Systemic Lupus Erythematosus (SLE) 8/24/16

Рет қаралды 42,926

Күн бұрын

Пікірлер: 62

@OneCraftyRabbit 4 жыл бұрын

I have Lupus SLE. Someone commented about ulcers below, I also have had many ulcers both painful and not painful but I get them very frequently, also I have just been diagnosed with peripheral neuropathy. No diabetes, so the neurologist assumes it's from the Lupus. Blessed to not have renal issues, but I guess I am one of those rare few you mentioned in case there is anyone thinking they're alone out there...you're not! Anyway, this was a fascinating lecture, thank you for sharing!

@notbroken4342 Жыл бұрын

A ten year survival rate is still scary. I hope it has improved since this lecture.

@femidaelettil1002 5 жыл бұрын

Thanks a lot... Highly recommended for medicos

@seanpresher 3 жыл бұрын

I am a Lupus patient. I have been through many ups and downs throughout my treatment term so far, but still fighting 11 years on. I sufferred a stroke and ended in a coma for a week, only to wake from this coma fully paralyzed and unable to speak. I underwent one year of full physical and speach therapy and managed to regain most of what I lost. Lupus also caused me to get more diagnosis of further disease like, CNS Vasculitis and Addison's disease. Been on chemotherapy and Corticosteroids for 11 years non-stop. I am extremely UV sensitive and it is very clear to me that UV exposure without a doubt leads to a flare up. I pray that this comes to an abrupt end soon, either way, life is too harsh for me, the pain, mentally and physically is at times too unbearable! Thank you fir reading... Sean XXX

@donaldvincent 6 жыл бұрын

Thank you for the information. Us Loopy patients NEED to be educated as much as possible. As a white male with Lupus I must "prove" it every time I meet a new doctor. The wife and I both want to move out of Florida but I am terrified of being off of my meds until some new doctor gets blood work back.

@Nono-jf5bc 5 жыл бұрын

Your state seems to have the drs who understand this good luck soft hugs many Irish blessing to you and your family

@luisrm37 4 жыл бұрын

Wow if you have that kind of relationship with your Docs i can't imagine how good the relationship must be.

@donaldvincent 4 жыл бұрын

@@luisrm37 Yes, I love the doctors that I have. They were all with me years ago when trying to figure out what was going on. Now with treatment my platelet and red blood cell counts are normal and my ANA is negative. I don't want to repeat the diagnostic journey. It was expensive as well as feeling like crap. If you are an MD you'll understand me when I say it is no fun being the zebra.

@reemsultan9633 4 жыл бұрын

I'm Sultan Reem From Tajikistan (Central Asia) I'm So Happy Sharing My Testimony To The Entire Universe On How @herbalist_oduntun completely healed me from diabetes, I Couldn't Keep Calm Spending Allot Of Money On Medical Treatment So I Tried Natural Remedies. Right Now I'm Feeling Blessed Sharing My Testimony, Who Knows Someone Meant Also Need His Help

@reemsultan9633 4 жыл бұрын

@@Nono-jf5bc I'm Sultan Reem From Tajikistan (Central Asia) I'm So Happy Sharing My Testimony To The Entire Universe On How @herbalist_oduntun completely healed me from diabetes, I Couldn't Keep Calm Spending Allot Of Money On Medical Treatment So I Tried Natural Remedies. Right Now I'm Feeling Blessed Sharing My Testimony, Who Knows Someone Meant Also Need His Help

@ramanm8954 8 жыл бұрын

An excellent review of SLE with a lot of tips for day to day practice. Thank you.

@reemsultan9633 4 жыл бұрын

@israeltommy3604 3 жыл бұрын

a trick : you can watch movies at Kaldrostream. Been using them for watching all kinds of movies lately.

@deckerbentlee1257 3 жыл бұрын

@Israel Tommy yup, been using flixzone} for years myself :D

@emoryzayn2432 3 жыл бұрын

@Israel Tommy yea, I've been using flixzone} for since december myself :D

@abrahamrhys6269 3 жыл бұрын

@Israel Tommy Definitely, I have been watching on Flixzone} for since december myself :D

@tahmeedhussain2305 8 жыл бұрын

thank you sir for the excellent lecture

@reemsultan9633 4 жыл бұрын

@AngelRoseAngel1980 Жыл бұрын

God bless you

@AngelRoseAngel1980 Жыл бұрын

Thank you

@mugerwapenny4079 5 жыл бұрын

Thanks doctor, it's been almost 12yrs but did know what was the sickness its on the 7-9-2019 I tested and found out,but when ever I use to get the attacks I've been using vegetables and fruit. we r asking the researchers to help us get the cure for systematic lupus.thank you

@victoriamolina9879 5 жыл бұрын

Winner of a video, I been tryin to find out about "coping with lupus flares" for a while now, and I think this has helped. Have you heard people talk about - Denmelia Jansabella Builder - (Have a quick look on google cant remember the place now )? It is a good one of a kind product for discovering how to treat lupus without the headache. Ive heard some interesting things about it and my buddy got excellent success with it.

@reemsultan9633 4 жыл бұрын

@sasikumarseenivasan7465 4 жыл бұрын

இந்த லூபஸ் நோய் க்கு தீர்வு விரைவில் கிடைக்க அனைவர் முயற்சியும் தேவை. நன்றி

@samirkarki192 3 жыл бұрын

thank you!

@coewayboulder 7 жыл бұрын

Fantastic lecture! Thank you!

@fomar2137 6 жыл бұрын

Please. Help. Us. People with lupus find cure please 😭😭😭

@babyghany9991 4 жыл бұрын

Cannabis...dmso and acv are some natural things that can be used to treat it

@reemsultan9633 4 жыл бұрын

@zizinini2097 4 жыл бұрын

Helpful. thanks.

@santabracero3558 4 жыл бұрын

Can blood test say if one of organs is not working properly?

@naveenu2264 8 жыл бұрын

thank you... nice presentation... was very useful

@ulver1881 6 жыл бұрын

😂 "wow this is really like church" hahah

@reemsultan9633 4 жыл бұрын

@a.h.s5152 5 жыл бұрын

Is an positive ANA titer 1:80 speckled ANA an sign of SLE lupus?

@reemsultan9633 4 жыл бұрын

@sehrishramzansehrishramzan2899 5 жыл бұрын

i have deltacorted tab use for sle but i want finish sle in may boday

@shacritt4177 5 жыл бұрын

Negative ana but positive anti double dna what's up with that

@jamiestewart1223 5 жыл бұрын

Shannon crittendon I was negative ANA positive Anti DsDNA for years until a really bad flare this year and it was positive finally.

@thefenerbahcesk4156 5 жыл бұрын

@@jamiestewart1223 That's interesting. ANA tests are supposed to be highly sensitive - meaning if ANA tests are negative there's no way you have an autoimmune disease... guess everything in textbooks isn't true.

@jamiestewart1223 5 жыл бұрын

TheFenerbahceSK It's very rare but it happens, my sister still hasn't had a positive ANA since 2007.

@d.d.9636 3 жыл бұрын

Same with me as my results just came back yesterday so I'm waiting to hear from my rheumatologist. I've been feeling lousy and developed a rash on my neck almost two weeks ago. I've also been photosensitive for several years now.

@d.d.9636 3 жыл бұрын

@@thefenerbahcesk4156 the double stranded DNA test is more accurate from what I've been reading.

@sehrishramzansehrishramzan2899 5 жыл бұрын

i am sle paitant sle attack may kiddny so plz help mi for best br and advaice mi