Tyler had a Tethered Spinal Cord

When Tyler was a small child, frequent bathroom accidents became a frustrated part of his daily life. His mother persisted and eventually found the answer to this puzzling problem with the help of Dr. Holly Gilmer at MHSI. Dr. Gilmer preformed a Minimally Invasive Tethered Spinal Cord Surgery. Since his surgery Tyler is happy healthy and accident free!
To learn more about Dr. Gilmer visit www2.mhsi.us/d...

[@MixedMediaInk]

Unbelievable. I can't believe doctors couldn't figure this out for so long. When did he have his surgery after diagnosis like how long did it take?

[@dang.3677]

Glad to hear he's doing okay, I have a tethered cord myself but I've already had three surgeries to deal with tethering. Doctors can't operate anymore, they say it would do more harm than good. One question, in a person with a tethered cord, is it okay for them to move their neck, either Bend or turn left or right? I've had some doctors say it causes some harm to the cord because the cord isn't moving freely due to the tethering and others say it does no damage to the cord. Do you have any info regarding this? Thanks.

[@dang.3677]

Fyi, I asked because I feel myself getting weaker but I've had doctors say that's caused by myelomalacia and not the tethering.

[@DevinShoulders]

Ok as someone who has a “neurogenic scoliosis” (scoliosis driven by nerve tension) I get what you’re going through. Tbh, it really depends on how hard you’re doing it. My tether has been happening since I was a child so I’ve always had my head tilted in terms of mechanically operating. You can go the other way but I wouldn’t suggest “stretching stuff out” of the cord isn’t moving freely. Because it can cause a black line to appear on it (saw it via MRI) also they have something called spine shortening surgery if you’re open to looking into it, it’s been said to be a more effective solution to people who didn’t benefit from detethering. I have both in my back pocket because it’s the main engine behind my spine issues

[@DevinShoulders]

The rest would resolve on its own after the root cause is fixed. But the spinal cord can be tricky

[@nickrufo2242]

I'm 35. Long story short, I have Lipomyelomengingocele....have had 3 surgeries. Last one @ 27yrs old. That was botched...can't feel my feet, backs of legs, "pelvic area"... incontinence worsened. Have to Self Cath for rest of my life now. Cannot void by myself anymore. Walking-wise, I'll be fine for a while (months at a time), then all the sudden I'm walking like I'm 90yrs old. Does anybody know if they can cut this Tissue mass out??? I feel like it'd be extremely high risk, high reward. I'm just tired of being "in limbo". Can anybody help me?

[@solsticsecrets]

Come to India and Meet Dr.Arun Saroha(Neurosurgeon) Max Hospital, Gurugram India I got recovered when he operated on me🎉

[@dineshvarma7979]

Is he ok right now , coz I had the same surgery when I was 18 years old and now I’m 23 years old and my bladder control and motion are worse then before

[@TravelWithRick313]

are you in pain? i have it now and lots of pain in my lower wast down

[@as0867]

@@TravelWithRick313 same. I’m getting a spinal column surgery in March because if it.

[@ghumkumar547]

Kha se h bhai

[@campgroundkidz]

My story of a teathered spine is almost exactly the same as tylers

[@diasone]

Sorry to hear that. Did you had surgery ?

[@campgroundkidz]

@@diasone yes i did

[@campgroundkidz]

very painful

[@diasone]

@@campgroundkidz I hope your surgery went well and you have no lasting effects. My son will soon have the same operation. Could you share your experience? At what age was the problem detected, and when did you have surgery? Have your bladder and sphincter issues completely resolved? Thank you for sharing; it could help others.

[@campgroundkidz]

​@@diasone I was 12 when I had the surgery, on December 8, 2022. I was in the hospital for about 3 days. I was scared at first because it was my first major surgery. But then I realized there was nothing to be scared of. The surgery started at around 8:00 am and ended around 2:pm. So it was a couple hours. I took Tylenol to help the pain while I was in the hospital. One thing i enjoyed was all the attention 🤣.

[@carolinepercy1216]

+💝+

[@Holypikemanz]

Ofc the mother punished the kid and says "when I may have punished you". there is NO MAY, you did, you are the adult its your fault you took Tyler to a moron doctor.