♡ My Journey with Hip Dysplasia & Surgery! | Amy Lee Fisher ♡

[@boohound24]

I have bilateral hip dysplasia and got my hips replaced 11 years (right hip) and 10 years (left hip) ago. Mine is so severe that I've had almost 50 surgeries starting when I was a year old. I admire anyone who has any degree of hip dysplasia and you even more for sharing this and your medical journey of your life! You are a bright light to others!

[@blakekemp9248]

I am not even a teenager ager yet and my life this year has been hectic with hospital, you really don’t understand how much you inspire me. You are really amazing 🤩

[@victoria9148]

Darling, you seem a bit shaky in this vid. Is everything alright? Take care 💕

[@amyleefisher52]

Victoria my blood sugar was low & I couldn’t get it stable, I’m alright! Thank you for checking up on me though ❤️❤️

[@itsyourqueenxxx6505]

@@amyleefisher52 hope everything goes well in this surgery and future ones to I am always thinking about u and don't like the pain u can be in I don't have anything as bad as u but I have speech problems and despraxia and also get bullied a lot so I watch u to make me feel better because you are so inspiring

[@emilyjames3110]

@@amyleefisher52 my hips sometimes pop in and out for some reason?

[@elizabethmion4595]

We NEED a tutorial on this makeup look!!

[@TheMartinSan]

As someone who has spent many years with an ostomy bag and catheters, I can totally feel with you. I really admire your openness about it. I felt sooo unattractive during that time, which makes me feel bad since it saved my life. Fight the good fight!

[@saigedion7753]

I love watching your videos because they post awareness, and show you don't have to be a victim, you are a survivor

[@AntonioGonzalez-tz8rx]

Have watched a few of your vids, and I always feel uplifted after watching. I have a chronic illness, and I thank you for sharing openly, being genuine, and for teaching us to enjoy the moment and make the best of our situation as you do. You’ve helped me realize I CAN live life with a chronic illness, and all the extra stuff we have to do to survive is just part of our daily routine, nothing more and nothing less. And I totally recommend (as you mentioned in one of your videos) for people with chronic illnesses to speak to a therapist/psychologist to help maintain mental wellness because chronic illness does affect our mental health. And it’s nothing to be ashamed of!!! God bless you and wishing you the best!

[@jaymerssvin4566]

I just love your makeup, especially your eyebrows!

[@2lasnenas]

Love the make 2

[@Jessica226.]

Sleep in peace beautiful soul

[@xxjustpastelxx3079]

My nephew had hip dysplasia we found out when he was nearly 1 i believe 2 weeks after we found out he had hip braces put on till he was 2 and a half hes now three and has no major problems but you can see he has it a bit when he runs xxxxxxxx Nobody will see this but just wanted to share that :D

[@shannonphipps938]

I had a similar experience I was in casts most of my childhood. Thanks for sharing

[@sarahw7718]

I had an exploratory surgery a week ago and only had 2 small incisions but when I woke up i was in a lot of pain and needed something for it. I can’t imagine the amount of pain that surgery caused, you’re so strong for going through that

[@gojobaeeeughhhhh9251]

I am a cipa patient ,and it is an autosomal recessive disorder of the nervous system which prevents me from feeling pain,temperature and sweatinh.i saw your videos,sometimes i feel jealous people can feel pain while i cant.i saw your vids and u are in pain but you still smile.you are a wonderful person.thank you.

[@mysticalanimallover5741]

i was diagnosed with severe Hyper-mobile EDS today, he thinks i have POTS to and it looks like i have gastroperisis as well as mass cell activation. your videos have helped me so so soooo much! thank u amy! u have actually helped me work out what’s wrong and the consultant was like you deffo have h EDS. so thank u! after years of being told i was faking, or attention seeking or it was cause of my mental health, i was validated today and you helped me get to that point! i hope u r feeling better to after your recent hospital admission! love and hugs xxxx

[@lilshot727]

henry doggo prayers nigga

[@hannahkaur3761]

Hey, I watched a podcast (by an MD) who had a MD guest speaker on. She also has EDS, and was able to do a lot of significant healing not just for herself but her daughter too. It's definitely worth checking out, bc that same podcast hosted another person on migraines (my health issue) in a different video, and I've implemented the protocol to such a degree of success that I can't even believe it. Give it a shot if you'd like, you have nothing left to lose (I certainly didn't with the migraines- I was so desperate). Here's the vid- kzbin.info/www/bejne/n2ilfmiQoJ5nZqs

[@13mcr4life]

My mum just had her hip replaced and the NHS gave so many add ons to help her at home. The toliet chair, something to help with putting on socks, a grabber devise, and chair for sitting up right and crutches

[@vigilfamily7320]

Girl you’ve been though everything. Your so brave ❤️

[@whospatrii]

I’ve been watching your videos all day and I really admire you!💗

[@shannonphipps938]

I have bilateral hip dysplasia my case is quite severe and seeing someone talk about it is so cathartic, I've never seen anyone talk about it personally and it makes me so happy to know I'm not alone. Thank you for sharing 🥰

[@Whenurmissioncalls]

RIP AMY! I JUST FOUND YOUR VIDEOS AND YOUR INSPIRING PEOPLE EVEN FROM THE GRAVE!

[@darrahh8885]

Did she pass?!?!

[@hqgirl567]

@@darrahh8885 apparently she’s dead I thought she was alive

[@veevee306]

What you have are called forearm crutches, and are more common in the US for people who use crutches long-term for the exact reason you listed--to avoid chronic underarm pain. So glad you're recovering okay!

[@globulas1]

I have stumbled upon your channel and watched many of them. You are an inspiration to young people and everyone with chronic illness! .. Keep going Amy!

[@emilyrose1381]

I was born with DDH (hip dysplasia) and luckily went through surgery when I was between 1 and 2 years old. My hip socket hadn't formed properly and luckily I went through most of the struggles when I was younger but I've still been left with a huge surgical scar from 2 surgeries as well as near constant hip aches. I've genuinely never met someone who's had the same condition so it's so interesting to hear about someone else's experience, especially since I barely remember mine.

[@emmab.9279]

I was born with really severe DDH, my hip was entirely out of my socket and they didn't catch it until I was almost three years old. By the time they caught it my hip joint had completely disintegrated. I went through surgery as soon as they caught it, and they had to use the bone from my ilium to rebuild my entire joint (as a result of that I only have a visible hip on one side). I still have a giant scar as well, going from where my hip bone would be to the inside of my leg, and another one where they had to cut my tendon to keep it from yanking my leg back out. I have chronic hip pain, arthritis, and mild osteoporosis, as well as knee and foot problems as a result of them catching it so late :((. But it's so cool to finally see people who went through the same thing!! Everyone always says its a common problem but this is the first time I've ever met people who also had the condition!!

[@lilycunningham3227]

Hi did you know that hip dysplasia can come back if you’ve had the operation such a long time ago, you should get it checked out you shouldn’t still be in that much pain, I hope you’re okay xx

[@KikoyASMR]

I have hip dysplasia in my left hip, I spent so much time at the hospital when I was born until 2 years old, even I had 7 surgeries and a lot of treatment I still feel pain (sometimes I cry a lot because the pain is insane) in my left leg and hip when the temperature is cold or when I walk too much, and I had two long scars around my hip and pelvis, it makes me feel a little bit uncomfortable and when I was a teenager I really hate my body for that, but you really inspire me and see your videos with the best attitude is such a inspiration, love u

[@shannonphipps938]

Me too! My left is the worst but I have bilateral hip dysplasia. I've had around 16 surgeries and I'm getting my left hip replaced in 4 days!!! I'm so excited 😁

[@alysonjade2461]

So glad you’re starting to feel better. Thanks for sharing!!!

[@Julia-mx8nf]

Hii!! I hope you are doing ok💕 When I was a baby I had hip dysplasia aswell!! Your the first person who I know who has this issue!! I also had the surgery but I had it pretty early in my life but I was is a half body cast and half body brace for a good amount of time! Love you!!

[@summerairsaltyhair]

I’d love to see a video all about your bullet journal! I started one a year or so ago and then didn’t have the motivation to keep it up even though I know it could be super beneficial for me to track all the little tasks and medical related things too. I’m so glad to have come across your channel and just love your spirit! ❤️

[@rachelbiggs3503]

I was born with hip dysplasia to but I am so lucky and grateful that my doctors discovered it 6 weeks after I was born and they managed to fix it. You are a very brave woman, love you Amy! x

[@kat_grace1180]

I just found your channel a few years ago and I love your videos. They give a good perspective to those who have the worse side of EDS. I have EDS hypermobility and fibromyalgia, my joints/muscles almost always hurt, or like to pop out alot. I have really bad stomach pains, it started at the beginning of 8th grade. I also threw up alot, still do, even to the point that I start crying because of the pain and constant worry that I'm gonna throw up. I went to multiple doctors and through multiple tests, it took a year and half for my rheumatologist and gastroenterologist to come to the conclusion that I have EDS. Throughout the whole series of testing, I could rarely find things to be happy about, like I was thinking why me, and that's when I found your videos. I would watch them and see the smile on your face, and it always helped me look on the bright side of things, and find the reasons to be happy instead of thinking of why I wasnt. Although mine isnt as severe as yours, I know the battle it is every day. Stay strong, your an incredible human being and you deserve the world.

[@michellelee611]

When i got IV on my right arm i am really sad and wouldnt want to move coz i am scared that the blood will clog the pipe. But seeing you really struggle with your illness make me felt so grateful. Goodluck on your medication!!

[@lifewithcysticfibrosis4521]

Get better soon beautiful! You got this warrior 💪🏻

[@ellagrace5623]

You looked so pretty in this video! That red lip suits you!

[@sianfowler914]

I had the same surgery 5 weeks ago now and i really wish i had found this video before. I literally had exactly the same experience as you. The pain was literally the worst pain i have ever felt and that on top of nerve damage in my leg i ended up in hospital for 13 days instead of the 3-5 i was told. Really hope you're doing good post surgery, thank you for these videos and helping me feel normal about this surgery

[@calex3283]

i watch your videos when i have anxiety attacks and you reeeally calm me down.. i don't really know why and how but thanks a lot.. and i wish you all the best for your recovery from the surgery

[@Victory.In.Jesus95]

I’ve had 2 epidurals in the past 2 weeks. The first one was the exact same experience as the one you described. So I feel you 😐

[@TattedMunchkin69]

I hope you start feeling better soon. God bless♥

[@brigettedupnik7611]

You can hear somethings not oki in your voice and this is only your second video I’ve watched. Thanks for making all of these!

[@kc-xb1zu]

I recently found out I have a slight case of hip dysplasia on my right hip. I found out on accident when I got a pretty bad pelvic/abdominal surgery at a specialty surgeon. He found it during the MRI/X-rays but since I’m only 13 I have to wait to get my hip fixed because he didn’t want to make the surgery more painful then it was. This video really helps because I’ve started feeling hip pain when I play my sports so I have a feeling it’s getting a tad bit worse. So one day I’ll have to get the surgery. Thank you for your videos and I’m glad you’re feeling better 💕

[@Mt2w]

I have had this same surgery in my both hipjoints. Didnt get better at my left side so i got hip replacement 3 months ago. This is so rare surgery in my country surgeon said he makes these few in year. So nice se hear other patients stories🙂

[@atmaprakash5651]

Maam how strong ur!😲😲..u r inspiration for people who have the bad time..take care god bless u

[@norajung4513]

Thank you for the update. So glad you are well and starting to heal.

[@neoandlykkecat]

So good to see you again, Amy! We love you! Take care and stay strong! Lots of love and hugs from Norway.

[@kimberlytippen4436]

Yes she is alive and doing great 🙏🙏 always check her twitter and insta.. Praying for u Amy ❤️💙

[@rhibug11]

I had an emergency C section and I remember my epidural was one of the worst pains! Except for the pain of trying to not use my core.... then accidentally using it and feeling that white hot slice along my abdomen until the pain meds kicked in! Your amazing! I know the pain is alot but your strong and you got this!

[@dreeanna7858]

I as well have hip dysplasia. I had four hip surgeries, where they put pins in my hip like you described. They reconstructed my hip and pinned it together. Well I had an accident while healing on crutches, and I fell down some stairs and broke the pins they placed in my hip. So I had surgery to remove the broken pins and they had complications removing them, they put a few screws in. Then when that didn't work they finally gave me a FULL HIP REPLACEMENT!! I had my first surgery when I was 14 years old. I had my hip replacement when I was 19 years old. I am now 28 years old and am starting to experience issues with my hip on the bad side. It was ALOT of SEVERE PAIN!! I as well had a doctor tell me nothing was wrong then had a second opinion. So we have ALOT in common my dear!! We are tough cookies to go thru what we have!! Much LOVE!! 💕💞💓

[@brandipaez9595]

I genuinely love your videos because you are inspiring and we get educated by your videos... also you bring the wall down on many stereotypes about illness etc. thanks beutiful 😊

[@blondiebows0733]

I was born with hip dysplasia, and I had 3 surgeries by the time I was 3. It gives me constant dull pains, despite it being 'fixed' through surgery, although it is manageable by know. It's nice to see other people talking about it as a lot of my friends and people on my uni course think I am making up the pain all the time, when it is def real. I am going into teaching and a lot of people don't see why I can't stand up or sit down for too long, due to it cramping and giving me pain. I have found that dancing has helped me a lot, giving me the muscles in my hip chance to strengthen and support my hip (which it wasn't doing). I know my limits and I'm luck that my dance group understand this. Thanks for your amazing videos and I hope you're doing well.

[@janemaas4225]

Oh my goodness, when I saw the three pictures of you in the hospital, I thought you had gone back in for more surgery. I’m so, so glad that this was an update of your progress. Keep all the positive videos coming, and you look beautiful ❤️💜

[@crystalmcmurray9181]

You are so strong and such a fighter. You give me such hope and strength to just keep looking forward with all my medical issues. You are such an inspiration to me. I can't tell you how much your videos get me through each and every step of the doctors finding out more and more about what is going on with me. The 14th i go in for more testing to find out more on my digestive issues. Because of your videos I finally fought to get more testing on that because I noticed that some of the things you were describing in your videos were symptoms I have had for years and have just continued to get worse. Everything I eat makes me sick. I literally do not hold anything down anymore. Since July 4th I have lost nearly 30 pounds. Doctors are finally taking notice and decided it was time to do more testing.

[@chelsiemt2356]

I want to say that my hip was popping and hurting.. well it was pooping for a few years getting worse over time and pain increasing..to find out I have fmi.... and this video brought awareness to it to make me seek medical help thank you!

[@laraleen6381]

Hugs Amy ❤️! Despite of what your going through, you are very beautiful..Be strong 🤗🤗

[@NurseMickiLea]

Excited to hear how you are doing.♥️♥️

[@aryannewilcox1194]

I have hip dysplasia too, I’m so sorry you had to deal with this terrible condition. In my experience I wasn’t diagnosed until it was at the worst stage. I couldn’t walk and had to have surgery a couple days later. I have screws and a metal rod down my femur because my bone doesn’t have the calcium to make it strong so it’s very weak and thin. I still deal with pain everyday, but I’m so happy to have found your channel to finally know someone else you deals with what I have as well. Hope your recovery went well 💗

[@kathyf.2002]

I admire how strongly you advocate for yourself. Too many of us blindly trust what the first doctor says. You had one heck of a time! I hope you are feeling better at this point (or as well as you can feel)! You are one strong young lady and a true fighter! How are you feeling as you tape this video?

[@thedisabledpenguin9826]

This video hit too close to home... you're very brave. Hope I'll be to when I get my surgery. Love you 😘😘

[@clairemercier3969]

Hello dear Amy! Thank you for this video. You are SO brave and inspiring. (Love your make-up and your green sweater (jumper)).

[@donkafacciolo4638]

So glad that you’re getting better after your surgery!!! ❤️ Thinking of you... and hoping for the best for you!!! Stay strong and positive!!!

[@buloydonaadventures4737]

You are a strong woman. I love how you are positive all the time! keep it up! 😊

[@Silhana]

My sister is currently recovering from her 10th surgery in 6 years from Hip Dysplasia. I wish you the best of luck with your healing and sending all the good vibes!

[@Silhana]

also my sisters first surgeon only fixed the labral tear and was very very frustrating when it just tore again and had to change to a much better surgeon who has fixed her up!

[@Balletgirl66]

Ρrαγεrs. Many ΒΙεssιngs.

[@exolbtsarmyforever4689]

When i get a little cut I feel like I'm going to die and she has this problem but still she is so positive...

[@kaitlynrinke5235]

Makeup looks amazing!!! Thank you for the informative video! Such an inspiration! You go girl!!

[@kiyamcqueen3764]

we’re on the same post op week! i had surgery recently also but i hope all is well and you’re recovering 💓

[@miacooper8894]

you are honestly such a warrior, keep fighting girl 💛

[@shadieejj3023]

Its so sad to know a person can go through such a big ordeal having gastroparesis then hip dysphoria its so,,im a glad to see how well your doing your really pretty keep going strong babes💕x

[@aprilmaree1942]

I have severe hip dysplasia, though is not fixed through my multiple surgeries from 2 to onwards (17 now). I actually need a complete hip replacement around 30 and just have to cope with the pain until. :(( Thank you for opening up about this i don't see many people with it. Xx

[@xelisha2139]

April Maree I hope you get your surgery soon and get it all fixed and free from pain (or somewhat). Until then you’ll be in my prayers. Hope you get better soon. So sorry to hear about this, thank you for sharing with us. xx

[@aprilmaree1942]

@@xelisha2139 aww you're too sweet xx

[@paiged6550]

You are so strong, we love you and support you! 🖤

[@debbiemichellecenterfitt8582]

I am looking at a full hip replacement for my right side first. It pops constantly and I already had a doctor say I need the surgery but insurance won't pay for it before I am 40. That was almost 4 years ago when I was 33. I am almost 37 and I getting to the point I can't take much more. Thank you for putting this video out because I really needed to know some of what you went through.

[@shansins359]

I have bilateral hip dysplasia as well. Two PAO surgeries in my 30s but my left failed and ended up getting a hip replacement on left side and now a ton more problems because having my hips at different heights has messed up my back. Yay! Lol. It took me 5 years to be diagnosed. I walked pigeon toed as a toddler but that was late 70s and noone thought anything of it. Mine was really bad. I couldn't go up stairs anymore. Couldn't bend to tie my shoes. Labrum was completely torn and I was at the point of hips slipping. I was also completely under. I kept getting bumped thru surgeons until I ended up with the head of ortho at a huge teaching medical center.

[@claireyfairey07]

I just had a total hip replacement for hip dysplasia last month and hopefully its the start of a pain free life!

[@silc.1002]

Amy my love thank you for letting us your family know your journey through this procedure. Love you to bits 🥰

[@sarahbrown9182]

I enjoy your videos. I don't have EDS, but have two autoimmune diseases. Im living with fibromyalgia, Lupus and RA. It sucks so bad and I'm in a lot of pain daily. However, I work through the pain. I have always said fake it till you make it. I have a motto to give everyone a smile because you never know if it's the only one they will get.

[@sophiehobley828]

Is fibromyalgia an autoimmune condition? I've never heard that before - any sources?

[@sarahbrown9182]

I forgot to mention the second disorder is I have Lupus as my second autoimmune disorder. I got ahead of my thoughts while typing last night

[@livingwithhope235]

You are so inspiring! Thank you for always being so real and doing these! I have Gastroparesis and POTs and just had a feeding tube put in and you definitely inspire me and you inspired me to start YouTubing my own journey through this. Keep inspiring and keep fighting! You’re an amazing soul! ❤️❤️❤️

[@TeethHoarderr]

I have someone with a eating tube at my school and everyone stares at her and I feel bad because she always seems so down

[@morteparla6926]

Do her AND yourself a favor, and go talk to her. You'll make her day, you'll probably make a very good friend, and you'll clear your mind knowing you're not contributing to the pain everyone may be causing her.

[@TeethHoarderr]

@@morteparla6926 I will

[@SuperToadie]

Amy I think that you are awesome. I love your courage, strength and upbeat attitude.. 💖

[@jamybray-cook7691]

The people that came in before the doctor did to explain the procedure are the residents.(: they actually have their MD and they’re doing their years of residency.

[@wifemomteacherlife7648]

My daughter was born with hip dysplasia but she had to wear a harness for the first six weeks of her life and we saw a pediatric orthopedic doctor for the first few years of her life to keep it in check. Fortunately the harness worked well for her and she doesn’t have any problems now that she’s almost 14 years old.

[@alyssawssinging4039]

Hey Amy u are amazing thank you for sharing with us❤️

[@basmahm5256]

Hi amy So proud of you.. thank you for sharing ! I hope you are doing well rn My name is Basmah I am a 27 year old 👩🏻 from Saudi Arabia 🇸🇦 I am a doctor and had a PAO last year 💪🏻 Cried a lot watching your video 🥹 Prior to my surgery I couldn’t watch any video related to it I was depressed and anxious But Decided to trust my orthopedic and go for it. It was hard, challenging and painful And I am still trying my best to get strong and live normally To everyone out there going to have the operation.. we are here to support you 💕 get well soon ✨

[@imtherealnsa]

Amy passed away years ago

[@Bethywoogaming]

I'm so excited to have found your channel! I have EDS III, I dont suffer with it the same way you do but it has affected my eyes, heart, stomach/bowels, left ankle and left shoulder the worst. Seeing your channel and story makes me feel less alone in the world of EDS and being a zebra! Keep going strong! You've got this!

[@hannahkaur3761]

Hey there! I've posted this a few times to those that have mentioned they have EDS, so I wanted to the the same for you. I watched a podcast (by an MD) who had a MD guest speaker on. She also has EDS, and was able to do a lot of significant healing not just for herself but her daughter too. It's definitely worth checking out, bc that same podcast hosted another person on migraines (my health issue) in a different video, and I've implemented the protocol to such a degree of success that I can't even believe it. Give it a shot if you'd like, you have nothing left to lose (I certainly didn't with the migraines- I was so desperate). Here's the vid- kzbin.info/www/bejne/n2ilfmiQoJ5nZqs

[@Bethywoogaming]

Thank you so much! I definitely will give that a look!

[@heavenremix]

you are so brave and amazing

[@destinationzen9831]

Such a strong amazing person glad ur getting better stay strong

[@coconutshells]

Im so sorry to hear it was that horrible for you! Im 3 weeks post op from this surgery. While everyone's recovery is different, my initial recovery and hospital stay was a walk in the park compared to yours. I had severe left hip dysplasia and had my surgery July 19. Just so people dont get so afraid of the pain, id just like people to know my surgeon does these with NO epidural and ONLY oral pain meds after recovery in the PACU. I did wake up in some pretty bad pain but it was so much less awful than I imagined it would be and the staff quickly took care of it. I needed breakthrough IV meds twice during my 3 day hospital say and I was well enough to FLY HOME on the 3rd day as well. Dont get me wrong, this is pretty painful and miserable for a few weeks but I think it will be totally worth it! I put off having this surgery for about 2 years just because I was so scared! Im still in pain 3 weeks out but only on Tylenol a few times a day. Obviously, you have a much more complicated health history and I am SOOO happy to see you looking and feeing so well! Congrats on making and following through with a big decision for your health and happiness! You are so brave. Wishing you the best in your recovery.

[@saehtex1]

Great video! The information you provided is fantastic. With my two autoimmune disorders, hip dysplasia is common. Thank you so much and happy that you are healing well. Susan from Texas.

[@gracelynn2280]

You are so brave amy!

[@theoconnorfam9097]

Yup the same thing happened to me with the first doctor, he told me the pain was in my head! Second doctor was like yeah you need surgery! Like major surgery, I had my pelvis done and my femur was cut and turned as it was in the wrong position too!

[@honeylavilla9222]

Be strong girl!! Im praying for your health.. i just subscribed to your channel and i am binge watching your videos. Love love love

[@lara93taylor]

I have labral tears in both hips and it causes so much pain. My hips often click or clunk if that makes sense. I've had numerous ct scans. It wasn't until the last one they realised I have hip dysplasia but it is very minor , borderline hip dysplasia. I've had surgery on the left hip to fix the labral tear and remove a fluid cyst . I'm planning on surgery on the right hip at the end of this year . It's not easy having hip pain , it affects so much of your daily life. Love your videos and to see how your coping after your surgery. I'm in Perth as well.

[@loveforbirds8793]

Incredibly beautiful and strong woman you are..hope you are fine you haven't uploaded video for so long💔

[@amereaz]

yes, Amy, we hope you are OK! we miss you 💔

[@loveforbirds8793]

@@amereaz💔

[@loveforbirds8793]

Now I'm really getting worried about her..plz someone tel me she is oky

[@gillyana]

Hey, Amy Lee Fisher I had Congenital hip dislocation (CHD) which basically means both my legs hung down due to my dislocated hips when I was born. I spent until I was 2 in casts with a huge metal pole in between. (Pavlik harness). Apparently full dislocation of both hips at birth is really rare 1 in 1000 babies are born with the condition. Also the condition is more common in girls than in boys. I know right now you’re still in hospital recovering after your second operation on your other hip. I am praying that your recovery is smooth and you have relief from your painful joints (well your hip ones anyway)! I’m currently awaiting decisions about if whether or not I will have a second knee replacement (my initial lee replacement was April 2011) wear and tear and further dislocations mean it’s not doing much now apart from causing me pain. Most surgeons shy away from any joint replacement or surgery in us EDS patients. I’m very thankful that my orthopaedic doctor is very clued up on EDS which is always a blessing. I’m catheterised 24/7 and I have had times in hospital when I’ve been really poorly & unable to empty my bag myself. However the nurses ‘forgot’ overnight and my bag is a 2 litre bag was full to the brim and eventually burst in between that my bladder was full so it back tracked up to my kidneys as I do have issues with bladder & kidney reflux . It left me with pyelonephritis & Urosepsis and in ITU for almost 16 days. Now as a precaution when I’m in hospital I attach either a leg bag (500mls) to a night bag (2000mls) or 2 x 2000mls bags joined together. I do hope you’re starting to feel a bit better in yourself also I know you said vlogging was really difficult for you when you had your last surgery and you became really anxious coming back as you hadn’t uploaded in a while. I think most of us who follow you would be just as happy with a 5 minute catch up video rather than a 25 minute video that gets you extremely stressed and is hard work to edit. Just know that you are missed, however that is in no way meant to put you under any pressure to upload. You do what’s best for you and I’m sure I can speak for all of us when I say that we will be here for you when you are ready. Keep your chin up lovely 💓 Much love from Scotland xxx

[@knuffelbeer193]

DO NOT SHAVE YOUR LEG WITH A RAZORBLADE THE DAY OF THE SURGERY! The razor can make tiny little wounds that can get infected in the dirty environment of a hospital. You don’t want that anywhere near a surgical wound. Surgeons never shave with a razorblade, they use cream or an electric razor when necessary.

[@willieobermann5305]

We are interested in everything you share with us!!! You are brave, courageous, tough, pretty we are so glad you share your amazing life with us!! AND.....your make up looks LOVELY today!! 🌹🌹🌹🌹🌹🌹 🌹🌹🌹🌹🌹🌹

[@eduardopadilla5505]

You are doing a great job Amy keep doing your best and enjoying life to the fullest! :D

[@kt_.9999]

My sweetheart I really don't know what to say but you are amazing I hope you get better soon and take care ♥️

[@clasesdehebreo]

I love your nails! Every style is beautiful

[@didi7462]

Omg now I know who you remind me. Of Ava Michelle form the movie "Tall Girl". You are so beautiful!! 🤗

[@IzzyKDNA]

Hey! I had knee surgery 8 weeks ago, and I was told I would need to be awake for the epidural. I was in the room terrified of the epidural and the next thing i knew, I woke up from surgery and they had done the epidural while I was under anesthesia! lol I hope you're recovering well!

[@dinosaurfun5965]

Blimey, that's some journey! For others who haven't used crutches before (when you have one good leg) my physio told me, when going up stairs, good leg up to heaven (going up) bad leg first down to hell!! . But Amy I hope you continue to get better and enjoy life just a bit better every day. Your explanation was wonderful, full of description but at the same time easy to understand . Love and hugs xx 🧓🇬🇧😊🦖

[@sophiehobley828]

My mum's a physio and she taught me that too :) also to get in cars it's usually much easier to sit down first and swivel rather than try and get in the normal way. But that's not got a catchy name so we just yell "bum first" instead lol!

[@dinosaurfun5965]

@@sophiehobley828 physio's have a lot of little sayings like " use it or lose it" A side note did you know that every movement a human can make is the result of a muscle contracting ? X

[@mehaktauqeer2858]

Love your makeup in this video! Take care💖💖

[@linamsd8134]

God bless u i wish u get well soon stay strong ❤❤❤❤

[@celiaatkinson9621]

I was given an anesthesia that I was allergic to and stoped breathing. I also ended up in ICU..than I ended up on a regular ward later. I later went to rehab because my BP and heart rate was up & down. My heart meds weren't working correctly.

[@annmarie9163]

amazing video Amy. you looked beautiful. great recount of you surgery and recovery

[@COEXIST-ny4db]

You're SUCH AN INSPIRATION! Good luck to you sweet girl!😊😊😊😊