Treatment of Non-Epileptic Seizures (PNES) That WORKS

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Dr. Omar Danoun

Dr. Omar Danoun

Күн бұрын

✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment below (for age 16 years and older) appointment.dr...
In USA, please call the clinic
There are many new and successful treatments for psychogenic nonepileptic seizures (PNES) that we will discuss in details today with the world expert on PNES Dr. Curt LaFrance.
Treatment work book:
1- Work book: Taking Control of Your Seizures: Workbook (Treatments That Work). Link: amzn.to/3LlyN7c)
2- Therapist's guide: Treating Nonepileptic Seizures: Therapist Guide (Treatments That Work): amzn.to/3DChixA )
PNES series
Full playlist:
• Psychogenic Nonepilept...
Part 1: What is Psychogenic Nonepileptic Seizures (PNES).
• What are Psychogenic N...
Part 2: How to Diagnose Nonepileptic Seizures (PNES)
• How to Diagnose Nonepi...
Part 3: Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!
• Causes of Nonepileptic...
Part 4: Treatment of Psychogenic Nonepileptic Seizures (PNES).
• Treatment of Non-Epile...
👇 Dr. Omar Danoun's Blog and website:
➥ dromardanoun.com
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Thank You!
MEDICAL ADVICE DISCLAIMER:
The content on this video and this channel including information, content, references, and opinions are for informational purposes only. The Author does not provide any medical advice on this platform. By viewing and accessing or reading these content that does not establish any doctor-patient relationship and providing your medical information on the site or answering any comments does not establish any doctor-patient relationship. The information provided on this video and channel do not replace the services and opinions of qualified medical professionals and if you have any questions of medical nature, please refer to your doctor and qualified medical personnel for evaluation and management.
The content provided in this video and channel represents the Author’s own opinion and do not represent any other third party or entities.
Disclaimer: some of the links provided in the description are Amazon affiliate links so I will earn from qualifying purchases to support the channel at no cost to you.
#DrOmarDanoun #Epilepsy #PNES #FND

Пікірлер: 268
@DrOmarDanoun
@DrOmarDanoun 16 күн бұрын
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic
@beccasbythebay
@beccasbythebay 9 ай бұрын
My daughter died from pnes in September 2022 at age 28 years old. We took her to therapists & neurologists since she was 11 years old. Nothing helped or worked. No anti seizure meds, no individual & family therapy, nothing helped her. We miss her so much. I pray 🙏 their is real progress to help these people who are suffering from pnes. We waited 6 months for an autopsy report & talked with the coroner. Circumstances were that our daughter was and wanted to live with my parents at the time of her death, which we had investigated. I was told by the coroner that they were not able to prove my parents had any involvement. That our daughter was wearing upper & lower mouth guards that she choked on during a seizure attack, her lungs filled with fluid and then had a heart attack. My parents didn't want to hear her scream during her seizures and it's our thinking they.made her wear them.even though every dentist & doctor recommended she Never wear ant mouth guards for grinding teeth or biting her tongue it would be a checking Hazzard. My parents never checked on her, never aided her, or called 911 for help. I'll just add that when she was in my care, we always ran to her aid during a seizure to make sure she was free from any entanglements of blankets sheets etc, to make sure she was turned on her side and safe until her seizure stopped. Stay safe & I pray for all surrfering this condition. Find ways to decompress, destress & surround yourself with loving compassionate people.
@ASMRCountingSheep
@ASMRCountingSheep 7 ай бұрын
I am so very sorry for your loss. I am grateful to Dr. Danoun for shedding so much light on this condition and bringing both compassion and science to it, to help us better diagnose and understand it. There are so many suffering from this and I hope they find the right information. Your daughter was so young and I appreciate that you are still trying to understand PNES. Love and light your way.
@beccasbythebay
@beccasbythebay 7 ай бұрын
@@ASMRCountingSheep thank you 😊 🙏
@J_B_4
@J_B_4 6 ай бұрын
@@ThisIsForDrew okay seriously? This person just expressed their sadness about the death of their daughter and is pointing out that nothing helped her and you’re here saying she didn’t die of PNES and your evidence to back that up is your ex? Seriously!? If you have an unresolved issue with your ex then fine, good for you but don’t sit there and say stuff like that to a grieving parent for christ sake. Anyone can die of a seizure, PNES or Epileptic it doesn’t matter because the risk is still there. I have PNES and when I seize I stop breathing, that alone could have been the cause of this poor girls death not to mention the fact that she could have seized and fell down some stairs. Don’t be so damn ignorant!
@J_B_4
@J_B_4 6 ай бұрын
I’m sorry for your loss
@ThisIsForDrew
@ThisIsForDrew 6 ай бұрын
Not the thread to say perhaps but seriously pnes is misdiagnosed all the time they told me I had that and colitis for years now I need brain surgery some times these doctors need to be held accountable for telling everyone CBT therapy and stress are all that’s wrong with them because they too lazy too dig deeper or care !
@TheTarahTalks
@TheTarahTalks 6 ай бұрын
My neurologist said it’s PNES, gave me Keppra, and I havent heard from her since. She’s the most celebrated Neurologist in our area with billboards of her face everywhere. I was so upset thinking no one could help me. Glad to hear there IS hope.
@BillieAnnaBanana16
@BillieAnnaBanana16 3 ай бұрын
Don't STOP or forget to take your Keppra. This has saved my life. I 100% have PNES. I have studied why they couldn't find why I was having seizures since 2017 with amnesia afterwards everyone. My husband had to stop working to care for me. All medical professionals thought my husband and I were wrong about it. I had to give up my children to deal with this. Because I kept going back to 2015 afterwards every seizure. I looked crazy. But Knowbody knew how to check for this properly. In 2022 my prayers were answered. All I ever asked for was meds for these. Keppra 500 twice daily has saved me and stopped them. Next month 2 years. You will get your life back. Don't give up.❤
@sashaludwig7057
@sashaludwig7057 3 ай бұрын
My give me keppra when I first was diagnosed with cavernous malformation and PNES , ptsd . The keppra made my seizure worse I was having seizures back to back and got admitted to the hospital a few times and i finally got a doctor to listen to me and change medication to briviact it works way better I do still have seizures but not as much
@Viktor_Rafael
@Viktor_Rafael Жыл бұрын
I am a therapist working with a client who has PNES. It is surprising to me how little awareness of PNES among mental health professionals. Thank you for providing this free education and spreading awareness of this condition.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
You are welcome.. And thank you for helping our community
@brandenmoore955
@brandenmoore955 Жыл бұрын
It's not just mental health professionals. I have been suffering from PNES for about 3 years now and only recently did i find out about PNES and asked my doctor about it and they never heard of it. (I was then put into care of a professional and they diagnosed me)
@graylotusflower
@graylotusflower 9 ай бұрын
Have this disorder..at times it is terrifying...no real help has been available to me..I don't go anywhere now...
@stephaniejanzen8649
@stephaniejanzen8649 8 ай бұрын
WHERE ARE YOU LOCATED AT
@stephaniejanzen8649
@stephaniejanzen8649 8 ай бұрын
Where is your office?
@darrenwray285
@darrenwray285 Жыл бұрын
I had been seeing neurologists for 40 years and was treated with epilepsy medications without *any* evidence of having epilepsy. They just acted as though my violent seizures were due to epilepsy, so instead of referring me to another specialist they would increase the dose of the medication until I was on massive doses. But the seizures continued so they just changed medications. This went on for years and years, going round in circles, without any improvement, suffering horrendous injuries, losing jobs, my drivers licence, friends etc along the way. And still they refused to send me anywhere else. Eventually I realized that I wasn't a patient. I was a customer. And my "role" was to increase profit for private enterprises. So I was forced to solve this problem myself by examining the evidence. After years and years of my own analysis and research I discovered that I had cervical spine instability - which was causing muscles in my neck to become tense and pinch my vagus nerve - which stimulated my sympathetic nervous system - causing more tension, more pinching and so on in a vicious cycle. Even thinking about having a seizure could cause a seizure because it created tension in my neck. When I try to educate doctors now they can't confirm my theory and they can't deny it - because it's 100% correct and they don't have to tools to prove or disprove it. I have tried CBT (through my own initiative) and it didn't produce any improvement whatsoever.
@elisabethmulder4315
@elisabethmulder4315 Жыл бұрын
Hi Darren, I have been doing Yang style tai chi chuan twio or three times every single day followed by 10 minuutes standing meditation facing North, but when you are in Australia it has to be facing South. It must become a part of your circadian rhythm. Also,, I am visiting an acupuncturist who has also given me herbal pills and who is doing tui na massage Please do not take any other medication, becase your autonomic nervous system will be able to heal your mind and body all by itself if you do it this way. It takes some time to learn the long form and to cultivate your energy, but enjoy the journey and go with the chi flow.😇 Sitting meditation in your own house filled with the energy of your loved ones is very good. 🙏🙏🙏
@darrenwray285
@darrenwray285 Жыл бұрын
@elisabeth mulder Thank you Elisabeth 🙏
@SuperWilbur77
@SuperWilbur77 Жыл бұрын
I’m so happy for you ! I’m researching too ! Had a C5/C6 fusion 20 years ago and studying that angle of the neck / atlas etc. Definitely looking into the keto diet as I understand an alkaline brain is extremely healthy and encouraged. I don’t understand why the neurologist I have had never discussed these issues with me. He sits at a computer for a minute , turns around and says to pick a script up at the pharmacy ! That’s why I’m glad I found Dr Danoun on KZbin. He is a very nice person and he explains about this disorder. I’m 70 ! ( a young 70 lol) ! I thought it was a child disorder. I was sure wrong. Got it after the 3 Covid vaccines. So I’m trying to get to the bottom of it. I will get some kind of cognitive therapy I guess but I do know I do not not want this ! And mine could certainly be caused by neck / artery issues. Anyway , best of luck to you.
@kojakjohnson4300
@kojakjohnson4300 Жыл бұрын
I feel I'm on this same situation. Which Dr. Do we see for confirmation or check up on this?? Please advise.
@stellaancimer8505
@stellaancimer8505 Жыл бұрын
​@@darrenwray285hey did you try changing food? I see how much carnivore helps me😊 All the best
@patricia_rs
@patricia_rs Ай бұрын
Totally! I had a seizure when I was 23. My worst mistake was not going to therapy back then.
@kathrynjenkins9183
@kathrynjenkins9183 11 ай бұрын
My son has Autism and depression and was said to have had one PNES recently and was taken to hospital where he was treated for a’panic attack’. My husband and my daughter were present with me when it happened and it was frightening and serious. However, the next day my son couldn’t walk and has since had blackouts and absences so he should have been given a scan at A&E, not turned away with it classed as behavioural. So be warned about being palmed off by over run A&E departments because the aftermath is just as worrying. Be warned, as soon as you mention Autism or Depression, you will get shelved with the behaviour diagnosis rather than anything neurological! They maybe overwhelmed with treating drunks and pimples but don’t take no for an answer. We are now faced with a much more worrying future!
@modusbee9092
@modusbee9092 5 ай бұрын
How are things going now? Do you have anything more you could share? I am in a similar situation with my son. ER doctors always pass it off as anxiety. He's been referred to physio and chronic pain clinic for his leg pain and after testing, they say there is no explanation for why he can't even walk some days.
@kathrynjenkins9183
@kathrynjenkins9183 5 ай бұрын
I am so sorry for your anxiety and worry over your son, I know how you feel. My son had an MRI scan, and CT scan, resulting letter from the Neurologist was, nothing found! Good news for the positive thinkers in society but now looking at mental health so, with the state of the U.K., we are knackered!
@Ouchimoo
@Ouchimoo Жыл бұрын
OMFG. I am now convinced that my neurologist specifically tried to misdiagnose me with PNES so she could get rid of me. She literally said "there's nothing I can do for you. Go see a physiologist. Good luck." Mind you this is after I was successfully on medication for TWO YEARS. And the only reason why this misdiagnosis happened was because the medication I was on became unavailable so I got switched to a different formulation and I had side effects to it, then the medication after that I had really bad side effects to it. I know I'm beating a dead horse but the more I learn about PNES, medications and epilepsy in general, the more angry I become realizing how much this doctor I had was terrible.
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
How have you been lately ?
@robinfischer1259
@robinfischer1259 3 ай бұрын
I love how encouraging you are. One of my patients tried working with a neurologist for PNES and he had nothing to offer. The patient and I found the books you recommend here on our own, although by that time the patient wasn't willing to engage in the protocol. What really helped was working on increasing the patient's window of tolerance for the strong emotion associated with the trauma and increasing their capacity to express those emotions. Also reducing immediate environmental stressors as much as possible helped and the seizures calmed way down.
@devoragoldman7150
@devoragoldman7150 Жыл бұрын
Dr. Danoun, thank you so much for providing such outstanding, up to date, and compassionate education on PNES. It is so valuable to have physician advocates such as yourself providing sound, evidenced-based information for all to learn from on this topic.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Glad it was helpful!
@jacqueline9575
@jacqueline9575 Жыл бұрын
My daughter new psycho therapist ask her in the intake was she ever sexually assaulted.
@RippingStars
@RippingStars Жыл бұрын
You're an absolute king for spreading so much awareness on PNES! Very real condition with very real symptoms!
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Thank you! Glad to be of help
@hazarawheels3854
@hazarawheels3854 Жыл бұрын
how can i meet u or can we have a chat online .. i am really worried about my wife she is having a lot of siezers and its getting worse day by day
@nicklo5352
@nicklo5352 Жыл бұрын
I dont know about a king but a good doctor maybe about the subject
@MountainAirOrganicBeds
@MountainAirOrganicBeds Жыл бұрын
I started thinking last night, I should practice sleeping like it’s PNES then maybe when I get to the neurogist I can tell him if my practice of not worrying about it and just try to not let my brain react is working or not. I will practice every night. Your information is valuable to many of us lay persons. It does scare me to think about my past, I have just swept it under the rug and act like nothing happened. I feel like I had 2 versions of my life, what was in the past and what I became.
@duncanramsay9262
@duncanramsay9262 11 ай бұрын
When I told my neurologist, I do my own research by watching your videos,a huge smile appeared on his face 😄, and he said "oh yes he makes excellent short form videos " so you are a very loving, and loved man. I have gran mal seizures ,and pnes I have ptsd ,depression, as well as well as very high anxiety because I overthink things. I had a teacher pull me aside one and tell me I think to much. We I think I had a panic attack for the first time the other day. My doctor just ordered a ecg and ekg
@TamaraLaschinsky
@TamaraLaschinsky 5 ай бұрын
Thank you SO MUCH!!!! I have primary generalized epilepsy but after trying at least a dozen different AED's I am still not fully controlled, believing I had refractory Epilepsy. I no longer drive and my life has been greatly affected. My teen daughter recently started having what looked like Focal seizures, based on my own Epilepsy history I was confident she also had Epilepsy. Diagnosis varied between Migraines to PNES to all sorts of things. We recorded events, video taped them, track triggers. She has been in Epilepsy Monitoring Unit twice and all we caught were PNES seizures but never did catch her unaware events (unresponsive 15 - 30 seconds, eyes open.) It's been a battle and we are starting Psychiatric treatment and therapy as well as doing CBT. One of the most important things I have seen in videos like this and other is VALIDATION! It is a real condition, the symptoms are real and a person is not faking it nor can they just make it go away. It takes work and training. Thank you, thank you, thank you - for this great series and shedding light on this condition. You are right, it is not pseudo because there is nothing fake about it. Finding the right name is important. Disorder sounds like a label. It is emotional and sensory. Sensory dis-regulation seizures, when everything gets overloaded and someone is unable to handle/process anymore. Each episode is traumatic, people need to realize it. It's scary and the brain forms a connection based on the experience. Meaning the next time you feel a certain way the brain automatically predicts what will happen next (catastrophic thinking). It is so important to re-wire the brain and form new experiences. By researching her condition I have learned a lot and believe I also have PNES based on some of my episodes which did not fit the typical epileptic pattern. I am a huge internalizer of feelings, as is she, and I will learn the same techniques she will so I can manage my own emotions and change my brain patterns. Thank you Dr Danoun for a great series and insight! :)
@LizetteLizette
@LizetteLizette Жыл бұрын
I’ve had this for 6 years now, and my neurologist insists that my epilepsy medicine works even though I don’t have epilepsy. But my seizures doesn’t stop, I still get it 4-6 times a year. Year after year. I’ve also gone to trauma therapy (EMDR) for 2 years, and also 5 years of other types of therapy previously. I’ve had problems with DDD for 15 years now and I think it’s all connected to each other. All caused by childhood trauma, and then even more triggered by a specific event that really traumatized me as a grown up and gave my PNES on top of DDD. I don’t know what to do anymore, I feel like I’ve tried everything and dedicated so so so many years to solve this. But I’m giving up..
@AEGelnhausen1120
@AEGelnhausen1120 Жыл бұрын
I’m so sorry. I will pray for you to find something that works… I still haven’t found my relief. It’s getting in the way of me being a mom and my job as well. I’ve done tons of therapy but the seizures still come. Maybe one day we’ll find what works.
@dcsj6837
@dcsj6837 11 ай бұрын
EMDR = snake oil
@desertdreamsmassage
@desertdreamsmassage 6 ай бұрын
DEGENERATIVE DISC DISEASE? WOW! I DO TOO.😮. I am so utterly lost and get no help from my Dr.
@AliKazi
@AliKazi Жыл бұрын
Masha Allah great video. I was sadly diagnosed with this. I am to see a therapist weekly to resolve it Insha'Allah ❤
@lizmontana9177
@lizmontana9177 Жыл бұрын
I have this also. It has been debilitating! Ive been having them for 2 yrs. I lost my Daughter 7 yrs ago to car accident. I havent been the same since it happened. 😭
@AliKazi
@AliKazi Жыл бұрын
@@lizmontana9177 awww I can feel what your saying and can relate to you 😢❤️ may God bless you. I had a small accident yesterday too. This all started when my marriage plans got cancelled and I lost out and my business had to close due to a break in and other problems at the office. Was horrible. But I've been thought 💭 and I am practicing to find the good in this even when it's hard and be grateful and look for good in your life and things you can work towards to better your life and opportunities.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
InshaAllah
@AliKazi
@AliKazi Жыл бұрын
@AlexanderMeier-iw7bz
@AlexanderMeier-iw7bz Жыл бұрын
Same, except the Veterans Administration has not diagnosed. VA prescribes sedatives & SSRI. I have been recently refered to CBT, EXRP for OCD, and CBT-I. In addition, dealing with Ulcerative Colitis. VA has offered ECT once. Shukran
@jeanward9984
@jeanward9984 10 ай бұрын
I am a expert because I didn’t just read some textbooks! I experienced major abuse from family growing up and I too pushed it way down and didn’t address it for a long time! My experience is my expertise!
@kirgise88
@kirgise88 Жыл бұрын
There is an illness called complex migraine. It was mentioned in another video in this channel. Among some patients with this condition (hemiplegic and/or brainstem migraine) there are some that develop a "locked in syndrome" which is basically a short term vegetative state of ~5 to 30 minutes duration. Patients may well receive 0 points for movement and speech on the Glasgow Coma Scale, only eye movement is partially possible. It is very very easily misdiagnosed as PNES but treatment of choice is ironically with an anti-epileptic like Lamotrigine or a calcium antagonist like Flunarizine.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Correct.. Yes mentioned that in the video on things that are not seizures
@BionicGinger
@BionicGinger Жыл бұрын
@@DrOmarDanoun is locked in syndrome from complex migraines being misdiagnosed as PNES more/less/equally as common as someone having complex migraines *and* PNES?
@mollymills4186
@mollymills4186 Жыл бұрын
Thank you for your videos on PNES! I appreciate your compassionate delivery of all of the great information you're sharing. I'm a psychiatric nurse and have become interested in learning more about this so I can better provide information and help any patients who might experience PNES. So thank you, I've been learning a lot and enjoying your videos!
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Glad to hear that. Thank you for your service. It is essential for our community
@andreamoore4595
@andreamoore4595 Жыл бұрын
I have used EFT (emotional freedom technique). I have used this therapy on all my CPTSD stuff. It works directly on the nervous systems (especially the autonomic nervous system) and the vagus nerve. It also works on the meridian system to restore the disruption caused by events, trauma, and emotional responses. I would highly recommend it! 👌
@courtwright227
@courtwright227 9 ай бұрын
EFT therapy? What is it?
@andreamoore4595
@andreamoore4595 9 ай бұрын
@courtwright227 emotional freedom technique, which is very good. But I would recommend even higher than that IFS (internal family systems) which us evidence based therapyy. My PNES have healed very quickly through doing IFS. It's been amazing in all areas of my life.
@jeanward9984
@jeanward9984 10 ай бұрын
PNES is from pushing major problems deep down inside and then it manifest’s itself physically kinda like people who die from grief! You have to be willing to deal in order to heal!
@SherleenThibodeaux
@SherleenThibodeaux Жыл бұрын
Dr. Danouon, thank you for this information. Some of this information describes what my daughter is going through. She is 25 and all of a sudden began to have "episodes" the whole-body shakes/convulses. All of this began February 7 we have been to the emergency room twice only to be sent home on narcotics (which we do not want). At the second ER visit she was sent the Physc nurse to evaluate her, she said her condition was not psychological. Her primary Dr. believed it was and wanted to have her committed. She was seeing a counselor and was scheduled to see a psychiatrist; she followed through with the appointment and was evaluated based on primary Dr. request. The psychiatrist took her off the narcotics and placed here on Seroquel and told her again this was not psychological. We have changed primary Dr's and the new primary said we as well need to see a neurologist. (Which I had already scheduled an appointment with). My daughter has had MRI and EEG completed all have come back normal. Yesterday we seen the neurologist for results of EEG, she said all is good and she is not diagnosing her with Epilepsy and sent us home with no further information other than she would refer us if we would like a second opinion. She has had tons of blood work and urine tests done all coming back normal. What is my next step? As long as she is on the medication, she is fine but if she forgets to take it she will go into an "episode". These "episodes" can last all day if needed. All the Dr's (except neurologist) have seen the "episode" firsthand, and they can tell me nothing. My daughter is getting extremely frustrated with not getting any answers. I am willing to travel to get the answers needed. Can you advise or suggest a facility new me? I am in Mississippi. Thank you so much.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
I don't have a specific name but you want to see an Epilepsy center for full evaluation
@kellihefton8490
@kellihefton8490 Жыл бұрын
Hi there. My son is 25 as well and thus began Dec 22. Our experience has been EXACTLY as you have described. As if you're telling our story. Have you found any answers yet????
@1jamaican
@1jamaican Жыл бұрын
I have a soon to be 16 year old daughter who is experiencing the same and all the test thus far have come back negative or normal. I am just looking for some direction and confirmation so we can begin to alleviate her pain and suffering. We are having a hard time accepting that it is "stress" induced, as we have provided a stable home and upbringing. Just looking for answers,
@Buglife.352
@Buglife.352 2 ай бұрын
USF has world leading epilepsy center. My wife is currenty there for PNES it was a 2 year wait list. I know its far but look into university medical centers
@exosproudmamabear558
@exosproudmamabear558 5 ай бұрын
I have autoimmune ensefalite specifically attacking my dopamine 2 receptors. It started with pnes,my conciousness completely open when it happens and I can tell whats happening around me. This is why doctors were saying conversion but I am a doctor too so I found out it is because of autonomic dysfunction caused by problems in regulation ach release and ach receptor sensitivity. And dopamine is one of th3 main modulator of ach. Nonetheless everyone is trying to gaslight me into thinking this is not a real but my immune system is fucked up,I have hernias all over my spine due to seizures now I have parkinson like symptoms. This is disgusting how they trest people like crazy maniacs who only seek attention.
@Vade1313
@Vade1313 Жыл бұрын
Wish I had a doctor like you.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
@contemptofcourttour1235
@contemptofcourttour1235 7 ай бұрын
Do you take wi state insurance?
@lauramccarthy8339
@lauramccarthy8339 9 ай бұрын
The correct terminology is now Dissociative or Functional Seizures. It is now well proven that these are not Psychogenic in origin. Could you please change your terminology? Thank you.
@psycherevival2105
@psycherevival2105 Жыл бұрын
I’m pretty sure that this what I experienced today. It started with a racing heart and shortness of breath that lead to my entire body ceasing up and I was stuck with my insides burning for who knows how long. I had called an ambulance and my body started to cease and convulse in the ambulance. It felt a lot like a sleep paralysis episode but more scary and physically painful. I could not talk and my arms were moving in strange ways voluntarily. The frustrating thing is that the Dr’s at emergency didn’t know about PNES and didn’t see me having my episode. I wasn’t admitted when I arrived at the hospital, and instead the paramedics kept me on a stretcher in some hallway until I eventually came out of it. The only thing that came in abnormal on my tests was low potassium.
@marydotjpeg
@marydotjpeg 10 ай бұрын
This happened to me without the seizures I got diagnosed with Functional Neurological disorder 😭
@pandatortoise559
@pandatortoise559 5 ай бұрын
This happened to me too, tried to tell me it was myoclonic jerks went to another neurologist and he has diagnosed me with FND , my medication was working on 10mg but now I upped it to 20mg (as I was told) and just had another seizure. Don't know what caused it.
@Believe-h5u
@Believe-h5u 25 күн бұрын
Same here.
@demimadry6819
@demimadry6819 Жыл бұрын
I have PNES and unknown seizures. I was given Topiramate and since a couple weeks after starting it,I've had way less seizures. When I had my EEG seizure activity wasn't detected on the brain waves but everything they did triggered seizures. When I was 14 they did that and no seizure activity got triggered. I'm 26 now, I can't be near flashing lights and if I'm not drinking or detoxing from alcohol I have minimal seizures. I'm so grateful for doctors that explain complex things in their own time. It is very valuable information and it's very validating.
@HeerRaval-o2w
@HeerRaval-o2w Жыл бұрын
Not trying to be nosy but I'm just curious.. Pnes is a non epileptic seizures right? And maybe topiramate drug help with those who have epilepsy.. Did it actually help u with pnes? And how much dose do u consume?
@pandatortoise559
@pandatortoise559 5 ай бұрын
Topiramate was horrible for me was fine on very low dose but when i doubled i took more seizures, I'm glad it's worked for you!! I'm now on amitriptyline and my dose was upped from 10 to 20mg and I had another seizure not long after this. I wish I could find a way to stop this. I'm so happy for you! Wish you all the health in the world.
@pandatortoise559
@pandatortoise559 5 ай бұрын
​@user-ok2uu5gd8x not for me unfortunately but everyone is different. What is your treatment now if you don't mind my asking.
@yellothere5552
@yellothere5552 Жыл бұрын
I'm so pleased to see your inspirational talks about this horrendous pnes.... thankyou with all my heart ..I was told was sycolical...I always thought I was nuts...so I never told anyone as was so imbarraraced...im going to ask my Dr to re book me n get some real help!! Ive had this condition 24yrs plus ..its got worse having up to 7 seizures daily n sometimes none at all im somtimes unconscious..physically fitting n smaller ones just unable to respond n uncontrollable strength..fighting off my family whom are helping...its so imbarracing!!......im willing to take an antidepressants if can numb my brain...has to be worth a try!..debbi vasileiouxxxx thankyou
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Glad to hear that it was helpful to you
@pagalmasala
@pagalmasala Жыл бұрын
I have focal seizures in both temporal lobes, several times a day. The medicine is not working and tend to cause me to become anxious, which tends to make them much worse at times. It’s a vicious cycle.I just came back from hospital for pre-surgical testing. The neuropsychologist will be visiting with me in a couple of weeks to do cbt as part of pre-surgical protocol….they said I have cortical heterotopia in several spots…I also happen to be a forensic psychologist (MS degree)! Stress from work makes it worse at times…
@goddessvibes2345
@goddessvibes2345 4 ай бұрын
I have focal seizures. I lose consciousness, my memory and I just freeze. Not sure which side that's from. Lately, I have been having aura like seizures that can go on for hours. Surprisingly, even though I have Epilepsy, I have been told that I could be having Epileptic seizures several times a day or it could be dissociative seizures. How did you know that you were having several focal seizures throughout the day? Did you have tests done to make sure it was Epilepsy?
@rebeccaburnheimer8225
@rebeccaburnheimer8225 Жыл бұрын
My daughter has been diagnosed with AMPS and FND with PNES immediately following COVID infection. She has been working with a very knowledgeable Psychologist with experience treating these conditions (I am also a psychologist by profession), and CBT, ACT, stress management has not been helpful at all. Her episodes are happening more and more often - over 50 episodes daily. I have been looking for alternative treatments given that her case does not appear to be due to an underlying psychological cause. EEG, EKG, Echo, CT brain have all been normal. How do we treat PNES when it’s caused by a virus?
@1jamaican
@1jamaican Жыл бұрын
Forgive me for asking but what do her seizures look like? When you say 50 episodes are you counting each seizure? My daughter will have what I call sets. A set with anywhere from 1 to 10 2 minute seizures with sleep like pauses in between.
@JuliaClark
@JuliaClark Жыл бұрын
B12 injections.
@1jamaican
@1jamaican Жыл бұрын
My daughter began taking 5mgs of escatolopram and has only had one seizure in 5 weeks and it only lasted 2-3 minutes. I hope this may help you too.
@BlessedOne686
@BlessedOne686 Жыл бұрын
Pls can u make a video on FND pls. I’m suffering from this boss. I’m only 23 and I can’t work anymore. I’m in pain a lot and have a lot of seizures. I can’t study too. I struggle with fatigue everyday. I have consistent migraines. Anti depressants were prescribed but only made things worse. I am not depressed.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Yes FND is the same as pnes. Explained in the first video
@lauramccarthy8339
@lauramccarthy8339 7 ай бұрын
It is now widely accepted that Functional Seizures (the correct term) or Dissociative Seizures are NOT caused by trauma. They may be triggered by it, but it is NOT the root cause. It would also be great if you could update the terminology you use - the words Psychogenic or Pseudo seizures are outdated and should not be used.
@marcaribe5084
@marcaribe5084 4 күн бұрын
Yes, the word “pseudo seizures” have always made me feel bad. It’s not a right term. Non-epileptic seizure is just fine. I get it, but the “pseudo” word is horrible.
@tafusmurielle298
@tafusmurielle298 Ай бұрын
excellent series on PNES, thank you!
@SuperWilbur77
@SuperWilbur77 Жыл бұрын
Hi Dr Omar. I’ve been researching Atlas / neck injuries. Can whiplash , car accidents, traumas cause seizures ? And PNES (life events , anxiety PTSD, etc ..actually mean a person is NOT an epileptic? That meds are not needed ? Seeing a neurologist and psychiatrist are a bit pricey. What should I do ? Cognitive therapy would NEVER work for me. EVER. I have. severe anxiety disorder. No going back. I can not go back to healthy coping. So I may not have epilepsy? The neurologist I go to …he’s too busy and his med assistant calls in wrong doses of medications. I’m glad I’m knowledgeable enough to catch it. Causes more anxiety ! Help
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Best to see an Epilepsy center for full evaluation and treatment.. Please review the video on causes of PNES and causes of epilepsy
@jessicah7755
@jessicah7755 Жыл бұрын
the kindle version of that book is $45? the book version is bad enough at $75 but it takes nothing to publish a book to kindle. Makes me skeptical of the recommendations.
@sunshade1000
@sunshade1000 3 ай бұрын
A bacteria infection that infection that attacks your nerves inside your body your muscles causes the nerves that are damaged to not send the right message to your brain for different reflects that happen to your body. Just like when your skin raises goose bumps you don’t do it on purpose it’s a reaction . So when your body reacts to a stimulus your nerves which are damaged send the wrong message to your brain which causes a seizure. But if you get a seizure because of flashing lights I really don’t think that is caused by stress. There are many kinds of seizure and many causes.
@wfarnhamful
@wfarnhamful 7 ай бұрын
Do you think psychedelics could aid in mental depression and seizures when microdosed?
@inoshishi8
@inoshishi8 8 ай бұрын
What about individuals that have sudden or rapidly progressive tremors that when after eating, no matter how small the portions or how healthy the food, eventually tremor so violently that violent jerking happens along with stiffness occurs to lesd to sudden drops on the foor, as a seizure occurs? What if this person is in and out of awareness with a healthy brain thats just underwent MRIs, not having any neurological cause for the seizures including epilepsy? Why does food, movement or activity, and the night time impact these seizures, especially with no known neurological causes of the violent tremors? *There's at least an individual that struggled with chronic binge drinking, sober for 1.5 months and has gone a month sober before relapse in Oct, and another month sober in Dec.
@blancaaide1993
@blancaaide1993 7 ай бұрын
Can you please talk a little more about catamenial seizures
@djjohnson1713
@djjohnson1713 Жыл бұрын
Thank you so much-needed
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
You are so welcome
@jeanward9984
@jeanward9984 10 ай бұрын
There’s many ways of dealing with PNES. I cure people who have PNES using exposure therapy. Testifying in court against your abuser is really the best medicine and it’s one of the big cures.
@memyself4431
@memyself4431 3 ай бұрын
The flying bullet points are freaking me out!
@dialysisgal83
@dialysisgal83 3 ай бұрын
I'm so sick of seizures. They are in the fence about if i have pnes or epilepsy. No positive eeg. But when i was prescribed Vyvanse from my psychiatrist for adhd i ended up in the hospital on a breathing tube. Neurologists said not to take stimulants because it increases excitability in the brain. I have thought about training a dog but honestly im embarrassed of my issues and dont like attention brought on myself. It's so embarrassing making weird noises,falling, peeing even pooping before. I am mortified that my body and brain fight me so badly. 😢And most of all i just feel crazy and useless.
@nicklo5352
@nicklo5352 Жыл бұрын
Ive only had 3 seizures in my life due to what i believe now that i stopped drinking where alcohol convulsions, would see like a huge purple light and could not see straight only peripheral vision had about 1 minute then the purple light becomes dark and pitch black would wake up tired af and with a huge ass bite on my cheek and tongue. But like i say since i stopped the drink no problem but my doc still keeps me on keppra until the neurologist clears me keep in mind i only had 3 dont remember anything but people around me knew, next thing i know i woke up in a hospital. My question is its obvious it was alcohol related why keep taking the keppra?
@muchlovegambine949
@muchlovegambine949 18 күн бұрын
I’ve only had 4 since 2020. Took keppra a for a while then stopped abruptly. Almost a year since my last seizure and I think it’s pnes because drs didn’t see activity in my scan. Now I just watch and am careful but hopefully I can undo stress and anxiety because I honestly feel that’s what started my seizure. Conspiracy part of me think it’s due to Covid because I didn’t have em until Covid was a thing but who knows. Any way good info
@juliesmith5567
@juliesmith5567 Жыл бұрын
I have seizures non seizures and mainly bad seizure in and out where everywhere I am ambulances here and there busses are helpful had few on them and home in street and plus it terrible the hospital are on it always
@Decentkitty
@Decentkitty Жыл бұрын
I love your videos but could you please do one on seizures due to late stage Lyme disease? Or do those count as this type?
@desertdreamsmassage
@desertdreamsmassage 6 ай бұрын
I have Lyme as well. PTSD. DDD and 3 strokes. This is so rough.
@micheldawnsummers1452
@micheldawnsummers1452 Жыл бұрын
I’ve been told I have these, but I don’t suffer from anxiety or stress and depression, so I’m baffled, these seizures wake me from a deep sleep in the night, and can have around 5 or more a night, I only have them when sleeping or at rest, I’ve been struggling with these for the last 4 years and fed up of my dr telling me I’m telling lies and it’s not happening as no one had seen me, I live alone, but the last year I have been hospitalised twice, even though my dr told me they would send me away if I went, strange as it was drs that sent me to hospital, since been told what I’m suppose to have I’ve had no further help or follow up, the only thing I’m fed up with not depressed is all the pain I’m in due to fibromyalgia, arthritis and spondylitis,
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
Have you had a spinal tap? Have you been checked for brain inflammation? If all else fails ; long COVID and sleep apnea are the next investigatory options.
@micheldawnsummers1452
@micheldawnsummers1452 7 ай бұрын
@@ThisIsForDrew no I’ve not, only tests I’ve had are mri and eeg , I had a brain aneurysm burst 10 years ago which nearly took my life but still my drs are not bothered, they just want to fill me with pills and talk about my past and anxiety that I don’t have, I’ve not started getting a sudden jerking movement that just lasts a few seconds a bit like a tick looks, doesn’t go into a seizure but starts the same, I’m absolutely drained
@EstherHughett
@EstherHughett Ай бұрын
Just found out I have non epileptic seizures along with my epileptic seizures, which I had since I was a baby. After my right temporal lobectomy my bigger seizures became controlled. I started having jerking episodes almost 10 years later. My neurologist thought they were simple partial seizures awareness and impaired consciousness. After I showed him a video of me having a jerking spell he said they didn't look epileptic seizures because they lasted longer and my eyes are closed. I want to get off all my medicine to see if the brain surgery cured my epilepsy. I'm looking for someone who does Cognitive Behavioral therapy as my neurologist from the University research hospital told me to do. Can going off all my meds show if my epileptic seizures were cured even though the side effects will always be there. Things like memory loss, word finding, emotional lack, and other functions that come from the temporal lobe. And yes, I do have chronic PTSD.
@melissacole540
@melissacole540 Жыл бұрын
My daughter has been using neurofeedback and it has helped, as her PNES is not trauma, but rather brought on by puberty. Is there any research on this treatment as I have spoken to a few mom's who have noticed its success for young teens.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Many therapy techniques can help... Not necessarily a trauma is the cause like we explained in the cause of PNES video
@vincentmcgarry3598
@vincentmcgarry3598 7 ай бұрын
I had a seizure once 4 months ago.Put on keppra,wake up sometimes with headaches,get drowzy after a 30minute walk.Need to get off these meds,doing more harm than good.
@ImpKnt80
@ImpKnt80 6 ай бұрын
Look into NAC and particularly augmented NAC online. It should help.
@ImpKnt80
@ImpKnt80 4 ай бұрын
Nicotine patch 7 mg daily 24 hour patches for 14 days to one month. Removes spikes from central nervous system ace 4 and ace 7 receptors.
@jeremiahmason5183
@jeremiahmason5183 Жыл бұрын
I was shot at the age of 15 and I almost died the Lord Jesus Christ saved me and I am very thankful but it kinda freaked me out and now I have seizures sometimes is there a way that I can relieve stress at home?
@tinaferreira75
@tinaferreira75 11 ай бұрын
Hi Dr.Danoun My 30 year oi can getld daughter with Kabuki Syndrome was just diagnosed with PNES. Curious if her syndrome may of been the underlying trigger? Very new to this just deep diving into as much info i can get.
@jennymills5644
@jennymills5644 Жыл бұрын
Hello! Is it possible to have partial recognition or memory of a seizure with epilepsy or is that generally for PNES ? When i have my events they start with aura then one part of body shakes until eventually all is shaking. I ca. Hear people sometimes talking or know I'm shaking but can't control or respond. I've also wet myself and bitten my tongue.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Please review the video on diagnosis of PNES. It has all the different types
@Rainbowqueen500
@Rainbowqueen500 Жыл бұрын
i have PNES, my seizures always start when i am asleep, and if i am laying on my right side. i have also bitten my tongue so bad before and i have bad mouth ulcers after this.
@kirgise88
@kirgise88 Жыл бұрын
So basically, if you're diagnosed with epilepsy and treatment does not bring any improvement, you may have PNES. But if you're prematurely diagnosed with PNES and psychotherapy has no effect on your condition, you may have neither PNES nor epilepsy after all. There are conditions that mimic both. Since it's impossible to prove that you actually don't suffer from PNES, doctors may leave you hooked on that and label you as immune to treatment. In my experience psychologists and also neurologists have never even heard of these other causes for seizures. You need to go find a migraine specialist to be sure!
@stellamontillo7055
@stellamontillo7055 Жыл бұрын
Amazing info.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Thank you
@toriemmap
@toriemmap Жыл бұрын
I’ve found your videos about PNES really useful! Can I ask, what treatment can be useful if there is no depression/anxiety/ptsd? And no trauma? I ask as I am in this position. Told it’s likely I have PNES in November. I stated having seizures days after a head injury. Brain scan showed prominent perivascular spaces which they think is from the head injury. I haven’t had any seizures now for 2 months. I had a week of them coming back after day 5 of being completely weaned off keppra but since then nothing. They are keen for me to try CBT which I am happy to do (i had it years ago after being anxious to leave my baby and it was amazing) but I don’t see how it can help when I’m in a good place and haven’t any worries or trauma that need to be shared?
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
CBT helps PNES.. regardless of the trauma or situation
@akshaychaudhary7826
@akshaychaudhary7826 Жыл бұрын
God bless u sir❤
@PeytonWhite-i2r
@PeytonWhite-i2r 11 ай бұрын
I can have up to 50 seizures a day! Doctors don't know what to do. Meds don't work well. I need a GOOD doctor but i live in Ca. I have no Insurance. Can you help me please!!!
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
I can. Why don’t you sign up for Medicaid as the bare minimum? Do not use Accountable as an IPA. Have you tried Keppra? Have you been consistent ? Are you sure 50 a day?
@tarawinbush3106
@tarawinbush3106 8 ай бұрын
Hi doctor I recently had a seizure I have not been diagnosed with a seizure they believe that it is a seizure I had my first I like seizure February 1 and my second life seizure fed13th both happened while I was traveling on the bus and I had déjà vu like thoughts and I also bit my tongue I woke up confused and crying I have recently i've been dealing with hardships I lost my vehicle and a lot of stress I am diagnosed with depression PTSD and anxiety and I also have been having problems sleeping for the last past three years due to my mother's death both my MRI and my EEG came back normal my doctor has me under observation for three months to see if I would have another seizure Dr. can you please help me with this I don't believe I'm having seizures I believe it has something to do with PNES
@davidtoney8399
@davidtoney8399 Жыл бұрын
The pro THC crowd always talk about using marijuana to fight seizures. Will this help with PNES, or does it run the risk of making it worse by not learning a coping skill? Secondly, is nausea and vomiting common before seizure activity with PNES?
@vannevers
@vannevers Жыл бұрын
THC made mine worse because a lot of THC has the terpenes that increase anxiety/panic chances.
@davidtoney8399
@davidtoney8399 Жыл бұрын
@@vannevers thank you
@kiccole1152
@kiccole1152 Жыл бұрын
Is there a difference between non-epileptic seizures and PNES. I cannot find a video about NES, but my understanding is that PNES is one type of NES.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Yes pnes and nonepileptic seizures are the same. Review the first video in the series we talked about that
@mironasar5205
@mironasar5205 9 ай бұрын
Sir I am twenty four years old and it has been almost one year I have seizure every three months the seizure lasts about twenty to twenty five minutes after regaining consciousness vomiting starts a few days after the seizure I have EEG. It was done and she came back normal. Are these seizures non-epileptic please tell me
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
How does it start? You should be tested for brain and spinal cord infection/inflammation? Were you?
@shannonmccarty906
@shannonmccarty906 9 ай бұрын
Dr please help me i believe i had epileptic and non-epileptic. The epileptic has been treated with two brain but trying to get a neurologist to say that a non-epileptic seizure is possible is been a little tricky any I would greatly appreciate?
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
You don’t have PNES. You have petit mal seizures that don’t present as epileptic in nature. Generally (not always) this means the seizure disorder itself is either in its infancy, or rather of the less severe type. What kind of medication have you tried; and were you consistent on taking it?
@Spacecadet499
@Spacecadet499 10 ай бұрын
Why is no one monitoring me after my diagnosis I’m in nyc and I haven’t had much help and so many contradictions and told me it wasn’t real at first .
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
What was the diagnosis based off of ? What insurance do you have HMO or PPO? Have you tried Keppra consistently?
@Kraftedbykaycee
@Kraftedbykaycee 22 күн бұрын
I have a question, i am being told that i have pnes but my symptoms dont match . I have been in cbt for almost a year and still having seizures, i dont overthink, im not anxious or depressed. My symptoms are i get auras before I have a seizure. Like i will start seeing the outline of an object beforehand and i also have severe pins and needles in my entire body. I have violent seizures, sometimes they are mild, i lose consciousness from having seizures. I immediately am thrown into a violent seizure when i see strobe lights or flashing lights, and have suffered multiple injuries due to falling. I need help, does anyone else experience these symptoms?
@duncanramsay9262
@duncanramsay9262 11 ай бұрын
I have been diagnosed with this problem but i don't shake but i feel like im kinda leaving my body with strange vision problems. Is this pnes?
@elaineclark9655
@elaineclark9655 2 ай бұрын
I have epilepsy and non epictic seizures I'm on medications but they don't seem to be working
@PSh-r3i
@PSh-r3i 5 ай бұрын
I had 2 seizures 9 years apart no epilepsy?
@mirlenelouis7716
@mirlenelouis7716 4 ай бұрын
How about how about if the person also focal seizure in the left size of the brain? PNES as well?
@elaineclark9655
@elaineclark9655 Жыл бұрын
I have epilepsy and have non epictic seizures aswell
@PowerpopgirlAndrea.marryJanema
@PowerpopgirlAndrea.marryJanema 9 ай бұрын
PNES,IT is happen to 9 year old child?
@belindahonyango2469
@belindahonyango2469 Жыл бұрын
Hi, I'm going through the same situation because I do have seizures while sleeping I don't get to know what happens exactly coz after that I loose my memory for hours and wake up with this serious headache for hours. It doesn't happen everyday it occurs once in a month, two months or even three months. It started in mid 2018 I tried to get help but the doctor I reached out to placed me on antidepresants yes I seemed to be okay while taking them but it brought another problem with my heartbeat and my blood level and I had to visit the hospital on a weekly basis until the doctor adviced me to stop taking those drugs. Until now I don't know how to or even where to get help.
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
Are you sure you don’t have a migraine disorder?
@Cineenvenordquist
@Cineenvenordquist Жыл бұрын
Desiderata: At the end you appear to gesture towards a linked video inset about seizure mimicking events, but I don't see it on the YT app on mobile.
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
I just checked and it appeared at my mobile. The video is named "You do not have epilepsy" you can find it in the channel
@soumiamoujane3695
@soumiamoujane3695 Жыл бұрын
As I've been refferd to an epilepsy centre by my neurologist to see if the siezures I have been having are PNES. And the doctor in charge of my care said that most of the siezures I have been having during the recordings are PNES. Does it mean I could have CPTSD and PNES
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
They can come together but separate diagnosis
@andreatorres2634
@andreatorres2634 Жыл бұрын
I'm not trying to be a downer, but when you have crap insurance it's not that easy lol NO ONE WILL HELP YOU! I've lost my job due to all of this and I have no clue how this all started, It came out of nowhere . This appeared 4 years ago and hasn't stopped. As a matter of fact, they are getting worse and feel like i'm in psychosis. I'm actually terrified 😪 It's not this easy..
@rrdutch4111
@rrdutch4111 Жыл бұрын
I was about to comment the same; 20 years losing jobs and my DL trying to disprove my DRs. on their incorrect diagnosis’ and pill pushing for epilepsy; just recently heard about PNES. But like alternative treatments, they are uninterested in an alternative diagnosis that doesn’t put money in their pocket. Im canceling my prescriptions and health coverage soon due to the sheer lack of coverage and unaffordability; there are better alternatives out there, herbal, spiritual, or otherwise. If people have to be slaves just to get basic medical care and survive, sovereignty and potential death are risks I’m willing to deal with. While it’s unlikely you have the same diagnosis and medical background, I was able to reduce mine by myself. 8 hrs of sleep, sober, no fast food/no soda, basic physical activity. Beyond that, it’s a deeper mindset of submitting/ relinquishing control over things you can’t control; and refusing to submit/agree to anything that threatens or instills fear/trauma. No one has Power/authority to dictate our lives; even God gave humanity free will. The last time I had a seizure was during lockdowns; I was told if I broke quarantine I could be arrested. my doctor and the government abdicated their authority; the only power and authority they have is what society gives them. Changed my mindset; they have no authority… Haven’t had an episode since. Hope things work out for you✌️
@kcluvznf
@kcluvznf Жыл бұрын
​@@rrdutch4111❤
@barrywinters119
@barrywinters119 Жыл бұрын
I wish you were my Dr.❤
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Happy to be
@coffeecat086
@coffeecat086 Жыл бұрын
Was initially diagnosed with PNES, nope, friggin epilepsy. Lamictal helps some
@patricia_rs
@patricia_rs Ай бұрын
And I agree neurologists hate non-epileptic seizures hahahaha It's some of easier to prescribe the meds that are popular at the moment.
@patricia_rs
@patricia_rs Ай бұрын
* so much easier
@jeanward9984
@jeanward9984 10 ай бұрын
My exposure therapy works 100%. I have invented different ways of dealing with PNES but you have to be willing to deal in order to heal!
@jackiemorrison2916
@jackiemorrison2916 Жыл бұрын
Could you speak about PNES episodes that are similar to paralysis that last longer than an hr?
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Yes.. PNES presents in so many ways.. All the same treatment
@Cineenvenordquist
@Cineenvenordquist Жыл бұрын
That was less mechanical than expected. Righty then.
@jeanward9984
@jeanward9984 9 ай бұрын
Of course Dr. Lafrance’s comments are turned off so I will have to just call him and school him on PNES because he doesn’t quite understand it like I do. Sorry Lafrance!
@modelgoth
@modelgoth Жыл бұрын
I watched this series with great interest but was very disappointed. It feels to me like the constant deferrals to trauma are just clinical and scientific laziness. The part where the speaker attributes not getting better to issues with the "character" of the patient is more of the same with victim-blaming too. This entire series is basically telling the patient it is all in their head but trying to be nice and politically correct about it. You put the blame back on the patient, telling them to go to therapy rather than really advancing the science and finding out physically exactly the problem. It is therefore patronizing and still in the dark ages. We can do better than this. I want you to find, on an anatomical or molecular basis, what is happening to these patients, describe it, and treat it at its source. To call it "trauma" and "personality" is a cop out and practically criminal it is so unethical. It's a physical manifestation with physical causes. The body is like a machine and all parts and systems in it are connected. I think these patients deserve more and better than being sent to therapy and told to dig up their "traumas" to recover from what is a physical ailment with undoubtable physical causes. As a medical researcher and patient advocate, I am quite angry seeing these videos. Patients deserve better. How many patients are going to go through hell digging up inconsequential past traumas while something like a rare mitochondrial disease or spine instability go undiagnosed? Mast cell disorders, dysautonomia, so many real and treatable potential causes. But too often patients are thrown in the "psychogenic" bin. Just because a patient has PTSD doesn't mean everything is attributable to that, and even the PTSD itself has underlying molecular mechanisms that can be targeted. But the medical establishment, so entitled to its own ineptitude, puts the burden back on the patient by sending them to psychotherapy and blaming it on their "character" if they do not get better. I really truly think this video should be removed, if only for that part about patient "character" and personality. That is just disgusting and outrageous to have published in this day and age!
@SuperWilbur77
@SuperWilbur77 Жыл бұрын
Definitely in agreement !
@jessedaub6482
@jessedaub6482 Жыл бұрын
While I agree on some points, I think it’s useful to understand there is so much about the brain we don’t yet understand. Sad but true. I want things to advance faster too, on behalf of my spouses quality of life and wellbeing, but as a caretaker I am 100% on board that MANAGING the disorder is the best course of treatment. Is it scientifically perfect no. But most people who suffer from this do have known causes rooted in ptsd, tbis, and family dysfunction. Take away the triggers and symptoms improve. Also, it’s important to understand the actual cause of the seizures is rooted in this physical injury that these psychological disorders cause. So, the research certainly needs to advance, but would likely expand to include the scientific biological cellular molecular trauma the brain has endured, and how to correct. There is no magic pill, the science just isn’t there yet unfortunately. I pray it will though and your frustration is valid. I wouldn’t call it criminal when this doctor is just trying to do the best with what we have today, at this point. ❤
@courtwright227
@courtwright227 9 ай бұрын
Are you a Dr? What education or experience do you have to say these things?
@rachellady4635
@rachellady4635 9 ай бұрын
​@@courtwright227they probably have PNES 😂
@JonathanGonzalez-jz4td
@JonathanGonzalez-jz4td 8 ай бұрын
How are you saying this to a doctor … he knows what he’s talking about and I find his information extremely helpful and don’t feel he is victim blaming at all. More like saying to take accountability , anyone dealing with trauma or struggling with their mental health is probably advised to see a therapist. I sure as fuck need a therapist. I started having seizures when I was 27 years old due to messing around with drugs and alcohol too much and they are considered “provoked” seizures, however even after stopping messing around with cocaine and alcohol I still had a few seizures and my Neuro doctor got me on anti epileptic medication ; how ever he said it’s very clear I don’t have epilepsy. They are non epileptic seizures. This man is a doctor and knows exactly what he’s talking about ; and just because you don’t appreciate what he’s talking about doesn’t mean you should be malicious and hateful. He’s helpful and loved by many and I personally love his videos and find him to be extremely helpful and therapy is something everyone should be open to. Facing past trauma makes you strong not weak. This man is a Neuro doctor and knows exactly what he’s talking about. What credentials do you have to discredit this man?
@jeanward9984
@jeanward9984 10 ай бұрын
I want to give people the answers for free if anyone is interested? I am aware of the different types of PNES! I am here to help!
@mommerang
@mommerang 4 ай бұрын
This video is full of references to trauma, yet in your video about the causes of PNES, you clearly stated that 50% of the time, trauma is not the cause!
@sirinebehloul4799
@sirinebehloul4799 10 ай бұрын
I don't have enough money to go to a therapist :(
@sirinebehloul4799
@sirinebehloul4799 10 ай бұрын
Especially because in our country it's soooo expensive
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
@@sirinebehloul4799what country ? Therapy is useless anyway ; it’s snake oil.
@autimarie
@autimarie Жыл бұрын
As much as I appreciate your videos, I cringe at how casually you use the word "rape." Might I ask, please reconsider this word choice or at least put a trigger warning before your videos 🙏 This survivor would be ever so grateful 🙏
@stellaancimer8505
@stellaancimer8505 Жыл бұрын
Brain loves ketones 😊
@ThisIsForDrew
@ThisIsForDrew 7 ай бұрын
Stopping carbs cold-turkey can trigger seizures. That fad diet is dangerous.
@kisalaurence6177
@kisalaurence6177 Жыл бұрын
How about CBD ?
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
I don't think it helps but discuss with your neurologist
@environmentaldataexchange3906
@environmentaldataexchange3906 7 ай бұрын
Are you supposed to put your wallet or theirs in their mouth?
@jeanward9984
@jeanward9984 10 ай бұрын
The best therapy is confronting your abuser in court or in a safe environment and talking about the abuse instead of pushing it way deep down inside. It’s the same principle as people who can die from grief. Grief can manifest itself physically and we already know this! Duh!
@michelleboyer1950
@michelleboyer1950 8 ай бұрын
Ahhh!, Workbooks! Why?! Non-Epilectic Seizures are Still SEIZURES! PLEASE DON'T GIVE HOMEWORK! Please, stick to CALM! 😊
@rravie8106
@rravie8106 Жыл бұрын
What is your address
@citlalie9791
@citlalie9791 Жыл бұрын
That rape joke was so unnecessary
@jeanward9984
@jeanward9984 10 ай бұрын
I disagree! You shouldn’t treat a mental suppression problem with mental suppression drugs. I have seen it make the seizures worse!
@salahfulmor9458
@salahfulmor9458 Жыл бұрын
Seizures
@rravie8106
@rravie8106 Жыл бұрын
What is your address
@DrOmarDanoun
@DrOmarDanoun Жыл бұрын
Google me and you will find out my clinic information in the USA
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