“You don’t look sick.” Well, you don’t look ignorant but here we are.
@salenebrom64764 жыл бұрын
Taytor Tot 🤭
@tanvikhare97104 жыл бұрын
Hehe I like this
@annieinwonderland4 жыл бұрын
Yep I use the same one.
@coral54894 жыл бұрын
That’s a bratz quote...
@spaghettiwithlotsoforegano59734 жыл бұрын
Someone’s been watching the bratz movie lmao
@stephanierivero40784 жыл бұрын
My disabled son with a connective tissue disorder fakes it. He fakes that he's well every day because he's five and doesn't want to miss out on the world.
@tealkerberus7484 жыл бұрын
Stephanie Rivero I fake being okay every time I'm in public. Not always completely convincingly, because faking okay is tiring and one of my issues is persistent fatigue. But your son is far from alone here!
@peacelove89254 жыл бұрын
That's incredible strength your son has... hugs and kisses from my fam to your fam
@chasehughesofficial4 жыл бұрын
Stephanie Rivero God bless you both. That pulled at my heart.
@madisonbrady1384 жыл бұрын
crying rn, too real
@utahgirl16104 жыл бұрын
Peace Love He is still little. Give him time ;) Children are generally blessed with more insane amounts of lil kid energy!
@cj38024 жыл бұрын
Jessica: “am I looking my best right now? no” Also Jessica: *looks like the muse of a painting*
@jessicaoutofthecloset4 жыл бұрын
ha ha you are too sweet, thank you!
@thiccpersephone47834 жыл бұрын
Literally my thoughts exactly lol
@weasleynmunatoti4 жыл бұрын
She is too powerful if this isn't even her at her prettiest. We are not worthy seeing her at her actual best
@saramcnamara96934 жыл бұрын
Facts 🙌
@shayleeoloughlin51354 жыл бұрын
We are not worthy of viewing this angel in her true form
@idabjernemose4 жыл бұрын
Im autistic and people often say “you dont look autistic”, how TF am i supposed to look autistic?😂
@Mooshkia4 жыл бұрын
Same! It's so annoying
@dressup1nyou3 жыл бұрын
SAME I hate people who say I have a cousin who is autistic so I’m the real professional on autism and you don’t seem autistic
@Darvint4133 жыл бұрын
This happens to me too! I think it usually happens to women, maybe because we don't have any representation in the media
@elzed6843 жыл бұрын
Same!!
@ferortiz413 жыл бұрын
THIS. I always get people saying “well, I have a 5 year old nephew who is autistic and you look nothing like him”. I once had to deal with a medical student saying that I couldn’t be autistic because he saw me at a karate class acting “all normal” so since he has medical training he is obviously right 🙄 I was like dude my psychiatrist thought I had ADHD for years before they found out I was misdiagnosed so yeah, you can totally tell what’s my health situation from saying hi to me at a karate lesson 😑
@PauliEvansBlack6174 жыл бұрын
This whole "faking it" thing also creates this devil in your shoulder that makes you constantly second guess if you are "ill enough" or if the pain, discomfort, etc you are feeling is "real enough" to deserve treatment or to look for help. It is ridiculous.
@emopeterparker74 жыл бұрын
precisely. it's a very very VERY damaging mindset ://
@Musemistress4 жыл бұрын
I have to take a crutch with me on my commute to work every single day for fear people will judge me for sitting in the reserved seating for those with mobility issues. I don't NEED my crutch all the time. I can walk some days just fine without it and only feel a twinge. But I also cannot stand in a moving vehicle without suffering the consequences later due to my knees cracking at every turn and my spinal muscles straining from being on my feet longer than 10 minutes. So I need to sit and, in a crowded train, finding a seat at all without that damned crutch is nigh impossible. I have found NO ONE will stand, even if I am sweating from the pain or whimpering or falling flat on my arse. But present the crutch, and up come the butts off those woven seats and so many make it their duty to make your day a bit easier while loudly judging those who do forget I exist anyway (the usual jerks, you get them everywhere). Suddenly I am welcomed to sit and get a small smile and every day I get a new person asking why I need it at my age. I am even scared not to bring it to the shops as I need to sit a lot and people will NOT stand if the bench is full...unless you have a visible crutch. I hate it. but it's needed :(
@miraclewhip56724 жыл бұрын
Paulina Arango am I going to be fired for having to fallout due to my disability bc I’m not “disabled enough?”
@mangowes4 жыл бұрын
This is really accurate. My whole life is a big question rather i am depressive or not, cause "you look so happy" or ADHD cause "you're so smart" and look at me now, extra depressive and extra anxious
@saskiadavies1114 жыл бұрын
That one gets me a lot. I realize it really is that bad when I can feel hot spots where the pain is worst and other people can feel them, too. Or when I'm trying to do something with my hands and they stop functioning. You cannot power through some things and it feels weird not to be able to see anything clearly wrong.
@WillowWispGaming4 жыл бұрын
Honestly how privileged do you have to be to start claiming that someone has “too many” illnesses and therefore must be faking??
@denvertikky40884 жыл бұрын
I describe myself as a bingo sheet, I am not faking my life is so surreal I believe the aliens manipulating the world were having fun with me
@sophiehanna20694 жыл бұрын
When the illness doesn't add up, when there is no medical proof when the stories dont match oh and when Munchaeusen (idk the right spelling) Syndrome is a thing.... I know many people who probably have their own drawer at a hospital it is possible to have many illnesses but they need to make sense and have the stories consistent
@adri56404 жыл бұрын
lihshi illnesses doesn’t necessarily = disabilities. An example in Jameelas case is she said while filming she fell breaking her nose, 3 ribs, her elbow, chipping a tooth and getting a concussion but continued filming anyway yet when watching the videos it’s clear that at very least some of these things aren’t true as there was no bruising around her nose which also looked fine, she was able to walk and sit upright which would be near impossible with 3 broken ribs and was able to bend and move both of her arms again inconsistent with breaking an elbow
@dankxng4 жыл бұрын
I don't believe Jameela Jamil.. Not because it's "too many things." That's ridiculous. But because of the inconsistencies of her stories. For each illness she reports, there's about four to five different variations: She was in a wheelchair for a year, she was in hospital for a year, she used a cane for a year... She's not even consistent with her stories which makes me draw the conclusion she is lying. She's "deathly allergic to peanuts" and then is shown eating peanuts on her Instagram story a year later... Makes me think she forgot to keep track of one of her lies. My favorite is the one where she says she broke several bones and a rib right before taping an interview years ago and then someone found the old footage of her talking and moving and... No, she didn't. She wrote that off as "adrenaline healing her broken bones momentarily." Yeah... Okay, Jameel. LOL. I don't think JJ is the same as the woman who made this video or anyone else with unseen medical conditions and disabilities... I think JJ lies constantly and with the internet it's easy to line up all the inconsistencies. So I think it's important to focus on why there are those of us that don't trust her specifically.
@dreamlessdemand4 жыл бұрын
Daniel Edgar no it’s not fair to focus on just those who don’t trust or believe JJ because that would be biased. i believe her. i’m not saying liars don’t exist but i do not believe for a second that she would lie about anything, especially as serious as the things you are implying she is lying about.
@DominosAndHearts4 жыл бұрын
I was getting out of a car and into my wheelchair once and this old guy said loudly "laziness isn't a disability" and i said back, maybe louder than i should have "but spina bifida is" i still remember him walking off rather fast, red faced 😅😁
@user-jy1bc3gw2q4 жыл бұрын
Hahaha no, you should have yelled it just as loud as you did. It was a learning experience for him, and I don't believe in protecting people from humiliation when they are the ones making fools of themselves. good job. xD
@redacted50784 жыл бұрын
What the heck
@missytyrrell14 жыл бұрын
Fellow spina bifida person here. I get the side eye all the time when we pull into disabled spaces. Getting out of the car and walking with crutches sometimes makes them reign in their disapproval, but not always.
@irishberries4 жыл бұрын
Kickass and hilarious retort! 🤘🏻
@leggoyourego29814 жыл бұрын
should have said "ok, boomer"
@katieluecht3 жыл бұрын
I have heard from multiple people, "you're too smart to have ADHD," and, "You are too good at managing a crisis to have anxiety," and, "You laugh so much. You're too happy to have depression." It's like they don't expect me to have developed coping mechanisms or taken medication so I can actually function and live my life.
@largeinflatedbox3 жыл бұрын
its ridiculous how people expect 'oh you have x? you must never be happy or be able to function'
@LisaJPStuff3 жыл бұрын
They've never had to develop a sense of morbid humour to cope with constant pain; or hide anxiety with giggling (a nervous and trauma response); they operate from a privileged position of happy ignorance. I hear you and totally understand.
@cloudquest80063 жыл бұрын
"you're too good at managing a crisis to have anxiety" is the funniest thing I've ever heard because as it turns out, when like 70% of your waking moments feel like a crisis, you often get really good at weathering the storm/doing tasks through it and making it seem outwardly like everything is fine. who'da thunk. this is my normal. i've done full 8 hour shifts at work with the inside of my brain running on DEFCON 1 procedures almost the entire time for no reason. of course by now it's likely i'd have figured out how to suppress it. statements like that really show that they're not even *trying* to understand us or what we go through. it's not simple ignorance, it is a lack of willingness to engage in empathy with people who are unlike them. they're in no place to make judgments about if we're "really" struggling with whatever we have going on, because not only do they not know anything about it, they actively don't want to.
@Trollestiatumblur3 жыл бұрын
That ADHD hit home. I grew up a “gifted” child (as most neurodivergent people) and it was so frustrating hearing “you’re just not using your potential” and “you’re just being lazy” “you don’t seem very hyper” “you focus on things you want to focus on!” “But you can sit for hours and read books! You don’t have it” like stfu. God I WISH ADHD was just I-fidget-sometimes-and-can’t-pay-attention. Life would be 100% easier and I wouldn’t forget to do basic things like eat so I don’t pass out and go to the bathroom. I would be able to socialize and have friends. I wouldn’t tic or dissociate. I wouldn’t of needed an aid when I was in high school or been in special ed classes. It’s so irritating because I have multiple disabilities (mental and physical) as well but I only tell people about my ADHD to explain most of my behaviors. If I told them everything that is going on, I know I would just get told I’m faking it because “I don’t look like somebody who would have any illnesses.” Sometimes I dread the day I have my service dog because I KNOW I’ll get a lot of shit everyday. I hate it here
@SamirCCat3 жыл бұрын
@@Trollestiatumblur I'm 33 and only now getting an ADHD assessment done (still waiting for the result). Because I did well academically (I'm intelligent) not me or anyone else though it could be ADHD too. But my bipolar disorder only explains party what's wrong with me, so there is definitely more in the picture. I've not lived a "normal" life since I was 16 because of my illnesses, never been able to work, earn money etc. Still my neighbours ask me what I work with and I just don't know what to answer. Living on disabilities when you "look fine" is difficult. I hate these invisible walls that mental illness gives you. You are unable to be yourself because you have to "pass" as "normal" in society, and then people don't believe you when you finally tell them you're ill. I hate it!
@aghost94214 жыл бұрын
“You’re too young to be in pain” and “You’re too young to be so tired, wait until you’re my age” is just some of the bullshit I’ve gotten, even from family. Bottom line is, you don’t know another person’s pain and you don’t know what they’re dealing with in their life. Everyone suffers in their own ways, everyone’s pain is valid.
@jesscovino4 жыл бұрын
Especially from family. Being chronically ill causes me such guilt from inconveniencing my family and coworkers. Even though logically I know I shouldn't feel that way. Even though my illness is comparatively minor compared to so many others'.
@SweetDemongirl974 жыл бұрын
My boss used to tell me to lift things heavier than my capability. I'd tell her I have severe back pain ( I have scoliosis) instead of saying she understood my boss went " you're too young to have back pain." I didn't want to argue with her so I did the task. Of course I ended up more injured afterwards. I wasn't able to work for a few weeks, because the pain was so severe I couldn't walk. I should have went with my gut and still said no. I just wish she didn't tell me I was too young to have pain to begin with.
@Bushwhacker-so4yk4 жыл бұрын
I hate “you’re too young to be tired.” *Babies* get tired and no one is saying that to them, so why on earth is it okay to say that to someone in their 20s?
@Syurtpiutha4 жыл бұрын
I spent a lot of time pushing past my limits because I didn't want to feel like a burden to others. When I was exhausted I considered myself lazy. Part of that was refusing to acknowledge my disability as a disability. Part of it was not realizing my exhaustion had to do with my disability. And part of it was being deathly afraid that people would see me as lazy (an accusation I am still extremely sensitive to). So I had to reevaluate a lot when I almost burned out at age 25. Learning to set clear limits for myself helped. Clearly communicating helped. And working with people with similar disabilities really helped a lot. And one of the things I learned is to listen to the opinions of those with different experiences and take them seriously.
@bighams694 жыл бұрын
@@SweetDemongirl97 never let your boss do that you ever again. Your own life and health is so much more important than keeping up appearances for you superior. Bosses will always try to push you harder, no matter your capability. It is our responsibility as workers to say "stop".
@annonimooseq12464 жыл бұрын
“Being mean to ‘fake’ disabled people doesn’t make you an ally or hero to ‘real’ disabled people,” no, I think that it generally makes those “real” disabled people afraid that you’ll decide that they’re faking next
@GoldenBearBecca4 жыл бұрын
It 100% does. I have 2 different chronic illnesses and I already feel apologetic and guilty about having things changed or altered for me. When I heard about this issue, I immediately wondered who in my life might think I’m faking it or exaggerating. That’s my fear because I feel horrible most of the time but I’m FAKING trying to feel better. Nobody wants to be the mopey, sad, sick person.
@destroyraiden4 жыл бұрын
I've had family members actively question it straight to me! They're like "do you have that one disease that causes you to make stuff up?" I'm like no I've been dealing with this since I was younger then you! And would press on with their insistence I must be faking it! Ex friends also can't understand they hear my symptoms listed out and think no way you look healthy. I feel awful having to have accommodations done.
@annonimooseq12464 жыл бұрын
destroyraiden it’s amazing how much unnecessary guilt can come with having an invisible disability/ disorder/ disease
@amazingabby254 жыл бұрын
It does. However, people who fake or even exaggerate. Especially people who do have chronic illness but make it more serious. They DO do harm to people with disabilities. I have a very rare genetic called NF1, I don’t give a fuck if people,think I’m faking because who FUCKING cares. If they are thinking I’m faking it doesn’t matter. However, I’m annoyed that often people take over the space of people with more serious disabilities. As people with very serious disabilities are too busy fucking surviving to be advocates. And think some are giving us a bad name, because of how they come across, and it leads people,to think they are faking. And then everyone faking
@Aspie_Aunty4 жыл бұрын
I used to worry about judgement from strangers and "co-worker friends" regarding my perceived "lack of disability or pain" but I eventually came to the realization that the only person whose opinion on my health actually matters is myself, my loved ones and my general doctor and specialists, and FUCK the judgement of strangers and so-called friends who aren't actually friends, I know I'm disabled and will always be so and I should put all my energy into making my life better despite the handicaps life threw at me, and I also embrace my uniqueness to say a big "fuck you" to all the people who tried to tell me that I will never amount to anything and should just kill myself (IMO this is a far healthier mindset for anyone be they disabled or able-bodied rather than worrying about judgements by ignorant jerks)
@Marigold110374 жыл бұрын
Jessica: -Eyebrows done -Eyes and Lipstick done -matching dress (?) To headband -cardigan that pairs well with headband -necklace that goes beautifully with the dress neckline Also jessica: "I'm not looking my best today" Even if you don't feel amazing, please know that the people supporting you think you look lovely today! ♡
@emmynoether95404 жыл бұрын
+
@Marigold110374 жыл бұрын
@@emmynoether9540 ?
@Delicate_Disaster4 жыл бұрын
Right!? When I say I'm not looking my best it really means "yes, I'm aware I have 3 day old makeup on and my hair is greasy and unbrushed. I dont need you to point it out" which usually comes when my migraines knock me down for a few days or when my heart keeps me in bed for days. Her version of not looking her best is my version of glam lol
@unepommeverte174 жыл бұрын
@@Marigold11037 the + is a way to say "i liked this!" in a way that the "top comments" algorithm understands because the thumbs up button doesn't really do anything. i think the vlogbrothers might have started it
@MiaraAvalin4 жыл бұрын
She looks absolutely amazing. I know she suffers with a lot and that she can still manage to do all this inspires me. I know she doesn't want to be an inspiration specifically, but when I'm at my worst (unable to get out of bed because of pain for example) seeing Jessicas videos help me see that there are less bad days and that it is still worth fighting
@nataliebushman10493 жыл бұрын
The "standing up from a wheelchair" fear is something my mom actually deals with. She recently had to ask for a wheelchair in the SLC airport because it's so big, and she was scared people would notice that she could walk after the wheelchair or that she was walking before getting on the plane. What people can't see is that her walking gets progressively more painful. So walking a mile just to get to the baggage claim wasn't an option. Plus flying makes her feet worse and our flight landed at almost midnight (after a full day of walking). Sorry, that rant is mostly for my sake. Its frustrating to see someone i care about be afraid on top of real pain that she can only do so much about
@ettinakitten50473 жыл бұрын
I have joint hypermobility resulting in chronic pain, and I can relate to this. I felt like such a faker, walking several blocks to a grocery store only to use a scooter in the store, but what people don't realize is that a) walking that far had gotten me to my limit, and b) standing still is worse than walking for me.
@hopegate96202 жыл бұрын
Traveling while being disabled can definitely be horrendous. People don't believe you without a visible sign of disability. I've given up on traveling without crutches because even if I don't always need them, if I have to stand in line because people don't let me skip ahead and don't believe me, I will definitely need my crutches to walk by the end of the day. And if I do take them, then I probably will be able to walk without them by the end of the day if it's a good day.
@ACAB.forcutie2 жыл бұрын
This is why I rarely used my wheelchair outside
@SonsOfLorgar2 жыл бұрын
It's so frustrating that people need to be taught to mind their own buisness re illegal "policing" of other peoples disabilities the hard way.
@xSwordLilyx2 жыл бұрын
I know someone who needs a wheelchair generally who has climbed a friggin mountain
@ladymirth4 жыл бұрын
People don't seem to realize that disabilities and chronic illnesses never show up alone to a party. They bring an entire clown car of friends. Which means if you have one thing wrong with you, you'll soon have like 50 things disabling your life. And yes, the situations that you consistently experience as a result are unreal.
@masoncampbell9714 жыл бұрын
ladymirth yep it sucks I started with allergies as a child, then came eczema, then asthma, then celiacs, then RA and scoliosis all because my immune system is hyper reactive and attacks itself, I dread what system will be its next target.
@BlessicaBlimpson4 жыл бұрын
Amen!!! I have RA, fibromyalgia, migraines, depression, seizures, eczema, hypermobility syndrome and the list goes on... it’s almost like doctors would have to go to an absurd amount of school just to... oh wait.
@sebarus81084 жыл бұрын
Exactly. After having heard the "no one person can possibly have so many things wrong about them at the same time and seem fine" thing a few too many times, I've just stopped telling people that there's anything wrong with me unless it becomes absolutely necessary for them to know
@lillynichols98844 жыл бұрын
@@sebarus8108 have you experienced the; (hushed tones) "Darryl just told me about your (insert medical condition here) I had no idea! You're so brave. No really, I mean it! You're such an inspiration!" I realise that all falls apart if you don't know Darryl - but you get the idea. It's the flipside of "She's faking it, you know. She's just doing this to get attention." You can only be an angel, or a demon, with people like that.
@sebarus81084 жыл бұрын
@@lillynichols9884 Not as frequently, but I've heard that a couple of times after my disabilities caused me to not be able to attend college for a while yeah. And like, I'm sure they mean well, but it just comes off as patronizing. It's almost like your disability is a bigger deal for them than it is for you. Like it's just a regular part of life that you (not you specifically, but more like a general you based on my experiences and the experiences of other disabled people I know and have spoken to) don't really even think about that much, but for them it's somehow something awfully tragic and horrible and you're just there like "noted, can I just go back to reading for this exam now?" A lot of ablebodieds have such weird reactions to disabilities.
@juju-been4 жыл бұрын
I laughed at the idea that you can have “too many illnesses.” If you know anything about biology you would know that just one chronic illness constantly strings along other side illnesses and health problems.
@lisainthestudio4 жыл бұрын
Exactly. If you have one auto immune disease, your body is attacking itself. You're predisposed to have more. Family history is also an indicator.
@franknstein53764 жыл бұрын
True! It seems like some people think that organs work in a absolutely independent and compartmentalized fashion, while one disease affecting primarly one organ (say, chronic hepatitis) can be the basis of other 10 extrahepatic manifestations and increase the risk for comorbidities... this doesn't even take into acount *syndromes* like Elher Dalos which, as the name implies, cause a constellation of different clinical manifestations
@gloriastroedecke27174 жыл бұрын
Yes, very true! Sometimes the medicines given to you to treat your illness lead to other illnesses and the surgery and procedures you need lead to complications as well.
@elskabee4 жыл бұрын
and it can VERY true for mental illnesses and developmental disabilities too!
@rachelel90874 жыл бұрын
the "too many illnesses/bad events for one person" gave me a good chortle.
@sazkee4 жыл бұрын
"Am I looking my best right now? No. Am I feeling my best right now? No. Am I deeply offended by something I saw on twitter? Always" -Jessica Kellgren-Fozard, 2020 edit: hi mom, hi Jessica and thank you to everyone who liked this comment! love from Moscow xoxo
@OnlyARide4 жыл бұрын
her "not looking my best" is still better than I have ever looked in my entire life
@bat80464 жыл бұрын
@@OnlyARide Mood
@naomitheminion62754 жыл бұрын
She looks stunnning.
@hellaSwankkyToo4 жыл бұрын
hahaha. will be using this quote in the future, for sure. 😂
@L_Aster3 жыл бұрын
I hate that the more a disabled person tries to blend in, the more people expect of us. People expect me to be able to do everything a neurotypical could because I can talk and gesture like a neurotypical without realizing just doing that is taking all the energy I have. Then they say I’m faking :’). And that’s why masking is bullshit.
@dragonflies67932 жыл бұрын
I experience this a lot too! Especially because the times when I'm struggling the most and look the least normal are the times when I'm least able to explain myself. Like when I get overstimulated enough that I stop being verbal. If someone starts talking at me, expecting a response, there is literally nothing I can do for them. And it unfortunately happens a lot, depending on the person. Even several close family members of mine don't get it, and they'll make things worse or get angry at me when I've just completely shut down.
@L_Aster2 жыл бұрын
@@dragonflies6793 ExactIy! I get so frustrated when suddenIy I'm getting a stern talking to because I didn't say pIease when asking someone to stop taking to me when I'm overwheImed.
@truepeacenik4 жыл бұрын
When a professor accused me of making up a pain condition: “I’m so glad my semester of acting has paid off so I can act like you aren’t a moron.” Yes, I eventually brought in a note from my doctor. And an attorney.
@wolf10664 жыл бұрын
Hell, if I say shit like that, I'm accused of being "socially inappropriate" or "rude" - apparently it's *not* rude when someone gives you crap but it suddenly *is* when you tell them to FO.
@juliawatkins79743 жыл бұрын
What jurisdiction did the professor even have to try and say you were fibbing? Were they confusing their doctorate in english for actually being a doctor?
@MissSeraphine3 жыл бұрын
I had a professor in high school that told me to go do some stretching because I was sprawled in the chair while he was teaching. All teachers knew about my painful scoliosis, none were as mean as him. If stretching took the pain away would you let me hear your class while I am doing it? Till this day I get pissed remembering the scene.
@nono4743 жыл бұрын
@@MissSeraphine I have scoliosis too and those teachers were the worst. A few of them like yours just asked me why I didn't sit straight and like... you know about my condition, why the hell do you think? Also I'm pretty some of them thought I was faking it before I got the surgery because I just came in with a doctor's note one day explaining my condition. They were confused bc I had never complained before, but that was because I had been told for a long time that my pain was from growth spurts and it was perfectly normal. The worst by far was my gym teacher that constantly asked me why I couldn't do something (and sometimes even tried forcing me) when it was explained multiple times to him by me, my parents and doctor. I honestly just think he got a kick out of bullying a teenager. Edit: Sorry that was a rant™, feel free to ignore it 😅
@ClarityTheParody4 жыл бұрын
“Being mean to ‘fake disabled’ doesn’t make you an ally to ‘real ones’.” 🙌❤️yes thank you!!
@iceberglettuce11294 жыл бұрын
Growing up with two disabled parents, one of the worst things was when people in public gave us grief for using disability services because they couldn't always "see" the disabilities. Ugh. I remember when I was 10 in a train station and my dad had been in a wheelchair. He stood up from his wheelchair to go to the bathroom and a group of teenagers started laughing while he was gone and teasing me, saying he was pretending so we could get on trains earlier. I was so embarrassed and I wanted to tell them about all the times his legs completely gave out after walking too long. But I just couldn't do it. I still feel guilty about not standing up for my dad seven years later, but I wish people would just mind their business! Anyways, I love your videos
@mollyhats23304 жыл бұрын
It was their fault for being jerks. You were just a kid, it’s not your responsibility to cure the worlds ableism. They probably wouldn’t have listened to you anyway.
@nowayitsjennie4 жыл бұрын
Taking a train in a wheelchair is the biggest hassle anyway, no one would fake it.
@Jinxed_Starbyte4 жыл бұрын
Yeah, the other day my dad saw a teenager with a walker and made a joke that they were too young. I told him they probably had a disability and needed it and he didn't argue with that luckily
@carlamar.4 жыл бұрын
I known the feeling. I have a deformed knee and sometimes I can walk normally, other times I can't even stand up. My knee is unnoticeable if you're not a doctor checking my leg and it's so frustrating to hear people telling you that you're faking it
@IishTyto4 жыл бұрын
I can't speak for your dad, but I know a lot of parents wouldn't want their child to harbor guilt over something like this. I'm disabled (among other things society has Opinions about) and if I found out my child felt bad about a situation like this for years, I'd be heartbroken. If you're safely able to, it's always good to speak up for others, especially if they aren't there to do it themselves. But you were a child, and those kids were jerks - you know they were wrong, and it sounds like you don't want to allow people to behave like that in the future. You're doing good. It's okay, I promise. It gets easier to speak up as you get older. Just keep believing what you know is right.
@yuujin81943 жыл бұрын
Wheelchair "faking" is such a common and widespread belief, I think, because the wheelchair scam is way too common in medical dramas and the scammer is caught out when they suddenly stand up either out of anger or fear.
@Jellybeansatdusk3 жыл бұрын
THIS! Literally this.
@randomstyle14473 жыл бұрын
My friend needs a wheelchair but doesn’t always sit in it, instead she mostly stands pushing it but she does need it or need to lie down a times for her back
@Jellybeansatdusk3 жыл бұрын
@@randomstyle1447 plus sometimes it’s helpful to have something to lean on a bit! And you hope you don’t need it, but if you do you know it’s there and there’s nothing wrong with that.
@laurenmosley90083 жыл бұрын
Yeah the media is crap to disabled people in general
@MrPiptron3 жыл бұрын
In the UK I think the series Little Britain may have inadvertently done a lot of damage in that way.
@Isa-xk4dq4 жыл бұрын
the title: "How to tell if a disabled person is faking" me: oh no... Jessica: You can't! me: oh phew
@mygirk4 жыл бұрын
I had to put off watching this video because I just wasn't in the headspace to possibly have to deal with a serious take on that. The logic part of my brain knew that Jessica would be the last person on the planet to do that, but knowing that I have the same disorder as Jameela Jamil, my anxiety couldn't do it.
@khaxjc14 жыл бұрын
verdant-witch you are not alone. The title triggered anxiety for me too.
@beebale13564 жыл бұрын
This viseo is basically the physical disability version of DissociaDID's video on how to tell if someone is faking mental illness. I love both of them do much haha
@Isa-xk4dq4 жыл бұрын
@@mygirk i feel ya! im not very familiar with jessica's content and honestly i saw this video in my recommendations and started watching while keeping my hand ready on that "dont recommend me this channel" button, expecting the worst. i like how jessica obviously doesnt support the whole nasty "find out if this disabled person is Real" thing within the first 10 seconds of the vid but i wish the title and stuff was a bit different so it wouldnt scare away people who dont know who jessica is or what her channel is about.
@missquinberly4 жыл бұрын
@@Isa-xk4dq I think she had to try and keep the title unbiased so that people accusing her would also watch it
@_hunnybe4 жыл бұрын
"Being mean to 'fake' disabled people doesn't make you an ally or hero to 'real' disabled people." 🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻
@jlbeeen3 жыл бұрын
I was accused of faking and some guy I know was withheld pay for being seen as faking it, and for people who can't access diagnosis, or as was mentioned, don't carry around a whole medical file, people should still be listened to. I wish I was, and even now, I have a hard time with invisible disability. I feel like if we had more respect for disabilities and the needs of people, then people wouldn't feel the need to fake anything, or be seen as fake.
@MsFuzzipoo3 жыл бұрын
@@jlbeeen I'm so sorry. I have several invisible disabilities. Unless I feel like explaining my entire medical history (as if I _ever_ feel like it) I get written off as lazy or hysterical. I also don't tell most people I carry around a foldable cane in my bag at all times... but when I actually use it? Night and freaking day. Strangers go out of their way to make space for me or give up their seat, and people who know me personally freak out and ask "What happened!?!" when I've already told them about my disabilities! At this point I just say: "nothing new!" because I've _already told them_ and, really, in that moment? I don't have the energy to explain it all *again* when I don't even have the energy to keep myself upright without assistance...
@IExpectedBSJustNotThisMuchBS3 жыл бұрын
@@jlbeeen Wish I had a link to a study I once read. In the study, they found that people often slowed down before becoming disabled by chronic illness and they themselves would wonder if they were malingering. I think this shows the influence this sort of belief has in our production oriented society, and the fact that people generally have to get quite sick before they can secure a diagnosis.
@junerose78683 жыл бұрын
YES
@hopegate96202 жыл бұрын
@@MsFuzzipoo Yes, I use crutches intermittently and I am so tired of people asking me what happened as well when they already know I am disabled. Even if I did bother to explain, it probably wouldn't make sense to someone who isn't disabled. And I know that my answer isn't the one that they actually want to hear. You see I've been using crutches for the past three weeks because I went Christmas shopping for an afternoon and that tired me a lot. Or because it's near the end of the year and I'm just tired. Or because I got a cold and it's tired me so much. Or because I was feeling great lately so I guess I walked a little more and my body isn't used to that so now I have tendinitis.
@wildchildphotography4 жыл бұрын
My mother once said in an argument, before signing off in her email, “I would wish you well, but you never are are you?” I have multiple autoimmune disorders and had a mild stroke. I also have hemiplegic migraines. She passed two years ago, and believe she passed still believing my illnesses were fake. I’m glad you are here using your platform to educate and empower, you are incredible.
@oliooh56474 жыл бұрын
All the best to you, sometimes I think it is easier to dismiss something than to deal with the reality that someone is struggling and you cant/ dont want to help them.
@queenjeski5914 жыл бұрын
i hate when people preface the ”how are you?”-question with ”well, i know what you’re going to say anyways, but...” or asking and then stops listening when you actually answer. there is a reason why i just instinctively say ”i’m fine”, ”not too bad!” or some other wishy washy answer these days. my grandfather sometimes actively dodges me and even avoids saying hi to me at family gatherings because hearing about the shit i’m going through makes him sad. well, imagine how it feels being the person actually going through it :-) i guess it’s not rocket science to figure out why many disabled people feel like a burden and often internalize their feelings.
@stefanisuranhrvatin25534 жыл бұрын
I went to a hospital for high blood pressure checkup and they found I have Gilbert's syndrome(hyperbilirubinia-jaundiance ). So what it does it basically makes you super sleepy all the time and you get yellow eyes and sometimes even skin appears yellow(as you get older the discoloration can even be permanent). It is a genetic disease affecting liver enzyme and it cannot be treated or helped....so my fam told me "Oh this whole time we thought you were just terribly lazy and rude" like wtf....and they proceeded to make me do absurd chores and work for them even though they knew my illness....thanks God I moved out and got married to a most caring man that never complains when I'm too tired or have to take random naps during the day.
@undermoonlight48494 жыл бұрын
Awful mother
@bronwynknox36054 жыл бұрын
I hope you are having a good day! I believe you. My sister had hemiplegic migraines after a stroke from ages 6-16 and I wouldn’t wish them on my worst enemy. Virtual hugs.
@ItsaWhinyWorldmyyoutubechannel4 жыл бұрын
"She has too many things wrong with her so it can't be true" Me: Asthma, Severe eczema, Creeping leg syndrome, Endometriosis, OCD and to top it off, a dictionary long list of allergies.... Is my life a lie?
@MamaMOB4 жыл бұрын
Yep… no not really I’m just kidding.
@FlabbyDouglas4 жыл бұрын
Allergies, asthma, and eczema typically come in a 3-pack. My allergist calls it: “the trifecta”
@ItsaWhinyWorldmyyoutubechannel4 жыл бұрын
@@FlabbyDouglas Yup, they mostly come in a lovely bundled package. How pleasant.
@jordanm35984 жыл бұрын
@@FlabbyDouglas I never knew that but it makes so much sense! I've had all three of these since I was a baby, though I don't have eczema any more (just very sensitive skin that gets pretty angry about straying from products I know are safe and that hates sunscreen) That's actually really interesting, glad I came across your reply :)
@ItsaWhinyWorldmyyoutubechannel4 жыл бұрын
@@jordanm3598 Yup, I'm pretty much the same except I still have my eczema and my mum is also the same. Although, there's a new medication for severe eczema sufferers that came out last year. It's called Dupixent. It's been a miracle to everyone using it. But it started out as a new medicine asthma sufferers and they found out it helps with eczema too. So, it helps asthma and eczama like a a 2 in 1. Which leads me to believe that asthma and eczema must be caused by the same thing or something similar ...
@chelakoech6854 жыл бұрын
I thought she was going to say that she didn’t call an ambulance because it would be too expensive. And then I realized: ah, she’s not American
@TheCollectiveHexagon4 жыл бұрын
Well, ambulance is not expensive but the meds on hospital seem to take long
@irishartn4 жыл бұрын
No, she didn’t want to go to the hospital because socialized medicine means she can’t get a cup of water without waiting for four hours.
@Copeandseethe8224 жыл бұрын
@@irishartn anywhere you go they're going to make you wait. They won't let you eat or drink until they know what's wrong with you.
@starwave27904 жыл бұрын
SAME
@clemclam4814 жыл бұрын
Iris H ha they do that in America too and then charge you for it
@sarahwithstars4 жыл бұрын
How to spot a faker.... STOP Get a real hobby! Learn to spot a Red Crested Woodpecker.
@AnimosityKate4 жыл бұрын
Love this!
@ShutItKyle4 жыл бұрын
A+
@arxsaur4 жыл бұрын
learn a new language!! or idk, something else :D
@333Vampirewillrule334 жыл бұрын
Such a cute comment 💕
@charlottemarisol87264 жыл бұрын
Also look out for the Blue Footed Booby, the bird that spends all its time trying to prove disabled people are "fakers" 😅😅
@jennifershay89804 жыл бұрын
Some random Karen: "Classy ladies don't curse" Jessica: **says asshole in the most classy tone of voice I've ever heard**
@Miss_Distress4 жыл бұрын
Classy ladies curse with good diction.
@danstiver91354 жыл бұрын
Well actually she said “arsehole” since she’s British 🤓
@cheryllee73354 жыл бұрын
@@Miss_Distress lol
@MissBee134 жыл бұрын
♥️
@VictoriaMeira74 жыл бұрын
British, she said asshole with a British accent and intonation is what you meant
@JanniGuldeIversen4 жыл бұрын
"Some wheelchair users can walk" Makes sense, though I never thought of it. Some glasses users can also see without glasses. Even up to "100%" (= reading smallest letters on vision test), and enough to drive a car without. Myself for example. I've had a few people and even doctors react very confused to that. I can strain my eyes enough to se all clear. Just not for long, without being rewarded with headache and sore eyes. I suppose we can do many things for a short while, if a situation nessesitates it, that we wouldn't be able to keep up long term.
@MsFuzzipoo3 жыл бұрын
At least you're open and accepting about it! Seriously, that's above and beyond so many people. I had a boyfriend (now ex, who's not in my life for many reasons), who came home one day absolutely *livid* because he saw someone in a wheelchair stand up. It took an afternoon of calming him down and explaining that people use wheelchairs for a HUGE number of reasons... Until he eventually came around and understood that even if someone can momentarily stand, it doesn't mean they don't have some variety of issues or illnesses that can make walking difficult, painful, harmful, or dangerous. I also spent a day with him when I had to explain how Disability Pride was completely different from Wh*te Pride... but that's another story for another time.
@sataca25533 жыл бұрын
Hadn't thought of that. Thanks for commenting this, now I'll keep that in mind! :)
@swvsnick3 жыл бұрын
If it helps you understand. Some people who faint randomly may use wheelchairs because then if they faint they're sitting in a chair and not hitting their head on the floor. Same with people who get waves of dizziness, have bad knees or hips, etc
@JanniGuldeIversen3 жыл бұрын
@@swvsnick Thanks, that's greatly appreciated. Good point that makes alot of sense. I've had minor issues with dizzieness, light headededness and fainting myself. I can see how it would be a help for someone having such conditions in a less minor more impacting version.
@Mrssarandy3 жыл бұрын
Exactly. I CAN drive without my glasses, though I highly doubt I SHOULD.
@katecantsee19014 жыл бұрын
“You don’t look blind” “Well you don’t look like anything to me..does that prove it?” I’ve been told I don’t look legally blind so many times and I’m just wondering how one looks legally blind?
@karlijns48164 жыл бұрын
I think because blind characters in movies are often portrayed as having "different" looking eyes that is the expectation of some people. Blind character often have this white film over their eyes, like they have cataracs. So I guess that is what they are expecting? In case this was a rhetoric question, sorry for answering.
@redacted50784 жыл бұрын
"what do blind people look like? I legit dont know because IM BLIND"
@eleanortapley12774 жыл бұрын
hold on. i mean no discomfort but, may i ask how you are typing?
@silviapintus65624 жыл бұрын
@@eleanortapley1277 there are systems that convert speech to typed letters. If you're interested , try checking out kzbin.info/www/bejne/ipqzaJSXo9mhrKc , a video by blind KZbinr Molly Burke explaining how she uses technology.
@uyagraph4 жыл бұрын
@@eleanortapley1277 speech to text? I reccomend watching Molly Burke's video about how she uses tech, I forgot the title though. Her videos are very helpful to understand the condition.
@smithnojones4 жыл бұрын
"I shouldn't have to prove my disability to anyone." Yes, thank you.
@fionafiona11464 жыл бұрын
Technically there is a case to be made for the NHS wanting proof for making treatment plans people aren't suffering under later on... on the other hand, having financial risks to your level of disability being recognized sounds awful.
@MissNeko764 жыл бұрын
Yep... totally agree
@fuzzycublb4 жыл бұрын
My agreement to this is conditional. In the states, so many people have finagled handicap placards through their “doctor” ($$) in order to park where ever they want and claim to need service animals when they really want to drag their poor dog everywhere they go. There are so many individuals who truly need these things and then there are those who feel entitled and take advantage of a system designed to assist those in need. We will always be subjected to those people who are the reason we can’t have anything nice. It may not be an inordinate number of people misusing the system, but there are just enough cases of fraud to cast a shadow of doubt over those who are legitimate.
@anonhippomermaid74774 жыл бұрын
Oh thank god, I've so far only heard positive things about Jameela Jamil, being all abouz equality and inclusion, body positivity, pro LGBTQ+ and so on and when I read the title I was scared for a moment that she was the one who accused people with disabilities of faking them
@Kelly-xo3ho4 жыл бұрын
I know, me too! I love her! She’s amazing. I’m so glad she didn’t do something bad.
@inasaraci44984 жыл бұрын
I mean she's pretty hypocritical but over all I don't mind her
@emilyblunt42414 жыл бұрын
Anon Hippo Mermaid me too, I was scared for a second
@blacklungsanji34 жыл бұрын
I just don’t understand how people can’t see through her bullshit. Her activism is on the extreme side. Also her hypocrisy is astonishing.
@shellydee40704 жыл бұрын
Piers Morgan accused her of faking for attention. He is beyond disgusting and repulsive 🙄😬.
@violetskies143 жыл бұрын
As a disabled person I'm gonna let all the abled people in on a secret *we're faking how well we feel and pretending our pain isn't that bad not pretending we're disabled*
@waffles362910 ай бұрын
Yep. Like yes, I'm faking feeling well right now because I'm sick of being in bed.
@KatieLovesSleep4 жыл бұрын
"Firstly: why do you care?" THIS. So many better things you could do with your time than picking apart a person's life just to say... gotcha?? Why??
@recklessroges4 жыл бұрын
Because we are all jealous little monkeys. I can feel my brain leaping up and accusing people even before I've had time to think about how many ways I'm probably wrong.
@phoenixgate0074 жыл бұрын
Reckless Roges sounds like you have a lot of biases you need to address.
@narvalswegger15004 жыл бұрын
some people take actual disabled people's resources
@Elizabeth-bz7jr4 жыл бұрын
i think because people are concerned she has münchausen syndrome which could lead her to harming herself to be ill
@VALENSlO4 жыл бұрын
Faking disability should be a crime since you can get legal advantages
@Just-aNerd4 жыл бұрын
"You don't look disabled. You don't look like you're struggling." WOULD YOU LIKE TO LOOK DISABLED!
@gennybaratta24604 жыл бұрын
Just a Nerd stealing this for future use.
@DiegoBrando4 жыл бұрын
Same omg, like, what? Do they want us to cough blood in front of them or what?
@spoonypoon79984 жыл бұрын
I always say you can't see cancer either.....
@bookl0ver4 жыл бұрын
Also what does disabled look like? If I imagine a disabled person I see someone using a wheelchair, but someone else might think of a blind person with a cane, or a person in a care facility. Disability isn't a one size fits all kind of term.
@Agniakachan4 жыл бұрын
“Well, you too don’t look like a jerk, but here we are”.
@howdy18124 жыл бұрын
“But you don’t look like you have anxiety.” Yeah, I’ve learned to hide it the best I can. I don’t tell people when i get overwhelmed. I can be freaking out on the inside about to have an anxiety attack and I’ll just say very calmly, “I need to use the bathroom.” You would have no idea why I’m actually going. Not all illnesses are easily seen
@itisdevonly4 жыл бұрын
Same. I've struggled with anxiety my whole life and I'm really good at hiding it, to the point where it's simply automatic. Showing the anxiety causes me anxiety, so it only shows through if it's so bad I can't stop it. If I look anxious, it means I'm close to having a panic attack. I had group therapy at one point and I was criticized for not participating enough, as if I weren't trying to face my anxieties, when just being there was so hard, but none of them seemed to realize how much I was struggling with anxiety (even though I was there for anxiety!) until I wrote out how I felt and read it to them, because it was the only way I could express my thoughts and feelings.
@zenodotus-xxiv7854 жыл бұрын
Oh god. The "i have to use the bathroom" excuse. I can get up totally calm in the middle of class and say i have to use the restroom and get my little card signed after but while im in the bathroom i'm just having a total breakdown. Unfortunately, due to various sensory issues, many attacks come on seemingly unprompted and cause me to become nonverbal. It majorly sucks.
@Syurtpiutha4 жыл бұрын
"You don't seem depressed." Well you don't see how much energy I put into presenting an approachable and friendly demeanor while in public, or how I kinda crash when I've returned to my home where I don't have to. Or how I deflect a question like 'how are you doing?' into something I can actually answer (usually by reinterpreting it as 'have you done anything interesting lately) because saying 'I generally feel terrible' is not an answer that people expect and I despise being insincere so I prefer talking about things that interest me (and hopefully the other as well). While I've never used the bathroom excuse but I can definitely see that as a useful tactic.
@reharm_reality4 жыл бұрын
People don't get how much energy we put into trying to act "normal" so that we can function in a society with a limited idea of what normal is.
@TheSparklyB4 жыл бұрын
My Mum who has known about my anxiety for 20 years will sometimes still say to me ‘but you were fine two minutes ago.’ Erm yeah really? That’s the nature of anxiety, that’s the whole point. You can go from fine to freaking out at the flick of a switch. I’ve also had ‘can you just not think about it?’ Oh well Mum, shit I didn’t consider that. Yeah I’ll just not think about it, problem solved, that was so easy. Thanks 😒
@sharonloisandbramstoker4 жыл бұрын
Spent my whole life complaining about chest palpitations, feeling dizzy and lightheaded, short of breath at night, etc. I was told it's common because I am tall and a girl, and was just generally dismissed by all doctors.. Well, last year I fell down the stairs and needed surgery, and low and behold - I have a heart defect. I am missing a heart valve. Need to get replacement surgery. New doctor gave me crap for not getting it dealt with earlier. ¯\_(ツ)_/¯
@sharonloisandbramstoker4 жыл бұрын
@Sadia Afrin Doctors were pretty vague, one specialist told me I would need surgery in anywhere from 2 to 15 years. They somehow lost my most recent echocardiogram. Did some stress tests and was told to come back in a year and to try manage my stress haha. I keep a journal of how I am feeling and what triggers sensations so I am prepared the next time a Doctor tries to minimize my problems. Valve replacement surgery sounds scary. Did you get a timeline on when to expect your surgery?!
@pinkaypinkpink3 жыл бұрын
I'm currently working on trying to get some sort of diagnosis for my own heart thing. I have similar symptoms but my heart likes to skip sometimes. After a bunch of testing they just said I have a "Heart prone to fluttering"
@sharonloisandbramstoker3 жыл бұрын
@@pinkaypinkpink I would go for an echocardiogram every couple of years bc docs dismissed me for years up until I needed surgery. (I'm in Canada so that's free for me though.) Now that I have seen a specialist, it's given me a lot of context for things I experience. "Heart prone to fluttering" sounds dismissive to me, like the "feminine hysteria" of the past. It should be taken seriously as heart conditions in women are often undiagnosed bc its associated with men and they are the default. I keep a journal now for whenever I experience anything health related just in case. Good luck!
@pinkaypinkpink3 жыл бұрын
@@sharonloisandbramstoker I live in Australia so they're free here too. I have done a halter monitor and many other tests but they refuse to do any sort of stress test. I hope I'm able to find a doctor who will listen eventually
@mrs.pineapple3 жыл бұрын
My doctor said I need to do push ups. 🙄
@kawaRCC4 жыл бұрын
Jameela's tweet about being gaslit about your pain reminds me of how my dad, a doctor, kept telling me everything I experienced was psychosomatic and I was doing it to myself. It's really harmed the way I think of myself now, even after finally getting diagnosis for most of my comorbidities and illnesses. I dread someone accusing me of faking when I use my disability parking permit, which seems imminent considering all my disabilities are invisible.
@shevwheels4 жыл бұрын
I was told that so many times by doctors, (it's all in your head). Eventually I realized, even if it was all in my head, I'm still experiencing real pain. The source of the pain doesn't disqualify it.
@Canny-Octopus4 жыл бұрын
I know this dread so well. I hope you have the ability to talk to a therapist about your dad being so ignorant and wrong hurt you, and how to re-sort the inside of your head. Cuz he was ignorant and wrong.
@homocatphenomena71684 жыл бұрын
Also, being psychosomatic doesn't mean you're doing it to yourself! Technically, your body creating problems (disabilities) is ALWAYS "you doing it to yourself" (because it's your body), but in all cases, that doesn't change the amount of control you have over whatever your body is doing. If your nerve stop working in the leg, it's a nerve problem, but if your brain makes the nerves in your leg stop working, all of a sudden it's "you doing it to yourself"??? Tell me, can you make your heart stop beating or pause digestion? No? Then how could someone control their brain causing other things to stop? Also, I really don't understand why psychosomatic disorders are considered mental illnesses when no amount of therapy can ever change them. Seizures also happen in the brain and yet are not mental illnesses? The medical communities classifications of these disorders baffles me.
@katherinemorelle71153 жыл бұрын
I know people who use mobility aids when they go out, not because they really need that mobility aid to mobilise specifically, but because it stops people from harassing them about their invisible disabilities. Though while they say they don’t “need” a wheelchair, using it does still benefit them anyway, because it conserves energy that they don’t have.
@xxblueeyesxx5223 жыл бұрын
Yep I got the “psychosomatic” label so many times growing up until I was diagnosed with Chrons disease and a rare swelling disorder. Even now that there are labels to my illnesses doctors still just love to say I’m exaggerating or making things up. Therapy has been so helpful with working through all of that trauma.
@realunhingedraccoon4 жыл бұрын
LOUDER FOR THE PEOPLE IN THE BACK! Or quieter depending on whether or not you've got a migraine.
@samanthacline12654 жыл бұрын
Truth! 😆
@C-SD4 жыл бұрын
Thanks for the laugh. 🙂
@TherealDanielleNelson4 жыл бұрын
@@C-SD I love your screen name.
@Shadow-zf5uc4 жыл бұрын
Or if you have other conditions that make you sensitive to loud noises (like Autism or sensory processing disorder)
@realunhingedraccoon4 жыл бұрын
@@Shadow-zf5uc of course! my biggest apologies to my fellow autistics.
@emb38634 жыл бұрын
The standing up while in a wheelchair thing is so real, I'm not personally a wheelchair user but sometimes I would go out with my grandmother and she would use the electric wheelchairs in the supermarket, and I always felt people were judging her for using them because she would stand up and walk around to grab things... I dont think it's that hard to understand that it isn't the same to stand/walk nonstop for an hour than to stand up for 15 seconds at a time...
@christalcavanaugh4 жыл бұрын
I’ve been using a wheelchair for longer trips like to the mall with my family, because I just can’t walk that long. I decide that I’m in the wheelchair for that trip and I don’t walk at all if I can help it, even though I saved my energy and could walk a little. I’m too worried about being harassed/attacked for “faking” needing a wheelchair so I just choose one or the other and suffer for it
@kathrinmariakrause53514 жыл бұрын
I have to admit: The very first time I saw a wheelchair user get up to enter a train I was kind of surprised. But I'm an adult. I can keep my mouth shut and look up information, and so I learned that there are lots of reasons to use a wheelchair.
@sylvan443 жыл бұрын
it’s such a physical relief to click onto one of jessica’s videos and switch from the stupid auto-generated captions to the proper ones. thank you for giving me a break from lip reading 💕
@peacefulleopard80163 жыл бұрын
I love real captions too!
@sp_00nsy3 жыл бұрын
Real captions are a blessing to me! I'm hearing disabled (hard of hearing), and the captions Jessica puts makes it so much easier to keep up with what's being conversed about (rather than sifting through the YT auto capt.) I appreciate the real captions too, even when I'm not listening in! It's nice to be in public without headphones and still understand the entertainment on my phone (w/o audio)!
@dragonflies67932 жыл бұрын
I'm hearing but neurodivergent and I almost always go without captions because of how shit they are. These videos make me realize that, when done right, captioning can actually really help me out in being able to focus and understand what people are saying. It can be easy for me to lose focus on what I'm hearing, which I guess is a processing thing, but having the captioning that allows me to read it even if my audio processing ain't great (and allows a delay since the words stay on screen) really really helps.
@hdbordercollie Жыл бұрын
auditory processing disorder is a piece of work, i LOVE real captions, helps me relax and let my brain rest from wwwwwhhhhiiiirrrrrrrrrrrrr trying to figure out what they were saying
@VivaciaDreams4 жыл бұрын
Anyone who has ever used a wheelchair knows no one would do it unless they really needed it. It’s uncomfortable, it’s inconvenient, you get judged and asked questions and you’ve just lost access to about a quarter of smaller shops, bars and restaurants. I use the pushchair analogy when people don’t get that I can move my legs/stand etc; toddlers can walk but they tire very quickly so need a pushchair, ambulatory wheelies are just the same.
@katerinaadriah4 жыл бұрын
I'm going to steal this toddler analogy if that's okay. That's brilliant.
@VivaciaDreams4 жыл бұрын
Katerina Adriah Go for it! I’ve found that people can grasp the really simple concept better. I don’t mind explaining if people come from ignorance instead of hate😉
@Poppy-4 жыл бұрын
@@VivaciaDreams I got weird eyes the days I used my cane years after surgery. I had bouts of osteoarthritis and I could be fine for months. People like to judge BTW, one of my good friend is in a wheelchair. Legs are "dead". People just stare when he gets out of his Ford F150 lol. Yes, he can drive! All manual pedals 😁
@DiegoBrando4 жыл бұрын
That's the best way to explain it I've ever found, mind if I steal it?
@catscratchqueen4 жыл бұрын
Vivacia Dreams i have joint hypermobility syndrome and had a subluxation in my back, which was pressing on a nerve. i could barely get in and out of the car, but since i was a teenager who seemed in good health i got soooo many nasty looks! i have social anxiety and i knew having my mom push me in the store's wheelchair would bring attention to me, but i could hardly walk to the door, much less the entire store!! doesn't help that people think wheelchair = legs that don't work. most wheelchair users are ambulatory ugh
@toshomni94784 жыл бұрын
I don't understand how people have the time and energy to "investigate" if some celebrity is faking her illnesses for some reason. I can barely handle my own issues, let alone afford to get that upset of about some total stranger's potential ones.
@Syklonus4 жыл бұрын
Abject insecurity. The best way to get a validation fix is to be negatively judgemental becasue it offers some sense of control, and you'll believe that someone you don't know is being a bad person becasue it makes you look and feel like more of a good person. It's washing line gossip and snipey backstabbing, which is unfortunately fulled by the MSM in this country.
@maddwitch4 жыл бұрын
Clicks, views, attention, and money are great motivators for some people.
@mtngirlatheart4 жыл бұрын
Many of us with invisible disabilities are scared to say we have any problems. I love your witty way of saying things.
@sparkIejumprope4 жыл бұрын
I have an anxiety disorder, and not many people know. It breaks us when we have invisible illness, I keep up a happy face for everyone around me though. It’s important to me that if I must suffer, others don’t have to.
@Ebrill_Owen4 жыл бұрын
Man some of the willful ableism in the comment section is outstanding. Jessica explained the situation so eloquently and it hurts me to know that this video just went through one ear and out the other for so many people who remain pressed about accusing disabled people of “faking it”. Living a life constantly thinking that most people who are disabled must be deliberately deceiving you to take advantage of resources must be fucking exhausting.
@blair4782 жыл бұрын
I agree, but at this point you can't tell who's faking and who's not because of the many people faking it for clout. I think the point is "mind your own business and don't accuse other people of faking if you don't know anything about their life". I'd also like to add that there is an embarassing amount of ignorants telling people in wheelchairs that they're faking because they can walk sometimes. Those people just don't know how disability works and are really stupid.
@yesterdayitrained2 жыл бұрын
@@blair478 💯
@audreycampbell94834 жыл бұрын
A disabled person is way more likely to be faking that they're normal so they don't have to deal with other people's judgments. I know because I pretend everything is okay even when it's not. It screams volumes about the lack of character of people that pass their biased unknowledgeable judgments on people that have to live with physical or mental hardship that they have through no fault of their own. Shame on them.
@DrinkYourNailPolish4 жыл бұрын
THIS! My husband takes me to the gym every day and I feel uncomfortable being "that blind lady" because I'm legitimately worried someone will say I'm a liability and can't be there. So I pretend to be able bodied. I pass most of the time because I still have one good eye....until I run into a weird lighting situation and then forget it. Also the hat and sunglasses indoors (due to light sensitivity) makes me come off as a drug addict. And I can't read things too well so they probably think um illiterate too.
@missquinberly4 жыл бұрын
At the moment I'm struggling with having faked it so well that I can't possibly need help and I should just get over it and not ask my workplace to lessen my responsibilities even though I'm having panic attacks
@audreycampbell94834 жыл бұрын
@@missquinberly I teach a couple dance classes a week, which I've done for decades on and off. Sometimes it can take me up to three days to recover from that two hour class.... But it helps me gain some strength. It's okay to say, you know most people can do anything for a short period of time, and be thankful for that, but I still have to deal with a serious disability. Maybe all of us should make a video and educate people
@inalaska12084 жыл бұрын
Omg lol yes me at a new Dr office "honestly I am really healthy person" then fills out new patient form and has to check so many boxes. "Well I guess I just try and work on being healthy to cope with all my problems"
@del.bells.andbookshelves4 жыл бұрын
You took the words right out of my mouth.
@KathyTrithardt4 жыл бұрын
"Because she thinks her body is a temple." Who hurt that journalist?!
@redcoatgaming41414 жыл бұрын
A priest apparently
@yeet964214 жыл бұрын
probably the mormon church
@lillynichols98844 жыл бұрын
My immediate thought was: "A temple to what?!"
@tatianasearle34704 жыл бұрын
Don't be too harsh on the journalist. It could be that they misunderstood Jessica's reply because it was too advanced for them (not everybody's smart, right?). Alternatively, they were worried about alienating their "less intelligent" readers with advanced medical/scientific terminology, so they gave them the "simple" version. The only problem is that it gives the readers an impression that Jessica is on a strict diet by Personal Choice, which is the exact opposite of the truth... I suspect it's the former, because otherwise the journalist could simply have said: "Jessica doesn't drink for medical reasons", which sounds extremely unglamorous, so this could be another reason why this was "re-phrased".
@kimmycup27044 жыл бұрын
On that note also, who the fuck allows shit to be printed without authorization first?
@SabrinaOlivera4 жыл бұрын
“You’re not allergic to peanuts anymore?!” “Yeah, I forgot to renew my subscription so I can eat a Reese.”
@MythicalHex4 жыл бұрын
why are allergies always to all the nice food, I just want to eat scorched almonds
@SwayTree4 жыл бұрын
Well... When I was a child the tests showed I have peanuts allergy but when I did tests last year it wasn't there... Same for strawberries and fish. I'm still allergic to apples though. But it doesn't matter. I don't like them.
@jasminestarr15064 жыл бұрын
Sway Tree some people out grow allergies, some do not. Some people also develop new allergies. For me, still allergic to tree nuts and shellfish, No longer allergic to bees and strawberries Now allergic to raw orchard fruit (apples ect), raw carrots and lactose intolerant.
@neuralmute4 жыл бұрын
@@jasminestarr1506 Exactly! I'm not longer allergic to cats, which is lovely!
@PamelaMars4 жыл бұрын
I was allergic to tomato for a few years & it’s gone away...I was allergic to pumpkin as a child & that’s gone. People don’t understand you can grow out of allergies. I have a sulphite intolerance & people don’t take it seriously because for some reason they think people are lying about being intolerant. They’ll also sit there & be like “you know that has sulphites, right,” like I don’t know. People always think they know people better than they know themselves.
@Shay00084 жыл бұрын
my dad got sick about 8 years ago, he started experiencing severe pain in his limbs, extreme weight loss and a bunch of other symptoms. The doctor sent him to a few tests but couldn't find anything, so he suggested my dad should take psychiatric pills, thinking he's probably just crazy or making it up. Eventually we found out he has Amyloidosis. Don't know why i'm commenting this, I just needed to unload
@lazyhomebody13563 жыл бұрын
Remember when fibroneuralgua (sorry for the spelling) started being diagnosed. Male doctors insisted it was high strung women acting all dithery
@coffeesweatersbooks93403 жыл бұрын
Ahhh yesss! I’m a teenage girl who’s been sick for half a year!!! Yessssss! There have been doctors who have told me I’m suffering from “severe anxiety” 🙄 when I was clearly bedridden with a very physical illness! I’m still on my journey to a diagnosis, I can’t even imagine what my reaction would be if someone told me I was faking!! I’m going through the hardest point in my entire life and feeling like ppl don’t believe I’m in as much pain as I say makes it SO SO much worse! I get that feeling of needing to unload, wishing you the best 💕💕! 🤗
@Shay00083 жыл бұрын
@@coffeesweatersbooks9340 I'm sorry you're going through this! Hope you find the right diagnosis, I know how hard it can be not knowing.. All the best to you too! xx
@coffeesweatersbooks93403 жыл бұрын
@@Shay0008 thank you so much! 💕💕☺️I hope so too!
@lazyhomebody13563 жыл бұрын
@@coffeesweatersbooks9340 It's like AGES ago when Freud coined the word 'hysteria' to explain any disease women were suffering from. Neurotic, emotional creatures that we are! Remrmber that Golden Girls episode where Dorothy berated the male doctor in a restaurant for poo-pooing her symptoms of fibromialgia (sp)
@percethemerman57894 жыл бұрын
its almost like having disabled have a higher chance of having accidents or get into a tricky situation because of said disability, who thought?
@brookiki4 жыл бұрын
Poor proprioception is literally one of the symptoms of EDS. My diagnosis is something on the hypermobiltiy spectrum, which is basically EDS adjacent (the diagnostic criteria is weird and keeps changing) and I had way more than share of falls and injuries growing up.
@hopelessly.lavenderly4 жыл бұрын
@@brookiki sorry if this comment is inappropriate but i have been wondering whether there was a word for my Utter Inability to tell where my body is or what my body is doing at any time so i just wanna thank u for using that word so i could by chance stumble upon it ,,!!!
@Dezmee4 жыл бұрын
@@brookiki I NEEDED THIS WORD TODAY THANK YOU. I didnt know what is was called and couldnt figure out how to google it without sounding dumb
@misslittledove4 жыл бұрын
I feel like so many people have a mentality where if they can’t see an illness visually effecting someone than it must not be that serious. I’ve actually been sushed while having an allergic reaction before.
@emilyanncahill28634 жыл бұрын
That's why I think people have such a hard time understanding mental illnesses
@lindsaywright64874 жыл бұрын
It’s like someone trying to tell me that everyone has adhd and that’s not true. It’s annoying.
@bixzterthetrickster55864 жыл бұрын
Very much so. I have chronic pain. I told my dad. Then later he came in and saw me how much it was affecting me his first words were "I didn't think it was THAT bad". Only bc he doesn't see it, I even told him earlier it was. I have a way of downplaying it bc all my life I been told I'm dramatic/drama queen any time I tried to just tell them straight up how it was. And even now when I do say how bad it is, my dad never gets it until it is way too late and he sees how bad it is.
@lw18234 жыл бұрын
It’s the same for type 1 Diabetes(which I have) the symptoms of high and low blood sugars are usually invisible which happen daily and are worsened by sickness, hormone fluctuations, stress, and certain foods that no matter how precisely you calculate the sugar and carb ratio to insulin your blood sugar still goes up. High blood sugar can sometimes cause migraines, irritability, and fatigue. Low blood sugar can cause shakiness, cold sweats, physical instability, and can really mess with your mind too. It is unsafe to drive with low and high blood sugars and I have gotten some rude comments for being late even though I had a severe low and try to explain I am often brushed aside as being lazy or unreliable. *these opinions and symptoms are my own, I am not a medical professional and these personal symptoms should not be used for self diagnosis*
@livvsho4 жыл бұрын
exactly!! I have depression and when I first told my friends they didn’t believe me because I “look happy”
@EricaDLucas4 жыл бұрын
"am i looking my best right now? no." "am i feeling my best right now? no." "am i deeply offended by something i saw on twitter? always." ain't that a mood 🤠
@jillyfish724 жыл бұрын
Érica Lucas And she looks fabulous...
@salenebrom64764 жыл бұрын
Érica Lucas 👏🏻👏🏻👏🏻👏🏻
@kitkatty522114 жыл бұрын
"You're too young to have depression and anxiety, you dont know what that actually feels like" "You cant have PTSD, you werent in a war" "You dont get motionsick from Minecraft"
@jovanaputnik41703 жыл бұрын
Felt that PTSD one on another level. I was diagnosed with PTSD when I was 14 (I'm almost 21 now) and my parents still don't get it why I have panic attacks once in a while (even though I did a research on PTSD and explained it to them like million times). Also, I had a situation where a person asked me how is it possible for me to have PTSD when I'm so young, bassically saying that I haven't lived long enough to have a traumatic experience
@kitkatty522113 жыл бұрын
@@jovanaputnik4170 yeah, my dad gave me ptsd but people look at me like I should be over it since he's gone but even seeing a license plate with his state on it freaks me out lol
@jovanaputnik41703 жыл бұрын
@@kitkatty52211 Because people don't understand that PTSD can't be cured since they don't know how it works and how much it actually changes our brain. I am so sorry to hear that. I hope you find someone who will understand you.
@rachelraju98253 жыл бұрын
Oh, and mine just told me whatever trauma I experienced shouldn't be effecting me in anyways as what I experienced is not big of deal and I'm just perfectly fine. Wow. What a fun group I have found.
@Maerahn3 жыл бұрын
Yep, I've had "the only way to get REAL PTSD is to have fought in a war," too. Along with "you just need to remember the things that trigger flashbacks for you all happened in the past, and aren't REALLY happening RIGHT NOW." Wow, cheers, genius, thanks for completely curing my PTSD with just one sentence of 'wisdom' that I'd have NEVER thought of on my own! When are you going to eradicate cancer and solve global warming for us as well?
@jaidenfrangou-mayer97844 жыл бұрын
I once was asked by a lady for “proof” of my condition when I was sitting in the priority seat on public transport (I have POTS and it was a time where I couldn’t stand without fainting). She said she also had a condition and on the outside she didn’t look like she had a condition either. I understand she must have because I know not all disabilities are visible (mine isn’t). So I found it pretty hypocritical that she was picking on me for looking like I was able to stand. It was as if she was telling me whatever she had going on was more important and that she was more deserving of a seat than me. I thought fellow people with invisible disabilities would be understanding and it made me quite upset.
@FlailTV4 жыл бұрын
Sadly, having an illness or disability doesn't prevent someone from being an arsehole like everyone else. I understand expecting more empathy from people with similar experiences, though. Some people are just jerks, unfortunately, able-bodied or not.
@emopeterparker74 жыл бұрын
suffering is not a contest and it seems like that woman still has to learn that
@Syklonus4 жыл бұрын
Unfortunately there exists such a thing as "hardship competitiveness". It's where people try to outdo one another with problems (social or medical), and often they will berate someone whose condition isn't as severe as theirs - or what they perceive to not be as severe as theirs. They also think that having a condition gives them the right to judge other sufferers as being "worthy". It's a particularly nasty trait whereby they uses their condition to validate themselves as being special or better than other people.
@dancininthemoonlight61384 жыл бұрын
Just because someone asks you a question doesnt mean you have to answer. Sometimes people are trying to see where you fit in the pecking order. Dont play along. It only works if you play along. I'd fake that was too tired to answer.
@catonfire50104 жыл бұрын
~upsetti spaghetti~
@hannahwriterful4 жыл бұрын
I have cerebral palsy and often hear "but you're not in a wheel chair" I can walk I'm blessed to be able to drive but it hurts some days to walk to the point of tears. I kick my right foot out and can't walk "normally" but I'm proud I can walk
@toocoldtobother72714 жыл бұрын
Same
@coffeecat28124 жыл бұрын
Same here! And man the looks I get if I stand up from my wheelchair, or wheel it to the building entrance because pavement is so hard to wheel over while in the chair.
@hannahwriterful4 жыл бұрын
"but you look so normal" I have impared memory due to lack of oxygen at birth, not massive forgetful but just somethings every now and then. Mum has to tell me information in a story for me to retain it which makes sense due to me being a writer. So the other one I get all the time is "but you're smart" people don't realize memory and intelligence are 2 different parts of the brain
@BagelBagelBagel4 жыл бұрын
I love you you are brave you are important you deserve help and compassion and your pain is valid, your pain is valid, and oh ya one last thing, your pain is valid 💜💜
@celiathirimanna51184 жыл бұрын
stay strong! i can’t imagine what that must be like, but congrats for pushing through!
@sbjade98124 жыл бұрын
As someone who was told for years I was “faking feeling ill” while in actuality I was dying from a heart condition, thank you so much for this
@lilliematthews79224 жыл бұрын
s d Yeah, same thing happened to my mom. Finally a doctor realized that the sloshing sounds coming from her heart might signify an actual problem. Turns out she was born with a heart defect and needed surgery
@pigeon19234 жыл бұрын
@@lilliematthews7922 woah that's insane.
@lilliematthews79224 жыл бұрын
bunny eared namjoon Yeah by the time they finally diagnosed her, there was a hole the size of a quarter (US coin) allowing the oxygenated and non oxygenated blood to mix. Everything in her chest is bigger than normal because of how much extra work all the organs were doing to try to just keep her alive.
@liliavacyncosplay3 жыл бұрын
As an ambulatory wheelchair user myself, you truly encapsulated that feeling of dread when you go to stand up. I hate feeling like I need to justify myself, but I instantly feel the need to explain that yes I CAN physically stand but within minutes the nerves in my feet will begin causing me horrendous pain.
@linetheresnygardjohansen97364 жыл бұрын
Physical and mental illness are usually take 1 get 6 like it's a bargain 🎉
@TiaTruly4 жыл бұрын
I've been collecting invisible illnesses for years! Pretty soon I'll have the full set!
@sah053194 жыл бұрын
I have only recently learned that you aren't supposed to treat them like Pokemon ("gotta catch em all"). Wish they would have told me that sooner or I wouldn't have so many.
@maxximumb4 жыл бұрын
Then add in the random side effects of the medications.
@catdownthestreet7 ай бұрын
Can confirm. I've been slowly accumulating all of the mental and physical health issues my parents and grandparents have. Autism, ADHD, IBS, acid reflux, chronic back pain, and various other things I don't think I have a diagnosis for. Just... why do these things come hand in hand, and why can't I return the physical health ones and trade them for motivation to do things or something like that
@GodofEels4 жыл бұрын
My mother once had chronic back pain and had to use a wheelchair for a year because it was too painful to walk. Once, when she was out with friends, a man was staring at her while she used the wheelchair. She moved her leg slightly and the man exclaimed that he knew she was faking it... My mother never claimed to be paralyzed or anything. Frankly, people need to stop. I was going to add more to that sentence but... People need to stop. Just because someone doesn't fit your description of a disabled person doesn't mean they aren't disabled.
@aryore24114 жыл бұрын
He actually said that out loud to her? That's so fucking rude. The nerve of some people.
@christalcavanaugh4 жыл бұрын
E-mile B people are so set on the idea that wheelchair = paralysis. You can’t move your legs or feel anything below the waist (but of course you can go to the toilet on your own because otherwise it’s icky) Anyone who is able to move their legs at all is probably faking and ambulatory wheelchair users are DEFINITELY faking
@YuBeace4 жыл бұрын
I always say needing to use a wheelchair should be compared with having to lift something extremely heavy. Can you do it for a couple of steps? Yeah, sure! Can you do it for over 100 meters? Uhhh.... And that's where the wheelchair comes in. Some people can carry themselves very shortly to like, pick up something off the shelf or something. But then they gotta sit down before bad things happen.
@tatjanabacovsky48104 жыл бұрын
E-mile B that’s horrible, people suck! My sister’s friend suffered myocarditis at age 18 and had to use a wheelchair for a year to give his heart the chance to heal. It wasn’t that he couldn’t walk, but that he SHOULDN‘T. There were also some delightful people who questioned his motives at every turn -.-
@YuBeace4 жыл бұрын
@@christalcavanaugh Right? I can use my legs. And I don't even have spinal problems! So why do I need a wheelchair? Well, I have a severe case of POTS, which means that if I stand upright, my blood does NOT go to my brain anymore, so I need to be seated if I don't literally want to faint after 10 minutes. Can I stand up? Technically, yeah. Can I walk? Sure. But eventually I'm gonna have to go down before my body does it for me.
@JesperDramsch4 жыл бұрын
Anecdote about doctor's getting it wrong: Doctors literally didn't see my leg was broken on an X-ray and sent me home. A broken bone. In an X-ray.
@elphabarichardson6074 жыл бұрын
I had spiral fractures in three bones in one leg. The urgent care doctor said I had a sprain despite having the X-ray in front of him. He prescribed physical therapy. The physical therapist pretty much called me a cry baby (I am not). Weeks later, an MRI was finally done. The fractures had split and I had extensive, severe injuries to my soft tissues. It caused permanent disability and constant pain. I recently posted about it on a video about how women's pain is often ignored or misdiagnosed. I posted because the PT said that he treats football players with worse injuries who do not complain as much. He also suggested that I "must" have had an epidural when I had my two children. ( Nope: Nearly 100 hours of labor between the two of them and only 12-13 hours with an epidural due to high blood pressure and the expectation of a C-section.) My leg was huge and red and would not bend or straighten completely, nor could I lift it. (I still cannot.) A guy repeatedly called me a liar and argued with other people because there is "no way" a doctor misses a fracture. He even started belittling me because I did not advocate for myself. (I was a victim of domestic violence. DV messes with how people process everything, especially when the abuser is sitting in the hospital room with you acting as if you hurt yourself and they are a hero for taking you to the doctor.) Medical professionals mess up all the time. The people whose diagnosis they mess up are not at fault.
@rhiannonsieg27754 жыл бұрын
@@elphabarichardson607 I'm honestly speechless. First of all, even if it had just been a sprain, that PT is extrenelt unprofessional and must have either completely disregarded what he was taught or was taught different from how universities teach now. I'm a nursing student and literally like the very first unit we had we learned how important it is to note that pain, subjective, extremely personal, and variable. I hope that PT gets fired honestly. And the doctors 🙈
@alanas41644 жыл бұрын
literally same!!! i had a broken growth plate and was told to walk on it for 3 days
@NotSoNormal19874 жыл бұрын
They didn't see my husband's kidney stone either. He needed surgery to blast the sucker out. It waa bad.
@Strega_del_Corvo4 жыл бұрын
They didn’t see I had chickenpox even though I had a watery blister on my abdomen and sent me back to work with a pregnant lady.
@jen.jen66813 жыл бұрын
This is the first time I’ve ever felt like commenting on a you tube video. Your video really made me think. I constantly judge people for parking in disabled parking spots. I’ve been very ignorant of all the issues you described in this video and I feel genuinely ashamed of silently judging other people whose lives I know nothing about. Thank you for making me think. xxx
@pamelagonzalez89472 жыл бұрын
Thank you for judging in silence. (I’m not being sarcastic).
@jen.jen66812 жыл бұрын
@@pamelagonzalez8947 I just don’t judge now. Do you mean that it’s better to judge silently, than to accost random people and demand to see proof of their disability? I suppose, but it’s still toxic really. I’m just trying to be a better person these days. The last two years have taught me that you just never know what someone else is going through, and small things you do can either have a horrible effect on someone’s day, or make it way more lovely. Today, a lovely lady gave me a £1 for a play digger for my wee boys as there was no cash machine around and the place didn’t do cashback. Such a lovely thing for her to do and it made my day, and my boys’ day too. The other day the binmen brought my sons an Easter egg each as every Friday when the bin lorry comes to empty the bins, my obsessed wee boys wave frantically at them and shouts thank you for emptying our bins! I just thought that was the nicest thing! Every so often, if I’m in a drive through queue, I’ll pay for the person behind me, especially if she is on her own with kids in the car. Everyone needs a boost, and no one really knows what anyone else is going through. Life can suck sometimes, and the last two years have been terrible for everyone. Hopefully we all have a little more understanding of one another. xxx
@Nerdorkgeek2 жыл бұрын
Thanks for listening and being willing to learn :) I hope that more people gain those qualities
@midnightmoth62614 жыл бұрын
I have two friends, let's call them Jean and Billie for privacy reasons. They both use wheelchairs. Jean is bound to it 24/7 because she is an amputee and has no legs, and Billie uses a wheelchair because she was hit by a truck a few years ago and has a severe spinal injury. But, get this: Billie learnt to semi walk again, but seven years later, she still needs crutches to do so. But people have seen Billie get up in the middle of a store and switch to her crutches, and no one questions it because since the accident, she has a lazy eye and can't generate tears or spit (she constantly chews gum and needs to put eye drops in a gazillion times a day). Therefore, people can accept Billie getting up because she "looks disabled". Jean, on the other hand, will always get asked why she doesn't just wear prosthetic legs. She has tried prosthetic legs but finds them extremely uncomfortable and just prefers to wheel around. She's always had better upper body strength anyway. I find it so weird that people can accept Billie getting up in the middle of a store because she "looks disabled" yet Jean WHO HAS NO F*CKING LEGS is always judged. People are so screwed🙄
@_TSC_464 жыл бұрын
Just imagine your friend getting bullied by a person you had never met before and she stood up😳 and the person got scared cause they were like “why do I hear boss music?” Also jean Can bite people’s Achilles’ tendon 😂
@douglastrazzare32984 жыл бұрын
everyone's going through something. it's tough to look for the best in folks, but i think we usually get what we expect
@oliooh56474 жыл бұрын
They should all just mind their own business tbh 🙃
@user-rh7nd5xv7y4 жыл бұрын
@Catalina C. *yet
@iSheree4 жыл бұрын
People need to mind their own bloody business. I have multiple physical (including spina bifida) and mental disabilities. I use a wheelchair for long distances e.g. shopping. One day someone decides to scream at me for standing up out of my wheelchair to put it in the boot of my car. Back then I could still walk (although very painful and exhausting) and drive. I can no longer drive and I am losing my ability to walk each day that goes by. I consider myself very lucky to still have the ability to walk and I think people are very rude and closed-minded. I would rather use my wheelchair than suffer trying to get to where I need to go!
@TheMakeupChair4 жыл бұрын
I can’t believe someone would go to the effort to try to disprove someone diagnoses. My mom and I were misdiagnosed for years, my mom for almost 50 years, EDS is so complicated, I’m still trying to understand it. Imagine if instead of wasting time trying to disprove a diagnosis they’d help people get diagnosed or understand their diagnoses the world would be a better place.
@trainwreckfucku19914 жыл бұрын
I'd just like to remind everyone that munchausen is still an illness and while they are suffering in a different way than they say people with munchausen have often suffered with neglect and abandonment in their past and they deserve the same respect as anyone with an illness.
@Plant_Parenthood4 жыл бұрын
Its like when someone makes a suicide attempt but doesnt want to die and people say "oh thats just a cry for help" like fuck, this person is literally crying out for help; maybe they actually need some help!
@helianthe34574 жыл бұрын
This is why it pisses me off so much: those people calling everything munchausen are dissmissing ALL illnesses and disabilities in one swift blow. They talk about it like it was some kid's tantrum. It disserves everyone.
@d.rabbitwhite4 жыл бұрын
@@helianthe3457 And even a kid's tantrum is a valid emotional response, developmentally.
@wolpertinger.4 жыл бұрын
trainwreck fucku 🙄 disagree
@zariamonet77824 жыл бұрын
Hunny Bunny that’s okay. You don’t have to agree because it’s just an opinion.
@doctorbone36553 жыл бұрын
I didn't even know Jameela was disabled prior to this. I look up to her even more now. I don't have an *invisible* disability, but I'm very much disabled. If it wasn't for my service dog I would have very little independence.
@ambergardener91144 жыл бұрын
I have ADHD, and even though it's not a disability it's incredibly frustrating and hurtful when people don't take me seriously (which ironically is also a symptom of ADHD- having RSD). I have been told numerous times that I don't look ADHD or that I'm too smart to have it. One of the most frustrating things is being told by a teacher *during a test* "you don't really need this extra time, do you?" And I'm like -yes I do, and you talking to me isn't going to help me finish this test any faster...
@courtneyjohnston26004 жыл бұрын
I have ADHD too. I don't know if this will help you but I foind it really validating when someone let me know that it is very much a disability. It's a considered a learning disability by professionals in where I live. It's also debilitating in a lot of other ways. It's both a neurotype and mental disability in every sense of the word. Much like autism. I recomend looking into the social model of disability too in case you're curious!
@TheSparklyB4 жыл бұрын
I have ADHD also, and it is classed as a disability. I wanted to get my diagnosis so I would have provisions made for me at work, since I had to move my work premises due to bullying because of issues caused by my ADHD. Sometimes when I tell people about my ADHD it feels as if I’m reeling off a whole list of excuses. I’m forgetful, I have time blindness, I have problems regulating emotions, I have issues with procrastination, I’m sensitive to smell, light and sound, I hate the feeling of some clothes on my skin, I have sleep issues, anxiety, BFRBs. ADHD is linked to so much of how I am as a person that it’s hard for the things I do, not to be linked. But telling that to someone else often makes it sound like I’m making excuses, or that it all sounds like too much. There are more things that I haven’t even listed. I think there are still a lot of people who don’t even believe that ADHD is a real thing. I mean I don’t even know what it would be like to not have my brain, to be able to go through life as a NT and what that would have meant for me as a person. I’m editing this comment as well to say whilst I did quite poorly at school, I ended up returning to study in my late twenties and I have a Foundation Degree and a Bachelors Degree. ADHD has nothing to do with intelligence.
@mellenique95794 жыл бұрын
I have finally found a community that feel what I feel about being a teen with ADHD
@MlleSallyBrown4 жыл бұрын
@@TheSparklyB You described my exact situation. Thank you so much. It feels good knowing I'm not alone.
@lolxdrofl.demeh.3154 жыл бұрын
Anytime I say that I have ADD people be like: „ No, you are not hyper“ And I am like: Yeah, thats why there is no H in there. Or „Are you sure?“ Yes, I was diagnosed. Because I was diagnosed very late and my father always put a lot of pressure on me to perform well in school, I learned to kind of mask my ADD very well as a child (it actually says so on the slip of paper with the diagnosis from my doctor). I can actually keep focus in a controlled environment in a conversation so most people will never know and you know I am choosing the environment I sit in when talking to person very deliberately. But when I have to talk without talking points and there is something outside the window I am lost. So yeah, maybe you didn’t realize that I have an Illness that I learned to mask from a young age and that needs tests to be diagnosed that you didn’t run in our little conversation here but trust me and my doctor when I tell you that I do in fact have an Illness that is also non of your business unless I explicitly tell you to care about it.
@sarahburroughs88074 жыл бұрын
Oh my god you are literally the first person with any sort of platform to point out that Munchausen's and Hypochondriasis are mental illnesses and therefore still chronic illnesses/disabilities. Thank you! Honestly, you're one of the only people I've ever heard verbalize that period. It's a huge pet peeve for me in support groups when they judge people with these conditions. Yes, we are not obligated to be nice or not be offended by how their actions affect those of us with the real conditions (especially those in denial of their mental illness), but what they are experiencing are symptoms of their illness.
@TheViciousVendetta4 жыл бұрын
Such a good point!!
@pepesoria4 жыл бұрын
Accusing someone with a recognized illness which causes the afflicted to believe/present illnesses they don’t have, of “faking it” is the height of irony (I love irony)
@kaiyodei4 жыл бұрын
hurrah for neurodiversity. it's not just for autism, and BPD anymore. only that for Munchausen's, people might scam others. and owch to Munchausen's by proxie. but hey, won't the world be boring if we were all the same
@juicyparsons4 жыл бұрын
that makes sense. we work with someone who everyone accuses of being hypochondriac and I'll admit I've never seen anything like it but she generally is suffering to a degree even if it's mentally/emotionally and that's what matters. I have SPD so I can understand from that point of view. thank you!
@willd.48084 жыл бұрын
I’m both disabled and a hypochondriac...my own worst enemy!
@jmanna56504 жыл бұрын
I once responded to someone giving unsolicited advice to 'cure my problems' with "Congratulations on your doctorate in Medicine!" "What? I'm not a doctor." "Exactly."
@miaxx9374 жыл бұрын
That reminds me of the time a guy tried telling that essential oils would cure my epilepsy
@zoe_astra4 жыл бұрын
I’m gonna have to start using this one :)
@mayaraalmeida4564 жыл бұрын
J Manna HAHHAHA Will definitely use that
@wrenclark49074 жыл бұрын
Jessica: Am I looking my best rn? Me: ye- Her: *no* Me: 👁👄👁
@Jellybeansatdusk3 жыл бұрын
I think that because her default is 10,000x better than the rest of us can hope to achieve, it’s hard to tell when she’s not feeling well and just powering through because she’s so dedicated to her work.
@wrenclark49073 жыл бұрын
@@Jellybeansatdusk yeah very well put
@atree92843 жыл бұрын
I swear she looks good in every color!
@Jellybeansatdusk3 жыл бұрын
@@atree9284 gingers are magic like that. She even goes a step farther with her red red hair.
@adriarchy3 жыл бұрын
I'm just taking this as actively not putting limitations on yourself. The best is *always* yet to come 💁🏼
@allisond.464 жыл бұрын
"Jessica doesn't drink because she thinks her body is a temple." No, actually, she doesn't drink because she doesn't to go into a blood sugar crash/respiratory arrest and die. Something like that, at least.
@Shadow-zf5uc4 жыл бұрын
And that should have been acknowledged in the article. It should also be known that the reporter sucks for not putting that in.
@That_Awkward_Mum4 жыл бұрын
...And what's wrong with choosing to be sober anyway?
@kimberley90894 жыл бұрын
I read this as “Jessica does not drink any form of liquid” instead of alcohol and I was confused on how Jessica was alive. I forget people drink alcohol.
@cordeliaface3 жыл бұрын
@@That_Awkward_Mum OMG this. Some of us don't drink because alcohol can mix with our meds... And maybe we never developed the taste for alcohol to begin with?
@rachelwainwright87944 жыл бұрын
I have scoliosis that some days I can’t dress myself and others I can go on a 10 mile walk. It all depends on the day and what I’ve been doing.
@chalseoko4 жыл бұрын
What do you do to manage pain? I have gone to the doctor a couple times and they never believe me
@eileenmarie16524 жыл бұрын
I have bad scoliosis because they wouldn’t put me into a brace, not as bad as some people, (32°) but it is enough that I cannot walk for more than a mile on any given day. Started physical therapy and I am doing better, but it still is bad :( I feel your pain
@taleef17604 жыл бұрын
Big mood 😑 Some days I’m okay and other days taking a step will send me into crazy pain for seemingly no reason.
@rachelwainwright87944 жыл бұрын
I’m currently on slow release tramadol but this isn’t great for long term because I can’t drive on it 😫 mine is 51 degrees and they’re refusing to do anything else it’s infuriating.
@orvilletootenbacher64344 жыл бұрын
@@chalseoko chalseoko I have scoliosis too and I went to a physiotherapist for my back pain, she gave me a workout routine to strenghten my back muscles. I recommend you to go to a physiotherapist and if you aren't able to right now, try the "Superman" exercise.
@sugaredoleander4094 жыл бұрын
"it's just too many things to happen to one person" able-bodied people and neurotypicals crack me up sometimes. i mean, in an enraging way, but it's just........the pure unawareness of privilege. must be bliss
@SlytherinBookworm4 жыл бұрын
Sugared Oleander I mean, as an able-bodied but extremely clumsy person I can definitely sympathize with having a strange list of specific issues that people don’t believe. (I have twisted/sprained my ankle playing duck duck goose, ram my elbow into ceilings/walls constantly, and I have somehow managed to trip going up stairs in the strangest ways possible, so someone having multiple issues that have more reasonable explanations is completely believable to me) But yeah. Most of us are completely unable to understand or sympathize and that is a major issue that needs to be addressed.
@zsuzsannamezey83614 жыл бұрын
@@SlytherinBookworm maybe you have dyspraxia.
@lshaw3034 жыл бұрын
How do you ram your elbow into a ceiling? That is extreme clumsiness lol. I'm the same though so many broken bones from having zero spacial awareness
@case34744 жыл бұрын
@@SlytherinBookworm One time I killed a fingernail because I was so excited about a new Harry Potter movie that I jumped up and smacked it hard on a metal pipe. The fingernail turned black and fell off - I did go see the movie in theaters, though, and the nail eventually grew back.
@Painsomniac4 жыл бұрын
Sugared Oleander THIIIIIS. it’d be cute if it weren’t so invalidating. Like, look bud, I’m just as annoyed by the things my body decides to do on a daily basis, but that’s no reason to go around accusing strangers of lying.
@Flierarchy4 жыл бұрын
Mom: You need to stop being so lazy, you've gained so much weight! You're exhausted all the time because you're fat! Me: *goes to the doctor, gets diagnosed with hypothyroidism, an autoimmune disorder, a reproductive problem which also causes insulin resistance, and a couple of related hormone problems that all require me to be on medication for life* Mom: Oh... well, maybe your medication will help you lose weight! Me: thanks.
@beccaw743 жыл бұрын
Oof, as someone who no longer has a thyroid, I can feel your pain about the hypothyroidism. Little to now energy, and brain fog are definitely not fun.
@yippeeflowers3 жыл бұрын
if only there was a medication that made your mother a better person ✌️😔
@HOHNancy3 жыл бұрын
I have hypothyroidism too. Hope you are doing ok.
@colorbar.s3 жыл бұрын
that's absolutely disgusting. all bodies are beautiful.
@tiarezavaleta88503 жыл бұрын
My mother is also like that, just because she also has hypotiroidism but has a lot of energy she thinks I'am lazy for having low energy some days. The thing is that I have been diagnose with ADD and I suspect my mother have ADHD, so she is more in the hyperactive spectrum and experience the same condition in a different way.
@nekkidnora4 жыл бұрын
I've also heard that my 5 year-old speaks "too well to really be deaf", which I know you, too, have dealt with. My older sister was in a wheelchair for 5 years through middle/high school because of a bad judo injury. In her 12th grade, when she had begun to recover some movement in her bad leg, she stood up from her chair in class to reach a book she needed on a high shelf. Her teacher made a big deal about her "MIRACULOUS RECOVERY!" and spent the next six months 'til graduation making snide comments about whether my sister really needed the chair, or just wanted special treatment. (The special treatment of having to wheel around the outside slope of the school building in Canada, in winter, because the elevator kept breaking. The incredible honour of being forced to eat in the nurse's office with the other two wheel-chair-bound girls because the school didn't think it was safe for them to be in the cafeteria with the other kids. The luxury of waiting an hour after school for the bus that would pick you up. Amazing.)
@cyn44764 жыл бұрын
I stood up to walk into a public restroom and was told I walk fine. Yes, I do, thank you. I also suffer from chronic pain and would not be out in public if I had to walk all day. Unless one knows what a person deals with, one cannot make assumptions about why they are using a chair, a scooter, a walker or crutches.
@leahdragon4 жыл бұрын
This pisses me off so badly. I’m disabled and have actually have EDS and fibro. Sometimes I’m in a wheelchair and sometimes I’m not. I get comments all the fucking time for this. Like my joints are worse some days than others and not all disabilities are visible so people should just keep their comments to themselves.
@lisal4404 жыл бұрын
Wow that’s bullying! And sadly I’ve found that adults bully kids A LOT!!! Ignorant people will be ignorant! 🤦♀️
@gia95514 жыл бұрын
It’s really weird to me how old people can use wheelchairs/walkers as needed but when younger people have to use them they are restricted to being fully dependent otherwise they’re faking it? Whaat?
@leahdragon4 жыл бұрын
gia Yup. This is super fucking annoying. I can walk short distances pretty easily but give me a whole day of walking and it’s 50/50 on whether I’ll need a wheel chair for the day. It’s awful because I’m sick or getting jokes about it. Was in Disney last week on my honey moon and the first day walked the whole day. Second day had to have a wheel chair. The third day we spent by the pool letting my joints recover. That night I was recovered enough to sprint a short distance to be first in the queue to take a picture with kylo ren (virgin holidays Star Wars holiday, we got a special meal with a talk about galaxy’s edge and for to take pictures with all the characters and like the big kid I am I was way too excited) and someone commented ‘Your legs heal fast.’ Like no dumbass. A short run of 10m after a day in a wheel chair and a day by the pool is achievable especially when pumped with excitement and adrenaline. Doesn’t mean I’m not disabled and that I don’t have crippling pain and joint issues. I also paid for running the next day with my joints being more painful than usual 🙄
@historymysteries41344 жыл бұрын
In the UK, there is NO such thing as “registered disabled” and people should stop asking if I am.
@maxximumb4 жыл бұрын
Technically there is a thing as 'registered disabled'. Some local councils hold a voluntary register that helps them provision care in their area. It doesn't have any implications or benefits for the disabled person. It's just a thing that was implemented back in the 1940s and so many people assume that all disabled people are registered. What I don't understand is why people feel the need to ask that question. Is it that they think that without registering as disabled you're not officially or really disabled enough? Or do they assume we need to be tracked in the community so we don't 'infect' others? I'm technically 'registered disabled' as I have asked my local council for some help in modifying my house to make life a bit easier. Well they suggested I get a bench in the shower and a hand rail so I don't fall over as often and they offered to install a second hand rail on the stairs.
@opheliaismyname91804 жыл бұрын
I had a friend ask if I was on benefits due to an illness I have. I'm not even diagnosed yet, sweetie, and if I was, I'm "normal" most of the time, they'd never give me anything. One of his parents is actually disabled, I'd have thought he'd know how much of a pain getting anything off the panel is
@DiegoBrando4 жыл бұрын
This. So much this. Not even my insurance company keeps track of my disabilities (and they should lol).
@lindatannock4 жыл бұрын
I was in a theme park in Florida, and was using a mobility scooter. A member of staff told me to "get up and go and stand in the queue". Yes, really. I refused, and the look of rage on the girls face was unreal! She even got another member of staff who asked me to prove I was disabled by showing them disabled I.D or whatever. I honestly wish I was kidding! I was embarrassed and felt totally humiliated. I sat and glared at them and said point-blank that I could not stand in a queue, hence the use of the scooter! I sat there until they said my family could queue and I could wait for them to get on the ride. My question is why couldn't they have said that in the 1st place?! 😡 I told them I didn't realise I had to "prove myself" to them. Total ignorance. (I might add that the staff at the rides in the rest of the park were fantastic).
@cwoosh4 жыл бұрын
Wow, that’s crazy!!😡
@Bushwhacker-so4yk4 жыл бұрын
“It’s common for people to have more than one thing wrong with them.” OMG anything neuro or mental! All of those are like, born with one, develop five on top of it.
@malucos003 жыл бұрын
I have very severe social anxiety disorder and agoraphobia, but no one believes me because I take care of my mental health and have been taking medication for it for around ten years. Turns out we are not allowed to get better without being accused of lying.
@heatherromberger72704 жыл бұрын
I also find this personally offensive because people think disabled people should have to explain ourselves all the time and then they call us liars just because they don't understand it. I have a long list of diagnosis too (EDS, POTS, MCAD, cervical instability, trigiminal neuralgia) but I look perfectly normal. That makes people think I should prove my disability.
@littlerayofsun4 жыл бұрын
Ur rocking it heather :) hope ya have a beautiful day
@qu3enpersephone4 жыл бұрын
omg duude I'm also a zebra potsie! (sorry for getting "excited" about this but it's rare to find someone who gets it. and yea I understand so so much. I've been in the ER and had doctors not give me a second glance because I look like a healthy 18 year old. not to even mention how shitty it is at school or other professional settings, having to explain myself to people. I've literally had a TEACHER ask me "did you give up on school?" like WHAT. it hurts so much to hear that shit
@RL-os9xl4 жыл бұрын
You can’t control what other people think, so please don’t worry about these insensitive and ignorant ********* Heather. Have a lovely day💐
@maudvanderhaar70594 жыл бұрын
Heather Romberger i can even relate a bit and i just have add, i cant imagine how frustrating it must be if you have an illness that physically hurts you so bad
@heatherromberger72704 жыл бұрын
Thanks everyone! Sometimes I really feel all alone but y'all made me feel like someone out there understands. It's honestly most hurtful when it comes from your family. I worked as a nurse for 15 years until I was told that I was "too sick to work", still my husband thinks I don't do enough because he works and I'm on disability.
@beep61854 жыл бұрын
About the thing where they were like "she has too many things so it cant be true" Tell that to my autism, OCD, anxiety, paranoia, tracheomalatia and general muscle deficiencies
@bestrafung27544 жыл бұрын
I couldn't agree more.
@scouttyra4 жыл бұрын
And the "funny" thing is some illnesses/neuroatypicalities often lead to/make it easier for other conditions.
@patheticmortal3734 жыл бұрын
Depression, anxiety, chronic headache, migraines, difficulty in folate absorption, chronic tendonitis, PCOS, dyslexia, dyspraxia, somewhat frequent nausea, sensory processing disorder. But that's too many, so maybe I'll just ignore the worst ones bc they must be fake 🤷♀️ Edit: I forgot a couple 😂
@Yakarash4 жыл бұрын
Lol. I didn't want to post this, because I didn't want to start a contest who is the most "special". But I guess this is a safe place. ;) Autism, dislexia, asthma, severe allergies. Short sighted to the point I am nearly legaly blind.
@jaspermoth11454 жыл бұрын
While i only have a small group of conditions, there are definitely additional aspects that make me seem "too special". Autism, Sensory Processing disorder, tourrettes, anxiety and im trans, non binary and pansexual. Im just very colourful
@CHIrminsul4 жыл бұрын
One las thing. Heard someone accuse my brother, who was in an electric wheelchair, with Duchenne Muscular Dystrophy. Could not walk, could only move his mouth, a couple fingers, had a bypap (sp?) Machine and a nurse with him. And this person yelled at us for using a handicap space they wanted because (and my bro was driving down the ramp) "you don't need it! Tell the man to stop faking and get up and walk like a normal person!" After we learned the whole situation with the atore security, I learned that apparently being 3 months pregnant meant she needed the wheelchair accessible space more than my brother. Who BTW she kept saying was faking it while security was getting her to leave.
@gingaswagger79694 жыл бұрын
I feel bad for her future kid..
@gabbidurham4 жыл бұрын
3 months pregnant is barely even pregnant
@eleigar14 жыл бұрын
@@gabbidurham That lady seemed like a lunatic but your attitude isn't much better. The first trimester of pregnancy can be hell because of nausea and other things. Didn't you just learn from the video that just because you cannot see somebody's disability/illness, doesn't mean that it doesn't exist?
@mammamonssterr4 жыл бұрын
@@eleigar1 being pregnant isn't a disability, wanting to take the spaces created for disabled people when you aren't is shitty as fuck, and yes the first semester is hell but not because the belly is so big that you need to rest all the time, is because you are vomiting and the symptoms of pregnancy are annoying, I don't think you need to use those spaces still. A pregnant woman doesn't deserve it more than a disabled person, and if that woman tells that person to "stop faking it", she deserves it even less. (Sorry for my English)
@aprilmackow76833 жыл бұрын
Thank you so much, as someone considered “good looking” like yourself and has an invisible chronic disability, I’m constantly struggling with people thinking I’m faking. I often hear people say to me you make yourself a victim. I understand why the news hurt you, it hurt me too.
@thenunujournals4 жыл бұрын
-"You don't look disabled!" -"Thanks, you don't look ignorant!"
@MxMelmelB4 жыл бұрын
"You're too young to have back pain" I have severe scoliosis that causes me to dislocate several ribs at a time on a regular basis and causes me severe pain if I'm on my feet for very long Karen "You have a headache AGAIN? That excuse is getting old" I've literally had headaches on a daily basis with frequent migraines for the last 9 years Karen get used to it "Why are you freaking out? It's just a bug" I suffer from schizoaffective disorder and seeing insects triggers my psychosis KAREN
@autumnshaymartin4 жыл бұрын
OMG the last one is such a big one for me! Before certain symptoms developed, I didn't have issues with most bugs. Because of that, when I get upset by bugs now, people talk to me like I'm a toddler having a temper tantrum or like I'm doing it for attention. Even the people who KNOW about my psychosis! The worst is when people talk about how much they hate anyone who kill bugs instead of taking them outside or letting them roam. Like... if I could interact with a bug enough to move it outside instead of killing it, believe me honey I would. But I'm not about to risk not being able to sleep for the next 3 days just for a spider... Like, I have shit to do
@dissadistfied4 жыл бұрын
what causes the headache?
@MxMelmelB4 жыл бұрын
@@dissadistfied in 2011 I hit my head twice in one day getting in and out of a car and messed up my neck and since then I've had headaches every single day
@wolf10664 жыл бұрын
Yeow! A friend of mine - has had severe scoliosis for years, so I know that's not a pleasant state to be in. All the best, mate.
@so35944 жыл бұрын
This is so important!! I once mentioned in passing how I had been hospitalized a bunch and did not even mention WHY or what for, and a co-worker said I was too young to be sick. I was 19. Like? Do they think only seniors can go to the hospital I do not understand? Also, I feel you on the bug thing. I was always afraid of bugs as a child in a normal, reasonable way some children are. Then I got into a car crash and ended up with a bunch of mental illnesses including ocd and specific phobias which include 2 types of bugs. It dictates my life and I’ve tried exposure therapy but it’s still so bad. And it’s awful because people do not understand and it’s so embarrassing when I see a bug and scream and everyone is just shocked by that reaction but it’s my body going into fight or flight and it’s so awful. Anyway, all this to say thank you for sharing your story ❤️
@iciajay68914 жыл бұрын
I have cptsd, anxiety, depression, asthma, fibro, ibs, anemia. I present as able bodied. It seems people think disable people have to be miserable all the time. Goodness forgive we are ever comfortable.
@97indianuk4 жыл бұрын
Icia Jay Thank you for saying that. Yes, life will be more challenging. But we can still be strong and happy and content with ourselves and our lives.
@sheenawarecki924 жыл бұрын
Yes god forbid we enjoy nice looking clothes and laugh once in awhile. Loved the finger pointer for "faking" i get when that happens
@haleycrivello64394 жыл бұрын
I am allergic to walnuts, some days I have a bad reaction to it, and some days I have no reaction whatsoever. Does not take away the fact that I am still allergic.
@allllyyyy4 жыл бұрын
Jessica: “am I looking my best right now? No.” Me: is sitting in my dirty pyjamas eating cereal knowing I will never look as good as her
@arxxslxxgh4 жыл бұрын
MOOD
@animalobsessed14 жыл бұрын
Why are your PJs dirty? Maybe you should wear some clean ones
@allllyyyy4 жыл бұрын
ActiveAnimals good point
@p-trishscove97714 жыл бұрын
@@animalobsessed1 not sure if this is the case for OP but sometimes when ppl are extremely depressed even just sitting up in dirty pjs eating cereal is extremely difficult. So maybe don't judge. I personally sometimes do not have the energy or will to sit up when I am having a bad day. It feels like your body is full of lead and is too hard to move. And for some ppl having a bad day like that it's a great achievement to be sitting up and eating
@MrCmon1134 жыл бұрын
Your looks are determined by the bones and muscles in your face, not what clothes you are wearing.
@nyxiedoll4 жыл бұрын
i'm so sick of being accused of faking my disorders, because i have "too many" and apparently "you can't have THAT many things wrong with you" lol, non-disabled people are so annoying
@khaxjc14 жыл бұрын
nyxiedoll worse when its a fellow disabled person and they think their experiences set the standard
@artieatdawn4 жыл бұрын
The allergy issue specifically drives me up the wall! One of my kiddos was born having extreme reactions to breast milk that contained traces of cow's milk and was so sensitive that even being touched by hands that had traces of milk on them would send her into a reaction. She outgrew that by a year. In another vein, I personally have eaten mushrooms my whole life yet last year I suddenly and abruptly became allergic to mushrooms. You can become allergic to anything at any time. Allergies aren't fixed!
@laneybug35924 жыл бұрын
That's kinda sad that you're suddenly allergic you mushrooms, but also I feel that because I started getting really bad hives and oral allergy symptoms (mouth swelling, itching) to a handful of fruits and vegetables that never bothered me as a child. But now I can't eat an avocado without my lips swelling up
@laneyowner4 жыл бұрын
Well great now I'm suddenly worried I'll get another allergy
@tf76024 жыл бұрын
On that note, allergies can also get better! I used to be unable to eat even one slice of peeled apple and a year later I COULD SUDDENLY EAT THEM AGAIN! I'm still so pumped about that! (I wasn't only allergic for that one year, but it got worse over time and at some point the itch wasn't worth the juicy apple)
@cyberseedling11004 жыл бұрын
Exactly! I developed Oral Allergy Syndrome after over a decade of eating apples and bananas and it's a whole adjustment. Idk why anyone would want to fake an allergy in the first place
@headempty91124 жыл бұрын
Laneybug not to be alarmist, but if you haven't , yet I strongly recommend you go see an allergist so they can figure out exactly what's causing these reactions, it's just a swollen lip now but next time you could go into a life-threatening anaphylactic shock.
@karynna45804 жыл бұрын
I was just diagnosed with eds as well as pots and a few other genetic disorders, and I can’t even begin to explain how wonderful it is to see people with platforms speaking out about invisible illnesses. A lot of my friends and family don’t believe that I’m in a constant state of pain, so seeing you speak about this has been really encouraging. Thank you
@danielledougal70784 жыл бұрын
The first time I met my boyfriends father told me: “You’re only as disabled as people treat you!” And “if your social support money stopped I’m sure you’d find the energy to work” first time he met me- he had no idea what I go through, I have chronic migraines, fibromyalgia, pcos, colitis and the good old fashioned depression that comes from constant pain and being house/bed bound. But yknow- some old white guy I didn’t know obviously knows my body and abilities from looking at me, than myself who started getting my diagnosis’ at age two (again, obviously old enough to start faking illness to the level of getting treated by professionals)
@kidzinamerica20084 жыл бұрын
Danielle Dougal Some old white guys tried to tell me about myself too! I started going to middle aged minority female doctors and the difference is substantial. When you’ve been through shit in life, and overcome obstacles, it makes you a more compassionate person. So, minorities are _usually_ better doctors. Sorry but it’s true. My best doctor ever is a Muslim woman, other is an Iranian man. They’re both practically saints they’re so great. I have invisible disability and have to deal with EVERYONE in my life about it. It’s pretty much the most un-fun thing ever. Why TF would ANYONE choose this? The only person who could think that has never experienced true pain or disability.
@lydwinaofschiedam26854 жыл бұрын
🤯 Those judgmental white male doctors need to find another matter to concern themselves with.
@@braelockhart5747 I'm aware, I'm agreeing with her
@Christine_9904 жыл бұрын
@@maxshrapnel8998 and how exactly are you confirming with 110% fact that you've "sniffed out the fakes" It's just a gross & nasty behavior to focus on something so negative & damaging to people. Have you ever considered what happens when you're wrong & you've damaged someone by claiming you know they are faking?
@WordBondage4 жыл бұрын
@@maxshrapnel8998 This video is definitely about people like you.
@MagicalTrevyn4 жыл бұрын
I really hope Jameela sees this just so she’s too can appreciate how wonderfully and eloquently sassy Jessica is 👏🏻👏🏻
@username923453 жыл бұрын
Had to take a moment to thank you so much for being such an aware amazing person. As a severe emetophobic, having the trigger warning for vomit was so insanely considerate. Nothing you said triggered me, but but just to see the consideration of the warning makes me so happy. I never have seen it before.
@legolasgreenleaf7273 жыл бұрын
I am also a severe emetophobe so I always appreciate trigger warnings too
@meg43224 жыл бұрын
Jessica: We're adults, we can discuss things Me, a 12 year old girl: You are absolutely right
@miriamtoliver32194 жыл бұрын
Starting young! I approve!
@maebholeary27344 жыл бұрын
Me, also a 13 year old girl: We are all adults here!!
@doc_goodfeel4 жыл бұрын
Me, a 13 year old girl: How are we more mature than some adults these days?
@maebholeary27344 жыл бұрын
@@doc_goodfeel Not gonna lie, you are very right!
@roromina27834 жыл бұрын
"Am i deeply offended by something I saw on twitter? Always" girl same.
@indiefaerie10194 жыл бұрын
When I was in seventh grade, I started having constant "episodes" where I became incredibly tired, couldn't remember things, lost control of my neck, couldn't pay attention, spaced out and head felt "fuzzy", had headaches, became very dizzy and sometimes passed out. I was talking to a girl from my gym class in the locker room about it when she accused me of faking it. No one stood up for me. Doctors weren't helpful either. I've had doctors tell me I was faking. After almost 4 years now I have not been able to get a diagnosis. It's SO discouraging trying to get help only to be met with "Are you sure you aren't faking it?". I'm too scared to try and get a diagnosis again. One day, I'll hope be believed and able to get a diagnosis.
@Bushwhacker-so4yk4 жыл бұрын
Not to be the armchair doctor, but you might want to ask about epilepsy.
@Sarahqiu4 жыл бұрын
Keep seeking your diagnosis! Keep fighting for your voice to be heard. I hope you can find a doctor who you listen to you ❤
@mementoghosty4 жыл бұрын
Keep searching for a doctor, don't give up!
@FloatingSpark4 жыл бұрын
I just wanted to add as another "armchair doctor" which suffers from a long list of both diagnosed and still being evaluated for conditions both mental and physical, both those two previous people's suggestions of possible epilepsy or narcolepsy sound like reasonable possibilities. You need to be evaluated by a good neurologist. I used to think I might have epilepsy but it didn't show up in either the shorter term strobe test or a 24 hour test. I often thought I might have narcolepsy and now that's looking very likely to be the case. Like you it showed up in my middle school years, as it frequently does, it often happens after a bad illness as it is an autoimmune disorder (the body attacks the orexin producing cells in the brain) and for me thats exactly what happened, I was always a "sleepy" child my mom so add but after I was in the hospital on oxygen, antibiotics, and corticosteroids for a bout of bronchitis that set off my asthma, I got severely exhausted, falling asleep randomly without much warning, everything going fuzzy, body getting weak, sometimes my legs will just fall out from under me (cataplexy), and I had many similar symptoms as you. There are also many other things that it could be, I've had to be my own advocate so I've learned a shit ton about health and treatments and such, but I'm still learning so much. Definitely see a neurologist as soon as you can, at least to start with.
@vampitupmanchesterchrissie12934 жыл бұрын
Loosing control of your neck should be a big red flag to something. Beginnings of Narcolepsy? Really just guessing here, sorry.
@holmes_like_sherlock3 жыл бұрын
As a Gen Z I am so happy to be praised for once! Thank you! We usually get bashed for “being depressed” “too dark” or “cussing too much” very fun. Your generations pretty cool too! Hope you’re feeling good and having a nice day, love your content!
@danawalker-berry10524 жыл бұрын
I used a disabled public bathroom two weeks ago. Random stranger: hey that’s only for disabled people. Me: how do you know I’m not disabled? Them: but you’re not in a wheelchair. Me: would you like me to explain to you in detail about how I void my bladder? Them: .....
@hayleym14834 жыл бұрын
Handicapped washrooms are different from parking spots; if that's the only stall available and no disabled person is waiting to use them, anyone is okay to use it. It's handicap accessible, not handicap exclusive.
@hayleym14834 жыл бұрын
However I understand what you were trying to point out and yeah random stranger = a dick
@kristinabenson27584 жыл бұрын
I have arthritis in both hips and spine, I am only 45 years old. Sometimes I need to use the safety bars to stand up, depending on my pain levels. I do not take any medication other the Tylenol so I hurt a lot.
@Jackylification4 жыл бұрын
Same thing happened to me a few times... ridiculous carry on
@carolinamurtha31024 жыл бұрын
I have an ileostomy (basically my colon is gone and I poop out of my stomach into a medically designed bag) and will use the disabled and public bathroom if my ostomy is leaking and i need change in the bathroom, clean up my ostomy, it’s easier in a restroom like that where I have space and access to a sink, etc. I once had to lift my shirt to a horrified individual who accused me of using the handicapped bathroom when I wasn’t(my abdomen looks insane from all the surgeries). Another time my husband came in with me because I needed help keeping things under control while he set up a new ostomy bag for me. An old woman accused us of sneaking to have sex in the bathroom 😐😑. Yes nothing screams sexy time while you’re literally trying to keep you shit together from making a mess in public and your husband is temporarily role playing as a nurse. ... Hot.
@ms426624 жыл бұрын
I realised how set people’s view of what “disabled” is when I read an article about how films casting a “blind” character have told actual blind people they’re not “acting blind” enough🙄 and it’s another example of how representation matters, some people can’t envision what they’ve never seen. Personally I can’t imagine having the gall to try and “expose” someone, even doubt them,whatever the reason!
@theescapist94504 жыл бұрын
But Jamil has lied so much before so it's kinda ehhhhh
@BeckyShipp4 жыл бұрын
@@theescapist9450 yeah you're not helping. Someone can lie about things (way to be vague, what has she lied "so much" about?) and still be telling the truth about their disabilities/health/etc. People aren't automatically perfect because they have disabilities or a complex health situation. I mean really how did you come away from this video and still think that?
@ms426624 жыл бұрын
Faith Fuller I’m actually super curious what you mean when you say that? I don’t actually understand all the hate she gets, what has she lied about, everything I’ve read discusses people’s dislike of her but I don’t actually ever hear anyone cite specific things she’s done that has warranted this much hate
@clarence52114 жыл бұрын
“am i deeply offended by something i saw on twitter? always” lmaoooo
@13gudadod4 жыл бұрын
Hotel?trivago
@eeltenaj1910 ай бұрын
I spoke at a brain injury society's fundraiser. I opened with, my name is Janet and I look really good! You don't see the fear, the earplugs, the struggling to remember where I am in the city and where my next stop is even though I've been to my doctor's office many times. I present really well all right. Until I have to speak about something more in depth than the weather, then the anxiety breathing kicks in and I sound like someone working up to a sneeze, or hyperventilating. So fun! So "fake." I can't tell u how many times people have off handedly said, "I wish I had your life" after I've told them I don't work.