Living with Poland's Syndrome Video #2

[@joanyrobinson1047]

Hi there, I watched you talk about your experiences with Poland's Syndrome and I can identify with all that you have said. I have lived a good life (so far) and worked (even with my abnormalities) as a children/babies nurse in many hospitals in the city of Melbourne for over thirty years. I have never let my abnormalities exclude me from anything that I really wanted to do. I know that I am very lucky that I have the body that God gave me and the hand that was dealt to me. Joany

[@carlericvonkleistiii2188]

I can really identify with the fun you had working with children. I worked at a state park in SC, and one year I worked with the school children who came for environmental science field trips. They were a blast!

[@banjoman12100]

thank you for posting this i don,t know what my condition is called but i have a birth defect if thats the right way to say it as you might notice if you watch some of my videos i have fingers missing off both my hands like you i had the same problems growing up and in my early adult life and like yourself when i started playing music which was only 4 years ago it changed my life in so many ways again my thanks for posting this

[@frailingbanjo]

Hey Shaun, Thanks for the kind words. This video was a little tough to do. Had to do it four times before I had something that I could work with. I have watched a few of your videos (I am a subscriber). You are a wonderful player. It sure sound like you have been playing for more than four years!

[@pamelarossetti568]

I know that staring or what appear to be staring is annoying or unkind at times but sometimes it may be that the person is seeing you...and just that and thinking positive thoughts about you...sometimes we dont want to see people..we want to look away so for me i am learning not to look away but to see and appreciate people for all of there wonder

[@colombiayola]

What do you think I should do for a 4 year in getting her mental side? What are the best groups etc?

[@Michorida]

I’m 26 years old and I have this. It didn’t start bothering be until I was about 22 because it wasn’t noticeable. Now it’s very noticeable and idk what to do. It’s destroyed my confidence

[@frailingbanjo]

Don't let it get to you! It took me years until I would stop hiding my hand. I now realize that it makes me me, and other people have to accept my uniqueness. Embrace your uniqueness!

[@Michorida]

@@frailingbanjo it’s just my chest but it’s very noticeable. My left pec is way way bigger than my right. When I’m skinny it’s not noticeable but I don’t want to be skinny. But thankyou for the kind words

[@TheIHVPNetwork]

Thank you for sharing ❤. We share a great deal in common brother. I'm not as brave as you are. I value friendships like you. I haven't met anyone like myself as I've lived & summarized myself as part extraterrestrial...and not of this world. This has been my coping mechanism for nearly half a century. Btw, I'm a musician as well. Feel free to reach out anytime 🙏🏾🙏🏾🙏🏾🫶🏾🙌🏾

[@frailingbanjo]

Hey Patrick. Very nice to meet you. Stay strong, brother!