Generalized Dystonia

[@riastrad]

Dear Paddy, I am a final year medical student. I watched your video several months ago whilst on my neurology rotation, as I wasn't sure how it would manifest i.e. which movements the person would exhibit. Last week I had my final medical exam & I was brought to a patient with dystonia. I was one of the few students who identified the problem correctly. Without your courage & inspiration I would possibly not be qualifying as a Doctor in a month. Thank you Paddy!

[@Ruth0Ruth0]

My baby boy has dystonia and doctors can't tell me if he'll ever walk or talk or do anything for himself. If he turns out anywhere near as brilliant as you I'll be so proud ❤

[@floweryulis6759]

Semoha Tuhan menguatkan dan menyembuhkan saudara ..amin

[@tomdamour4902]

Hi, was just diagnosed with Generalized Dystonia too. Your video looks so much like me trying to get around. I'm not glad you have it, but I am glad to see somebody else who understands what what's it like. Hang in there my new friend.

[@jendorn]

Thank you so much for sharing what life is like for those of us living with generalized dystonia. We need more awareness particularly amoung the medical profession. Your relationahip with your dog is remarkable. The bond is strong and it is great to see his love for you. Keep up your great work.

[@donnaflores8745]

God bless you my friend just watching you I feel so for you I've been diagnosed with General dystonia and it is very difficult when I go through the storms you have to rely on your faith in Jesus

[@rooarcamun]

Paddy, I am so pleased to see you are still making noise, and this is this kind of noise that will make a difference. It is time the rest of the world appreciated the very real difficulties and trauma you and others who have dystonia have to deal with on a minute to minute basis. I hope the people who are able to make a difference get to see as well as read your work. Glynne

[@kaazoom]

Thank you for posting this Paddy. I hope the right people see it and it makes a difference. Good to see you have a still have a sense of humour despite all of your difficulties.

[@gloworm353]

Thanks for sharing Paddy, I had never before heard of Generalized Dystonia until you posted this vid. Very informative, and for those of you who are in the medical profession, take note! I look forward to seeing more of your vid's Paddy; your strength is inspirational *****

[@Selah7777]

Paddy I have been ill these last few days and cannot do much at the computer but will write soon. Lene

[@FullTimePatient37]

I have generalized Dystonia i can't speak I'm more spastic less tremor..😢

[@jameskeffer4091]

thx for sharing. i have distonia also, so i know the pain your going threw. best wishes and a lot of love.

[@susanjolson8788]

so proud off you shareing this and a lot off pepole dount understsand how it can be the just think we are acolholics or druggys witch ant the case

[@shuggiemcg1]

Thanks for sharing mate good luck to you i have Dystonia but no where near as bad as yourself.

[@mapleclose]

Thank you, Paddy .. I had not even heard of Generalised Dystonia until our chat yesterday ... I now have an awareness .. thanks .. hopeb to chat again soon (after YOUR busy today has ended)

[@wiscsuzski]

Well done. I hope this video proves to be worth your great effort.

[@jaquot7]

Hello Paddy, Jacques here who again checked you video this afternoon. Always very moving! Regards, JJ

[@zkorpioz]

What about the pain? How do you manage that? I have experienced dystonia, but in my case I couldn't control my whole body... mouth, eyes, nek, abdominal muscles, back muscles, legs... I don't remember if my feet were also doing that. And all this was because I stopped taking Paxil (Paroxetine); I forgot to ask my doctor for more refills. Second time was when I tried to quit the drug... and then that's when I realized it was Paxil withdrawal causing that!

[@Beavernator]

I have generalized dystonia in my whole left side and right side of my neck. That Cheerleader Girl vid made me soooo angry. And I never get upset, because stress can cause an incident. I wrote that news station went off something epic. I would never wish my condition on anyone, but she was so blatantly faking it, it was disgusting. It's also very difficult to diagnose, and with very painful tests (EMG etc.) My heart goes out to everyone with this.

[@DarthFurie]

I sympathize with your struggle. Best wishes to you.

[@nonsulen]

Hi. I recovered from dystonia. Don't let the doctors tell you there is no hope and do not let then drill holes in your head. I believe everyone can recover a minimum of 95%. I was told I was heading towards a wheelchair, well 1yr later I walked into the doctors office and told him he is a lier and from here on he will not be using my money to buy his new BMWs. Its been 4yrs now and no dystonia.

[@gargos25]

I wish you all the best, mate...

[@jaquot7]

Thank you for your very personalized video Paddy, very, very moving! Best regards, JJ

[@estelatorres9627]

thank you for making his video

[@rarely_social]

Dogs are always there with us in our good and bad times

[@cooldocmom]

Yes, and I believe that woman has psyhogenic dystonia ( I don't mean whe is making it up, I mean that it is caused by a psychological issue of some kind) Notice the big differences between her and Paddy: how symmetric, rythmic and coordinated her movements are, and how good her balance is. It would be good to bring attention to the valiant struggles of those with this illness, but I'm not sure this woman is the way to do that..

[@jgh548]

Paddy - thank you for this video, I hope people take notice of it. I am 28 and have Dopa-Responsive Dystonia (Sinemet relieves my symptoms but I have no degeneration of the Basal Ganglia, so not Parkinson's). My symptoms are similar to yours, although nowhere near as severe. I appreciate your struggle and I think much more needs to be done to raise awareness of this bitch of a disease.

[@KILLAMANJARO3]

have they fofered you dbs (brain surgery) to stop the movements? I have essential tremor with POSSIBLE secondary neck dystonia (cervical dystonia). i am meeting with a neurosurgeon april 2nd, finally to discuss two different surgery options. 26 years later for me!

[@eddysacat]

Paddy, my name is Andy and I live in Arizona. I was diagnosed with MS last year and when I got out of the hospital I researched MS for many hours online. In the process, I found many other brain diseases/disorders that made me feel fortunate that MS is all I have. Near the top of the list would have to be dystonia. Number 1 are the various prion diseases, number 2 would have to be ALS.....and so on. Is deep brain stimulation an option for you? You are a brave man and you give me strength.

[@GetFeisty]

Thanks for posting and sharing. Keep it up!

[@Demonicii]

I know how you feel. I'm 18, about to turn 19, and there's not an entirely good chance I'll be able to make it to my party. I always shake, though it's gotten worse lately especially if i try to pick up a small object. From time to time I'll throw something on accident, no matter how odd that sounds, because I'm shaking so much. I fall quite a bit, and when I do i don't have the strength to pull myself up, either.

[@Loonatiks3]

Hope you're doing okay Paddy. :-)

[@madeleinehamm4881]

Youre an inspiration sending you message to everyone! Stay strong

[@Tru1981]

Are you able to take any meds for this? MY left shoulder started twitching three days ago and I cant figure out why...the only thing that helps it is valium, but after two hours of taking my meds it comes back :( How can u tell if its dystonia? The er doc said it was a focal movement disorder of unknown cause. I also have Lupus so we are trying to rule out a Lupus related movement disorder...I hope u feel better soon

[@davidsilva563]

I have had this for 22years Now . I have Tried to Kill myself 4 Times Because I can't Handle the Pain and Depression . I'm Like Paddy , get No Help what - so - ever . I Can't even get a Wheelchair .

[@mitzarisarahimirandacarren6289]

hey Paddy, do you have the complete video?

[@monikawalo1382]

Try to contact Dr Farias in Canada. He's got some success in treating dystonia of all sorts. Met him personally on workshops, great man.

[@IrishPrincessEGB]

i wonder how he got the camera so perfectly praportiand to him....

[@jgh548]

Paddy, have you thought of taking this to the press? There's so much awareness of Parkinson's now, but not Dystonia.

[@jaquot7]

Dear Paddy, thank you for sharing your ordeal with us the general public who care. May I ask since how long you're suffering from GD? About the eamail, you should know that everyone can use the personal email integratade in this website up in the right corner under our name or pseudonymn. I would like to exchange emails in that system because it more personalysed and private. I wish you well Paddy and again thank you for sharing your ordeal with us we sure do ampathise with you my dear friend.

[@musky2112]

I have generalized dystonia Seen several Neurologist supposed to be best in their field. One diagnosed me with Sydenhams Chorea put me on all kinds of Meds but symptoms kept progressing. Went on the internet researched movemment disorder saw dystonia and said to myelf I hink that's what I have. Went to Mayo Clinic in Jax FL and he told me I had Dystonia. Came back home saw a movement disorder specialist. Put me on meds was not helping and finally last resort surgery DBS (Deep Brain Stimulation).

[@1278hump]

musky2112 what kind of meds did he had you on

[@gargos25]

well, I wouldn't trust conventional medicine on solving this issue (if I would at solving any issue). Searching Google intensively helped me a lot with solving my posture problem, which causes a very wide range of modern "civilization" diseases. Real yoga seems to heal nearly any issue. In your situation, I would definitely give it a well aimed shot (alternatively, visiting a quality native guru may bring a solution). I'm interested into the holistic way, therefore the ending of my last comment

[@andrewbrennan7291]

Hi Paddy. Hope all's going well.

[@tomhaywood8619]

How are you doing today?

[@nonsulen]

I still deal with pain from the damage the condition caused to my neck but that only lasts a day or 2, most of the time advil takes care of the pain. Contact me and I will tell you how to recover.

[@valeriealv7503]

This is not dystonia

[@FullTimePatient37]

I agree ..my channel is about it..

[@Loonatiks3]

hope you're doing okay Paddy :-)

[@fudgesauce]

Paddy, I'm a non-believer as well. My comment was mostly a poke at those who contend that everything that happens, good or bad, is part of God's plan. One would have to go through some painful contortions of logic to reconcile the claims of God's goodness with the hardships you endure daily. However, I live in a land of biblical literalists (Texas, USA) and such terrible things cause them no pause to wonder. They just swallow it down like baby food.

[@jaycee8012]

is it the left foot is not functioning at a[[

[@therockyroden]

Stay strong.

[@Superflamer99]

I love your adorable dog! :3

[@joshuacox1709]

Do you have to wear diapers

[@lytaalexanderable]

ive just found out ive got this and its been confirmed at kings college london.

[@tylerpool5464]

How are you now?

[@CecilMuffin]

ive had this. in my entire body. Getting doctors to understand or take my complaints serious is hard. it started happening after eating gluten or dairy. So cut it out obviously. it does happen only a milder scale when im tired or stressed but those two foods seem to make it worse and it takes awhile.. weeks even months to calm down after consuming these things.

[@fudgesauce]

Just what was God thinking when he made up this affliction? Maybe He idles away the time watching youtube videos as well and will rescind the order. Let's hope!

[@gargos25]

hey paddy, I have the same shit going on... I only do it when I am alone though because parents taught me it was something bad... don't worry mate, I actually think the problem lies within some tiny blocked nerve... Yoga and a healthy spine will definitely help us... I am starting soon Don't forget: TAKE IT EASY, all people are different consciousnesses of the same THING

[@DurtyDominican]

you're completely wrong they just did a story on a woman who developed it from a flu shot... so perhaps you should take it to them while its hot along with your best wishes

[@musky2112]

DBS is widely used for parkinons patients but find it beneficial for generalized dystonia. I had my left side done May 7th 2012 wwith the battery pack alreay turned on now i can grip a pen and write normal aand i can also ut my foot steady on the accelerator and drrive normal. Just got through my second surgery for my right side July 11th 2012. They turn on my battery pack Aug 21st. 2012. I'm at 40% right now hope to be at 80-90% come Aug 21 Try you tube DBS you'll be amazed with this procedure.

[@Newmann76]

Thanx for sharen

[@mouse5631]

❤

[@onlinesuccess10]

I have a friend who has helped dozens of people with dystonia. I suggest you Google "Steve Zarren" and check him out.

[@ДимаСеменов-з3з]

1992.11.15

[@jaquot7]

Hi there Paddy! Hope you're well my friend, well as well as you can be or even better, if your health iproved. Please write to me in my inbox I will feel more free to talk to you. Best regards and big hug my friend! Yours always, JJ

[@AGUILADEACERO]

no parese distonia

[@amyeffinlittle]

8:22 :)

[@paddydoyle7829]

Just checking to see if this channel is still running

[@nonsulen]

Hi. I recovered from dystonia. Don't let the doctors tell you there is no hope and do not let then drill holes in your head. I believe everyone can recover a minimum of 95%. I was told I was heading towards a wheelchair, well 1yr later I walked into the doctors office and told him he is a lier and from here on he will not be using my money to buy his new BMWs. Its been 4yrs now and no dystonia.

[@penelopemay6379]

nonsulen Thats great. Perhaps elaborate on what cured the 95% of your dystonia spasms?