My Lymphoma Symptoms Before Diagnosis: "I Thought My Symptoms Were Asthma!" | The Patient Story

[@ThePatientStory]

We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇

[@PetalPalmer]

So relatable! Before I was diagnosed last year, I was convinced it was literally anything else - never thought it would be leukaemia.

[@shannilmerrill426]

Petal!!! I love your channel!!

[@clintandbecky7198]

I love this video. I love all of the symptoms in one video. It’s very enlightening. Great job. Keep them coming for every type of cancer. These videos could save someone’s life. My symptoms match so many of these and my blood work revealed low WBC. I’m now being monitored

[@vickiecopeland7131]

I have no visible lumps/lymph nodes. Mine are inflamed inside of my chest. I ended up in the ER thinking I had appendicitis! The ER thought the same. The CT scan revealed it was a mass in my abdomen and is farther back toward the spine with a feeler wrapped around the bottom of my aorta. They immediately put me in the hospital and ran tests and found it was either stomach cancer or lymphoma. I was in shock! Biopsy & all the tests were ordered & they found it was Large B-Cell Diffuse NON-Hodgkin Lymphoma double & triple blast, which I am not sure what all that means. I had just had my gallbladder removed a few months before. They did ultrasounds/two & a HIDA scan but nothing was ever mentioned. I felt bad months even after the surgery. I have now just completed my second chemo treatment. I also have Lupus so I pray that does not flare up. I am anemic and if lower next time they will put me on medication for that. All I can do is trust my medical team & the process.

[@annmarie1689]

Did you ever watch the good bye Lupus videos on Y/T?

[@kikiwilson9871]

I have my first oncology appointment on Thursday, and I'm absolutely terrified. I've had serious symptoms for over 3 years now, and have experienced so much medical gaslighting due to my age, and because none of my doctors can figure out whats wrong. My symptoms, blood work, and scans are all over the place. I'm being systemically affected. But due to the rapidly enlarging/hardening lymph nodes under my jaw, around my ears, and down my neck and collar bone, and worsening symptoms, my GP finally admitted its time for oncology to take a look. I'm trying not to scare myself, but after everything, I feel like I just know whats coming. But at the same time, I think I'm even more afraid that the doctors still won't be able to tell me whats wrong if its not cancer. So, I'm damned if I do, and damned if I don't. 😢 I'm also really glad to hear some of these stories. The one girl who's lymphoma didn't show up in her blood. I relate to that, because if I do have cancer. It isn't showing in my blood work either. In fact, I was told by a different GP I saw before switching, that because I had a normal CBC its was IMPOSSIBLE for me to have any form of cancer at all, "because all cancer cells can be seen in basic labs." Which I know is bull. My father has been battling stage 4 colon cancer (and kicking its ass) and he had no symptoms at all, nor did it show in his blood work. He had a routine prostate exam when they noticed a lump. Then did a scan and biopsy and he has cancer. He didn't even have mild symptoms like constipation/diarrhea or blood in his stool. Or so he says.

[@Loserkid420]

Im diagosed as a severe asthmatic . i have a few types of asthma . i also have a high Wbc count ! we did the tests for cancer and lymphoma as well . all clear . but i am being referred to a hemotologist to find out whats going on .

[@maddyk8505]

are you replaying this? this is an old episode correct?

[@winniecash1654]

Were the lumps in the neck the lymph nodes or cancer?

[@ethanle8368]

I have biopsy on July 11. My doctor notified me on July 21. That I have cancer. Tomorrow July 31 2023 I have to see oncologist. Buy my systom just starting today just sweat

[@TheAmtwhite]

Doctors are not suppose to diagnose asthma without doing testing for it first :(. If your doctor does, tell them you want to be tested for confirmation.

[@SatumainenOlento]

Ok. I asked to be tested for astma, but the doctor refused. I am changing doctor as this is totally unacceptable level of medical gaslighting. I am so dismissed that it feels like I have no access to health care at all.

[@jJust_NO_]

i can feel pockets of masses which somehow restrict my breathing .. but i can intuit i can eat them or dissolve them as long as im able to gauge the suppose normal breathing pattern. its like little clouds concentrated energy inside my body and they can be diffused. whenever i can feel their location, i can eat them and burp out