Living with a spouse with chronic Illness

Hello everyone. I usually try to make a more upbeat type of videos. Although this may seem DARK, it is just little more serious than usual. Just to give you a glimpse in to our life dealing with chronic illness. My wife has had a serious car accident a number of years ago and more recent, was diagnosed with some other chronic illnesses. We deal with them on a day to day basis. I can never imagine what my wife goes through but I can give the perspective of a spouse.
Its difficult. Knowing when to help, when to leave her be and endure the way she does best. Sleep. Quietness. and of course, medication. It rips me apart inside seeing her go through the pain and discomfort but I have to be there for her in any way necessary.
She's my best friend and the woman Im spending the rest of my life with her. I have to be strong when she isn't. She's been strong for me when I had my medical issues and took care of me. I willingly take care of her. I don't always do a good job but I have to be diligent in my care because my wife is my rock. She is soo much stronger than I am and I have to do my part. I couldn't do it without her help and the girls. We ALL depend on each other and do our best!
We will survive, we will overcome with your prayers, God's help and all the loving people around us. I love you Ashlee Boner.
Thank you for watching. Please lease comments below.
Be sure to check out my wife's channel-
"Apache Lupus Warrior" - on you tube.
more info at Lupus.org

[@adampepe6139]

Wishing i hadnt started watching this video while im at work. Surrounded by a bunch of dirty offshift guys in hardhats trying to not show any visible signs of how close to home it hit and how choked up it left me. My then gf now fiance was diagnosed with an autoimmune disease about a year into our relationship. I remember the first day it really hit her that something was wrong. And the following months of problems and pain and doctors. Not knowing what was happening to her. Her disease does cause some external signs. But most all are invisible to anyone else. I watched how hard it hit her. How almost overnight it seemed like her entire life changed. And with it our relationship. Nearly 2 years in and we still struggle. Sometimes it feels like thats all we do. The disease has taken so much from her. Her losing who she once was. It mite even be harder on her then the disease can be. And i know its changed me to. Its created so much stress and strain on us both. Lately i feel like how i handle it has changed. How much i love her and care and worry is all still there. But i feel like the constant stress of health issues doctors money worry has just put me into auto pilot. And i dont show the same level of care i once did. I spent so much time reading about her disease and treatments and things to maybe help combat the various symptoms that i never stopped to look at the toll it had been taking on me. How my behavior towards her was changing. Thats what made me seek out videos like this. To see and hear other people talk about how they handle and experience what i do. I asked myself once how do you truely know if you love that person enough to stick by them. And my answer was winning the lottery. If i won it tomorrow would i sail off alone with all my money to freedom and no worries. Or would you stand with them. And i didnt even need to think on the answer. She is who iv always looked for. And im just so worried that iv come off so numb to the day after day problems that iv neglected showing her just how much she meens to me. That me trying to be the unflinching rock for her that everything will be ok that iv neglected her emotionally. So thankyou for your words and helping me see what i already knew to be the most important thing in my life. But neglected to expess.

[@mattflashonlife6752]

My man Adam! You have someone special and I know you see it. I see it also. It's never easy but we do what we have to for the ones we love. Hang in there. They may not always be lovable, but we stay strong when they are not. I have to give her space when she's not feeling sociable. But show her all the LOVE I can. Be her rock. Be there always. You're strong also buddy. I'm proud of you. I appreciate you sharing your story. It made my day. Make her your wife. I'd appreciate a wedding photo! Thank you Adam. Thank your fiancé too. I pray for the both of you.

[@chelseabirdwell4169]

I appreciate your video. A quick video constructive criticism. Video is pretty good. The music was a little distracting for me because it mad it harder to hear or even feel what you were saying and trying to convey. Do use music. When used right it can really help to set the stage of your video. Use ny opinion if you want. Its totally up to you. Now to the reson why I even clicked on your video: My husband has been chronically I'll for a year now. We've been married for 1 year and 3 months. Had our first baby 8 days after our 1yr anniversary. Now we are just trying to move forward knowing that my husband will no longer be the bread winner, or be able to do much of anything most day other than watch TV and KZbin videos. Leaving the lot to fall mostly me. All I wanted was to be a stay at home Mom. But here I am with a full time job. Searching for a better job possibly a career, raising our almost 3 month old, with the very little help he can offer, and caring for him, and trying to care for myself and not let others down. Sometimes I just want to shut myself off from the world and not deal with life, and when I return it will be all gone. But I know it's not going too. And we just have to find our new homeostasis for our family. Hope your wife is having a better day today. I hope you have the strength you need to keep going esp. When the going gets tough.😊

[@valeriekline1862]

I want to thank you for posting this video. It brought me to tears. I struggle with feeling like a burden to my fiancé. I have been battling an extremely rare auto immune disease that is progressing and has no treatment. He tells me all the same things you stated but hearing it from someone elses perspective was very emotional for me. I feel for your wife and kids as I too have a little girl. Thank you for being such a positive influence in a sea of online darkness surrounding chronic illness. May there be more good days than bad 💕

[@mattflashonlife6752]

Hi Valerie. I appreciate the kind words. I know following this channel isn't filled with these kinds of videos and I try not to post to many of these very personal and serious issues. Just being REAL at times so people understand that NOT all is perfect. My wife and I continue to struggle but we're here. Together. You and your fiancé can get through this, TOGETHER. We ALL have to keep fighting. Hang in there Valerie. I pray for you both.