My Long Covid Recovery Journey | Lexi Boreham

Lexi has been dealing with Long Covid for nearly 2 years now, and is trying to raise awareness and share her experience.
We talk about her challenges with the illness, what has helped her, what hasn't, and look to a more positive future and how we might get there.
Find Lexi here: / positively_fatigued
TIMESTAMPS:
00:00 Long COVID vs. Fatigue
04:22 Post-Exertional Malaise
10:40 Finding Purpose in Daily Activities
12:37 Deconditioning vs. Long COVID
15:33 Seeking Rational Explanations
23:15 Challenges in the Medical System
26:37 Global Impact of Long COVID
28:05 Advocacy and Awareness
38:11 Having a Plan and Direction
40:05 Handling Constructive Criticism
41:04 Improving Messaging and Education
44:22 Finding Balance in Sharing Experiences
45:19 Sharing Personal Experiences and Opinions
48:34 Finding a Healthy and Balanced Diet
52:30 Historical Stigma and Misunderstanding of ME and Long COVID
53:53 Challenges in Understanding Invisible Illnesses
56:17 Increasing Awareness through Athlete Stories
01:00:27 Dealing with Unexpected Challenges
01:01:24 Acceptance and Embracing the Present
01:04:18 Finding Contentment in the Present
01:07:32 Looking Forward to Research and Awareness
01:09:28 Raising Awareness of Long COVID's Impact on Women
01:12:17 Importance of Charitable Organizations in Research Funding
01:14:17 The Need for Increased Research Funding for Long COVID and ME

[@robertswinburne3973]

in 2021 I underwent a stem cell transplant for lymphoma. (lots of Chemo) in 2022 I got Covid and could not shake the active infection for 4 months. I am now just recently understanding that my symptoms when I try to bike or work are probably not the recovery from cancer but the recovery from long covid.

[@djVania08]

It's interesting to see such a conversation. It really brings me back in time in regards to topics going on in my mind when I was 2-3 years into my journey of CFS. I'm glad that there is more content than ever about these things. But also it's more confusing than ever. No official guidelines that would help and so people are on their own. I've been out of work (and life for that matter) for 7 years. At some point you have no idea about your future or if it even exists. At that 2 year mark, I was still pretty driven about being back in life very soon. That hasn't been the case. I totally subscribe to the fact that more research is needed on all fronts. Yet it almost seems like we don't fully get the functioning of the ANS and therefore a 'cure' is unlikely. I believe though that there could be a set of strategies how to get significantly better. Good luck to you both and keep going on your public or private journeys!

[@djVania08]

​@@dbulat Those are pretty broad terms. Why do you think so and what specifically you're referring to?

[@chriswerge]

Thanks for the great content Harry!

[@harryboby7563]

My pleasure!

[@ccc2784]

Great! Thank you so much!

[@harryboby7563]

You're welcome!

[@jamesmiles5011]

I'm not tired. 21 mths now. In a recent flare up. Had had a good 2-3 mths. Took on too much work and was committed, couldn't stop. Went over major thresholds 5 or 6 times, moments where it was critcal for me to pull back but 'couldn't,' due to work. For 3-4 weeks now been suffering with breathlessness, cognitive brain function, chest pains etc. The lungs and brain feel like concrete. Anyway, only 42 secs in. If I don't sleep, it all compounds. This has been quite a setback, another lesson learnt. Thanks for your content H. *the first year was hell.

[@ianmilnes4019]

Thanks guys I got a lot from this. I don't know how it works. I can watch youtube for hous on end but when I do a few hours of graphic design I get symptoms the next day. How does that make sense? I'm not stressing whe n I'm doing it. Is it just because I'm using my mind more?

[@harryboby7563]

Glad you enjoyed Ian! I think its the mental work that can trigger PEM, I know for me calls and videos etc. feel tough, wishing you good health