♿ New Wheelchair Gadgets & SmartDrive Repair! 🔧 (3/23/18)

[@FunsizedStyle]

I absolutely LOVE all of your wheelchair accessories!! ♡

[@gordenwood7853]

FunsizedStyle That is a bright wheelchair she'll never get lost in the fog or crowd.

[@williamodonovan5490]

Cool wheelchair stuff I,m a wheelchair break-dancer

[@marlonwatson3588]

instablaster

[@angels_up_in_heavenxx8365]

Rip jaquie sleep tight warrior

[@Youtube08T]

angels _up_in_heavenxx I’m literally crying rn I miss her videos and her 😢🥺

[@savannahmarano4552]

I don’t comment on videos I watch very often. I just don’t feel the need to at times because not many youtubers reply to the comments if you take the time to type a comment, so I guess that’s just why I don’t comment. But I have been subscribed for you for a few months... and I absolutely love your videos so much because it shows that your not fake, you don’t sugarcoat things, etc. I’m 16, but I have a shunt in my head because I had hydrocephalus as a baby, which caused me to have Cerebal Palsy. I don’t have it as bad as others, even though I’m 90% independent there are a few things I cannot do. I love to watch your videos because it gives me inspiration that I can do anything! Even though I do understand what it’s like to have a disability and have your “off” days!! I get headaches when the weather changes to fast, I get super nauseous often, etc I still struggle sometimes and want to give up but your one of the vloggers that give me motivation ❤️❤️

[@ChronicallyJaquie]

I'm so happy to have your support here! I also try to get back to comments but some days it is tricky. Keep being awesome!

[@VulcanOnWheels]

I had hydrocephalus as a baby too. I actually still have a drain behind my left ear.

[@savannahmarano4552]

Chronically Jaquie ❤️❤️ I completely understand it is very hard at times!!

[@Bananas904]

My shunt is behind my right ear.

[@fridab1952]

OfficiallySavannah I had Hydrocephalus as a baby, never got a shunt so doctors still say I have Hydrocephalus! Last time I got super bad headache doctor put a 💉 into my spine to drain out fluid while I was awake!

[@emma_in_mn]

Pink spokes !! Made the chair look so different ! Love it

[@selenaroz9318]

I have a question, how does Harlow react when he sees that you're not feeling well such as vomiting?

[@rayofsunshine091]

Loving the personalization you've done to your wheelchair!

[@LilMissEmo24]

Your wheelchair is looking pretty snazzy now I love it

[@purpleangelwings6579]

Oohhh by the way love the pink and purple on the wheel chair !!!! 🍇

[@jaysonbickel671]

Miss you Jaquie 💔

[@honeypotsandstripes6910]

Your wheelchair looks so cute! As someone considering a wheelchair for the future, I was wondering why you chose smartdrive on a manual chair instead of a power chair with a joystick? Was it an insurance problem? Sending love and prayers your way while you recover after your G Tube nightmare!

[@ChronicallyJaquie]

I wanted to remain as active as possible, so I wanted manual. But could not propel well, so power assist was a great compromise. We also had no vehicle to accommodate the electric WC plus I feel more flexible with travel with a manual. Personal reasons, and everyone is different (:

[@honeypotsandstripes6910]

Chronically Jaquie Oh, that makes a lot of sense! I guess I forget to remind myself that everyone is different. My team and I talked about electric chairs because my shoulders so frequently sublux and dislocate but they're expensive. So I guess I got a little caught up in "Well if other people can, why can't i..." but we have to listen to our bodies! I do think that was a good compromise, thanks so much for the very helpful response! I'm so happy your chair works for you! Another tool in the tool belt :D

[@TuggerAbbey]

That is what I want because I am too weak to get a power chair out of my car and I cannot accommodate a lift on my Prius. I hope to get one like yours. I have the service dog organization coming for my home check today and I am overdoing it and know I will regret it tomorrow!

[@ZoshaFaithVlogs]

I am considering wheelchair too, so I am glad you asked this. Thank you!

[@honeypotsandstripes6910]

Yvonne Kass good luck with your home check!!

[@lexieb2446]

congrats on 100,000 subscribers!!! so happy that i can say i was here when you only had 1,000. love you!!

[@Angie-in1tt]

Your wheelchair looks so very cool. Gives me inspiration to decorate my walker. So glad you hopefully got your Smartdrive fixed & the new bracket works a lot better. I really hope the 100k live show is earlier than later, then I will be able to see it. If it’s 2pm there, it’s 3.30am here. I’m usually still awake by then & finally fall asleep between 4-6am.

[@ChronicallyJaquie]

I think it's a great idea to personalize our medical tools if it will make us happy! We have not yet determined the start time but the stream will be saved so you may rewatch it (:

[@Angie-in1tt]

Chronically Jaquie I agree, it takes away the “metal” look. I also think it changes the way other people look at them & hopefully changes their perception of who is using those tools. That’s good about the live stream.

[@tayansophie635]

Harlow is so cute! 🐶🐶🐶

[@sara_2535]

I have a wheel chair cause my legs are parilized and it's only blue so thanks to you I can decerate my wheel chair yay I'm going to tell my mom to bye them

[@purpleangelwings6579]

So sorry your having a rough day .... Just a random thought ... Have you ever considered getting your hair cut shoulder length ...sort of a change for yourself and something new ....🌹 .... Praying tomorrow is a better day .

[@ChronicallyJaquie]

I actually really like my long hair (: Don't like it short

[@purpleangelwings6579]

Chronically Jaquie .... I do too ... It was just a random thought 😉

[@mamabear8565]

For my hair type, the shorter it is, the harder it is to manage. I'm letting mine go to all natural. :)

[@catherinel2288]

I'm so glad you asked Harlow what she thought about your wheelchair. She was hovering and wanted attention,. Sweet puppy. I'm not as big of a fan of pink like you are, but I think the pink and purple on your wheelchair looks AWESOME! I'm glad there are accessories that allow you to have some fun and color.

[@mczbows5783]

I'm in a wheelchair also and I use straws from the dollar store instead of spoke skins. It's just a cheaper way to decorate.

[@ameliabediliaa]

Mcz Bows that's super smart!! Might use that

[@joanmcgilton5148]

I have chronic pain and have not been able to walk for 4 years. I went to my pain management dr. There finally going to help me. I’m going to get a stimulator and a pain pump. I’m hoping it will let me walk again. My husband pushes me in a manual wheelchair which doesn’t get me much life because I have to depend on him to take me places. I think a power wheelchair would be better so I can go where I want when we go shopping. But there quite expensive. It would be good if my wheelchair could expand to reach the counter where I could help cook. I miss doing things like that. But it’s not easy when you constantly hurt. Just hoping in the next few months I get some quality of life back.

[@yvetteharvey2474]

I’m new to your channel, it breaks my heart to see you hurting, but I also see you’re a fight, I have a transgender daughter whom is in a wheelchair and you are definitely an inspiration. I just want to let you know that you are greatly appreciated and loved by many people, myself included. I will be following you and I will tell my daughter about your channel. May God continue to bless you and your family.

[@purpleangelwings6579]

Now all you need is some glitter and your good to go girl !!!!! Lol 🍇🍇🍇

[@curdiousowo2797]

Purple Angel Wings yess

[@ugneneverdauskaite4581]

Hello from Lithuania 🇱🇹 your wheelchair looks amazing love you ❤️

[@sorchaoreilly2633]

Wow I did not know these accessories existed! That would save me spending lots on fancy wheels. I'm in Europe too so it's good to know I don't necessarily have to order from America which could cost lots in postage and taxes!

[@Littlenavi]

is that the neon pink colour from tilite? I am considering getting it if that's it.

[@TORITHEGUMMYBEAR]

I'm starting the process to get a custom wheelchair and I am so excited! I know it'll take a while, but I know it will be well worth the wait! :)

[@TORITHEGUMMYBEAR]

I'll have to look into getting wheel covers as well!

[@ChronicallyJaquie]

Best of luck to you!

[@TORITHEGUMMYBEAR]

Thanks Jaquie!

[@ZoshaFaithVlogs]

That is so cool getting a custom wheelchair! Good luck Tori!

[@sabrinanicolesanez]

How do u go about getting one? Did ur Insurance cover it? I have Medicare and I think they only cover standard sizes and i need it custom to fit me and my home

[@cortleighluxenberg6175]

What is your friend channel who’s traveled with you before?

[@CrystalMouse1]

I ordered the exact same ones yep we had to sign for the package from Lithuania lol. They are awesome but get grey from grime quickly. So a quick wash helps

[@VulcanOnWheels]

2:21 Sounds like a good thing to keep in mind. 4:28 I've never heard of them. 4:37 Nothing new there. :)

[@papayaflavoredair]

I'M SO EXCITED FOR YOUR LIVESTREAMMMMM AHHHH 😁😍😁🤓

[@crystalmcmurray9181]

Your chair looks amaizing. I am praying for you as always and hope you get to feeling better soom.

[@Kez_abi]

You could see how much you picked up in this vlog. You are great keep up the amazing work if you can x

[@helenea2231]

Jacquie i love your Wheelchair I wish my Wheelchair was pink , but know make my better & add helpful tools to make more helpful & pink Thank you for Teaching us & i like all show us Goodnight Love Prayers God Bless 💪👍🌸💕🐾🙏🙏🙏

[@ZoshaFaithVlogs]

It's so cool right?! I wish mine was too!

[@Zoawesomeshowjumper]

The live stream is one of the best bday presents ever

[@bethanypascoe8182]

I like that you leave your mistakes in. It makes you seem more human!! Hope you feel better.

[@airida3269]

i'm from lithuania

[@ChronicallyJaquie]

That's cool, my pushrim covers may have passed you by! 😉

[@behappy1266]

You’re so strong! Love you and Harlow! { p.s You have AMAZING new accessories for your wheelchair! }

[@PrismYuuzuki]

Did you hand paint the frame in your wheelchair or was it already pink and purple?

[@kaylastorystrab]

She can’t answer she died ☹️

[@jessthehorsehorse6619]

I love the wheelchair!!! This whole week has been a bad P.O.Ts week for me and I have passed out too many times😭 but your videos cheer me up and remind me that all of us P.O.Tsies fight together!

[@mayrabojorquez5687]

What size are your wheels not sure what size to get my pushrim covers ?

[@Cosmicsurfpro]

Look like 24 inch wheels

[@kalievans7818]

Hi have you thought about making the cards to give to people that are interested in you but you don't have time so you can give them a card that has your KZbin and social media so they can follow you journey

[@ChronicallyJaquie]

I have some just for Harlow, but I do want to make updated ones (:

[@EmilysLifeOnWheels]

This is my favorite thumbnail ever 💘💘💘💘💘

[@annabailey2206]

Miss her

[@martsy9522]

Omg Jaquie you're so inspirational! Keep moving forward! 🤛👍💪

[@cutepumpkin4744]

Wheelchair looks awesome

[@rmjames83]

I don’t know if u can do it with the wheels you have, but have you looked at “natural fit”/“natural fit Lt” rims? These are ergonomic push rims-they are brilliant for us that fatigue, but also most importantly, those of us that have hand issues-it makes it easier to push, cause the rims fit the hand better-more motion from each push! Highly recommended!!!!

[@GodisGreat-p2s]

Can I ask do you have a link for The spoke guards? I know you said Amazon but wondering Is it a specific company

[@tracymaddocks80]

Hi am thinking of getting a new chair. Can you tell me do your arm rests flip up or just swing out?

[@fantasygirlstudio4659]

She can't answer you anymore hun. Jaquie is no longer with us.

[@tracymaddocks80]

Fantasy Girl Studio sooooo sorry xxx

[@fantasygirlstudio4659]

@@tracymaddocks80 She died back in Apirl 2019

[@natalieramsey4727]

Now you just need a pink skin for your smartdrive!!

[@savannahballard5786]

Jaquie what do you do when your disability resources for class don't seem right? I have DRC letter but one of my clinical instructors is not accommodating me well and I don't want to make her mad by telling her I don't think it's fair...

[@ChronicallyJaquie]

Just have an open conversation, not accusatory. They probably don't even realize it is not working for you. Advocate (politely)! I usually bring up issues to the prof first, and then go to the disability coordinator if needed.

[@psychedforlife7176]

Savannah Ballard you should go to the college ADA office that helps students with disabilities. They are there to help advocate with you.

[@hannahmariellewellynllewel7128]

Just got watch this on way to Jehovah kindom hall to Atlanta ga watching this can be live I miss this video yesterday I just saw it on my KZbin hi to u hope you get feeling better soon keep moving forward hi juqie and jude and pup hardlow I will try to upload a video today

[@wt0416]

Hippo is soooo cute when she's near u and her face is too adorably cute

[@lazydays7470]

If you have trouble with nausea you might consider trying candied ginger. I know it works for motion sickness, and my wife has frequent nausea due to medications she is on and sometimes her anti-nausea meds don't work but ginger does.

[@yardenamarri4585]

Did you get your smart drive through insurance? I have mito etc too and live in Tampa bay and am have a terrible time with the wheel chair company even though my dr filled all the papers etc for it. So frustrating

[@mystiplant7874]

Keep staying strong jaquie. Love your chair so much

[@amandawroten]

Jacque have you looked at flex rims. I love mine and it’s not only easier to push but less finger dislocations.

[@rebeccarogers7983]

I have a service dog for something similar to what you have i have been subscribed for almost a year and i love your videos my name is Rebecca Rogers and i live in AZ and i would love it if you replied to me and can i please have a shoutout my bday is March 29 it would mean the world

[@TuggerAbbey]

I love Teal and purple together or Teal and Pink!

[@andrewnorgrove6487]

Next time you get an led out just move the broken on to the end of the line ! as for the wigerling of the drive it's what they do due to the poor designed and rubber wheel placement ! it's made that way so they make more money geven the need to replacing small rubber wheels Which are expensive !

[@leokarim1148]

Hi i love your vid ❤️❤️❤️❤️❤️❤️❤️💙💙💙💙💙💙💙

[@margiecarter2096]

I was thinking of you and your family and dog

[@BookerC3]

Ever thought putting a camera on Harlow. Puppy cam 🐶📹🐶

[@Ademann]

Look at AGIAX WAVE! There is a nice wheelchair light!

[@sherrywilliams9256]

Where do you get all your cute leggings?

[@mamabear8565]

Pimp My Ride! LoL It looks FABULOUS!!!

[@monicauyeno7368]

the wheelchair looks really cool!

[@ChronicallyJaquie]

Thank you! :D

[@CandyRox3000]

pink is the best color!!

[@saphiaer]

Ummm your wheelchair fully kitted out looks so mad ???

[@hannahmariellewellynllewel7128]

Hope u get see my new upload videos from last night on my channel

[@alyssawssinging4039]

Hey jaquie what do u use to edit and upload your viedos?

[@gracegracegracegracelewis4852]

Are the 52 dislikes people who are cold and heartless? If so, please have a change of heart

[@annazakrzewska3125]

I really like how your wheelchair looks now! 😁

[@deesmith4549]

I LOVE your videos sooooo much. I have a rare disease called Friedreichs Ataxia and it isn't easy. But you inspired me to live...And start my own KZbin channel. Thank you Jaquie xoxo

[@joleda56]

What happened to Harlow's eye??

[@ChronicallyJaquie]

Nothing? I do not know exactly what you are referring to. But, she has allergies that cause tear stains. During various times of the year it gets better and then a bit worse again, but it does not effect her eye sight at all.

[@joleda56]

Oh Jaquie- I was just asking because in the shot of her behind you by the wheelchair her right eye I think looked like it was smaller than the other one that's all. I know about the tears- just looked too closed. Maybe it's just me. Happy Saturday!! Love watching your adventures!

[@ChronicallyJaquie]

Oh sometimes, depending on the camera angle, it can make her eyes look odd. I have noticed it on a few vlogs too. Or, she was sleeping in a way that smushed her skin up and it hadn't fixed itself yet lol.

[@brooklynhottii]

What is the name of the fold down handles?

[@LittlewolfyM]

I love you and your dog you are the best KZbin I really want to meet you

[@jillyoro]

Love how your chair worked out

[@RunYourDog]

What size band do I need with the Smart Drive bracelet? Your amazon listing has a few and I don’t know which mm I need. Thank you!

[@SnowySpiritRuby]

She states the size in one of her other videos in the wheelchair playlist (I forget which one, but it's there) - it's 18mm.

[@Ozzie4Para]

The wheelchair shelf looks pretty handy. It looks like it would be a great place for my 9mm protector. I clicked the link but there's nothing there.

[@dinahakim7114]

I love the pink jauquie

[@jessicanoble5944]

I love the new wheel some covers and group bar cover. They look sooo good and definitely will look awesome after you get the replacement string of lights for the other wheel. Btw that food looks so good. Your coming always makes me hungry which is a rare thing for me lol

[@sketch__5972]

Glad I saw this instead of spray painting.

[@muratcelik9241]

👍👍👍

[@SierenH]

I need rhose in purple

[@darveystrozier4780]

Cool wheelchair

[@Cairniverse]

Ah I just ordered red ones for my chair I’m well excited!!!

[@taramason2]

Your wheelchair looks awesome. Once again congrats on 100k subscribers. Can't wait for your live stream.

[@Lyn4817]

Simply love your wheelchair. I was pleased to find out your Smartdrive and tracker is available in my country, Australia. You will like this, the custom built wheelchair which is the T5 Ultra, is called The Jaq, downunder. I don't think that is a coincidence. I have currently got an offer enquiry in for pricing. Unlike the States, it will probably be all on us for the cost, even though we have private health and to date, I have never claimed any assistance for mobility devices. Thank you so much for sharing the information on your chair. Without you, I wouldn't have known it existed.

[@arianalucas9985]

What do u us your wheelchair for

[@bethanyd2046]

Hi Jacquie, we really appreciate the honesty that your videos provide but if you don't feel well enough to film, please don't push yourself too much or overdo it! By the way, I have my rental chair this weekend (TiLite w/ Smart Drive) and had my home assessment on Friday! My chair will be ocean blue metallic with blue spokes!

[@p0pRouge]

I wanted to let you know how much I’ve used your wheelchair videos. My mobility specialist and I even referred to your videos when making my own choices. Unfortunately the VA won’t pay for the smartdrive, but they are getting the twion wheels like you originally had. Thank you fellow zebra, hope you’re doing better.

[@annadaneshhiremath7394]

Hi I'm also how can.........

[@Mystery001001]

I've missed you Jackie!!!!I have been in the Hospital for 3 weeks, oddly enough i started to have medical issues.

[@rebekahbridges-tervydis5054]

With Harlow standing behind...Harlow looks about the way you describe the way you feel! Poor babies!

[@izzyelias1063]

I just got home from a trip to Tampa. I missed this video because it was posted on my birthday and I was out all day on the beach. Just wanted to let you know, you are my inspiration. I have had terrible stomach aches for about a year now. I’ve lost 15-20 pounds from appetite loss and finally told my doctor about it. I never would’ve done it if u hadn’t watched your videos. Thank you ❤️

[@MSnikkydreamsbig]

Hey, the same thing was happening to my smart drive. Tighten the screw but also check the rubber ring on the inside of the mount. Replacing that fixed the problem :)

[@wheeliegirl1630]

My wheelchair colors are black and red. My chair is black, and my wheels are SPOX, with red spokes. My push rims are getting scratched and nicked so I was happy you shared links to the rubber push rim covers and I ordered red covers and a red watch band for my push tracker. I haven't received the push rim covers yet, but did receive the watch band and it was super easy to install. Thanks for all the links. '

[@phoenixmoon5580]

From a curious point of view, have you considered doing gastric drainage/venting via an NG tube and bag. It might help with the 'stomach acid build up/exit swiftly issue' until you get to the point where you are healed enough to the point where you could reconsider whether to redo the gastric button thing or not. Apparently this is something you could do yourself at home without medical intervention (potentially and theoretically!).

[@dellacooper7060]

Hope you feel better soon

[@pinkmagicali]

Yea for the colour pink. It’s cool those spoke things are so easy to take off and put on, if you get bored with the colour you can swap or mix them up. Putting the grip thing on reminds me of washing my steering wheel cover for my car. Took me like 15 minutes to get it back on. Lol.

[@Hannahorse715]

How do you see Janice and go to Disney so much and still go to college that must be hard, I can barely do my 4 classes at college

[@ChronicallyJaquie]

We are annual pass holders and I am taking one online class, so my work goes with me

[@Hannahorse715]

I see I could never do an online class good for you doing one I hear they are harder then on campus! I did to a few hybrid classes which weren't bad I am in 4 on campus classes this semester

[@seysey7849]

Last year when I gotten my new chair month laterdalater I Than.Hear n. Round out about Powerassistant 🤦‍♂️. Than it was already late Insurance. Yah know the deal