Jonathan Williams-Primary Hyperaldosteronism From A to Z

[@patriciamcphail5284]

I have this dreadful disease. I was an unfortunate patient that didnt get diagnosed and was told it was all in my head. My bp was sky rocket high,low potassium and everyone of the signs of PA, yet my Dr assured me my low potassium was ,"just me" Couldnt stand symptoms any longer,went to emergency room with such a low potassium, had to be admitted and iv replaced. It was years until i was finally diagnosed, then by accident.I suffer every day now with the complications from this awful debilitating disease.

[@LindaThornton-t8l]

I have this also and complications. My veins are all incompetent and alot of other complications. I so wish I had known back in my twenties because it was obvious looking back.I have been in the hospital for cardiac complications of low pottasium and well alot of complications as you know..take care of yourself.

[@raptinbyjasma891]

Excellent presentation indeed. A pity more doctors don't look for this condition. I am one of those unfortunates that had continuous issues with poorly controlled bp. Doctors continuously telling me my illness was all in my head: by 52 years of age I was so debilitated I could no longer work. Had to resign from my job. I am still struggling with this issue, although I did eventually get a diagnosis. It is a debilitating, horrible condition because no-one truly understands it or knows how to treat it properly. As I get older the problem is getting much much worse. I am back on spironolactone, but management is poor of my condition. Your presentation has pinpointed my issue and clarified my condition in a clear concise manner. Thank you.👌✅🙏❤️

[@speaktruth9313]

Sure would like to hear from you on how you are doing… would you mind messaging me?…do you have a doctor that is helping you?

[@patriciamcphail5284]

Yes, this is exactly what has happened to me! After years of trying to get my bp down with different medicines,I was accidentally diagnosed by a gastroenterologist for a different problem.I am really struggling with the fall out from this disease, I hurt everywhere and in constant pain.

[@Housenumber68]

Hello. I recently had stroke and left side paralyzed. BP was due to PA. After aldactone 50, bp is normal now but I have been not very well. Fatigue, salt craving and mental confusion. I'm just suffering

[@54pixie]

20 years of being told I was crazy..diagnosed 5 years ago after an MI and kidney failure....oh boy

[@speaktruth9313]

Saw your note on KZbin ie hyperaldosteronism….Would love to hear your journey… did you have an adrenal tumor?

[@Housenumber68]

I recently got diagnosed after brain stroke with left side paralyzed. .. oh boy

[@DeborahHenrie]

@@speaktruth9313 Well. Sorry I didn't see your response. I started having hypertensive episodes in my late 30's. It would shoot up to 250/130. Then drop back down. One day it just stayed up there. My potassium was always low, every single time they drew the labs. I was put on a diuretic. After 2 doses my potassium level was 1.9. I very quickly had the reputation of being an attention seeking, histrionic, borderline personality with conversion disorder. Every doctor I saw believed this. So I gave up. I had an MI in 2014 and just stayed home. No fricken ER for me. Five days later I was forced to go by family. I got a stent and 5 months later another one. My kidneys went on a downhill slide. It was actually a nephrologist that asked me what my adrenal tests showed. To backtrack, I was a nurse in a past life, I found out by myself what was wrong. I told my doctor and begged him to just draw blood. He refused saying. You can't have that it's too rare. I do not have a tumor they can see. I have a pacer so I can't do MRI's. I was finally diagnosed with severe primary hyperaldosteronism caused by hyperplasia. But it was too late anyway. End stage renal failure ensued and I was on dialysis for 2 years. One day I just quit. I realized there are worse things than dying. My kidneys had actually improved to stage 4. SO they are horrible, but dialysis is not required at present. Someone cared only after an MI and renal failure. Pathetic. If my pcp had drawn blood when I was in my forties, I can't help but think I wouldn't be suffering like I am. Even my present endo doesn't really believe it because I didn't have biopsies and I won't stop my spironolactone.

[@hollywhitelow3080]

I was diagnosed with primary hyperaldosteronism 5 yrs ago & placed on Aldactone & still on Lisinoprol. Why would I need the Lisinoprol still? Also what should my sodium intake be for my diet? I've seen 2 different renal Drs & they have told me conflicting things in regards to this. I was craving salt like crazy until I took it upon myself to cut my Lisinoprol pill in half. I suffer from extreme chronic leg pain & have a vitamin d deficiency. Trying to get healthy & change diet but I'm very confused. Any advice would be appreciated.

[@speaktruth9313]

What did you do about Lisinopryl?

[@iancxy1805]

See an endocrinologist

[@speaktruth9313]

Nadalol along with other beta blockers can raise the aldosterone….so a person can be in this state due to meds… I went undiagnosed even after an adrenalectomy for 5-6 cms mass at age 45. Still my doctors did not notice and did not order aldosterone , renin , ARR, and potassium to be evaluated for hyperaldosteronism. Now at age 70 I have enlarged left venticle etc etc etc and feel so sad my cardiologist just didn’t care, said it is not in her window to diagnose.

[@paulmill9816]

why is he speaking so low and low energy????

[@annt7384]

He’s speaking at a pace so you can understand everything he is saying.