ONE YEAR AFTER TRANSPLANT EVALUATION 🏥

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The Frey Life

The Frey Life

Күн бұрын

Пікірлер: 312
@thefreylife
@thefreylife 4 жыл бұрын
Thank you to all of you guys for your support and love over the last year- in the ups and the downs!
@kylechellino2579
@kylechellino2579 4 жыл бұрын
I love you Mary!
@dinahakim7114
@dinahakim7114 4 жыл бұрын
The Frey life of course I wouldn’t miss anything for the world and I also have a friend with cystic fibrosis so yes I’ll be fighting that fight with you and my friend
@amandagray9871
@amandagray9871 4 жыл бұрын
The Frey Life praise God for Trikafta and Mary’s improved health!
@dinahakim7114
@dinahakim7114 4 жыл бұрын
Amanda Gray amen trikfta my friend is in it and is doing great with it
@moonflower9566
@moonflower9566 4 жыл бұрын
Much love to you both!💒🙏😇🌈🐦😁
@bionicprincess8008
@bionicprincess8008 4 жыл бұрын
Peter & Mary, the word that comes to my mind when I think about this past year is a MIRACLE!! I remember you talking about this possible drug a yr ago. I would have never imagined your health could be this good. I really believed we would be walking the journey of your lung/liver transplant with you. Each day I watch your vlogs I am overjoyed at your great health. It is truly a miracle. It warms my heart to see everything you can do. NC appears to be a wonderful place to live and is part of the blessing 🙏🏻💗 God please continue to bless Mary with the gift of good health each & everyday.
@thefreylife
@thefreylife 4 жыл бұрын
G Laurent thank you so much for going on this journey with us! 💜
@theannechann642
@theannechann642 4 жыл бұрын
I can’t believe that was a year ago. A lot has happened since then. You both are so strong.
@thefreylife
@thefreylife 4 жыл бұрын
Thank you The Anne Chann for joining us on this journey & for your encouragement!
@justsomeoneelse23
@justsomeoneelse23 4 жыл бұрын
This time last year, I sat crying because I felt like you Mary were slipping away and becoming consumed by your CF. It's heartbreaking to remember those times, to remember your voice, your breathing, your colour, cough, everything. I cry now because I am thankful for the second chance you have been given to enjoy the now, you shine x
@thefreylife
@thefreylife 4 жыл бұрын
Shelley Crawford thank you for being on this journey with us in the hard seasons and the better ones, we are so thankful for you!
@stephenfleming7918
@stephenfleming7918 4 жыл бұрын
So happy you folks have had a respite from this debilitating disease. You say that we have helped you along this past year but you have helped some of us as well. I’ve had retroperitoneal fibrosis for 12 years now. Lost a kidney, have two aortic aneurysms of which one has ruptured a year and a half ago causing me too almost bleed out before I could get to the hospital. Fractured vertebrae in my spine and stents replaced in my kidney yearly. In the hospital a couple days ago to have a stent replaced and I thought about the strength that you folks have through all the trials and tribulations you’ve gone through. I thank you for making me stronger through your life. God willing I pray this respite will last for your entire life.
@thefreylife
@thefreylife 4 жыл бұрын
Stephen thank you so much for sharing that with us, we are so glad that you are a part of our Frey Life team and that our vlogs have become a source of joy, encouragement, and support for you! Glad to hear you were able to get your stent replaced, keep on pressing on friend!! The Lord is with you!
@stephenfleming7918
@stephenfleming7918 4 жыл бұрын
The Frey Life Thanks, I truly believe God is with you and me. Even though I am so undeserving of his grace. My youngest daughter is a psychoanalyst that works with addicted folks In a clinic and her private practice. She tested positive for COVID-19 10 days ago. She is at home and doing well now. God’s grace can do miracles for us all.
@nancy3432
@nancy3432 4 жыл бұрын
You guys did the right thing. Duke oncology saved my life stage 4 cancer. for some reason, that year before I was diagnosed my husband got laid off his job in Virginia but received a job offer in Durham NC. the lord works in a mysterious way. it was meant to happen that way. you are in the right place. Cancer-free 4 years.
@marasjourney
@marasjourney 4 жыл бұрын
This makes my heart feel so joyful. I have mitochondrial disease, not CF but I can relate to the chronic illness journey and I started watching you guys two or three years ago. I thought my health was steadily declining but I started a new medicine and I’m finally able to walk a bit farther before my legs give out which has given me so much more ability. I feel a similar sense of reflection of “wow, remember where I was a year ago and look where I am today” and it’s a positive change is such a joyful thing. Thank you for spreading joy, and reminding all of us to be as joyful as we can through every little moment along the way.
@youser6088
@youser6088 4 жыл бұрын
It seems like just yesterday I was watching you in Scotland and now you’ve been in Durham a year already, time really does fly.
@thefreylife
@thefreylife 4 жыл бұрын
Cali Zimmerman right?! It's crazy sometimes how quickly time passes! Thank you for being part of our Frey Life family and team, we are so grateful for you!
@cynthiajohnson4329
@cynthiajohnson4329 4 жыл бұрын
“...trying to find time to poop...” YES! The struggle is real.
@Happy2Plan
@Happy2Plan 4 жыл бұрын
I have been a Frey Life family member from when you were in Scotland. I don’t know anyone (but Mary) with CF not really sure why I started watching - it was a recommended video. But know several years later watching your videos daily I know God recommended it because you have been such an encouragement to me. And a blessing to watch. Thank you - Crystal
@thefreylife
@thefreylife 4 жыл бұрын
Crystal thank you so much for being a part of our Frey Life family and team for so long! We are so glad that you are here and you are an encouragement to us! 💜
@davegoodridge8352
@davegoodridge8352 4 жыл бұрын
I do miss seeing your old house and Peter’s church services. Wow what a difference this past year has made. The new life you guys have, new drug and even Harry. Thank you for sharing your life with us.
@thefreylife
@thefreylife 4 жыл бұрын
David thank you for being a part of our Frey Life family!
@xandrayoung9186
@xandrayoung9186 4 жыл бұрын
It’s amazing how much a year can change things and how one little pill can change it all! ❤️❤️❤️ I’m so happy for you all! Here’s to many more years to come!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you for celebrating with us Anna! We hope you are having a great week!
@embro2.0
@embro2.0 4 жыл бұрын
Your videos chronicling life with CF has helped me on my journey of life with chronic migraine and TBI. I am thankful for both you and Peter. Your phrase of “Do What You Think You Can’t Do” has helped me through countless doctor’s appointments and most recently a painful injection. Thank you!
@PandaThing
@PandaThing 4 жыл бұрын
Crazy that it's already been a year!!
@thefreylife
@thefreylife 4 жыл бұрын
Krista Cook isn’t that insane?!
@PandaThing
@PandaThing 4 жыл бұрын
@@thefreylife it is! Time sure does fly!
@sheilablackwell6785
@sheilablackwell6785 4 жыл бұрын
Seems like yesterday, I can see you sitting in the swing in that AirB&B. The change in one year watching you is a true blessing. You and Peter have given hope each day to so many as you walk your journey.
@thefreylife
@thefreylife 4 жыл бұрын
Sheila thank you for being on this journey with us, we are so grateful you are a part of our Frey Life family!
@sophieleanna9391
@sophieleanna9391 4 жыл бұрын
No other couple has ever inspired me the way you two do. You bless so many of us.
@Arsewell-Foundation
@Arsewell-Foundation 3 жыл бұрын
I've been following your journey for a long while, then due to KZbin algorithms, lost touch. Happy to have found you again! I had a kidney transplant 3 years ago and it's interesting that I traveled to Boston to get my initial evaluation at Tufts in January 2017. That triggered my transplant journey which resulted in an altruistic donor stepping forward, someone from my parish that I didn't know offering to donate his kidney to me. God IS generous and good. I had my transplant April 2018 and have been in wonderful health since! God bless you on your adoption journey (my husband and I adopted 2 daughters) and may His many blessings continue with your health.
@Kopitskid78
@Kopitskid78 4 жыл бұрын
I’m so thankful for my own weekly infusion. It’s a lifeline for me, in that I can tell the difference between not having it and what it does, my body misses the infusion when I cant get it. My family and friends have noticed a huge difference in my stamina, endurance and as my best friend said “I see the sparkle back in your eyes” and that was two days after the infusion”. I started infusions three years ago. I’m grateful and thankful to God for giving my body a fighting chance, it is support medicine in that it doesn’t reverse the Morquio but slows down the impact of it. Like you Mary I still have the gene, it is part of me and always will be, and perhaps there will come a time that I won’t be able to get the medication or it simply will stop working. But I am thankful for what it is currently doing because I know of the time it wasn’t there. My prayer is that you continue to benefit from the drug and you can continue to remain in a holding pattern. The reality is scary and uncertain without our life giving medications! Blessings to both you and Peter!!!
@thefreylife
@thefreylife 4 жыл бұрын
Meredith I am so beyond happy and filled with joy knowing your weekly infusions are continuing to work for you and help support your body! I'm so glad that this medication is also giving you a season of rest amidst the fight! Your story and life are an inspiration and encouragement and we are so grateful that you are a part of our Frey Life family and team! Thank you for your continued prayers and encouragement for us! May the Lord bless you and keep you, praying your medications continue to support your body well and that your body continues to accept them! Keep on pressing on friend!
@VensVibrantNailsandBeauty
@VensVibrantNailsandBeauty 2 жыл бұрын
"It was a unique form of hard." -Mary This phrase hit me so square in the face, I started crying. I have end-stage MS, and this past year has been the most difficult year I have been through so far. Thank you for the gift of these words!
@jsomebody2289
@jsomebody2289 4 жыл бұрын
Yesterday marked two years since we moved to our current city. It was prompted by my husband's job but the main benefits were having access to adequate medical care for myself and our son. It's hard to process. On one hand I am so thankful for the specialists and access to testing and medical procedures and we just celebrated a year of my son being seizure free. On the other hand some days I just start crying at how much it takes to keep my body functioning, at the balancing of all the meds and doctors. My husband was also recently diagnosed with some difficult medical issues. I am so sorry you are going through all of this but watching your body change on the new medication has been really uplifting. I'm glad to know I'm not alone in these complex feelings of processing.
@thefreylife
@thefreylife 4 жыл бұрын
Joy M Hopkins thank you for sharing that with us, we are celebrating with you that your son is 1 year seizure free! 🎉 But we also recognize that life with chronic health issues is challenging, you are a trooper - keep on pressing on, one day at a time friend 💜. We are so glad you're here and a part of our Frey Life family! :)
@rdm_bk6138
@rdm_bk6138 4 жыл бұрын
No! Wait! A year ALREADY???? Thank you so much for allowing us to accompany you in this amazing journey!
@thefreylife
@thefreylife 4 жыл бұрын
RDM_Bk we are so grateful that you are a part of our Frey Life family and going on this journey with us! 💜
@Lyn4817
@Lyn4817 4 жыл бұрын
It doesn't seem like a year since Duke. Everything just seemed to fall into place since. Like your home is perfect to support Mary, moving forward, with plenty of space and privacy for you and your family supporting you after transplant. I still remember everytime I saw your cheeks flush Mary, that I thought you need to go to hospital for your IV antibiotics. The first time after Trikafta that you stayed out of hospital on oral antibiotics, was a miracle. It has given both of you time to regain your strength. Even you Peter, you were also in a bad place before Transplant Evaluation. Even poor Olly Boy need a breather. It is wonderful seeing him just being a dog. He was always on alert, even lying on the bed with you when you were really sick Mary. This past year has truly been a blessing for you. Your move and new home, mirrored our move to where we still are, today. It was also the best thing we could have done for my health, even though I have lost count the number of surgeries I have undergone since moving here. There is a time and a reason in our lives for everything. It is just wonderful watching you share your joy in your new home and State.
@chroniclyfekb8342
@chroniclyfekb8342 4 жыл бұрын
Hard to believe it has been a year. I shed a tear as your told the story today and then sat on the edge of my bed as your video concluded and sobbed like a baby as it hit me harder that a year has gone by and my health has declined over this past year and that I am having nothing but difficulty with my insurance on covering medication to "try" for me and this Cornonavirus Quarantine has had me extremely sick for the last 3 months and Ive been hospitalized once during this Quarantine and terrified the whole week I was there that I would not catch anything else. But in the midst of all that I prayed out and as usual God reminded me that he has me. Many thoughts and prayers your way that this time of "REST" stays for as long as God allows and you get to use this time to glorify him in many, many other ways. Mary, you and Peter and Ollie and Harry give me peace and joy while watching your videos. Your youtube channel saved me from a dark place and for that I thank you.
@lilsinger1216
@lilsinger1216 4 жыл бұрын
Mary and Peter....ive been following yall for over 4 years. I love your channel! I wanted to comment on this video because i just felt this tug from the Holy Spirit to reach out to you to number one, let you know what an inspiration youve been to me personally and number two, to share a bit of my own personal dual transplant story w you. I pray it may be able to help in some small way, the same way youve helped me keep going when i felt i couldnt take another step. A little background about my history. Im now 35 yrs old. I was diagnosed w type 1 diabetes at age 6. I lived w that all through my childhood, teenage yrs and adult life. Had more hospitalizations than i could even try to count, lol. Stared death in the face more than a few times. Fast forward to 2012-2013 while still able to work as a lab technician, we discovered that what i had known could happen most of my life, was now happening. My kidneys were starting to shut down. I started dialysis and all together was on dialysis for 6 yrs, and about a yr and a half into dialysis, my kidneys were completely dead. I was listed at UVA medical center in virginia (i live near roanoke virginia) for a dual kidney and pancreas transplant. By the time i was listed, i was told a transplant was my only option. Unfortunately, i was only listed as "active" on the transplant list for about 9 months. Then due to more complications from type 1 including diabetic retinopathy which caused almost total blindness for almost a year, and gastroperisis, and two heart stints, i also found out i had had a heartattack i knew nothing about, and was told that i needed double bypass open heart surgery. So needless to say, i had to be removed from active status on the list and be put on the inactive list. That shattered me. I grew up in church and have always had a close relationship w the Lord, but in those times, it got unbearable to deal w everything. I felt like i would never be healed, never get my life saving transplant. I felt like this was it for me. I dont know how many times i begged God to just take me home to be w Him. At least the pain would be over. Also in that time, april of 2019 to be exact, my now x husband decided he no longer wanted to deal w a sick wife so he asked for a divorce. I think that was probably the lowest point for me. As bad as it sounds, i think i lost all the hope i had left. I say all of that to say this, during those years, i would watch your videos all the time lol. I distinctly remember sitting in my dialysis chair watching video after video. I related so much to everything you went through and talked about. Yes there were some differences obviously. Different illnesses, but i still related exactly to how you felt and the physical emotional and mental struggle you and Peter went through. Im so thankful you have him by your side every step of the way to be your support and your rock. Im also so incredibly greatful to God for you because of the inspiration you were and always will be to me. You helped me to keep fighting and keep moving forward, no matter what, knowing that God had me in the palm of His hand every step of the way. I can never express just how much that means to me. August 13 of 2019 i finally was able to recieve my long awaited dual kidney pancreas transplant. It was one of the greatest days of my life. I just celebrated my 1 year anniversery and have never felt this amazing in my life. God was still faithful and answered my prayers. It was a long hard road but He brought me through to the other side, to victory. And you helped me more than i can ever say to keep on keeping on during those impossibly hard times. As far as your potential transplant, just know im praying for you guys every day. If it comes to transplant for you at some point, i can say this much. First of all, since you would be receiving a dual, just like i did, the wait list will be shorter. Also, your age will help tremendously. Thats one of the first things UVA ever told me. Dual transplants arent quite as common, so that list is shorter which makes since. But if it comes to that for you, it will change your life entirely. For the better. You'll be a whole new person. Its a long, painful process and recovery right after surgery, but i promise its worth every bit lf it. I was very high risk also because of my heart disease, but my team was amazing, my God was faithful, and everything went beautifully for me. I now have my life back, and a better one than ive ever had before. No kidney failure no type 1 diabetes. Im able to have my music ministry back, be a worship leader again, be the best dog mom i can be 😂🐾 get back to work before long hopefully, the list goes on and on of all the things Gods restored to me since transplant. I just wanted to share that with yall to hopefully help in some small way, and hopefully to give you hope, or maybe help ease any fears or concerns you may have. Im rooting for yall and your always in my prayers. Please feel free to reach out to me if you have any questions about dual transplant or anything. Im happy to help in any way i can. Yall are awesome and have an amazing ministry and testimony with your channel! God bless yall and love you guys! Please tell Ollie boy and Harry boy their awesome too and adorable 😂🐾
@heatherstackhouse1361
@heatherstackhouse1361 4 жыл бұрын
Wow, you guys have lived a lot of life in the last year! So glad you "vertex" can and do! :😊 🧡
@thefreylife
@thefreylife 4 жыл бұрын
Thank you for joining us on this journey Heather! We are so grateful for you!
@missmandyyx
@missmandyyx 4 жыл бұрын
man, i just want to reach out to the scientists who made vertex to give them all hugs & thank them. thank them for their dedication in this medication so you and my fellow friends who are benefiting from this medication.
@curlybibliophagist2
@curlybibliophagist2 4 жыл бұрын
Right? The difference it makes in the life of people with CF is nothing short of amazing.
@penelopepolinsneemeyer4757
@penelopepolinsneemeyer4757 4 жыл бұрын
Martin and I are both so grateful to see Mary so we’ll on Trifacta. We pray for you every time we pick up a Siddur (prayer book), when I light my Shabbat candles and know that whilst we’re on a very different faith pathway and chronic illness journey, that we can wave to you guys on your journey and hold you up with our love xxxxxxxxxxxxxxxxx
@thefreylife
@thefreylife 4 жыл бұрын
Thank you so much Penelope and Martin! We are so incredibly grateful for you both and your continued prayers, support and encouragement throughout this journey! 💜
@penelopepolinsneemeyer4757
@penelopepolinsneemeyer4757 4 жыл бұрын
The Frey Life Sweeties, you two have become like family to us. We’ll be here for you every step of the way, we promise. xxxxxxxxxxxx
@alexandrak8441
@alexandrak8441 4 жыл бұрын
I can remember watching a year ago (I think I stumbled across your vlog about 1 1/2 year ago) and started praying for you. It is amazing to see how far your health has improved since then. You are such an inspiration and encouragement for me and I wanted to take this opportunity to say thanks for sharing part of your life with us. God bless you both!
@thefreylife
@thefreylife 4 жыл бұрын
Alexandra K thank you for joining us on this journey and for your continued prayers! We appreciate you and are so thankful for you and glad that you are a part of our Frey Life family :)
@contrapasso
@contrapasso 4 жыл бұрын
It is an absolute privilege to have a window into your life. My brain works in such negative patterns and it’s hard to stay on track and keep fighting for my future. Your perspective helps so much. Thank you.
@savannahcarlon7033
@savannahcarlon7033 4 жыл бұрын
Thank you for making this video, I know it was tough but not only did it help you process things we got to learn a lot as well. I'm considering going to medical school to eventually work in infectious disease (I'm working on my master of public health in epidemiology currently) and I know I would have the potential to work with patients like you. I have spent a significant part of my life in the patient role but with very different experiences than you and getting to know you as Mary, the wonderful person with a chronic disease has been such a privilege. I am a nonbeliever, but I keep you in my thoughts a lot and being able to see your results with Trikafta has made me so incredibly happy. I'm thankful for every good day you have and every vlog where I get to learn more about your life with Peter, Ollie, Harry, and CF.
@Stacey67643
@Stacey67643 4 жыл бұрын
Wow!!! What a year it has been!!! The words "so much can happen in a year" were never more accurate. I'm so thankful that you are feeling so much better I love watching you enjoy the birds and experimenting in the kitchen (besides the mini donuts lol) You seem so much more excited for life and all that is around you and that makes me look around me and be even more thankful for my life....YOU truly are an inspiration to so many people!!!! Oh and I live in NC too!!!! such a beautiful state!!
@thefreylife
@thefreylife 4 жыл бұрын
Stacey thank you so much for those kind and encouraging words! We are so grateful that you are a part of our Frey Life family & a NC neighbor :)
@savannahspurlock1269
@savannahspurlock1269 4 жыл бұрын
Thanks for this video! I have a chronic skin condition and have been told by a hematologist/oncologist that I most likely have a rare, chronic blood cancer. I tell my step sister all the time that I haven't fully processed the high possibility of cancer that my hematologist/oncologist has said I most likely have. It's been a little over a year since the doctor said that but almost 2 years since the abnormal test were found. This helped me realize I'm not crazy for not having it completely processed mentally yet. Also thanks for all the videos because they give me encouragement as I watch and see how positive you are even in the hard times. I go back in June and I'm scared because I was just seeing nurse practitioners from November-April after my dr left in September. I hope and pray my appointment in June is just a routine visit but it could be the official diagnosis appointment too.
@lisanorton7749
@lisanorton7749 4 жыл бұрын
One year can make such a difference in our lives. There is much to be grateful for and it has been my joy to participate in your joy via this medium. You are the gracious ones and the inspiration to so many with chronic illness and or scary health issues. The both of you have shown us how everyday is it’s own and that’s okay! Keep on keeping on Mighty Girl!
@juliannacraig4744
@juliannacraig4744 4 жыл бұрын
Thank you for this video. You hit the nail on the head on how emotionally exhausting a transplant appointment is. I went in two weeks ago for mine... For a liver. At one point in the appointment I wasn't expecting it but I broke down crying in front of the team. I cried that night more than I had since diagnosis. I'm so glad you can put this off/ stories like your sisters give me hope.
@judyrotunno730
@judyrotunno730 4 жыл бұрын
I remember that week. I am so happy that God is blessing your family. I could only imagine how hard that week was for both of you. Seeing Mary feeling better and not having to work as hard is amazing. Praise GOD!!!!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you judy!
@kellyreid6862
@kellyreid6862 4 жыл бұрын
Oh my, how time flies! It is amazing the changes that you both have experienced this past year.
@thefreylife
@thefreylife 4 жыл бұрын
Kelly Reid right?! it's hard to believe it's been a year already!
@kellyreid6862
@kellyreid6862 4 жыл бұрын
The Frey Life yes!! You are so amazing! And this video had me in tears of celebration and trepidation right along with you. 💕💕
@joannelong9566
@joannelong9566 4 жыл бұрын
Good afternoon this is Carolyn hope all is well today. I remember watching you're transplant video last year and I remember. How up set Mary was after one of her transplant evaluations. I was the one who wanted to send a greeting card. I think watching that video taught me a lot about compassion care. It's not just a video you're watching there are real people behind that camera.
@jeremycummings1919
@jeremycummings1919 4 жыл бұрын
Mary, I pray for you and Peter every day, and I pray for all of the cfers. I am 49 and I still have my original lungs! I am so glad the Trikafta has helped you, as it has me!
@eej1983able
@eej1983able 4 жыл бұрын
I can't believe it's been a year! Wow. I remember that experience even as a virtual friend.
@Judymontel
@Judymontel 4 жыл бұрын
I can't really process that all of this happened in just one year. SO much - for you guys and for the world.
@thefreylife
@thefreylife 4 жыл бұрын
Judith we totally agree - it's crazy and amazing all at the same time! :) Thank you for being part of our Frey Life team!
@amybailey2812
@amybailey2812 4 жыл бұрын
This is different to Mary but i feel I can relate. I had a kidney transplant last year on August 5th which I’m so grateful about. I can’t even imagine how Mary and Peter felt learning about all the information about how things are done and the processes for lungs and liver, it was overwhelming enough for me to learn about kidney transplants - surgery, options I had, who would be my donor, will I end up on dialysis before transplant, how long will I be on the list for. All these things were going through my mind which I feel you both can relate too. It is a lot to take in, but then I’ve lived with small kidneys and reduced kidney function since I was born - I am 27 in August on 22nd. I am so amazed and blessed that I received my gift and I’m so grateful that I wasn’t on dialysis before my transplant because it would’ve got to that point if I didn’t get the call. I always knew I needed a transplant at some point in my life but it all became real the day I was called to say there was a match for me. Even though Mary has a different condition than I have, I find this channel relatable and supportive as I feel chronic illness can be relatable in different topics. It is so nice to see Mary being able to have trikafta and for it to work. Medicine, science, doctors, nurses, people who donate organs and blood are really a blessing. I hope the best for you both on this journey that you are both on, stay strong guys. Thank you for sharing your story 💕
@misspepe7416
@misspepe7416 4 жыл бұрын
It is so great reflecting on and celebrating this season of rest! Hallelujah! 🎉😍 ...also 28minutes? I love it!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Miss Pepe and haha glad you didn't mind our longer vlog today :) Thank you for being on this journey with us! 💜
@Hallz18
@Hallz18 4 жыл бұрын
I can’t believe it’s been a year! Love you guys! 💗
@thefreylife
@thefreylife 4 жыл бұрын
Holly_Adams we are so thankful for you and glad that you are a part of our Frey Life family!
@stephwashere4454
@stephwashere4454 4 жыл бұрын
The LOVE you guys have for each other makes me hope I'll find my other half soon. 😍 always praying for you guys. Much love!!
@thefreylife
@thefreylife 4 жыл бұрын
stephiepoo1987 thank you for your continued prayers! We are so thankful that you are a part of our Frey Life team! :)
@jodeming5088
@jodeming5088 4 жыл бұрын
Mary & Peter you are a very special couple who bring positivity, love, calmness, faith, inspiration into all of our lives every video. Seeing in the incredible changes Mary in your health this past year is mind blowing. Our prayers are being answered. Peter you are a blessing & the best husband/ support person I have ever seen. Ollie you absolutely melt my heart each & every time I see you. Harry although I am so not a cat person you sure are growing on me. I can see the love you give out. You guys are the best.
@samanthajester3312
@samanthajester3312 4 жыл бұрын
I can’t believe I’ve been watching for so long. I’ve watched since Peter was in Edinburgh and miss kinder time so much! I also have basically grown up with your vlogs and even named my dog Ollie after your Ollie! I’m so happy that trikafta is working for you Mary!
@Mara-jp2jb
@Mara-jp2jb 4 жыл бұрын
it feels like just yesterday when this all happened You are such an inspiration! You are still in my weekly preys and I will continue to prey for you God bless you M xxxxxxxxx
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Martini L for your continued prayers!
@deekshab6145
@deekshab6145 3 жыл бұрын
I'm glad to be a part of your journey, I look forward to watch you guys everyday! You two make a lovely team, and Mary you are a really strong woman! There's so much of positivity from you guys, this is my first ever comment on youtube!! I really hope this TRIKAFTA works for a very very very long time, I love you both :)
@chronicallynicole8392
@chronicallynicole8392 4 жыл бұрын
I have had a lot of things in my live that I've had to cope with, in my family I've never been the picture of health. When I was younger, I was always sick and had severe asthma. When I was 26 I was diagnosed with cancer, and that news totally shattered my world. Shortly after I had surgery to remove the cancer I had severely injured my back. Then 4 years ago I was diagnosed with Multiple Sclerosis. I am still trying to come to terms that I can't do everything I used to do, my body just won't let me. I love watching your KZbin channel, Mary you are truly an inspiration & Peter with all of the love and support. You're both pretty amazing.
@iw9783
@iw9783 4 жыл бұрын
Dear Mary and Peter, That rest is so indescribable important. It is also so indescribable helpful (and hard!) to see someone else, who struggles with that, explaining that. Two to Three times per year I can fight (side effects of the iv’s and first the disease gets worse before it gets better) for a couple of weeks of rest in the form of less attacks and less intens (daily) attacks of one of my chronic illnesses. And a lot of ‘outsiders’ in my life with no chronic illnesses don’t understand it and i find it sometimes difficult to explain. And your video helps a lot with that too. But also the rest of the video helped me a lot, even though not all (/specifically your story/something very similar) is relatable. Thank you for this open and honest video. I hope that this amazing rest may continue for you for many many many years to come! 💪🏻 ❤️ Ismay
@SuperMissblueeyes
@SuperMissblueeyes 4 жыл бұрын
I can't put into words how much joy I feel for you & your fellow CFers having so much relief with Trikafta. I pray every night that the Trikafta will keep working for you for many years & I believe God will answer that prayer. I pray that you won't need a transplant for many years thanks to Trikafta & every single person who made Trikafta possible, even down to the $1 donations. I am sooo happy to see you achieving things you never thought you would achieve without a transplant. And I love your grateful attitude. It's a true testiment to God in your lives. You guys are awesome!
@bzzwiebel963
@bzzwiebel963 4 жыл бұрын
I really admire you guys how you have handled a really nasty illness. I know how these struggles unfold-sometimes one gets a break thankfully. I wish you guys that you will not need transplants because the rejection of these organs is always a possibility. Wish you all the best! Say hi to Olli and Harry-gosh they are so cute!!!! Cheers Barbara
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Barbara! & Ollie and Harry are sending you paw high fives :)
@belindavanowen1990
@belindavanowen1990 4 жыл бұрын
So crazy!! I watched a video of something while sharing your channel with a friend and it’s insane how different you looked then and acted based on your breathing. ❤️. I think it was just a year ago
@yvettepritchard3983
@yvettepritchard3983 4 жыл бұрын
Your doing great on that medication i am so happy for you . You didnt cough once threw it . You look great mery .
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Yvette Pritchard!
@DesMowadeng
@DesMowadeng 4 жыл бұрын
I remember that day you broke down in the car during transplant week. It gave me the courage to write a blog on the dehumanization with disability and illness!
@marykellyhernandez8598
@marykellyhernandez8598 3 жыл бұрын
Hey Mary and Peter! I was recently transferred to the Transplant clinic. I will start the Lung Transplant evaluation this week. I'm nervous and scared but also very hopeful. My Faith is with me and will never let go. I saw your videos on your evaluation experience. Thank you for giving me an idea of what is coming up. I'm not sure if they will perform the same tests but at least I have an idea. Thanks❤❤
@imogenoliver
@imogenoliver 4 жыл бұрын
I can't believe it's been a year since you started transplant evaluation! I remember finding out you needed a liver and lungs watching the video on the bus home from school and feeling grateful that, that was a safe possibility. The last year has gone so slowly but looking back on it, it has gone so quickly. I look toward the future and know that one day a video will come into my inbox titled "Mary gets the transplant call!", My hope is that I won't see it for very long time and that when I inevitably do that you guys will have people around you to help and support you through the process. Love you guys🥰.
@anngabriel5455
@anngabriel5455 4 жыл бұрын
Mary l don't have CF but l have had a serious chronic illness for 45 years. I hear you, as a matter of fact l am out of a remission right now and on three antibiotics and l say to both you and Peter, you help me get out of bed each day and thank God for my life. Thank you will never be enough, but may the Lord above continue to bless you all every day.🙏🙏🙏🙏🙏🙏💜💜💜💜💜💜
@curlybibliophagist2
@curlybibliophagist2 4 жыл бұрын
My daughter came in while I was watching one of your videos. She said, "Is that The Frey Life?“ When I told her it was, she said, "Wow! Mary's doing really well. She's not having coughing fits." I said it was the Trikafta. She had no idea and was just amazed.
@saraleemacdonald
@saraleemacdonald 4 жыл бұрын
Giving thanks to God for you! You teach us every day many things about living with a chronic illness. Love and blessings!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Sara! 💜
@jeanlee1911
@jeanlee1911 4 жыл бұрын
what i remember about those days was my heart broke because Peter could not go in with you. but it led the way to your medicine and could show improvement. xoxoxoxoxox
@allosch9
@allosch9 4 жыл бұрын
I hadn't found y'all yet this time last year (I have watched vids from then though!) and I just can't believe the change in a year with trikafta! I am so thankful for your relative health now Mary!
@thefreylife
@thefreylife 4 жыл бұрын
allosch9 thank you for joining us on this journey! We are so glad you're here :)
@allosch9
@allosch9 4 жыл бұрын
@@thefreylife I'm glad I'm here too!
@cheririchard7251
@cheririchard7251 4 жыл бұрын
I started watching and following y'alls KZbin videos in the weeks leading up to your trip to Duke. So I've officially been watching y'all for a year now! I've back tracked and watched a large number of your video predating my finding y'all. My husband 1at cousin lost her battle with C.F. due to complications related from the disease two years ago. I wish she could have tried this "miracle drug." We were blessed to have her for I think 38 years. She wasn't expected to make it to her first birthday. I have loved watching your channel and see you experience such an improvement in your health. Thank you for sharing your lives with all of us KZbin fans.
@ooXChrissieXoo
@ooXChrissieXoo 4 жыл бұрын
wow has it really been a year already.... this vlog brought me tears. I know I'm being emotional... but also so happy for your family.
@thefreylife
@thefreylife 4 жыл бұрын
ooXChrissieXoo thank you for being on this journey with us and for the encouragement!
@LindaJohnson-jy9hv
@LindaJohnson-jy9hv 4 жыл бұрын
Such an emotional vlog today. As we all know our lives can change in an instant. I’m thankful that you allow myself and all the other subscribers to take this journey with you both. When and if the time comes when the transplant needs to be done, you both know you will have so many people praying for you. God bless
@juliannacraig4744
@juliannacraig4744 4 жыл бұрын
By the way I'm 33/ autoimmune diagnosis. You are a true inspiration of living life to the fullest with health problems.
@isabelthewriter
@isabelthewriter 4 жыл бұрын
Wow, such a milestone! Sending lots of love today! It’s crazy, your vlog from 2017 of your first conversation about a lung transplant showed up in my recommended videos today. I am praising God today for all the blessings He has given you in the last year. 💕✝️
@thefreylife
@thefreylife 4 жыл бұрын
Kirstin thank you so much for celebrating and thanking the Lord with us! We're so glad that you're a part of our Frey Life team! :)
@isabelthewriter
@isabelthewriter 4 жыл бұрын
The Frey Life me too! I’m so glad I found your vlog. Your joy and positivity even in difficult circumstances is such an inspiration. You truly are a wonderful example of trusting in the Lord in all things. 😊
@thefreylife
@thefreylife 4 жыл бұрын
@@isabelthewriter Thank you friend!
@TesaJane
@TesaJane 4 жыл бұрын
Hey Peter!! That really vivid moment is called a “flash bulb memory” :)
@deborahhartman7548
@deborahhartman7548 4 жыл бұрын
I noticed how much better your voice is on Vertex, probably because less coughing. I was wondering when was the last time you were in the hospital. Another Vertex win!
@janegreen9378
@janegreen9378 4 жыл бұрын
Wow, time flies! 1 year ago looked so different. I'm so glad Trikafta works for you and hope it continues to do so for years to come. Bless the little blue jays that pass your way :)
@suehull7210
@suehull7210 4 жыл бұрын
You guys r a great team and really make it ok for all of us to have and feel whatever we do and that bad days or moments or seasons teach us a lot about who we are.
@lorifox4699
@lorifox4699 4 жыл бұрын
So grateful to have come across your vlog years ago so I could be blessed with witnessing your miracles. Thank you from the bottom of my heart for sharing. Even though we have never met you both have changed my life. Forever grateful. 🙌🙏
@mrscouts07
@mrscouts07 4 жыл бұрын
A year already? Wow, what a whirlwind! I remember watching those, it was so surprising how involved all of that was. Thank you for sharing this with us!
@thefreylife
@thefreylife 4 жыл бұрын
RealHousewifeRachel thank you for being a part of our Frey Life family :)
@lizzieturbeville4089
@lizzieturbeville4089 4 жыл бұрын
Wow, so I have been watching you for over a year now! I can't hardly believe that was a year ago but I do remember! I think I had been watching you guys for a few months before. You are right, so many things have changed and for the better so far! 😍 Amazing!
@jennieg36
@jennieg36 4 жыл бұрын
I have been following you for a few years now. I am so glad you are sharing this journey with us. I have been so excited to see the improvement in your functioning and ability to enjoy all the things in life. Looking forward to many many more years of sharing your joys.
@phoebebrunt4386
@phoebebrunt4386 4 жыл бұрын
As I struggle with some of the worst fatigue I have had in a while thank you for reminding me that health is not always linear. That things can, and do, change. Thank you so much for sharing your journey with all of us ❤️
@darkbluematter1753
@darkbluematter1753 4 жыл бұрын
Wow! What a year. From transplant eval to the miracle of Trikafta and moving to a new state and into your beautiful home to isolating due to a viral pandemic. Life is full of surprises. So glad to follow your journey guys. Cheering for you each step of the way. 💙 (EDIT: And a new hairless Harry family member!)
@DanaCook60
@DanaCook60 4 жыл бұрын
Mary you are courageous, strong and your spirit is contagious to non CF folks like me. I hope you have years of improvement and am looking forward to a cure for Cystic Fibrosis. You rock Mrs. Mary!! ❤️❤️❤️❤️❤️❤️
@megyseth1733
@megyseth1733 4 жыл бұрын
I don't know if anyone told you but you sound so much different then before the drug because you don't cough as much and your trough is recovering. Hugs from Croatia.
@stardustfire
@stardustfire 4 жыл бұрын
That was such an extreme week for you guys. I’m so glad your journey is looking brighter one year later.
@MandieZangora
@MandieZangora 4 жыл бұрын
Had a rough day and just felt like crying for most of the past week but I wouldn’t let myself. :30 into this video and I’m BAWLING. I love you girl, y’all know I’ve been here since April or May 2015, I love your whole family and I’m so proud of you for never failing to rise to the occasion no matter what and teaching me to take on things we don’t want, understand, etc that falls into our laps but to make the best out of it ♥️ I truly believe God sent you angels to help so many of us through this life and make it not as scary and lonely so thank you all so much 🤟🏻😘♥️
@janroach1852
@janroach1852 4 жыл бұрын
Thank God for the new medication. And hope there are many more new meds to come.
@amykremer6891
@amykremer6891 4 жыл бұрын
Your story has touched me so deeply, and I admire you both very much. Your are rare people: kind, loving, compassionate, brave, faithful, present, thoughtful. I could go on... Mary and Peter, you are miracles and you make the world a better, gentler, more hopeful place.
@ActiveAngel2010
@ActiveAngel2010 4 жыл бұрын
It occurred to me that God helped to accelerate your transplant. If that fortunate surprise didn’t come at the moment it did, imagine how it would be if Mary reached that point of desperation amidst this current pandemic. My heart is with you both always! Even when I don’t watch your videos, you’re in my prayers. Keep up the good work!
@clairemalinowski2971
@clairemalinowski2971 4 жыл бұрын
Mary I'm glad your still alive . Some people have it harder .
@BilingualBookworm
@BilingualBookworm 4 жыл бұрын
I’ve been with you every day for 4 years and I am just so extremely happy to see this video and the progression you both have made. To bear witness to your strength and patience and joy in that journey is such a gift. We love you both!!
@SuperMickeyr
@SuperMickeyr 4 жыл бұрын
Wow! This was so good to see! Looking back at that time and reviewing it. I remember watching those videos with the biggest lump in my throat. The fear in Peter face - Goodness! Thank you guys for sharing and teaching! You both are amazing!
@kareninva7097
@kareninva7097 4 жыл бұрын
You two are very strong not many people could handle all this
@peachxtaehyung
@peachxtaehyung 4 жыл бұрын
I am so happy for how far you have come and how much you have improved in your health!!! I hope the trikefta continues to help!! Love you guys!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Miranda!
@oliviagorhamsiegler9848
@oliviagorhamsiegler9848 4 жыл бұрын
As you are saying that it is a journey and you will take it day by day, I find myself just wanting you to know that we’re all along for the journey with you. I know that I couldn’t be happier to support you. Love y’all!! 💛💙💛💙
@sara-lynnjans277
@sara-lynnjans277 4 жыл бұрын
When it’s fall here. And it’s cooler and the leave fall and rot and the winter smell comes around....I am consumed by my diagnosis. The fall season and weather is a big trigger for me. Our sense are crazy things and they can really trigger some strong emotions and memories. I can totally relate Mary 💕
@thefreylife
@thefreylife 4 жыл бұрын
Sara-Lynn Jans keep on pressing on!
@sara-lynnjans277
@sara-lynnjans277 4 жыл бұрын
The Frey Life I was diagnosed with breast cancer in the fall of 2017 and I started watching The Frey Life from the beginning during chemo. I think I stumbled across it when I want to learn about my port. Now I watch you everyday about 3:30 and and have come to love Peter’s podcast. Your little family is a part of my little family ❤️. And joyful part of my afternoon coffee break. Lots of love for the Frey’s from waaaayyy up here in Albert.
@susanharris1285
@susanharris1285 4 жыл бұрын
Mary I have been on this journey with you with my emotions going up and down as yours I will always be here for you and Peter , stay strong love and lots of prayers one day at a time💕
@thefreylife
@thefreylife 4 жыл бұрын
Thank you so much Susan for encouraging us and cheering us on! We are so grateful that you are part of our Frey Life family and team!
@debradonley3825
@debradonley3825 4 жыл бұрын
I remember that Wednesday video. I felt so bad for you. I wanted to reach through the screen and give you a great, big, hug! I'm so glad things are better for you guys now. As always, you have all of us, your family, the Amazing Peter, and Ollie and Harry. The Lord, too. Can't forget Him! You both are in very good hands...and hearts.
@justcallmejessz3712
@justcallmejessz3712 4 жыл бұрын
Everytime I watch people talk about Trifecta I cry. I dont have CF and wont try to compare my stuff with, well anyone 😍. But that feeling of rest is SOOOOOO amazing.
@jacquicoder7160
@jacquicoder7160 4 жыл бұрын
Such an emotional video and so much I could comment on, the amazing transformation in your life and health that Trikafta has given you. But the one thing that sort of jumped out at me was when you said you love North Carolina! I remember how sad you were to be leaving the Boston area, how much you cried over the prospect of moving. But I also remember commenting that you would make North Carolina home and would find people and things to love there as much as you did in Boston. Not saying I told you so, just thankful that turned out to be true. God bless you as you continue to process the past, the present and whatever the future holds for you.
@nikkivanwestrienen2050
@nikkivanwestrienen2050 4 жыл бұрын
Anybody else notices Mary didn't cough! So glad you both are doing well and enjoying the new place and town. Hope that will last a long long time.
@Dreamer5211
@Dreamer5211 4 жыл бұрын
Hi Guys , Thanks for the 9 month update . Wow , it seems like it was shorter or maybe longer , I so remember the week , and the different videos showing the the different places you stayed . SO glad everything turned out , Thankful for you guys the drug is still working and not hurting !! In a few months , you`ll have to do a one year 'live stream' !! , Take care , Gary 
@alisonlogan4065
@alisonlogan4065 4 жыл бұрын
Mary you are so brave. I have watched you guys for ages and I remember when I first watched you I didn’t know how you did it on a daily basis. You have improved so much and your attitude overwhelms me . Stay strong Mary you are a great person, oh and you peter you’re a great support 😁
@katiemalloy5771
@katiemalloy5771 4 жыл бұрын
I hope you guys are doing good during this horrible time!
@thefreylife
@thefreylife 4 жыл бұрын
Thank you Katie! We hope you are having a great week!
@katiemalloy5771
@katiemalloy5771 4 жыл бұрын
Thank you!
@sabslack
@sabslack 4 жыл бұрын
You’re a gift and a blessing Mary! Thank you guys for your transparency! Enjoy your rest may God continue to sustain you both.
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