Living With The Fog (Part 2)

  Рет қаралды 13,729

Pernicious Anaemia Society

Pernicious Anaemia Society

Күн бұрын

Пікірлер: 31
@18eleanor
@18eleanor 2 жыл бұрын
Wow, thank you for this video! I was diagnosed 6 months ago after 38 years. These poor people are telling my story. I was sobbing listening to them tell my story in theirs. I don't understand how in the US the rich and famous can go to a health spa, pay $90 and get up to 58 methyl jabs in a 90 day period. But I can't get but one a month in the US. And it is cyano, really the weakest type. I need daily jabs and that doesn't seem like enough. Why is this supplement considered a drug in the medical field, but a supplement when it comes to health spas? Anyone off the street can buy B12 jabs any time and no one is monitoring their frequency. Once they use their 58 jabs at one spa, they can go to another one. No questions asked. But I can't get a jab to save my life but once a month?? Do they think we are stupid? How can they get away with this? Why can't we have OTC B12 like Australia, Germany, Canada, and many others? I would love to hear one logical reason why the rich and famous can have B12 everyday in the name of BEAUTY, but we can't have it to save our lives? People like Madonna, Justin Bieber, Charlize Theron. It's all the rave! www.glamour.com/gallery/strange-celebrity-health-secrets#:~:text=B12%20vitamin%20injections,by%20injecting%20the%20B12%20vitamin. It might be all the rave in Hollywood, but I am not having fun! I just want to live. I Just want my life back. I could care less about how beautiful I am. www.glamour.com/gallery/strange-celebrity-health-secrets#:~:text=B12%20vitamin%20injections,by%20injecting%20the%20B12%20vitamin. I self inject every day though, no thanks to the US. I finally have some sort of control even though it is very inconvenient to mail order my B12 from other countries. At least I have that.
@SN-sz7kw
@SN-sz7kw 3 жыл бұрын
These people are telling my story. It’s both terribly sad and enraging. One of my prior GPs was so obnoxious - without asking he wrote me a prescription for anti-depressants. When I asked him what it was for he whistled through his teeth & made the gesture at his temple indicating that I’m nuts. I’m a retired military officer & have never been a complainer, but I knew something was seriously wrong & spent almost 15 years tracking it down. Because women who present with these symptoms at my age are considered lazy, crazy, stupid & menopausal. If you protest they add delusional. It’s madness. Ironically it was a psych who finally insisted my cognitive loss must have an organic source. He tested my active B12 & figured it out. Sadly, it seems the cognitive, cardio, & neuro damage is now permanent.
@221b-Maker-Street
@221b-Maker-Street Жыл бұрын
I'm so very sorry. Can you self-inject?
@SomboonCM
@SomboonCM 9 ай бұрын
My shit American doctor subscribed antidepressants as well. I called her a quack and walked out. I fly to another country to buy a years worth.
@user-lq3dj3eo8k
@user-lq3dj3eo8k 2 жыл бұрын
PAS is saving my life. I believe I lost a productive life of 30 yrs, I lost all my hair, could not work and have a relationship, lost the best job of my life. Thankfully with this education I have put the pieces together and am getting my own b12 injections. No doctor has ever discussed b12 as an option. So many of these stories mimic my own. Thank you, thank you and thank you,
@jean6460
@jean6460 6 ай бұрын
Thank you for this
@mrs.p6130
@mrs.p6130 3 жыл бұрын
Sublingual methocobalamin 2500 mcg is very helpful and effective you can take whenever you want.
@toucan221
@toucan221 3 жыл бұрын
I'm guessing this is B12 thank you for sharing
@elithrania335
@elithrania335 4 жыл бұрын
a lot of b12 patients here in the netherlands take injections with b12 , 2 times every week for years , as long they need it and as much they need it
@siamesejasmine
@siamesejasmine Жыл бұрын
The woman who loves to paint!😭 I love to cook. I love to cook Indian food the most, but it’s extremely labor intensive. I have no energy to do it and therefore, have lost my desire to do it.😭😭😭 I feel my personality has changed. I used to be a much nicer, more patient person.😢
@jenniferridgway7894
@jenniferridgway7894 5 жыл бұрын
Blood tests show level low at 170 in September and was told about it 17 November. They said they will write to gp to arrange b12 injections but I’ve not heard anything back yet. How long do you normally wait for treatment? Years I’ve lost feelings in legs and hands and I’m so clumsy I’m covered in bruises from walking into everything and I can’t think straight
@catherineholcombe5907
@catherineholcombe5907 5 жыл бұрын
I have B12 autoimmue P. A. I thank God that the first time I visited my Neurologist, she ordered bloodwork and diagnosed the P.A. My heart goes out to those of you who have to wait months for your injections....that is just wrong!!! I live in the US. My Neuro prescribed the Cyanocobalamin injection once a month. If I had to wait months, I wouldn't make it. Some of my symptoms I had in the beginning that went away after starting the injections (4 years ago), seem to be returning worse than ever.....the burning, tingling feet, extreme fatigue, falling a sleep during the day, balance and brain fog. I'm wondering if the injections have stopped working. Can that happen?
@justinesneddongutierrez5243
@justinesneddongutierrez5243 5 жыл бұрын
Ask for methylcobalamin b12 injections. Cyanocobalamin doesn't last as long in the body. I take methyl B12 injections 3 times a week.
@alg94
@alg94 5 жыл бұрын
for anyone in 2019 who needs this: in ontario canada you can buy vials of b12 over the counter at a pharmacy for ~$6 and needles for $0.25 if your doctor is not providing you with enough and i bet its similar in other places
@toucan221
@toucan221 3 жыл бұрын
That's a good thing, that should happen everywhere. Thank you
@SN-sz7kw
@SN-sz7kw 3 жыл бұрын
Similar in Germany. It’s saving my life.
@toucan221
@toucan221 3 жыл бұрын
so if Doctors it seems as usual are only wanting to give you anti- depressants, why is that?? because of the commission paid to them every time they sign you up to anti-depressants, all down money. this kind of thing should outlawed.
@fickleemu4life401
@fickleemu4life401 Жыл бұрын
Please check and see if there are vitamin IV spas close to you. In the US, some places let you get b12 injections with no prescription. There’s a pricy looking spa close to me that only charges $12 a b12 shot. Never would have imagined it.
@toucan221
@toucan221 3 жыл бұрын
The you the Pernicious Anaemia society, for bringing this to us all 🚑🧡🌞😎
@k.c.6464
@k.c.6464 7 жыл бұрын
I was diagnosed with pernicious anemia. I am in California. So many doctors out here so ignorant on this condition. I found out my body does not metabolize cyanocobalamin. I cannot get a doctor to prescribe the methylcobalamin shots I so desperately need. I have been self treating with sublingual methylcobalamin tablets (5,000 mcg.) I started by letting 5 dissolve under my tongue every hour for 12 hours a day-it worked! I am now thankfully down to just 9 a day (45,000 mcg daily) Unfortunately, dental issues as a result have been rather expensive-still, the pa symptoms disappeared, except when I was put on antibiotics, and other situations that come up from time to time, then I start over with much higher doses of the sublingual B12s, taking around 12-15 a day now...
@wendywright3039
@wendywright3039 3 жыл бұрын
this is so terrible xx
@xfactorrich
@xfactorrich 11 жыл бұрын
I have pernicious anaemia of b12 and been having all of the strange illness. I hard on some channels that you have to have the injection every month. I was self confident in this and I signed up to the new doctor and he said "he tested my blood and said I was a healthy person" looking at the history of B12 pernicious anaemia even if it is a germ doing this or something in the body doing this it treat me differently and is this the case for pernicious anaemia it is all different causes of pernicious anaemia's around today or is there just the one? Richard Exeter Devon UK
@simoneweber122
@simoneweber122 9 жыл бұрын
+xfactorrich Can't you self inject in the UK? Here in Germany you can buy your shots in the parmacy... it's pretty cheap and you don't need a doctor and you don't need a prescription.
@simoneweber122
@simoneweber122 9 жыл бұрын
If you don't know how to inject ask someone with diabetes.
@janie3955
@janie3955 3 жыл бұрын
@xfactorrich I wondered if you were able to find a source of B12 and injection equipment? I’m living in Cully at the moment. My Dr says my B12 is fine, doesn’t want to know. My brain fog/fatigue are so debilitating, I’m at my wits end. I cannot find any supplier to help me. Hope you are well. If anyone has any advice or contacts that may be able to help, please reply. Or anyone with advice to purchase from Abroad. Thank you in advance
@toucan221
@toucan221 3 жыл бұрын
your Doctor seems to have quite and attitude, he seems to know it all, but really. as pointed in these videos we need better diagnosis and education.
@elithrania335
@elithrania335 4 жыл бұрын
Now we stil have the fight about what kind of b12 injections , with or without benzylalcohol , here we want without benzylalcohol because it is not good for your body .
@toucan221
@toucan221 3 жыл бұрын
they are talking about injections, are B12 Pills no good, has anyone tried pills I need to know
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