Managing Pain in Parkinson's

[@waheedamarican2108]

When I watched this video I was literally in tears, because of feeling trapped in constant pain. Just knowing someone totally gets it gives me hope to release myself from this vicious circle of pain which my neurologist seem to dismiss. 😥 Thank you very very much. ⚘

[@davisphinneyfdn]

Pain is a significant and under-recognized issue for many people with Parkinson's. It can be easy for people, even some providers, to notice only the overtly visible parts of Parkinson's, and this is a mistake. We try to highlight this aspect of Parkinson's to work against this tendency. Here's a blog post about pain that might also be helpful: davisphinneyfoundation.org/pain-and-parkinsons/

[@ptrl1]

Very clear and useful. Excellent lecture - thank you!

[@benmoore4008]

I could not print out the physical effects of Parkinson’s disease. How can I get the list?

[@julif6739]

I have pain in my left thigh two years before my diagnosis of Parkinson and I continue to live with this pain. I have been attending physio but not working. Amytriplin calms the pain a bit but pain is always there

[@davisphinneyfdn]

Thanks for your comment. Pain can be so hard to work through. We hope that you and your physio can make adjustments and lessen your pain. If reach a plateau and stop making progress, you might consider working with someone new. Sometimes a fresh perspective can help!

[@julif6739]

@@davisphinneyfdn thank you 🙏

[@sylviamcdaniel4590]

I have Parkinson's and right thigh and hip pain, Flexeril, Diclofenac gel and Tylenol Arthritis Strength helps me.

[@toryberch]

Can intense painful flares in legs be a case of dystonia?

[@bethroundell8424]

Awesome!

[@wayneagilbert6449]

an awesome presentation! very helpful. i've also found mindfulness training has helped me, as well as a vegan lifestyle.

[@candacescheytt1751]

This is a fascinating subject for me. I suffer from curling toe pain so I’m trying to find a way that I can minimize it.

[@toryberch]

I'm trying to find out the source of my excruciating leg pain episodes It hits in my thighs to where after a solid day or two , I'm struggling to walk or just function period. I have rheumatoid arthritis Sjogren's Syndrome and Fibromyalgia on top of my Parkinson's. It's been over 7 years of no answers from either my rheumatologist or my neurologist I'm getting closer to age 60 and I'm so worried how much longer I can not only stand these painful storms but also the long time I've been on opiods.

[@tracykarol]

I’m so sorry. I have young onset PD and constant pain in multiple places. I’ve tried everything from chiropractic to opioids and injections. My mom, 84, also has PD and pain, freezing, but not the autonomic problems that are severe with me. My father died several years ago with PD, though the death certificate says Agent Orange. All of us have different symptoms. I fell hard on both knees a few months ago in the street and now have injuries there too. Praying you find relief!