Living With The Fog (Part 1)

[@KMx108]

I've had macrocytosis for a decade or more. It was ignored and I was literally told this was just how I was. I've complained for the last 8 years of brain fog, muscle weakness and fatigue. My doctors have told me I needed psychiatric treatment because there was "nothing wrong" with me. I started developing neurological symptoms and was allowed to keep on with these symptoms for 2 years (being told it was caused by anxiety, it was perimenopause, it was my job and i needed to get one that was less stressful or that I was simply imagining things) before I diagnosed myself and demanded B12 injections which immediately reversed a whole slew of symptoms. My intrinsic factor antibodies are positive but it took 8 years for this to go positive. Even when it went positive, I still had neurologists telling me I DO NOT have a B12 deficiency because my blood serum has never been low and my MMA is normal. They told me my B12 injections are a placebo for a psychosomatic condition!!! The ignorance of these doctors is enough to drive a person mad. They have ruined my life. My condition has improved but I have not been able to fully recover. I'm having to sell my house because I can no longer work enough to support myself. There are so many doctors i could hold responsible. I just need to figure out who to sue first. I don't think they will learn the lesson any other way. The arrogance and ignorance runs rampant.

[@user-el2yx7xx1w]

Are u in the uk slater and gordon solicitors cud help u sue your gp and surgery have u seen Charlotte's story b12 deficiency its called Charlotte's story and jimmy story of b12 deficiency

[@KMx108]

@@user-el2yx7xx1w thank you so much for the suggestion. Yes, I have seen her story and would definitely go that route if I were in the UK. I'm in the USA and have had difficulty finding an attorney to take my case. Still trying to find someone.

[@toucan221]

I think you want to add to the list, lack of appetite

[@fruitfulmotherhood]

More people need to see this!

[@wread1982]

They need to raise the B12 deficiency test level range and add B12 testing to EVERYONE who gets yearly Dr. checkups...

[@dawntripp1974]

Thank you SO much for this documentary. I only found out I had PA after months of tests and finally being tested for B12 and then IFAB ordered by my Neurologist. I have had the symptoms for years!!

[@megenberg8]

i've had anemia for at least 30 yrs. been to have blood work several times throughout this period, for both anemia and thyroid. each time the readings showed that i had no problem w/ either. i was mystified. thanks to the internet, answers are coming in, light is dispelling the darkness. so grateful.

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@gracehaward5330]

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@Momanaitor]

Thanks, I'm sending this to my parents and family so I hope they can understand better then they do. Film is an important media, I don't think my family really understood the handouts I gave them.

[@charrison58a]

Glade I found this video. Now I know my sister may have died because of a vitamin B12 defiency and not MS. Thanks for a well informed video.

[@tanyamccurley9238]

How is pernicious anemia misdiagnosed as leukemia on a blood test?

[@angelamitchell4417]

Excellent explanation of a condition that is not taken seriously enough. Even my own family say: "just eat more meat and it will right itself. Old people get it and they just take a vitamin tablet." And the worst one is: "its all in your mind." I have been researching this since i developed peripheral neuropathy 3 years ago. I am on max dose pregabalin, amitriptylene for it. But 9 years ago i developed dystonia and was put on l dopa. This worked for a while but it was temporary. Now i have learnt that b12 makes the dopamine, so i feel i was having b12 deficiency symptoms back then too. But did my neurologist test for b12 deficiency? No. I think everyone should get screened for it at periodic timescales, such as they do now with bowel and breast cancer. Its a simple blood test and would save millions for the NHS. Also the title vitamin b12 deficiency is sinonimous with a widely held view that you drink too much alcohol, your a vegetarian or have an eating disorder. This differientation has to be highlighted? Another name to describe the metabolic/genetic type in my view would help the establishment and public take this more seriously.

[@muldoon67]

Angela Mitchell I think you are right that a name change is required to bring this to more peoples attention. Imagine if you gave this job to say "Mad Men". Do you think they would have called it 'Pernicious Anaemia' I don;t think so.

[@muldoon67]

I was diagnosed with Mad Cows Disease (CJD).....hmmm I don't think so. The doc seemed quite pleased with his diagnosis.

[@XxKiDCuDiFTWxX]

Just diagnosed after 5 years (symptoms started when I was 17). I am just beginning treatment, but I have so much optimistic that I will recover and achieve my goals after graduating uni. I hope to go to medical school within a few years and I think now I will make it.

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@XxKiDCuDiFTWxX]

Grace Haward thank you! I am 18 months into treatment with B12 supplementation and I’m happy to report I am so much better. Not 100% as I likely have some bit of permanent damage, but much better. I am doing post-bacc studies so I can apply to med school. I am holding As so far in all upper level science courses. Thanks for the kind words and support!

[@gracehaward5330]

@@XxKiDCuDiFTWxX alright that's good to hear from am very happy to hear you are recovering

[@gracehaward5330]

@@XxKiDCuDiFTWxX and i will be very happy to hear from you soon that you are now free like me

[@uncomfortabletruth8976]

@@gracehaward5330 I been deficient for many years, medical negligence. I been injecting daily for 1 year, still suffering so much. I am really interested in this herbal help.

[@freestylersuk]

I wish i could get the right help, i'm 51 now and only got diagnosed three years ago, my doctors have no idea, it's hell, my family don't talk to me and i've lost so many good friends, they think i'm mad...I lay on my sofa for four years, i didnt talk to anyone for two years, i didnt have an actual conversation with another human being for six months, neurologists just want to pump me with antidepressants, my haematologists just don't give a shit...its HELL...And i'm one of those who fail the test...yet i know i'm a sufferer...

[@epic5945]

I have had it since 2014. My symptoms were neurological; I had partial paralysis in my legs with excruciating pain and severe osteoporosis causing 2 broken bones in my foot. Luckily my physician recognized my symptoms quickly as my level was less than 47 and I was close to irreversible neurological damage. I hope more research is being conducted to find a cure or a painless treatment.

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@gracehaward5330]

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@Arsenalfan4ever]

I have been suffering from symptoms associated with this disease. My go said my levels were normal so I got retested by a private clinic. They’ve identified my levels are low and have sent me for the intrinsic and antibodies tests in three weeks . I hope my life can get back on track.

[@santella.story.healing]

How are u? How were the tests?

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@gracehaward5330]

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@jean6460]

I’m in the US. How does one get diagnosed and treated?

[@toucan221]

I can see my mother right Now going through Restless leg syndrome and incontinence and this is down lack of B12 , and other problems, I thought this might be the pills she is on or maybe old age But now I know the difference. People really need to be educated and specially Doctors.

[@anerawewillneverforget]

What is happening with B12 deficiency and the c o v i d jab? I'm finding sooo many people suffering with turbo dementia after these jabs. Is anyone looking into this?

[@Frommel2000]

Why is the music so loud ??

[@dianabainbridge9561]

I had only months to live when diagnosed by my Rhumeotolosist i have had symptoms since my early teens I've. had numerous symptoms and was getting sicker and sicker, psychosis and paralysis my hair turned white from age 17 had unexplained high fevers as a child many many times, was as white as a sheet, along with my white hair I took on quite a ghostly appearance, was dismissed as a hypocondriac by many Doctors, I have been treated via injections of B12 monthly for the past 15 years, I can only say it saved my life, but too my disappointment still have symptoms, thank goodness for that specialist, secondly PA should be renamed Addison's Anaemia in my opinion, understand what many in this video are saying I more than relate to the symptoms, I haven't learnt to live with this insidious disease and I never will, they say a Patient lives 1 out of every 3 months, how true that is.

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@gracehaward5330]

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@Kobalamin88]

I am sorry to hear this, I hope you are doing better. Did your psychosis resolve?

[@dianabainbridge9561]

@@Kobalamin88 Yes, however the damage to the myelin in body did not, now walk with a walking stick. Thanks for your concern

[@Kobalamin88]

@@dianabainbridge9561 happy that it resolved, how long did it take for its symptoms to gp away? Btw neurological symptoms seems to be the ones that take longest to resolve, psychiatrical symptoms can be easier resolved I heard.

[@hazelinglis2594]

I also have it. May I join the crowd . I could go on and on, yet what can I say that all the other have not already said ? The confusion , my hands, my feet, I feel like I have been beat to death within 3 hours of getting up from bed. I just found out I have it. I just finished 5 days of B12 shots, and have to take the B12 shots for the rest of my life.

[@Lynxchillin08]

How are you feeling after the shots ? I hear you can get a B12 spray (a few say better than the injections)

[@hazelinglis2594]

Lynxchillin08 Hello Lynx, I have gotten worse. The B12 shots won't do me any good anymore.

[@hazelinglis2594]

Lynxchillin08 Lynx, I am so happy you responded. So often one feels as though they are talking to the "air" on youtube. LOL. You see Lynx, For a long time I stayed at Stage 3 kidney failure. 3 months ago- I moved on to stage 4. So my system eats up the B12 and potassium. I am terminally ill now. My blood type is rare, there won't be a kidney when I need one . Only 6% of the population has by blood type.

[@deesmith9540]

Hazel, You could try vitamin C injections?

[@hazelinglis2594]

I am beyond that now hon. It's dialysis time. However, That won't do me any good either because of my blood type. I am now getting my affairs in order.

[@PlantOnlyMan]

This is an excellent documentary. I'll add however that the amount of B12 on haptocorrin (synonyms: R-protein, R-binder, cobalophilin, transcobalamin I and III) is not fixed in stone at 80%. It ranges from 70-94% in normal individuals, and dips as low as 2% in people with haptocorrin deficiencies. That wide variability is the main reason the serum B12 test is unreliable, but there are others which extend to the holoTC test including B12 analogs and genetic defects and polymorphisms.

[@gracehaward5330]

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@karenthompson2654]

A good film for showing the psychological problems caused by this illness but I have always wondered why there is no mention of the common physical problems? Anyone watching this would think that b12 deficiency involves only the mind.

[@michaelb6510]

Its literally talking about so many physical symptoms

[@Igaluit]

It's unfortunate most doctors are so arrogant and smug about their beliefs. Moreover, they religiously follow lab results like automatons.

[@gracehaward5330]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@221b-Maker-Street]

The video is very interesting - the interviewees are engaging and personable. And it's really helpful to have the medical experts offering their weight of opinion. I'm afraid the voiceover man is terrible though - the flat delivery and obvious 'reading' of a script. He also sounds like he's recording in a public toilet... You should have let the Welsh chap do the v/o. 🗣

[@imissmydeadcat.74]

if. medical. illnush. ezistered. we. woad've. bun. sayin. thus. in. the. farm. oav. daid. buddies.