Marfan Community Stories from Chicago

[@pilarmontenegro8811]

My son has been diagnosed with probable Marfan syndrome. it only has a few criteria, such as arachnodactyly, spontaneous pneumothorax, hyperelasticity. So far he has no alteration of the aorta or alteration of the lens.

[@pilarmontenegro8811]

The cardiovascular surgeon forbade him to travel by plane or visit high altitude places due to the risk of another spontaneous pneumothorax. I would like to know if this has happened to any of you. my son is currently 20 years old, the diagnosis was at 18 years old

[@carolanngoodell3564]

I had two pneumothracies in 2005. Both after nothing strenuous. One I was actually standing at a desk in a hotel lobby, the other i was at my job at Mcdonalds. I was 16

[@IsaackHaufiku]

my sister also has this syndrome

[@donnarivas6150]

my whole family had Marfen Syndrome.

[@ALANAMUL]

I am a marfan syndrome patient too

[@MH-hw4uh]

Me too

[@rohansrivastava492]

@@MH-hw4uh me 3

[@MH-hw4uh]

Me also 😢 and many family members .