James Black - Vascular Management in Ehlers-Danlos Syndromes

[@chaverim5189]

Thank you for the interesting lecture. May I ask a question about it. I do suffer from several diseases: a chronic pancreatitis, a pancreas malformation, a pancreatic insufficiency, a gastroparesis, a chronic pain syndrome, the arteria mesenterica superior syndrome, a prinzmetal angina pectoris, a heart insufficiency, a heart valve insufficiency, the ehlers danlos syndrome type vascular and a recurrent subvolvulus. We don't know if these diseases correlate with each other or not. My doctors can not really tell if they correlation with each other or not. If you have any links or information about it, I would be very grateful. Sorry for my question I hope it was not too long. Thank you for the great podcast and the explanation.

[@NNCCCC63]

Excellent presentation, thank you.

[@teresareinert8271]

I need to find a knowledgeable Dr to check out why my veins are not able to take needles without what they called blow outs. I had to have a port because it’s so bad, but people haven’t told me how to get help for the issue. I and eds.

[@jamiehamilton675]

It was mentioned that procedures should be done in a hospital, what about a Colonoscopy? I had 7 done in surgical centers and one in the hospitals and one rhet was on the surgical center they tote my bowel. Apparently it wasn't that bad because they sent me home but they told me and said they had to close it up and showed me a picture and told me to come back if I feel dizzy or experience bleeding. Also my mom got her gulbladder removed in a cervical center and ended up being squadded over to the hospital for an emergency surgery because her liver ruptured which left her on life support a while.