My Condition Means I'll Never Eat Again | BORN DIFFERENT

[@gracemarsh1353]

This is my gorgeous friend Liv - she’s absolutely amazing 🩷 We share some of the same diagnoses, and her support has helped me through some incredibly rough patches. Despite everything she’s going through, she’s always there for others. I love you so much sunshine - unbelievably proud of you angel. You deserve the world xx

[@shannonobrien9922]

They make an implant called a Enterra.... check into it! Also, a PICC line long term isn't a viable option - if she going to require feedings she needs a Peg Tube........

[@amrita3000]

Does she get thirsty? I mean does she sip and then spit out ?

[@MikeB-Android-Teacher]

She's so beautiful omg!!

[@gracemarsh1353]

@@ccatarinajm7114 It depends. With TPN (the type of nutrition shown here), you have to run it over 12 hours (minimum). IV fluids can be run much quicker, when I get them they’re usually ran between 2 and 6 hours. There are other kinds of feeding (into the stomach or small bowel) which does not need to be ran over 12 hours, but which may not be tolerated (pain, nausea, diarrhoea, vomiting etc.) ran above a certain rate (ml/hr). The small bowel can only handle a maximum of 100ml/hr anyway, but that generally isn’t the deciding factor as to how long it’s ran for. Essentially, it’s very dependent on the patient! In terms of curing Gastroparesis, there’s a 30% chance it will improve, a 30% chance it will remain the same and a 30% chance it will get worse. That being said, there are things which can indicate how likely the condition is to improve/remain the same/get worse - e.g. if you develop Intestinal Failure in addition to Gastroparesis, you’re less likely to improve than someone whose condition can be managed through diet/medication. Hope this helps! X

[@gracemarsh1353]

@@MikeB-Android-Teacher she is 🩷

[@amandagreen5297]

I had gastroparesis for about 6 years. Between age of 31-37. Was on a jejunum feeding tube for 4 years. Dr's don't know how, but by a miracle I was able to eat again and live a normal life.

[@JoyP-rw5bc]

How did you finally realize you could eat again

[@annegreenwood3624]

i too can eat yet it’s a struggle this illness isn’t fun like a roller coaster i’ve learned things to avoid or else it all comes back up

[@gailrodgers3079]

My worst problems, only lasted for a year. So glad I no longer have the stealth nausea attacks as going from feeling fine to throwing up in less than 60 seconds is not fun. I am eating but no longer can eat large portions. I'm glad I never got horribly bad, but bad enough during that year or so. I can't even conceive of going through this for years.

[@Shanzha23]

i have experienced symptoms of Gastroparesis before

[@robins.9700]

​@@JoyP-rw5bc I thought the same thing lol

[@baileystinnett7685]

Praying for everyone battling this horrible chronic illness ☹️🤎

[@BeautyByDaisie5899]

My best friend has gastroparaesis and 18 months ago she was given a gastric pacemaker and she now lives a virtually normal life she goes to Essex and has the voltage increased there is one surgeon in the whole country that does these pacemakers and its amazing what its done for my best friend

[@sarahdumas2140]

A friend of my daughter's had a pacemaker put in and has to remain absolutely gluten free but that pacemaker changed her life

[@craftgrrl14]

I have one too! Thanks to my Enterra implant, I was able to get my feeding tube removed five years ago. I can now eat and drink enough by mouth to stay healthy! I still have flare ups sometimes, and I have to get surgery every several years to replace the battery, but I am so much better than I was before.

[@plumpudding748]

Most social activities as an adult revolve around food -- inviting people for dinner, coffee, drinks etc etc People are ALWAYS eating 😑 You can go along and not eat but it makes others uncomfortable and can bring up feelings of anger and jealousy for the person not eating. It's an ongoing struggle and her situation is more extreme than my own. I love how she brings awareness.

[@elizabethmeyers2994]

Broke my heart so bad when she said she can hear them downstairs eating. I’m so happy to see her making the best of it and trying raise awareness

[@BlanchestarlightUwU]

Maybe she tells them before that. 🤷🏻‍♀

[@michelleshocked2010]

Makes you realize how lucky you are!

[@bizkunsman6596]

I have Gastroparesis and mental conditions. I'm fighting to eat until the day I can't. I had throwing up episodes recently and I get more and more scared I will need TPN and a heart pump one day. Beautiful humans like her make my future seem a little brighter. Thank you love we can do it. We are stronger than our illnesses.

[@kaitlinschwarz3644]

Some people aren’t especially when you’re living with two connected conditions that you were born with, earning you were born with the one and the other a little later on comes with. I also have a thing with my brain that if I can’t eat I’m in a really bad mood and super depressed. I can’t live without eating so hopefully my gastroparesis never gets to that point. So think about that because it’s not like you just said for everyone. When something gets to a certain point like that condition they just can’t live with it because of other conditions. But right now you can definitely say I’m stronger than all of it one of the strongest with my disorder, but if that gets to point where I can’t eat I won’t be so strong anymore probably to the point wher3 I will make the decision to let the doctor put me to rest and don’t say it’s not true or anything. If you want I will to you the disorder but you’d have to promise not to assume anything from what you read because it’s a scientific fact that everyone with the disorder is different.

[@rayezzs]

I also have gastroparesis and I have the same fear u do. But we've got this and you're so right, WE ARE STRONG

[@bizkunsman6596]

@@rayezzs food is so yummy 🥲 I just can't imagine not being able to taste it anymore

[@katieadams7708]

GP is awful. I hate having it. Here is hoping that some day they can cure this disease. Keep your head up love, you are amazing!

[@plan4life]

Brave, brave lady. I don’t know if I would still want to carry on if I had something like that.

[@michelleshocked2010]

My heart goes out to her. I can't imagine going without food or diet Coke. She has such a positive attitude!

[@luvintheprof]

What an incredible young woman you are, Liv. One of my friends has a diagnosis of GP amongst other things and is NJ fed. Unfortunately for her, she had to go private for a diagnosis and treatment. She’s had to spend a huge amount of thousands of pounds to treat this condition. It just shouldn’t be like that. It’s a valid illness and you should be able to receive treatment from the NHS. Keep speaking out, Lovely. You’re making SUCH a difference 😊

[@bobbyjohnson250]

😢God I pray that one day her Illness reverses and she can live and normal life if there ever is one ❤️🙏

[@hipdip1505]

⁠@@eyeteyteras1717gastroparesis doesn’t mean you have an addiction to food, it simply means your stomach is paralyzed. Most people have idiopathic gastroparesis which means doctors don’t know why someone has it. Mine is from a genetic disorder. The most common KNOWN reason is diabetes and diabetes can also be genetic and has nothing to do with addiction either. Gastroparesis is also a spectrum and treatment looks different for everyone.

[@RapidHockeyToastsss]

Her gastroparesis is so severe it most likely won’t reverse she might get it the where she can eat but it most likely will never fully go away.

[@JillABaker970]

I was diagnosed with this 3 years ago I’m no where near as sick as she is I pray it doesn’t get worse but it’s slowly going down hill I’m sorry you have to deal with this I feel your pain

[@intotheunknown1991]

I couldn't imagine not being able to eat or drink 😢 this is so sad but she's very inspiring and doesn't let it get to her , I hope one day she will be able to eat and drink again

[@Stoogewriter]

My heart goes out to this young lady.

[@minnielucas8882]

Very inspirational! I hope she knows that she doesn’t have to justify her chronic illness to anyone!

[@SarahMason-so5tt]

As someone who has GP, never feel like you have to ever justify it! And thank you for sharing as it's something that needs awareness.

[@withpeacelove366]

I'm also going through multiple chronic illnesses that weren't diagnosed until my last year of college, some new ones I'm still being diagnosed with, and I have the same mental health issues. I also totally get the feeling of her having to rely on the support of her mom and having to deal with people not understanding that she's sick or disabled because I have to do the same and I don't look disabled. And it's hard because it just seems like there's always more and more issues and no one else is going through them and will never get what it's like for me to have them and suffer with them, but here is this girl suffering with 90% of the same stuff as me. She seems cool. I'd be her friend.

[@YoutubeUserAnon]

Her gastroparesis must be extremely severe if she is on TPN instead of being on a PEJ (post stomach variant of tube feed)

[@TheSpoonieSloth]

I was thinking the same. Good for her though for still living her life as best as she's able to.

[@sheribentley3266]

I had both at one point. When your intestines shut down too they have to bypass the entire digestive system.

[@milagrosavila7238]

Yes, her gastroparesis affects her stomach and bowels, so no tube would help her

[@chronicallyfabulous88]

As soon as I saw the video title and thumbnail, I was like, "Omg, Gastroparesis?" 😁 Cuz I have it, too -- though mine is related to Ehlers-Danlos Syndrome, which is a genetic disorder that tends to cause a bunch of other disorders. A lot of those are neurological, like Gastroparesis. Mine was diagnosed 16 years ago, when I was 19yo (I'm 35yo now). I was really lucky, in that my EDS specialist knew that a lot of EDS patients develop it, so he referred me to a gastroenterologist who treats a lot of his EDS patients. My Gastroparesis is "moderate", in that I can eat a small amount of a very limited selection of foods, so long as I take a ton of meds throughout the day. Along with a lot of supplementation, monitoring electrolytes and vitamin/mineral levels, blood sugar, etc. I'm thankfully able to get by. It's been a massive adjustment and there are times when it gets worse for a while, but I'm conscious of how good things are now, compared to how much worse they may get in the future. I have a friend with GP who got a gastric pacemaker a few years ago and has had great results with that, so I'm hopeful about future treatment options. But I know what you mean about the toll it all can take on a person's mental health. Thank you so much for the work you're doing, Liv. It is absolutely vital and you're making a difference for all of us 💜

[@hipdip1505]

Same diagnosis

[@nikkiwikki73]

Hey fellow Ehlers Danlos zebra here! So glad to hear you had supportive care growing up! I understand the struggles though, so I wish you the best! 🦓🖤🤍

[@JackieDW]

High five from another zebra warrior. I’m proud of you 💪

[@luke14946]

​​@@JackieDW"Zebra warrior?".

[@luke14946]

​​@@nikkiwikki73what do zebras have to do with Ehlers-Danlos Syndrome?.

[@hawkfeather6802]

It sounds incredibly hard to live like that. You have very good internal strength to go through all that and still be a positive.

[@LunarPup13]

I also have gastroparesis (and POTS)! Thankfully, I'm still able to eat but it is quite painful. I'm currently in the middle of a flare with both conditions so it's been a lot of vomiting/dry-heaving and fainting. Right now, we're trying to treat it with medications and IV fluids but you're right; treatment options are slim. It's definitely hard to keep high spirits when you're constantly fighting not only the world but yourself as well. Stay strong, Liv!

[@OlisaebukaH.E.-xt3vp]

As a Nigerian I must say You have inspired me To hold on through current times🥹

[@cynthiaholland13]

Hold on my friend

[@jbestderulo45]

Omo na for hold on sha, life nor be easy

[@baileystinnett7685]

Keep holding on my love 🤎

[@jessicamarie9180]

I was medicated for this illness for over a year before doctors said I didn’t even have it, it was chucked at me and medicated for no reason. I feel so bad for this beautiful girl. I hope she knows how awesome you are. ❤

[@Jojo-gg6jc]

Such a beautiful young lady, I'm glad she has her mum, who's very supportive. She has a positive attitude and can inspire so many others going through this disease. God bless her and her mum 🙏🩷🙏

[@redbloodedbutterfly]

I have OCD and Depression. I hope you're able to treat yours, so you can enjoy the life you have and not feel as much anxiety. I'm glad that you've found positive outlets to help you cope, like social media, outreach, your mom, knitting, and your dog. I'm sorry that parents aren't telling their kids that it's rude to stare and that even adults are making you uncomfortable with their rudeness. One thread I've seen throughout the videos on this channel is that as hard as living with a chronic medical condition can be, the negative reactions from strangers can make things feel much worse. Thank you for doing this video. I had no idea that Gastroparesis existed.

[@JaymeeAngell222]

I'm so glad you have such a healthy relationship with your mom and have her support. Embrace that.

[@gabriellacherylchiechie4588]

i have this as well & they cant do anything untill it fully gets to ur point , its horrible they have me on loads of morphine , ive begged & begged to have my stomach removed or have TPN . im so glad you are able to show there truly is more to life i hope we do get better ! im so glad you have something in the meantime love

[@karyannfontaine8757]

I met a lovely 13 year old girl with Gastroparesis. I learned all I could about her condition. How sad Olivia was suffering symptoms quite some time before she was diagnosed. When a condition is explained, most people accept it as just a small part of a person's life. I was diagnosed with stage 4 Lymphoma after many years of pain and other symptoms.

[@shannonobrien9922]

It sucks! Tell your friend to get checked for fibromyalgia!!!!! I have HORRID IBS-D with gastroparesis......I also have Fibromyalgia - I've noticed.....when I forget my Lyrica- my IBS is worse!!!!!! Food allergies as well....I'm also lactose intolerant.

[@Bowser14456]

​@@shannonobrien9922 I have an eating disorder and probably IBS.

[@staceeengestter683]

Where is the worst of your pain with the Lymphoma and do you have any in your head or neck

[@RoastofRump]

I’ve been following you for years and got so excited when I saw you in the thumbnail

[@quirklyquibble]

I really feel for the situation you're in. It must be tough, and it's courageous to get up every day and keep on living. However, there are many many things in life which are great, comforting, and beautiful to stay a happy person. With love!

[@t.ellevision]

I have Gastroparesis and I am a bad diabetic on an insulin pump both conditions make it hard to control the other. I have other health issues as well I have been denied SSI and now I am losing Medicaid. Just one of my prescriptions is over 3,000 a month. I have 27 prescriptions in all. There definitely needs to be a change in the health-care system for those who have chronic illnesses. Unless you're a millionaire you can't afford health-care

[@littlemommacormier415]

Keep fighting because it took me 6 years but I finally got SSDIsabilty

[@t.ellevision]

@@littlemommacormier415 oh wow. Thank you for the encouragement! I'm so glad you got your benefits 💚

[@forestcottage7321]

Hi Olivia from Australia!! Love your strength and positive attitude. To all those people who are cruel and stupid, you can inform them that 70% of disabilities are invisible!! Wishing you sunshine, peace and happiness for your future.🌻🌻🐞🐞

[@teeetekkr3xx]

She's a sweetheart tho its crazy that people that goes through life haps are always the bigger than life people

[@dfb2913]

Thank you for doing this, I didn't know this condition existed and raising awareness is really important. My best wishes for you, I hope you live a long and happy life.

[@A_Person_Who_Likes_Things]

As someone who loves food, I don't know how I'd be able to live with that condition. I'd also be terrified of getting an infection from the tube system

[@franny5295]

I would rather just finish dying. I was stuck on a vent with a trach and the last straw was being told I couldn't eat anymore because my lungs filled with peanut butter. I would have gone to hospice for terminal sedation if the surgery to open up my trachea to give me a chance hadn't worked.

[@IshaIsSomehowTaken]

I have Gastroparesis too, Ive had it since i was three, i have a feeding tube (a GJ specifically) and am lucky enough to be able to eat still. its a constant struggle but its awsome to see olivia doing so well. GP patients can really be seen as people with eating disorders when its totally not, i personally have been treated as having an eating disorder and it was horrible. ironically i LOVE FOOD so much (i had a running joke that if highschool didnt work out i'd be a food critic). I hope she is able to continue being so amazing and incredible

[@dawnamorgan7364]

Young lady, my heart and prayers go out to you. I have not ever heard of this condition. Thank you for your courage to explain it and talk about it. I have my own disabilities that are not visible to others. Mine disabilities are a walk in the park compared to yours. May Yahweh show favor on you and bless you with healing! Keep your chin up and know that you are loved.

[@sarakleinbaum]

Keep fighting! You are terrific!

[@MissCBwasadancer3]

I also have Gastroparesis and I’m on TPN (but hope to try going back to tube feeding soon.) I was accused of having anorexia for many years but I’m infact injured by HPV vaccine.💉 Side note: Gastroparesis is NOT a mental health condition… 🙄 but starving yourself and ozemipic can cause your stomach to delay emptying. Diabetes and vagus nerve damage are the most common causes, then a connective tissue disease called Ehlers - Danlos Syndrome.

[@MummaMia5]

Hi there, what country are you in? I have EDS, Addison’s, pancreatitis , enlarged spleen and gastroparesis and now have liver failure from severe malnutrition and I’m needing TPN soon. I’ve struggled for so long getting drs to believe that I’m so sick.

[@brandiehammond]

People who have Parkinson’s disease, MS, also can develop this as well. My mom has been a long hauler diabetic and was diagnosed with Parkinson’s roughly 5-6 years ago. So she’s even at a higher risk developing it. She’s already had to get tested for gastropresis last year because all of her symptoms were pointing to it. But it came back normal, but has celiac disease. So she’s been gluten free. Unfortunately her symptoms are back and I found out one of her insulin meds she injects weekly is another name for Wegovy and of course is the other injection famous for weight loss like Ozemipic. So her next appointment with her endocrinologist, I’ll have to go with to make sure her symptoms are addressed correctly and ask him if she can be taken off of it and be put on an different one that can go with her daily insulin injections or be off the weekly injections permanently.

[@kaitlinschwarz3644]

People with Prader Willi syndrome also commonly have it as well.

[@MissCBwasadancer3]

@@MummaMia5 sorry you’re going through all this too. I’m in the U.K. and have had an awful time getting NHS to understand. I had to pay privately to get taken seriously. X

[@MissCBwasadancer3]

@@kaitlinschwarz3644 never knew this, thanks for making me aware !

[@TwighlightAngelRose]

I love her spirit and attitude. It’s hard to be someone that could eat and drink one day and the next find out you can’t anymore possibly the rest of your life. Most would break and be severely depressed by this. I work in the health care field and one of my clients is a peg. She use to eat and drink but do to her condition she was placed on it. There be times that she would get very depressed and beg me for even just a cup of water. Honestly it breaks my heart because I know food is so much more than just substance for us. It is a pillar of being alive and Human even. Keep going strong and don’t ever give up!

[@celestialcircledance]

It sounds like she still managed to survive before she got her diagnosis even if she was doing poorly which would be preferable to me but what do I know. I'm glad that they don't know for sure that she will never be able to eat again which is better than no hope at all !

[@Camilshka]

Many diseases like this reach their peak at teenage years like hers. So she was struggling a bit before, and then it suddenly became much worse in her teenage years and progressed to complete paralysis.

[@celestialcircledance]

@@Camilshka yikes but that makes perfect sense .

[@kaitlinschwarz3644]

@@CamilshkaThey do then that’s probably what happened with mine. At least for me it didn’t lead to complete paralysis.

[@A-n-n-a.6]

No matter how good or bad you think life is,wake up each day and be thankful for life. Someone somewhere else is fighting to survive. 🙏🏻

[@mytbread108]

Thank you for bringing awareness to hidden chronic conditions. Due to multiple stomach surgeries my ability to eat normal quantities of food and absorb nutrients has been greatly diminished. Due to this I also had the same feeding system (though they put the port leading to my heart in my arm which was super annoying). I eventually had it removed after several infections. During all of this I was diagnosed with a chronic degenerative pain disorder. I understand that to strangers I do not look sick. I try to act normal by doing physical activities even though I know it could leave me in bed for days afterwards. What hurts me the most, even nine years on, is family members that still continue to make comments about me being cranky and lazy despite the fact that I have been completely honest about how my body responds to these two different conditions. They do not know what I have to do to prep myself for a scheduled event. They do not know the loneliness of being at a gathering that focuses on food and all I do is grab a plate to mindlessly push around its contents because they do not want me hiding in my room.

[@Alteredminded1]

I have this and it’s horrible, the unknown daily is hard to live and be outside the home.

[@nagmerrie4600]

Sorry to hear. Did you get born with it?

[@Alteredminded1]

@@nagmerrie4600 I was diagnosed in 2017 while in the hospital after having had a severe tonic clinic seizure

[@kimberly_happiness]

Breaks my heart she's such a sweet girl. With all the technology and everything out there you would think that we'd have a cure for this. I hope one day we do. God bless her.

[@fahminazaman9447]

Totally aside the point of Liv's video but girl, i really love your pink checkered jacket, so cute! :) Thanks for sharing your story! I learned so much and I hope the positivity keeps coming through for you and all your followers !

[@Wildcat221]

Oh my gosh I can’t even imagine not eating 😭😭😭 she’s a strong woman!!!

[@Alex_crazycaeFan]

I hope she lived a better life ,Live u Olivia ❤❤❤

[@gailrodgers3079]

I was diagnosis with gastro paresis quiet a few years back. I would get what I called "stealth nausea attacks". I would be feeling absolutely fine and then find myself vomiting. I am much better, but I can't eat a lot at one time anymore. I hope your life goes well and perhaps you may have some natural healing. I know I am better than I was, thankfully since I have enough other things wrong.

[@gailrodgers3079]

Of course mentioning it 2 weeks ago, I got up a couple of mornings ago and realized I was having problems with it again. Felt like yuk the whole day and then the next, I was careful about what I ate and feeling better now. Without getting into details, When I got out of bed, I was reminded of what I had eaten almost 13-14 hours before. No food should be lingering that long in your tummy.

[@eunaekim9216]

She's got a great support system, she's not wallowing in self-pity, and she is determined to raise awareness! In short, she's #winning!

[@genericname9024]

Whoa, I didn't know stomachs could get paralyzed. Thanks for sharing Olivia's story!

[@gothafloxacin]

Your bladder can as well. I self catheterize because the muscles in my bladder are paralyzed and I can't pee on my own

[@hazelsmith2]

Bless her heart. Beautiful young lady . Super mum too.xx❤❤

[@marytermini1381]

What a brave young woman!!!!!

[@NoCoffeeForYou]

Liv you are brave bold and beautiful ❤❤ I feel you mum. Life in your hands. ❤ my son is multi conditioned and peg feed. Fortunately Liv is full aware of her condition and can fight with your loving support. ❤ Anyone saying it’s tax dollars wasted needs to work with the disabled community 😢

[@suzannedivett3398]

Congratulations on being such a wonderful, strong young woman. More power to you girl 🎉. Thank you for sharing to teach us acceptance in this world. And we are all different. Much love to you Liv. I understand about the stares you get. I'm on 24/7 oxygen, so when I go out l get the stares and pointing, but that happens to everyone who is different. It keeps you strong. 😊

[@RebekhaGGamer]

I hope one day there will be a cure for this I can't imagine going 7 years and not eating and drinking. I want to cry right now. No one deserves this illness. I hope research is going on right now.

[@redfeather7986]

As a follower of Liv for a while, she is incredible. She shows the reality of what she goes through and is a light in our community❤

[@brendabolin7178]

I have Gastroparesis also but can still eat. Not that I don't still have problems. 😢. I'm sorry hun

[@threegoodeyes7400]

Did they edit out the part where she explains how the feeding-line direct to the heart works? She said it’s what most people were curious about and then they cut to something else….. would have been nice for more info, I’m sure she talked about that to the interviewers.

[@bigmaguire9714]

Never even knew this condition existed. As a big eater myself I can't imagine never eating again, but its better than dying. Also not drinking any water you could imagine your mouth getting very dry... Wish her all the best ❤

[@Bowser14456]

I have an eating disorder, so I get going from doctor to doctor and not getting anywhere. I wasn't diagnosed until i was 25. Honestly, I almost died. I was 95 lbs back then. I also have OCD and other things. Stay strong!

[@JoyP-rw5bc]

OCD I ended up getting OCD after Cutting back calories Losing weight. I take vitamin B1 500 mg And a super B. complex Vitamin These things help me to lessen my OCD significantly

[@Trujones]

Very interesting. I never would have thought there was such a condition.

[@dudechill486]

Won't be surprised if I see a condition of someone allergic to water or something

[@Trujones]

@@dudechill486 I think that's a rabies symptom

[@ameliesayshola8854]

@@dudechill486that exists! It’s called aquagenic urticaria. People who get hives due to contact with water. You can find stories featuring people with the condition on KZbin

[@ccatarinajm7114]

@@dudechill486 That actually exists. I've seen a video, I think even on this channel about exactly that.

[@dudechill486]

@@ccatarinajm7114 not surprised (maybe just a bit)

[@FullTimePatient37]

😢 4:40 I'm so sorry angel 👼🏽 medical trauma is a real thing I know what that feels like 😢 hugs

[@mariamolleken6458]

Thanks for sharing. I wish you all the best!

[@leegraham1179]

U would never know u had this problem u look healthy… hope your doing well 👍👍👍👍

[@patriciathompson5689]

My prayers sweetheart and blessings 🙏

[@JordanHill-ue4hg]

We love you liv. Thanks for all you do 🩷

[@maurashand5572]

I hope doctors can do a stomach transplant to help her. They have used transplanted faces,livers,lung, etc.i hope they discover a way to help herxxx

[@GeorginasJourney]

Modern medicine is sadly not at that point yet x

[@GeorginasJourney]

You can transplant a stomach with other failing organs, but not usually the stomach on its own x

[@angelag5811]

Unfortunately transplants aren’t a permanent solution - most organs only last around 5-10 years. And there’s also risk of rejection, plus you have to be on meds to try and prevent it. This is probably a lot safer for her in the long run.

[@gothafloxacin]

You can do a stomach transplant but not alone. It's done usually when transplanting intestines

[@gothafloxacin]

​@@angelag5811Im a liver transplant recipient and my results didn't turn out as good as most. I actually have a lot more issues with my organs now than I did pre- transplant. I was told at best another 20 years before I need another new liver.

[@FullTimePatient37]

I miss Amy lee fisher 😢 I followed her before she passed away recently..I also need feeding tubes because of dysphagia, got NG then may get PEG .. it's also because of my aspirations on food...as a result of general dystonia.. I hope you will see a cure in your life time or any new trails for this 🙏🏽

[@marilyndeleon7248]

I don't know why some people are saying she is faking it; unless she is asking for money from people, like i have seen in the past... I hope she can get better and be able to some day get the chance to try food again. But, if she doesn't, she is still a pretty girl and she looks happy and have the best support from her mom and friends, which is great. God bless her and is good that she talks about this; that way she helps others with the same condition and also educates people that never heard about it, like me. Thank you for sharing. 🙏❤🤔😊

[@user-sneakyRx]

Your story is inspiring. I understand what you mean by wanting to eat and drink like everyone else. I have had Gastroparesis my whole life. It took 21 years to get a diagnosis, which was frustrating. Doctors believed I was anorexic and it was all in my head. My family started to believe that. My mom pushed harder than I did to get the diagnosis when I was in the ER close to dying for the second time that year. I found out earlier this year that my stomach is completely paralyzed… I have no muscle contractions at the bottom and very little at the top of my stomach. Doctors believe I will lose all movement in my stomach before I reach my 30s (I am currently 25). They also told me I have a delay emptying in my small bowel transit time, which makes absorbing food harder for my body and I am constantly deficient in vitamins, minerals, proteins, and the list goes on. I missed eating for a long time, but after I learned how I would not get sick by not eating, I was able to somewhat accept that. I have been on TPN three times within four years. My body went into shock the last time that I lost my vision and have permanent liver damage. I have been on tube feeds for almost four years now. I have had both a PEG-J and separate G and J tubes. People stare when I go out in public. It is hard to socialize, especially when I get kicked out of stores because of my backpack or people make rude comments. I get tired of people thinking I am contagious or I have these tubes because of a “eating disorder” (which I have never had one). I had a gastric stimulator/pacemaker implanted for almost five months now, and I have failed it. Medical professionals believe a g poem or pyloroplasty would help, but I am unsure about another surgery.

[@nicoleluna31]

You are a strong brave young lady ❤

[@bluejem1315]

I wish her the best.

[@Ladypuppy510]

I have it too although no where near as severely. It sucks.

[@funkyk5086]

I have gastroparesis, but only fairly mildly. I’m having heart bypass surgery soon and I’m worried about my nutrition - as I know all hospitals won’t let you leave until you’ve had a bowel movement (after a major operation). I’m already envisioning vomiting from my intestines and lower before I’ll be able to pass anything like a normal person. Gastroparesis of any sort just sucks! Thanks for sharing your story!

[@Ann-xv1it]

YOU ARE ONE COURAGEOUS YOUNG WOMAN!!!!!! I HAD A NEPHEW WHO HAD AN INTESTINAL DISEASE, WHERE HE COULDN'T EAT EITHER. HE WAS FED THROUGH A TUBE AS WELL. UNFORTUNATELY, HE PASSED AWAY SHORTLY AFTER HE TURNED 2 YEARS OLD OF A MEDICATION MIX UP. SO, KUDOS TO YOU❤❤🙏🙏🤗🤗!!!!!!!!

[@LisaOrdonez]

I’ve had Gastroparesis for the past 20 years after esophagus surgery. My stomach works at about a 30% flow. Food, water, and even air is a labored process. You need a working/ pumping stomach to process all 3 of these things. After my surgery they started me on Reglan. It caused horrible side effects, so I had to stop taking it. For the next 15 years I suffered. I reached out to an older doctor who said that there was an old medicine that could be compounded for me. The medicine is called Donnatal. I still have to eat and drink very cautiously, but for some reason this medicine helps it move out of my stomach. I hope this helps someone.

[@Mama420Redneck]

we call the american version of that triavil... it has kept me from throwing up for the last 6 years... my gastroparesis just keeps getting worse...

[@kaitlinschwarz3644]

@@Mama420RedneckI’ve never heard of that before because I also have gastroparesis but they have me on a different medicine for that seems to work called Linzest.

[@malinia.20]

I have friends and family members with gastroparesis, and one of them has been on TPN for years just like her. I wonder if Olivia has Ehlers Danlos Syndrome? Obviously disabled people do not exist to be other people's public service announcements, but honestly, if this scares you, covid-19 can cause this condition!!! It is so important to wear a mask in public places whenever and wherever you are able to. Both to protect disabled people from becoming (more) disabled or dying, and to protect yourself from (further) severe disability or death.

[@kaitlinschwarz3644]

It isn’t Covid 19 any more and do you realize that what you are saying is absolutely ridiculous. Number 1 masks really bother me so I physically can’t do that. Number 2 other people aren’t my problem.

[@malinia.20]

​@@kaitlinschwarz3644 Your selfishness and your idea that you owe others nothing will leave you with nothing and no one. Covid 19 is very much still out there, regardless of what politicians want you to believe. 500-2000 people are dying each week from covid in the US. Masks are uncomfortable and inconvenient, yeah for sure. But so is the idea of becoming disabled, killing or maiming someone with a virus that attacks your brain and blood vessels and causes cancer or dementia

[@mae1513]

I've had grade 3 gastroparesis since I was 17 but luckily for me I've never gotten to the level of needing a feeding tube. I sometimes have to depend on ensure or other protein shakes if I can't get anything in

[@CrazyLittleMonster1994]

She is really strong. I just got one issue, kids are going to be pointing or staring because she’s different and different brings up curiosity in children. Yes it is rude to point but a lot of times it does stem from an urge to understand why it’s a different thing they are seeing. She’s doing great raising awareness, I just wish she’d understand why children point or stare.

[@giapaul7973]

It’s understandable why she is uncomfortable with kids pointing and starting. Not all parents will explain why someone is different. Chances are that even the parents don’t know what to say. It’s fine to be curious but you should be kind and respectful. Understanding why children point or stare doesn’t make a person feel any better.

[@CrazyLittleMonster1994]

@@giapaul7973 I understand that and it makes sense that it would make her feel uncomfortable, I just wish she’d take time to consider why they are staring and pointing. She is different, she’s got tubes coming out of her chest it’s different and it’ll draw curiosity. Of course not all parents know what to say, but she also likely wouldn’t be okay with parents approaching her to ask questions.

[@gabbycraft7035]

It’s really on the parents to teach their children pointing and staring is rude. It’s normal to be curious but they need to be taught that it can be harmful to people to treat them differently

[@CrazyLittleMonster1994]

@@gabbycraft7035 of course it is and just because she doesn’t hear it doesn’t mean they aren’t saying something to their kids. I just don’t think she needs to be so dramatic about it. I know it hurts when kids point and stare, it sucks a lot and can hurt because they point out your flaws or that you’re different. It’s beautiful to be different though and it doesn’t come from a place of hatred. She shouldn’t hate on kids, but on the parents.

[@yelipol1125]

God bless you ❤

[@nariu7times328]

I would say my digestive issues are about 50% of Liv's, and I am proud of her for all she has accomplished.

[@willowtree124]

I had seen someone with a similar condition, unfortunately she eventually passed away. One thing she had mentioned was an experimental treatment of using a pacemaker to stimulate the gastric muscles. I thought that it was a very interesting idea.

[@erica000]

❤ you're a beautiful soul!

[@marieked]

I have gastroparesis as well. I have a feeding tube, a GJ, I use the J to feed as it goes to my small intestine. I also have a central line like she does for extra fluids. I can still eat some foods though, just not enough.

[@KS-bv7qj]

She’s very beautiful and sweet.

[@Olivexxxx]

I love you, you are amazing and so cool! You are the bravest person, this makes me very thankful for the fact I can eat and desperately hope you can eat again!!!! ❤️

[@noraann6372]

Omg I see Eeyore on her bed! I LOVE him!

[@ambarrose]

I still remember perhaps one of the first chronically ill KZbinrs, Amy. She was living with TPN like you.

[@t.ellevision]

I miss Amy, Cheyenne and Jackie all 3 beautiful young warriors who definitely earned their Angel titles

[@gothafloxacin]

​@@t.ellevisionI met a women I absolutely fell in love with due to us both being mutual friends of Cheyenne's. I'm glad she was at least able to eat a little bit again for the first time in forever before she passed.

[@Infaredlighting]

So strong!

[@annfarrar-vr8ws]

I watch liv every evening ,she is such a beautiful, funny, courageous young woman ,well done liv so proud of you , I know this was very hard for you , silent watchers love ❤️ liv so much xx

[@ZeBiii]

oh my I'm so sry she has do go thru this but she is so strong! I once had a very scary experince after an emergency surgery on my gut. When I was allowed to go back home after 3 weeks hospital stay, first time I ate actual food. But the moment I ate the food I vomited everything. Every 2 hrs I would vomit pure stomach acid. When I was back at the hospital, they didnt know why it happens. They feeded me per tube that went directly to my gut, while they observed the stomach acid that came out from another tube. Until that stopped I stayed. I was able to go home after a week & eat normal food again. Until now i dont know what it was & god thanks never happend again since (already 13 ´yrs since)

[@83lulube]

My sister-in-law has this, but hasn't needed a feeding tube thankfully. However, her stomach is 24-7 upset, etc. Her whole life is spent worrying about whether she needs to go to the bathroom. Pretty much like IBS, except it's a partial sleepy bowl. I hope and pray it never goes completely asleep. Scary.

[@mybonneval]

She looks healthier than I would expect.

[@ChrisViCrows]

Well she is being fed through her heart so she is surviving

[@Stalemarshmallow]

🙄

[@seldabaydemir4939]

Everybody has some problems but some has more. Wish you happy long life. My disease is not this one but another which is Ménière and it is also very debilitating. We are not alone ❤

[@YochevedDesigns]

I am such a foodie, and I love cooking. I don't think that I could ever give up being able to taste things, even if I couldn't swallow them. I think that I would have to take a bite of food, chew it really well to get all the flavor from it, and then spit the solids into a napkin.

[@AprilTeniente-eu1mj]

When I was little a younger, I couldn’t eat, either. It’s hard for me to eat healthy foods at home, at school or in the hospital. I lost 67 pounds in the past years ago. But then I ate healthy foods and the milkshake and others!! I weighed 72 pounds sometimes.

[@sheribentley3266]

Just found you. I had gastroparesis. I want to give you hope. There is hope. I suffered for years. God healed me where the Dr's couldn't. My prayers have always been that He will wipe this disease from the earth. I'm not 100% well but I can eat again in small portions. My gastroparesis caused me to develope SMA (superior mesenteric artery syndrome) currently working with that and dreading the feeding tube again because I can't gain my weight back. You are beautiful. Thank you for spreading the awareness of a rare disease. Stay strong.

[@guardiansanimalrescuestate7289]

I have gastroparesis as well. I have a GJ feeding tube. The tube feeds go directly into my intestines. And I can vent out gas and bile. Or drinks I’ve had. TPN also gives me so much of my nutrition needs. I was blessed with Jake my medical service dog for 14 years. And a wise person matched my with a service dog in training, several months before Jake passed. I feel like Jakes spirit is in Linkin. (Named after my favorite band ever, Linkin Park. I hops maybe you could benefit from having a medical service dog???

[@cindyashruf8152]

God bless you olivia❤❤❤❤❤