Big thank you to Julia for coming to share her story with the HiHo Kids! To learn more about mitochondrial disease visit www.mitoaction.org/mito-faq
@QuimBeeLivingstone5 жыл бұрын
I would love for the kids to meet someone with an invisible chronic disease like moderate/severe Crohns disease. I'm in my 30's and look perfectly healthy but am very sick on the inside. Treatment for Crohn's Disease suppresses immune system so if a cashier or anyone at the grocery store has a cold or anything worse, I will get it and it will make me very sick and take me twice as long to recover. A flu puts me in hospital. It's extremely hard when I look perfectly healthy but I'm very sick, some people, friends and even family dont believe me because they cant see it.
@Ihdc15 жыл бұрын
Please pin a comment (such as mine) clarifying that the girl in the camo jacket was vaccinated and directing viewers to read the captions. Thank you.
@merangel39885 жыл бұрын
Q B I understand! Got my Dx for Crohn’s just before I turned 16, 30 years ago. People, including family has complained I was faking being sick the day after I came home from hospital! You wouldn’t know I was ill unless I was in the middle of a flare and was stuck out! In the last 15 years other illnesses have popped up. I thought I hurt then! 💔
@QuimBeeLivingstone5 жыл бұрын
@@merangel3988 yep, I make the half joke that once you get one auto-immune disease, 'you gotta catch'em all". 😅😥
@fubrfhutgugfjteqf74815 жыл бұрын
Meet a person that stutters
@dumpster90485 жыл бұрын
"You have a nice face" coming from a kid is the ultimate compliment
@Yeemoeder5 жыл бұрын
True, and she is really pretty though.
@dumpster90485 жыл бұрын
@@Yeemoeder she is 😌
@Yeemoeder5 жыл бұрын
@@sarahcgkk a kid once said 'are you wearing makeup?' because my cheeks were red. It was because I get red when I exercise, but thanks, I guess.
@leena755 жыл бұрын
I knew Im not pretty at all when i heard "I don't like you " from a kid who saw me for the first time. Later I was devastated.
@uzgun43205 жыл бұрын
i was wondering why she was sooo pretty
@mochi__265 жыл бұрын
The fact that the little girl can girl can admit she stares at people when there different is amazing at that age she is so sweet
@peterfrankopan87995 жыл бұрын
2:54 & 7:03 ~so cute:(~
@TolumniaMC5 жыл бұрын
And the fact that she hesitated saying that, knowing it’s unkind, makes it even better.
@Heedy7705 жыл бұрын
@@TolumniaMC and then decided to be truthful and honest eventually..
@quirkyquinn66875 жыл бұрын
Mochi _26 *they’re
@WingsOnMySkin5 жыл бұрын
I don't think staring is unkind. I have lots of big scars on my arms and I let people have a look if they want. They can't help it anyways, it's human nature to want to take a closer look at unusual sights and I don't think trying to suppress that helps anybody. I even feel some people are more comfortable around me after they got the chance to give in to the urge.
@sophietrap24605 жыл бұрын
“There’s no dumb questions” I love her
@robertvenegas63304 жыл бұрын
no dumb questions*
@slashsgf-w3r4 жыл бұрын
@@robertvenegas6330 yea
@slashsgf-w3r4 жыл бұрын
u mean "no dumb questions"
@katelynpollard94774 жыл бұрын
I love how open this channel is
@qdrkhairum47394 жыл бұрын
F
@SHRUTHI4U4 жыл бұрын
It broke my heart when she said “I’m aware I will die before my parents”. 😭😭
@hiba_agha4 жыл бұрын
😭😭😭😭😭
@jessiemarie6364 жыл бұрын
That was really heavy. I can't imagine what her parents are going through.
@hmmeadows59084 жыл бұрын
yeah I was be so scared,I'm crying poor thing
@jessicadoban25644 жыл бұрын
Yes.
@theozoirl2og5894 жыл бұрын
I'm sorry for her parents..
@nf60755 жыл бұрын
Those kids are so respectful. I feel like every child is innocent. They start judging and doing things they shouldn’t because of their parents and their education.
@mwahzhana5 жыл бұрын
Or the group of kids they hang around
@nf60755 жыл бұрын
Cookie Monster yh but those kids are “bad” because of *their* parents education. No one is born a bad person
@msozs5 жыл бұрын
kids r so great before adults ruin them
@srbhsngh7965 жыл бұрын
naf it's not lik that....With age mind also changes you hate what u used to love n lov wat u used to hate
@luellaanderson16975 жыл бұрын
@@srbhsngh796 yes because you are ALSO strongly influenced by many people around you.
@nzys73465 жыл бұрын
The fact that she wanted to be a mom but, couldn’t pass the disease on..it just breaks my heart.
@victoriaryle53215 жыл бұрын
Yeah, I have one of the disorders that she listed (EDS). It’s really sad to learn that you won’t ever be able to have kids, especially when you’re only 13 years old, in my case :(
@nzys73465 жыл бұрын
I’m so sorry :(
@disjjdjsjxxjd75535 жыл бұрын
@@victoriaryle5321 im so sorry about that..
@monique97115 жыл бұрын
Victoria Ryle I’m so sorry sweetheart ❤️
@boopbop35875 жыл бұрын
Victoria Ryle honey i have eds too and depending on which subtype you have, you can have kids, there are just some more precautions ❤️
@stinaruiz58465 жыл бұрын
The kid throwing shade at her dad ".. but my dad forgot to sign me up..." hahahha!!!!!!!!
@mak5935 жыл бұрын
Stina Ruiz ***her???
@stinaruiz58465 жыл бұрын
@@mak593 what?????????
@mak5935 жыл бұрын
Stina Ruiz idk, did u mean girl or boy
@altheaosborn26485 жыл бұрын
Yeah that was a girl 😂
@stinaruiz58465 жыл бұрын
OKAY SORRY everyone.. Jesus.
@emmawolfe86835 жыл бұрын
"the assumption a lot of doctors will make is that anxiety is the cause of everything" FACTS
@michele56955 жыл бұрын
Unfortunately, Drs. Are lazy and want the easiest explanation. I have dysautonomia and was misdiagnosed for many years, so what could have been easily treated has disabled me.
@julianaa46524 жыл бұрын
@@michele5695 oh no, sorry 🙏🏽 ❤️❤️
@trippieleaks26314 жыл бұрын
Emma Wolfe those are facts it’s sad that doctors deal with having to tell people their gonna die everyday this girl deserves a sit down with Ellen also Emma ur pretty just like this girl saying that out of my Heart for u and for her please don’t take life for granted be thankful
@aidenlively35974 жыл бұрын
true but before i got diagnosed with anxiety they tried to tell me i had diseases that caused my anxiety symptoms so it was the opposite for me
@samuelm.e87783 жыл бұрын
People can get too anxious it’s up to the point they feel sick or they end up getting sick. The brain controls the whole body.
@nennejoh5 жыл бұрын
This is so horrible she really lost the genetic lottery, so many incurable diseases. Such a lovely, beautiful girl. Life just isn’t fair 😭
@Alice_xx055 жыл бұрын
And the fact that she cant do anything or even have kids 😪 and at such a young age that she has a chance if dying 😔
@alrivso54215 жыл бұрын
yes 😢😢 by 😪😪 putting 😨 emojis ☹️☹️ you can emphasize 🥵🙁your pity 😭😭😤😠🤪
@TeethHoarderr5 жыл бұрын
Anyone with physical or mental illnesses has to make dark jokes to cope it's a cruel and sad world
@KagaKusanagi5 жыл бұрын
It's unfortunate to think about, but we live life to the fullest the best we can!
@sah053195 жыл бұрын
With Ehlers Danlos Syndrome, a lot of the conditions are common comorbidities. So POTS and MCAS are pretty much an almost everyone with EDS gets as well. (Source: me, who has EDS)
@lainiepicklesimer20675 жыл бұрын
Little Girl: “I’ve never went to the doctor.” Girl in Wheelchair: 👀
@lainiepicklesimer20675 жыл бұрын
Lyn B Yeah, true!
@meganho81495 жыл бұрын
Pro Vaxxers be shaking
@xxXmmxx5 жыл бұрын
@Lyn B how do you know that she never had it lol
@kanyesleftleg57895 жыл бұрын
Lainie Picklesimer bro she said she doesn’t go, but only for shots
@elle.m61105 жыл бұрын
@Taeyong nope i would know im her sister
@zymphyr5 жыл бұрын
I'm not saying this out of sympathy, I genuinely think this, she is _very_ pretty.
@taliii86095 жыл бұрын
Winter Pheonix she is!!
@SalamiTheLlami5 жыл бұрын
Honestly she is an amazing person and is beautiful!
@mochibear50065 жыл бұрын
She's honestly very beautiful
@isabelerhart95235 жыл бұрын
She is
@mioarafarah4925 жыл бұрын
That right she is very pretty
@alexthomas67925 жыл бұрын
okay but she's like... REALLY pretty.
@insertnamehere34345 жыл бұрын
She looks like my art teacher
@orsemcore4 жыл бұрын
Alex Thomas i don't think anyone asked at all
@rionasarker4 жыл бұрын
@@orsemcore right back at u
@revy3884 жыл бұрын
JDestroy i asked
@The_Real__Power_4 жыл бұрын
Yeah.
@colosiouscomposter74625 жыл бұрын
[spits in bag] “No dumb questions” So badass
@pandoraamity55435 жыл бұрын
she meant there are no dumb questions because the boy said "this is a dumb question"
@fggyleafexist17535 жыл бұрын
Manal Qureshi That's exactly what they were talking about
@pandoraamity55435 жыл бұрын
thats not what the original comment was implying
@majestaec50185 жыл бұрын
Colosious Composter Uhm, are you sure you we’re watching this? The young boy said “okay, this is a dumb question--“ she spit, and replied “no dumb questions”
@majestaec50185 жыл бұрын
RioTT s a m e.
@ErikaLindberg5 жыл бұрын
I can't imagine the psychological trauma of suddenly becoming ill, losing the lifestyle you had before and having to deal with the fact that you will pass away far too early. I hope she finds light and happiness in her day to day life anyway.
@gwinea34765 жыл бұрын
I was born with my condition/ chronic illnesses so I feel for her going through the loss of her quality of life. But I have an idea of what she is going through.
@extradumbass5 жыл бұрын
Lol my life
@arifaa92205 жыл бұрын
@@gwinea3476 stay strong 💞
@FaenumVena5 жыл бұрын
It is very hard, there is a grieving process the same as losing a loved one. My body started seriously giving up in my early mid 20s and i was forced to stop doing the things i loved. Im lucky in that I never wanted kids because i now will never get the chance. I suffer with similar issues as this person but not as severe and its unlikely to shorten my life, but its a life of constant pain and fatigue that never goes away, and the more i try to do, every day things people take for granted (going shopping, cleaning, even taking a shower), makes it all worse.
@sarahstardust5 жыл бұрын
@@FaenumVena you sound like me. It's definitely a grieving process. It's good that she's able to get counseling. I probably should look into it too. It's crazy the little things you miss being able to do - like you said showering. I miss being able to clean, too. So freaking difficult to see a mess and have to leave it be because I just don't have the energy for it. I've definitely cried over all the things that I've lost, still have more to go I'm sure.
@patrickstar34585 жыл бұрын
her: Do you want to be a mom girl:Yes her:I did to my heart: *Falls down all the way to the floor*
@adeadratlol35165 жыл бұрын
@@sehasapathirana5828 too late, my heart has already fallen down to hell.
@ameenashafiq2165 жыл бұрын
*Too
@linnycrocus60234 жыл бұрын
Doctor: "You probably have anxiety" Patient: * is literally unable to walk or breathe without an oxygen tank*
@chesterhurley82894 жыл бұрын
I had a doctor tell me my asthma and mild ruptured esophagus was anxiety. I was coughing up blood. So yeah that's pretty accurate lol
@JoyCh1554 жыл бұрын
I had a dr that had to rule out anxiety for my GI conditions. Yes anxiety exacerbates them, as anxiety does this for a lot of things besides GI issues, but it's not the root cause of them just because they're milder when I'm not extremely anxious. Like I have mild GAD and my counselor didn't feel it was necessary to send me to a psychiatrist for medications as I can control most of it by talking through it and explaining I can't do xyz at the moment because of it. Sometimes I can do it 30 minutes later, sometimes it's 30 days later.
@gladysolvera65664 жыл бұрын
@@chesterhurley8289 you a rupture esphagus and coughing up blood and the docyor didn't do anything?
@Khopper2244 жыл бұрын
Or if you have a diagnosed disability that affects your whole body any complaint you have is sometime automatically attributed to that one diagnosis. But like with Julia, you can most definitely have more than one diagnosis, even if they’re somewhat connected.
@mmxhii3 жыл бұрын
school nurses would be like: i c e
@samara6415 жыл бұрын
Julia: “I can’t even swallow my own spit” Me: *self consciously swallows spit*
@liallykendall12525 жыл бұрын
Me too 😣
@xjadaxava78145 жыл бұрын
😂
@dougchapin5 жыл бұрын
🤣🤣
@samara6415 жыл бұрын
Omg I’ve never gotten so many likes
@milly0795 жыл бұрын
I stopped swallowing after she said it😭😭😭😭😂😭😭😭
@shesvi67165 жыл бұрын
God bless this girl I pray I pray they find a cure
@lokislittlesister17375 жыл бұрын
She’s Vi god won’t help you.
@biancaregano37905 жыл бұрын
@@lokislittlesister1737 you are sick
@lokislittlesister17375 жыл бұрын
Bianca Regano why? Because god isn’t real
@shxllua5 жыл бұрын
everyone has different beliefs
@biancaregano37905 жыл бұрын
@@shxllua but that wasnt a comment that needed to be said
@adnansoriano88485 жыл бұрын
Imagine having so much diseases that you can't even remember all of them
@amandanewman26765 жыл бұрын
stan wekimeki I have EDS, POTS and mass activation and some others. Yeh I don’t remember them but i think it’s mostly bc I try not to think about it. Like sure I gotta a tube in my chest and stomach but I don’t really want to let it affect me
@S_J_banana5 жыл бұрын
I have a lot but I just wanna got block it out
@slideshowgurl5 жыл бұрын
Amanda Newman Exactly, I have EDS too and most of us have a handful of comorbid conditions. I have suspected POTS, adrenal insufficiency, IBS, vocal chord dysfunction, PCOS... that’s all stemming from EDS! It really sucks.
@heidibullock18535 жыл бұрын
Tbh it gets confusing when doctors start contradicting each other. Like she mentioned, a lot see anxiety as the #1 excuse.
@BlueSkies305 жыл бұрын
@@heidibullock1853 Why are they thinking at the start that it's "just" anxiety anyway? What are the early symptoms besides I assume, feeling weakness (which can be a lot of things anyway, not just emotional stuff)? Anyway, that's very lazy of the doctors to assume anxiety. Anxiety is a serious issue and needs treatment/environmental changes, etc. but such assumptions by doctors even today are used as an excuse to do nothing medically about it because the doctors aren't sure. If they can't find a cause they need to dig deeper for rarer diseases 1st and then treat the anxiety if that's what it truly is.
@miyaaalouise51045 жыл бұрын
“it would be not fair to those kids” me: starts crying
@EclecticallyEccentric4 жыл бұрын
She's right. But it's still very sad.
@magdolynnreasoner24955 жыл бұрын
She is such a beautiful human being, I wish the best for her💕
@yaglet79855 жыл бұрын
And the award for most unfitting music goes to...
@jo_verabradleyfan47435 жыл бұрын
Yea, I thought so too. 😑
@taylorg55535 жыл бұрын
haahhahaahahha
@twistedsisters38835 жыл бұрын
@Brianna Andreacci i
@ilovehp1231005 жыл бұрын
Molly Smith lol
@BANGTANS5 жыл бұрын
@@Molly-eo2rd is it okay if i laugh :(((
@rosewrought5 жыл бұрын
"The assumption a lot of doctors will make is that anxiety is the cause of everything." GOD isn't this the truth.
@brietube24935 жыл бұрын
Rachel Johnson I know. I have a lot of allergies and the doctor said it was just anxiety. Three years later and in the hospital that doctor should be fired.
@rareboichameleonkid62365 жыл бұрын
IKR like I was saying that my knees are weak and bend backward all the time because she. They bend forward I fall and he was like probably anxiety (this was a substitute my real doc was on vacay) and I was like bish how
@baguette45965 жыл бұрын
People told me my stomach problems were anxiety for years. It’s true, I’m a very anxious person. But that wasn’t anxiety, that was microscopic colitis. Not serious, but still would have rather people look into my symptoms to help me alleviate them instead of being told to take deep breaths
@starberrysweetee14955 жыл бұрын
Especially when you're a woman.
@imanitsunami36935 жыл бұрын
"hysteria"
@harley50725 жыл бұрын
When she said she could die before 25 that made me emotional
@jessicaeliza82903 жыл бұрын
She passed like a month ago :/
@kitkatbar14763 жыл бұрын
@@jessicaeliza8290 how do you know?
@jessicaeliza82903 жыл бұрын
@@kitkatbar1476 someone said it
@kitkatbar14763 жыл бұрын
@@jessicaeliza8290 on what?
@bear12223 жыл бұрын
@@kitkatbar1476 look her name up
@stankcrew48165 жыл бұрын
i just realized how lucky i am....i feel so bad for this girl
@jessiemarie6364 жыл бұрын
This video really puts things into perspective for some people
@shay._.denise5 жыл бұрын
Her: Do you want to be a mom? The little girl: yes Her: I did too That’s one of the saddest moments to me 😞 Edit: 11k! thank you so much !
@adindaprabowo075 жыл бұрын
When ??
@paindalo5 жыл бұрын
Adinda Prabowo 3:33
@jacaerys45 жыл бұрын
Marshay Madden Why did you put a tired/bored/sleepy emoji?
@jennyholseker43965 жыл бұрын
aSean aSean its a snot/crying emoji
@jacaerys45 жыл бұрын
Jenny Othelia It’s a snot, but not a crying emoji
@gabrielaacc185 жыл бұрын
“That’d be... not fair to those kids” it’s so sad that people with genetic problems think like that most of the time 😔 I really hope some day someone finds the cure for her condition... this video was so touching.
@demhoes9115 жыл бұрын
Theres a robotic brace that moves you if you are disabled but it is over 100,000 dollars. Which sucks becuase we disableds have to pay so Much money just to be human
@uhohstinkypoop72885 жыл бұрын
I also do have a genetic problem for my leg uhm it’s called valgus but on my knee so basically I have dislocated knee
@BlueSkies305 жыл бұрын
With genetic diseases that have no cure and are lethal it's the only right thing/responsible way to think, unfortunately. Knowing you're condemned to a very short life because of your genetics has to be one of the most difficult things to deal with, especially compounded with the inability to do things that come easy to most other people - including people with other kinds of disabilities (people who are paralyzed waist down can still ride horses with special seats, etc.). I wouldn't want to have a kid knowing they'd likely have to go through what I did if I had such a disease. Plus, pregnancy would probably put a huge strain on her already failing body. And the baby may likely not get the ideal nutrients - I don't think bagged liquid nutrients are the perfect replacement for real food in a balanced diet. I've heard it's hard to stay strong on nutrient IV bags.
@Faesharlyn4 жыл бұрын
I have all of those conditions except mitochondrial disease.. I passed them to all three of my Spawn. Watching them deal with the symptoms is heartbreaking, but at least they don't have to wait 50 years for a diagnosis..
@sunnybugz4 жыл бұрын
I have multiple genetic disorders (Ehlers Danlos Syndrome, POTS, MCAS) and mental health disorders that I have because they run in my family so I don't feel like it would be fair to give those to my children. Luckily, I'm a lesbian so there's a second person who can carry a child in the relationship, AND i want to adopt :')
@aanyabhardwaj793 жыл бұрын
The way she used past tense for almost everything just broke my heart.
@morrisyt4153 жыл бұрын
She died :(
@xxlovelyravenxx1442 жыл бұрын
:(
@kristina3725 жыл бұрын
i want to hug her so bad oh my god.. i really hope she’ll have a longer and happier life because she really deserves so much
@newname52055 жыл бұрын
Exactly what i thought 😭 why do the worst things happen to the nicest people 😭 😭
@princess-pumpkin5 жыл бұрын
She really has a beautiful way about her. Just a really nice aura. I wish nothing but the best for her!
@ulilliareinhart36595 жыл бұрын
Me too she’s such a gorgeous girl and so pure god love her
@eliesh38335 жыл бұрын
@@newname5205 Which flowers do you think someone would rather pick? The beautiful ones, or the misshapen or wilted ones? If you answered the beautiful ones, you just answered your own question. Also, people who suffered a lot in their life tend to be the nicest people, despite how cynical their outlook on life may be.
@shelbyjaramillo65625 жыл бұрын
Me too but I don’t want her to suffer either :(
@pc.1025 жыл бұрын
I turn 25 in two days and wow this struck me hard. I just hope and wish this beautiful, wise and strong woman gets to see and experience an amazing amount of years before she passes.
@dylynnmoore17045 жыл бұрын
Paula Latorre happy birthday
@junoketchup79815 жыл бұрын
Happy birthday Paula Latorre!
@pc.1025 жыл бұрын
Dylynn Moore THANK YOUU!! 🤗
@pc.1025 жыл бұрын
i have a cool name! THANK YOUU!!!🤗
@RottenMartyr5 жыл бұрын
Dylynn Moore HAPPY LATE BIRTHDAY!!
@antoinelk005 жыл бұрын
The first 30 seconds I almost cried, she is going to die young and there's nothing to do to prolong her life...
@LeonidasSthlm5 жыл бұрын
Like they said. Medical scientists are working on a cure so it's possible there will be a cure in the future.
@shmexyshrimp68285 жыл бұрын
Antoine Louis King I know😭and then the little kids are sAad about it
@simon_far5 жыл бұрын
It made me sad too, except that there is a lot that we can do to prolong her life that has already been done. If it weren't for the oxygen and TPN she would already be dead, and if it weren't for the central line she couldn't get the TPN, and if it weren't for the NG tube and wheelchair she would have a much lower quality of life. I agree that there is more room to grow and would love to cure some of those conditions, but we need to also focus on making sure that the treatments we do have are being made available to all the people that need them (which it currently isn't).
@michaelamacarthur825 жыл бұрын
@@LeonidasSthlm the important thing to remember tho is that every disease has scientists behind it trying to work on it. Mito is at the bottom of the list thought because it is so rare. Conditions like cancer and Alzheimers get more funding and attention because they are much more common. It's very possible for all diseases cures won't come for a very long time. The only reason I say all this is so people see that these foundations need donations and awareness, and people don't think a cure is just around the corner.
@noahflores92693 жыл бұрын
I don’t know if anyone ever kept up with her, but she passed away not too long ago. Like a couple weeks ago or maybe even shorter. She did some pretty cool things before she passed away. Rest In Peace sweetheart. Edit: she died in December actually. I just had heard about it recently so I assumed it was recent
@keira50343 жыл бұрын
do u know her instagram?
@daeneryseilish3 жыл бұрын
Incorrect she didn’t die in Dec, she died in April.
@HipBeeWitch3 жыл бұрын
"Sweetheart"....? Did you know her personally?
@daeneryseilish3 жыл бұрын
@@HipBeeWitch Is it required to know someone in real life to call them sweetheart??
@HipBeeWitch3 жыл бұрын
@@daeneryseilish Umm... yes? Obviously.
@thehorsesnamewasfriday86955 жыл бұрын
I feel like knowing you’re going to die and just waiting for death and trying to live life to the fullest before it happens is one of the worst feelings and psychological horrors ever
@FloatingOnCloudNein5 жыл бұрын
Ikr? If I had a terminal illness I would rather not have anyone tell me. Just let me die when I die.
@pinklipstickx195 жыл бұрын
Been Thinking that’s my biggest fear I rather die without knowing
@BlueSkies305 жыл бұрын
I agree. Although I've heard some people say that it's freeing and I can see why. If I knew I had only a few years to live I'd stop working and look for a way to spend those days not worrying about anything but what's on my bucket list. But that would not be me, I wouldn't find it freeing since I fear being unable to move, being unable to remember my past, stuff like that. I cherish my freedom and my memories. I'd rather be able to think I'll have a nice long life (even if it'll likely not be as long as I'd like it) and never worry about what comes after.
@Lengstrom5 жыл бұрын
What's funny is that that's life for 100% of humanity. We think only terminally ill people have to deal with that, which probably makes it even worse for them. We're ALL going to die. You might die before they do.
@jazzyfizz20384 жыл бұрын
IKR I have that feeling everyday why thought if u was her I would need that therapy to svrvive poor girl
@skreebot5 жыл бұрын
Girl: I've never seen a doctor Me: Oh no, she's unvaccinated- Girl: Only for shots *Rush of relief*
@nyx14775 жыл бұрын
I thought the same thing😭
@viannaise5 жыл бұрын
Dude I thought she said “not even for shots” and then I felt like an awkward silence lol
@gabriela-yl8bx5 жыл бұрын
And that's why she's never seen a doctor 😉
@Toxic-it5vk5 жыл бұрын
@@gabriela-yl8bx good one
@bellemolineux73255 жыл бұрын
She would use essential oils duhhh
@katiatannus31465 жыл бұрын
When she said that she was going to die before 25, it really scared me, and I was shocked because of how young she is
@-Burb5 жыл бұрын
Katia Tannus I was surprised that it came in at 14/15. That means it could happen to anyone at any time, and I think that was the scariest part of the video to me.
@onlinedanielle5 жыл бұрын
(coming from someone who also has ehlers danlos syndrome, pots, etc and is on tpn) this is absolutely amazing and i hope to see more content like this. sending endless love and prayers to julia and her family.
@genlowe34534 жыл бұрын
danielle frick Hellllooo fellow zebra & potsie!! I have EDS, POTS & MCAS as well❤️
@mikahlameman58975 жыл бұрын
As a teen with a chronic illness, this was very nice to see
@kaylee17695 жыл бұрын
Same
@percytheparkkeeper78265 жыл бұрын
Same
@aidenoliver16815 жыл бұрын
Same (except mines not deadly just life long)
@leah98195 жыл бұрын
same
@laurenjordan95615 жыл бұрын
same!
@oofgalx90835 жыл бұрын
“This is my meal” Kid: ‘looks like breast milk’ Had me dying 😂😂😂
@JoeNathanWhite5 жыл бұрын
Prob kinda simular to it. Has for sure a lot of proteins in it.
@lastshadoww5735 жыл бұрын
Not even just normal milk, breast milk
@iray87255 жыл бұрын
I havent even gotten to that part and i was already laughing at the comment
@ritoja37765 жыл бұрын
Lets tweet about her so that she can meet ellen Tweet with #hihoellen
@hilkev.w.3485 жыл бұрын
Just dm'ed this to Ellen but she'll probably never see this
@mochi__265 жыл бұрын
Omg yess
@aheinzer5 жыл бұрын
YESHHHHHH
@shaynaharper14575 жыл бұрын
They need to put a clip on Twitter so Ellen will see!!!
@no-nu8tc5 жыл бұрын
Good idea
@juliaq3605 жыл бұрын
Girl: I’ve never been to a doctor Everyone in the room: shook
@laggod65915 жыл бұрын
She said she only go's for shots
@twinkiedinkskating8514 жыл бұрын
One of her parents is a doctor, and she says she goes for shots.
@emmaine5 жыл бұрын
I just realized that her voice is raspy because it's probably dry cuz she can't swallow or drink anything
@Heedy7705 жыл бұрын
also probably cuz her lungs are failing
@emmaine5 жыл бұрын
@@Heedy770 yeah
@laceyharless52035 жыл бұрын
Bro it’s because her lungs collApsed
@emmaine5 жыл бұрын
@@laceyharless5203 Ikkk I'm no doctor but it really sounds like her throat is dry cause there is no kind of liquid
@isabelmunger-styles52125 жыл бұрын
emma ward yeah its probably a mix of everything ya know
@dundee76315 жыл бұрын
We need to get Ellen’s attention so she can have this sweet girl on her show...
@feslenraster5 жыл бұрын
YES.
@ewanw56545 жыл бұрын
Yes. Love a bit of exploiting dying weans for views
@reemaalmu91725 жыл бұрын
@@ewanw5654 what
@dundee76315 жыл бұрын
Ewan H No... she said she *wanted* to meet Ellen
@saira23265 жыл бұрын
@@ewanw5654 she wanted to meet ellen 🤦♀️
@panguin26035 жыл бұрын
ill Teen: I Might Die Before I Even Reach 25 Kids: *Surprised Pikachu But With Tears*
@lyy42275 жыл бұрын
Not funny, sorry
@reno84945 жыл бұрын
@@lyy4227 right...
@mikaelacash37915 жыл бұрын
@@lyy4227 You say not funny, but I have mitochondrial disease just like the teen in the video and think this is hilarious. Able-bodied people are so careful about everything. But if you've ever met someone who have chronic illness, you soon learn that we can have a pretty dark sense of humor. Lol. Yeah, I'll probably die before the age of 25, but that's just how it works for us. my other friends who have mito and I make jokes about dying all the time. Laughing about it makes us feel better about our fates. It normalizes it. My friend: *coughs* Me: "You okay?" Friend: "Yeah, just dying a little faster than normal" LOL
@lyy42275 жыл бұрын
Chronically Catholic oh I never knew that, I just thought that making jokes about someone dying is rude
@julia-fu3vy5 жыл бұрын
@@mikaelacash3791 omg 😂😂😂 that is hilerious but still kinda sad i wish you all the best ❤
@Nerdfighter_dndlover4 жыл бұрын
As someone with a genetic heart condition, it really resonated with me when she said "It would not be fair to those kids." I only have one major disease and it is nowhere near as traumatic or life-altering as everything she has gone through, but I still stay awake at night thinking about if I would be able to live with myself if any future children I have went through all the testing, doctor's visits, and life-altering adaptations that I went through. She is so strong and amazing to smile because I know that somedays make it incredibly difficult.
@jude64835 жыл бұрын
7:03 *you have a nice face* I LOVE KIDSSSSSSSS
@slimesbymalka71565 жыл бұрын
Can I get 1000 Subs with no videos? -_-
@markanthonywilliams3505 жыл бұрын
@@kitoffour5783 stfu kid you don't even know how to spell it
@gachagirl25395 жыл бұрын
XD
@itslilybeachheheheoof83765 жыл бұрын
Can I get 1000 Subs with no videos? I’m in for dark humor, but only funny dark humor
@elexisankrom76895 жыл бұрын
“ you have a nice face” I’m wheezing 🤣
@UrMom-nf9mm5 жыл бұрын
Elexis Ankrom ik i was dying when she said that🤣🤣
@jeanakatherine93695 жыл бұрын
That was so cute!!
@onelove44165 жыл бұрын
Cutest thing ever
@arifaa92205 жыл бұрын
I hope her dream to meet Ellen comes true 💞💞💞💞 stay strong girl 💞💞💞 Edit : let's tweet and DM Ellen!! show to the girl that we love her 😁😊😊
@Americangirllover-xc5er5 жыл бұрын
yeah
@salma31675 жыл бұрын
Same
@theresa50595 жыл бұрын
Who's Ellen?
@arifaa92205 жыл бұрын
@@theresa5059 Ellen Degeneres, her show has been inviting a lot of inspiring person and people around the world. She supports all of kind activities, gives student money to pay their loan, surprise people with gift, and many other thing. In 2016, she received medal of freedom from President Obama. She inspire bunch of people to not give up on their recent condition. #cmiiw
@salma31675 жыл бұрын
@@theresa5059 Ellen DeGeneres (TheEllenShow)
@daeneryseilish3 жыл бұрын
Julia sadly passed away this past weekend. Rest In Peace, Julia💜
@Reproductions933 жыл бұрын
where does this news come from?
@daeneryseilish3 жыл бұрын
@@Reproductions93 Mutual friends.
@karigibbons52393 жыл бұрын
And I apologize I heard it was in December when I responded too many people that's what somebody told me and I'm sorry to say that I was wrong but I feel very badly for her parents in my heart truly goes out to them and I know Julia is in heaven no longer in pain or sickness
@starfire22323 жыл бұрын
This girl in the video
@JacobLoveless233 жыл бұрын
She didn't make it to 24, did she?
@katherineliederbach47865 жыл бұрын
"A lot of Drs think that anxiety causes everything" YES. WHY. UGH??? It took me so long to be diagnosed!!
@alexsucks24115 жыл бұрын
Same but they just said “It’s only growth pains, they won’t last forever” *THEY SAID THAT WHEN I WAS 6-7 YEARS OLD IM 12*
@terrenceloughran52405 жыл бұрын
@@alexsucks2411 you're still growing lolollol 😂
@yikesgina5 жыл бұрын
@@alexsucks2411 ur still growing when ur 12.
@terrenceloughran52405 жыл бұрын
I'm feeling a lot of growing pains at least I think. It's probably because I'm short and I'm getting tall
@thecomorbiditycurator80185 жыл бұрын
I stopped growing at 12 (I was a tall kiddo...5ft at age 8...) and when doctors could no longer dismiss my body pains as growing pains, they moved on to "must be anxiety" or "you're just an emotional teenage girl looking for attention." I didn't get properly diagnosed with anything until at least age 15, and the most critical of those disorders weren't diagnosed until I was 22 and 23. Some doctors are idiots. No, anxiety did not cause my shoulder to dislocate 16 times this week, and anxiety did not cause the collapse and pronation of my hips, knees, and ankles.
@adammccreight87995 жыл бұрын
The music really doesn't fit the video
@elsaa_arg5 жыл бұрын
Don't ruin it. The girl will see this video. I think she doesn't want another sad think on her memories to paradise
@uwuuwu56845 жыл бұрын
Elissavet Argiriou that doesn’t mean it fits bc the vibe was different and the music was way more happy and carefree than the message sent
@KIAFROMCLASS5 жыл бұрын
Bro i thought the same thing... If anything i think its a bit disrespectful but idk
@bored82315 жыл бұрын
Omg we need Ellen DeGeneres this is so heart warming
@wolfdreamer95 жыл бұрын
YESSSSS~
@hannahlogan78035 жыл бұрын
#hihoellen other people started to tweet this for her so yea.
@bored82315 жыл бұрын
hannah logan YASSS THATS AWESOME THX FOR THE UPDATE
@feslenraster5 жыл бұрын
Try to send Ellen this youtube link :). I Tried, but I am awful at technology. see my comment above for Ellen's website!
@velenso25955 жыл бұрын
Omg let's share this on twitter so that Ellen can she her
@nou8984 жыл бұрын
Swimming, shopping, capabilities...she lost her way of life at 15. I just turned 15 and I share so many interests with her - I can’t even imagine what that would be like :((
@camrynfuhrman46395 жыл бұрын
She might not start a family She might not be “Normal” She might not go to prom She might not get cured But she will and did put a smile on everyone’s face💞
@KagaKusanagi5 жыл бұрын
❤
@HaLLiEB855 жыл бұрын
She’s 19 so I think prom is out of the question now
@amandalawrence85555 жыл бұрын
Boy: OK this is a dumb question Girl: *Spits in bag* while kids stared Also Girl:No dumb questions I died🤣🤣
@Reenar12015 жыл бұрын
Amanda Lawrence 😂😂😂
@zachernandez14945 жыл бұрын
She meant there are no dumb questions.
@Mayorofthecity5 жыл бұрын
🤣🤣
@normalguyyt64535 жыл бұрын
Starree?
@noveparker85975 жыл бұрын
I closed my eyes and took a deep breath i really didnt want to laugh but now i can know other people did im slightly relieved but still kinda annoyed w myself no offense
@tamaldas92165 жыл бұрын
When the boy said, "I love eating!" And she says "me too" but she can't eat for rest of her life.... That broke my heart in millions of pieces!! Oh God why so cruel 😢😢
@jpaxonreyes5 жыл бұрын
Especially on a channel where kids try new and exciting foods.
@cmolty95825 жыл бұрын
@stay weird or die normal wait so you believe In God and reincarnation? What religion do you follow my dude I'm genuinely curious
@mami-rh6zv5 жыл бұрын
very cmolty ikr im christian and i’m confused af
@cmolty95825 жыл бұрын
@@vek5027 stay weird has no clue what he's on about. God is 3 in 1. Jesus=he God=he(but not human) holy spirit=it/representation.
@Kable104 жыл бұрын
we need to get her on ellen
@amandab.15804 жыл бұрын
I actually just saw a video where she has met Ellen.
@siobhanharmer-knight53604 жыл бұрын
SHE MET HER IM SO HAPPY
@planemod83994 жыл бұрын
What are you doing here?
@twinkiedinkskating8514 жыл бұрын
She recently meet Ellen on FaceTime, and got to see her in person as well. Ellen also let her FaceTime some of her favorite singers too.
@qdrkhairum47394 жыл бұрын
@@amandab.1580 yeah its beautiful, but the comment section is closed, I hate that
@cas48725 жыл бұрын
I really wish they could do another video off completing her ticket list or most if it 😫
@spegnagmaglorious35905 жыл бұрын
cas ellennn
@olas39435 жыл бұрын
*Bucket list
@piperharrison59535 жыл бұрын
so like.. we gonna talk about that little girl at the ending staring at her for 2 seconds then going "you have a nice face" 😂 i wheezed
@thecomorbiditycurator80185 жыл бұрын
Her parents have probably taught her to give people compliments as a social formality. And she probably couldn't think of anything that wasn't medical related or sounded somewhat mean. In my lifetime, I've had people awkwardly tell me that I have cute feet or kind eyes for the same reasons. I'll tell them I like their dress, and they look me up and down trying to figure out a reciprocal compliment but only see crutches and a service dog, so they talk about my feet, my hair, or my face. Every. Single. Time. The polar ends of our bodies are the least likely to have a physical health problem that they could accidentally insult us over. And many times, physically disabled people don't have on trendy clothes to compliment...we wear what is comfortable and easy to put on/take off, like sweatpants or leggings.
@txtort15 жыл бұрын
Oh I could just cry for JOY right now... that probably sounds odd, but I have all the same things this girl has. I am 28 now though. To see it on a bigger platform gives me hope. So much. Ehlers-Danlos Syndrome is something you are born with and it is often the catalyst for a list of disorders that this sweet girl and I have. Most of these are vastly misunderstood and we are often treated terribly by medical professionals. WE NEED AWARENESS, FUNDING, AND RESEARCH AND WE NEED IT NOW. I refuse to continue sugarcoating the fact that these disorders cause mass amounts of suffering. So when you can't even at least get approval for a wheelchair or pricey meds (let alone bigger things like a caregiver, electric wheelchair, treatments, procedures, etc.) it is infuriating, invalidating, and just plain hurtful. For example, we shouldn't ever have sit in an ER rolling in pain while the dr rolls their eyes and goes to google your disorder(s) only to come in and announce that you don't get any pain meds and you just need to calm down and go home. If you think it doesn't happen, ask any one of us. Something has to change before we lose anymore to not only just these issues, but also to suicide because they just can't handle the pain anymore. No more. No more sugarcoating. HUGE thank you to Cut/HiHo Kids for doing this. It helps more than you know ❤
@the_Dark_Knight_125 жыл бұрын
Wish you the best♥
@blindpeopledostuff35875 жыл бұрын
Happens to a lot of different issues. It’s also often very hard to know which one is the starter and what you already have when they are so many.
@johannakennedy88635 жыл бұрын
I feel the exact same way!! I've been hoping they'd do one of these to help bring awareness to conditions like EDS ad mitochondrial disease. My medical conditions have taken so much from me, and there's so much misunderstanding about them, so I am very very happy they did this
@katerinashowalter10845 жыл бұрын
So Mitochondrial Disease is actually the catalyst for the vast amount of her severe systems and organ failure. There is a huge difference in terms of severity.. unless you have a bad case of Vascular EDS. The vast majority of those with EDS have a normal lifespan.. Julia is active in the Mito community and we both have the same mutation and disease progression. (i use an electric wheelchair, use oxygen and am on TPN with a small amount of tube feeding, just got out of a 4 month hospitalization) Almost all the young girls who have Mitochondrial disease get diagnosed with Ehlers-Danlos Syndrome at some point in their diagnostic process.Most specialists agree that it's mainly because very early in their disease progression Mitochondrial Disease can resemble a very severe case of EDS and the hyper awarness of the disease and it's loose diagnostic criteria has gotten by the medical sphere over the last 5 years. I was diagnosed with Ehlers Danlos syndrome type 3 after I had a stroke 4 years ago. I was active in the EDS community Though on average I was extremly sick in comparison to the average EDS patient, people in the community would se me as a "Look how bad my EDS could get". It's heartbreaking to be honest. Many members of my mother family died before they even finshed grade school. As I started going from organ dysfunction to organ failure (theres a huge difference there, It became increasingly clear that the likelyhood that it was exclusivly EDS was low. Testing brought back the results of Mitochondrial Disease I couldnt believe that it wasnt pure EDS. At that point my disease progressed heavily and while there is no straight forward treatment, focusing on pallative care and agressive treatment during surgery, ICU stays, nutrition, and sepsis can make a difference in how far those events are progressing your disease. For many Mito patients dont get that treatment until it's too late and you cant get that function back. As much as being undiagnosed sucks, We can't even do proper research to figure out why true EDS 3 patients have the illness (when all the others have a recognized genetic basis.)or to look for treatment. It's unfair to *everyone*in the community to have such an undefined illness. People who mainly have dysautonomia and hypermobility shouldnt have to think the could die from type 3 EDS, and it's' just as unfair for the patients that have such severe symptoms and get fixated on this stuff. I usually know 2-4 people who die of mito each month. a figurehead for how severe EDS could hypothetically be. Its heart breaking seeing people who have so much freedom and ability to focusing on those things (It's not their fault its an illness community thing). I PSA-if you get rapid progression of your illness or have significant muscle weakness (not fatigue or deconditioning) talk about it with your geneticist.
@juicyj1235 жыл бұрын
i have EDS and it’s so frustrating to bring it up to my doctors and 3/4 of them admit they don’t even know what it is..
@inukprasad26924 жыл бұрын
Producer: " do you want this video to make people feel Inspired or sad?" Julie: " yes"
@godlesssnowshoe2 жыл бұрын
Disabled people don't want your pity or to be inspiration porn. We're just people.
@yonqmi17365 жыл бұрын
Girl: explains how she basically cannot do anything background music: dOo Doo doo dOo edit: tysm for the likes btw :) but i still feel bad for the girl..
@mrs.souda-owada30065 жыл бұрын
Peachy Wave sTOP🤣
@user-on1wp7ve3q5 жыл бұрын
😂😂💀💀💀💀
@brotherxela50855 жыл бұрын
Do likes make you feel good? Weird lol
@ace-be6tv5 жыл бұрын
my humour has decreased to an all time low
@palak94655 жыл бұрын
I don't think that you should pity her. If I were sick with an incurable illness the last thing I would want from anyone is pity
@kaimiralis5 жыл бұрын
I kinda cried when she said she was likely going to die before 25
@Kloudkaya5 жыл бұрын
As a teen who also has chronic illnesses, a few of the same ones that she has, this was amazing to watch the kids interact with her and hear their questions. Great video. :)
@emusparky66235 жыл бұрын
@@callum__w I have Chronic illnesses and some days I can just be a normal kid with pain. I also have days when I the pain is so bad that I can't even leave my bed. I looked at her channel and she must have filmed those on a particularly good day. Also, alot of chronic illnesses are invisible. Some days I can walk around a little while others I'm in my wheelchair.
@callum__w5 жыл бұрын
Chiari Warrior I wasn’t sure because if they were lying then it’s not something you should lie about
@emusparky66235 жыл бұрын
@@callum__w I totally understand where your coming from. I wasn't trying to sound like I was mad. I agree with you that it is very mean to the people with chronic illness when people lie about having it.
@callum__w5 жыл бұрын
Chiari Warrior ok 👌
@sophiececile99465 жыл бұрын
Callum Wittenbrink She has two videos? How in the world would you be able to tell from two videos?
@Mamacita2083 жыл бұрын
Rest In Peace Julia 😭💕🕊
@leedancesataldc50943 жыл бұрын
IS SHE DEAD?!?!
@mjpink84083 жыл бұрын
@@leedancesataldc5094 yes unfortunately
@thorspower5 жыл бұрын
I think schools should have days like this so that way kids can learn about different people. I love this channel.
@sydneygoodrich72005 жыл бұрын
Chris LeDoux that is an amazing idea
@alien_from_andromeda5 жыл бұрын
Chris LeDoux definitely!
@emileegargano51615 жыл бұрын
Chris LeDoux that would be so amazing but knowing the kids at my school i would get so scared they’d ask really offensive questions
@daisee125 жыл бұрын
we did this at my school. It was mainly people with disabilities but there were a few people with hereditary illnesses and disorders too
@thorspower5 жыл бұрын
@@daisee12 how did it work out
@olas39435 жыл бұрын
#TheEllenShow Ellen, please reach out to this young woman! Petition: V
@nc2495 жыл бұрын
199th like :3
@BookBird29635 жыл бұрын
Signed
@nidhihihihi5 жыл бұрын
#TheEllenShow
@gabrielius46035 жыл бұрын
#TheEllenShow
@dbarnes7775 жыл бұрын
#TheEllenShow
@YoutubeAccount_MMC5 жыл бұрын
IMPORTANT! ~ she said that she would love to be able to ride and connect with horses, now i'm not sure about america but in england there's a charity called RDA( riding for the disabled association ) that have both horses and people trained to the level of understanding and care and also machines to help lift and move people so they are able to sit on the horses. an amazing charity and i really hope there's one over seas that she can get in touch with really worth the while!
@sophialee43144 жыл бұрын
We neeeed to get her 2 see this!!!!
@emohlays73104 жыл бұрын
This is so important! I’m a massive horse lover and they can definitely have a great impact on mental health, and the RDA is an amazing charity!
@randomfella84483 жыл бұрын
There is a version of the RDA in North America called the North American Handicapped Riding Association, or NARHA for short. they are supposedly found in both the USA and Canada(I haven't really check forlocations), my best guess is they have at least one location in the Southwest.
@jabbersinc62183 жыл бұрын
There are various riding groups like that in every state. Quarters and other large breeds are used for clients like her with chairs and heavy equipment
@MillieTheChocolateLab9 ай бұрын
Julia has passed away over the past few years. It is SO sad, but at least one of her bucket list things came true, she met Elle. May she rest in peace
@nf60755 жыл бұрын
Get her to meet Ellen !!
@Venomstinginks5 жыл бұрын
Yes! People there be like -> 7:04
@acaustic5 жыл бұрын
Why exactly?
@iluvdeathmetal5 жыл бұрын
@@acaustic .y ,. Yes
@nf60755 жыл бұрын
Tofi because that’s her dream (she said it at the end of the vidéo)
@jesshigginbottom38665 жыл бұрын
Okay, I cried.. what a beautiful and humbling video. She is phenomenal. I hope she gets to accomplish her entire bucket list. If I were to have another baby, I wouldn't hesitate to let her be a part of the birth. Also, I hope Ellen sees this!!!!
@snipsnap0045 жыл бұрын
Bless Julia. Bless those kids for being so respectful to her.
@danifoxx74693 жыл бұрын
I personally have Ehlers Danlose Syndrome and POTS and it’s so easy to wonder why my life is so difficult but it’s humbling to remember I don’t have it like others. I once met a woman with multiple types of EDS and she had the same feeding system but her favourite hobby was cooking. It’s crazy to think that the people around us can live in the same situation yet so differently at the same time. It’s amazing to see how brave she is about it!
@am4na5 жыл бұрын
I would love to be her friend, she seems so friendly and fun to talk with.
@dovey46985 жыл бұрын
hetbet you also seem like a disrespectful kid who wasn’t raised correctly
@am4na5 жыл бұрын
hetbet stop
@sophiem11025 жыл бұрын
hetbet what is wrong with u SHES DYING YOU DIS RESPECTFUL HUMAN
@randomcat49405 жыл бұрын
@@hetbet3879 y r u here anyway??
@ignivite35925 жыл бұрын
@@hetbet3879 who hurt you?
@libbysautismvlog67425 жыл бұрын
Petition to get this girl on ellen 👇🏼
@kamielmoodley36895 жыл бұрын
How do we get in touch with these celebs? any star power seeing this. Shes so upbeat, even though.
@syd_18765 жыл бұрын
Kamiel Moodley dms
@starrr3655 жыл бұрын
@@kamielmoodley3689 Twitter?
@skypie53745 жыл бұрын
👌
@alliewickam58505 жыл бұрын
@@kamielmoodley3689 There should be a place to petition this girl on Ellens website...That's how Oprah is at least.
@andtheywereroommates90025 жыл бұрын
kid: I've never seen a doctor me: 👀👀👀 wai- kid: Except for the shots i got me: oooh there you go
@naypersuasion5 жыл бұрын
and they were ROOMMATES same! 😂😭
@madelinehepburn36615 жыл бұрын
and they were ROOMMATES oh my got they were roommates
@zoewhaley27835 жыл бұрын
and they were ROOMMATES Pretty sure she said “Yeah ive never gone to the doctor and like got like shots”
@danimarie22225 жыл бұрын
They had us the first half, I'm not gonna lie
@quirkyquinn66875 жыл бұрын
and they were ROOMMATES I LIVE FOR YOUR USERNAME!!!!! 💀💀💀
@sleeplesshead6025 жыл бұрын
She is sooo beautiful. Bless her life ❤
@BubbleBeeTT5 жыл бұрын
I kinda fell in love with her. She is so beautiful... inside and outside. I just cant... I hope she can live her life to the fullest.
@AReineyMay4 жыл бұрын
You literally stole the words I just spoke 😭
@twinkiedinkskating8514 жыл бұрын
Well she just met Ellen, so her dream come true! She is in Hospice now though.
@lilbattyclown5 жыл бұрын
I really feel for this girl. I also have POTS and can definitely relate to the “standing up and dropping to the floor” part :( It’s good seeing children able to ask questions and become educated on medical conditions they probably didn’t know about before.
@minigamerrr3085 жыл бұрын
ATTENCION!!!: Let's tweet Ellen to meet this adorable girl
@minigamerrr3085 жыл бұрын
@@lizzygacha2454 sorry, I normally speak spanish... I'll edit it
@Sonicphantom473 жыл бұрын
Every journey must have an end. I'm sorry Julia's had to end too early. RIP Julia. I hope to meet her one day in heaven, riding horses across the clouds
@belleangel86123 жыл бұрын
Is she dead now omg
@kvmlis3 жыл бұрын
@@belleangel8612 yes, she died in April. Rip🙏😞
@ahyankhan93825 жыл бұрын
SOMEBODY PLS GET HER TO MEET ELLEN!!!!!
@MaesReverie5 жыл бұрын
#TheEllenShow
@MiwDefender5 жыл бұрын
#TheEllenShow
@geminiforlife83265 жыл бұрын
#TheEllenShow
@BlackWhite-dq3yi5 жыл бұрын
#TheEllenShow
@1305maggie5 жыл бұрын
#TheEllenShow
@PikachuuNinja5 жыл бұрын
She reminded me so much of Claire Windland. 😭💗
@harmonydevaney89405 жыл бұрын
Me too!
@juliakercsmar65875 жыл бұрын
*Wineland Yes. Her voice reminds me of her! I was first guessing she had CF and muscular dysthrophy.
@unusedaccount123455 жыл бұрын
WhO?
@derfranz57705 жыл бұрын
pizzalizza 18 Claire Wineland! Amazingly beautiful girl in every way possible... She died a few months ago, but touched so many with her openness and her beauty. She will never be forgotten.
@unusedaccount123455 жыл бұрын
@@derfranz5770 oh ty
@Beefareeno5 жыл бұрын
I feel this so much.. I’m chronically ill, and I’ve had everything she’s had at one point. It’s, uhm.. tough. But you manage. Just got out of the E.R for a heart attack and almost a stroke. Best luck my spoonie buds.
@unusedaccount123455 жыл бұрын
OMFG HOPE U ARE OK
@emmas57245 жыл бұрын
Bethany Minar love u fellow spoonie 🥄💕
@susanwilliams23925 жыл бұрын
wishing you all the spoons, my fellow spoonies
@percytheparkkeeper78265 жыл бұрын
Hello fellow spoonie
@rachelp33095 жыл бұрын
🥄💝
@giannisvellichor56323 жыл бұрын
Julia passed away in mid-April 2021. RIP🙏
@randomchannel18515 жыл бұрын
Omg that’s so terrible I feel so bad for her. 😭 15 thats so young!!! The look on those kids faces when she said she will probably die before 25 😭😭😭😢
@anyaburniston47655 жыл бұрын
Random Channel I think she’s 19 because it says that four years ago when she was 15 she was diagnosed
@madisonhylland20635 жыл бұрын
I was diagnosed with my illnesses at 13 and trust me the best thing you can do is be informed!
@jessyhayward95445 жыл бұрын
Madison Hylland I was diagnosed with a chronic illness two months ago but I’ve had it for a year and a half
@ballchungus19005 жыл бұрын
@@jessyhayward9544 If you don't mind me asking, which chronic illness?
@maryly26885 жыл бұрын
Random Channel getting diagnosed as young as possible is the best thing that can happen because for some of the illnesses that she has there is some preventive care you can use but it’s really hard. I was diagnosed two days after I turned 13 and I’m 15 now
@yiannisyiannis94335 жыл бұрын
They way she says bye in the end melts my heart... :(look at that smile 7:17
@ripbobbyross5 жыл бұрын
I hope that little girl is mistaken and has been to the doctor and is vaccinated.
@Pashtashe5 жыл бұрын
She has been vaccinated, says so herself. "I've never been to the doctor, only got like shots" (in the subtitles). It's a bit confusing, but she just wants to say that she's never been to a doctor due to illness.
@jaydensickle96955 жыл бұрын
anti vaxx mommy
@monicacinco5775 жыл бұрын
Oh lawd
@Ihdc15 жыл бұрын
@@jaydensickle9695 Read the f**king captions as the respondent above said.
@pinds835 жыл бұрын
@@Ihdc1 Do you have to swear at everyone to get your point across? Grow up.
@E11iewi11iams4 жыл бұрын
As someone with a chronic illness this really is sad I'll pray for this girl and hope thry find a cure for this illness...
@geeks29795 жыл бұрын
Her: do you want kids Kid: yeah Her: i did too *heart goes to bedrock*
@hibbyak5 жыл бұрын
When was that?
@hgcoleman93705 жыл бұрын
i have some of the same conditions that she does, and i also got sick around 15. it means a lot that more awareness is being brought to these rare/unknown chronic illnesses.
@freyap74505 жыл бұрын
Hannah Coleman I have some of the same ones to, but not as bad as her.
@ArjaysJourney5 жыл бұрын
Hannah Coleman I’m so sorry. I would like to do something for you but I don’t know what. I’m just 11. Maybe we could be KZbin friends. If you like music you could help me pick my next song to record. What do you think? 🙋🏻♂️
@markfranzfrancisco58255 жыл бұрын
Take care all of you and stay positive 🙂
@trinitypaquin41845 жыл бұрын
I have pots too and was just diagnosed recently, I’m here if u need anything! ❤️
@hgcoleman93705 жыл бұрын
Trinity Paquin aw ty. i got diagnosed just over a year ago. i hate hate hate pots but i’m thankful that i did get diagnosed (eventually) instead of my symptoms just being passed off as anxiety like they were for awhile.
@stella-ce7kx5 жыл бұрын
girl: i’ve never been to the doctor before me: oh God, more anti-vaccinators girl: only for shots and stuff me: *sigh of relief*
@2012petvet5 жыл бұрын
@MILLER AVA Or Maybe, Just Maybe, They Could've Had The Same Thought As Someone Else..
@sophiaberglund18935 жыл бұрын
MILLER AVA or maybe the top comment copied her
@katiepoop8545 жыл бұрын
@@2012petvet yeah, I thought of that before I even read the comments, so it's really possible that that happened
@mya9955 жыл бұрын
EternalSummer14 Why Are You Typing Like This
@jayden76525 жыл бұрын
Sophia Berglund no because the top comment was commented 3 weeks ago and this comment was commented 2 weeks ago
@charlottethebabygay45973 жыл бұрын
She seems really nice like, she would be the best friend that was really understanding no matter what
@alien_from_andromeda5 жыл бұрын
As a teen with POTS I really am glad you guys do this
@greyekko5 жыл бұрын
This made me cry T_T She's so brave T_T
@rada.t61985 жыл бұрын
God bless her. I wish her well and a happy rest of her life. Those kids are so respectful and kind. 💜💖
@saberkhlifa98445 жыл бұрын
Shes beautiful .... god bless her soul
@dheebthalakshmi9055 жыл бұрын
She has to meet Ellen!!!! Bombard Ellen's Twitter handle with links to this video
@linaa21175 жыл бұрын
Yessss exactly
@EdAlk5 жыл бұрын
Hey you? Have you thanked you for your health today? By your legs, your lungs, your strength, your intelligence?
@eliotisconfused81805 жыл бұрын
Some people dont have legs..
@bungeegum25915 жыл бұрын
I’m not healthy
@ace-be6tv5 жыл бұрын
Bruh this stranger just tried to make everyone feel good and y'all had to complain i-
@decco90495 жыл бұрын
No, have you?
@BlueSkies305 жыл бұрын
For every person alive there's someone alive that's worst off than they are, but most of us feel like we're that one person who is actually the most worst off in the world (odds are, we aren't that one person). We've all got our own issues and just cause someone's worst off than us doesn't mean our problems are tiny. And it doesn't mean we have to be thankful. I'm thankful I'm not worst off, that I am pretty happy as I am, but in the end it was all chance that my parents are who they are and my genetics are okay.
@JoshHart3165 жыл бұрын
Dear Juliet and HiHo Kids, I've written to Ellen- let's hope for the best :-)
@lizsun2615 жыл бұрын
yay! i hope she goes to ellen!
@sammyg53885 жыл бұрын
R Easy go check out and retweet my twitter post with the hashtag #hihoellen !!