Permanent Lung Damage ...

[@melaneyhughes4231]

I worked for years with a pulmonologist and have heard of this disease. It is a very serious disease and not to be taken lightly. I am sending prayers to you and family.

[@oceanstaiga5928]

As someone who had to recover and gain back all muscles after being ventilated as a teen myself I can say it’s a long process. I was in PT for over a year before I got to a point where I could join regular PE in school again and participate for the whole lesson. Now I can participate in all sports as I could before, it took a few years to bounce back mentally but you will get there. Wishing the best for your recovery Lonnie Jr, and love to you and the family Stephanie! Edit: I also had scar tissue in my lungs that was always visible in CT scans, I can’t tell any difference anymore after many years now but that’s always individual of course.

[@meg61288]

I'm a Respiratory therapist and I've only briefly heard of this disease. I've been researching it since you told us about it. It is absolutely crazy and I am glad to know about it now. Sending continued prayers and support!! PS you're an incredibly strong momma and have handled such a scary situation with amazing grace. ♡

[@lindseygundersen3951]

I have a medically complex and developmentally complex child all in one! I cannot tell you how many people told me don’t put my son on steroids. Guess what it saved his life!!! You do what you and the drs are comfortable with and ignore everyone else. My heart goes out to you and you’re family you’re such a strong mom ❤️

[@OurLANDingCrew8]

I don’t think people understand how bad autoimmune diseases can get. This isn’t like inflamed nerves, this will KILLING him quite literally.

[@Victoria-fw9xn]

Lungs and autoimmune disease is very complicated… Lonnie jr is such a strong young man… I can relate to him… I was in ICU for 3 weeks for my lungs and our stories are very similar… Bless Lonnie jr and his family…. God Bless You All

[@lawryanmuise5223]

My heart goes out to y'all. We almost lost our 3rd kiddo 4.5 years ago (she had an autoimmune disease that was destroying her platelets) and that moment that you brace yourself for potentially having to say goodbye is heartbreaking. I am glad that he is getting better and pray he continues to improve.

[@loricampbell2071]

My husband was diagnosed with WG in 2001. He too was on the vent. He has had 2 relapses but we knew what to look for and got help ASAP and wasn’t vented either time. He did not have kidney involvement. He has not had a relapse since 2003. His doctors believe his disease was brought on by working around chemicals. Praying your son does well!❤

[@ngs5554]

I’m so glad your husband is doing well. My poor MIL passed within 5 yrs of diagnosis. She is very missed, never got to meet her grandkids.

[@loricampbell2071]

@@ngs5554 I am so sorry for your loss!

[@jhamadhu2809]

He is so mature and positive about it and he so young. Sending prayers ❤️

[@shanty83goth]

Heyyyyy… just in case no one has told you today… you’re doing such an amazing job taking care of everyone. Don’t know you and so proud of you!😊 I know it’s really hard. I have only two autistic girls with adhd, one has something medical going on that they haven’t worked out yet, with high liver numbers and enlarged spleen among other things. But their dad also has Parkinson’s, emphysema, osteo arthritis, sleep apnoea, REM sleep behaviour disorder (which is so full on) and recurring bladder cancers. Sooo many appointments and specialists and things to keep track of. I only tell you this so you know I totally get it. And you are such a rock for them all. Sending love from south Australia. ❤

[@aliciakillen1940]

Medical stuff is super scary! Can’t imagine how overwhelmed you must feel. You will overcome this. Thanks for the updates! Don’t let the know it all’s get to you. Most think they are coming from a good place and thinking they are being helpful. Best of luck ♥

[@caraevans2609]

I’m so glad he’s getting to go home soon! I know all too well how much It sucks being in the hospital during the holidays. I once had a surgery where I was in a body cast for a month and my cousins sent me a huge box full of little gifts, one for each day while I recovered. Maybe you and the kids can make a huge advent calendar with little gifts for him to look forward to opening each day as he recovers. Sending all my love and prayers to you guys! You have no idea I much I adore you boss mama! ❤️✊

[@roundhousekickgirl4512]

I’m so, so happy to hear he’s hanging in there and getting better. Ty for the updates on his healing. I’ve kept him in my evening prayers and will continue until he’s home and all better.

[@wyomingfibers5463]

Go Lonnie Go! I know it's hard Miss Stephanie, but you are doing your best. You and the whole family will keep rocking.

[@joannanordfan1279]

You are very brave and amazing mum! Sending love and hugs from Poland.

[@teresanorris4769]

I can imagine how this triggered you. Him getting sick when you thought he was the one child you didn’t have to worry about. My sisters and I (3 of us) all have different autoimmune diseases. I wonder if they can run in families. My sister gets infusions for her rheumatoid arthritis which showed up in her early 20’s. It does help slow down the disease. I hope he can live a long healthy life. Sending love.

[@rosalyngummer6587]

They often do run in families and can have a genetic component

[@sterlingmatsui154]

Absolutely, these tough AI Diseases run in families, sadly:( My Daughter & I have Lupus, my Son has Inflammatory Bowel Disease, all Sisters have RA, Hashimotos or Graves, our Dad had Churgg Strauss Lung Disease, which is like a Cousin to Wegener's, etc, etc, the list goes on & on in my genetics...My excellent Rheumatology Doc at UCLA is a Professor & top Researcher for these issues~She recently told me they are looking closely at "Familial DNA", in addition to hormonal & viral triggers for setting off flare-up complications & severe symptoms, such as my 2nd pregnancy did for when SLE begin to occur in my body!!

[@zomb_bree7950]

100%!

[@sky-hv4zo]

What do y'all have

[@karenashton5053]

Yes if a parent has an autoimmune disease you have a 50/50 chance

[@katielusk185]

I have vascultis in the eye. So I understand the seriousness of this disease. I also have asthma. So this can be important to stay on top of. Prayers for you guys.

[@abbyt.964]

I am SO glad that they have figured out what is going on with him. Now they know how to target this disease. Wegener's is NOT an easy journey (Coming from someone that has had this disease for like 9 years now) but it is a do-able journey. Hang in there Steph! I'm Always here for you in ANY way that I can be!!!

[@abbyt.964]

oh, and the Rituxan kills off the overproduction of B cells which this disease makes our bodies make too many of creating the issues

[@paige3152]

I love seeing how good the little kids are doing!! Penelopes eyes are sooooo gorgeous

[@janicemichaloski5292]

I'm so glad things are looking better for Lonnie jr he has a rock star for a mama that's for sure 🥰

[@rainthomps694]

I love that he is going through grateful And not bitter. Beautiful soul

[@robylove9190]

I'm very happy to hear that Lonnie is doing better. I'm hoping that he is well enough to be home by now. I'm sending love and healing energy for your whole family ❤️

[@Carolineisthebest]

Sending healing thoughts to Lonnie Jr. and Steph! Hang in there❤

[@jennyann5405]

Thank you for the update. I'm glad Lonnie Jr. is doing better. That is a lot to handle & have going on. You have done such a great job caring for him as you do w/ all of your kids. If I could have given a thumbs up multiple times in the video, I would have. I can't begin to image how hard this has been. You truly inspire people.

[@Wildernessadventuresoz]

Yes as a kidney/ endocrine nurse this is a very serious autoimmune disease. Very rare for people to have it appear in their teens. All the best with the recovery. He will be well looked after stay strong mumma

[@elfstarsaka]

When you say medical stuff is so much scarier than developmental, I totally understand and agree. Both my kids have developmental and medical stuff (though my 6yo is past most of the medical), and the medical stuff is SO much harder. Lots of love to y'all.

[@Spooky-charms]

Prayers and love sent your way from one momma to another.

[@sarahcoppernoll2466]

Man sending all the positive vibes. We learned about our daughters medically fragile condition almost a year ago now and definitely so much scarier than any neurodiverse needs that she also has. I can tell you while it never gets easy having to watch for things and give meds or take to specialists and treatments…it does at least become the new normal over time

[@elliotkl]

Agreed. I used to be the healthy kid, and now I'm the medically fragile one (though now an adult). It is definitely always scary. I always feel like I'm waiting for the next shoe to drop and the next flare to happen and to see how bad it will be and if it is hospital worthy or not. But you do get into the swing of things. It kinda sucks because that new normal might involve lots of meds and supplies (I literally have a specific medical room full of equipment and supplies in my house), home health, always having a backpack filled with medical supplies that I haul everywhere, equipment, etc. That's a lot to get used to. But it does become normal and things you never even knew about become a habit to do.

[@eden-caledoniajohn3168]

Autistic Mama to two autistic teens here, having experienced my son having major abdominal surgery as a toddler, I totally agree - autism I can totally deal with - medical Mums you are amazing! How are you coping Mama, that’s a whole lot of change, a lot of stress and your anxiety must be sky high. Do you have support when you are at home? I hope you do, please also try to look after you so you don’t reach burnout. You mentioned a counsellor you were seeing for your relationship, definitely speak to them if you can, medical emergencies can be incredibly traumatic! Much love and prayers for you, Lonnie Jr and all of your beautiful babies! Your youngest three have got so big!

[@stacyocharo3068]

Lonnie Jr is so fortunate to have you as his mom. You are a warrior and you will be his biggest supporter and loudest advocate! Sending more prayers

[@Sarah-yv8dn]

I can't imagine what you and Lonnie Jr are going through. Prayers for both of you 💗

[@annietaylor8598]

So glad he's getting better x I have vasculitis with kidney involvement and have an infusion or rituximab every 6 months . Dont be surprised if they give him a mild chemotherapy..Your all in my prayers 🙏 ❤ Love from England 🇬🇧

[@Kiddly3000]

hugs and I will keep praying for him and you all that he will get much better soon and that you all will have a good Christmas

[@karenpope118]

I am so sorry that Lonnie Jr is having such a long hard road with all he has had to face and will still have to face -and bless you as his mother who is doing everything you can to ensure his health and happiness -you will all continue to be in my prayers everyday -I know this is affects everyone in the family -my heart goes out to all-thank you for sharing and keeping everyone up to date -take care -get as much rest as you are able -sending continuous prayers-caring thoughts-lots of love 🙏🙏🙏🙏🙏🙏🙏🙏💗💗💗💗💗💗💗💗🥰🥰🥰🥰🥰🥰🥰🥰🙌🙌🙌🙌🙌🙌🙌🙌🫶🏻🫶🏻🫶🏻🫶🏻🫶🏻🫶🏻🫶🏻🫶🏻

[@JD-id7cv]

Wishing Lonnie Jnr a speedy recovery and hope he’s home soon. You’re doing so amazing, steph! Prayers from Australia! 🙏💕

[@williamprice7948]

Big hugs I hope I love watching The landing crew I have autism myself I'm 45 years old high-functioning I really enjoyed watching the shows it's all too real to me I go through the same struggles as you do

[@Jojo-gg6jc]

I'm so happy to hear that Lonnie Jr is doing better, continued prayers for him and your family. God bless all of you 🙏💙🙏

[@jameyhysell9864]

My mom was on the ventilator for 5 months on and off. It did take a long time for her to get better. She got put in the hospital November of last year. It does take awhile to get back to normal. But we all believe in you, prayers are being sent your way. Get well soon!

[@pattyespinoza1217]

I’m wishing you and your family the best and praying for Lonnie Jr.

[@Its_Faith_617]

sending so many prayers that he recovers fully, and he has no to very little damage in his lungs ❤💙

[@SandiByrd]

Oh man this poor kid is going through so much - but as you said - he's HERE. That is what's important. Sending so much love. I know it's hard to know he's going to have to struggle - but it's going to be okay. It really is. Stay strong.

[@Fallenfromgrace1990]

I am chronically sick with EDS, Mast Cell, POTS, Gastroparesis, EoE. It takes a toll on you as a parent to see your child struggle. I see how it affects my mom everytime I have to go to the hospital and get another diagnosis or see me go through another procedure.

[@lindsthomas9590]

God is good. God is so good. 🙌 I just found your family channel (fellow autism momma here) and the first video was about Lonnie Jr. being on the vent. Scared the heck out of me for you. It's so nice to see that he's doing so much better, despite the long road ahead of you all. I want you to know that I will be praying for Lonnie Jr and your entire family. I just got to the end of the video and am seeing the setback. It's one setback on his way to healing, and God is holding him in His hands. He will help to heal him and restore him. Hang in there, all of you. You WILL get through this. ❤️❤️❤️ Sending many hugs, lots of prayer, and so so much love from Ohio.

[@kellieagrusa8998]

Continued prayers for Lonnie Jr. and his road to recovery. He is a very strong young man, who is loved by so many. Many blessings from Michigan ❤️ 💓 🙏 ✨️

[@tweetiebirdism]

You’re doing great mom, Lonnie will get through this!

[@ireneatam8161]

Stephanie you are so strong and you don't get a break. Super mom! I'm praying for you! You got this

[@audreyscrapaloup]

My father had this disease a long time ago in his old age. I didn't think it could affect someone so young. It was treatable back then and surely there have been lots of advances in medicine since my father was sick. Wishing Lonnie a speedy recovery and a lifelong remission. Hang in there.

[@OurLANDingCrew8]

Neither did we 🥺

[@Jennifer-il7ev]

You are beautiful! Please do not worry 😘 Best healthy and happy wishes sprinkled on your son!! 💕

[@monicabain9060]

Your doing a great job mama!!! Everyone is going to have their own opinions on how treatment is going for your son. My son has a condition that there are only 5 confirmed cases and is a nightmare and I had a lot of criticism but I trusted my sons doctors and that we were receiving the best care and indeed we did. It seems like every medical condition has side affects and triggers other medical issues. Everyone is affected differently. My son was 16 when he had a life altering nightmare. We still see so many doctors and It doesn’t get any better. I get through this with a solid support system. Your doing an amazing job and remember to take care of yourself!! Thoughts and prayers for Lonnie Jr, you, and your family. I love to hear the updates. Have a great week.❤

[@cruiser122s.d.8]

I have many rare and chronic illnesses. I also have other disabilities too. Everyone is different when it comes to needs, even medical needs. You and your doctors know what is best for your children. You are guys are in my thoughts and prayers.

[@erinadams6749]

Glad he’s doing a little better, continued prayers for all of you Stephanie!

[@holdendmb]

Thank you for taking us on this difficult journey with you. I hope you are taking care of yourself during this stressful time. ❤

[@brendarobbins8832]

I’m so glad to hear of Lonnie Jr’s improvement! While he does have a long road ahead, he sounds like a trooper and will put in the efforts needed. It’s an adjustment for everyone and some days may be really difficult. You are such a great Mom and have so much experience with seeking and accepting assistance that I know y’all as a family and individuals will come through anything. ❤️🙏💪

[@Nectarisa]

I am so so sorry. You are such a strong mom and a good mom. Thinking good thoughts toward Lonnie Jr's recovery.

[@lakinworley5685]

Sending warm healing energy your way. My daughter was diagnosed with autoimmune hepatitis a few months ago and recently prediabetes, we understand the struggle. Stay strong mama

[@Sungirl430]

This is so awesome! Thanks so much for the updates Stephanie. I just want to jump through the screen and hug you when you cry 🤗 We are still sending prayers and healing vibes ❤️🌹.

[@shesforgivennfree]

So glad he is getting better even if its slowly.

[@carriebowlen3785]

Thanks for being a part of my Life! I love you so much!! I AM THANKFUL FOR YOU ALL! I am sorry! I have Asma as well it isn't fun. I had double pneumonia two years ago.

[@ameliabraithwaite3403]

Im so sorry you are dealing with this.. hospital stays are hard! When my twins were born, one spent 25 days the other spent 143 due to her health.. she is on 24/7 oxygen 500ml when awake and 1 litre when asleep on bipap.. I saw her lung xray for the first time last week when we were in hospital for a chest infection..and never knew the damage..she has half a lung on one side which she was born with due to her chromosomal abnormalities. The twins are nearly 14 months now. I hope your journey goes well and all the best to your son x

[@Sedgies]

I’m praying for Lonnie Jr and the whole family. You’re such a strong Momma. Please be sure to take care of YOU too. Sending hugs and lots of prayers. ❤

[@tonilevinson8511]

Keeping your son and all of you in our thoughts and prayers.

[@MissLady-pq4hc]

Love to all of you, please take care. From Rhode Island ❤️

[@sophiaramos3273]

Sending love from Rhode Island ❤

[@jodiosborne5056]

Thank you for the update, Stephanie ❤ I bought some stuff from your store for Christmas.

[@AnoukMali7899]

Sending healing vibes!

[@Sarah-ft8jr]

My friend has the same disorder. Hers was diagnosed when she was 26 after she woke up with her eye bulging out of her head after a simple eye infection. In fact it was about 2 years after this event that she was diagnosed and it took several specialists to pin point what was wrong. She’s been fine ever since, but has had to have steroids on and off for 10 years now. She still managed to have 2 children and live a happy life.

[@OurLANDingCrew8]

Oh my gosh! BLESS HER HEART!

[@nathanmueller7732]

Oh I feel for her

[@nicoleroles2018]

The amount of things that you have faced as a mother is inspiring. I’m sure you’re wore down and tired at times, but you are an example to us mamas everywhere.

[@craftywinnie6023]

Sending so much love from the UK ❤️

[@chrislanstelly7709]

Sending lots of prayers I would have to agree having a child who Is medically complex is very hard this last year has been hard I just pray it gets better and stays well soon

[@conniewhitmarsh712]

More prayers for Lonnie Jr and your family. Thank you for sharing. God be with you.

[@crystaljohnson3669]

Prayers, my heart hurts for you guys. I'm glad you still have your baby though. I hope you find a way to get some rest and take care of you.

[@brettwildrick3131]

Love you Steph! Have been following along and keeping you in our thoughts and prayers. Burning sage for you guys too. xoxo!

[@RosesandBlingPapercrafts]

Sending my continued thoughts and prayers to Lonnie Jr as well as you and your family 🙏❤️

[@Kittkat1980]

Will keep praying for l him and you and thanks for the update

[@Cheyenne_writes]

Anybody who tells you that his steroid dose is too high has obviously never dealt with a rare autoimmune disorder. I have three different very rare autoimmune conditions and have been on 1500 mg before. Steroids are bad, but autoimmune stuff is far worse than anything high doses of steroids can do in a short period of time. Sending lots of love and light. 🙏🏼🙏🏼🙏🏼

[@cheapthriftymom7284]

Such a strong kiddo! Love from Michigan!!❤

[@nikncon1]

I have Pulmory Hypertension.I had blood clots in my lungs last year and had a ten hour surgery and a two month stay at the hospital.I am 71 years old.😁I’m still on one litre of oxygen but hopefully will be off of it next year.Your son is young and strong.I’m praying for your son to recover completely very soon.💓🇨🇦

[@genetacres5476]

So happy to hear, you have great Doctors. And Lonnie Jr is doing better than he was! Yes medical very scary! Especially when it concerns your childern! 🙂💜🤟

[@serenareath2095]

As long as he's getting better that is all that matters slowly is better than not at all hopefully he is home soon figuring out a new diseases late in life must be stressful and taking it slow is perfect hopefully he's home soon and on the road to recovery

[@saml4004]

First and foremost, I’m SO happy to hear he’s doing better and they figured out what was causing everything. You’re right when you say a medically fragile child is harder, it’s MUCH scarier. I will continue sending healing thoughts to you and your family. Also, I’m SO glad that you addressed the issue of people saying he should/shouldn’t be receiving certain treatment. Did my jaw fall to the ground when I heard it was 1000mg of steroids, yes, but only because of the shock of it and the picture it painted of how serous this has been. The doctors are the doctors for a reason, they saw fit to use this treatment and it’s working. Desperate times sometimes call for seemingly desperate measures. Hang in there mama, you are great and you can tell your kids are so loved!

[@_my_insomnia_blink562]

I'll be praying for your lovely family. Sometimes I'm terrified of having a rare disease, I would probably never be cured in Greece. I hope things are a little better there.

[@billostrowski8005]

Fight fight Never give up, Lonnie you have the right stuff to keep up on your meds Prayers

[@laurainthesky3765]

Sending healing thoughts ❤❤

[@jenniferbrys7143]

I was on a ventilator for 21 days. It will be 11 months since that medical event this month. I am not using the inhaler and not requiring oxygen. I am also doing all the daily tasks of life by myself. I also work as well. Have hope . It will get better

[@OurLANDingCrew8]

I’m so happy you’ve had these results! Unfortunately his is more than just the ventilator. It’s permanent damage done to his lungs along with an autoimmune disease

[@jenniferbrys7143]

You’re in my prayers. You are a amazing mom.

[@NickUncommon]

I was in hospital for ten weeks with complication after complication after a rare spontaneous brain bleed and on high steroids to keep the swelling down. I developed steroid related diabetes, this is the only thing, I would ask you to keep an eye on, that he gets Insulin, in case his Pancreas needs the support to deal with it. It is hard to be witnessing it in the family, but you all are strong and love does wonders, going through this hary time. Fingers crossed, this will get to a stable situation and the immunosuppressants do their job well with few side effects.

[@livingdeadgirl12090]

I am praying for him and your family. I am glad to hear he is doing better.

[@yanniegrannie]

My daughter was intubated for 21 days in 2019 bacterial pneumonia viral pneumonia and then a vent acquired pneumonia. She has heavily damaged lungs, but she is ok. She also has an immune condition which complicated things but she did heal. At 42 she has had to retire and take life easy. These things take a toll no matter the age, its so hard. Much love as you travel down this road. Best advice looking back is to remember healing from this is not linear UPDATE My daughter has started to experience severe problems in arterial oxygenation. Venous levels are normal but arterial is in the 40s or 50s two respitory specialists have concluded its not her lungs and one cardiologist has said its not her heart. We are currently on cardiologist #2. We have recently noticed when she sleeps she does not breath thru her diaphram but only her chest. So now we are wondering if heart and lungs are OK has she damaged or paralyzed her diaphram as a result of the extended ventilator use at 100%

[@Jess-wk5jo]

I have question does your daughter have heart or lung condition for pneumonia to damage her lungs.

[@yanniegrannie]

@Jess yes we have just found out that she has diaphram paralysis, just last week so now we have an explanation why her arterial oxygen is so bad. We are waiting for specialists to be reffered.

[@yanniegrannie]

@Jess she had h1n1 and with it came a viral pneumonia and a bacterial pneumonia and then later she developed a vent acquired pneumonia. So three pneumonia and ARDS which progressed to severe ards called sars

[@Jess-wk5jo]

​@@yanniegrannie can people get bad pneumonia with heart defects like Tetralogy of fallot?

[@yanniegrannie]

@Jess I am not sure I do know that in her cardiac appointment last week tetralogy of fallot was on the table. Her oxygen in her surface veins is almost normal, while her arterial oxygen levels are in the 40s and 50s. Even with supplemental oxygen the higest she was able to achieve was 75. Respitory has said its not her lungs, and cardiology has said its not her heart. So now after an er visit back to cardiology, so many questions and so few answers

[@tonisangel5024]

My prayers go out to Lonnie Jr. God bless his precious soul im hoping as he gets older this illness will get better Im so so sorry sweet mama its ok to be scared I would be going nuts!! Youre a strong lady praying for you and the family big hugs and lots of love...😘🤗💥🙏💥💜🌻💜💫🌟

[@wishupondreams]

Sending prayers of healing 🙏

[@arvillamclaughlin998]

Continued prayers 🙏

[@danabays1451]

Praying for Lonnie Jr.!

[@muddikissez22]

Some things Ive learned from recently having a family member run into serious and ongoing medical issues... The scariness comes from not fully knowing what's going on and what you can do to help if things go down hill quickly without the presence of medical staff... feeling helpless. As time goes on you will learn more and become comfortable with what is happening and what to do. Some of it also comes from BEING helpless, knowing that sometimes there is nothing that you can do but get them to medical staff as soon as possible. I'm still working to cope with that, and I believe I always will, and that's okay! One person can't have all of the bases covered, but as a family + a good medical team, you know you're giving that loved one the very best chance to live and thrive with their condition. Worst case senario. Coming to terms with the possibility that even despite all of the best care in the world, there may come a time when they don't make it. Thinking about that sucks - but it's a real possibility when your loved one has a serious medical issue. Everyone is different, but I've found that it has helped me to feel more prepared to focus when something goes wrong because my mind isn't whirling at that thought because I've addressed it. Just what I've learned so far in our journey, hope it helps in yours.

[@chelseywickham650]

Also a mama to an autoimmune kiddo. The rituxin will tell the immune system to calm down. My kiddo gets an injection once a week. He was diagnosed at 11. His was also very severe, he had pain killers, prednisone at a high dose. Joint injections. Then started on methotrexate. It wasn’t enough, so he was then put on a biologic. Once that was done, they weaned him off the other stuff and it’s now been under control for over a year. Prayers for your family. My best advice, trauma therapy. It takes a long time to recover from such a traumatic experience.

[@alicenovak3579]

Praying for all of you!

[@michellehuhn7303]

Your so right Stephanie I have 2 teenagers one disabled with a lot orthopedic issues but my second son who had no issues got diagnosed out of nowhere with autoimmune disease which he almost died 2 years ago and effects his life daily and mine it’s way worst then with my son with disabilities . I 🙏🙏Lonnie Jr recovers with very little lung damage as possible. I agree Dr know what they are doing and pulmonologist ppl on sm think they are drs . Agree my son that’s disabled he has a pulmonologist he asthmatic, but it’s not that bad only when very sick we gotta worry he don’t use nebulizer treatment daily etc .

[@sweetie664]

Yes Yes I was on the ventilator for 10 days it been a year and still not the same

[@karenkane3220]

So scary! Great news that he is improving!

[@smilingjacks83]

Sending lots of love ❤️

[@susansgalaxy2219]

Sending love and prayers your way 🙏🙏❤️

[@kellimurphy755]

😂 Liam’s hair was the highlight of this video. ❤❤❤

[@terinnacrowder9145]

Mama you dont owe any explaination of anything. Everyone always thinks they know best for YOUR child. YOU do what you feel is best for your child.