I have just decided to do peritoneal dialysis instead of other. So this definitely was helpful. Now to inform my specialist of this, as we were getting ready to install the fistula next visit. I am 70 and don’t want the extra 2 hrs a day, travel to hospital 3 times a week. Hope I am making the right choice. I am sure I can handle this 🙏🏻
@kahiauikananigonzales455110 ай бұрын
Thank you so much for this! It’s super informative to help me help my Mom with her manual PD!
@blackwood63510 ай бұрын
Great video very helpful. I’ve been on Pd for a month due to kidney failure from lupus I will be doing my first manual in a couple days. Thank you for this God bless you
@lesleykupferer92049 ай бұрын
how are you feeling/doing now? i start training next thursday..
@1staricy2night9 ай бұрын
Thank you for this video. I am a dialysis “partner” to my husband. My first training and experiences were with manual dialysis…. but, for nearly eight months now we have been using a cycler. A few days ago, my husband had to replace the transfer set part of his catheter. In the process, his nurse detected a possible infection, and to be on the safe side, it was decided that we should (in addition to his normal dialysis therapy treatment) temporarily do a small manual bag containing an antibiotic solution during the day. At first, I felt confident as we had done manual dialysis several times. But later, when we got home, I thought it would probably be wisest to refresh my memory. It has been several months, after all, since we’ve had to do this. Anyway, this video was just the thing I needed. It acted as a short brush-up course. It all came back to me, and once again, I’m feeling confident to do this therapy. I also saved the video to refer back to, jic. Again, thank you. You’ve been a great help.
@garyheinzman6855 Жыл бұрын
You are really helping me. I have peritoneal surgery Tuesday. I have been able to share your videos with my boss, my family, and others who try to understand what I'm going through. It's been amazing. Thank you!!!!!❤
@kidneykeeping Жыл бұрын
I hope your surgery goes well and that you are able to recover quickly. Thank your kind comment. It makes me happy to know my videos are helpful. Best of luck!
@garyheinzman6855 Жыл бұрын
I graduated manual dialysis in two days. Today was my 2nd day. I did PD at home this afternoon. I am doing four yellow bags a day. 8am until 5pm. At the end I fall asleep. I work after at 6:30pm Thursday and Friday. That will be tough. Getting used to full feeling in stomach. There’s a lot to tell you but all stuff you talk about. Using Amia Baxter machine next. Now I get back bloodwork and see the dietician. Thank you again.
@oc31444 ай бұрын
@garyheinzman6855 How has your PD Dialysis treatment going since you first started? What did you learn? What advice can you give me? My dad is starting PD dialysis with me and I will be 100% responsible for him. Thank you.
@stevew50832 ай бұрын
Thanks for taking the time to go thru this. I'm helping my wife get connected with the cycler and we just made our first month and she is due for the PET tomorrow so they want a 12 hour dwell with 2000ml overnite. We have our 'Cheat Sheet' but it really helps to see exactly what they are talking about & your video helped a lot. Thanks again!
@mikesmit66636 ай бұрын
Thank you so much. Really kind of you to unselfishly educate us facing the prospect of dialysis in the near future
@cherylbergemann5014 Жыл бұрын
Thank you much for helping us on our PD journey. You have helped my husband immensely.
@biomoniq29 күн бұрын
My little 3-year old nephew is starting with dialysis and I am trying to understand how it works and what it will be needed to help out his mom and my aunt getting some stuff. Thank you so much for such a clear explanation .
@KO-mz4ul Жыл бұрын
Thanks for the tutorial. I work in the emergency department and we usually don’t get trained in PD so this was very helpful
@kidneykeeping Жыл бұрын
Glad it was helpful!
@jessecox745110 ай бұрын
Things have changed since my days of PD. I started doing manual exchanges when I was 8. I started doing it myself when I was 10. My mom did my exchanges up to then. I used to warm my bag then hook up and hang it. Let it flow in then when it was finished I would pull it down and roll the line and empty bag and ruck it in my back pocket. 4 hrs later I would unroll the bag and line and toss it on the floor. Open the clamp and let it drain back into the og bag. Then change it to a new back and repeat. No scales or anything. We went by how much fluid came back out. I didn’t start a cycler for many years. I also did the cycler as a 12 -15 yrs old. I didn’t miss a step playing outside or anything. I would just have to go in every 4 hrs and do an exchange. Did them at school during lunch in nurses office. My mom would come do them.
@jessecox745110 ай бұрын
I meant to say this was 1984 when I started.
@blackwood63510 ай бұрын
Wow so did you get a kidney transplant
@jessecox745110 ай бұрын
Yes I was transplanted May 19, 1991. It lasted until July 26, 2001. I was 15 when I was transplanted and 25 when it failed. Ive been on hemo ever since. I will ne for the rest of my days. I'm 47 now. Complications from the previous transplant and so many blood transfusions have left me unable to get another kidney. I'm ok with it. I treat it like a job. I go into the center 3x a week early in the AM. I'm glad you have gotten straightened out. I always rejoice when someone receives a successful transplant. In my 10 years I never had a case of rejection. Take care and live large! @@blackwood635
@phoenixdavida89879 ай бұрын
@@jessecox7451hey! I'm on hemo too. Fun huh.
@emilyjones68437 ай бұрын
I'm sorry to hear about your transplant kidney failing. But how was your quality of life during that 10 years? You mentioned complications...what kind did you experience? How was your energy levels?
@tktazuk66382 ай бұрын
Thank you so much for the walkthrough. I have been using the Amia cycler for 8 months now but I had forgotten how to do manuals. Great refresher.
@jimmy56boy Жыл бұрын
Thank you for your info. I greatly appreciate it
@kidneykeeping Жыл бұрын
Glad it was helpful!
@HeyMichsi2 ай бұрын
Thanks so much for this breakdown. I'm getting my PD started soon.
@franciscaevans50403 ай бұрын
Very helpful guidance thank you.
@CountryPerspective2 ай бұрын
Thank you for the video, helpful information
@lisabaxter77868 ай бұрын
6 of my siblings were on dialysis 2 did PD 3 did it at home health is Wealth sharing is caring shared
@Anvesh_Parmar Жыл бұрын
Very practical video
@ThankYouVersionOf2 ай бұрын
Thank You!!!
@selromero5 ай бұрын
Thank you so much for this video! So very helpful!
@terryjanhelm352 Жыл бұрын
Very informative! Thank you.
@kidneykeeping Жыл бұрын
Thanks you for watching!
@zainabnuhu8352 Жыл бұрын
So sad my Grandma did the PD but almost all the rules were not observed, she managed to be on it only for a month before she passed on. May ger Soul rest in perfect peace 🙏. I really missed her. Her thought makes me 😭 anytime. She died 1996, 27 years today!
@janearnott44612 ай бұрын
Thankyou
@kalashy800 Жыл бұрын
thank you for explanation
@Maple_Extract9 ай бұрын
Thanks for the video I keep going through dialysis training with my mom, but I always feel like I’m forgetting a step or two and I’m paranoid about all of it
@carolinerothstein5258 Жыл бұрын
Thank you 😊
@rintawulandari3891 Жыл бұрын
Sangat informatif! Im from indonesia and tomorrow i will doing surgery for CAPD. Semoga aku bisa menjalaninya dengan baik dan benar. Karena saya ingin melihat ketiga anak saya tumbuh dewasa😍🙏
@Kevin-kl8ey Жыл бұрын
Thank you so much for this video! Super informative
@kidneykeeping Жыл бұрын
Glad it was helpful to you. Thanks for the comment.
@firecrackerberry1557 ай бұрын
Would you mind if I ask of you are able to bathe and go swimming with the tube? What advice were you given? This is a great video. Thank you
@MorningsWithMaria Жыл бұрын
I do the machine but I always need a refresh on manual
@emilyjones68436 ай бұрын
Have you ever got some of the drain fluid go back into your catheter into your peritoneal cavity?
@kk121814 ай бұрын
I need to undergo peritoneal dialysis few days from now. Can I also look normal like you and smile & laugh like you? Can I continue to do my IT job as I have been doing! Can I drive without any confusion?? How much time do I need to spend every day to do this.
@HisstKa6 ай бұрын
No info on setting up for final drain?
@humanbeing10654 ай бұрын
Do you take the pills with you to go do the hand wash the second time before you disconnect?
@ariella4444 Жыл бұрын
Does the catheter that hooked to you cause infection in your body?? I’m really scared of this
@asktia1765 Жыл бұрын
Do you actually feel better after your treatment? I’m in stage 3b and I’m so exhausted. I often think when dialysis start will I feel better.
@kidneykeeping Жыл бұрын
I do PD every night so my numbers stay constant. I do have more energy now that I'm on dialysis. I suffer from anemia and once I was on dialysis I was able to get iron shots and that really helped.
@jennifers2233 Жыл бұрын
low carb diet will help with that.
@jessicavautour246 ай бұрын
I can't put in 2000 mL of dialysis fluid it makes me feel uncomfortably full and Bloated have any advice?
@maxiehinds842920 күн бұрын
What happens if the electricity goes out?
@jameslaughlin32985 ай бұрын
Is “filling up” uncomfortable?
@ragadh.alkofahi900410 ай бұрын
Can you pls upload copy of the file you got
@veasnaphai8 Жыл бұрын
Is it safe ? Is it effective ? Do you have pain ?
@kidneykeeping Жыл бұрын
Because peritoneal dialysis requires a catheter there is a risk of complications such as peritonitis, but if you follow all the steps diligently you should be okay. Dialysis is not as good as a functioning kidney, but I was very grateful for the improvements I experienced. I had some pain, especially from abdominal surgery, but I was able to tolerate the daily discomfort just fine.
@noblesseultimatejudgeofthe8950 Жыл бұрын
Yes when it’s draining
@chadstreamsam1700 Жыл бұрын
I'm 20 and i'm at the regional hospital (hospital in my town is bad).I chose to do PD instead of Hemodialysis because i don't wanna travel to another town each time,but i'm scared of the surgery and incoming pain.I also have cats so idk how i will handle everything.I'm probably gonna use cycler because i wanna be free during the day and the machine is also given for free
@kidneykeeping Жыл бұрын
You can have pets and still do PD at home. When you are hooking up or disconnecting you just have to make sure your cats aren't in the room. The tubing will pulse and move while you are doing dialysis so if you have a cat that will "attack" the tubing, you will just have to make sure they are not in the room while you do therapy. Getting the PD catheter was hard for me, but I did recover quickly. There is discomfort and sometimes pain when the fluid is drained, but if that happens, you can leave extra fluid in your Peritoneal and that will make it so that it doesn't hurt.
@kezzaobee1462 Жыл бұрын
Yes I also have cats, so reading this was good to know. Thanks
@zoozolplexOne Жыл бұрын
😍
@Suaveone16 ай бұрын
They said you all the family member have to be Covid vaccinated and have other vaccines family members living in the household is this true
@ianraydd645 Жыл бұрын
PD, Is this for lifetime?
@RayMohn Жыл бұрын
Had an awful experience with peritional dialysis .. DO NOT DO THIS if you have IBS-C !!!
@saraindish Жыл бұрын
omg im on it now and have IBSC and it's sooooo painful
@ariella4444 Жыл бұрын
@@saraindish What is IBS-C??
@unapologeticcook7168 Жыл бұрын
@@ariella4444 IBS-C stands for "Irritable Bowel Syndrome with Constipation," a digestive disorder characterized by abdominal pain or discomfort, bloating, and infrequent or difficult bowel movements.
@saraindish Жыл бұрын
@@ariella4444 irritable bowel syndrome with constipation lol it's the worst
@angelidez13 Жыл бұрын
What happened, if you all don't mind me asking? Trying to learn about this procedure for class.
@lindaperez9441 Жыл бұрын
I don’t want to do manually I want the meachine
@kidneykeeping Жыл бұрын
I like using the cycler more then manual! I like having the freedom during the day.
@M00159 Жыл бұрын
@@kidneykeeping So, with the machine, you use it at night and then are free during the day without having to do any additional dialysis? And you do it every night? Is the machine expensive? Or do you rent it? Sorry for all the questions.
@kidneykeeping Жыл бұрын
No problem! I use the cycler every night. Therapy takes 8 hours for me. I start at 10:00 and therapy ends at 6:00am. I don't have to get up right when it ends but can continue to sleep. I don't have to do any additional dialysis during the day. My materials (from Baxter) were all assigned to me from my clinic. My nephrologist works with a DCi clinic near my home. My insurance covers the cost of dialysis so I don't know how much it will be for another person, but the machine is "assigned" to me. Hope that helps.
@M00159 Жыл бұрын
@@kidneykeeping Yes, that helps a lot, thank you! Do you sleep ok when using the cycler? Can you turn over, change positions, or do you have to be careful?
@jacquelynbradley9329 Жыл бұрын
This was A Great Video and Super helpful. THANK YOU THANK YOU 🙏🏽❤
@Leo-hl9vb11 ай бұрын
But why is your face not swollen? When I drink a little bit too much water, my face gets soo puffy...
@veasnaphai8 Жыл бұрын
My God. What torture !!!.
@SLJW Жыл бұрын
No. It’s kept my husband alive, allowed him to feel better, keep working, and travel. He couldn’t do those things before dialysis because he was so unwell. He couldn’t even walk to the end of the street without stopping several times. I really wish people would educate themselves and see these things for the life-savers that they are. My husband doesn’t find it “torture”, he’s not in pain after the initial surgery, it’s merely a minor inconvenience to him to have a life.
@yonasmisghina08 Жыл бұрын
Hi, i live in switherland. I already dylises started. Kann u contact with me for farher infos