Parkinson's Disease Symposium Panel Discussion (2024)

[@stacey1994]

Since we know that exercise is disease modifying, there's tons of research on that. If a doctor has a patient with several prodromal symptoms, idiopathic constipation, non-diabetic swallowing issues partial or total loss of smell, fighting out their dreams at night, any 1 or 2 of these very common prodromal symptoms could lead to a PCP to one of these new screening tests and provide key information which may provide the motivation to make lifestyle changes that could slow the progression of PD and the onset of motor symptoms. 😎🌴 True we don't have a medication that's disease modifying, but there's lots of research on exercise and some research on diet. So we're already there people need to be screened and their risk of PD especially if they are having 1-2 prodromal symptoms of PD. 🤷‍♂️ But I'm betting they're deeper politics within the medical field and the insurance infrastructure within the United States that come in to play that are often not discussed out loud. But to say we're waiting for a disease modifying treatment is unfair to those people with prodromal symptoms may not know because PCP don't screen for PD. Diagnoses are delayed, and even movement disorder specialist get it wrong more than 10% of the time. If you wanna know how much 10% is go do the math and see how much more money you would make if you were given a 10% raise at work. 💰

[@annb5610]

What if you have breathing problems...Can't get air...throat closes...?

[@MargaretTilse]

I Get 19:06 19:06 19:06

[@FlaschDJ]

Stress is bad. Watching too many videos like this will stress you out. “Do this!”, “Don’t do this@, “yogurt is bad”, “yogurt is fine”. Turn this crap off. Go take a walk and get a good night’s sleep.

[@juliajimenez7157]

Buenas noches sería importante que lo trasladaran a español. Muchas gracias

[@LisaThorne-l4v]

One cannot care for their general health if we feel so rotton from the Parkinsons! A doctor needs to keep patients parkinsons under good contol in order for them to be able to excercise. I do the best i can my doctor doesn't leaves me miserable.

[@SusanSimonsen]

Why don’t the men let the women talk?

[@rosemaryclarke6250]

Only one on the panel is realistic. The man on the far right

[@user-fh7lo6si8f]

Dx 2012. I have had Parkinson’s for more than ten years. I do not have dyskinesia. Ask me.

[@lucitologronio9783]

How?

[@user-fh7lo6si8f]

. Dyskinesia I present an answer, a statement in recognition of the naysayers. You point out that B1 did not improve your Bowling score therefore you cannot endorse the therapy. Doctor Costantini’s statement: “We observed that the right dose of B1, thiamine hci can lead to an improvement of the symptoms between 50 and 80-90%, but in order to push towards the complete regression of the symptoms the correct dose of l-dopa should be coupled to power the dopaminergic motor circuits. L-dopa then shall no longer lead to dyskinesia if used together with the high dose thiamine.”

[@user-fh7lo6si8f]

@@lucitologronio9783 . Dyskinesia I present an answer, a statement in recognition of the naysayers. You point out that B1 did not improve your Bowling score therefore you cannot endorse the therapy. Doctor Costantini’s statement: “We observed that the right dose of B1, thiamine hci can lead to an improvement of the symptoms between 50 and 80-90%, but in order to push towards the complete regression of the symptoms the correct dose of l-dopa should be coupled to power the dopaminergic motor circuits. L-dopa then shall no longer lead to dyskinesia if used together with the high dose thiamine.”

[@kittycat-hdb]

I take 1 100mg with first sinemet dose 8am❤