🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊

[@thefreylife]

I can hardly believe this day is here!

[@unlisted3035]

The Frey Life I am so happy for you!

[@TraumaSurvivorCynthia]

Love you!❤🤗🌹 Please pray🙏 for me because tomorrow I have a lower lumbar MRI with contrast at Lower Umpqua Hospital and see an Orthopedic Surgeon on Tuesday in Portland at OHSU!🏨😘

[@laurencliver6452]

So excited for you!!

[@jayh40515]

We are all rooting for you both! One step at a time....!

[@agnieszkajaniak5619]

The very best of luck, Mary!

[@HydeandSeeker]

"I've gotten through 100% of my bad days so far." -Mary. Love that!

[@amylamy01]

This needs to be put on a shirt!!

[@lexiwagner4541]

I actually said something similar to this when someone i knew was suicidal, and they realized they could get through it. Seems obvious, but it is poweful

[@HydeandSeeker]

@@lexiwagner4541 Totally agree. It's a good reminder.

[@boofaith98]

I need that on a shirt

[@kimberlymasslock3669]

Getting through 100% is better than the alternative.

[@wendylawton8274]

I've asked my husband to come watch this because we've been praying for you each evening and he prays without having ever been "introduced" to you, but this vlog gives us clear prayer points-- an easier morning, no discernible side effects, less mucous, fewer IV sessions, and most importantly-- feeling better. May it be so.

[@chloeallysen1742]

I love that

[@SweetPea112]

Yes, in Jesus's Name, Amen!

[@barbarabarrera6148]

Wendy Lawton Amen

[@sarahcrain8083]

Amen.

[@rainbowcolorsful]

May it be so.

[@SCJ7100]

Mary: *swallows pill* Peter: "Do you feel better?" Above all else, you two have taught me to smile and laugh through tears. I love and appreciate you, you are in my prayers. 💖

[@thefreylife]

SCJ7100 thank you for your continued prayers!

[@Its_me--Boo_Radley]

The tears came to my eyes when you took that first pill! Feeling better in 72 hours! Oh Mary, I sure hope you experience that miracle! 💜

[@thefreylife]

Thanks Ann!! :)

[@janessapitts6736]

And here you are, two years later- running towards parenthood! 😍 How GREAT is OUR God????!!!

[@rebeccawilson6512]

My Mom's best friend, she had a son who had cf. This was back in the 70s and 80s, he lived until the age of 12. He, at his young age, said he wanted to help do what could for the cure of cf. As he lived, he did trials and then he said he wanted to donate from his body whatever scientists needed to see what could help the research of potential helpful means for cf patients then and in the future. I pray for you, Mary and all of those who have cf, that this pill will help you and many others.

[@flj7]

Do you know if he ended up donating his body for research?

[@rebeccawilson6512]

No, he didnt. I believe his liver and lungs but I was very young when he passed away and don't know if other organs were donated to science.

[@thefreylife]

Rebecca what a brave and generous little boy! And thank you for your continued prayers!

[@rebeccawilson6512]

He truly was! I only remember bits and pieces then of course I was about him as he was in life; my fave memory, he put me on his shoulders (I was 3 or 4 and he was 9 or 10) and took my brother's hand to take us to the park. It sticks with me to this day. I appreciate that memory and him giving it to me so much because I now know he did something that would eventually stress out his body. I never saw much of him because he was in the hospital a lot. But he wash a blessing and I will never forget him.

[@hannahsmith8002]

This is so motivating to see - I graduated this week and am starting my PhD at Oxford's Medical Sciences division on one of the teams that's related to this new medication, and seeing how much of an impact this can have really helps to make all that I went through to get my undergrad done (I'm a wheelchair user from some chronic illnesses and so it took a while...) really worth it

[@heatherosborn8279]

Hannah Smith Congratulations! God bless you!

[@thefreylife]

Hannah that's so exciting!! Way to go!

[@meganfridenmaker7774]

Just started watching and I'm already tearing up. This is incredible ❤️

[@kimmyjean9948]

Same😭

[@sarahcrain8083]

Me too.

[@roseragan-mcwain2395]

Betta...Me Too!!!

[@Trekkifulshay]

We're hoping and praying my daughter when she turns 12 can start this medication. I've heard such good things about the results of the study. We're hopeful.

[@LymeStealsGodHeals]

Trekkifulshay just said a prayer for your daughter. God bless you.

[@lauranorwar]

I’ll pray too!! How old is she now?

[@rdg3288]

I wish I could give this video a million likes! My eyes are filled with tears, I have goosebumps, I just am so happy for you. AHHHHH!! Mary, we love you here and I know everyone is sharing in this VERY joyful moment.

[@ultimatesharigan8493]

Me two

[@bethanyhollis8699]

Seeing the new vlogs with getting the babies room together makes this episode THAT MUCH MORE EMOTIONAL!! God had continued to bless you two!!

[@sharibrown1668]

Cried when I watched 2 yrs ago... And crying rewatching today knowing the miracle that has occurred 💜

[@VensVibrantNailsandBeauty]

Right?!?

[@lins918]

Prayers for you, Peter and Ollie. Best wishes for this medication. We're all in this life together. 💖

[@thefreylife]

Thank you Lin!! :)

[@antonhinds5341]

Congratulations Mary go into this with an open mind and know that God has you I can't think of a more deserving person

[@natalieprice2201]

This medication has helped my sister (she was on trial) so so so much and I’m praying it does the same for you!💓💓💓

[@thefreylife]

Thanks Natalie! And I'm so glad to hear it helped your sister so much!!

[@I_am_Knowledge]

The title really surprised me!! Praying for you guys, can't believe this day finally came. Crying hopeful tears 💜

[@julesvibe]

“I’ve gotten through 100% percent of my bad days.” Simple but powerful sentence. Blessings.

[@lisai176]

I screamed out loud, "Oh my goodness, she got her medication!!" Everyone looked at me. We are all in that open palm, together, with you and we will trust and pray.

[@lizzieb1318]

This is incredible! I'm a high school student, and I had work experience just a few weeks ago at vertex pharmaceuticals, where they mentioned this therapy It's so amazing to see this for me, as I've followed you lovely people for many years! So ispiring for me in my studies and career Prayers for you two and Mary's health as ever :)

[@juliethiel5678]

What a monumental day for "The Frey Life"!! So excited that you have the opportunity to use this drug and can certainly empathize with your mixed feelings!! God's will be done. Hugs and prayers!!

[@traceywatson2092]

Today we celebrate God, Mary, Peter and the gift of Hope. 🙏🏻❤️🙏🏻

[@bumpybackroads1581]

so if it slows down mucus production, it could potentially allow for longer periods between antibiotics and less frequent sinus surgeries.

[@rosabellle]

how are mary's eyes so good at crying? she is just so beautiful even with the tears! it's so sweet

[@barbgedling6279]

This is so exciting to see you finally you get to try this medication. I cried when you cried Mary. Send hugs and lots of prayers to you and peter and Ollie boy. Love you all!!!🙏🙏🙏🙏❤️❤️❤️❤️

[@JeriAnnHenson]

Here we are 3years in and your life has changed so very much. What a beautiful blessing!

[@TeddyBear1287]

Just the title of this video made my heart skip a beat! Love you Mary and Peter!

[@lovelystar1620]

Hi Mary, I am crying with you and sending love and prayers all the way from the UK. I am a cancer Survivor and i am with you every step of the way. The lord is with you and won't let you down. X

[@raissahille]

OH MY GOD!!! I'm so happy for you!! I've been wathing you guys for 3 years now and I was sooo looking forward for this! God bless you Mary!!

[@kathleenwaldrop7320]

What a happy surprise I got when seeing the title of your vlog. Thank you for sharing this incredible event!

[@annettequinn2471]

I am so excited for you!! I cannot wait for my team to call me that they have it as well for me to finally give it a try. Prayers for little if any side effects 💜💜💜💜

[@sarahcrain8083]

God bless you 🙏. Annette is my sister's middle name.

[@tiffanyjade6024]

Prayers for you too!

[@korra.s]

I'm so happy, you're amazing. You're hard work is unbelievable.

[@thefreylife]

Thanks Service Dog Sylvia!

[@beverlysettle1084]

Oh Mary, I am so hopeful that this new medication is helpful and provides you with relief and a more comfortable life quality. I am praying. Love you all in the Grey Life!!!💝

[@beverlysettle1084]

Dumb autocorrect 😡 Frey Life!!!!! LOL

[@brenna3743]

I’m crying too. I pray it works. I love you guys so much. Keep up the good fight. 🙏🏻💟

[@ctla65]

OH MY!! The day has finally come!! ....all the emotions! Not only there but here too! We cry, laugh, hope, and pray with you that this is a step toward feeling better! ❤

[@justaplainmom4395]

I wish you the best of luck. Back in 2017 I got a life saving treatment for myself. I am thankful for it every day.

[@thefreylife]

Jo Ann I'm so glad to hear you got that treatment!

[@nikimitchell1403]

Brought tears to my eyes and joy in my heart. So happy for you. I love the comment Mary made, “I have survived 100% of the days so far” God bless

[@kiairalynnmoffat235]

We're In it together Cyster! I'm waiting until the FDA approved it then when I turn twelve in January

[@sorchaoreilly2633]

Best of luck! I hope you'll be eligible and that it will work really well for you 😊❤️

[@lauranorwar]

Prayers for you! Keep us posted!

[@eej1983able]

This is incredible news! Best of luck Mary and Peter!

[@carolemouallem2558]

Tears of joy for you! Prayers definitely being said. I wish you the best possible outcome from this new medicine. Power of prayer never ceases to amaze me.

[@sandihester]

Oh Mary, I haven't even finished the video - got to the part about the 72 hours could feel better and I just teared up and asked the Lord "please have mercy and do this Father!". Praying friend!

[@cottontailcameo]

So HAPPY that you have one more tool in your tool box, and God willing it could be a tool that lessens your need for some of your other tools!!!!!! We are so blessed to live during a time where science is making great gains in treating major chronic medical conditions!!!!!!🤗🥰

[@mrst4946]

MARY I have finished watching now and I am BAWLING 😭 I am praying that this new med makes a huge improvement for your health and quality of life. My best friend died of CF four years ago. Shortly after that I found your channel and I have been watching ever since. My friend Anna never got her chance to try these treatments, I am so glad you have got this chance. It could very well change your life and I am praying and keeping everything crossed❤️

[@thefreylife]

Thank you Sarah! And I'm so sorry to hear about your loss!

[@perucat5045]

Well... there is not a dry eye in my house this evening. You are an inspiration. Im waiting for drugs to help me that are in the final testing stage so I totally get where you are at . God bless you . xxx

[@joleneblake9906]

I pray you feel better on this medication mary. You fight so hard daily your such a brave person.

[@throughtheeyesofachild61_45]

Oh mary sweetheart I’m crying with you. This is super awesome, I wish you all the very best with this new trial. And can i just say peter has got to be the best husband and career of all time. He’s just amazing; your both amazing. All my love from the uk 🇬🇧❤️🙏🏻 Big hugs to Ollie too 💙💙🐾 🐕

[@debbieschlemmer2746]

so true, such a precious couple and Ollie boy too :-)

[@ZensGem87]

So happy for you Mary! My family and I continually pray for you and your family. It is wonderful to see you be given a beam of hope, as you are definitely a beacon of hope for many of us.

[@michaelahaney]

Congratulations Mary and Peter! You got this Mary!

[@thefreylife]

Thanks Michaela!

[@LilianaLopez-mk5qh]

Tears came to my eyes!!! Im happy and glad you got the opportunity of a trial.... Praying and exited for good news....

[@crzyswmr]

Thank you so much for sharing your journey and allowing people to get a glimpse of your life. What a gift. Praying for this new season and the joy in the midst of it all. There is light in every day!

[@thefreylife]

crzyswmr thank you for your continued prayers!

[@kimberlykirby8093]

Prayers for you Mary❤ that this new medication works for you.

[@TatteredAndTornPages]

I cannot believe how much unconventional love I have for all 3 of these people. (Yes, ollie is a people) I've been with this family since their plane ride to Scotland. My heart is singing rejoice in the Lord. And I love you all, so so much. Yup, I'm balllllling♡ Happy Sabbath everyone!♡ Mary, good luck my love, I'm praying hard with intercession prayer.

[@sorchaoreilly2633]

Do you mean Scotland? I don't think they've ever been to my country. Praying hard too! 😊🙏🙏❤️❤️

[@TatteredAndTornPages]

@@sorchaoreilly2633 yup, Scotland ♡

[@irishdancr8]

The pure hope in your eyes. Its wonderful ❤

[@cyanidexsunset]

I’m so excited for you, happy hopeful tears right along with you! Here’s to seeing where this new journey takes you, praying for the absolute best and sending so much love ♥️♥️♥️

[@shellybell1108]

Mary, I could listen to you all day. My only hope is that you can see yourself the way the world sees you, you are truly amazing. Big prayers coming your way.

[@jasminsamuels2494]

I am so flipping happy for you. Im paying it works not just for you but for everyone with cystic fibrosis. I cant wait to watch your progress

[@sorchaoreilly2633]

There are so many different CF mutations and each requires a different type of this kind of medication. So this will only work for her type or maybe a small group of types. The drugs Orkambi and Kalydeco already exist for certain other types and have been so helpful for many people. It's great to see these drugs being developed but for people with rarer mutations of CF, there's far less chance of drugs being developed but I do hope there is miraculous treatment available suitable for everyone with CF some day! 😊❤️

[@thefreylife]

Thank you Jasmin!!

[@isabelkordyl]

Mary, you are the absolute sweetest human! I love your love for her Peter. Health problems aside, you two are so lucky to have found each other! I wish you all the best on this journey and will be praying for you! Love from Australia xx

[@haileyhudson4157]

Makes me so happy to watch this now ❤️

[@AmberCanaan727]

Oh Mary, I pray that this works way better than any doctor could even imagine!! I pray for no negative side effects and so much health and happiness for you and Peter! You deserve all the happiness in the world and so many good days!

[@NolaPie]

2 seconds in and I thought my video was tripping. 😂😂😂 I’m so excited for you Mary.

[@jackiehoyt8863]

So happy for you that you get the expanded access! I work in regulatory affairs for clinical research so it is so great to see the work we do helping to get studies like this approved helping patients! Best of luck!

[@sophiepalmer-doran344]

hi mary peter and olie i am so happy to hear you are allowed to take this med i hope your lungs behave aw peter you were crying too i am crossing my fingers and toes

[@cadienicole6826]

Tears rolling down my face! I am so optimistic and happy for you!!!

[@Jennerator74]

Praying this is a life changer in a GREAT and AMAZING way! ❤️❤️❤️

[@julier9523]

You are just the sweetest people!! God bless you in your continued journey!!! Praying for God’s divine intervention in your battle with CF.

[@CappyMoon369]

Oh my goodness this is such a beautiful surprise !!!!😊 I have been reading about this for the last week and was just hoping and praying you would be able to take this medication!!! Ohhh I'm crying with you !!! 😭

[@susanjohns8902]

Praying for good results. As a retired nurse, I worked with many CF patients in my early nursing days. You are very inspirational and you are in God's hands, but in all of our prayers!

[@kpratt6685]

I started 2 new-to-me meds today too. Fingers crossed for the both of us! 🤞🤞

[@hairtiecoocoo]

This is incredible! Praise the Lord! Prayers for full benefits!

[@HannahJoy333]

Thank God you’ve been given this opportunity! I’m so grateful 💜.

[@rebeccawebb1668]

Oh my goodness. My mom and I are both sitting here crying in front of our TV, overjoyed that this day has finally come, a day you so deserve Mary!

[@terrisangels4499]

CONGRATULATIONS Mary!!! Can't wait to see what happens. Prayers for you my darling. So happy for you both.

[@samgodkin4736]

I have been so blue today. I watched this vlog and felt peace and joy. I am so happy for you and have hope. You have this. Sending you three all my love. 💕

[@brittbratt1103]

So excited for you! I'm crying within a few minutes of watching this!❤❤

[@suziecarr1566]

Omg that "you're crying too?" Was so sweet sounding yet so simple .

[@explaincauseidontgetit3294]

We have the CF gene in our family. I have some research to do on this medication!!

[@hudsonsailor54]

I love how you said you’ve made it through all of your worst days. May this be a game changer for you and others with CF. 🙏🏻❤️

[@PlanningWithCatherineElizabeth]

I am crying for you Mary...omg Sending LOTS and LOTS of prayers that this works for you... LOTS and LOTS of love to BOTH of you from New York💕

[@smolsand]

I’m crying too. I’ve been on this journey with you, Mary and peter for a couple years now. I couldn’t be more excited for you two as you step into this awesome opportunity. Praying for little side effects and improvements. Having a patient with your complications, trial this medicine will hopefully be helpful to the development of this medicine as well. Much love. ❤️

[@chroniclyfekb8342]

I’ve heard so many amazing statistics on that medicine. I am praying 🙏🏻 hard that this pill gives you amazing results too. ❤️

[@thefreylife]

Thank you Kimberly!!

[@jasmineyeager3976]

Oh Mary, I'm crying with you. I'm so happy you were approved for early use. I really pray this medication helps you, makes you feel better, and that it is a smooth process for you. Sending you comforting hugs💕

[@LupusPositiveLife]

💜 praying your fevers subside Mary Frey with all your might and heart pray hard to God in Jesus name that you do start feeling better that will work God knows your heart but pray with all your faith 💜

[@thefreylife]

Thank you Glendora Living positive with Lupus!

[@vikipurves827]

I pray for a positive outcome with your new medication, Mary. Keep fighting the good fight! xxx

[@carolynlyfordsullivan1377]

Love you guys . I have to mention something . My dad has serious heat disease . It all started at 49 yrs. he is 90 now.Due to the effectiveness of new medications. I don't need to go into detail . His life expectantly initially wasn't all that great. Due to all the changes in medicine my dad is a very active 90 year old man . He is going on vacation tomorrow to visit family in Maine . My dad still has the same heart condition but the changes in medicine have left him a heathy 90 year old😀

[@thefreylife]

Carolyn that's so great to hear about your dad!!

[@carolynlyfordsullivan1377]

@@thefreylife It is amazing what medicine can do . My dad also did everything he could do to help . I never dreamed he would live to be ninety . He is very active . I have so much hope for you guys . When my dad was 49 he couldn't walk from the car into a store . He had so much heart pain . At ninety he exercises everyday . My dad is a practicing Christened . Reads scripture daily . I have said this before . You guys are in GOD's hands and HE won't drop you .

[@XmirijamX]

Goosebumps on my skin, tears in my eyes and a big smile on my mouth and I laugh with you guys and cry of happiness for you Mary! Followed you for 4 years now I belive, seen the decline and I'm so happy this could possibly change so much!! Big hugs

[@yarntaxi2176]

Sending you best wishes and hope for this new pill venture..hope the pill works wonders for your lungs....congratulations on your new home👍💕❤️

[@thefreylife]

Thank you Yarn TaxiDriver!

[@SliWolfette]

I'm so glad you're finally starting your new treatment! Sending prayers that you have the BEST possible response, with as few side affects as possible. 🙏

[@franlats0705]

I am so happy for you guys, I'm tearing up like mad. I will be thinking of you and sending positive thoughts your way xxx

[@patriciahoesl954]

Mary, praying that this medication works wonderfully for you!

[@sarahd139]

Its incredible🥳 I'm so happy for you guys 😊

[@carolynk.9856]

My heart and prayers goes out to you as you start this new journey. Praying for improvement! Thank you for sharing your life with us! In turn helping and inspiring so many!

[@TheTiffanyfrench]

I hope so very much that this works for you both. The live you both have for each other is incredible.

[@swovnavygirl]

I have been following your journey for a couple years. I’m getting teary eyed. Sending all the prayers in the world that this is an answer.

[@arciafrench993]

Prayers and hugs to you Peter and Ollie boy.

[@jodeming5088]

What an incredible video. I am hoping this is the answer to a lot of prayers. Go get em Mary. So very happy for you.

[@doreenwhitehead4224]

I'm not a prayer person but my thoughts are with you both. This med is very important to both of you with it's potential life changing quality. I am surprised at how attached to both of you i have become and to your journey. So, here is to hoping for minor or no side effects and to the improvements you hope for and for those beyond your wildest dreams.

[@thefreylife]

Thank you Doreen!

[@Castlemom7]

So happy for you! Praying!

[@Noobers202]

This sounds so wrong but you guys crying is so precious 😭😭💕♥️ best of luck to the both of you, from all the way in Minnesota ♥️💕💜💗

[@rheagalarneau1366]

Laniyah Thornton Best state ever.

[@Noobers202]

@@rheagalarneau1366 when me and my family moved from a place that wasn't so nice (Cleveland Ohio) we were so confused on why everyone was being so nice😂 it's also very pretty here 🤗

[@karap9921]

So happy for you Mary!! I’m crying tears of joy with you. I remember my first dose of vertex meds. Praying for you!!

[@geraldinebayliss1154]

I really hope this medication helps you lead a more normal life. I’ll be praying for you. Love and hugs from the U.K. xxxx

[@thefreylife]

Thank you Geraldine!

[@valliwentz682]

I'm so happy for you, Mary! I've been fortunate enough to be part of the trials of this med. I've prayed it would reach you and benefit you and my other cysters and fibros as it has me!!! 💜