My Personal PIP Situation Is Changing

[@CharliesJourney]

I called this morning (29/7/24) and logged my change of circumstances! Here is a link to my newsletter where I will do an update this Sunday. Thank you for all of your support, I really hope these videos will help you fellow warriors! charlieanderson.substack.com/

[@CarlBland-l8l]

How long will it take the wrong uns to change cash to vouchers?

[@Retrozoid88]

I have my social worker help do mine they even told me there's right answers and wrong answers. The system is broken. I got suck at 28. I'm 36 now, and I get enhanced pip, but labour is clamping down. I'm autistic. If I go back to work, I can still get it

[@1102mutley]

Please don't give up, if it hadn't been for your videos I'd have never managed to get enhanced pip 1st time. Thank you.❤

[@CarlBland-l8l]

@@1102mutley might as well give up the wrong uns want vouchers

[@Thevidstoday]

Hi I am helping my mom fill a review form and the boxes are soo small not enough info, could you please help me with this??

[@janerylatt4415]

Charlotte......you have not failed....the system has failed you......sending you best wishes.....stay strong❤❤💪💪

[@neveo9428]

Are PIP punishing her for trying to help others? No sound whi h is unusual on films - censored?

[@Ellie_Kat]

You only fail if you give up and they win. Never apologise for being authentic - if anyone understands, we do! 💛

[@girlfrommars7015]

You can't win against lying biased goverment

[@ChrisM541]

"You only fail if you give up and they win" - an attitude that's perhaps the root of the UK's 'benefit culture' issue?

[@johnh1191]

You can’t be a failure if all you do is share your strength with others.

[@rosemarycoleman7387]

Awww send hugs. I just had my phone assessment and when I put the phone down I was left shaking crying and a headache it was horrible. Why do they teat people like this. I was honest but is it worth my mental health. I got it. But it's cruel.

[@WildBill-py6vn]

Because your white

[@JustChrisWillDoTa]

I have my phone assessment on Tuesday. I know exactly how you feel. The time before last, I went to tribunal and nailed it and things went my way, but because I'd had to wait so long, even though they gave me 4 years, I only had a year til it ran out, and when I got to then and was given zero points across the board, I did reconsideration and got lowest amount of money possible, but cos I'd not even got over the stress from the last time by then, I just didn't have enough fight in me at the time to go to tribunal. I do now though. I anticipate them giving me zero points, they always do, but I'm fighting again this time. I'm always careful to be honest, but at the same time, when I'm at assessment or tribunal, I stop putting all the effort it to stop myself doing things that are embarrassing or whatever, and just let myself appear as I do without trying to mask everything. I do hope maybe things will go my way this time. I've been going through various tests over the last two or three years to find out what is wrong with me, as I have anaemia that just won't go away, and have a fatigue and Extreme tiredness that goes along with it. To the point where I just pass out at any given moment, no matter how much sleep I've had. I have multiple falls a week, have put electronic devices in the microwave and zapped them to death, dozed off while using a knife and cut myself, had a road traffic accident that was my fault for the first time cos I'd got it wrong how with it I was, and all this is on top of the forgetfulness and constant pain in my legs and back that stop me being able to do any walking at all really, is a nightmare just getting to the stair lift. So given those facts, I fully expect them to give me a clean bill of health and the old nil points special 😂

[@loufreeman568]

I got mine on the 1st, dreading it 😫

[@mrsgab56gillianbates45]

Have you had any phiseo for the pain

[@Lin.J333]

My assessment was ok .she was very understanding I honestly felt like I was lifting a weight of my shoulders .no idea they will be changing it to vouchers .

[@Stuck_on_pause]

Dwp gave me standard on daily living only when I use a wherlchair outside home and cannot stand for more than 1 or 2 minutes (theres more to my chronic illness than that, but it's too much to go into detail). I went to tribunal just over 1 week ago and the dwp representative that also attended recommended to the judge i should be on standard on both daily living and mobility. The court went on to award me enhanced on both! Plus backdated 2 years so I'll be getting a large back-payment plus its for 5 years! If you haven't been fairly awarded by dwp but dont want to go to tribunal, i urge you to do it anyway. I was terrified but im so glad i went through with it. Remember the dwp are not medical or disability professionals, the people in the tribunal are. The dwp also purposely mark you down because they know people don't want to go to tribunal and won't take it further to a court. Yes its scary but 1000% worth it. The judge and everyone was extremely kind and understanding and I would definitely do it again if I need to.

[@JoolsVoiceOver]

So happy you won but tribunals are not all equal

[@Julie-si3hi]

Careful with the back payment. I got back payment and then they took money off as they said i had too much money...which they owed me!

[@Stuck_on_pause]

@@JoolsVoiceOver I didn't go to tribunal because I thought I would win, I did it because I knew that's what the dwp didn't want me to do. They know the sick don't want to go to court to fight so they think they can get away with giving people a hard time. I hate injustices so when it happens I fight it because its ingrained in me to do so.

[@Stuck_on_pause]

@@Julie-si3hi well its an order by the court, they will be breaking the law if they did that! The dwp are not above the law and ruling of the courts.

[@alisonjordan1152]

On DLA I got enhanced on both and it was indefinitely then I was put on pip to only get standard on both. I didn’t know I could have fought it, wish I had all those years ago. We all agree with you, pain n no sleep are my issues. Pip said I drove manual car but I can now only drive auto, got told didn’t make a difference Husband does most food as standing for a period hurts plus Iv got arm issues since 3 x breast cancer so mobility is worse now. Iv got dyslexia and won’t go travel on my own When my next pip was due I was told only write down changes. She went through the complete form yet another friend got asked just a few. Why is everyone assessing you different

[@suarezno9]

Charlie I’m with you 100% I really am Keep up the fabulous work!

[@seashell1038]

God bless you ❤ We all understand pain/chronic illness, how hard it is.

[@oscarokofori-brown]

Thank you, you didn't fail.

[@janewright2800]

You havent failed. You are an amazing support and inspiration to others. This broken system is the failure!!!

[@buffclary]

Dont say youve failed, you been keeping me sane to get through my second pip tribunal since 2016....STAY STRONG (cos we need ya😎).....

[@Rainstorm2310]

I was on pip for 9 years, called them early last year to report 2 new diagnosis that effect my life so much. It triggered a review and they decided to give me zero points on almost everything. Lost my pip. Did a mandatory reconsideration was awarded a further 4 points. Now going through tribunal but the whole system has made me feel useless and worthless and so defeated. 2 separate cancer diagnoses before the age of 40 that has left me next to bedridden and housebound and they just expect us to jump through hoops like a performing monkey. I struggle to move around my house so they can just paint my nose red and call me an inactive clown

[@TheSaabClinicUK]

The whole system is such a scam. Im worse now than i have ever been, and my pip was taken away 2yrs ago.

[@micknat1088]

@@Rainstorm2310 report a change like they say and it fucks you up.don't tell them about a change and it fucks you up again. How is that even aloud to happen. FTW

[@RobertMunro-wb6jb]

Hope your get your reconciliation sorted and get the £ you are deserved due to your health !!! I know what it’s like when they mess you around with pip etc ! I have physical health and depression and anxiety and I have a tendency to bury my head in the sand when things go wrong due to my mental health and have next to no help from my family ! So I can fully sympathise with you !!!!

[@nataliejefferies828]

I couldn't have done my interview without you. You can do this. You gave me strength I'm so sorry your feeling like this. Anyone honest applying for pip do not want this humiliation or the feeling of shame. Which goes hand in hand sadly. I hope your going to be OK. I'm should you will be. Screw the hater they don't understand. Thank you for your help.

[@dawnf2z1]

Sending you love, Charlie. We appreciate all of your hard work and dedication here, and it’s deeply moving to see you struggling with your health and helping others.

[@mistsmogguru8378]

Only half an hour ago I was thinking, I'm just waiting for the end ! Existing day to day. Existing not living. The nerve damage and zero available energy is horrible. If you do try, you pay. I barely eat anymore. I hate my existence

[@suesmith3744]

@mistsmogguru8378. I’m so sorry but I totally understand , I am also in varying degrees of pain and discomfort 24/7 . I also exist , this is not living . I also go through each day on autopilot, simply waiting for when it’s finally over , I have lumbar and cervical stenosis , severe osteoarthritis in most of my joints , and severe anxiety and depression. It’s only my son and grandkids that keep me here or I would have checked out ages ago . Life is nothing but mental and physical torture and I’ve had it …. SO sorry you are suffering too , Best wishes x

[@MaureenFinn-r7e]

Sadly my life is much the same ; not been out for 10 years x

[@RobertMunro-wb6jb]

Hope you get your claim sorted !!!! Hope you feel a bit better health wise ! And remember you are a good person and have helped a lot of people !!!!

[@mariebreckman2668]

Charlie thank you for speaking for us. I dread every letter that come through my letter box, I suffer with really bad depression & anixety, low immune system, kidney diasese, I can't go out without my partner & also I can go all day with no food & drink & my partner as to make sure I eat & makes sure I take my tablets. I feel like a burden to so many people. Keep going strong Charlie & thinking of you ❤

[@cymrulady1]

God bless you, I can totally empathise. I honestly couldn't, cope without my wonderful husband. I have a number of conditions, physical and mental and as I age (I'm currently 67), they are getting worse. He is younger than me, and still works full time, but he doesn't finish work when he comes home because he then has to cook and care for me. I feel I am a terrible burden but his love and devotion keeps me going. I am on enhanced PIP for daily living and mobility. My life revolves around my home and my garden (I feel blessed to have a beautiful little area which he has adapted for me to be able to use safely). I pay for a cleaner twice a week who will even do our washing, change our beds (I have insomnia so we have separate rooms). I'm agoraphobic so I cannot go anywhere alone and avoid crowds. When I heard the government were considering changing the way in which we receive our PIP, I had a panic attack. They don't know us, they can't see our struggles yet they feel they know best. I've now heard they are considering leaving it as it stands but I want to have it officially confirmed. I hope your support system is strong and am sending much love and many blessings. As my husband says to me, you are never a burden to the people who love you. ❤

[@ej_8888]

You haven't failed. You are strong and you are appreciated! x

[@w6263]

Hey Charlie you have helped so many people take pride in that! The fact things are changing your end and you say you've failed shows you are human. NO ONE is perfect. You are such an inspiration to people keep going woman!

[@amandahudson2038]

Stay strong, you can overcome this, you inspire many you are doing what you are on earth to do… help others, thank you, you are stronger than you think.

[@mandybeddoes9112]

i`m ten yrs indoor living never stepping past the door step now progressed into a serious illness and i am so scared of pip future .i have no family support or groups . for claims to live safety .

[@clairefitzpatrick7183]

Im also suffering.

[@50fit2fight8]

God bless you Charlie 🙏

[@mathildaflower2388]

Really praying for you Charlie I'm so sorry. Please keep up hope

[@micknat1088]

Brain fog,i call it Immediate memory loss.it's getting worse and I'm scared because I'm on my own. 🙏🏻x

[@WesleyWattley-xy4fg]

Make sure😮DHS know the facts 💯

[@mrsmiggins6435]

I had that for the first time last week and it frightened the life out of me, I also on my own

[@jayjayuk-f1x]

Sympathies. I can't remember most things. My memory is absolutely atrocious, and embarrassing.

[@micknat1088]

Thank you all,at the moment I don't feel so alone. Last time I told dhs about new pills. I still had 3 years till a review but now they called it change of Circumstances,that turned into a phone review, the person didn't like I was going to record and had someone with me, u can't record and wot is the name of my person. I said the person does not have to ID themselves and I definitely can record, got put on hold but I could hear her disrespect me because a man's voice said I'm in the right. She was nasty and hung up. The lies she told was unbelievable even when I had Evidence.next they said they are going to do it all with out me.4 months panic attacks, I have bpd and disabled. Was going to take them to court, but had a call saying you have been given top money on pip.what a Relief when I thought I was going to lose it.if I never recorded it I would of lost the lot.i never did have a witness with me, woops I told a lie.i forgot a lot of this but write things down all the time just to look back on. I hope everyone gets help u Deserve.👍🏻

[@cymrulady1]

I feel your pain. My memory is terrible, especially when it comes to names. I need a T-shirt printed with the words 'Don't bother telling me your name because in 5 minutes I'll forget it!' However, I still remember the names of my family, but thank goodness I only have 2 grandchildren because any more and I'd have to give them name tags! 😂

[@juliegeorge8533]

my heart goes out to you Charlie. xx

[@aprildawn7119]

A HUGE thank you. They phoned out of the blue to do a review whilst I was sat in A&E with my dying brother. They then sent me a person to person appointment. I watched your videos the day before and just remembered you shouting no no no and insisted on it being recorded. I was in no fit mental state to do a review. At the end of the interview the lady asked me to switch the recording off, I said I had but didnt, She said your award will be incresead dont worry. I was so low I just said it as it is, brutal but when she asked about toilet issues i told her i was in a nappy BUT the seat was already wet.

[@OnTheBall]

The walking distance thing is you have to take into account getting back, so halve it.

[@OceanBlue2023]

That is such a good point!

[@rainbowleighclarke3780]

That's how I looked at it. I might be able to walk to the end of my road but can I make it back

[@neveo9428]

Excellent point

[@kevinkenny6975]

Pathetic. Try being paralysed like I was as a kid.

[@Mandy-w8f]

Thank u for all your videos and advice you are so genuine yes u want to get better like many of us but if the mind is willing and the body is not we can’t do it no matter how hard we try good luck with your change of living

[@lyonspainter]

I love your little home....I have subscribed and re watch to try and absorb. I'm a veteran professional nhs worker. I accepted standard after receiving enhanced the time before. It terrifies me because I find it so hard to concentrate. Charlie you are providing an excellent service. Keep goin love .❤

[@decdillon7389]

You can't fail when your helping everyone.. Just keep fighting that's what we have to do.. Thank you for what your doing 👏👏

[@ginalouise6417]

You haven’t failed. The process is diabolical. You are trying to be positive. I was told if you have constant pain even when you walk a meter or whatever then you can’t do it and score the 12 points. I’m not good at explaining but good luck and make sure you tell them that you are in pain even when you do walk as far as you do. You also don’t know what’s around the corner and you might get worse for a while and then would need to change it again! Thanks for doing these videos.

[@SobrietyandSolace]

It took me 7 years to get mobility when I had to use a walking stick and multiple Times a week needed strangers to help me home from work either calling taxis, ambulances or British transport police literally escorting me home. I had paramedics telling me what the hell are you doing working and travelling. I said I can’t get benefits so I have no choice. I sent in the reports from police ambulance etc and it kept getting ignored so I wrote a 40 page document that mixed together my answers and evidence and write in bold and underlined that they deliberately ignored the evidence years before. I guilted them over the fact I eventually ended up homeless which helped and *eventually* got enhanced daily living and mobility

[@Devilz_lettuce]

Hi Charlie hope you're as well as can be. thanks for your help and support helping us all PIP medical patients we are grateful for your help and support. Please keep your chin up .say hi to Hollie the dog 🐕 and Matilda the dog 🐕 . Correcting your points are very important for yourself and Hollie the assistant dog 🐕 that helps with your day 2 day living 💙 thanks for your help and support 💙

[@Theyellowchild]

I would make sure that any improvements last at least a few month before you inform pip they’re bloody evil and once they decrease your points trying to get then back if you deteriorate again is virtually impossible

[@ej_8888]

🙏🏻Thanks

[@janebufton1960]

It's so unfair. You keep fighting and you will get there. Stay strong!

[@EileenGoehring-lb8hy]

Charlie, I know how you feel, because of my disability, I've put weight on, it's awful, I'm unable to walk very far or long, take care 👋🏻

[@daftirishmarej1827]

Same. My extra meds aren't helping either. I am becoming a whale

[@Dougie-s9s]

Hi Charlie, your points on your paperwork are an exact copy of mine, it's unbelievable, I lodged a tribunal as I am not letting someone who is not even qualified make decisions on my health and judge me. GOOD LUCK GUYS. xx

[@maxib870]

I’ve just found your wonderful channel ! Thank you for mentioning your arm pads,I’m buying some today as I suffer with a chronic pain disease too. You’re amazing keep up the great work. ❤

[@TheDonnellymarie]

I am sorry to hear this news. Do give up and let them grind you down. Do not give up. You are a inspiration to those of us who are living in similiar circumstances and with our problems. Stay strong.

[@dalebenton3354]

got to be one of the best abandoned places ive watched so far,Like a watching a story of it being abandoned place to turning in to a good home

[@jennylingard8989]

Good Luck 🤞🤞🤞. And please look after yourself. No one can feel your pain and the side affects it has on us 🙏💐💐💐

[@MOVIE.KNIGHTS]

They failed me 3 times, In the end, I got so fed up that I shoved 40 pages of my Medical condition with X-rays, told that it was never gonna change, It had permanent damage to my spine, I got it

[@traceysuggers2201]

You are human just like the rest of us darling we understand you’re suffering the pain in the severe chronic pains. We understand you every day 24 seven of my life I’ve suffering with all these other conditions I have on top. It’s just awful so you’re not alone you’re not a failure, don’t worry about those people out there. You’re doing the best you can like all of us.

[@paranoidmarty]

Sorry to hear that. Stay strong. Just yesterday I got my assessment. Over hour and half. Got the result made the 12 points. Not easy

[@robinamorris9553]

I’m here to listen I can’t walk to the end of my drive as I feel like I’m going to pass out you’re amazing pushing yourself and helping us I use the 15mins doing 15 min resting

[@antomic13]

Hi Charlie,I need to thank you for you and your channels advice,I sent my change of circumstances form away in February and just received my decision letter yesterday and to my surprise the decision was very surprising,my payment has increased so much from £333.00 monthly to £ 593.00 month,I have emphysema COPD,asthma and hayfever none of which I ever had before November 2018,I have to thank you again for the amazing advice you give

[@KernowFishy]

So sorry to hear your story. I have AS and can relate to so much of what you say about fatigue.. It's absolutely killer. For me mobility has gradually got worse and worse but the thing making it even harder to keep going is the fatigue (I'm in my mid fifties , still working part time but finding it very hard ).

[@helenlatimer9230]

Charlie don’t do it! Really think hard again about your daily living ! You’re amazing and far from a failure. I’ve recommended you to so many of my friends and family and all the feed back has been fantastic. I just want to say a bigger thank you from all of us.

[@alanbone5512]

God bless you Charlie , you have many wonderful surprises coming one day , that is all I am going to say , take heart young lady , this is not reality . . You are far far stronger, 💞 in your spiritual pathway than you know ,at this moment,

[@rowenaazimi9040]

Hi, I have atheritis in both my knees and it's very painful, especially walking. The gel I use is a godsend. Sending love ❤️

[@lindapyle6387]

Thanks

[@Susieq439]

I get enhanced pip, it's due up in Jan 25 but heared nothing from them, my car is due to go back Oct 24 what do I do as I can't get a new car. I suffer with so much, my illnesses are so complex. I have fibromyalgia, neuropathy, osteoporosis, osteo arthritis, brain fog, bowle incontinence , left shoulder is so painful, can't lift arm, can't use arm,tumours under my right foot, I feel pain from my neck down to my feet 24/7. Depression and anxiety. Suicidal because of the pain as I don't get any let up from it . Niw I'm terrified of losing my pip as the money pays fir things I would never be able to pay for. My car is a life saver fir me.

[@Freya12]

Contact them? Tell them the circumstances with your car being due back in Oct. They’ll send you an assessment form. If anything they love sending assessment forms early, not sending them when they’re overdue. So I’m sure if you give them a quick call, they will be happy to send you one out.

[@ChrisM541]

I'm more than shocked you didn't contact them about your car - why on earth wouldn't you do that ?!!

[@angusmcclelland4846]

Just keep going. All things must pass

[@Woke_White_Woman]

I am so sorry that you are struggling and in pain x

[@chopperharly]

I have the same illness its horrid to live with this, it took me 10 years just to get my skin better so no scabs any more hopefully, but the drugs do have side affects then you live with them, keep you chin up Girl

[@Marcia_Toms]

Me too. Are you in biologics?

[@nadiab386]

I understand you want to do a consideration because you feel almost imposter syndrome from being able to walk more, but you cannot do it consistently because you deteriorate as the day goes on. You wouldn’t be able to do it in the evening every day. You also struggle to do it, even though you can in the morning so it’s not the same pace, the same as a non-disabled person would sorry I’ve only got just over halfway through the video and now I’m being you screaming NO! at the screen ❤😂 xx

[@Debilee16]

Im so sorry your suffering so much , i just been refused pip ,im suffering from breast cancer side effects bone pain ,arthritis as well as mental health issues, got the letter this morning and it feels likexa kick in the teeth, these symptoms aren't just going to go away, im to unwell to work and got a high chance of secondary cancer ,as i wont have chemotherapy again would mean my life will end ,its disgusting they go by stupid point system, someone sat at a desk that haven't got a clue what its really like to suffer on a dairy basis, after watching your videos im definitely going to take this further, i got a friend who is on pip for depression, and they are out all the time ,going for meals and has had holidays, its so wrong especially for genuine people like us !

[@kamalmiah3752]

You are a treasure thank you for sharing

[@simoneclift3155]

Thank you for your content. Sending very best wishes. ❤

[@traceysuggers2201]

Not a failure, I have to use crutches. I am on a mobility scooter. I don’t go out every day but I do need help and it’s a struggle for you and all of us and you do the best you can.

[@sarah30uk]

My friend contacted them as she felt herself she had improved slightly with her mobility and some other areas. Before she contacted them she was on enhanced for both daily living and mobility. She did her assessment and was totally honest with them and quite proud of herself. She got a letter weeks later informing her she no longer met the requirements and criteria for pip. Just like that her pip was stopped. Which also had a knock on effect on her ESA. So according to the dwp she was to come off ESA and she was fit for work. She appealed and got the exact same decision. She ended up in a tribunal and the judge disagreed with their decision and he awarded her pip back BUT neither at the enhanced rate, both on the standard and she now has to attend the job centre for back to work meetings. She always says why did I bother telling them? I was so proud of my achievements and I feel like I’ve just been punished for them. I hope you have a better outcome. Or hope you get the outcome you are wanting. Oh and she had to give her car back as well, which was just devastating for her. Good luck x

[@Tonydjjokerit]

Don't be sorry. You did your best against a very cruel system. The Daily Mail article on you was a hit job as well!

[@ghadaabdelsayed7292]

I am glad you feel better. Could you kindly do a video about how to get an assistant dog either for physical and mental reasons. I am desperate but don't know either how to do it or if I can really look after a dog but I feel like I truly need someone to love and to love me back unconditionally and help me when I am out in the streets. Ps: I am British but not native so I have no idea even about the basics. Thank you so much.

[@jasonloane3735]

I had my review letter/form the other week, I'm 10 years in with living with Parkinson's, diabetes, severe chronic osteoarthritis, I'm expecting much the same, my home is my castle and my prison, but you know the government it's hard to explain if you can't explain because the question isn't really fitting, I am just my disability not who I was once.

[@spellfire2098]

must admit I get scared to go out very far at all exactly as you say if I end up on the floor I just know its going to end up with an ambulance I have chronic fatigue syndrome and more than once have ended up on the floor cos just can't stay standing or sitting anymore can't get to somewhere better and the floor is literally my only option

[@fluffyspit]

I like you. You are so genuine and real. I like that in a person. I am the same. I say things as they are and I see that in you. Thank you for your videos. I have had M.E. For nearly thirty years. My husband is a paraplegic…we muddle through life together. For PIP he gets enhanced every time but we still have to explain to the nth degree to get through the whole process and the assessments…it takes a massive toll on us. In those thirty years of my illness I have claimed once…when it was DLA…I got low rate care at tribunal, when it was due for renewal I lost, i couldn’t go to tribunal again…it took me over six months to get over the trauma of it…so I lost it and never reapplied. I KNOw I am entitled to standard PIP but I just can’t get the courage to apply. I am going to watch your videos to help me build up courage.

[@billhambelton7698]

Just this morning gone through a review phonecall with my wife who's had PIP at the enhanced rate for both daily living and mobility. Lasted well over an hour and a half and felt like an interrogation. Don't want to repeat that any time soon. Thanks for all the help Charlie.

[@pdhywrd]

I am usually unconscious by late afternoon, through exhaustion and pain causing a seizure, unless I don't get up until the afternoon lol. When I transferred over from DLA I went from lowest rate mobility and zero for care to enhanced on both for PIP without having to do a MR. But my award duration was only for 2 yrs. I had a home visit and recorded it. When I was due to renew I had a phone assessment and asked for it to be recorded. I was again awarded enhanced on both after the assessment but this time it was for an 'unspecified period of time' which is usually 10 yrs from what I was told. I will be 65 when the 10 year period is up but I am not due to retire until I am 67 so I am worried that I will lose by mobility entitlement then as I have a Motability car that I would really struggle without (my husband is my carer and 'chauffeur'). Several of my conditions are degenerative and my main one is caused by faulty DNA. I understand why you are doing a change of circumstance - having hope helps to keep despair at bay. However the process causes such stress it may cause a relapse so question yourself why you are doing it. Is it because you really feel as though it will alter your award ( looking at it as an outsider I don't think it will) or is to to make you feel better in some way? What is your goal and is it achievable or are you setting yourself up for more stress? I am not trying to be negative it is just that stress is such a huge trigger for most of us and I don't want you making yourself worse for a tenuous reward. I am 59 and I have been dealing with chronic conditions all of my life and I have learnt when to savour my victories and when to sdmit that something is a goal too far or when I am 'cutting off my nose to spite my face'. The best advice I was ever given was also the hardest to hear. I was told to grieve for the life I wanted as it was never going to happen..I was never going to get back to it no matter how hard I tried and wished for it. I was told to go through the grieving process and, once out the other side, to accept my new reality and build towards achievable goals but to do so in a way that didn't include self-sabotage. Stress is a huge self-sabotage if we have a choice not to cause it. Accept what you cannot change but live the best life you can. I still research for new ways (or sometimes very old ways) to treat my conditions. I am never going to be cured but making even small improvements helps. Reducing stress as much as possible is seen as a small thing but it can have a significant impact for the better. I wish you the best no matter what you do.

[@lynnedavies5884]

What a lovely comment.I was told once by my doctor after a stroke he said Lynne you can't change the past you can't see into the future just live your life each day.

[@DJKav]

On the DWP paperwork, it does state that if you have a change in conditions, then you must report it. I get why everyone won't report it, even if they get worse, you're supposed to report that. It's because it triggers another look into your claim. Also chronic conditions where you will have good days and bad days. You're supposed to look at it over a year, and work out whether you have more good days or bad days. Then use the average bad day as your claim form details.

[@pouncy452]

It is very hard to cope with 24/7 pain it is the worst thing in the world if me not got my cats i would not be hear I have no help as can not afford i can not do basic things 2 months since last shower had hart problems last time from panicking attacks bad breathing in shower and so so much pain I can not walk far at all and I can not stand unaided the pain will increase until I can not cope I got Osteoporosis osteoarthritis 4 herniated discs and permanently trapped sciatica nerve weight on operation for 2 years pain meds are the strongest there is Me stay naked for a month as clothes so hard to put on have shorts if need to go anywhere Me change medications each week sometimes So confused at times Hope you can sort yours wish it is easier to get pip sorted

[@lynne6534]

Where is your cooker or kettle?

[@LindaThorpe-v2h]

Hi Charlie, please could explain how you have failed.😢

[@andrewcollins8774]

I’ve got a degenerative condition & I’ve got complex Disabilities. I’ve got several things you mentioned. But there all invisible other than one.

[@ffudon]

11:20 FML!, every single day, for more than a decade.😫 Superbly described. I genuinely feel your pain, I'm sorry, but sadly, it's actually nice to know I'm not alone👌 Warts and all truth, very well said indeed. Superb video, thankyou - New sub 👍

[@Rainbowsandswirls47]

Hi everyone, I have been ill with Myalgic encephalitis for 35 years. I could never get DLA, had to exist on Incapacity. 3rd attempt of PIP last November and got the standard level which I'm very grateful for and can now pay for help 🙏 🎉

[@SylviaByrne-j4z]

Charlie listening to you to what you say. Good you do for people keep up. .May God bless you keep you safe ❤️🙏

[@AnitaWalters-h4i]

Been chronically ill for 24 years with fibromyalgia but not been able to claim anything. I’ve worked this whole time ,mostly full time but now part time because I work for the NHS so was able to retire and return on two days a week. The day after I work I currently have to spend the day in bed. I can be active for about an hour before I’m in pain but still no benefits because I can look after myself. Very confusing

[@shel7228]

Can someone, anyone explain, can you still claim for health conditions but at the same time still be the main carer for your children because your partner works. 😢

[@janebufton1960]

Differant opinions makes a differance of assessors too.

[@eddyposh72]

my sister in law finally got enhanced and my brother said but it didn't reflect everything she had wrong with her. I told him the same as you have said, it doesn't matter she has it, their not interested.

[@Summerbird2024]

I have a hip that was replaced 12 years ago that has never been right and is getting worse. I now have an arthritic knee, which has virtually stopped my mobility. I walk with 2 sticks and have had to resort to a mobility scooter. I've been advised to apply for attendance allowance, but im afraid to apply. 😢

[@AnitaWalters-h4i]

I just don’t get how pip works. I have chronic pain due to a couple of autoimmune problems and I looked at the pip forms I would not score highly enough to be able to claim because even though I’m in a lot of pain I can cook for myself and shower go to the toilet. I also work part time and this is where the confusion sets in . How can I be so disabled that I can’t shower or cook by myself but I can go to work ? It doesn’t make sense

[@jewelssunsun9450]

Because people may need help with showering and cooking. It doesn't mean they can't work necessarily.

[@LemonPuf]

If you’re in constant pain then the activities are not to an acceptable standard.

[@jayjayuk-f1x]

Just getting over a sciatica bout now Charlie. I didn't feel too bad, so I did a little gardening, maybe 30 minutes, and ended up with bad lower back pain, which then set off sciatica, on top of my fybro. Luckily, I was only bedridden for a day, and forced myself to grit my teeth and move. But yes, it's no joke, and thankfully, it's not all the time. Hang in there Charlie. We are a group of people who are frowned upon, and viewed with suspicion. Goes with the territory.

[@LadyofSharlot]

Sorry to hear this Charlie.

[@wealthyspaces1131]

Also I have pulled them up on the fact that the person doing the ax is NOT. The person writing the report-as a health professional this is unheard of 😮

[@anneharley5319]

My friend, the problem is that the people who know how to work the system get away with it. Those who really need it get denied

[@amandachaplin-h9q]

Very true..

[@Rebecca236]

Like she does

[@BillSilver-kg8hs]

Stay strong love.

[@elainecartwright1793]

I really do understand you angel don’t react to hater they have sad lives ❤❤❤❤

[@Fare-b4o]

I got my PIP first time i applied 5 years ago. Never had any problem

[@teamwork1008]

Can anyone please tell me their thoughts as I have not seen any mention yet - if someone lives alone and has a condition (involving extreme fatigue and poor eyesight and balance) that prevents them from moving a LOT of cluttered boxes and inherited items in very small place that have accumulated over the years, such that they cannot now navigate over them access the kitchen, and bathroom - is this relevant, or helpful, or perhaps even hindering, to mention in a PIP claim ? Or perhaps is it only appropriate for a Social Care Needs Assessment Form ? Of course on a PIP form I can still mention their assistance needs when they visit to use my kitchen or bathroom.

[@neveo9428]

No sound on this film would love to hear it

[@martinleitch1147]

I think you are doing great Charlie, seriously I can connect with everything you are saying & thousands of us who are suffering with a chronic disease, it’s so difficult to get out & about I have a carer who comes three times a week to the nursing home for 2 hrs. if I move into the community I would love to have the assistance of a dog. you are first person I have heard of ( other than blind people) to have assist dog, pls tell me me how you go about this? Take care Charlie 🙏🙏

[@scrollingthecomments.4043]

I wish i was as heal as you. I have a genetic condition myclonus familial and seizure alot even medication doesn't atop them. Just diagnosed with osteoarthritis and some kind of illness where my foot is fusing together making it difficult to walk. Also lost dexterity iny hands. I have carer's every day for meal prep and reminding me to take me meds. Worked ally life until head trauma feom a abusive ex which has made my condition uncontrollable. Along with depression anxiety and PTSD. Had a fractured pelvis hip and wrist. I only get standard pip no mobility. I am grateful for it as it pays towards my care,which helpse tremendously esp with food preparation, taking me to appointments and shopping once a week,the only time i get out the house. My daughter is a police officer and cant travel up all the time to help me and i wouldn't expect her too as im the mum its my job to care for her not the other way around.

[@lyndacrosfill6340]

I wouldn't call this mixing with people because even though you have veiwers on your end it's one to one contact not loads of people in a room

[@julivanbreemen6900]

I use two pill boxes and the tribunals still wouldn’t accept giving me the correct points still got 0

[@jareksawicki4296]

Thank you 😊

[@Devilz_lettuce]

Hopefully your as well as can be Charlie. I always look forward to seeing your PIP over view that helps us all PIP patients. Please keep your chin up-we are very grateful that you help us all. 🖤 Say hi to Hollie the dog 🐕 and Matilda the dog 🖤💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙

[@HC_Productions_UK]

We're still waiting for a court date...Since November 2023..

[@cheryltom]

Took me 2 yrs to get my court date! However I did win so hang on in there!

[@HC_Productions_UK]

@@cheryltom Thank you

[@Mrskess]

I got enhanced for daily, but yes the points weren’t right what the scored. Mobility I got 8 for mobile and nothing for planning, but don’t have the energy to do MR and so many talk about losing points when doing MR. I’m great full for what I got

[@traceysuggers2201]

When my hand goes, I have to put the gloves Suport on I have to put Suport on my arms and also a body strap sometimes to support my body but when the weather is very hot, I can’t put them on things we have to do to support ourselves

[@Arthur_Sleep]

I've got my first ever pip interview over the telephone this week. Does anyone have any tips?

[@wecandothiswarriors]

Just be honest and clear on how it effects your life

[@denisemeredith2436]

Good luck, I have mine soon too.

[@jaktag]

Long reply,but this worked very well for me...You must ring them and insist that you want it recording by them,they will probably change the appt and tell you they will have to make another one when they have got an assessor that is willing to record it,because not all of them agree to it being recorded( we know why don't we) I did this and i got the nicest lady that assessed me,she told me about the recording and that i would receive 2 copies of the recording by courier,and i did 2 days after it. The assessment went very well,she never once tried tricking me.5 days after it i got awarded PIP daily living and mobility both high rate,for 10 year. This was such a shock because my last assessor was a witch and i lost my mobility car because of all the lies she told,that was in 2019. The only way is to ask them to record it,theres less chance of them lying. They have to record it too do not let them tell you they don't have to,but you must arrange it in good time.

[@maryjanemj9784]

I was just diagnosed with Psoriatic arthritis 2day 😐 & had my pip recently reviewed i was awarded enhanced for daily living & standard for mobility i didn't get the correct points. My question is this.. Shud i contact them with my new diagnosis?