Omalizumab: Adverse effects, Mechanism, and Patient Factors

[@magicalpatterns]

I just took shots number 4. And it has been amazing. I have mast cell activation syndrome and I’m on about 20 antihistamines daily. Yes, daily. This medicine is helping me so extremely. I’m so grateful

[@victoriagoddard4617]

Same here - I have HAE ( hereditary angioedema) and MCAS , chronic urticaria and DPU ( delayed pressure urticaria). My hives are now completely controlled. I now take Takzyro , Orladeyo and Ruconest for my HAE and it’s been a game changer. After suffering for 25 years, I’ve finally found a doctor that figured it out. I have a life again.

[@maksudmansuri2524]

Please try using black seed more in diet to reduce your antihistamine usage!!! Probably I am sure you’ll get better with black seeds ☺️☺️

[@SmartyGarv]

Wow, I am also allergic almost to every other food, I am eating anti allergies and antibiotics almost everyday but no resort, as soon as I eat any sulphite food my sneezing starts and hardly any days go when I am well in a year. I also want to consult my doctor for omalizumab, but they say it's a last resort.

[@robertoneill2670]

At what age did you start having symptoms of mast cell disorder?

[@JaniceF-n8t]

This is fantastic, watching my hives and inflammation dissolve every day until it all disappeared was definitely appeasing, I went with what I mentioned and after 20 days my urticaria disappeared. I just go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!

[@talksick508]

I have hives dermatagaphisim I’ve been taking these shots I did them last year for 4 months but insurance issue Just got my second shot now But hearing horror stories and I have been nodding off fatigue out of no where and I’ve had insomnia for years Accutane ruined me I’m weary if I should not take this at all I have Sjorgens now so I can’t take antihistamines Not sure what to do anymore

[@MrMJD1978]

Suffering of some neurological issues after 2nd injection of Omalizumab. I’m in cure for chronic urticaria. Is anybody else suffering of: muscle stiffness, loss of strength on legs and hands? Memory issues are giving me troubles too. Night fasciculations are worring me.

[@kuldeepkumar-pm7zf]

Hey how are you doing now? Is xolair works for you?

[@sahilb8409]

Are you still using it?

[@MrMJD1978]

@@kuldeepkumar-pm7zf no, I went through a period of using corticosteroids, while following a strict diet to reduce my body fat, then I managed to reduce and remove corticosteroids

[@MrMJD1978]

@@kuldeepkumar-pm7zf I couldn’t use it, it is apparently toxic for me, I’ve been under corticosteroids for two years, while doing in hypocaloric diet, I managed to lose 12 kg and removing corticosteroids lowering the dosage on a long period, three months. I suggest to everyone to stay away from: Fatty food Including supplements high on fats

[@healthknowledgetvbydrdkgup2695]

Good information

[@herbieburbie]

I get chronic urticaria about twice a year from mildew living 13 years in a house that is losing equity from foundation issues and water damage. Get me out of my 55,000 loan and I'll be your lab rat. Also think that mold exposure has lead to my panic disorder. Fungus are like people theres the nefarious,the friendly, the deadly, the doctors, theres the philosphers and the helpers.

[@magicalpatterns]

Mold for sure causes panic disorder is because your body is not able to detox from it daily like a normal person without any signs of symptoms or allergies. So much info I wish I can give you. Go on Facebook on the mold groups. You can help yourself. Also the website surviving mold.