End Duchenne: Time is Ticking

Duchenne is a fatal genetic disorder that slowly robs young men of their muscle strength. PPMD will not rest until every young man has a treatment to end Duchenne. Help support our efforts: EndDuchenne.org
Video Production: Catherine Collins, Eugene Faba, and Mark Trottenberg

[@JuanGarcia-jr3ij]

2021 born 2006 he still here. Thank you.

[@gracewill7494]

My younger cousin has Duchenne, and though much money has been raised for research, it is still very likely that he will die when he gets to be a young adult. This is a terrible disease and I pray for anyone that has it or knows/loves someone else that does.

[@deevillanueva9007]

Grace Addison my son was just diagnosed I'm beyond grief ..

[@cuteredpanda00]

@@deevillanueva9007 i have musclular dystrophy beckers i hate it

[@Gornodd]

I am learning for my final exam in medical science in munich and stumbled over this video. Ill have too chose a topic for my doctors degree in research. Im highly interested in genetical deseases and frankly im so moved by this video that I so very much want to help.

[@JamesIvanFernandez]

How are you now? I hope you are now a doctor.

[@ShakSterTV]

We need to share this with the world!

[@meldyl96]

My son was named Dylan too. Praying for your family and the cure.

[@shesakillerqueenxx]

Thank you for providing this video - I am a graduate nursing student studying for my boards and wanted to learn a bit more about this diagnosis. You have helped me to better understand the struggles a family with a child that has muscular dystrophy has to face. I hope to use this knowledge in my practice as a nurse. God Bless both of your families...never stop working towards a cure.

[@UmabrasileiranaAmerica]

I learned about this video in my Anatomy and Physiology class, what a touching subject! As a healthcare worker and going towards my nursing degree, all I can say is that I emphasize with you all, and may God bless each one of you.

[@LatishaWright-em6se]

,

[@jakemcl07]

I have this and my life is amazing

[@youtuubechannell]

You're the strongest, I hope you get cured as soon as possible. Could you tell me something about you

[@HighTen_Melanie]

Remembering my friend James Inch who had DMD he passed away at just 22.

[@sharonc8138]

I’m glad I found your channel. I was diagnosed with Myotonic Muscular Dystrophy Type 1. All my siblings have it and sadly before we were diagnosed my sister passed on to her two children and I’m positive my daughter was the one of my kids that received the unstable gene.

[@youtuubechannell]

All I can say is that stay strong, god give you strength and hope, I pray your children get good treatment..

[@AnnetteMurphyger]

Good short and very positive documentary!

[@finley9045]

My brother has Duchenne I know how you feel it's heartbreaking

[@nickn7151]

Emily Lovely my brother also has Duchenne. As a elder brother I know how hard it is.

[@youtuubechannell]

How's he now?

[@uberhaxornovagentwo]

man like im 15 i cant walk but i can still move freely no assistance yet except walking

[@frederichchaplin912]

+Mr. WHEELZZY| I have the disease, too. How's life like now? Mine is just filled with depression.

[@ghoto_777]

Are you okay?

[@giallorossosempre9009]

Carissimo come va? aggiornaci

[@HanifKhan-ui7ht]

My grandson is 10 years old he have DmD he cannot walk please pray for him 🙏

[@lissa4922]

I wonder where they are now, and hope everyone in the comments is fairing okay especially during this pandemic and having DMD

[@youtuubechannell]

My brother had DMD and died at 20, wanna know what's the possibility of this disease to be carried in next generations. Please help 🙏

[@jesss1561]

The DMD gene is passed to next generation with likelihood of 50%. As female, you are a carrier of DMD with 50% likelihood. Therefore, for your male child to have it the likelihood is 50%x50% =25%. Your female child is a carrier with equal probability of 50%x50% =25%.

[@vedantg.4794]

my friend in california gets treatment in a stanford study

[@UnsuccessfulINSAAN]

🙂🙂i want to Ask god...why we get this disease 😔 ...And the science why can't find it's cure properly 😐😐 ..... I want to do research on my self ....What we can do .... give me some fund .....

[@user-ok6br6wx2m]

مرحبا ابني مصاب بمرض الحثل العضلي نمط دوشين ويحتاج الى مساعدة وعلاج قبل ان يتدهور الحالة

[@evansdolyna7]

I heard something about light therapy that heal cells and dna...is this true?

[@ayathil]

My twin children are suffering from this .... How to get treatment

[@komugishabrillian5616]

My Son is recently diagnosed with Duchenne here in Uganda. It’s hard to believe that he can’t heal and live longer. 😭😭 everyday I die softly more so if I see him falling down on his own, he’s full of wounds. I just got to know about this genetic illness. Any advice, on how to take care of my 7yr old boy😢

[@andreachristine2419]

Hold your son and love him every minute. I'm so terribly sorry your son has this 😔🥺 please make sure he is getting the right type of early intervention he needs to live a long fulfilling life. There is going to be cure one day. I pray your son lives to see that day. Bless you and your son.

[@andreachristine2419]

Take him to a specialist as soon as you can who's familiar with DMD and it will help you. You may need to travel far to get the right help but look up resources near you that can point you in the right direction.

[@komugishabrillian5616]

@@andreachristine2419 Do you know about Post Stem cell Therapy? It's in India. I have been watching it on KZbin and I see it helps children with DMD. My heart desires so much to visit them am praying to God that he grants me with money so I can try on them.

[@andreachristine2419]

@@komugishabrillian5616 that breaks my heart to hear. I wish I could help. Do they have any financial help resources for it India? I would call and find out what you can do to get the help you need.

[@AnnetteMurphyger]

Staying on their feet as long as possible the best

[@AnnetteMurphyger]

Well in Ireland people are quite igmorant of this condition of MD in general and young kids are dying of MD expecially Duchenne

[@rubysaini173]

my son has same symptoms of muscular dystrophy tests of dmd has send to u.s.a pls gys pray for my son

[@sumitbajpai544]

What's the cpk level?

[@rubysaini173]

@@sumitbajpai544 41 exon is deleted

[@sumitbajpai544]

It's between 50 to 300

[@curioussoul3409]

@@rubysaini173 my son also diagnosed with this 41 exon

[@leobishabosi7588]

please help my kids

[@shawnamarie5771]

I'm 29 with dmd.

[@shawnamarie5771]

Yes I'm very sure it's a disease it's weird that I got it my doctors are surprised

[@shawnamarie5771]

+praNNkii duchenne

[@kantilalbhanushali7572]

Shawna Blueyes HI I'm Kantilal Bhanushali from India I like to inform you that we got good results in Dmd muscular dystrophy patient case for further information call me or whatsapp on 91 9428056321 or 91 9322303271

[@tonyssimbwa8529]

Hi Shawna, my 3 year old son has.been recently diagnosed.with DMD and we are.truely scared about it, please I wish to know how you are taking care of your self,.may.be .we can borrow ideas from you when it's.early.enough,. [phone] [e-mail]

[@varshapmzd1795]

Hlo

[@kriskriskk]

We all with you, I am heading an NGO called mobility in dystrophy (MIND), based in Kerala ,a state in India.identified more than 100 Dmd and BMD....Krishna....

[@user-ok6br6wx2m]

ابني مصاب بمرض الحثل العضلي نمط دوشين ويحتاج الى مساعدة وعلاج قبل ان يتدهور الحالة كيف لكم أن تساعدوه نحن في سورية

[@gamingbosslittle5435]

My Step Brother has DMD and is only 5 )-:

[@buhdji00]

Did you know for a cure for this disease I heard about PTC124 (Ataluren) Did you know anything about him? Say it is effective for the treatment of muscular dystrophy, but I do not know when it will be available in the market I'd like to know the latest news about this medication And I hope anyone who knows anything about this medication that helps me know the latest news and thanks

[@AnnetteMurphyger]

So sad

[@kusumyadav9592]

I am a teacher.I earn 29000 rupees per month.my son is also having DMD. He's 6yrs old.How can i help my child.I feel so helpless

[@Rajpootfamily123]

PlZ mujhy btain k kia is bemari main apny pairon k punjon py chlta hai mtlb airhi utha kr

[@foodtherapy1230]

@@Rajpootfamily123 yes aise chalte hai

[@jamaicanjourney7]

Does girls get this disease?

[@arndhellinger8276]

Somtimes they do. But in Girls it's not fatal - they only get weak... :-(

[@furzflamme]

No. They can have other Muscle Dystrophies, but not Duchenne-Type.

[@voldemortsmom3600]

Bruce Wayne Girls could get it just not all of the effects it usually comes with.

[@junbh2]

+Bruce Wayne Does duchenne's cause infertility? Because if it's a sex-linked recessive like hemophilia, then a girl could have it if her dad had it and her mom was also a carrier. So I'm curious if girls just don't get it because boys with duchenne's don't live long enough in good enough health to have kids? Or if it's a more complicated inheritance than hemophilia.

[@AnnetteMurphyger]

Yes, that is correct as far as as I know females do not get Duchenne MD, but can have other types of Muscular Dystrophy.

[@SuneFey]

Dr. Robert Morse

[@gamingbosslittle5435]

And one who lives in swindon or is in swindon plz come to coate water on the 25 July 2015 dressed as a super hero to raise money fore DMD