Meet My Mom

In a past video, I interviewed my sister Ellie. Now it's time to meet my mom.
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[@bekayezme]

Thank you so much for this. My daughter died from cf in 1992 when she was 12. She was born in 1980 before the cf gene was found and before the vest and vitamins and everything. But I wanted to say that thought I watch other cf youtubers, they never have their parents on to ask them how they felt when they found out their child had cf. At the time we found out about our first born daughter, Katrina she was 3 1/2 years old. She started complaining of stomaches and we had her at children's hospital every night for 2 weeks. They kept telling me nothing was wrong with her and that she might being complaining to me to get attention. We were at our wits end to say the least. Then my mom said Katrina was having symptoms of cf. Back in the 60's my mom's friend's daughter died from cf. And, it was at this same time that the book Alex had just come out so I was reading that and I was sure our Katrina had the disease. So I called my pediatrician to say I wanted her tested and he said he did not believe she had it because she was always so healthy, but lo and behold she came out positive. We were devastated to say the least. At that time we only had the library and there we no information about cf. The only thing we could find was that Jimmy the Greek (he was a sports guy) had five children that died from cf. And the cf foundation send us information that gave us no hope. No one else in the family had cf that we knew of. My mother in law actually accused me of giving the disease to my daughter even though we told her her son was a carrier, too. Later, we had them tested and it turns out my husband's father is a carrier. Anyway, when you mom is talking about finding out about you having cf...I'm right there with her. It's terrifying finding out that news of your brand new child. I feel every word she is saying. I cradled Katrina and cried and cried. The poor girl probably thought I was crazy, but my heart broke so bad. And living with the idea that she was gonna have a short life; the doctors giving us no hope at all. Again, thanks to your mom.

[@shesACE]

+Green House Homestead I'm so sorry for your loss, my close friend who was also named Katrina, died a year ago Jan 7th because of congestive heart failure, she was only 23. :(

[@mattmoney6654]

sorry for your loss :(

[@taylorannbicica6389]

So sorry for your loss.

[@msppassion7206]

I am sorry for your loss but your daughter would have been proud of you and all that you've been through.

[@litzyg.9445]

Green House Homestead im sorry for your loss but now she is no longer suffering and now she a beautiful angel in heaven watching over you and you wonderful family R.I.P 💗😇😇

[@forestmullens6177]

oh my god she is so gorgeous...

[@lillian.catherine]

Both of them are :)

[@timlarson6913]

+Dramatic11 Yup. I like it that she is so positive all the time. I like that 😊 anyone else?

[@SuperPipe28]

+Tim Larson To say I like it would be putting it lightly. She's a goddamn ray of sunshine, I love it.

[@muneeraangari3121]

i adore them already

[@HayleyRobinsonhale]

Omg when your mom started crying ... I was gone lol

[@garciedarling]

what a beautiful , loving, honest relationship

[@peeweepixie3655]

You are such a beautiful person and you are so funny! Like seriously, you need to become a stand up comedian or something. Your personality is uplifting and one of a kind! I'm sorry that you have to struggle with a chronic illness :( God bless you and your family! Keep making videos!

[@TheMessage4U]

+Lauren Roy what a kind, uplifting and beautiful comment! May God bless you and you should have a wonderful day! `Peace and Love, *The Message*

[@Sirlie08]

She is really beautiful! :o

[@ffsomgwtflol]

Your mom is awesome! I bet you have got to share so much more thanks to the CF. My mum(I am from England) has never really got over the death of my brother David. He was 21 and it was cancer, but I am sure he wouldn't have wanted mum to cry herself to sleep for ten years. If you get the chance let mom know you want her to move on when she can. On the plus side Claire, you can not experience your own death and as our universe has multiple histories, you will live to be an OAP. Just poor old mum will see you die in a lot of histories. Anyway your both amazing people, thanks for sharing your story

[@EmilyCx33]

Ok I'm bawling at work. Gosh you are inspiring. I love your mom. What a great family and heartbreaking that someone with such a good spirit like yours has to go through all of this. You are changing the world though.

[@pricelessbeauty2969]

ur mom is the best u guys bond had me in tears literally x0x0x

[@KateTsanka]

I can't imagine going through the same thing. So glad you can laugh and still make the best of the situation. Wish you all the best to you 😊😊

[@j4mesmcnei1]

How have I just found out about this amazing young lady. You are so beautiful inside and out. I am dealing with losing the most important person in my life right now, she's still here but she is dying and I know your videos are going to be a huge source of comfort for me. Thank you.

[@alinepoio2730]

Claire, you are beautiful. You're so mature and aware about everything that it's going on with so much acceptance, it's inspiring! Thank you girl

[@MelKokiri]

Wow you two are warriors... It must be so hard to fight through a chronic illness together, always expecting death and not knowing what the future holds for sure. You both have a huge bond, it's beautiful. (Not related but your mom's necklace is eye catching!)

[@FunnyShorts-lg6ri]

There seems to be so much trash on KZbin but videos like this should be what KZbin is all about, sharing experiences and growing as a result. Excellent and amazing channel and great videos, not just the content but also how you present it. Well done.

[@amarthiyab365]

You are the most positive person I have ever seen... may Allah keep you in peace

[@qateralneda]

awww this video is so touching. Your mother is amazing, loving and wise.

[@meganferns3688]

I want to hug you and your mum , thank you for sharing. You are so brace and beautiful & your mum is too ❤️❤️❤️

[@TheHobozombie]

I've decided to dedicate my entire day to watching every one of your videos, you're amazing!

[@kylerjanovec1761]

She is so pretty

[@brennadwyer2702]

She has a amazing soul I love her so much and her mother if you are listening your daughter will have a long life ahead of her don't you worry please like if you also have all the hope in your heart

[@QuadiePoo]

Awww. Your mom is so gorgeous and so are you. You are so positive and fun and mature. Your channel is so great. I want more updates.

[@MrScottie301]

I love that you all have not let this disease control you but instead you decided to live and love each other for as long as you can. Thank you for your honest souls!

[@dianebohn8423]

I love this, I can not even think, or know my baby could die any moment, I would have so much anxiety, wow living in the moment, was there own recourse great job, love this story, so powerful in so many ways

[@mustafidhrahman3705]

whoa ... claire your mom's gorgeous... no wonder you are so pretty. love your smile

[@kdn5576]

I was about to skip the ad but I saw you and I stopped. It was the Philips breathless choir. I felt so proud and sang along. I have a chronic lung disease. Thank You.

[@INeverMetaphorIDidntLike]

omg at the beginning when she leaned over and whispered "besides cf??" - i DIIIIIIIED - i had to pause it i laughed so hard. dude- you two are dark, and it's beautiful :D :D

[@christoffer1917]

Awww, your mom is so sweet

[@pepsicanzy]

Thank you for the positive energy. how a sweet family you guys are

[@shanhayes2488]

What a wonderful daughter you are Claire

[@AlterFXX]

I hope a cure gets found soon! You deserve it. You are an amazing person. Keep doing what your doing. Your doing great! You seem like a really sweet girl and you are super down to earth. You are amazing.

[@heatherbaker4485]

I read the article and it made my heart mealt she is so strong

[@ipKonfig]

Two gorgeous women! What a mother.

[@javinturbotch3660]

Shes bangin'

[@lanceseidman]

Hey Mom, I like your daughter. She's inspired me to make mechanical arms for little kids freely.

[@sarahholt625]

the part where her mom says she looked at them as a baby saying it's going to be okay

[@jeremybray321]

Wow! You guys are really doing a good job for well, other people and their future with such strength and spirit of example. I think it brings us all together as a universal family or such. Keep up the great work as a family.

[@joshuagodfrey8289]

Clair I also got that intestine issue as a baby I had two surgeries and a huge scar now across my belly from it I'm on oxygen ; wish I could get some happiness I don't know how

[@daniellaviolet6207]

Joshua Godfrey sending my love 💗 you can do this

[@caacs24]

Joshua Godfrey how are you now?

[@aaannarose]

Such a great insight. Thank you (and your mom) for making this video!

[@elizabethdiaz2853]

make a video. ever once a week we miss u

[@ericsargent3425]

one thing I have realised is that you wouldn't be the same without cf you are an amazing and B E A UTIFUL individual

[@stummkind]

your mom is so cool! and so is your room

[@AndreaB388]

you are amazing,and your support system is fantastic,i got the goose bumps watching your videos as if you were my own sibling love hugs and kisses,

[@TheMessage4U]

Hello Claire! It is so nice to see you back with an all new video! I was quite worried for a while not seeing anything from you but you're back and you're ok!! I too live with a debilitating chronic illness, its called Secondary Progressive Multiple Sclerosis. I spend all of my days confined to my bed writing poems, making videos for my KZbin Channel, hoping I can bring some kind of joy or hope to someone's life. You are a very big inspiration to me and I really enjoy your videos. You always bring a smile to my face and I would like to thank you for that. I do not have many things in my life to smile about, but I do try to keep myself thinking positive. Anyway, be as well as you can and I look forward to your next video! `Peace and Love, *The Message*

[@prophetadam7595]

Amazing you and your mom are angels

[@wannaBtraceur]

Two amazing women right here!

[@chloecandy1927]

I have just started to watch your videos and you are just great to watch thank you for making my days better xx

[@alkimich14]

30 seconds in and i get a very grace vanderwaal feel from you

[@chellyk9745]

You two made my day. :) I ate dead flys off a windowsill as a toddler. They were crunchy!! My mom had the same reaction.

[@juliahormayer7255]

Omg you are THE cutest

[@MsJudy131]

Your Mom was to funny at the end! I loved it!! 😊

[@sarahmarston2630]

Both of you have the cutest clothing and style! Adorable

[@coykiwi4548]

Oh man, your mom is adorable.

[@joannadeasis9326]

where are you we missed you

[@skippi147]

you are both such wonderful women

[@Inadace]

You are both amazing! thank you

[@claramills104]

your so beautiful, both of you! your mum is a stunningly strong woman and so that must be where you get it from. every moment is a blessing. i think your just wonderful and you will be in my thoughts, clara aka Claire also lol from London xx

[@tina7151]

You are both very lovely

[@beccabark7912]

I'm right were your mom was all those years ago my son is 4 and a half months and I'm battling everyday alone the depression the fear everything I'm the only one in my family includeing my husband that cares for him and I'm the only one that will discuss his illness period it's been hard he's been so sick and I have two other children as well that don't have CF but I take care of them also I do everything my husband works constantly. listening to your mother was so inspiring I felt I wasn't alone even if for a moment

[@user-eu6th7er6q]

You're such a beautiful character and soul! 🌸

[@ToyWoods926]

I got here from an add and I cried when ur mom started to cry when other people cry I cry.. Don't know why but that coma video made me like see how it was a little and I almost got a coma from skateboarding and I broke me arm and hit my head first and they said if I got a coma they said "he would have a coma for 3 or even 4 weeks" thanks goodness well good bye sorry if the sentence is long.

[@lizredmon4500]

I have that same Dress! You peeps are so Beautiful!!

[@elenav1287]

So inspiring, you make me appreciate life ❤️

[@amclaudet]

Adorable ending!!

[@cristianborenstejn1608]

eyy happy new year! I wish you the best for this 2016

[@nfvy8111]

You're both GORGEOUS 😍

[@gaellemunro5065]

You are actually gorgeous

[@jamesjordan1497]

I feel for both, they can talk to me anytime, if I am able to do!

[@Neitha98]

Your mom is adorable as you are !:) and what is your favorite Chrismas movie ?

[@TheFloatingSheep]

Awwww

[@kellyheald7177]

your awesome hun! great videos.

[@bubblewraps]

i'm from turkey and my friend had the illness she has, but capitalism killed her, when will the government understand human life is more precious than a few pennies?

[@bookcreator]

Even with the proper resources and all the money in the world, CF is a very aggressive terminal illness that is very difficult (and time-consuming) to treat

[@shaunacerasoli7865]

you truly are freaking gorgeous!!! I love watching your videos. your personality is amazing and is it odd that I love your voice?!? Haha don't mean to sound like a creeper :) you seriously need your own tv show or movie ASAP

[@Basengsei]

You're awesome

[@Trazerade]

Wow 546 likes 0 dislikes, just a genuine, amzing human being Sad to see people like this with CF and other sicknesses

[@Hitlyas]

Claire, i hope you and your family are doing well. :) Greetings from Portugal

[@sunshinecarson]

Keep making videos!

[@user-qr4yc5jy2i]

Hey mom.

[@AppearedTag501]

You are one of My favourite youtuber.

[@mikarizollosemmler4727]

How come she doesn't post anymore is ok?

[@PepinsSpot]

There is nothing about crying for that, that is being a baby.

[@jmarkula]

wow, what a lady your mom is :-) ok, you both are. ladies, like a friends to each others.

[@damn.1672]

Ur beautiful and u shouldn't have this disease. Let me change the way I say that. NO ONE should have to go through that. I feel so selfish living in a life, where all I have to do is talk 3 pills a day. I wish I could help in any way possible. You have helped me realize that I should live life to the fullest. Yea.... I think I'm going to do more things for others...... starting tomorrow...... Lol

[@kagomegrrl21]

do you watch the freylife with mary and peter she also has cf

[@amclaudet]

Beautiful women, wow! 💗

[@betanshow9755]

And you are still going to live for more many years

[@blakey8106]

Love 💜

[@chris13680]

Best reaction ever 😂

[@lillian.catherine]

This was funny I loved this video :)

[@jackrosess]

Love your channel! Where did you get the buddha poster? :)n

[@ilovekansasandobsessedwith9842]

Allah (God) bless you and your life 💜

[@laurynyanke9894]

is she Muslim? (btw just asking)

[@ilovekansasandobsessedwith9842]

+lauryn yanke No i am Muslim and i just wanted to pray in my way :)

[@jaedenrotondo3373]

+beyza yilmaz that's nice😌. Ik she respects many religions and it gives her hope. ❤️

[@fuekmailaifu2531]

Amin 🙏

[@sessizgozlemci]

Ameen

[@andreas3925]

Hope you're still around :) It has been a while :3

[@stanley7766]

Да они же копии друг друга Оо

[@cristaldominguez9969]

Hi Clair and mom I am a second time around mother with only my youngest who's 3 having cf how long did it take your mom to be able to talk about cf and how she feels and accept that you have a disease I still can't talk about it or how I feel without crying or feeling guilty for passing the mutation without knowing I even could I always try to be positive I tell my son what he has and why he needs his meds and why the vest will help and he understands as much as a 3yr old can lol but when I really sit and think I just can help feeling guilty angry sad and lost still 3yrs in so I push it down does your mom have any advice? 💜

[@Faizaabukar]

how old is she? 23?

[@husseinbourji998]

she looks and acts so much like miley cyrus

[@cartooniverse8891]

Clairity Banzai, Banzai, Banzaiiiii

[@RJinthematrix]

nobody used google 18 years ago, it was all yahoo and altavista

[@Ellecram]

Google with a lowercase g is now used primarily as a verb which indicates a general internet search. Google with a capital G is the actual name of the organization. There are many examples of this word usage evolution in the English language. A few that come to mind are Kleenex, Band-Aid, and Clorox.

[@vald7677]

Ellecram to me at least... google is a specific search engine... I don't say google for everything at all.. I don't use any other search engine now, but if I was referring to a search engine i used in the past tense I would just say search engine, not google, but that's just me. Maybe it's just because when I was learning computers I knew the search engines I used then are definitely not the search engines I use now. When I refer to social media I refer to the specific one... I don't use Facebook for an all encompassing term... because I know I used MySpace and livejournal before Facebook was even a thing

[@vald7677]

Ellecram also the brands you've mentioned such as bandaid, Clorox, Kleenex, have been around for almost 100 years at this point... and language does evolve fairly rapidly these days, as an anthropologist who's studied the evolution of language, I would say for the term google to become a colloquial term in regards to an overall generalization is a bit too soon. Yes I say to people... well google it... I specifically mean google when I say it because I know bing and yahoo don't deliver the same results.

[@DANIELDD112]

How old are you

[@morgthestallion]

Ur mom is so muchhhhh like mine I just wanna hug your mother so badly.

[@CarolineMickle]