I spent a day with people w/ ENDOMETRIOSIS

[@AnthonyPadilla]

next week we rest. but come back in two weeks for *I spent a day with people w/ DOWN SYNDROME* UNCENSORED ON SPOTIFY ▸ open.spotify.com/show/5aOLuPenneHbhLh05fmkeu UNCENSORED ON APPLE ▸ podcasts.apple.com/us/podcast/i-spent-a-day-with/id1550213250

[@MrCommentGod]

Ok

[@t1ckin73]

W

[@pukcabsozaxiamie]

Hi Anthony

[@zorromanxd9725]

Skrrr

[@pukcabsozaxiamie]

@Game Channel Minecraft🐼 thanks!

[@moodymay80]

My own father didn’t believe I had endo until my surgeon showed him pictures post op. The physical pain is horrible but the emotional pain of not being believed is far worse.

[@antoniatheda3335]

I am so sorry... I know this feel all to well. My mom didn't believe me about the pain until I was diagnosed.

[@specialbeans5996]

I’m so sorry man I wish you the best!!

[@xoxolovechristielynn]

You are exactly right. I have 6 different autoimmune diseases including lupus (which some doctors have said is linked to my endometriosis) and THE WORST PART of all of it is not being believed. Just because I have some good days and I “don’t look sick”, and it’s actually heartbreaking when you’re suffering so much but people do not believe you.

[@chari---zard]

why wouldn't he believe you? this is so weird.

[@Renangoo]

You put what I was trying to say into words! This is Exactly how I feel

[@kpk1171]

As a male I had no idea that this condition even existed. I’m so glad Anthony and his team can create content that can educate people like myself on the severity and inter workings of people. I feel like periods, abdomen pain, and endometriosis shouldn’t be taboo to talk about as they’re important for women’s health

[@Bojannna44]

Thank you for respecting. Most men have absolutely *no idea* what every 10 women go through for their whole life and they just have to live with it, but it's not their fault. Women's health and pain is so so neglected and nobody tries to change that. Honestly I appreciate you so much for watching this video, stay safe bru :)

[@sabahk]

I'm a woman and I'm honestly embarrassed I didn't know about this

[@diorwook]

@@sabahk no bc same here.. sometimes i feel like such an ignorant person not knowing important stuff like this

[@LevadeNZ]

Believe it or not, cis men can have endometriosis too, though it's exceedingly rare.

[@twentyeight602]

I have a uterus and am sad I didn't know about this, I had like 1/10 chance to even have this like wtf

[@shadowykitty5588]

Had it since I was 15, (almost 27 now) and was doubled over sweating, vomiting, shaking, crying, feeling like I was being ripped from the inside out. My mom used to joke with her friends that I was so naive about my first period that "she thought she had cancer" and I actually went to the ER. They all just laughed and said I just wasn't used to periods yet, and then over the next 2 years the jokes stretched on about me being "overdramatic" or "just needing to suck it up like everyone else," and "Its just a heavy period, it wont kill you." Curled up in bed unable to move I remember hearing my mom yell at me to get out of bed because "no woman ever let a period stop her," so I needed to do my chores and go to school but I remember my fucking vision blurring due to the waves of pain. Tylenol, Advil, Aleve, none of it worked. The pain burned right through it... so I started secretly buying more of it to take more instead of asking my mom for hers... I was up to taking 5 Advil at once and STILL feeling the pain... but all I ever heard was the same shit "You'll never hold down a proper job if you spend the whole day in the bathroom! Get over it!" Even other women would berate me "you're too young to be complaining," "wait until you're my age, then you can talk," and I felt so damn defeated... Finally prayed and God put it on my heart to get my tubes removed right before I turned 26... they said they found it EVERYWHERE... my intestines, my ovaries, my liver, my bladder, EVERYWHERE. Luckily none of my organs aside from my fallopian tubes needed removal, and the damage is healing... I used to spend my first day of my period clinging to a toilet or passed out on the bathroom floor (sometimes I slept in the tub), and then I would bleed for 10-15 days after that, and they were random as hell... sometimes I'd get two periods a month or one long one that lasted almost a month... it was exhausting. My cycles were between 15 and 48 days, meanwhile I'm fighting ADHD, BPD/Bipolar disorder type 2, Anxiety, Depression, Interstitial Cystitis (sensitive bladder syndrome), and undiagnosed Fibromyalgia. When they called my parents and left a voicemail saying they got rid of the scar tissue and all the confirmed endometriosis they found, that they had tested it due to the size of the lumps but found no cancer, my mom broke down in tears and apologized profusely while my dad just sat in shock... it was insane... now my periods are 2-6 days long, my cycles are somewhat regular (between 25 and 33 days now), and I'm finally able to have sex without pain and vomiting too! I'm so blessed!

[@sxvxnnxh1452]

This is almost exactly what I'm experiencing now, everyone thinks me passing out, throwing up due to pain, not being able to move etc. Is just me being dramatic. I've been sent home from work before bc I physically can not stand to even ring people up and ended up crying in the back with my heating pad full blast on my tummy. Weirdly enough, It almost scares me more the idea of having Endo though so I've never pushed it with my doctors. I'm so happy u were able to find a solution.

[@sophietaylor5738]

I'm so glad you're doing better! I just want to say I'm not belittling your beliefs but you should be so proud of yourself too for finding the courage to go into surgery, with help or without x

[@RachelRose2]

I’m so sorry they didn’t believe you, I know first hand how devastating it is. So glad you are doing better!

[@deekelly8538]

Omg same sis !!! Every month the pain is so bad I'm vomiting , going into shock , in and out of cold sweats . There are times I vom non stop for 3 days where id have to go in for a drip and injections . And this is literally every month sometimes I skip a month but when I do skip it ends up being worse the next month . This shits real it's no joke . And I'm a thc enthusiast and sometimes I can barely eat or smoke or get anything into my body . It's horrible . Strength to all the queens that experience Endo.

[@Kewlausgirl]

Holy crap! You poor poor thing. I mean I get the "get over it" attitude because yeah, they all grew up where things were hard. And before that harder for them. God's I would hate to imagine having endo in the 19th century. How the hell did people deal with that pain back then?? But that doesn't mean that the person telling you it's hard to deal with l, that they are in horrible pain and aren't coping, that it's not less than what they experienced in life. It just means that they are experiencing just as shit things in life. But I am so sorry you had to go through all that crap. It is shit that people tell you that. I know my Mum used to say she had painful period when she was younger... But she also sympathised with me. Thankfully I wasn't as bad as you were, but I still had pain that went on and off for 2-3 days. Really awful pain that y have to take a lot of Panadol/neurofen, curl up with a water bottle and just hope you pass out through the pain. But it's worse when you go to the toilet because clots are so much fun when passing through!! But my mum let me call into school sick usually on the first day, but it was only when really needed. Sometimes two days. And my friends and I always skipped PE because of periods. Note from your parent saying that you were sick. But man those other girls that played sport a lot, they must not have had very bad periods, the light lovely kind, to be able to always play sport and never need to take it off. But...I remember the female PE teacher always knowing and being sympathetic. But the male PE teachers were brutal. You could tell they were rolling their eyes, actually I remember them joking and the guys in the class laughing everytime a girl was "too sick to do PE" saying we were lazy. I would love to simulate the feeling for these people. Putting two sets of undies on, with sand and tiny stones in the outer layer, so it's uncomfortable and a little bit painful from time to time, to cutting pain holy crap no. And then keep then spinning around so they are always nauseated, and have something pricking pain in their head, for headaches. And then sticks jabbing at their pelvis (I have nothing else really for period pain). Then maybe they would understand exactly what deal with!!

[@cyclical_]

This video really opened my eyes on how sexist medicine actually is, i had no idea. It really sucks that the world is still based on sexist opinions and people act like it’s not. So much love to anybody that suffers from this disease

[@wavewatcher_]

Definitely!! When we talk about gender equality, that’s what we talk about. When I was 15 (about 20 years ago) I had a grave case of anemia. I went to the doctor and asked: “might it be related to the heavy blood loss I have on my menstruation days?” Doctor told me: “No. Completely unrelated.” And scoffed. (Doctor was also a woman mind you) Today we know that yes, it’s a direct relation. It’s not that even long ago such a common problem between women was grossly overlooked by medicine like this. I wonder what other women’s problems have been overlooked and left unchecked still today.

[@zethcrownett2946]

If you'd like to know another thing about sexist medicine, there are only 2 mice medicine testing places in the US that uses female mice because "accounting for the hormone fluctuation is too much" and PRACTICALLY ALL medicine is measured out and made specifically only for men's bodies and do not account for afab people and how the fluctuations may impact effectiveness.

[@Ash-it4hw]

There are still so many women who are never believed by their doctors and it’s not until they pass away (for whatever reason) and a autopsy is done that it’s discovered - the way doctors can make you feel like an absolute moron is so awful and unethical

[@Kewlausgirl]

Exactly!! Because men don't experience periods at all, there's no empathy there even for just what we experience with periods. Which are what, 4 to 9 really bleh/horrible days of 30 days. Depending if it's a good or bad month... But this is a huge issue. Some people experience 3 weeks of this hell. But no it's not a "huge issue". Even though it's pretty common... I heard a country (might have been Sweden, everything is better there lol) is introducing 1-2 days sick leave per month for women, just so they get a couple of days to deal with that horror, no matter how much pain or how little, that they get to take that time off for that time of the month when you really, really need it. Which is bloody awesome! I wish that were the case here. But then you would have guys complaining they don't get the same amount of sick leave, that it isn't equal or isn't fair. No it's not. And for those equality verses equity debates... We are not equal to men. We are different. We bleed each month and have pain, sometimes horrible pain, when doing so. Of course we are looking at different situation to them! That's why I always liked equity because it's about seeing the differences and acknowledging those differences; then you adjust what you need to make everything balance, to be equal. Anyhow, yes, medicine and the workforce is absolutely sexist and biased. But it's hardly surprising. I mean it's still only what 100 years or less since women were able to work and vote? But I would love to see that happen in my time! And would love to see pads/tampons become cheaper or tax free. -_-

[@nyxx7813]

As if you didn't just tell men under 5'11 and 8 inches to wear cock sheathes and surgically replace their fingers with vibrators and or submit themselves to the mines and or organ harvesting locations. You are not not sexist. You are not body positive Sophie.

[@littlecat4415]

I have had doctors literally tell me “people my age don’t get cancer” multiple times between the ages of 15-25 and refuse me investigatory health care. This is after laying out my enormous family history of multiple types of cancer (many hormone related). Heath care systems needs to do better by women, non binary and ftm trans people when it comes to their bodies, especially surrounding our reproductive systems.

[@stormy7565]

A DOCTOR told that you couldn't get cancer in a specific age? What?!

[@jasperj.d.g.4147]

@@stormy7565 some cancers are uncommon in kids (like breastcancer)

[@taylortiwari7118]

This! I had an ER doctor tell me recently not to worry about my heart cuz young people have healthy hearts. I had heart surgery when I was 21. Im 25 now. I informed him of that, and he was still not concerned at all.

[@stormy7565]

@@jasperj.d.g.4147 Uncommon, but not impossible. They could still check if everything is okay instead of just saying that is impossible

[@savannafrank4351]

Having the same problem, I can't go in till I'm 18 because I'm not "giving consent," and my parents are forcing me.

[@maryamsheikh7597]

I struggle with endometriosis personally and let me tell you that it’s such a relief to hear others stories and how they dealt with it. Thanks Anthony for making such inclusive videos ❤️

[@julena399]

Same ❤️

[@palomathereptilian]

Same here 💕 It makes me so happy to see a video spreading awareness about endometriosis and how severe it can actually be, I really hope we can get new and more effective treatments for endo soon tbh In my case, I didn't got diagnosed or taken seriously until I literally developed a navel spot, so technically my endo became "visible" to everyone else and they couldn't dismiss me anymore, got diagnosed last year at 24, even though I complain about too much pain since 16

[@kirasaunders9915]

Same it makes you feel like you're not alone in these struggles

[@airi_lunaaa]

Same here! Hope everyone who has it is doing okay

[@user-vr5hy5xp8e]

same here, the joy i felt when i saw this notification was immeasurable, it’s amazing to see our condition actually getting media coverage thats positive and actually accurate 💛

[@torycatherine2044]

The idea that a doctor with an oath to treat the sick and injured to the best of their ability and to do no harm would not only dismiss the pain of this disease, but would also value a woman's fertility over her quality of life is just messed up. Women don't just exist to give birth. We're not incubators with legs. To value a life that doesn't even exist over a life sitting right in front of you asking for help and pretty much turning them away is just disgusting.

[@Ash-it4hw]

What’s especially disgusting is when they’re like “well looks like you’ll need a hysterectomy but not until you’re older” (which on its own is gross) but to then not even provide any prescription for pain relief or any resources for support. I had to demand an ultrasound and refused to leave until they agreed, that’s how I was finally diagnosed with Adenomyosis

[@oWoUwUoWoUwU]

@@Ash-it4hw happened to me when one of my ovaries burst at 11. they knew there was a risk as well as high likelihood for heavy and super painful periods after but decided I needed to be fertile instead. my mom insisted but they still wouldn't. I'm also ftm so the last few years have been hell, but luckily testosterone has put a stop to it.

[@Ash-it4hw]

@@oWoUwUoWoUwU Jesus, how chaotic! I’m so glad that your transition is going well and is also reducing the pain/discomfort :)

[@oWoUwUoWoUwU]

@@Ash-it4hw Thank you! I hope there are changes made to how professionals in all fields and in society treat women and AFAB people. Things need to be better :) Have a good day/night

[@Ash-it4hw]

@@oWoUwUoWoUwU I hope you do too! Keep safe :)

[@DonovanHerleyman]

people never talk about endometriosis thank you anthony, I’ve have many people (even period havers) deny my experiences with endometriosis. I started developing horrible symptoms when I was 12 (3 years after my first period) and many told me that I was too young to be experiencing the pain that I was and I was likely dramatic. EVEN THOUGH MY MOM HAD THE EXACT SAME EXPERIENCE and had to get her uterus out as a result.

[@teddieblue6723]

I was 13. Im 17 now and ive heard other women tell me i just have the bad luck of the stick and i cant have it very young.. UH YEAH YOU CAN!..

[@cailena8428]

I’m so sorry to here this, I hope you got the help you needed. The same happened to me. My gynaecologist didn’t believe me because I was thirteen.

[@fool4343]

@fruit b0wl !! yes it is. my granny has it and my mother has it. i've told gynecologist that i think i have it and ive been told to just bear a child. im 20

[@sweetluvgurl]

Screw people who tell you how your own body is doing. Only you know.

[@fixingeverybodysgrammarigu4196]

I appreciate your use of period Havers, instead of just saying women. I’m a trans guy and this made me smile

[@rosiebronte]

When my mum told her doctor she'd investigated her symptoms and thought she had endo, the Dr looked down her nose at her and said 'oh, and you're a Dr now, are you?' Years later when she was trying for a baby, a lesion ripped and she ended up having an emergency hysterectomy and nearly passed from bleeding. Her bowel was stuck to her spine with endo.

[@jamrawat8251]

Ahh sexism at its finest

[@divyaa4459]

gosh that sounds horrible hope shes better now

[@vibrantgleam]

@@jamrawat8251 fr even in general it sucks.

[@therareguyshow6018]

My girlfriend has endometriosis. She hasn't been believed by her mother or father, and has been passed off as normal pain. I've been in the ER multiple times with her because of it, and it's heartbreaking to see her in so much pain. I didn't know of it before I met her, and turns out it's super common. People need to believe women when they voice their pain!

[@HackiePuffs]

Your girlfriend is lucky to have a supportive partner in you

[@ButeraMelina]

Having this disorder seems so awful. As someone who stuggles with ither disorders / illnesses I'm sending much love to anyone who suffers from that or any other disorder

[@TheAnnaPhilharmonic]

Thank you ❤️ it really does suck

[@ButeraMelina]

@@TheAnnaPhilharmonic You're welcome ❤

[@palomathereptilian]

Thank you so much 💕 Unfortunately it's horrible, I feel like I can't control my body anymore

[@elysegallagher831]

I’m the 100th like lol

[@CoolerCookie]

thank you.

[@cybersucia]

To anyone with this disorder: you’re so damn strong and I admire your resilience

[@am_2395]

Thank you ❤️

[@camillafriiskartin253]

Thank you ♥️

[@kmay6803]

aw this actually warmed my heart so much, i’ve never heard this from anyone apart from my mum haha

[@firefoxx903]

Thank you 💕

[@rocksforbrains4145]

thank you :)

[@desertdevil]

Thank you for covering endometriosis! I’ve struggled with it for 12 years and am hoping to I can finally find a doctor this year to agree to a full hysterectomy. Every doctor has told me no because I “might want kids in the future.” And when I tell them my husband had a vasectomy, they tell me I may not be with him forever and might want kids with a different partner. The way people with uteruses are treated by medical professionals is so dehumanizing. I hope every person dealing with this finds some relief! You deserve a life without pain!

[@allister.trudel]

Holy fuck I'm so sorry this is happening to you! Fuck those Drs and their misogyny! Women are not walking incubator that's so messed up... I hope you find the right doctor soon

[@sabinajoh]

That sucks :( maybe if you agree to freezing a few eggs they are more likely to give you the surgery??

[@cloaksanddaggers89]

When a hypothetical future man has more rights to your body than yourself,the suffering real woman in front of the doctor.When a hypothetical future child is more important than fixing the excruciating pain of the woman in front of the doctor.Too many doctors are like this.

[@c4tastr0phic76]

my mum got one, and oh my god it helped her so much. i hope you find the doctor you need

[@chari---zard]

It's not only about that. Your whole hormonal system will be fucked over with it. At an early age you will experience climax, hormononal changes in such a drastic way, but they not only will affect your mood, temperature regulation - it's also about bone structure even. The doctors should discuss this with you.

[@spiker2178]

\male\ didn’t know this was a disease and it made me upset to know it’s just as common as asthma. Thanks for spreading information!

[@Kewlausgirl]

Thank you for being brave and curious enough to watch this issue. It's sad only 400k have watched this on Anthony's channel :( people should learn about this more

[@kynsleestewart1319]

my mom suffers from this and it’s like she’s dying every single month. it rly sucks what these people have to go through. so glad anthony is bringing awareness to this because this is so serious.

[@scarsound]

same! my mom got surgery for it the other day and i swear: she and other sufferers of endo are some of the strongest ppl i know

[@eileensnow6153]

I don’t have a diagnosis, but I’ve had period pain so bad my mom has taken me to the ER (after several hours of me writhing in pain). The worst part is when they don’t find anything, they assume that you’re seeking pain medication and you can feel the disrespect radiating off of them. There’s no way to prove you’re in pain. Hats off to your mom, and if you have a uterus make sure you pay attention for the signs!

[@GGalaxy01]

Wait hang on? Once a month? I mean she could have endometriosis but sounds like a period to me I’m probably wrong So sorry But…

[@ezzielawson1404]

@@GGalaxy01 sorry do you know what endometriosis is? Don't make assumptions if your uneducated

[@aliciadeadlydaisy7543]

Has she spoken to her doctor about options for birth control to stop getting her period? I had unbearable periods, nothing helped and it was seriously debilitating, for years. my gyno said it wouldn’t be worth the whole process to check for endometriosis so I’m not exactly sure if I have it or not but she did guide me to this which really helped me I’ve been on constant birth control (NuvaRing) and haven’t had a period for I believe a little over a year now, and that helped get rid of the symptoms I would get. I’m sure she’s probably tried all her options, but I did want to comment my experience just in case! Best of luck to you and your mom! ♥️

[@trashcan2926]

my mom didn’t have endometriosis, she had endoSALPINGIosis, it’s very similar, except the tissue growing on the organs is fallopian tube-like epithelium. it’s extremely rare and it spread to her bowels. she would cry and shake on the floor while sweating like crazy when she had cramps. no one believed her pain, she suffered for years. she’d have blood in her stool but only right before and on her period. luckily, one wonderful nurse practitioner suggested she might have bowel endometriosis, and referred her to gynecology. but even in gynecology, it took them way too long to suggest exploratory surgery. that surgery became a hysterectomy, appendectomy (there was a ton of endosalpingiosis on her appendix), and literally scraping all of the endosalpingiosis off of her bowels. it was a rough 3 month long recovery but she’s finally free from it. thank you so much for making this video, anthony. so many people with this condition, and other similar ones, are often unheard and misunderstood.

[@emilyrose623]

wow, that sounds absolutely awful. I get so mad hearing these stories of medical professionals who don't listen to their patients and completely downplay their pain. I'm so glad your mom is finally free and happy!

[@rayelikesdancing6181]

I didn’t know about this disease. Crazy!! Female reproductive organ diseases are wild. And awful.

[@im19ice3]

that sounds horrifying, i'm so glad your mom got better :s

[@Kewlausgirl]

That sounds awful. I'm glad she is doing better. And thank you for sharing that with us. All period/ovarian illnesses need to be shared among women.. Hell among everyone so it's a widely known issue. Screw taboo. We should be able to talk about natural things that fuck us over. Although I have one weird question... How on earth did your mum discern that it was blood in the stool during a period? Do you mean when she was lighter and no longer bleeding like hell, that you could figure it out then...or? I'm really curious as to how you could tell... Or maybe I'm just really stupid... Coz blood in the stool isn't that normally when that's black? Yeah then if the proof is lighter and not as heavy, then you could tell in the colour of the water. I'm an idiot never mind. -_- But just in case that's not right lolol can you let us know please. It'd be great for those who may have issues so they can check themselves and go oh there is something wrong and know how to find it

[@holycas2949]

Here I am, almost dying from pain from suspected endo, crying about statics of women in stem and how long ago the cure could have been invented if men didn’t only care about themselves. Can you believe that there was research to find out whether women with endo are more attractive than those without it INSTEAD of looking for the cure from crippling pain? and you come out with a video about it. Thank you

[@jlbeeen]

I have a few conditions which are seen as rare or unknown (my GP literally said that my symptoms were linked but maybe in 50 years they'd know it? I think it's a type of EDS and waiting for a specialist), and it's hard. I'm going into STEM but more of the IT direction, and I really hope that more awareness for chronic conditions, especially ones that are often ignored by men, can get more research into them. I have a hormone imbalance that causes really bad pain and terrible PMS, so I know what it's like short term, but can't imagine if that lasted longer. We, as people who get periods, need to know our options.

[@bruh-mb1rd]

It all comes down to how women look to men, doesn't matter if it hurts

[@Michael-dj6pd]

1 out of 7 men get prostate cancer while 1 out of 8 women get breast cancer, the survival rate is lower for prostate cancer, so I find your argument very flawed since more money and awareness has gone into researching breast cancer.

[@holycas2949]

@@Michael-dj6pd this is NOT about breast cancer only, it’s about everything. According to Harvard, more than 6000 new inventions specifically for women should have happened if they got funding. You can find this article on their Twitter account

[@anastasiabrakke65]

We believe i have this disease (every women in my family has it and i already presented symptoms at 15-16 ). I want to become a biomedical engineer and i want to focus on finding a new tech to cure it or better treatment it.

[@IdoGindes]

I’m a medical student, and we’ve learned about endometriosis as early as the first year of med school. Glad to see this phenomenon has more recognition in the medical community!

[@hedera1332]

This also makes me think of Polycystic Ovarian Syndrome (PCOS), another widely misunderstood condition. Up to 1 in 10 people in possession of a female reproductive system are estimated to have it and more than half of them don't even know it. It is the leading cause of infertility in women and so little is known about it. I'm so glad that invisible illnesses like chronic pain and endometrosis are being covered by this show and I hope one day maybe this one will be as well.

[@Rashi0220]

I have PCOD and I heard someone say *then stop trying to be like men* when I told them I had it

[@xxemmiexx83]

It took me five years to be my pcos diagnoses, I’m lucky that I don’t get the face hair and hair thinning but my body hair is out of control along with my insulin and insomnia, the cramping all the time is tiering

[@hedera1332]

@@Rashi0220 Wtf is *wrong* with some people??

[@mareyamoncrief7328]

Pleaseeee cover PCOS (Polycystic Ovarian Syndrome)!! I got diagnosis at 12 and have dealt with hard life changes due to it. I lost my job at 16 while living on my own because of a cyst that almost cost me my ovaries. I had to fight for a week to get my doctor to agree that the pain and danger the cyst caused warranted emergency surgery. I worked with patient advocates and finally got the cyst that was growing in my tubes removed. They told me after that my tub was actively ripping on the inside, I almost lost a organ due to a doctor’s ignorance

[@christinamiller8846]

I also have PCOS and it effects my everyday life. My diet, lifestyle, pain management skills, and just everyday planning are effected by this syndrome. I have had cysts so frequently that I was in and out of the hospital for months on end. Surgery after surgery. The amount of physical and emotional pain is immeasureable. I will probably be infertile and I have contemplated suicide before due to these symptoms. When you're in the middle of heightened symptoms it feels like it will never end. Yet, some OBGYNS and other doctors still do not take me/my friends seriously. The pain described at the beginning fits so perfectly "like something clawing it's way out of you". It's miserable and not curable, and it doesnt look the same for any two people. Some of my friends with PCOS have never had/felt a cyst on their ovary before. Yet some have also had ones the size of tennis balls removed. It's life altering and so incredibly dangerous, but it just doesn't get talked about enough.

[@lynxwarden1774]

That one woman who spoke about having symptoms when she was 6 is making me click on my own situation. I had symptoms like this when I was 8 and one doctor I saw thought I was pregnant.l, another say it was no biggie, just a stomach ache. Hearing someone else share going through a similar situation is validating af

[@chibitenshiii]

I'm just remembering having huge stomach pains when I was 8/10, doing echography exams (external only) and blood tests and not finding anything, until doctors told me it was only psychosomatic pain because of school stress. All those years I had to grow and accept the fact that I was "pretending" to be in pain... which was really violent for me. Hearing this person really resonates and makes me wonder if I was not pretending after all.

[@brunscrum9378]

@@chibitenshiii you matter and deserve to be heard! Also, even if your pain was psychosomatic, you weren’t pretending, your brain and body is convinced of that pain, and really feels it, even if there isn’t an underlying physical cause. So take care, know you deserve respect, and your pain is real. You aren’t just making things up. Our brains are complicated, and mental pain can and commonly does affect our nervous and immune systems and other systems of the body.

[@lostmarbles3675]

@@chibitenshiii when I was 11 years old, I went through almost an identical experience. My stomach hurt a ton, we did blood tests, nothing. We went to the doctor 10 times, nothing. They eventually concluded it had to be stress from school, and to this day we still don't know what happened. I still wonder if I was psyching myself out or pretending.. I'm incredibly grateful that i didn't have this disease because I was high-key worried and my deepest respect goes to the people in this video and the other women (and occasionally men) in the world that have it

[@NaomiVictorias]

Anthony you’re an angel for bringing light to all of these subjects and educating everyone. I was investigated for endo when I was 22, thankfully it wasn’t but I can’t imagine the pain these ladies have to suffer in silence with every month. Love to them all 🤍

[@AKbaby89]

I have stage 4 Endometriosis and have been disabled for over 8 yrs and commented on your videos for months to do a video, and emailed multiple times. I'm just glad Endometriosis got an episode, and during Endometriosis Awareness Month💛💛💛

[@kyuubipie8279]

I’m so happy he did an episode on this!! And so happy to hear you wanted one and got one.💕

[@skittles8297]

Yessss I remember watching your comment on one of his videos and finally you got the video..... Also sending a lot of love and respect for going through so much

[@ladyfoxwf1075]

I've been to the doctors sooo many times about my period pains, once I bought up Endometriosis, and they said to me "yeah it's possible you have it but there's no point checking because even if you have it there's nothing we can do. There's an operation but it would just grow back".

[@FrejaFridjof]

Sounds a lot like what happened to me! I'm taking a trip to a hospital far away from where I live soon that is specialized in these types disorders. to hopefully get a diagnosis after 15 years of pain...

[@sapnupua5]

the endometriosis subreddit has a map of good doctors for this stuff

[@FrejaFridjof]

@@sapnupua5 Thanks :) I checked the map, I already have an appointment with one of the places that's on the map, so hopefully it will be helpful.

[@sapnupua5]

@@FrejaFridjof best of luck!

[@McMerlin11]

Oh yeah, let’s ignore the thing causing you horrible pain because it’s just too much woooork

[@hopelindley9341]

As a young women with Endo I remember always being told “your pain tolerance isn’t as high as others” or “every women has this issue” this was by the community and by my doctors. Finally 17 days before my 18th birthday I had a laparoscopic surgery. A professional gynecologist who was male diagnosed me and tried his absolute best to help me through everything. I am forever grateful that there is a single person the listened to me.

[@jennehrishe4468]

Honored to have been a part of this. Thanks so much, Anthony, for your care and dedication to this topic. Appreciate you mega! ❤️🙏🏾

[@solveig964]

Thank you for sharing your experience!

[@leslieholland7843]

Your having endo on so many places was eye-opening. They left endo on my bladder during my surgeries because tge doctors thought I was malungering and the pain was all in my head. Do you still have pain after your hysterectomy?

[@charlottewillis8642]

Thank you for coming in this as after I saw this I sent it straight to my friend who has had these symptoms for years and now she’s on the road to being diagnosed

[@rcam9281]

Thank you for sharing your experience with this condition

[@JustJordansArt]

Me currently dealing with endometriosis pain and got this notification. It is horrible and has effected my work and life. Thank you for sharing this. It needs to be talked about a lot.

[@savsaga8265]

Same! I'm in so much pain rn. Like what the fffff.

[@JustJordansArt]

@@savsaga8265 it’s horrid. I have a TENS machine just to make it bearable

[@Littlelavenderfox]

Sending you both a big big hug! 💜 Endo pain can be so extreme!! I have several chronic pain illnesses, but endo pain is just something else 😰

[@savsaga8265]

@@JustJordansArt all I can do is throw in 1000mg of cbd in a hot tub and boil myself😂😭

[@amygravolin1041]

Absolutely this! Struggling to move from crippling pain right now so I feel you!

[@dannibri2387]

I would love to see you interview people with PCOS; a very common hormonal disorder. I was diagnosed my senior year of high school and have been struggling treating it since (I’m now 24) It’s crazy how so many different conditions have the same side effects.

[@catl7184]

OMG!!! Thank you! I wanted to ask the same thing. I was diagnosed at 29 years and it felt so lonely...

[@cailena8428]

This would be interesting, I’ve learned from my gynaecologist that 50% of people with PCOS have Endometriosis. But don’t quote me on that lol. I have both, but think the statistics between PCOS and other menstrual disorders are interesting.

[@idaliso.9737]

absolutely! i was so shocked at how common it was and how late it gets detected. i was lucky enough to be diagnosed when i was 14 which is incredibly early. and just all the overall mental and physical issues that PCOS contributes to. and how much is still not known about it.

[@brittandwoofs5294]

I have both endometriosis and PCOS. I either have super terrible periods or I go months without periods.

[@kashishbagade8779]

@@brittandwoofs5294 hey, I have PCOS and I too have, pain that makes my legs tremble and I bleed way too much. I mean, I can't even get up cause of the cold sweat. This is my 1st time hearing endometriosis and now I'm scared

[@nikib.7429]

I was told by several doctors that I did not have Endometriosis. They wrote of my severe pain. For ten years I lost jobs, I suffered physically, and even developed a secondary condition of Myofascial Pain in my pelvic floor because the pain was so bad. Eventually I couldn’t have sex with my husband anymore and it even progressed to the point that if I got aroused, the muscles would instantly cramp up and hurt. I was put on nearly every birth control on the market and had to deal with months of being psychotically angry, severe depression, suicidal thoughts, weight gain, etc. trying to find one that worked - all the while trying to maintain a full time job and marriage. Then I was put on Lupron, a chemotherapy drug shown to help with Endo. I did it for 9 months until my hair started to fall out. Finally I demanded diagnostic surgery and to see a specialist because Endo can’t even be diagnosed without surgery and yet it’s for some reason the last line doctors go for. The specialist diagnosed my Myofascial Pain Syndrome and I was put in an abdominal binder for almost a year to support my poor struggling muscles. Eventually I got the surgery I’d been asking for for over 5 years. They took 9 biopsies and they all came back positive for Endo. 10 years of being gaslit, being asked to jump through every hoop, try every medication known to man - I was validated. Sadly surgery didn’t help my pain but the specialist said it probably wouldn’t. After surgery during recovery I still had my binder and used a cane to get around for a few months. Since the surgery didn’t help my pain I was recommended to get Botox injected into my pelvic muscles to help with physical therapy. They don’t tell you that physical therapy for pelvic floor means the therapist uses a plastic rod inserted into you. Very invasive. I’ve had countless ultrasounds, all very painful, which are also done via a giant plastic dildo. Everything about women’s health is horribly invasive and traumatizing on its own, let alone if you’re an assault survivor as I am. Endo fucking sucks and it ruins lives. Thank you for bringing more attention to it Anthony.

[@xavierxlp301]

bloody hell that all sounds terribly painful..

[@emilyrose623]

I am so sorry that you have had to suffer and continue to be in pain. I'm hoping and praying for your health and wellbeing!

[@cheesecake7274]

This sounds horrible and traumatizing... im so sorry...

[@sfglim5341]

This is terrifying i’m so sorry

[@wavewatcher_]

Women’s health is highly overlooked in medicine and there’s never enough information out there. Thanks for sharing your experience, these are very important to be brought to light, specially considering how many women it affects worldwide.

[@hannahhenderson2682]

I was “diagnosed” with the furthest stage of Endo. I was 18 years old and told that I would have to have my children before 25 since mine was so severe. It was awful and excruciating. I couldn’t even take pain medications anymore because they don’t work. Thank you for allowing us to share.

I'm 26 and I have endometriosis, It has taken me 6 years to have the diagnosis. Every month I die from the pain I feel, the physical and mental fatigue is an exhausting challenge... Thank you for making this silenced disease visible, it is very underdiagnosed and, mainly for this reason, no resources are allocated to the investigation of the disease. Be strong sisters, we are endowarriors and we are not alone 💛

[@Argonaute355]

2:35 I’m currently writing a paper about the pain gap between women and men in healthcare and how women’s pain often isn’t taken seriously, i highly recommend reading up on the topic

[@zauselleo8051]

Thank you, its so heartbreaking to read that so many women across the world have the same experience(especially with endometriosis). To not be taken seriously despite agonizing pain is truly the worst. It shouldnt happen so often, also many illnesses get undiagnosed because womens pain is brushed away or treated as we are being dramatic or its just psychosomatic. My aunt died because no doctor believed her pain untill it was too late, this bias in medicine has severe consequences for women and its time to make people aware of it it and to change that.Than you for your work, i wish you all the best:)

[@LevadeNZ]

The trust gap and research gap in medicine is both fascinating and frustrating. People are horrified when you tell them that, when complaining of pain after coronary artery bypass grafting, women were more likely to be prescribed sedatives than pain meds compared to men.

[@dollienan]

Id also like to add maybe say afab(assigned female at birth) vs amab, because lots of trans people get treated horribly in the medical field, it really changes how doctors treat you for anything aswell! -coming from an afab refently came out as non binary and im treated much differently in the medical field even maybe worse than before and its awful. Also ob/gyns are worse than other doctors, but that could be my bias! But yea Id appreciate if you did research and brought it up if you are comfortable, if not im just sharing my experience. :)

[@Argonaute355]

@@dollienan I totally agree! I originally was going to do that but my teacher said that was “too specific” *eye roll* I definitely want to write a paper with the proper terms that explores the discrimination transgender people face as well in the future. Thx for pointing this out!

[@Argonaute355]

@@dollienan also congrats on recently coming out, I’m sorry to hear that you have been facing discrimination :(

[@ghoul_kid1027]

Can we just talk about the fact that Anthony not only talks about mental disorders that he doesn't have or lifestyles that he doesn't live, but he also talks about female issues that he could never experience. And not only that, but he does it respectfully and well. He has my respect for that ❤️

[@dcsox33]

Been there, Endometriosis is no joke. Since my hysterectomy a few years, things have been MUCH more manageable. Wouldn’t wish it on anyone. Thank you for bringing awareness. ❤️

[@lilso8411]

sending you love! ❤️❤️

[@dcsox33]

Thank you ❤️

[@NinjaNatNat28]

I also have endo and all of my specialists are at the end of their rope. When it’s really bad I have contractions like I’m about it give birth. How did the hysterectomy help you? What is your pain like now? I’m thinking a hysterectomy is my only option now because it’s been going on for so many years.

[@lizthedisjointedzebra692]

How was it? I am desperate for surgery to remove my uterus, I can't have kids anyway due to my EDS, so I just want this out of me. Not to sound.... insensitive, but it feels like a cancer or something. It FEELS like I am dying, it triggers panic attacks, and I am just so hopeless and helpless. My body has turned against me.

[@dcsox33]

@@NinjaNatNat28 it was honestly the best thing I ever did. I had it when I was 38, I’m 43 now. I wish I had done it sooner. The pain went from everyday to a few days a month and it’s much more manageable. Luckily, I was able to have my daughter after a couple miscarriages.

[@teas3998]

I have PCOS and it was ignored for a DECADE despite vomiting, fainting spells, missing work, etc. Doctors thought I just "Couldnt handle period pain". Surprise! I had cysts bursting inside of me constantly!

[@teas3998]

Also! THC and CBD is the ONLY thing that works for my pain managment. My doctor reccommended it despite not being technically legal yet (its not illegal under a certain amount). I cannot take ANY of the medical options because of the affect they will have on my body.

[@platypuswoman]

I’ve got endometriosis as well since about my second or third period so when I was 11. It is the most excruciating pain ever and no one not even my mother listened to me because I was ‘too young,’ or ‘it’s just bad pain,’ honestly I’m so glad you covered this topic as it is treated so much like it’s just some PMS or just normal! Thank you so much

[@Kewlausgirl]

Hey I got my period when I was 11 too! I remember the girls laughing at me because I had mine so much earlier.. most girls didn't get it until we were in highschool (year 7). I also have endo and adenomyosis so I feel your pain! I remember though when I first got them I only went 3 days until I think year 7 ...or 8, when I was 13 or 14, it kicked in then I would get huge clots passing through and be in so much pain rolling over on the floor. I also think my Dad wasn't sympathetic to me not wanting to go anywhere when I was in pain. But I think as I got older as it became more apparent I was in more pain, if I didn't want to go somewhere it was fine. I don't know whether my dad thought I was being too soft, but as he got older i think he came to realise he put too much pressure on us kids for things and then I think finally realised I had issues when I reached my 20s. I think the best thing to do for anyone facing this with their parents, would be to show this video or an educational video on that topic so their parents can understand a bit better. But yeah glad this topic was on here. :)

[@emmabathandbeyond3845]

This is so important it’s so often not looked into or dismissed as not being as much pain and as serious as it realy is. It took years for someone I love to get diagnosed or even taken seriously about the pain

[@eileensnow6153]

I’ve had such severe period pain that my mom took me to the ER, and once they don’t find anything wrong they look at you sideways and stop taking you seriously like you’re just seeking pain medication. It’s so disheartening, how do you prove you’re in pain beyond your obvious discomfort?

[@nyumyu4265]

I do not have endometriosis, but I do have other problems with my body that cause me to have extremely painful menstration. I hope that marijuana becomes legalized, because sometimes that is the only thing that can get rid of the pain I get without fear of overdose or addiction to painkillers. It baffles me marijuana is still not allowed medically in all states, but extremely addictive opioids are. My heart goes out for these brave, strong women!!

[@mandyyeager7333]

Same here I bleed everywhere it looks like someone was murdered every month

[@sl4928]

@@mandyyeager7333 if you're concerned that you may be bleeding too much (regularly getting long-ish periods that are 6+ days, heavy bleeding requiring changing pads part way through the night), you might want to get a blood test to check your hemoglobin level to see if it's making you anaemic.

[@nadaabdo5263]

What other problems, if I may ask? I also have extremely painful menstruations, but no idea what the cause is.

[@mandyyeager7333]

@@nadaabdo5263 extreme pain like cant move for about the first day or two

[@mandyyeager7333]

@@sl4928 I've been to the doc they said it has something to do with being really fertile

[@cip5223]

The fact that Anthony gives voices to so many poeple. It's so good to see the good part of the internet working to educate as many people as they can. Props to Anthony and his team!

[@alyssachristine6930]

It took 7 years for my endometriosis to be diagnosed. I appreciate you finding this disease important enough to learn more about and spread awareness.

[@annakeyes7741]

Maybe you could do one about PMDD. It’s not just PMS it’s a chronic illness that makes some woman feel crazy. And thank you for talking about endometriosis! Great way to educate people ❤️

[@Ikine557]

I've got that. It is nooooot a walk in the park. I suspect it's a symptom of my endometriosis actually lol. Luckily birth control basically made it go away for me. But it is NOT pretty if I'm not on it for whatever reason.

[@melissamargolese8782]

@@Ikine557same, I wouldn’t wish it on my worst enemy and in my case birth control isn’t even an option because it makes all my symptoms so much worse

[@jomarch1645]

I feel those testomonies were big cases, but form personnal experience, you can have endo and get surgery even if you're not in immense pain 24/7. I had bad of period cramp pains due to endometriosis but I was still about to go to work and everything. The laparoscopy I had helped a lot with the pain and the surgeon gyno told me that people can have a lot of endo tissue and feel nothing, and others like myself have just a ittle bit that causes a lot of pain. What I mean to say is, talk to your doctor if the pain impacts your life, even if it's not to the level of the people in this video. You are worth a better quality of life.

[@LycheegoesSomewhere]

Yes! My experience is exactly the same. It was never as bad as it was for these women, but it did hurt really really badly. When I had my surgery they found small portions of endo tissue.

[@kaiaswrld]

@@LycheegoesSomewhere it’s probably the same exact level of pain they just suffer from it for longer amounts of time unfortunately.

[@idontwantyoutoseeme2087]

Thank you for saying this! I only learned about endo within the last couple of years and have wondered if I have it, but thought maybe not because the extreme pain didn't last my entire period.

[@Kewlausgirl]

My gyno said that with endo you can remove the tissue but it can come back. And with Adenomyosis, that definitely comes back and there's no way to fix that one. Guess what I have both. Yay lol

[@axorya5081]

@@Kewlausgirl Adenomyosis can be cured by removing the Uterus.

[@katyekatart4722]

Thank you for making this, as someone with a uterus, my “cramps” are so painful that NO MATTER WHAT I have that day, I HAVE to cancel. I’m screaming, yelling, and sobbing in pain and I can’t move. I have no idea *_who_* I am. I’m yelling, cursing, and even threatening people and myself because it hurts so much. Birth control has been brought up, but there is almost no doctor anywhere near me that is safe, trusted, *and* works on my age group. So for at least another year, I have to suffer through it and miss out on so many things, including activities I’m *_contractually_* bonded to attend. Living is so fun.

[@NinjaNatNat28]

PLEASE consult with your gyno first to ensure if the below option is the right option for you, because everyone’s different and will have a different experience. I have endo and the first thing my gyno said was to skip the sugar pills to stop having your period so you don’t have to go through this 10/10 pain for a week every month. If you do take the pill, that would be my suggestion. Just keep taking the active pills and ignore the sugar pills. I hope this helps 💕

[@bruh-mb1rd]

@@NinjaNatNat28 this is not good advice, please don't go around saying this. My cousin skipped her period like that for way too long and it gave her massive issues. If you want to skip your period, don't do it for more than 3 months at a time.

[@faerisoul]

@@bruh-mb1rd I also skip my pills and haven't had a period for a long time. You can definitely do it as long as your doctor signs off on it. I would not do it without consulting your doctor however.

[@milli4564]

I do the pill break but only every 3 or 4 months or so. If I try going longer than that I will get cramps and eventually bleed. But as someone with pretty bad cramps as well, those 3 months without pain are still such a blessing. Also thanks to the pill the cramps can be managed with pain killers now. That used to not work for me before. Do get a prescription for a pill that is suitable for long-term though. Cause some are not suited. Good luck ^-^

[@NinjaNatNat28]

@@bruh-mb1rd my gyno and my gp (that I see every other week) signed off on it 5 years ago and regularly checks on me. There’s heaps of different pills and everyone is different. Just because it didn’t work for your cousin doesn’t mean it won’t work for someone else. I’m not saying do it without consulting a professional or doing it for funsies because a random person on the internet said so. I will edit my comment to first say to ask your gyno first if it is safe for you to do so :)

[@thatamberchick]

I just had a hysterectomy due to severe endometriosis, after needing 2 blood transfusions within 6 months (one the day of surgery). Luckily, I’d had one child and wasn’t wanting another. Women, please take care of yourself. 💜

[@xxonspotlight]

You are so strong! ❤ keep on keeping on! ❤❤

[@thatamberchick]

@@xxonspotlight 💜 thank you so much!!! 💜

[@CarlyBarley333]

Thank you so much for making this video. I’ve had around 10 surgeries for endometriosis. Had my appendix, gallbladder, and spleen removed, a lobe of my lung and liver removed, had a bowel resection and had more cysts then I can count and one of the biggest barriers is lack of education

[@jasminewest8944]

As someone with endometriosis who has been fighting with doctors and nurses since I was 12 and still is to this day (will be 21 in a month). THANK YOU Anthony for bringing this to light. ❤

[@jooolz]

I was 17 when I was diagnosed through surgery to remove 2 cysts in my uterus. I noticed the first signs when I was 11 years old. None of the stabbing pains are worth living like this. Us women need more research, and support from people like you Anthony. Thank you.

[@joanna4655]

Also people to pay attention and believe us when we talk about the pain we are in!

[@CaseyJane_music]

I cried and cried watching this, something about seeing other people articulate exactly what you go through just hits me hard, this was so well done thank you thank you thank you

[@blaisewinterhalter2758]

Literally never even knew about Endometriosis until this video, and that's disgusting to me. Just because it is a disease that affects mostly women, we don't talk about it and don't discuss it. That's not right! Great video as always Anthony, absolutely fascinating

[@laurencringle3357]

It affects only women, not mostly

[@jackiejenson]

@@laurencringle3357 there are trans and non-binary people that have endo

[@wavewatcher_]

@@jackiejenson it affects most females There, fixed.

[@allister.trudel]

@@wavewatcher_ trans men and non-binary afab people might not identify as female, it's not fixing anything to say female instead of women, it's still disrespectful and erasing the suffering of many with endometriosis.

[@wavewatcher_]

@@allister.trudel you cannot choose to identify as female or not, it’s your birth sex. The fabric of your body.

[@juliatheyher]

As someone with multiple chronic conditions, I’m always so surprised and grateful when people learn and respond to conditions like this. We get gaslit and ignored and mocked so much, it’s amazing to see someone, anyone, take it seriously as the physical and mental impact it truly is.

[@kristybyrne978]

Thank you for covering this! It’s actually one in 9 now. I’m sure as drs become more and more educated on the symptoms it will be even more. I started having pain at the age of 10. My mother thought I was just trying to get out of going to school. I got my period at 11 and at the age of 12 I was put on the pill. I ended up on a strong pill at 50mg. A strength that’s usually for women in their 40’s who are post menopausal. I ended up self medicating taking panadiene forte all day every day to try and live a normal life. I’m now 43 almost 44 and was only officially diagnosed by laparoscopic surgery in 2018. In 2019 I had my second surgery and have been fighting for my 3rd ever since. I’ve been begging for a hysterectomy as I also have Adenomyosis but cannot find a dr who will do it. I’ve been put through chemical menopause for 6 months. It didn’t help at all and am being told that having pain when I don’t have my period is all in my head. I’ve now moved to a town where I’m hoping I can get a better medical team to help me with my journey. Too all the endo warriors out there, please know you are not alone. I know how it consumes your entire life. I’ve been through the lowest lows and tried to end it all multiple times. Please keep fighting for yourself. You are your best advocate! Don’t take no for an answer, don’t listen to the drs who try to minimize your symptoms. 60+ years ago we were placed in psychiatric hospitals for “hysteria”. The first known documented account was thousands of years ago by the Egyptians. If this was a male disease there would already be a cure! Keep fighting warriors! I am 1in9! End endo 💛

[@marox79]

If this was a male disease... so true.

[@elise6240]

I clicked this SO fast. Thank you for sharing this!!

[@itmaybeddie_]

Everyone had to it’s the best KZbinr

[@ellarodgerfouche1253]

I’ve had ONE really bad period as a side effect of birth control (felt like someone was stamping on my uterus, tying a knot with it and stabbing me all at the same time) at it lasted probably about 6 or 7 hours and didn’t go away with painkillers. I can only imagine what it must be like going through that on a regular basis. It pisses me off how silenced period issues are, because they are SO serious.

[@joanna4655]

I’m sure it is so painful. I’m sorry you and other women go through this. 💔

[@Smv09]

As someone who struggles with Endometriosis, it is actually so validating hearing others share their stories and that those who suffer with it are not alone. ❤ ❤

[@anoukschipper959]

i actually looked this up and went to the docter and shitt and now its almost certain i have this, thank you so much for bringing this to my knowing i never even knew this was a thing and i finally know what it might be, thank you so much

[@elkebelle8449]

I’m struggling with serious and unknown uterus problems. I’ve been to the doctors several times and they invalidate me and send me back home every time. I hope one day I can figure out what’s going on with me. This video made me feel 10 times better about my situation

[@palesa8777]

Ok what wrong is in pain or something else What I do is came with the sign symptoms and the "diagnosis" I actually took the time to research about yes sometimes it irritate my doc but it gets the job done

[@pbnjulia]

Keep advocating for yourself! It’s a discouraging process but pushing through is so worth it.

[@Nirian_vigora]

I'm going in for surgery in may, my whole life has basically been taken from me because of the constant pain. Even my gyn wouldn't believe me even tho I have a long history with PCOS. I never have wanted kids and I never will and it makes my blood boil when people try to argue with me. I might fucking die if I had kids (and I'd be a terrible mother) and people still try to argue with me, trying to convince me I want kids and that I'm not in pain.

[@mandeep3.14]

That sounds awful. Sorry you’ve gone through that.

[@danas5846]

sorry man. hope everything goes well for you

[@marah3298]

Good luck, I hope everything turns out well for you 🍀

[@victoriamacaluso5726]

Just wrote a comment about how Anthony should do an episode on Childfree by choice people!

[@clay3504]

Have you done a video 'a day with child free by choice?' I've decided to be child free and I want to hear other people's thought processes to make this decision or maybe even a video of people on the fence with wanting kids

[@pennylanekane]

Not having kids is unselfish. I have kids and support people who choose not to have them because if you can logically and emotionally be honest with yourself that kids are not for you that’s some serious self awareness! Just know I support your decision. I love my children and literally feel like I was made to be a mother despite not wanting children ( chose to keep mine /surprise pregnancy on birth control) I somehow was naturally a mother. 😄 I know people who shouldn’t be mothers or fathers. No one can make that decision but you and I don’t understand the judgement behind the choice not to. ❤️love to hear their perspective.

[@ericahenderson7262]

I have had endo. since I was 11-12 y/o. I had multiple surgeries and, finally, a hysterectomy at 23 y/o bc the dr thought it would remove it for good. But it didn’t. I am 38 now and it broke me down. I’m much better, mentally, now. I still have surgeries every year or two. The blessing of it? I have the blessing of fostering children.

[@dcsox33]

Yeah there is no cure unfortunately.

[@NinjaNatNat28]

Did the hysterectomy help with the pain at all? I’m at the stage of asking for one just to be able to live.

[@aaronjames9365]

@@NinjaNatNat28 unfortunately, hysterectomy isn't considered totally effective at treating endometriosis because it won't help with any tissue around the abdomen that has developed. That said, you won't have a uterus to cramp anymore, so if your endo is concentrated around the uterus, or if most of your pain is from uterine cramping (perhaps made worse by inflammation from endo) it may help. That tissue will still act under the influence of hormones and bleed each month. Have you tried Zoladex? It's currently considered the most effective treatment as it starves the endometriosis of oestrogen for up to 3 months. Just thought I'd put it out there as lots of doctors don't know about it :-).

[@ericahenderson7262]

@@NinjaNatNat28 Honestly, I had just nearly a year of zero pain. When it came back, my dr kept telling me that it was okay, it’s just everything healing up. But I told the Dr, “look, my friend, it’s the SAME THING! I know my body!” He told me that he would schedule me for a lapro. When I came out, he said the endo was all over the place. He was dumbfounded! But he knows when I tell him it’s time to be carved. He calls me his 🎃 bc it always is in October-December when I need to come in for my guts to be cleans out. Haha. Ya gotta find humor it the hard, bad and ugly.

[@ericahenderson7262]

@@aaronjames9365 AMEN TO THAT!! Not having a period has some perks. Although, the constant menopause sucks. My dr. began a lot of studying and research bc of my condition/ results. He now treats first with progesterone and removes estrogen. The Progesterone is shown to eat away at the endo. Whereas estrogen feeds it.

[@emma-hs8fc]

My mother had this and it was so consistent that she would have it almost everyday so much she had to get her uterus taken out, I’m lucky to even have been born before that

[@galimacias8940]

You should do a “I spend a day with people who suffer from IBS”. Would be amazing to see more content about it :) ps: love your videos

[@nikkibaxter5550]

IBS is also connected to having endometriosis, many people have endo have IBS, and most of the doctors told me the pain was due to IBS, they did that to me for over five years, one day i went to A&E they thought i was having an eptopic pregnacy thats when they discovered the endo.

[@vella8650]

I HAVE ENDOMETRIOSIS! I never thought I would see a video on this on your channel. It feels so good to be represented!

[@Rock_Lee_The_Handsome_Devil]

I'm so glad to see these topics being discussed, these conditions can feel so isolating! I would love to see a PCOS episode

[@jackiejenson]

Me too! I have pcos and I think it would be very beneficial. 💕

[@sharntelleireland9265]

I’m always so worried about telling jobs that I can’t come into shifts when I’m on my period and being told that it’s not a good enough reason not to come in. As someone who’s also allergic to anti inflammatory medication it makes me feel hopeless

[@breebeee3]

I cried when I saw this because I’ve been watching your videos for a while and have loved them and never in a million years did I think you would do one on endometriosis. So thank you for that as someone who has struggled with it for so long hearing it outside of our community is huge! The only thing is not clarifying some things can be also damaging to this community. A hysterectomy is not a cure for endometriosis (it is a cure for Adenonyosis though) endometriosis has NO cure. There are treatments for it however these treatments are not successful for everyone or a good lot of us. I’m so happy for these women that have found relief from their pain and endo but that does not mean this is the story for a lot of us. Some who have been told a hysterectomy is a cure or can fix them find out after that the endo is still there even after. It can produce its own estrogen. I do want to thank you as I think your content is amazing and really does shine light on issues that for so long are misunderstood or left under recognize. I just don’t want more misleading information in our community as we have so much. Dr still to this day give us wrong information about endometriosis and it’s sad and very dangerous to our health and mental. Bree

[@brownkiwibird]

My sister has been suffering from a severe form of Endometriosis since she was about 17 or 18. It is a debilitating affliction. She couldn't go to university or properly start to make her way in life. She was sick for months on end. At first people thought it was an anxiety/stress issue. Then they thought it was a stomach issue. Then it was a neurological one. She saw doctor after doctor who told her to get xyz surgery that would cure her for sure. She finally got into contact with a hormone doctor in Switzerland who happened to be with the Endometriosis Centre of Geneva. She was finally listened to and given support for the next steps of her journey, which means finding a mix of medicine that can help her live a healthy, normal life-style. The fact that this interview brings light to this destructive affliction is much appreciated. There are so many people who suffer every day and whose lives have been turned upside down. There's a lot yet to be done to fully understand women's health. All I want is for my sister to live a normal, happy life free of pain. My thoughts go out to anyone who is dealing with endometriosis.

[@cailena8428]

THANK YOU SO MUCH FOR DOING THIS. I recall throwing up and passing out during my first period because my body was in shock from the amount of pain I was experiencing. It’s heartbreaking to know that young girls have been conditioned to think this amount of pain is normal. Nobody should have to endure this, my heart goes out to everyone managing.

[@iiivesa99]

i’m so glad these ladies didn’t let the pressure to give birth or have kids get in the way of their wellbeing and pain management. my thoughts go out to anyone living with chronic pain, y’all are so resilient 💕💕💕

[@ithinkimoutofmayo]

My gynecologist said that I may have endometriosis because so many of my symptoms line up but I’m terrified of getting a diagnosis because the process of it seems scary. But living with such severe pain that can only be relieved by an extremely powerful painkiller makes me miserable. Thanks to this video I know that I don’t have to live like this and I’m thinking about taking my first steps towards getting a proper diagnosis. Thank you Anthony for shedding light on this topic ❤️

[@jessicasolari9444]

I have endo as well and I completely understand how scary it can be. I’m here for you if you have any questions or need a friend along the way.

[@eideanbotha8655]

I wish you all the strength you need. I was only diagnosed because of emergency surgery. If you feel that surgery scares you, try other methods of handling endo (like diet) and see if that helps. The surgery itself isn't that bad, I personally feel the cramps were worse. And if you go into it wanting to have the surgery and prepared, then I think you will recover from the emotional side of surgery a lot quicker too. Wishing you all the best.

[@D_Dizzy_]

If you don't mind me asking, what do you take for pain relief? I take Tylenol 3 but it doesn't really work and that's all the doctors are willing to give. I feel I'm not being believed at just how much the pain really affects my life. Curious what works for you.

[@Tyra94]

I´m thankful for my biology teacher (male) in highschool. During sexeducation we spoke about periods and he stressed that if we have the impression we bleed to much or experience pain which we have to manage with medicine to go about our normal routine we should go to our doctor. He also made it a point to tell us how important it was to go to a gynecologist regularly when sexual active. I'm monitored since age 17 for endometriosis with regular internal ultrasounds since i had heavy periods and really bad cramping. since my pain can be managed by birthcotrol we have not made the decision for surgery jet but will if my symptoms should return/get worse. It's so important to bring this condition into the light. And to spent more money on research to maybe oe day find a treatment other than invasive procedures.

[@KiDDxoRaInBoW]

I'm so relieved to hear other people stories about endometriosis. It took me 5 years to get the recognition of the doctors about this disease. Still don't have the full diagnosis, because the doctors think the surgery is too intense for me..

[@Rosiepotton]

Thank you for doing this because it takes so long to get diagnosed and we need to teach more people about this ❤️

[@zuhavcr]

yeah :/ i JUST got diagnosed with endometriosis a few days ago after 2-3 years of awful awful pains that left me unable to even breathe sometimes. i'm glad i finally know what it is.

[@Rosiepotton]

@@zuhavcr even the doctors I have been to don’t even know the basics of endometriosis or it’s the last possible thing that the excruciating pain is

[@zuhavcr]

@@Rosiepotton i had so many problems with seeing doctors and trying to understand why i was having pains. it was a terrible experience. big hugs to you 💗 it's a process and i hope they can help you

[@anniechamber8995]

I feel this, still waiting for the gynaecologist to call back so I can finally have an appointment after 6 years trying to find answers for my excruciating pain😢❤️

[@Rosiepotton]

@@zuhavcr thank you so much, big hugs to you too ❤️

[@Alex-it8td]

sobbing I have this and its so hard. having something so natural to your body literally poison you with no cure is debilitating

[@MorgahnaGodwin]

This was super cool to be part of. So many good points 🙏 Thanks Anthony and team. Appreciate you putting a spotlight on endometriosis for the 176m humans with a uterus 🤘🙏

[@christianrivera9998]

As a man I'm glad to learn about this so I can hopefully be an outlet for someone going through this. I can't help, as I'm not a doctor, but at least I can listen and try to sympathize with the sufferer.

[@_c0rrupted_pixel.z974]

I personally do not struggle with this, but I can feel for these ladies when they speak about this. Doctors need to wake up and care more about women's health and get more women doctors into the field

[@Maria_745]

Even though I was aware of endometriosis and how it feels I had no idea how it actually works inside the body. Hearing a description from regular people in plain language is one of the reasons these videos are so accessible and informative

[@wintershock]

As someone with a uterus, I’ve had some experiences where my periods weren’t normal. Up until recently, I would have excruciating pain that screwed with my body temperature for some reason. Part of me would be freezing which is unusual for me and my abdomen would feel extremely warm. It sometimes got to the point where my poor brothers would have to bring me water because I couldn’t move. Eventually, two or three years ago, I went to this one guy and he said I had too much estrogen and adrenaline. Turns out my body was screwing me over. I was supposed to take pills but somehow things got better without them. Now my body temperature is just messed up and I’m more likely to feel overly warm or cold. Obviously, something like that isn’t overly normal and I didn’t even know that until I got my blood tested. There is so little education around periods. All we are taught is there is blood, a little pain, and that it ejects our uteruses lining.

[@savingplayer1613]

Glad these women are speaking up and out for women's health ♀️✊🏽

[@dsr.w]

I have suffered a lot from having really intense periods and I definitely think I have issues stemming from that. It's a shame that the mental and physical effects of endometriosis and just periods in general don't get talked about enough. Thank you for this video, Anthony!

[@SorceressJade]

Wow, timely. I was diagnosed with Adenomyosis the day this aired and hearing from these folks is calming. Thank you.

[@zetagundamzz]

Thank you so much for doing this video. The more people hear our stories, the less it will be misunderstood and we can get that average diagnosis time to go down. 7-10 years is way too long to live with this disease without properly treating it. And not treating it can cause permanent damage to your body. It took me 20 years to get my diagnosis and my body is damaged. Sure I got my surgery, but now I'm trying to reclaim my broken body. This shouldn't be happening.

[@tricitydrip8928]

Really glad you're shedding light on this topic. My mother and an old friend both have endometriosis, and they've had a hard time with doctors in the past. I couldn't imagine suffering so much and not having a proper solution.

[@kayeash5168]

It’s so nice seeing people talking about this. I have had endometriosis for as long as I can remember and I didn’t know it wasn’t normal. I thought that everyone was in unbearable pain and constant bleeding on their periods. I’m so glad I was finally able to be seen and understood and got treatment

[@amyandsteveo]

Endometriosis has affected me horribly throughout my life. Thank you for bringing this to light. It's an issue that not enough people know about or understand. I send love out to anyone who has ever, or who will ever, have to deal with this...I pray medical advances can happen to know what and how Endometriosis happens.

[@materialgorlll2647]

I have endometriosis and I’m 15, it feels really gratifying to hear older women’s stories beyond my mum and grandma. I’ve seen like 7 doctors already and luckily we have found a treatment that’s been working well so I don’t have to have surgery just yet but that is likely to happen in the near future. As this point I can’t go to school, see my friends, even just have the motivation to get out of bed. I would just like to know how to get my life back on track, Like I have exams next week and I’ve not been in school in 2 months 😅

[@Borderinglines]

I love the way he conducts his interviews, and the fact he gives people suffering from x health issue a platform to tell their experiences. I would love to see him do one on tinnitus.

[@woosanshines7710]

TLDR for those who don't want to read someone's story; endometriosis ruins lives This video was both so relatable and comforting, so thank you so much for taking the time to have a deep, genuine conversation about something so many people deal with

[@madielaine8875]

honestly hit when you said it's just as common as asthma and diabetes with such a low view count, not that views matter but it says something about the topic from only having around 500k views compared to other videos. so thank you anthony for educating yourself and us on topics that should be talked about.

[@katalyst13x]

as someone who struggles with endo daily, this makes me feel so heard. thank you for this video anthony

[@JarmezGD]

Personally I had never heard of endometriosis, so I’m glad you brought this to light for me, very eye-opening.

[@soslowclo]

I don’t have this so I cannot imagine, but I feel so hard for the people who do. I’ve had friends and coworkers struggle to push through their flare ups. I’m glad this is getting some more recognition!!

[@lashaesmith3440]

I had a full hysterectomy at 25. Menopause at 27. I'm 33 now. I'm having digestive issues now. My stomachs covered in scar tissue. Endo all over my insides. Scars are real. And they hurt.

[@LucyBriggsMusicProduction]

As much as I hate that people also experience this, it is also nice to see other people who also experience endo and validate that it’s not just “being dramatic” or needing to “toughen up”

[@Nliag266]

Anthony @AnthonyPadilla !!Please interview people with PMDD!! Premenstrual dysphoric disorder it’s a more extreme form of PMS for women

[@BG-ln5sc]

I have never commented on a video but this gives me so much validation. My experience has been a nightmare to navigate. I had sepsis and just thought it was “period pain”

[@makototakara7025]

I like it how Anthony shows his respect and empathy towards these people.

[@spedupsongs5609]

hes so polite when speaking, he doesnt offend anyone with any of his questions cause hes so respectful about it, genuinely nice guy

[@olibubs_]

id never heard of endometriosis before this so thank you for helping educate people !! for a future episode, id be very interested in hearing about people with dpdr (depersonalisation-derealisation disorder) as i never see it talked about and most people dont know what it is. thank you for this series anthony !!

[@RBRCR-se2gz]

yes!! i remember seeing dodie’s video on dpdr like 4 years ago and thinking “how have i never heard of this before?” because she was describing this feeling i’ve had most of my life. i don’t think i’ve heard anyone else talk about it since, even though i feel like dissociation is so common (especially during covid time). i would love a video on it

[@olibubs_]

@@RBRCR-se2gz yeah its definitely a struggle trying to get any kind of support because nobody i know has actually heard of it, despite alot of people (or at least the ones im around) mentioning experiences similar to it

[@FrogglesMcBoggles]

i'd love to see a video on it as well! i'm not sure if i have it, or just anti-social personality disorder and schizoid personality disorder and i think it would be really beneficial to see maybe how it compares.

[@bigmannoxi]

My best friend has endo, and it’s horrible to see her in that amount of pain at school when there’s nothing I can do to help her. I hope that people can become more aware of this disease so we can all fight to help those suffering from endo

[@lemurlover7975]

You can help her by being kind and giving her moral support. That's not nothing, it's something.

[@subiesazzy]

THANK YOU for doing a video on this. I am living with this every single day, all while being denied, even by my own family about what I am feeling. Every day I am just trying to get through the day and manage the pain. From treatment after treatment and surgery after surgery with no avail. Dismissed by doctors and Healthcare professionals has a huge impact on finding a solution. The fact that someone with your size of platform is trying to bring light to these things is what we need. I know that it is a futile thing for any change to come to this problem with endo but it's nice to see that there is an effort. We have been living with it for years with no change and probably will still be this way for a while. I had it since I was 16 and I'm 35 now and the road will be hard. And I know I am also speaking for many others, but we are tired, and we are in the shadows hoping for help and relief 😞 I want to be able to finish school in nursing to be able to bring change and my help to women's health but even with that attending school with endo is extremely difficult. I am just praying I can scrape by to be able to be supportive in women's health because this is what we need but again getting a career when there is this much pain is hard 😢