That was really cute. Lol

[@vanessajabbour4659]

That's like every dad doing that cuz they don't know what to not say to the public and the moms trying to shut them up not so subtly lol. Aka my parents😂😂😂

[@batmama739]

I can attest to this ! My hubs does this all the time 🤣

[@SHAYNASTV]

LMAOOO

[@stuckinthepastproductions4329]

Didn't have to scroll far to see what I was looking for lol.

[@livhcox]

the dad “she wasn’t really good but”

[@lugh6982]

liv cox *Mum nudges father and frowns subtly*

[@shocker6093]

He supposed to lie?

[@marcuspoosz2190]

i mean, atleast he was positive anyways

[@kerai7711]

@@shocker6093 i think the family had a troublesome past but the future is now

[@AmyLeeAngelLove]

@@shocker6093 um.. yes. She is suffering as it is.

[@chelseysmith2412]

Her balance is ridiculous, I could never. Glad she’s getting at least some what of a life she wants to live.

[@maddieb6598]

it warms my heart seeing a smile on her face while she has to deal with this terrible disease... this makes me feel so terrible for complaining about my life every day. she’s in my prayers.

[@shayoverton4220]

I’m hoping that one day we can get a lot of these diseases cured so good people like this can’t be affected

[@jordanboard896]

It'll never happen. They already have found cures... they wouldn't tell the "population" because these diseases are needed to keen out population down.

[@Walduck25]

@@jordanboard896 Not true, what would be the point in not giving a cure to someone for a disease that probably affects 1 in a million or two million, surely it would be something like heart disease and cancer that they would try hide but not for something as rare as this.

[@ebolahunter4144]

@@jordanboard896 Lets put on our tin hats while we are at it

[@virtualfroggy]

@@jordanboard896 its like how they use vaccines to kill of the sheeps

[@raphaelj2541]

@@virtualfroggy don't tell me your anti vax lol actually your probably joking

[@nprincess90]

When the dad said she was no good at swimming and mum nudged him.. 🤣 Honestly I feel for her. But she’s living her best life! Amazing

[@nickb4162]

I love people who can find humour in anything..better to laugh than cry

[@Tyreus1]

@@nickb4162 a laugh is the first punch you can land on the disease's face

[@LFCFlavour]

Mama twins

[@aaliyahdouglass2166]

LoL something str8 out an movie

[@ethicdrift478]

Time ?

[@elizabethashleyerwin9062]

This has to be so painful. She's BEAUTIFUL and has a great attitude.

[@mom4u412012]

Believe it or not. But it isn't. I know a woman in her 50s that has it. She s basically now at the point of fob only thing she can move is her hands. And small movement of her mouth. Everything else is locked in place

[@jaidenwilson82]

When I see people who constantly have to battle everyday, it makes me feel so blessed and yet so upset for them in their position. It hurts me to see kids and people get bullied or bashed for simply being who they are. They can't help it, and it's quite beautiful to see these people still smile and find happiness through their pain. God bless her and her family❤🙏🏼

[@CelticFairyBox]

Looks so painful. Ugh my heart breaks for her. I couldnt imagine seeing your kid suffer

[@KimyKW]

Ravenclaw Prefect not very uplifting, are we

[@unknownpersons3621]

What a rude thing to say.

[@lex5835]

Unknown Persons How is that rude?

[@unpain0334]

Wow. Sympathy is now rude, aye?

[@unknownpersons3621]

Lex I’m sure y’all are the same people that when a person does it was all gods plan.

[@patchyfish1]

"Can be triggered by anything like a fall or even something as little as a paper cut" *Mum slaps a heavy highfive*

[@jamskaterpete]

patchyfish1 right?! I was like “bruh her hands could turn to bone, chill”

[@carolinemercer9779]

She can’t spend her life scared of people touching her

[@StonerStrains]

I felt it through the screen.

[@carolinemercer9779]

why am i still here ? I mean I guess you’re weaker than her then

[@cw-grlibchannel9248]

@@carolinemercer9779 feminist

[@patrickking9600]

At 5:30, I instinctively started thinking “yeah just cut that bone out of the jaw!” without thinking about “oh yeah, if they cut into the tissue in her face it might just cause even more bone to grow right there” 😔

[@tanvikhare9710]

:(

[@angelenergia2163]

I wonder if they could find a way to dissolve the bone

[@matthewgold9402]

@@angelenergia2163 you would just dissolve the things holding her up. The condition transforms her ligimants, tendons, and other things into bone

[@concertchannel5516]

Same😞 That disease is so horrible

[@meshezza]

I have myositis ossificaans. In my case bone grows within the muscle (usually if I really injure it) it’s incredibly painful for a couple weeks until it’s fully formed and then it is left to naturally dissolve back into the bloodstream (6-12 months) you’re right docs won’t cut it out because it will just trigger more trauma then bone growth. Unfortunately, for this poor girl, it’s her connective tissue so it’s fusing moving parts of her body. Devastating 😞

[@naomiemorton5056]

She so sweet and her boyfriend seems lovely, bet they have a wonderful life together :)

[@Aurora-mz6te]

I’m a bedridden 16 year old that suffers from severe M.E and Pots, and I also have some sort of brain tumor. I was completely healthy until about 14 years old. I worked out every day, even when I unknowingly suffered from M.E. I didn’t realize how many things I took for granted. I’ve just been bedridden for a little more than a year now but it seems like a life ago, and I can honestly not remember any time in my life that I haven’t felt sick because that’s my normal now, so my past memories from school and stuff feel untrue. Seeing all these heartwarming comments from people made me cry honestly, and it’s great that some people aren’t taking everything for granted (like I did), when I’m at my worst flare ups and can’t move or speak then I can just lay there and appreciate breathing at least. My biggest dream is to be independent again, so I can experience life to the fullest and travel across the world like my dad did. I’m currently trying to teach myself Korean, because that’s one of the first places I would like to visit! I’m usually quite optimistic but I do get depressed at times. I think it’s beacause my days get so repetitive and my mind just want to run outside but my body won’t let me. I wish everyone got the privilege to live a healthy life, and I hope technology can somehow find a cure to all diseases one day since it’s developing so quickly. Anyway, thank you if you read this far haha hopefully it was worth the energy I put into it because now I have to sleep.. wishing you the best😄💗

[@hi-ok1vd]

Aurora i wish you the best. good luck ♡

[@otrojunio4137]

Aurora You can do this! Never lose hope. If you can write I recommend you to try the roleplay world. In Roleplay you make a character in a social media and then u interact with other people describing what u character does. Like an interactive book. With writting u will be able to enjoy a lot of different adventures just with imagination. I hope it helps!

[@devendripillay4717]

Aurora ur msg had me teary eyed. Reading this has made me realise I need to STOP complaining about the little stuff in my life and actually be grateful. I wish u only the best and hope too one day there will be a cure. I'm so sorry for wat you going through. 💕

[@Psgamer-vu2hp]

Aurora i hope u get healthy like u deserve to be . I know how you feel i have back problems wich are scoliosis lordosis and kyphosis all of them i have . And as we know all the nerves are in are spinal cord i cant control my emotions i have anxiety i dnt feel so good like i used to . I exercise everyday but im tired of this i wanna be like before my heart hurts. Appreciate ur health. Wishing u all healthy life

[@friziadm]

Thank you so much for sharing your story. Hope you can visit Korea soon! Wishing you all the best in the world, beautiful soul ❤️❤️❤️

[@nechamasifris8610]

just imagine how painful that must be.. what a brave girl

[@bolech5221]

Oh it is the hreat has a chance of turning into bone if damaged

[@poodabran]

Oh my goodness. I couldn't imagine it.

[@simaturna9765]

Your bravery inspires all

[@myheartwillstopinjoy8142]

I talked about this disorder to my family once and they laughed at me and said it doesn't exist and it's impossible 🤦‍♀️🤦‍♀️ Note : in my family, there are 2 doctors and 1 med student.

[@mpurohit90]

I mean they said only 800 people worldwide have it. I’m sure they had never heard of it off the top of their head. Most doctors have to do a lot of research in cases like this.

[@gabylicious1815]

You must have a big house or be rich

[@myheartwillstopinjoy8142]

@@gabylicious1815 lol not really. If it's because they are doctors, in my country (a developing country) doctors aren't payed that well. If it's because joining med school is expensive, here med school is for free lol We live in an apartment 😂 but hey, I wish we were rich, 3/4 of my clothes were given to me as gifts by people who are charitable and want to help us since we don't have a dad 😂

[@myheartwillstopinjoy8142]

@@mpurohit90 Makes sense

[@gabylicious1815]

@@myheartwillstopinjoy8142 mhhh im sry for that but at least you can say you have doctors in you're family and you have roof on you're head so great job.

[@anirudhsharma3879]

"Not often do you need to talk to the ground" 😂😂❤️❤️

[@aarynbastian4469]

i am so excited to hear that theres a possibility of her to open her jaw again with the drug trial she is on. i hope she gets the best outcome for her treatment!

[@jasminejo2424]

its a wonderful thing for anyone suffering from this condition to go from no hope to hope, just to be able to operate on them without fear of creating new bone would be an amazing leap forward for improving their quality of life i just hope the medicine when fully finished is easilly avaliable to all who need it

[@idk7251]

It really hit when it said that when she was 7 her jaws locked.

[@accountnolongerinuse2044]

god.. must of been so scary

[@ChildOfAnAndroid]

@Winter Backerley *big hugs* I hope you're okay xx sorry this effected you so badly you must be a very kind and empathetic person. Please look after yourself xx

[@laurelalloro]

@Winter Backerley It doesn't seem like she's depressed Sure it sucks and it's terrible but the last thing you want to do with something like this is be depressed about it, that's not making the best of what you have

[@That1GGirl]

She lying cuz she is still eating tons of unhealthy food 😂

[@idk7251]

Winter Backerley ok now ur doing too much. She’s ok, u don’t need to feel suicidal.

[@eleanoraaunap9382]

she has a really good sense of humour. "it's not often you need to talk to the ground":D

[@rmasteredplayer]

I just realized she’s never able to yawning, I hope they find a cure so people can live their life with no limits

[@someoneunspecial1729]

Thanks for mentioning yawning

[@IndelibleHD]

Count your blessings folks.....

[@snow.flower]

jbohn comments like these rub me the wrong way. It’s like youre saying “wow, thank God i dont have THAT” these comments have no sympathy or empathy to those actually suffering

[@IndelibleHD]

@@snow.flower I'm sorry that you are misinterpreting my post. Have a blessed day.

[@finalhourhd8822]

jbohn look at her house mate

[@IndelibleHD]

@@finalhourhd8822 Yes it's nice but I would rather have my health then a fancy house any day. I'm sure she feels the same way.

[@TfwNoGiantGF]

@@snow.flower Thank you for that comment because those replies to it show how fucked up religion is.

[@sr9643]

It breaks my heart to see people suffer with this. After I watch them, I feel guilty for complaining about things. They teach us so much in just a short episode and it helps me be more grateful for what I have and can do. Girl , you are amazing. Thank you for helping me and for sharing your story. You are beautiful and strong and can do hard things!

[@justarandomdude9346]

Agreed 100%. We should always go on with our lives no matter the difficulties because other people are suffering 100 times more than us right now. Think about the children in Africa for example. Think about the refugees. What they have to go through in order to survive. We should consider ourselves lucky for what we have and how comfortable or life is. We should appreciate even the smallest things in our life because life itself is a gift and we are very lucky to even be alive, let alone experience awesome things in our life.

[@lisyaorancrazed]

Just because someone's suffering more doesn't mean you aren't. Someone with only 20$ isn't suddenly wealthy because someone else has 1$, We don't always have to be grateful for everything just because someone has it worse. If someone's parents just died hey don't have to suck it up and be grateful for life just because someone else has experienced more death.

[@babsdemarco]

A scraped knee may not be as bad as a broken arm, but can grow into a much bigger issue. Issues are issues, no matter how severe regardless. One person's struggle shouldn't invalidate another's inconvenience.

[@rae642]

You have wonderful parents. My dad almost abandoned me when I was diagnosed with lupus.

[@DSMoney]

Whats lupus

[@MCrelationz]

The internet will tell you everything you need to know brother

[@tamsindance]

Amazing that she had such a good doctor to spot the condition. I can’t believe the photos of her back. Thank goodness that her parents and health professionals are supportive.

[@yuyuyuyuyu2556]

I broke my wrist and I thought I was unlucky The 23 year old is a fighter

[@the2ndducknotthefirstone.959]

I broke my arm on a zip-line and crossing the street on my way home i was hit by a Ford f-150 and it was black then i was fine

[@ijeomaaao]

Army 💜 but you are right

[@lrajsmith8202]

@@the2ndducknotthefirstone.959 wow

[@namjoonforpresident8971]

I Love BTS, I love bts too ;) Ok but seriously, I feel so ungrateful too Hope she gets trough this and be happy all her life

[@chelsyprieto1738]

Yessss

[@r.a.k4390]

She's a very brave girl.I'm glad scientists are working on a solution.

[@jenniferlozano1072]

Yep interesting topic

[@aadarshhanuman]

Rima Kanaan Scientists are.... & will soon find a best solution !

[@tannisthasandilya1702]

She has such a bright face and a charming smile!! Hope she enjoys her every moment coz she really deserves it.

[@chitraleemarose2320]

People like her, God will always be with them, Amen

[@beabapoopee]

Clementine Ahnberg they didn’t have any bad intentions? just because someone partakes in religion and wishes the best for someone doesn’t mean they don’t deserve to live ¯\_(ツ)_/¯ but ig that’s just my opinion

[@mihaibostan9042]

@@beabapoopee toxic kids

[@pursuitoftruth6774]

Amen, He is close to the broken hearted, and those who are crushed in spirit.

[@pursuitoftruth6774]

@@patience_brody you may not realize how much pain you have inside you, but how you treat others is always a reflection of how you are on the inside. may you come to know Messiah and be free in your soul. Some of the hardest people, gangsters, murderers, drug dealers, hardcore addicts, etc., people whom I know personally and the environment I also personally come from, meet Yahshua and come to know the greatest freedom theyve ever known. nothing wrong with connecting with the One who created you, and who knows you better than yourself.

[@user-jp3vw1xy3k]

Dad: she was on the swim team, she wasn’t very good. Mom: **elbows Dad** nvm

[@jess-dn4th]

I’m a cat

[@janeadelaidelennox7193]

DoggoDoesThings J haha you know she might have just sucked naturally and not because of this

[@italianspaghettisauce]

I read this as soon as he said it

[@krisdreemurr6147]

@@janeadelaidelennox7193 no u

[@suzysheep1776]

4:31

[@RotomboyzBackup]

Carli went to school with me for many years. She’s a trooper, never lets her condition get in the way. I’m proud of her for being on this program and sharing her story. Hopefully we can find a cure for this horrible disease one day.

[@missyyolo2362]

Does she still go to your school?

[@sevitaral]

Missy Yolo “went”

[@bloowhy8454]

Missy Yolo she is 23 😂

[@thomaslondonderry7341]

It is impossible to find a cure.

[@RotomboyzBackup]

@@thomaslondonderry7341 I never like to say things are impossible! I think the closest possible solution would be genetic editing. That wouldn't help the living, but preventing it for future generations would be great.

[@clairereesretouching]

What a sweet woman, I admire her strength and determination. She seems lovely, I hope that one day they will find a cure.

[@laurenferrell4445]

Oh bless her heart! She’s so beautiful and has such a great family, she deserves to have the best life! God bless you Carli!

[@Aliensexist111]

I love that she says she stands like a flamingo. She’s a sweetheart. Bless.

[@Wicked_Science]

when the video starts you can also see she has flamingo decorations in her bedroom lol I love it.

[@ineednothin6373]

Forgetting her condition. She is really cute. I mean not out of pity or something. And some great sense of humor. Lovely woman.

[@hellothere8812]

i need nothin If you say that it’s not out of “pity or something” then it’s clearly is out of pity or something.

[@svby]

She is isn’t she

[@Meme-go9ts]

@@hellothere8812 What? No... Also, you can tell she is so lovely... sincere, strong, funny. I'd love to meet her

[@arturintete2461]

Podrick King of the Andals that’s not how it works...

[@dudamendesmili1071]

Omg that’s the worst compliment ever

[@caquita402]

That whole family is so cute, im glad and find it amazing that she can still have a normal life and doesn't dwell on it. I hope they find the cure soon, sending prayers

[@shannonwuke1043]

I admire her so much! It must be so difficult to go through this every day and not knowing what you're going to wake up to. You're such an inspiration, it's so heartwarming to see someone so positive!

[@meowjakx3]

What a beautiful strong young woman. I love that her condition doesn't hold her back from living her own life.

[@enniervasti2233]

Jaklyn It kinda does. She can't play sports or even ride a car because of it. Though I also admire her braveriness and that she keeps going.

[@deletedchannelmydude702]

Omg, I thought *condition* said *condom.* I'm so ashamed of myself.

[@julianna8567]

RøckinRïley omg oml

[@avoshii2059]

Omg I thought you were pewds

[@jeezus4320]

Sushi Face007 same lmao

[@Serioussmile51]

Poor girl, only 23 and knowing it'll be getting worse. 😢

[@Victoria-gv3qh]

her positivity and purity at the end left me in tears. what an inspiration

[@thatveganteacher8831]

The girl seems so sweet it warmed my heart just looking at her because she still is happy and keeps going!♥️

[@theextratomboy8783]

She has a great sense of humor. Stay strong girl.

[@keycrafter7471]

It's not great it's decent

[@roeesun6758]

Stay strong as a stone

[@bat8676]

she's adorable in her cheerleading outfit! :D

[@jumpman6917]

Sally Brack she's adorable anyway

[@AnkushSharma-zv5hv]

we need more funding in medical research

[@missiworld]

I love the humor that your whole family shows; it makes such a difference when being disabled. As a fellow Missourian with a rare disease, I'm sending you lots of love! 🥰

[@alexanderalblas4559]

Her boyfriend must be such a good guy. He knows that he's gotta take care of her for the rest of her life and still wants to commit👏👏

[@nurysieve2185]

So true. A true legend. ❤ its good to see there is still true gentlemans exist. I wish i can find one,one day...

[@keycrafter7471]

I wouldn't be sure of that

[@keycrafter7471]

@@nurysieve2185 you wanna find one just play a very sexist song(that is very sarcastic) and if someone sing along he could be the one

[@ReasonAboveEverything]

Key Crafter i would 100 percent sing along.

[@keycrafter7471]

@@nurysieve2185 BTW the song must be about treating women as a sex toy trust me

[@MackDamage07]

This video makes me realize how people are fighting to live, while some of us aren't being as healthy as one can be.

[@fraumartha4184]

No, we all are trying to keep up with life, just in a different ways. Stop trying no minimize other's problems

[@mgtowmister]

A very brave young woman. Videos like this remind me that my troubles aren't so bad after all.

[@HeyItzRosie]

Her continuing to live even with this painful condition gives me a lot of motivation. She’s so strong. ❤️

[@thisisjmx]

How the hell can people dislike this post. Just don't watch it. It's full of hope, determination, positivity.

[@yamiryushi]

Its very likely its indignation at her having such an awful disease while someone who in their eyes is undeserving of life has a nice, healthy life.

[@premierprendergast757]

Trump is disliking this and im not trying to be funny because this is just sad

[@thebiggestloser956]

Well not all people have positive thoughts less in this selfish planet

[@scorpionqueen3550]

@@premierprendergast757 your right I've seen her commenting on People you gotta it right it trump it sure is trump is she Donald trumps wife or something she's dislikes persistent and she's defendent on everything ain't it right? She really Is I'd probably say she defendant on everything, anything REALLY she is she really is should be ashamed of herself saying stuff like this so ya whichever you want you don't have to answer me 😎😎😎😎😎😎😎

[@tylerjohn2098]

@@premierprendergast757 idiot

[@gravedust8250]

Her parents are such calm souls, this is beautiful, made me tear up 😢😍

[@Limitedonathios]

They are so cute and amazingly supportive. Like when her dad she wasnt great at swimming, and her mom nudged him. They are just so on her team and ready to help her out whenever. That's amazing

[@mj6258]

Jesus christ. The things people worry about and complain about in society and then we have people as strong as this lady. Really makes you look at where the human race is.

[@Chthonian121]

What a wonderful family. She seems like a great human being. Wish her the best.

[@sarawawa8984]

When her dad was like “she was on the swim team. She wasn’t very good” I cracked up 😂 that’s exactly the sort of thing my dad would say about me

[@divyamsharma200]

Sara Wawa I

[@VeganV5912]

Sara Wawa Poor little thing 😢... kzbin.info/www/bejne/pavLd5KknZVpqM0 Joel Kahn . 4 separate studies, 🥩😮😵Clogs your arteries !!! Five minutes. kzbin.info/www/bejne/mHjHcqWFor10aaM 🥩❌☠️. kzbin.info/www/bejne/mGWmc6xmqrukiMU . Meat versus vegan ✅🤓👏❤️ kzbin.info/www/bejne/bHXKhpVvrJ2ghbs . You are a murderer 🧟‍♂️🍖, are you a ✅? kzbin.info/www/bejne/kKXMZn97Yp2tf5Y Dr. N.B . Science rules. That’s the science 🧬. kzbin.info/www/bejne/epStiaCgr7qfbq8 B12 bacteria. Science rules. Black female Olympics, ✅egan since birth. ⛷🥇 Enough said kzbin.info/www/bejne/rZ_Xi4msnduGosU kzbin.info/www/bejne/nX-5Y2mnbZ6tj8k . Holocaust Survivor, 🛤🏯⛓😵🐮🐷🐣...✅ Eating 2 1/2% eggs a week increases risk of Prostate Cancer by 81%.(👈😱☠️☠️☠️) (Source: Harvard School of Public Health Study 1994-2008)🐣🐣 Meat is cancer☠️🥓🌭🍖🍔🍕 Plutonium ☢️, Asbestos ☠️. Number 1 killer☠️. Early grave ⚰️. Number 2 😵🥩🍗🧀🍳🍣🍟🥥🥫🥛🥤😩😵, 51% death rate 💀💀💀.... WHO, NHS. Vegans 4% ✅😬🦷👏👏👏.... You’re a vegan ✅or are you are murderer 🧟‍♂️🐷🍖??. That’s that. Which do you want to be ?? Murder, or ✅? Go vegan, please, The Earth 🌍 is dying because of us. Scientific fact. Thousands of studies show this. ✅. Vegan curry 🍛, vegan 🥓🌭🥪🍔🍣🧀🍕🍳🥮🍦🍮🧁🍫🎂🍧🍨🍤.... No guilt. Win-win situation. One person in one year will save 330 animals !!!!! That’s something proud 😊☺️🥳✅👏 You want to do your dog 🐶, or your cat 🐈, or a hamster 🐹, or a horse🐴 !! Monkeys 🐒, and orangutans, and bonobos 🐵,and Gorilla 🦍, are plant-based, NO meat and cheese and fish ❌, they are strong as 💪😬, flat teeth 🦷, like us 😬🦷! Meat eaters think, like death 🧟‍♂️🍖🤢🤮🤮. Deodorant mask your symptoms. Plant-based Vegans don’t stink, they are clean and fresh, boots as well, clean and fresh 🤗🥾🧦👕✅👏🌎. Change as a person. Murder is murder. Holocaust is Holocaust, no matter what. You’re a vegan ✅, are you a murderer 🧟‍♂️🍖?? kzbin.info/www/bejne/goK1cpmArqqmodE ‘DOMINION’ murdering the innocent, please watch the film. Please watch it, thank you 😊

[@aly-rz2zq]

lmao and the mom elbowed him after he said that too

[@iBeFloe]

When dad tries to be sympathetic, but the derpy dad deep inside can’t help but make a slide in a comment

[@erinmarshall9872]

This is the comment I have been waiting for

[@annaeverett1999]

I know all people say "wow she's so strong" but DAMN she is strong. I wouldn't even get out off bed in the morning and this young woman just lives her life the best she can

[@user-bw9ls5pq8r]

often its not what you do , more what everyone else does arround you. Alot of Help from Family , Friends , Boyfriend. Which most depressed persons dont have. Exept theyre healthy

[@stormierose4418]

This woman is so strong for real, to not only have zero resentment about her situation it seems and actually is grateful for what she does have, was really inspiring.. All the best.

[@excuseme8346]

So happy that she has a beautiful tender spirit and wish them both the very best in their journey. Praying for a cure.

[@aadarshhanuman]

*4:35** That Nudge from Moms when Dads put you down is treasure* 🥰

[@admiralbutt]

Dad wants her to win, but mom knows it's more about her being normal and participating.

[@echony]

Celina Chimera my parents are the same way😚makes me happy how much her parents care for her and love her

[@MizzKittyBichon]

Not to mention the look she gives him at 4:42.

[@nathanaelpierre9439]

He was being realistic. If she wasn't the best swimmer and its true, then there should be no problems with mentioning it. It has nothing to do with putting someone down.

[@Brother-Martell]

Nathanael Pierre yep

[@rushali8102]

Her boyfriend is a blessing,cause he is not judging her by her body like others boys do nowadays 🙁

[@xavierlucky397]

Her body looks good anyways though.

[@scorpionqueen3550]

YEAH oh yeah well what does it even mean you saying this to happen

[@rushali8102]

@@Y2Kr4SHM4N I hope so that there are some.

[@sieben8724]

@@Y2Kr4SHM4N so if you like having sex you can't be a good lover What a dumb logic

[@rushali8102]

@@Y2Kr4SHM4N it's not always without sex because sex is also the part of loving someone.

[@bibble8448]

i love how she is so grateful and she is so happy about the things she can do, opposed to barely talking about the things she can’t do. she has the most amazing outlook on life.

[@dragonzord6615]

The human body is so completely fascinating and alien. Good on you Carly for soldiering on through this! :D

[@onecraftymojo]

"I stand like a flamingo" I thought that was too cute! What a great sense of humor you have! ☺️

[@keycrafter7471]

I'd call it decent not great though on that part

[@blessings1063]

Yup people who find humour in their own suffering are usually the strongest

[@keycrafter7471]

@@blessings1063 like making fun of autistic and outcast people even though I'm one right?

[@sofiabruiz17]

@@keycrafter7471 in their OWN suffering

[@llennz1524]

@@keycrafter7471 gosh what a hater

[@firstnamesurname8531]

I just watched one where a teens bones are vanishing, how crazy is dna Bless all of them

[@firstnamesurname8531]

Veronika Johns Same 😭

[@lauraleighpetteway7188]

I just came from that video as well! So sad

[@emooki886]

@Veronika Johns i pray that somehow your idea might be one of the great idea and useful to all the people who need this :)

[@SBara10_]

Laura Leigh Petteway what’s the title of the video?

[@suyinlin8574]

Alexis AFC the teenager with vanishing bones | living differently

[@leanneadams2549]

She has the most genuine smile I’ve ever seen!! So pretty!

[@xxbeholderxx]

Such a strong woman! So sorry for what you go through. All the love and please hang in there.

[@necrohars3427]

I remember back in elementary when i made a slide show about this disease. Back then it was incurable but now im so glad to hear that scientist are coming of with treatments. Best of luck to you on your journey, count your blessing folks and always focus on the positive.

[@Augustinefields1]

The way the mom nudged the dad when he said she couldn't swim good but they still cheered anyway😂

[@maureennjerin.5552]

😅😅😅 he casually said she wasn't any good with a straight face. Funny moment

[@mollydyke2313]

Ik! It was so sweet

[@charlottegriffith2320]

That part made me chuckle. XD

[@missprincesslaura12]

She’s a beautiful person inside and out - and further more she dresses really cute! I love how much her family and boyfriend seem to take care of her

[@funtastic1977]

She is so kind. Shés so strong and loving.

[@wrongorange]

Suddenly felt a need to fix my posture while watching this

[@MihulRoy]

Just moments ago I was cursing myself for not making it big career wise, feeling guilty of not making my parents proud and all such negative thoughts and feelings...somehow this came up in my recommendations and all the negativity just vanished looking at her!!! Not once she has said anything negative about her life...that why her!!!...writing this comment not for any likes or something...but to remind myself that ALL IS WELL...love u Carli

[@CoolPixie]

Same as you.

[@devinngeorge]

However sad her story is we s I have to be our best

[@wishywashy1574]

Same thoughts

[@SAPM0392]

@Frederick Röders Thank you for this. I also needed it.

[@JsJdv]

Feeling good and content after seeing another person's misfortune is normal. Don't feel bad. Have a nice day :)

[@lebronjames5601]

She’s great inspiration. She would be an amazing inspirational speaker. I truly hope science comes through for this young lady. Her parents and boyfriend seem like really nice people too.

[@juliannaregan8783]

Praying for Carli ❤️ thank God every single day for the life you have because someone else is going through things you couldn’t even imagine. You are my new inspiration

[@Katrielible]

"Not often do you need to talk to the ground." Awww... Love this girl ❤❤

[@Ineptatpiano]

Right? That was such a sweet little quip, I love her strength and sense of humor

[@Okaygrandma]

I love her personality and spirit “Not often do you need to look at the ground” lol I wish I could get to know her as a friend, she’s someone I’d love to be around

[@joehoxha3458]

yesss She made me laugh there lmao so sweet and humble personality

[@mubeenali8073]

Ohh really you love her???

[@gal69lag]

@@mubeenali8073 stfu mubeen

[@misaandcoart]

Such a sweet girl. I'm glad she has her independence and I hope she continues to have a great future and that the treatments work well!

[@alleshaxx1419]

Good parents. All parents should be this way. Good on you both for accepting your daughter and being there for all time

[@sheddrackjames6747]

Lord am sorry for complaining! I'm greatfull.

[@kidyfiddler5527]

Sheddrack James grateful for what u were always meant to be here

[@abigrant7194]

You can still complain about stuff

[@mdobronsky]

After watching these extraordinarily brave people, I feel ashamed for complaining about insignificant things in my life... God bless you all

[@JoseRamos-hp2vg]

ok boomer

[@Naebodies]

Amen

[@Nutelladueno]

I don’t know her but I love her and I want to hug her tight but I feel like that would hurt her. Bless her heart, and I pray she gets everything she wants and needs in life

[@KingMias]

wow ppl really don’t know how good they have it!! watching someone so beautiful and so strong like this really does humble you! lord thank you for another day and just everything you’ve given me, im so sorry for ever being a selfish brat !! help me to be more thankful 🙏🏾

[@amenamen5648]

What a beautiful person! I pray for your health and healing!