Palliative Care - Gabe’s Story

Your gifts to the pediatric pain and palliative care program at Helen DeVos Children’s Hospital are helping patients like Gabe find hope and comfort by providing exceptional care and quality of life. This program allows us to provide state-of-the-art pain prevention and treatment techniques to children here at our hospital, maximizing their comfort.

[@marciajones2993]

Just because people carry things well. Doesn’t mean it isn’t heavy. Love and light to you all. Bless you. 💙😢

[@rachelh2731]

"If we can't cure, how can we still care?" Wow ❤❤

[@jameskirk2579]

lot's of kisses to Gabe and to their parents.

[@Totalchaos0228]

This little boy knows alot of love. His life may not be long and he may never do the things his parents dreamt for him...but he will know love.

[@cruisingkirby.8188]

DssPdssDss

[@joyceanthony-huff2914]

A lot is two words

[@joecola6415]

@@joyceanthony-huff2914 well aren't you a petty, disgusting clown of a person.

[@WynterVil]

​@joyceanthony-huff2914 This video is about a baby that was dying, and all you care about is someone saying alot? Very sad.

[@Skittlesskittles-om6hp]

Gabriel is a gift from our Heavenly Father…Amen🙏🙏🙏

[@avrilbowler8755]

What amazing, loving parents. Their love for Gabriel is obvious in every look and every word. I pray that God's compassion and love will surround you all.

[@loriijanee]

Amen

[@JulieR73]

That doctor seemed like a great guy who truly cares. That's rare these days.

[@TigerheartedWolf]

Especially in the US

[@milliemaxwell5282]

Then you are meeting crap doctors. All the doctors I know and work with care deeply and will do all they can to help their patients and their families.

[@JulieR73]

Millie Maxwell They’re not crap doctors, some just don’t want the emotional connection to the patient.

[@gloriaruiz751]

n mcf7u7pruu790feyda1hf

[@mimibee626]

That's not true AT ALL. I have never ever met a doctor or nurse who werent kind. Maybe the problem has been YOU, probably demanding opiates.

[@leishaflink2317]

I'm a pediatric home health nurse. Thank you for sharing your story and the courage it takes to face a terminal diagnoses for a child. Palliative care is something many parents don't want to face but it's about love. Love enough to have his comfort and happiness as the standard for his care. It is such a difficult decision for parents to choose palliative care but it's not giving up. It's about loving and enjoying the time a child has on this earth.

[@clarefuller4365]

God bless you, it takes a very special person to do a job like that. Thank you for what you do

[@raffaellasusi3265]

❤

[@ThePHYL]

Leisha Flink My granddaughter is a pediatric nurse in the in and trauma center of a children's hospital.....when she got her bsn in nursing she took classes to treat little ones.....she says she also must treat the family as well as the child......btw she was summa cum laude when she graduated.... sorry just love saying that.....nothing like a proud grandma

[@lizzypooh4101]

Nice Job MOM & DAD TWO HAVE A BABY BOY. HE WILL BE LOVE BUY YOU and husband which is the daddy and your mommy you brought something good to earth even if he doesn’t live very long we will have you in our prayers we will pray for him he will go to a better place where God will put him with other children that have the same thing as he did so we pray now oh Lord I hope this kid goes to a nice place in heaven and these parents will remember their child like he was even if he was in the hospital for a long time Lord please help this family push on and the child. 😂😂😊😊😊😢😢😢😢😢😢❤❤❤❤❤ 7:32 PM.😢😢😢

[@lizzypooh4101]

Thank you for doing what you do and thank you for being a pediatric home health nurse some kids need help at home and their parents because once the child dies the parents need help in guidance and we the fans need to guide them towards the light so they won’t be sad the kid will be happier wherever God sends him so our prayers to these people that lose their kids or their little ones however big or small adults old people specially younger kids. :( :( .❤❤❤😢😢😢😢😊😊😊

[@ibraheemahmedahmed8951]

Parents who go through this are chosen especially to bring and show the best in them this shows we are all unique next time we complain we should consider those who are really struggling and not complaining but thanking god for what he has given them 😔

[@Philsta007]

There is no god.

[@Philsta007]

@@brianbachinger6357 There is no god... it is known.

[@doesnotFempute]

​@@Philsta007 how wrong you are. But it's ok. You'll find out.

[@Philsta007]

@@doesnotFempute lol, sure. How embarrassing that actual adult believe this crap.

[@doxiemom95]

how I wanted this story to end with Gabe getting a whole life of his very own.

[@bethshadowen341]

Im glad they treat pain in children. This us a huge step forward....pain used to be untreated in kids

[@carasmussen27]

so true and they thought the kids didn't feel pain. Everyone should be treated for pain.

[@hanmaenen7337]

And even more: the treatment of children in hospitals was often brutal, like the Gestapo, medical treatment turned into outright torture. They were subjected to painful procedures like bone marrow aspirations and biopsies without any anesthetics, simply held down like beasts by some bitches who were misnamed nurses, and even yelled at and slapped in the face when they cried in pain. They were even operated on in that way, for instance the removal of tonsils or ingrown toenails. Things are much, much bettter today in this respect. This must never be allowed to come back!

[@yesiiii2389]

Beth Shadowen wow I didn’t know this it’s horrible to think that they thought kids didn’t feel pain if anything they feel more pain then us adults because they are smaller and more sensitive smh 😢

[@Totalchaos0228]

They used to think that babies didnt feel pain.

[@nenblom]

What a wonderful group of people who dedicate their lives to bettering the lives of others.

[@kathryndrury6495]

The love in the eyes of the mother....nothing can compare.

[@theresahurley5761]

What a bright baby for being so little She's beautiful.

[@StarAnnasDream]

😢😍

[@dominicpascarella8925]

@@StarAnnasDream luck on uuuuhhuhuuyu

[@margaretmcinnes4357]

@@theresahurley5761 u88

[@annaoconnor4151]

I am so sorry for your loss I can't imagine bless your hearts ❤

[@janieseaman9754]

My daughter just beat leukemia thanks to helen devos children's hospital and GOD they r awesome chemo and bld counts septic bless the nurses on the 9th foor😇😇🙏🙏🙏

[@victoriavalentine6314]

so glad for you!

[@tybaby4062]

Janie Seaman god bless your baby may she live a happy meaningful life 💕

[@sandrayoung6341]

Prayers for Gabe & his parents 🙏

[@emmalousiedavis4313]

aw bless this beautiful boy. why does sweet babies like Gabe have too suffer. its not right. there is some horrible people in this world nd then theres precious babies like Gabe. 😇💖

[@Gaibreel]

I hope he's still alive! Really caring parents and staff on his side

[@allieroberts9183]

Unfortunately he just passed away July 23

[@Gaibreel]

@@allieroberts9183 damn gone too soon. Rip

[@irisheyesofbelfast]

David and Christine you are amazing people. My heart goes out to all of you. You are in my thoughts and prayers. Please don't let anyone cause you to lose faith. There is a reason for everything though we may not always know what those reasons are. God bless all of you.

[@loriijanee]

Amen

[@cats0forever224]

praying for this sweet boy

[@sherimcdaniel3491]

God bless your child's physician! What a kind caring spirit he has. You two should have a house FILLED with children. What strong, nurturing and loving parents!

[@JulieR73]

The doctor was truly amazing! You don’t see many like him!

[@mimibee626]

Only "normal" children.

[@amiecartwright7840]

God gave your beautiful baby the best parents xxx

[@forevermore5118]

Such a strong, amazing woman!

[@tessarix]

May God bless and keep your family in the beautiful way your child experiences your love for him. That is all that matters. Feeling loved and giving love to another is the number one thing that keeps us humans going, no matter what age or infirmity. You are so, so loved, little Gabe, no matter where you are, forever.

[@teresamuriniti5026]

Keep strong, love to your little family💙

[@melissalove2463]

That “ Little Dude” song was too adorable ! 💕🥰💕

[@lauriegertenbach3421]

Such a beautiful beautiful boy. May God watch over your family and give you all strength to endure. Blessings to all of you❤🙏

[@firebyrd437]

It would be better if God didn't do this

[@ambercotton3260]

So unfair sweet little Gabe had to have such a rough life.

[@susanwoodrome4651]

Precious little boy!!!

[@shirleyszeliga914]

A gift from God

[@Philsta007]

There is no god.

[@punchline43]

What kind of a messed up god gives someone a gift only to cruelly take it back again?

[@isabellacerff552]

Christina is totally amazing!

[@heathercloete7450]

Thank you for sharing your story.

[@gailcrowe727]

my heart goes out to them.

[@madeleine9907]

Sending love Gabe 🏅🦋😻

[@hippyable]

Aw dad what a beautiful song!!!!

[@StaceyBeryl]

One of Gabe's purposes is you sharing your faith in God and how people can make it through very tough times with Him at our side.

[@punchline43]

Nice spin.

[@pantyflash]

Like, even though he's doomed, you're giving him the best life possible (under the circumstances). Way to go, babes!

[@faroshscale]

That's a rather blunt way to put it.

[@kristinowens899]

Tact. You should try it.

[@lynnemiller3633]

God bless Gabe and his family. Thank you for sharing your loving story.

[@leabaltrenas7205]

🙏Prayers For Gabriel and his Family ******

[@shellcshells2902]

God is giving you both such an amazing testimony! I thank God for Gabe's life. Praying for your family xxx

[@virginiafry9854]

Gabe’s diagnosis is Phosphatidyl-Inosityl Glyca Anchor (PIGA) - a hereditary genetic deficiency on the X chromosome. Passed down from the mother, who is a carrier of the genetic mutation.

[@ALB6969]

I'm sure she had another kid too..these parents are so damned selfish

[@mollyraee5758]

Beautiful baby boy god bless you💙💙

[@loriwagaman4215]

Thank you Lord for giving the world Gabe so that the Dr's can learn from him and so his parents can learn from him. Many prayers for Gabe and this family.

[@coleent6710]

Prayers for you & your beautiful Child.

[@miavlogswithcreamycreamylo1563]

Gabe please live :(

[@emyemyemyyyy]

These videos are so important. I’m not in this position, but I’ve been in many others where I turned to similar videos for information, connection, and comfort. Thank you for putting these together, and thank you to the families for participating. It’s not easy on its own and retelling it for selfless reasons is even more difficult. So sorry for your loss, thank you for comforting others.

[@duaneluchsinger5736]

Angels ARE among us!

[@patriciaschuster1371]

Unfortunately, you don't always get prayers as they have been prayed for, but butbut....God is with us and His reason is so difficult . God understands.

[@ALB6969]

God doesn't exist

[@robinbush8259]

What a loving family ❤️ and beautiful doctor he's so genuine 💗

[@Inuyashalover1]

I pray to god for all these beautiful children

[@Philsta007]

There is no god.

[@Jaque1961]

@@Philsta007 God. Capital G. There is a God.

[@Jaque1961]

Capital G. God

[@Philsta007]

@@Jaque1961 Definitely no god.

[@Jaque1961]

@@Philsta007 Capital G. God. I'll pray for your soul. Hell isn't OK. Believe

[@mariamcelhaney1813]

Sorry for your loss.

[@shereehardin5783]

I hope he gets better.

[@forevermore5118]

It truly takes a village!

[@AmericaWomannn]

Amazing people.

[@christinadehen4655]

I'm sorry Garrett but you have the wrong Gabe. He doesn't go to school yet. Gabe is only 2 years old. Thank you to everyone who is praying for us. He is doing very well. We have a new story coming out soon and I will let everyone know when it comes out. Again thank you for your many thoughts and prayers.

[@sabrinafakkeldy1]

Christina Dehen has it came out yet

[@brinalea7778]

Christina Dehen what is his diagnosis

[@christinadehen4655]

There is not an actual name for it because it is so rare. He has an X chromosome deletion in the PIGA gene. There are only about 24 known cases in the world as of right now. It is a genetic disorder that we did not know I was a carrier of. He is our only child. We did have other boys in the family with similar problems as Gabe but none of them were diagnosed. This is a new diagnosis found in the last 10 years. Only boys can have it and females are the carriers. Now that I am aware that I am a carrier I have decided not to have anymore children so that another child is not at risk.

[@christinadehen4655]

Yes the story is on Mlive.com. Search Gabriel Dehen

[@brinalea7778]

Christina Dehen I just read Gabes story and I'm so sorry for you, he is so cute and it's not fair for him to have this disorder, I will pray for a miracle for you because miracles do happen and I really hope it happens for your family

[@margaretcooper797]

I doubt if these parents could have coped without their faith.

[@nancybeveridgetaylor3256]

I loved the Moses story🥰

[@loriijanee]

Prayers ops God bless Amen

[@lindathrall640]

Gabe please get better soon

[@honeyfairy4506]

Is it krabbs disease? Just curious. Very similar to Elliot. Another little boy on KZbin Regardless of what it is. May you have all the love and strength to continue. ♥️ Much love to you and the family. ❤️

[@rijohnson5929]

He's so handsome!

[@firebyrd437]

Such a sad story, God though does this all the time

[@signetulupan]

This beautiful baby looks just like my beautiful son Joshua! As women age they lose calcium...Ive seen this happen with an uncle of my ex's...his parents were old, as he was the last of 11 kids! I am now praying for baby Gabriel! The beautiful face, just like my sons...looking like, what are you people doing to me! This just broke my heart! I thank you and God for the love you have for Gabe...you haven't given up on him and my prayer is that he becomes perfectly healthy and no one gives up on him! Hes trusting in you, Christina and his loving father! Im trusting in my father, the Lord Jesus Christ for this wonderful child, as I just lost my grandbaby becuz his mother gave up on him! I also lost my wonderful step-dad all becuz he couldnt talk immeadiately after a stroke! Please dont ever give upon this baby, Christina! A gal I went to school with had had 7 miscarriages and couldnt have a baby and I suggested she take calcium and a short while later she walked in the school with the most beautiful newborn baby girl in her arms! I later read that calcium will cure miscarriage, a doctor had wrote about it! Well, it cured her instantly from the 7 miscarriages! Calcium has cured me from a horror I went through! Calcium is the miracle mineral and is short in over 80% of peoples diets they have said for years! Calcium is also the anecdote to almost every poison imaginable, according to Talbotts Medical Encyclopedia! It saved my son Josh from a drug overdose when he overdosed, and thank God I have him today! Psalm 103:3 The Lord, Jesus, that heals thee from ALL of thy diseases! Please, please get the doctors to give him liquid calcium, its called calcium gluconate and watch him get healthy!!! You can get it w/o prescription from any pharmacy! Medications eat calcium up, so it may take a little longer if hes on medications to build up a good, healthy amount of calcium! You can have them test his calcium levels, if u want. I promise you he will get healthy!!! I will be waiting to hear the good news and Lord willing I will be praying for this beautiful child! I love you Gabe! Please get back to me, dear Christina! Prayers for you and family! Love, Cindy Daniel! I dont know what kind of diet he gets, but a glass of milk has 1.3 million pus molecules in it so if he gets milk, the FDA recommends boiling milk for 20 mins to kill all germs! You could use evaporated milk its pre-sterilized and tastes great! God bless you and Gabriel!

[@sarahjones-jf4pr]

How many people in the family have this problem before Gabe?

[@LilyBlessed24]

Thanks for sharing and God bless you🙏🏽❤️

[@lea862b6]

I hate to see children suffer. I really hope this baby's not in pain.

[@esthermiller2713]

Although God doesn’t tell us in His Living Word, believers are convinced that God, being a loving JUST FAIR God, takes to heaven all those who don’t have the mental capability to understand God’s perfect plan for salvation. This couple will one day see their precious little blessing in heaven. They have that joy to look forward to.

[@LoveFlatfootin1]

"We never had a diagnosis for any of the other boys in the family that had these issues."

[@krazykris4785]

Sò heartbreaking. ..

[@bbjovie9160]

tnx for sharing have a nice day

[@donnamellick5240]

These stories are so sad I wish we knew if they are ok we don't get to know

[@snopesshop1903]

“Trusted God” to give them a healthy child

[@kiriforever1]

♥️

[@jujubagirl]

Whats the name of the condition?

[@giulianacatenacci8778]

😘❤

[@kristinan.614]

What was the diagnostic ?

[@bubbles7398]

"Gabe is suffering from a rare and fatal X chromosome mutation in his PIGA gene." I found this from a link on another comment on his story.

[@lovingmayberry2000]

@@bubbles7398 Thank you.

[@ambercotton3260]

♥

[@kathleenporter2235]

❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@rapturesnext2004]

So much pain....

[@eagle7757]

If you Believe in Jesus Christ, you will be Saved by Grace Alone, Ephesians 2:8-9, KJV...,,

[@sabrina19ization]

prayers

[@stefanoprataviera]

😘😘 anche mio figlio ha avuto cure palliative, é molto difficile accettarlo.Ora riposa in pace

[@lindapindabelinda3570]

So brave of them to try to have children even though they knew that there was a fatal illness running in their family that was killing the boys. I hope the information they got from this child makes it possible for the chain of deaths in the family to stop.

[@cherokeeheartct8633]

How old is this couple?

[@StephAnie....]

Cynthia Thomas Does it counts?

[@orchid4me]

I guess that was a commercial for Car Dimensions. It didn't tell Gabes story. It didn't name the condition, or treatment etc.

[@jackiehopkins5118]

What is his condition?

[@snakebitepellehue]

Apparently it is so rare that it doesn't have a name yet. It's caused by an abnormality in the so-called PIGA gene.

[@shilpashet6647]

Apollo Hospitals Belapur Navi Mumbai offers the palliative care in Mumbai. It helps patients to deal with the physical and mental strain that accompanies cancer. Palliative Care in Mumbai | Cancer Treatment in Belapur Navi Mumbai - Apollo Hospitals Mumbai Visit to know more: mumbai.apollohospitals.com/clinical-excellence/cancer-care/treatments-and-procedures/TrueBeam-STX/palliative-care.html

[@jackiehopkins5118]

What kind of disorder that he have? and he is so cute

[@melanieblake2689]

sorry but it's sad it's not fair

[@ELine39]

they very much skimmed over the other childrens' history - does that mean they have multiple children with this disorder ??? that is certainly significant

[@ELine39]

[around 3 minute mark]

[@phuminhle5129]

what disease he was diagnosed?

[@WalkingOnRainbows12]

Ive hust found this: Gabe is suffering from a rare and fatal X chromosome mutation in his PIGA gene. There are only 24 known cases of Gabe’s condition in the world

[@phuminhle5129]

@@WalkingOnRainbows12 thank you very much

[@spoffy100]

@@phuminhle5129 I was wondering the same thing .

[@mikhael6519]

Dalam nama Tuhan Yesus kamu sembuh. Amen..

[@ashleymitchell9917]

Yesterday

[@cathytrent8841]

I have seen too many wonderful miracles of God, to not believe that God can heal this precious precious child, in the mighty name of Jesus Christ of Nazareth.. Amen !

[@user-il8ld8me4s]

Ребёнок испытывает только боль , о каком , его понимании любви , Вы говорите?.

[@kkdoc7864]

God always answers your prayers but not necessarily the way you want.

[@punchline43]

Oh please. Aren't all things supposed to be according to his will? Why pray at all then? There was no point to any of this. You're just making weak excuses for your personal faith.

[@edithseelhoff750]

how is he doing

[@garrettholcombe2269]

Edith Seelhoff he's doing very good I go to his school

[@annoyingb4311]

Garrett Holcombe you have the wrong gabe bc this Gabe is only 2.

[@mimibee626]

It always amazes me when someone says "We prayed for a NORMAL child, why didnt we get one? Why should you and not others? It is very aggrandizing that you think you are better than others. Did you always believe couples who had very ill children deserved it? God doesnt work that way. He is there to support you, not to give you everything you pray for.

[@dcnprl1]

Poor thing

[@wolfgangkunz1903]

Why? Why ? Where is the Lord. It is so hard for the parents to loss their baby. I have Tears in my Eyes, it is heartbreaking.

[@Enoo-Wynn]

This may seem weird, but your comment really comforted me. It was genuine, heartfelt, no platitudes. Thank you.