Living With Trisomy 18 | Brianna's Pro-Life Story

[@heir8095]

If only we valued human life more. What a beautiful story about a beautiful girl.

[@mariadeleon6954]

Not compatible with life was the most devastating words to me when I had my baby girl diagnosed with trisomy 18. I only had 20 or 25 min with her but I loved her just as much and strong as my other children. Yessss these parents are telling the truth I did not have the support group necessary for my beautiful daughter to live. This is an amazing testimony of how wrong humans can be about life. May God continue to bless this family ❤and show his love through this beautiful girl.

[@freedomwriter1995]

@@mariadeleon6954 I hear so many stories like this. I am so sorry for your loss. However; there are so many other children out there who, while technically alive, cannot move or see or hear and their existence is one of constant pain in a twisted parody of life. If those children could be given the chance to say one complete sentence, it would be "PLEASE ... LET ME DIE". Your daughter was lucky. She got to receive the unconditional love of a mother and only experience the shear agony of her disease for a few minutes before passing.

[@freedomwriter1995]

@@mariadeleon6954 I wouldn't wish your daughters disease on my worst enemy.

[@franny5295]

I'm so sorry that this proved to be the case with your baby. I can't imagine.

[@khfan4life365]

One of my cousins was born with Trisomy 18. The doctors expected her to only live a year. She’s turning 33 this year. She cannot walk, talk, or eat without a feeding tube, but she’s one of the happiest, most innocent people I know. Always smiling and making joyful cooing noises when she sees her family. Our lives would be empty without her. She’s not just some disabled person. She has a soul. She’s able in the Lord.

[@bluewhale2600]

Amen ❤ beautiful

[@scarletxoxo6757]

Don't you feel bad for her living like that?

[@laurenlooolll]

@@scarletxoxo6757 the commenter already stated what a good life she has❤️ everyone has struggles, some medical, some not, but that doesn’t mean we can’t live happy and meaningful lives. no need to feel sorry for someone who is so joyful 😄

[@ARSC24]

❤❤❤

[@mariastathopoulos744]

@@freedomwriter1995 Only God knows the number of our days. If Brianna wasn't meant to exist, she wouldn't be here. If you weren't meant to exist, you wouldn't be here. Stop trolling parents of disabled children. SOD OFF

[@LauraBeltran2024]

My daughter was diagnosed with trisinomy 18. She had a successful surgery. Three weeks into recovery I was getting ready to take her home when she suddenly got s sepsis infection. She passed in my arms. I had doctors give her every life saving treatment until the very end when she passed in God's time. Her name was Adelina Marie ❤She was so beautiful and very alert! Having her was the best gift God blessed our family with. She is loved and forever missed! Thank you for sharing your beautiful daughter's journey!

[@thebetterayesha7345]

Had a miscarriage with my baby girl with trisomy 18. I was told trisomy 18 was not compatible with life. I remember shortly after hearing about kids who lived past pregnancy and wondered why our child was given a more grim outlook and no additional care when requested. Hearing of women having abortions with trisomy 18 children breaks my heart because my family would have given the world to meet our daughter and would gladly adopt their child with trisomy 18 if they gave them the chance to go to a loving home. All u can say is god bless you guys and your precious family. I'm so glad you stood firm on life with your beautiful child and continue to fight for her.

[@laurenlooolll]

i’m sorry for your loss❤️‍🩹

[@freedomwriter1995]

@@thebetterayesha7345 It may seem to work well. However, do they really know their daughter is happy or is it just her body automatically and involuntarily responding to stimuli? What if their daughter is in pain and somewhere, deep inside her mind, there is a very small part that is conscious and it is screaming in agonizing pain "PLEASE... LET ME DIE!!!!!!"

[@kathybrem880]

It usually isn’t

[@charliemcgann]

She has infinite value.

[@Bkj2022]

A close family friend had a baby with trisomy 18. Doctors told her he might only live a few hours after birth, and offered her an abortion. She didn’t take it, knowing that her son would live as long as he was connected to her and if that’s all she could do for him then she’d do it. In the end, he lived 15 minutes. But, he was given the same dignity as all of us and he passed in the arms of the people who loved him the most on this side of heaven. Nobody knows when their time will come or how long they’ll get to live, so why should we cut short some lives over others?

[@BornFree6664]

That was beautiful "in the arms of those who loved him the most this side of Heaven" ❤.

[@cathalhendron3941]

RIP wee Baby God Bless your friend 🙏

[@Molly-uk2uf]

Great comment

[@mariastathopoulos744]

@@freedomwriter1995 Stop trolling parents who are living through heartbreaking circumstances. You trolled me too. There are children with terrible cancers that undergo rounds of chemotherapy, radiation and surgeries. Should they be denied treatment to prolong life? Should anybody be denied treatment to prolong life? SOD OFF

[@freedomwriter1995]

@@mariastathopoulos744 II'm sorry for breaking your heart. I was venting my frustration at the unfairness of life and the world at large at you and that wasn't fair to you and I'm so sorry. I've seen so many people that I love and care about die. I watched as all of my favorite elderly family members died from Alzheimer's, Parkinsons, or some kind of dementia or another. My parents died before their time due to heart attack (dad) and liver failure (mom). My neighbors daughter had a one in a billion genetic illness that made Trisomy 18 seem like a walk in the park and resulted in her having many malformed organs removed before she was a year old and then die before she was even thirty. I myself am blessed but there are times when the unjust nature of this world breaks my heart and I wonder what the point of it all even is.

[@my5ks48]

How blessed she is to be born into such a loving family ❤

[@mariastathopoulos744]

My daughter was diagnosed with a neurological disorder at 20 weeks in utero. The medical specialists recommended termination. From 20 weeks pregnancy to her birth, l was scared. Preparing for her birth as well as thinking of her funeral. Raphaela was born strong at 38 weeks. She never reached the physical milestones of sitting up, crawling, standing and walking. Before her 2nd birthday she had to be fed by a nasal gastric tube before being peg fed via her stomach. Raphaela lost her vision around her 3rd birthday. My beautiful girl died at the age of 4. Not for a moment do l regret continuing with my pregnancy and bringing Raphaela into the world. I will always wish that her destiny was different. Raphaela died 12 years ago. We love her as much today as when she was alive. She missed out on many things but not on unconditional love. God loves children with disabilities too. Brianna is a beautiful girl as all your daughters are. Brianna and your family are teaching people around you faith, compassion, kindness and love. God bless your family.

[@mariastathopoulos744]

@@freedomwriter1995 My daughter's final year was very painful. She suffered a prolapsed bowel. Unfortunately bilateral pneumonia 4 weeks apart was her final illness.

[@mariastathopoulos744]

@@freedomwriter1995 l don't understand you. According to you, l should have killed my daughter at the age of 3? SOD OFF

[@mariastathopoulos744]

@@freedomwriter1995 l don't understand you. According to you, l should have killed my daughter when she was 3? SOD OFF

[@mariastathopoulos744]

@@freedomwriter1995 My daughter Raphaela has and is loved since the very beginning of conception. Her health deteriorated as she became older. No parent wants to see their child suffer. You have crossed the line of decency. SOD OFF

[@freedomwriter1995]

@@mariastathopoulos744 I'm so sorry. Please forgive me.

[@samanthabranson6815]

Thank you for sharing your story. ❤️ I needed this today.

[@echosackett4757]

Thank you so much for sharing this story about your precious, beautiful girl! What a wonderful legacy you are leaving for your four other daughters when they see your love, faith, and courage. It seems that more and more Christians are boldly speaking out against abortion and sharing their stories of life publicly. Thank you for strengthening others to do what is right by telling Brianna’s story. What an encouragement!

[@missmartpants2269]

That is so sweet! So happy to see hope flourish in a desperate situation. He won't give us more than we can handle, but fear will lead you to more than you can handle if you let it run your decisions. God bless!🌱🌾

[@lavenderandgold8588]

You have no idea how touching this testimony is. I’m currently in my third trimester and it’s being suspected that my unborn child might have osteogenesis imperfecta due to a mutation. It’s also called brittle bone disease. Because the mutation is on a gene for collagen production, people with this disease break bones very easily. We’ve been told some horrendous possibilities like he might be born with several broken bones already or even worse, he won’t live long past birth. The genetic counselor even recommended terminating the pregnancy at 24 weeks and I said no. I could never do something like that knowing God has been forming this little baby in my womb. I don't know what the future holds exactly but I know God can work through situations like this. His plans are always better than ours, that's for sure.

[@TNJackie]

May God bless you and your little one, and may He show His love and power through your child’s life. ❤

[@lavenderandgold8588]

@@TNJackie thank you ❤️ I would be lying if I said I don’t scared sometimes. I want nothing more than for him to be healthy. But I keep reminding myself that if God didn’t have a plan in all this, He wouldn’t have given me the gift of carrying this little boy and for this long. I just reached the third trimester almost a week ago and as I get closer to my due date, there has to be reason God is brought him in to existence. Whether my little boy doesn’t have the condition after all or if God provides in miraculous ways in order to care for him under the circumstances, I can confidentially share with others what God has done.

[@TNJackie]

@@lavenderandgold8588 I absolutely understand! When these “scary” situations come into our lives it can be a daily battle in our minds, but your faith in the Lord is shining through. You have discerned the truth about this baby’s life being under God’s sovereignty and that he has been created for a purpose. We never make a mistake when we hope in God. 🙏

[@sarahudson108]

Good luck , hope your baby is as healthy and happy as possible, do research and get as much help as you can for his condition. It might make it a bit easier.

[@1packatak]

Contact the Shriner’s organization. They have tons and tons of experience with OI. And much of their care is at no cost to you. Hugs to you and your family.

[@blancahoward4477]

What a beautiful lil fighter God gave you another precious girl God Bless your family

[@poliincredible770]

Life is a gift to be cherished!

[@shanimarais9695]

She is perfect. Brianna is teaching every person she comes in contact with HOW TO LOVE. God is love and He is showing so many how beautiful that love is through Brianna. May God continue blessing your family.

[@fullajoy3325]

Beautifully said. ❤

[@gracejohnston1715]

More people should know about this, when I looked up trisomy 18 a few days ago (out of curiosity), everything was saying these children probably won't live past birth. Why is the 1st thought "Oh she probably won't live, you should just give up."?!

[@stephenfiore5995]

I think it's because people don't want to get attached. The more we love someone, the more painful it is to lose that person. People are afraid of that pain, so they give up early, before they ever get to know their child, to try to spare themselves of that pain (or at least lessen it). But love is always worth the pain.

[@ididntaskyouropinion]

Thata what they say for ALL children born with chromosomal abnormalities. Downs kids are still given abortion choices even though you cant not definitively diagnose til birth. Ita stupid

[@ididntaskyouropinion]

​@@stephenfiore5995as a mother, we are already attached.

[@stephenfiore5995]

@@ididntaskyouropinion Yes, that is why I said "or at least lessen it". We become *more* attached to our children as we get to know them and think about the future that we want them to have.

[@kristinezerebkina9383]

So deep heartbreaking 💔 that special babies, an innocent defenceless babies are brutally murdered ( an abortion)...I cannot believe that people can be such heartfelt monsters.

[@d3adp94]

Man this is a strong family. Gods bless them.

[@laraaleman2597]

Absolutely beautiful ❤ God bless your family 🙏

[@mrstravel9381]

What a beautiful miraculous story. I was expecting tragic news of the baby passing. Thank the Lord she survived!

[@chriscritchell5115]

We had a little girl with this syndrome back in the seventies, she lived for three weeks and three days, we were also told that she was incompatible with life, it was the hardest time of my life.

[@lauriekerze3461]

Sorry

[@ieshalanzo8941]

I’m crying. How precious are these little ones love for their sister. We could learn a thing or two about love from special needs children and families.

[@laurenlooolll]

all of the money funding abortion should be allocated to care and research and rehabilitation

[@RallyTheTally]

So true.

[@Moving_Forward247]

AMEN!!!! Wow I will pray for this

[@KateMartinez-yi4gg]

@@laurenlooolll So the women dying in need of a life saving abortion shouldn't have one? How "pro life" of you. Maybe you should ask yourself why the maternal health care in America is so bad that we have the largest # of women die during child birth than any other developed nation. Then ask yourself why it is the states who have the highest # of maternal deaths are red states with strict abortion bans.

[@ewaj.6260]

Totally agree

[@5ky801]

What money "funds" abortion dude

[@nobaloneymahoney7940]

LOVE really overcomes all obstacles ❤

[@kathybrem880]

No it doesn’t

[@refuse2bdcvd324]

God bless you all!!!

[@refuse2bdcvd324]

Keep life going!

[@erikaleonard2848]

Proud of you for choosing life and love over medical opinions. ❤❤❤❤

[@earlchris9446]

Hugs from the pro-life community!!!

[@RallyTheTally]

No matter how long you live, it was just good you lived.

[@MelindaAnderssonEngstrom-dz4sl]

God bless their beautiful family!

[@lukeslc-xd8ds]

Thank you

[@mochacellow]

Our trisomy 18 baby lived for theee hours before passing. Wouldnt trade that tome i had woth him.

[@jolee3633]

I love the commitment these parents have for their child!

[@ursulawuthrich5533]

You are such a beautiful married couple. The love is really visible. This story moved me to tears.❤

[@keeks8817]

She is beautiful and I see the love your family has for her. These babies that are just a little different are the biggest blessing. ❤

[@laurenlooolll]

she is precious 🩷

[@amyahlquist3436]

The thing about trisomy 18 is that it’s a spectrum with varying results I would be more worried about the suffering and quality of life. It would be cruel for a baby to only know and feel pain. This girl has already went through so much pain.

[@haleyphipps0417]

I agree with this family's choice to allow their daughter to live and continue the pregnancy with a Trisomy 18 diagnosis. While most babies born alive with this condition pass away shortly after birth,some do live for a few years until health issues cause them to pass away before adulthood. She is adorable and even if she can't eat,drink,breathe or think on her own,she has a right to enjoy the life God gave her.

[@Bythegraceofgod1646]

3:36 I’m not crying, you’re crying 😭😭😭 What a beautiful family. Every single one of them is a testament of God’s grace and love. Thank you Lord for Brianna, and thank you for giving her to such a kind and loving family of adoring sisters & faithful parents! “Love of family & love of God surpasses all medical wisdom” - I will carry that wisdom with me through my pregnancy. 21 weeks now. Thankful for this family.❤

[@Leafblaze1]

In my opinion, bringing a child into the world who you know is going to have severe disabilities and who is just going to live a life of suffering is one of the cruelest and most selfish things any person can do, especially to their own child.

[@bevturner2258]

I agree with you. Life is hard enough as it is, without starting life with severe disabilities. This family telling their story is not your average American family. Clearly they have the resources to give this child the best possible care. Even so, I question how right this is, or isn’t…

[@texasfamilylife8397]

Beyond beautiful. This is amazing.

[@melissamurray8307]

God bless this family.

[@sherryab3964]

They let God decide, not a doctor. She’s got her sisters! ❤❤❤❤ I love her smile and joy for life ❤❤❤❤

[@RitaPosthuma-cl8du]

You have got that right. The Love of God and His care you will overcome the difficulties. Praying is our most strongest weapon.🙏🙏

[@user-ok8yi6nt5u]

She’s beautiful ❤️. Your family is beautiful 🥰

[@dom2178]

What a beautiful family. God bless you all.

[@mariastathopoulos744]

For parents who have disabled children, beware there are TROLLS making terrible comments. There is no need to justify why you chose to continue with a pregnancy following a heartbreaking diagnosis. They simply do not understand what unconditional love is. I am a bereaved mother of a child who was born with a neurological disability. My daughter passed away at the age of 4. A particular TROLL has the audacity and indecency to spew verbal diarrhoea in my support of Brianna and her family and in memory of my beloved daughter. To the TROLLS attacking Brianna's family and more broadly any family of similar life circumstances, SOD OFF.

[@kathybrem880]

It’s not horrible to have a different opinion. It’s how you say it.

[@mariastathopoulos744]

@@kathybrem880 Yes, free opinions but when a grieving vulnerable parent is verbally bashed by judgements, that is entirely different. Judgements are often masked by 'opinion'.

[@irishcanuck9489]

Back in the day we called it Downs Syndrome. I have a brother with Downs, they said he was severely Downs. Well he learned to read and write, use a calculator, take a bus to work, go to the bar and play pool. He has travelled. My parents fought to keep him out of an institution! They didnt abort them back then instead they sent them to institutions, Eugenics Movement. Now we have a new Eugenics Movement...abortion. Parents ran the schools for them, by the time he reached high school age they had a segregated public school for him. He was a good swimmer and bowler, he played in tge Special Olympics. Most are born with a hole in the heart, my brother had heart surgery at 25. He is 68 now and has dementia. Idk about that, he sure remembers me! Still going on cruises, sitting by the pool with a Marguita (virgin) in hand, enjoying life! He made it to collect Old age pension!

[@hilaryb8807]

They’re completely different conditions: Down Syndrome is Trisomy 21. This child has Trisomy 18, or Edward's Syndrome.

[@kathybrem880]

No, this isn’t Down’s syndrome . This is quite different

[@irishcanuck9489]

Still they are calling Downs Trisomy..albeit 21! Still an extra chromosome. Just more research in the area.

[@kimwiles8201]

What a beautiful family keep fighting for her and loving her may all her dreams come true🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯💯

[@abbieprice3430]

This family is doing a great job in raising awareness of Trisomy 18 because of Brianna, especially her four sisters!

[@bluewhale2600]

Beautiful family.. she is blessed ❤

[@Dustin277]

Awe she adorable would definitely bring a smile to my face seeing her smile

[@DianeBush-i3g]

Amen, God bless your beautiful family. ❤

[@HaleyStark.]

I wonder how many people believe drs that their baby has no chance, and kill them despite not wanting to, when they may have lived.

[@aidenalamo6262]

I have a half niece that has it and she is in her twenties. So, it is possible to see a person with this condition live to see adulthood. Like Khfan, she was only suppose to live a year or less, not this long so she is a miracle.

[@bethanycook8430]

At what cost for the child?

[@kathybrem880]

Severe pain with every surgery

[@j3nnuhh]

First of all, FIVE GIRLS?!

[@femaleKCRoyalsFan]

Dad is going to lose his hair pretty fast once they become teenagers. 😉

[@lisavantassell5773]

My son had trisomy 18. He passed away as I was going into my 6th month.

[@bevturner2258]

That was really sad for you but your baby was saved painful surgeries and life struggles. How did you cope with this, it must have been really tough… Did you go on to have another pregnancy?

[@cominatrix]

I work with high needs special needs kids and I've also known several people who were told to abort their baby with a syndrome detectable before birth. They were seriously pressured towards it in several cases and treated differently when they told the doctors they wouldn't do it. Just because a child's life will be different and possibly more difficult, it doesn't mean that the same child does not have life.

[@bevturner2258]

I think a lot depends on the extent of the disabilities and the financial resources. There’s always enough love to go round, but money doesn’t have the same stretchability!

[@leighgirouard7151]

God bless this family ❤️🙏❤️

[@EmilyConrad-sy9gs]

Beautiful story and beautiful family! Such a testimony of God’s goodness.❤

[@karenbarth-vt7of]

If you're ok with calling it life, all right. But don't forget they're suffering, physically, every time they have surgery, every time they have a stroke.

[@carolinpurayidom4570]

Suffering happens to everyone suffering is a part of life and not a reason to kill

[@karenbarth-vt7of]

@@carolinpurayidom4570Reasonable suffering, not avoidable, nonsense suffering.

[@kathleenzinkovitch4050]

Beautiful family

[@lovelylipbonesouwwwwwwwolv2198]

I never heard of this until now...

[@cathalhendron3941]

God Bless this family 🙏

[@dianelove2648]

She is so àdorable. God bless you and your family.Brianna is adorable

[@lunab.1136]

Powerful story and strong parents

[@neenernener]

My friend has a 7 year old vegie. She's a Sweet Pea with Trisomy 18, her name is Alana Warrior Princess! ❤

[@monikamichaelis-iw3to]

It is cruel to have her go through all those surgery.

[@gillianbrookwell1678]

I agree, it is cruel, and her survival rate is poor.

[@NGC_290]

@@gillianbrookwell1678everyone’s survival rate is 0% in the end. They live with her, and care for her - I think they understand better than you her levels of pain or suffering

[@Sandybags]

Life is cruel

[@Wendy-Texas]

What a precious family ❤

[@bird4816]

this is honestly horrid. I couldn't imagine bringing someone into a life like this

[@kathybrem880]

I’d abort.its almost 100% a death sentence. Some live a little longer but not usually

[@NGC_290]

@@kathybrem880The pain of going through an abortion is certainly greater than what she is going through now. You do not have the right to take someone else’s life away from them just because you would not want to live their life

[@MaryONeill-g5y]

what a wonderful family may god bless you all

[@Jimsalos]

Wonderful family!

[@lyndakling901]

Pro CHOICE means you get the choice and so do I…..

[@SavedbytheLordsgrace1]

A child isn’t a choice.

[@NGC_290]

Murder is never an acceptable choice

[@NouraZahle]

Well you can’t give people false hope because it exacerbates the grieving. It’s a rare and horrendous condition that in the vast majority of cases ends in an early grave, but this family is the one in a million out of one in a million where their child survived longer than usual, and they also had the strength to endure the hardships along the way. God bless this family.

[@Morza565]

There's a lot of medical authorities who've made fatal decisions on what 'life' actually means. They are forever trying to justify a life without courage , without a meaningful community, in an able body only, is a high quality life lived. Yet cannot see the severe spiritual disability they are trapped in.

[@sherriebrown8318]

This is a personal, individual choice. Not everyone would be able to continue this pregnancy. Especially with the high risk of her suffering and dying shortly after birth.

[@Northern_Grit]

Beautiful ❤

[@leemayhan4199]

As a nurse there is a definite application in those born with diseases that in order to thrive they will always need multiple surgery or invasive procedures of their body from brith, feeding tubes and trachea as well as being susceptible to respiratory diseases, pneumonia translated into a life that is often filled with pain. The story this video presents is one of total perfection from the family, their home, how all loving they are and nothing with any real issues with such a child is presented. The only way that this reality of this child’s life will be revealed is when the cameras are turned off. No doubt that it would be more helpful for parents facing the same baby with this disability would see the painful surgeries as well the regular painful procedures in daily life as tube feeding, cleaning the tracheostomy by daily suctioning of the fluids in the throats as well caring for a disabled child’s body and tending to her when she suffers from pneumonia. It is a decision that parents can make to keep their baby alive and to do so takes a lot of pain and suffering for that child for the rest of their life. The sad part is that an adult can make a choice for invasive medical procedures but a new born baby this Genetic Disorder who cannot make a conscious choice or ever will over her own body not suffering in pain.

[@NGC_290]

Dismemberment is also painful. I’m a nurse too, and I know, better than most from my time on hospice, the pain that can come with these extra procedures. Full knowledge of what is involved in these extra procedures is necessary, yes, but nothing will ever justify murder.

[@leemayhan4199]

@@NGC_290 I have worked with the dying also. I am not speaking of those who are on earth despite their severe disabilities. I think that women should make their own decision when pregnant with a fetus that is likely to be so deformed it is not compatible with life and if it survive’s for a short life it will have to endure a life of pain and suffering to keep going. My question has always been why does someone choose to bear this child only to suffer, if it is really for the child or it is only for the parent. I think human suffering does better when the outcome could bring a great quality of life. I think we need to question the motives. I think guilt tripping a potential parent of a severely disabled baby should never be done if their believes that to bring such a child into the world only to have it suffer physically, mentally should be a personal choice. That why some doctors will offer the choice, they don’t want to see a child that will suffer all the life since they know what lies ahead. If one has a belief that abortion is murder then that is you choice and stay on your side of the road, it may not been the choice for a different woman. I am Catholic and would never have an abortion but things in life are never as easy as they seem.

[@bevturner2258]

@@NGC_290 Abortion doesn’t have to be about dismemberment. You know that. Sometimes abortion is less cruel than a life of pain. I would choose abortion in a case like this.

[@bevturner2258]

@@leemayhan4199 Well said…

[@leemayhan4199]

I graduated from Nursing school in 1972 and lived in a Catholic community and Catholic myself and worked with Catholic doctors and surgeons. At that time as Catholics we “saved” all our patients and once an accident victim came into the ER they were kept alive with artificial support. Even with severe injuries. These patients were then sent to re-hab as full care with the machines and some had suffered traumatic brain injuries and were brain dead, yet once you institute placing them on life support machines, pulling that plug meant they would die and that was murder. What we saw was so many people suffering on life support. It was the same for fetus’s with severe defects not compatible with life. So the results were in front of us and as doctors they want to do no harm , and there was harm to the patient and the family. Family’s lost their life savings having to pay for medical care as they knew what the end of suffering would be for these patient’s. The medical care for keeping people alive changed drastically. With it came definitions compatibility with life, of brain death, hospice care and now palliative care. So as this all started to evolve and grow we still had some Catholic doctors or some other religion who continued in the old school of thought about keeping people not compatible with life alive instead of allowing them to transition out of live naturally, easing their pain and suffering. When this happens to people everyone around that patients have to deal with “what to do”. Thankfully there are some developments that have improved these decision making process’s better and and communications between the medical community, the patients and the families have been more open and honest, which today is a necessity and it the goal is to improve the life of the patient so they suffer less from the condition their body is in. I have seen so many babies , and children suffer to stay alive, some make it , some do not. But we must really question when severe medical treatment is a help or a burden on the one that is suffering. I have seen conditions as Cystic Fibrosis children born with this condition who suffer struggling to breathe and the daily painful treatments to their lungs only to improve the quality of life after a lung transplant and the age of death for these children was 20 years of age, living now many years beyond that, although some die after a lung transplant. Medicine is science, science always moves along and in the long time, some amazing discoveries and made and used on patients with chronic diseases.

[@tinmanlover1994]

She's amazing and beautiful she's God's miracle baby and she's here for a reason. God loves special needs children we're the one's that shines God's light

[@KingFowler-o1i]

Nobody and I mean nobody or no power here can have control may God keep this great family strong and Lord be with all who have life harder than the next person God bless you guys i pray for his love and grace all over the place Aman and Aman 🙏🌍😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇😇

[@adaeverleigh9584]

I'll get hate but I think it's selfish on behalf of parents who try to extend a child's life when it's obvious they're suffering with tremendous odds against their ever having a normal existence. And please don't say it's "gods will"

[@mariastathopoulos744]

Everyone born has a set number of days in their lifespan. When someone's time is up, there isn't any medical treatment or intervention that will change this. I found out my daughter had neurological abnormalities at the 20 weeks in utero scan. I was so afraid but l chose life - to bring my daughter into the world for however long or short her life would be. I wouldn't toss a child born healthy away if they sorrowfully suffered from brain cancer, meningitis or endured a horrible accident after his / her birth. My daughter died at the age of 4. The most important thing is that she was unconditionally loved then and still loved now. Should you ever experience the circumstances Brianna's parents faced, that l faced, then you are free to make your own counsel. An abortion is not a soft death for a baby either. Have you listened and watched presentations on how the procedure is carried out? The baby is decapitated limb by limb, skull crushed and finally sucked out. Or extremely highly concentrated solution is injected into the uterus. The solution basically acts as acid to burn the baby. Every choice will have a consequence.

[@bird4816]

I can't get past that either

[@ChanmonyFrazier-t9i]

I think my question is, who gets decide what is normal? And why is someone's life less valuable for being different? As a special ed teacher, I work with children with moderate to severe disabilities and delays. And yes, there are many challenges they face. But I get to watch them laugh and smile and play. Life is hard. We all face challenges and pain, some more than others. But we all can still find love and meaning in spite of our hardships. If you're open to it, I'd recommend Viktor Frankl's "Man's Search for Meaning." He is a Holocaust survivor who speaks about his experience and what to do when we face hardships, how to find meaning in life in the darkest of moments.

[@annthornton7511]

I agree with you...if God loved her so much why did he create her...

[@annthornton7511]

Fanatical religious people are more interested in "gods will" than the suffering they inflict on their own child.

[@annthornton7511]

I cant stand the sanctimonious comments that it is "gods will that she must be born and that she must suffer"

[@kathybrem880]

I can’t either-I find THAT attitude heartless

[@gillianbrookwell1678]

@@kathybrem880 So do I.

[@bevturner2258]

Couldn’t agree more. Sometimes nature makes mistakes and we need to acknowledge that. Usually babies are spontaneously aborted when there are developmental problems. When nature fails, we have the means to step in and save a child from a hard life of pain and suffering.

[@iloveshaakah]

Beautiful.❤

[@groovytoney]

This is fucked up. Those people are selfish. And to have another child after is fucking mind blowing. Smfh.

[@freedomwriter1995]

But is it living?

[@kathybrem880]

No

[@NGC_290]

Yes

[@EvelynSchlagel-n4m]

Sure your thinking of the outcome, but life has a way to countine, to change, the love and conection of family, a warm hug a gentle kiss all of these small but significant among all of us to live, gave a great impact in all our lives, don't think of it as an outcome think of it as a future positively and it will begin to fill in the blanks

[@rochelle-xz8gl]

No woman should feel shame for needing or wanting an abortion. I would have had an abortion.

[@kathybrem880]

So would I, it would have gutted me but I don’t see that as a happy life

[@NGC_290]

@@kathybrem880too bad - she does

[@NGC_290]

Murder is a shameful choice

[@Sandybags]

How about let life take its course. Golly

[@emeraldkimble7602]

Unlike premise there’s enough lung surfactant

[@rohj4825]

We need protection of all humans life from moment of conception.

[@ninaduncan2463]

This is sad people can make their own decisions for their lives and some can’t make hard choices which is also hard sad and cruel

[@christine-ep4bx]

the billion dollar baby

[@opinionated2902]

All glory be to Christ! What a beautiful family

[@shanimarais9695]

Amen! God is good!

[@ERNIE555]

@@shanimarais9695yes let people suffer …what a psychopath

[@monikamichaelis-iw3to]

This one got more than trisomy. Unfixable.

[@marysueeasteregg]

This child does have a trisomy, of chromosome 18; complex medical problems are common, probably universal, with Trisomy 18. You may be confusing her condition with the more common, and generally less disabling, Trisomy 21, Down Syndrome, which my late brother, and a nephew by marriage, had/have. Other trisomies occur -- tripling of chromosomes 13, 16, 18, 21, and 22 occur most often, especially chromosome 16, which is a common cause of early miscarriage. *NO trisomy is "fixable."* Treatment is for the complications of the particular patient.

[@kathybailey436]

Too bad they dont know about the patches that can be of assistance. 😢

[@melaniewilliams2972]

Patches?

[@user-kd3tb6wf9i]

It should be a choice. You chose to keep her on a vent, others may not want this for their kid or themselves.

[@Molly-uk2uf]

It's not a "choice " We don't play GOD. Conception is the BEGINNING OF LIFE. And should never be the beginning of death intentionally.

[@syfekai654]

@@Molly-uk2uf it doesn’t matter though you’re still wrong you can choose to have the baby and prolong it but if the child needs to survive to be hooked up to a ventilator and a bunch of tubes and you’re just forcing it, the inevitable, then yeah, you are choosing to play God you’re trying to fight something that is going to happen either way

[@Molly-uk2uf]

@@syfekai654 This child WAS NOT Hooked to ventilation .

[@Molly-uk2uf]

@@syfekai654 You can "choose" to Make good decisions BEFORE you conceive. That's when it's a "Choice" NOT after the fact.

[@Molly-uk2uf]

@@syfekai654 You don't play GOD. You don't kill a child. Period.

[@katherinekuhn8142]

You put this baby through hell.

[@danalittleton4884]

God gives us ALL our special traits and jobs for life.

[@bird4816]

glad that's not you though, right?

[@debbieschultz9768]

People need to realize that God is in control. What a beautiful family❤❤❤❤🙏🙏🙏🙏🙏

[@Gumblossomhomeschool]

Praise God ❤✝️

[@kathybrem880]

For what?