Kidney Disease: 5 Things I wish others understood about living with Kidney Failure

[@WAXMAN1913]

Boy you hit the nail right on the head. I can only hope all my family will understand the physical and mental problems I have. I'm sure they will. Every time I see some one running down the street I wish I was them. Thanks again for all you do. Chuck.

[@kidneykeeping]

I understand how you feel when you see someone healthy. I think it was four or five months into doing dialysis and I was feeling better then I had in a long time. I decided to try jogging for part of my walk. For the next two days I couldn't even walk! I've had to realized that just isn't something I can do anymore.

[@Nohndl]

@@WAXMAN1913 every time I see someone getting refills on their drinks and eating whatever they like, as I sit in thirst, I wish I was healthier.

[@samaryaa7180]

i am 17 and i am gonna start dialysis tomorrow i am so scared and rn i am watching yt videos to gain some information on it and stumbled upon your video and I wish my family would understand that I am not being lazy. They get so angry and force me to get out of bed even if when I am just sitting on bed they yell at me. I just have no energy to move my body and my muscles and bones hurt so much

[@Nohndl]

I'm sorry to hear about your struggles. How are you doing 7 months later?

[@musicislife.2602]

Thank God I found your channel. You've been very helpful to your viewers. You explain CKD in a simple but understandable way. Great job

[@kidneykeeping]

Thanks so much!

[@fedupnow530]

Thank you thank you ...i have polycystic kidneys and am at 30 % kidney function, i am starting to feel exhausted, i just happended to atubble on your channel ....your an angel ❤

[@user-gp2jo8yz9y]

My husband just recently diagnosed with stage 5 kidney failure. We were all shocked that this happened. Thank you for your video! It has helped all of us to know and respect and understand to be good to our bodies. We will all be praying for you!

[@MilestoneMarcy]

ALL of your points are right on point! This is a great video to share with friends and family if you feel you don't have the right words to explain everything yourself. Thank you for making this video! ❣

[@kidneykeeping]

Thanks for your comment! It's hard to know if my experiences and thought will be helpful.

[@coloradogirl9913]

You are so right! That's the best description I have ever heard. Thank you so much for doing this. There is literally no real kidney patient is talking about this. Thank you for sharing your personal stories and your very real life situation with us 💕

[@tantrictemplar]

I am living with CKD and your video hit home for me. I liked it so much that I'm going to share it with family, and the folks in my CKD support group. in a little over 6 minutes you accurately described what I wish those around me understood. Great job!

[@nanayaw1797]

You hit the nail all .am just speechless. Thank you ,and keep on doing the good work

[@kidneykeeping]

Thank you for your positive comment!

[@pjk1714]

You certainly summed it up nicely. Those around us dont understand how to process or the depth it changes or adjusts life while presenting all's well. Such a complicated dynamic to grasp if never experienced a life changing condition. Education is the key and true engagement.

[@kidneykeeping]

It is hard for other people to understand. And I agree with you, education is so important.

[@LoriannBragg]

Thank you so much my Husband will find out tomorrow if dialysis will start. He’s so scared and I’m so overbearing and driving him crazy. I’m trying to help but tend to overlook that maybe it’s overwhelming by me being so overprotective of him. I will for sure show him these videos. ❤

[@kidneykeeping]

It is scary and I'm so glad that you are being supportive. My husband has been a great help to me. He came with me to learn how to do Peritoneal Dialysis and he made sure he understood what needed to happen. He often asked if he could do the set up and hook me up to the dialysis machine so that he wouldn't forget how to do it. Sometime it was frustrating to me, especially when he made sure I was taking care of myself but I loved that he really cared about me and what I was going through.

[@ToniWilson-zd6ei]

I been very lucky I have been able to live on one kidney for 55 years, I had a scare a few weeks ago when my blood work came back less then it should. It look like it was my blood pressure meds but it was scary. I been trying to get myself knowable about this cause am only 1 kidney from where you are, my heart go out to anyone having to deal with this. I have worked in a dietary department in a care center and dealt with many residents on kidney d. The worst diet I ever had to deal with was the renal diet. Please take care of yourself and I will be following your vedio.

[@sashanapeart3138]

I just found out I have kidney failure and my family is really supportive and we pray a lot but their days I feel sick nd other days I feel better but at times it overwhelms me and I cry a lot but it helps for me

[@mrtraveller2020]

excellent and well spoken video

[@kidneykeeping]

Thank you kindly

[@darrylgrigg3264]

This is very informative. I knew someone a few years ago who was on haemodialysis. 3 times a week from memory. I realised the time that was consumed but your video has made the sheer mental as well as physical exhaustion which kidney failure patients have to deal with. Diabetes T2 with diet, exercise and low Metformin only is a breeze in contrast to kidney failure. Thanks for this.

[@kidneykeeping]

Life is just hard isn't it. Thanks for you kind comment!

[@kimcollard4001]

Yes to ALL THE ABOVE.. I love the Spider analogy.. :)

[@kidneykeeping]

Thank you!

[@DianaCollins-b8y]

I have been watching your videos for many months now since I was diagnosed with kidney failure. I am going on dialysis within the next few months, hopefully peritoneal. Your videos have been of tremendous help, and well done for sharing your life with others. Ken Collins, Somerset, England.

[@hollowpumpkin8701]

great and very informative. thankyou for doing this 👏

[@kidneykeeping]

Thank you!

[@Nohndl]

Thank you for this video. I think you did a great job of explaining what it's like. I forwarded it to family members thinking maybe it'll sound different coming from someone else.

[@kilpel2]

Thank you for your continued education on kidney disease.

[@kidneykeeping]

Thank you for watching my videos!

[@estellezimmerman1199]

Thank you for sharing your knowledge. This is a very helpful video.

[@kidneykeeping]

Glad it was helpful!

[@dianaboatman1970]

Oh how I wish everyone could hear this. Thank you! ❤️

[@maryamkurtha8316]

Thank you for this. I wish more people could open up about their reality. If you could do a video on coming to terms with kidney disease accepting the reality I'd appreciate it. This opened up my mind and heart. Healthy blessings your way💞

[@patriciagriffith2535]

Thank you for the videos you have taken the time to make. They have helped me realise what I can and can't do and take advantage of good days while I can.

[@peggyribaudo4361]

❤ thank you for all the information you share. You are so honest and straightforward with the information. God bless you!

[@TheMoonEcat]

I have family who may have some damage and i want to understand should it get bad enough for dialysis or transplant so i subscribed. Thank you for sharing.❤

[@kidneykeeping]

I want to thank you for learning about Kidney Disease so that you can help others! I wish there were more people like you! So thoughtful.

[@terrygermany2670]

I am so inspired by your truths. My husband is on dialysis and I'm going to get myself checked.

[@kidneykeeping]

I'm glad my video is helpful. Thank for for letting me know.

[@carlliu5549]

I have watched the first few videos of the broadcaster, and they all have English-Chinese automatic translation software, which is very good!! But this episode does not have automatic translation software and subtitles, so I basically cannot understand the content of your program , I wonder if the broadcaster can re-upload KZbin with translation software?

[@kidneykeeping]

My guess it that when a video is new, you Tube's AI hasn't had enough time to translated. I hope that now that it has been a few days the English-Chinese is available.

[@y-med8880]

You are so Kind, I felt and sense your kindness. Thank you

[@MaryGatdula]

Thank you!

[@kidneykeeping]

Thanks for all your comments!

[@SilentRunningRedux]

What are the treatments or ways of slowing of progression of kidney disease (and possible reversal of kidney disease), other than dialysis and transplant? I hear people say get diagnosed early so one can get “treatment” early. I’ve never heard what this treatment is. I can do my own research on pub-med (USA) eg, but I imagine I’m not the only person with this question. I know someone whose doctor hid from her that she had a GFR in the 50s; this GP had given the patient antibiotics she’d said she was allergic to, but the doctor didn’t take this seriously until a bit late. There likely were other causes too but this seems to have been the tipping point into symptoms showing rather obviously. Other MDs were critical of their colleague; any such approach is not intended by me in this request or suggestion for you to consider doing a video on treatment for people who’ve just learned often by surprise they have some kidney disease. What do they do next. And if MDs maybe feel they failed a patient, please address how to find specialists or discuss openly (eg “ I’m not going to try to sue you- right now I need my energy and ALLIES not blame games”). When we learn all is NOT well, what next? GREAT VIDEO SERIES. SUPER PUBLIC SERVICE BY YOU, making so much good come from your own negative experiences. THANK YOU, ALL BEST.

[@kidneykeeping]

There isn't really a "treatment" but more like a life style change of eating healthier and exercising more. There are medications to help control Blood Pressure and Diabetes, (two main causes of Kidney Disease) but those medications control the symptoms rather then fixing the actual problem and I think doctors rely to much on medications sometimes. Thank you for your comment and video suggesting. I do want to make video's to help and support not only those dealing with Kidney Failure, but those just learning the have Kidney disease and what they should do now. Thanks again for your positive comment!

[@Breezeyogi]

Excellent overview.

[@ClaireMcGuirk]

Thank you for the important information. Where would I find your videos... Maybe on u-tube?

[@christinelappin2795]

Thank you❤

[@kidneykeeping]

Glad my video was helpful!

[@zoeyjuicy9571]

Thank you so much I can share this video with my fam my husband have Kidney failure and is on peritoneal dyalisis this video can explain to them what we can't coz like you said we don't want pity just understanding and support ❤ thanks again

[@kidneykeeping]

Glad it was helpful and that it is something you can share!

[@MartinShum]

I have been on Dialysis for 18 months now , it's not too bad and better than death ! When we are over weight we do not realise that this condition increases our blood pressure which then leads to kidney failure as we age . Keep your weight down and eat a healthy diet .

[@aubreyrose135]

Thanx for d jnformatiob maam .❤ Philippines

[@zoozolplexOne]

you are my hero !!!. 😍

[@kidneykeeping]

Thanks for all you positive comments!

[@carlliu5549]

you are right ! I watch this videos again , there has been a subtitles on videos . thanks this video give me more Confidence, Experience and Encouragement .

[@kidneykeeping]

Oh good! Thanks for letting me know.

[@doreenjackson7287]

👍 Thank you , ♥️

[@alesiagilda]

I am angry as hell!!!! The doctor knew and said nothing! This needs to stop there need to be laws.

[@Nohndl]

My primary doctor told me that we needed to watch your kidneys. I asked what that meant and he said that we just need to keep an eye out because your numbers are off a little. Keep on mind I visit annually. The next year, I don't recall what happened.

[@raffyestur1448]

Hey mam! Did you feel back pain "flank pain" before you diagnose a kidney failure??

[@coffeeandhorses7991]

I definitely didn't have any flank pain when my kidneys failed or itching.

[@kidneykeeping]

I didn't notice any before I was diagnose. I experienced Kidney Pain of and on when my Kidney damage was sever.

[@raffyestur1448]

Ohh..?? I think i have to see a doctor.. I feel pain in the back right side of my kidney for a month now..

[@shawn7787]

Is it a swelling feeling or dull pain? Or is it a sharp pain.

[@janetderouin9533]

My husband is on pd dialysis and this morning we went to the gym and my husband, after 1hour had blood on the white of his eye. Is this something he should be worried about? I am worried.

[@trustinginhim3189]

Not a doctor, but I get that a lot. My eye doc says it's just like a bruise. Its not an issue. If it affects vision or us painful get it checked. If not, it's not an issue. My dad and I both with kidney disease get those broken blood vessels all of the time. Glad he's able to exercise! That's awesome!

[@jenniferhardin-cole1445]

Pretty sad news...

[@ClaireMcGuirk]

😊 Is your channel on KZbin?

[@kidneykeeping]

Yes 😊