Living With Advanced Thyroid Cancer: Christine's Story

  Рет қаралды 10,126

Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust

Күн бұрын

Пікірлер: 32
@colinnz
@colinnz 5 ай бұрын
What a beautiful strong lady❤
@elizabethorsillo7187
@elizabethorsillo7187 11 ай бұрын
I’m amazed by all the advancements in cancer treatments these days. I had Hodgkin Lymphoma 30 years ago (it was still known as Hodgkin’s Disease back then) and was treated with chemotherapy and radiation. I am really surprised Christine didn’t get chemotherapy as part of her treatment. Today, I am waiting for word on whether or not I have thyroid cancer. My brother had thyroid cancer, and as part of my treatment for HL, my thyroid was in the “line of fire” from the radiation I received. So my risk thyroid cancer is pretty high. I hope Christine is doing well today and that she has her illness well under control!
@Pammie1221
@Pammie1221 Жыл бұрын
You are a fighter. May God bless you and your family.
@user-gr6xz7ri8b
@user-gr6xz7ri8b Жыл бұрын
God bless you. You are something else. You have such a strong will.
@janisdeitsch2985
@janisdeitsch2985 2 жыл бұрын
Thanks for sharing your story.
@aliyahossaini8772
@aliyahossaini8772 11 ай бұрын
Is she still doing ok?hope she is still fine
@iandavison-vi1xt
@iandavison-vi1xt 2 ай бұрын
Sorry to say she past away in 2016
@lmk0799
@lmk0799 7 ай бұрын
Bless her. I hope she is doing well.
@susanmonty791
@susanmonty791 5 ай бұрын
I forgoed the I-131 radioactive iodine treatment because I didn’t want to chance ruining my taste buds or getting leukemia
@thisiseve8782
@thisiseve8782 Жыл бұрын
Do the diet the first time. Is very important.
@Rebecca-1111
@Rebecca-1111 Жыл бұрын
Paralyzed vocal cord from a golf ball sized tumor on my right side thyroid. Stage metastatic to the neck. Radiodine doesn't work either.
@bigaleos3175
@bigaleos3175 Жыл бұрын
I’m doing radiodine as well do you know how long it takes to work
@Rebecca-1111
@Rebecca-1111 Жыл бұрын
@@bigaleos3175 you feel it the next day. Very tired. I had a very small dose it doesn't work for me. Good luck.
@ldav2006
@ldav2006 5 ай бұрын
Had 2 RAI treatments didn't work. Have lung mets.
@Rebecca-1111
@Rebecca-1111 5 ай бұрын
@@ldav2006 I'm sorry to hear that friend. I have been living 11 years this way. I also have the BRAFV600E mutation. Some tall cell. What are symptoms of lung mets? RAI doesn't work for me either. It just watch and wait until I get into trouble. I am stage 3 at the time of diagnosis.
@LillianHurley-jg9zb
@LillianHurley-jg9zb 28 күн бұрын
i too had the radioactive iodine only to find out that anaplastic thyroid cancer does not take up iodine. same side as you, large nodule, rt. side paralyzed vocal chord also. voice gone, sending me to palliative radiologist. hope you are doing better.
@BeverleyMitchell-f1p
@BeverleyMitchell-f1p Жыл бұрын
Does anyone know what type of thyroid cancer this poor lady has?
@mdabdurrahmanmiskat5120
@mdabdurrahmanmiskat5120 10 ай бұрын
may be follicular tyroid cancer
@Themarni1
@Themarni1 9 ай бұрын
Wondering same.
@iandavison-vi1xt
@iandavison-vi1xt 9 ай бұрын
@@mdabdurrahmanmiskat5120 That is what she had
@Rebecca-1111
@Rebecca-1111 Жыл бұрын
Thyroid injection she spoke of is far better experience then the 2-3 week fast no meds. But first RAI you have to do the diet.
@vijayalakshmi9484
@vijayalakshmi9484 4 ай бұрын
Anyone please advice, my husband have pappillary thyroid cancer. Thyroglobulin is 168 now. 3 times done Radio iodine therapy, but doctor says it resists and not useful. Petscan also did, but nothing more big in lungs, in backbone, but some nodules have. What to do to decrease thyroglobulin
@DEAH-01
@DEAH-01 4 ай бұрын
Gluten free diet and Clayman Thyroid Center in Tampa FL.
@LillianHurley-jg9zb
@LillianHurley-jg9zb 28 күн бұрын
sounds like you have the anaplastic thyroid. same as me as i was dx'd with papillary and then what they called aggressive papillary with the BRAFV600E, tall cell. so now its anaplastic, the "rare" kind.
@barorana9864
@barorana9864 21 күн бұрын
​@@LillianHurley-jg9zb Your cancer type is anaplastic?
@daramolasarah6494
@daramolasarah6494 Жыл бұрын
Living with hypothyroidism was so hard and painful, but thanks to doctor okouromi treatment using herb’s to get rid of thyroid problems…🌼🌼☮️🌸🌺✝️🌺👋👋💗💚☪️
@Rebecca-1111
@Rebecca-1111 Жыл бұрын
Does having hypothyroidism put you at a higher risk of this cancer? I'm asking because I'm stage 3 my sister has thyroiditis time is on your side with this cancer check your neck any lumps see your Dr for thyroid test. Mine gave me a sore throat paralyzed my vocal cord the tumor was golf ball sized I never noticed it. I went to see my Dr I had bronchitis the Dr felt the lump and sent me for a ultrasound. I have stage 3 metastatic to local. Lymph nodes. No cure.BRAFV600E mutation. That turns it anaplastic I have read. I wish Dr's told everything up front. If patient asks be blunt , be blunt. DX in 2013
@daramolasarah6494
@daramolasarah6494 Жыл бұрын
@@Rebecca-1111 Dr okouromi on youTube 🌻🌻🌻🌻🥰🥰
@joanabug4479
@joanabug4479 Жыл бұрын
@@Rebecca-1111 they're a spam bot, don't go to any links/external websites. It's a scam
@AlexaAlial
@AlexaAlial Жыл бұрын
​​@@Rebecca-1111 That is true, doctors make mistakes, you have to ask them everything in detail. What I know is that Epstein Barr virus puts you at high risk of thyroid cancer, lymphoma, ME, and other problems, according to studies and papers I found of Doctors and scientists. My thyroid was removed due to cancer, and in one of my lymph nodes was the Epstein Barr.
@LillianHurley-jg9zb
@LillianHurley-jg9zb 28 күн бұрын
i am considered hypothyroid after they took out my thyroid with 2 surgeries. how are the herb's doing?
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