I Think I Might Be Healed?! Pudendal Neuralgia Healing Update

[@PelvicEmpowerment]

It’s an unreal, difficult-to-grasp feeling to share this pudendal neuralgia healing update… as I think I may be healed? Or, at the very least, incredibly close to my total recovery. ✩ Related Videos: → More on the honeymoon/how I got hurt: kzbin.info/www/bejne/iHyplqF8l9KbbtE → June 2021 pudendal nerve update: kzbin.info/www/bejne/j56ThYd6jJlneMk → September 2021 sexual health update: kzbin.info/www/bejne/hHi9mXVsaqyLm9E → December 2020 healing routine: kzbin.info/www/bejne/qGqyf6NopJeUqqc → Does medicine understand nerve healing? kzbin.info/www/bejne/ama7i2Owl8icjK8 Thank you so much for the ongoing support during this incredibly challenging time in my life. I’ve so much I want to do to give back-to change the narrative surrounding healing pudendal neuralgia and nerve healing in general. Until then, please keep going and do not give up on your body’s ability to heal 🧡

[@RedRoseSeptember22]

You seem like you're doing a lot better :) here's to hoping for a healthy, happy 2022 ♥

[@PelvicEmpowerment]

@@RedRoseSeptember22 Thank you so much, means a lot to me 🧡 and a healthy, happy 2022 to you and yours, too!

[@veronicaaguayo5580]

Can u please share how u healed ? Im in such a darkness and my kids need me. Please . I thank you for the hope

[@veronicaaguayo5580]

It started 12 months ago after an abdominal hysterectomy. I pray i hear from you soon .

[@darlingly3130]

Hello Tori! Very happy and so encouraging to see someone who healed from PN, especially after all the negativity around that on the internet. I hope you're doing even better now! I would like to know if I need to find a pelvic Floor physical Therapist who's specialized in Pudendal Nerve? Or just a '' general '' pelvic floor physical therapist would be alright? Your PF Physical Therapist was specialized in PN? Thanks so much, Darine

[@joygumpel9220]

I found you just now. Beautiful spoken words. I will go back and read your whole story. I am 4 years in. Entrapment surgery lasted 6 months. It's an extremely lonely illness. Thank you.

[@sarahbrereton341]

Loved hearing your ending words…all your words, but none of this is lost on you! Fantastic, hopeful, and thoughtful content

[@PelvicEmpowerment]

My heart, thank you so much 🧡 it's such an interesting time - I've so much I want to create dedicated to pelvic pain/healing chronic pain/etc., but I also want to honor the requests I've gotten that fall on the broad spectrum of pelvic health (bladder/bowel/sexual health - esp. male sexual health, I've been bombarded with those requests). I'm sure I'll figure out how to balance/a flow with time and practice, and I also recognize that this "overwhelm"/shift in attention is a reflection of my healing, so I'm grateful for it while feeling overwhelmed by it! Anyway, thank you for your kind words, support, and for watching. It all means so much to me.

[@chucksohm7213]

Wish I could give you a celebratory hug or two. Been following you for quite a while. Been alone since losing my wife to brain cancer in March 2020 and spending a lot of time watching internet creators. Felt so much sympathy for your interrupted honeymoon. Watching your progress has been fascinating and I felt so impatient that it was taking so long. You have relieved me today. So nice to have you back. Hugs.

[@RedRoseSeptember22]

I'm so sorry about your loss Chuck :( I pray your wife is resting in peace and watching over you from above. ♥

[@valeriejoylauria8944]

You have my deepest condolences 💕

[@PelvicEmpowerment]

I am so, so sorry for your loss. I can only imagine the kind of strength you've demonstrated not only since her passing, but during her diagnosis/treatment process. Keith and I are both very interested in palliative care and hospice - we've strong feelings about the way that death is treated in the US. It's such an honor to be one of the creators you've gravitated towards during this time. Sincerely, thank you so much for sharing this piece of you with me/so openly here, and thank you for your ongoing support surrounding my healing! It means so much. Hugs back 🧡

[@andresdelarosa8179]

Thanks for making this video. I'm a male dealing with pudendal neuralgia and the flare ups come every 6 months. It paralyzes my life. I've tried physical therapy but haven't seen any changes. It's so hard to manage and I panic sometimes when the flare ups last 4-6 weeks that they'll last forever. I have a demanding job and it limits how much I can produce. Thanks for sharing your story.

[@johns1577]

What symptoms are you having? Try a pudendal nerve block, but it's got to be done by someone who is experienced, as it's easy to miss the nerve.

[@kellherman]

Something I’m exploring is called “Clinical Somatic Movement”. It’s meant to rewire your nervous system. I highly recommend the book “The Pain Relief Secret” by Sarah Warren

[@johns1577]

@@kellherman I'm not familiar with that. What is it?

[@johns1577]

I checked it out. They are charging money to show you exercises. Pudendal Neuralgia often has nothing to do with muscles. Although stress definitely makes mine worse. Mindfulness helps a bit.

[@kellherman]

@@johns1577 Wait, what do you mean pudendal neuralgia has nothing to do with muscles?

[@jjnewbold]

So glad you're feeling better!

[@PelvicEmpowerment]

Thank you so much, your support means a lot 🧡

[@ParisTNT]

I love your videos, Tori. Great explanation and I’m happy your healing journey has gone well ♥️

[@katherinefranklin3820]

Thank you so much for sharing your experience. I was so grateful to hear you talk about how you had flare-ups during ovulation. I have experienced that too, as well as when my cycle restarts each month. It seems there is not nearly enough information available on pudendal nerve pain and the connection with our cycles. Not to mention dealing with the exacerbated pain during pregnancy. Thank you for sharing and giving hope and thoughtful perspective to those who suffer!

[@lisa__rcs]

I really like the cup analogy. I tend to get mad at my body when I have pelvic pain flare-ups because I feel like my body is falling short of perfect. Giving ourselves permission to have imperfect bodies is very freeing! Thanks for sharing your story. Watching your channel is very important to my healing.

[@PelvicEmpowerment]

My heart, what an honor to be a part of your healing 🧡 and I understand. I sometimes get mad at mine, too - and I try not to fault myself for it. It's SO much easier said than done, and I think frustration is a natural part of non-linear healing, but I work on noticing the anger without judging myself, and trying to unpack it/meet with gratitude. I know that can sound "woo-woo" and unrealistic, but it helps me. Sending you an internet hug!

[@brianb8753]

I'm a recent subscriber. I can relate to what you went through and appreciate your thoughts and of wondering what the future may hold. I hurt my back and was told by the back specialist if I ever hurt it again I'd never work again, yikes. It took at least a year to heal. So I didn't work for a couple of years because of this fear. I got bored and continued working in physical type jobs but I'm always cautious of what I do when lifting. I still have some pain when bending and numbness down leg even many years later but have been able to work without issues. It's funny how fear can take hold and stop us from living. Be strong and get back to it, you will be ok.

[@PelvicEmpowerment]

Thank you so much for your support, words of encouragement, and for sharing so openly about your own experience here - that all means a lot to me. The fear piece is funny... and the dance of learning how to trust your body and its signals again/where the actual (vs. fear-based) boundaries are - there's just so much more that lies beneath the surface of "recovering" with an injury like yours and mine. I'm so sorry you can relate to my experience, but I am SO happy that you've been able to return to a more physical job and have figured out how to manage/support yourself while lifting/engaging in certain movements. I'll be interested to see if I have any remaining symptoms when I get back to more intense activities - either way, I think there's something to be said for the relationship with those symptoms/how they affect day-to-day activities/how meaningful those activities are/etc., and I'm hopeful based on what you've shared that your relationship to those remaining symptoms is a healthy one, instead of an overbearing or overwhelming one. Anyway, thank you again so much for your comment and for subscribing - if you have any content suggestions, don't hesitate to request 🧡

[@komaldhawan1558]

hi, thankyou for updating your condition, i’m suffering from pudendal neuralgia from last 5 years and its getting worse every year, i’m feeling so relieved after seeing this video as all the internet says that its not reversible, i live in india where you can never find a physiotherapist who’s specialised in pelvic or pain management, i feel very depress all the time , dr is suggesting me nerve block but i want to try physiotherapy first but they’re saying you wont be able to tolerate the therapy unless you take nerve block , i am very very desperate to live without this pain, please share all the exercises you were performing from the beginning please please help me. please make more videos. thankyou for this

[@PelvicEmpowerment]

The internet is, unfortunately, a mostly dark and hopeless place when it comes to healing PN. I hope to be one of the voices that changes that, but know that I'm not the only success story! I find this person's instagram very inspirational, and she has a lot of mind-boy resources all in one place that may be helpful: instagram.com/stayingstrong1587/ I understand what you mean when you say you're feeling depressed all of the time/you're desperate to live without the pain. I felt that way myself - you are not alone, I think a lot of us feel that way during the experience. As for the nerve block - you can always get the nerve block later! You can try therapy first and see how you manage it. That'd be the least invasive order of events, and you can direct your care. Don't let a provider force you into something you don't want to do. As for my healing routine, remember that these exercises were tailored to me and my unique body - they may not be the right ones for you and that's okay! That said, that video is here: kzbin.info/www/bejne/qGqyf6NopJeUqqc I am wishing you all of the best in your healing - don't give up 🧡

[@komaldhawan1558]

thankyou so much for replying , i just followed her channel, I can’t find any pelvic physiotherapist in my country or even in my city, do you think any physiotherapist can help me with PN? my injuries was terrible and i probably have entrapment, do you think entrapment can also be healed??

[@PelvicEmpowerment]

​@@komaldhawan1558 I'm so sorry you're having such difficulty finding a pelvic PT. A more general orthopedic PT may be able to help you, but I think it really depends on the provider's understanding of nerves/nerve healing, the pelvis, and the pudenda nerve. I do think entrapment can be healed! True entrapment, pending on the severity/mechanism of injury, may be one of the scenarios where surgical intervention is more appropriate, but I think it REALLY depends on the person. Again, I wholeheartedly believe that mechanism of injury should guide interventions. I disagree with the "one size fits all" treatment approach currently implemented, at least here in the US.

[@isai2006]

@komal , even I live in India and facing the same problem. What are the treatments you are going through. I have been looking pelvic floor therapist but not able to find one

[@tiffany7499]

hi, I want to watch the video from your link with the exercises helped you. But its written private video 😢

[@CommonSandpiper]

I'm so happy for you, Tori! :)

[@PelvicEmpowerment]

That means so much to me, thank you 🧡

[@patriciaheagele7261]

I’m trying to watch your healing the nerve routine but it’s marked private. What did you do to heal it?

[@MC-yp5rk]

This video was so great! I loved where you said no body is perfect. I’ve been trying so hard to get back to where I was before PN. Got to give myself grace. How are you now??

[@paoladejong6583]

Hello Tori, thanks fot sharing your story! I would like to see your other updates about PN. Is that possible?

[@Lili1515S]

Hi Tori, I’ve been suffering with Pudental Neuralgia / something similar. I’d really love to hear how you healed your nerve. I’ve tried to access your journey but it says it’s private. Did you take anything to help heal your nerve? Is there a video that you could share. Thank you for sharing your experience. Any guidance would be greatly appreciated xx

[@anna_m59]

I am dealing with this for many months and my GyN doctor give me antibiotics.. although I had no bacteria in my urine. I didn’t take it and I started research on this topic. My symptoms are 110% match. Next step find a better doctor.

[@sabinehalfhill4005]

I wish you could share more what you did to heal…

[@adrianahernandez7305]

Hello!! I hope you are doing great. Could you please make and updated video?😔 your videos give me hope.

[@annemariewomack]

Thank you for your insights! I'd love to watch the December 2020 healing routine video, but the link is listed as private now.

[@Evie-qx6to]

Hi Tori! I’ve been struggling with PN for 10 years now and I’m at my wits end. Nobody has been able to help me or heal me or even tell me the root cause of my PN. Coming across your video a few weeks ago changed my life and I decided to stop getting steroid injections. I really want to watch your video about your nerve healing routine but it’s private. I tried your IG but it’s deleted. I could really use some guidance and hope right now, and I’d love to contact you to work with you.

[@annettemarsteller2279]

Hi Tori - Most of the videos below are marked Private. I would really like to know more about your journey with Pudendal Neuralgia. Could you make them public?

[@thehardlife5588]

I have been following your journey, i am a year with what i believe is pudendal neuralgia being a male, not sure how i damaged my self but may book a call with your coaching service to discuss, my question is were your symptoms increased having your body in a particular position? For example sitting or lying? And is it best for recovery to not be in a position for increasing symptoms? Basically avoid positions of intense symptoms helps heal the nerve?

[@LapisGarter]

That's great to hear! Did you have cutaneous dysesthesia as well or just deep pain?

[@PelvicEmpowerment]

I would say a mixture of both, especially during the first year of my recovery. The symptoms were much more varied in location, type, and intensity and each category improved as I recovered!

[@richfluteman]

I am experiencing nerve pain and would like to know what your healing routine was. The video you recommended to watch in this Video shows up as private and I’m not able to view it. Would it be possible to get access?

[@lukemarshall118]

I have had this condition for over a year and I am very suicidal because of it. I've also been suicidally depressed for about 8 years beforehand. I was wondering if this can be cured or not. Because I just can't live with this.

[@adambarlow7787]

I had some really bad pudendal neuralgia and I recovered with physical therapy. How are you doing? A you find a pelvic floor physical therapist near you?

[@txtomtx9126]

@@adambarlow7787please advice me what to do

[@gaylelizabeth]

Luke , please feel free to get in touch. I have the same severe pain that is preventing me from living my life. My rectum anus and sphincter muscle had to be removed because of sepsis and the wound opened up 10 days after surgery and it took 9 1/2 months of nurses coming to my house packing and unpacking it every other day the Wound finally closed at the end of November last year and now I have adhesions and the nerves are all entrapped within it. I really hope that you have been able to find someone to begin to help you please chat anytime you matter to me and I care

[@tonysnow6842]

Hello, i have mayor pudendal nerve pain all day long, have to massage my butt cheek to release some pain and pressure so i would really appreciate if you could share your PN release/recovery protocol maybe? Thanks

[@Jasmiinnnnn]

I realy thank you so much for this video!🍀🙏🏻

[@PelvicEmpowerment]

You're so welcome, thank you for watching 🧡

[@davidsadler6911]

How did you heal yourself and how didi you get hurt ? More what did you do to HEAL?,?

[@Gail-u3y]

How did you get rid of pundendal neuralgia please help me

[@LouiseJ5]

Do you think the nerve could be injured again by sitting on a hard surface or riding a bike?

[@campcezar]

My best wishes Tori 🌹❤️💫

[@saracrider2162]

I would like to view the private video about your healing routine that is listed in the comments. Is there something I need to do to get permission? Thanks, hoping it will help with my pain.

[@grs2331]

How to treat your nerve?

[@andrewjames4346]

I will watch this later when I have some popcorn because I know there will be accidental jokes and innuendo in this for sure. I know it's serious but your too much hehe to be super serious. More relevant to your journey I hope your doing good and keify is one step closer to the boots and Stenson!

[@PelvicEmpowerment]

Looking forward to learning more about my hehes that shine through this video 😂 and thank you, that means a lot 🧡

[@AliseBattaglia]

I cant seem to find your acct on instagram

[@sarahalvarez8058]

Your video is private and we can’t see it, is it still available to view?

[@thehardlife5588]

What was the seperation gap between visits with the physiotherapist? I need to find a physio that isnt ganna give up on me after three appointments

[@davidsadler6911]

Did. You use any prolotherapy or prolozone

[@thehardlife5588]

When did u start having asymptomatic days?

[@namsifonjacob4694]

Doctor please the only symptom I had was burning pain inside of me.but now I'm treated no more pains all I feel now is numbness during intercourse.can this be as a result of pudendal nerve damage?

[@garyjohnson5869]

Thank you you are so so. Nice I have. Pudenaul Nerve pain. Got this in 2006 after an injection for low back pain. Tried. Surgery May 29 2020. No good. He did the right side told me he’s got this guaranteed that Then after this did not work wanted to do the other side. I side no way So tried. PT. Maybe didn’t give her enough time to work with me build a relationship Now am tried the. Solf Wave therapy ( the new One ) Only help me for one night. A bit In my 4 month Am his first that has this pain he told me he would love for this to work. Then he could help so many more. Men 🙏🙏

[@johns1577]

Solf wave? Any improvement?

[@garyjohnson5869]

@@johns1577 One night. For maybe hour If flares up. When I go to Bed in about 1/2 hour. Specially. If I have my. Herbal. Tea. During the. Day It really bad at night laying down No pt or Dr can tell me why when laying down in bed

[@davidsadler6911]

I can't stand this pain 17 years into it and l can't find help. I am going to a Naturepath as western medicine has failed me. I did PRP, Botox Pulse radiofrequency. I am going to try prolozone or prolotherapy and another for my anxiety. Please direct me where to go or what to do. I can't take this pain anymore. HELP ME PLEASE!!!

[@POCKBA]

I wish to know this my self.

[@gaylelizabeth]

I feel you , I truly do. My pudental nerve was damaged when because of sepsis caused by a simple hemorrhoid banding gone wrong , my rectum , anus , and sphincter muscle had to be surgically removed because of the sepsis. The wound opened 10 days after surgery while I was still in the hospital. It took 9 1/2 months of packing and unpacking by nurses coming to my house once I was released from rehabilitation, every other day. The wound finally closed at the end of November 2023 now I have adhesions with all of my nerves and trapped within them because instead of dissecting my nerves, the surgeon cut them. I am desperate to find relief because my life has been destroyed by this damage. It is my hope that by sharing knowledge and information and personally experience we could all find better ways to try to get our lives back. X I truly hope you are doing better now. I’m always around if you’d like to chat 😊

[@davidsadler6911]

I went to physical therapy and it put me in such pain for 7 to 10 days

[@SnehaDLalwani]

Same here

[@gaylelizabeth]

@@SnehaDLalwanisame here

[@gaylelizabeth]

Same here

[@gaylelizabeth]

For women , the physical therapy to try to reduce the adhesions and work with helping the nerves , the therapist must put on gloves , use a lubricant and massage inside of the vagina. I couldn’t tolerate it at all. Way too much pain

[@sarahalvarez8058]

Your video is private, any help?

[@sarahnilsen4225]

The link to your December 2020 Recovery routine seems to be marked as "Private " . Would it be possible for you to share this video with us?

[@sarahalvarez8058]

Needing also🙏🏻

[@elenaalexandra9506]

Can you do another update on nerve injury? I finally for the first 1,5-2 years was pain free for a month which never happened before and i thought i healed But everything came back( Why?

[@POCKBA]

How long did you have the pudendsl pains before getting treatment and what treatment? Thats so great i just want to be hit by a buss as the pain have gotten only worse the last 2 years.

[@gaylelizabeth]

@@POCKBAas another pudental nerve sufferer who is trying my best to heal my pudental nerve , I send you hugs and lots of healing . If you ever want to chat I’m always around. I hope you’re doing better , truly x

[@POCKBA]

@@gaylelizabeth Thank you actully deep laser in the back have work wonders. I am not healed but still I can function a little more:)

[@gaylelizabeth]

@@POCKBAI’m so happy to hear this ! Best news I’ve heard all day! If you have time , can you share what deep laser treatments are ? I am familiar with laser treatments, however, I was not aware that there was terminology for I guess the depth that it reaches is that correct? Thanks so much ! 😊

[@POCKBA]

@@gaylelizabeth I dont know much about lasers. I first tried another place where it did not work. But the new place they have a laser who goes very far and they put it in the back where the nerve s 2, 3 and 4 nerve goes. But att one nerve att the time. I got this issue after surgey some years ago. The guy working in the center say it only works on nerves who are not cut off as the connetion have to go trough the back to the nerve eho is hurt. Is kind of a heavy treatment and I got sympoms and nasea after but is common. But now I get less sympoms after. And I can feel the laser even in my foot especally when he do the s 4 nerve. My fot used to stop function very often after the nerve damage but now it works a lot better. I hope you and everyone who deals with this get help. For me I had no joy in life and medications i could not handle and thay made me even more depressed. I have not taken medication since april now. Not sure if is going to get 100 % well and so say the woman working ther'e wirh most experince but that i dont need to have pains most days. And can be mostly painfree.

[@alshimaaeleffish3205]

Hi thank you for your videos. I am from Egypt 🇪🇬 doctors know very little about pudendal neuralgia. I fell down the floor 2 years ago on a sitting position and after 3 weeks I developed pain around vulva and during urination and I can't find a treatment 😑 and a week a go I found out that I have a desending pernium and rectocele I don't know if that stretch the nerve or I got entrapment from the fell down .iam thinking about the surgery 🤔 do you know any information about how it can help???I started physical therapy can this help???what kind of exercise can I practice to help me with pudendal neuralgia . The therapist know very little about my condition 😌 any information you can provide me with will help. Thank you so much 💓

[@gaylelizabeth]

I have entrapped nerves also. My rectum anus and sphincter muscle had to be removed due to sepsis and I have terrible adhesions because of that and the nerves are trapped within it. I am currently looking into a DRG implant which stands for Dorsal Root Implant , to block the signals from the nerves to the brain. I am currently taking pain medicine and it helps, but it doesn’t help me get my life back. I can barely walk and cannot sit. I’m always available to talk if you would like. xx

[@komaldhawan1558]

how can one differentiate between pudendal neuralgia or entrapment?? if mri sees no entrapment?

[@PelvicEmpowerment]

That's a really good question. I think mechanism of injury can be helpful to understand when it comes to ruling in/out entrapment. Entrapment means the nerve is compressed between two bodily structures - that usually happens from some sort of blunt force tra*ma or some sort of repetitive motion. Understanding HOW you got hurt can help your either support or detract from the entrapment hypothesis!

[@sakshamsaksham3272]

Hii are you from india

[@barruasifrahman920]

Hi Mam , can tight pelvic floor affect lower back pain (lumbar,hip region)

[@PelvicEmpowerment]

Yes, absolutely! That topic is actually on my requested video list - but the pelvic floor is intimately connected with the back and hips, and when the PF is dysfunctional, sometimes the back/hips compensate in ways that create pain!

[@barruasifrahman920]

@@PelvicEmpowerment May you suggest something that will help me with the back pain . Thank you

[@PelvicEmpowerment]

​@@barruasifrahman920 I'm honored you'd ask, but I do not offer individualized medical advice on this platform. I can only encourage you to follow-up with a provider that you trust and seek out a pelvic PT or similar therapist in your area! I'm sorry I can't be more helpful, and I do wish you the best in your healing 🧡

[@PinkFreud1987]

In the video you state that you injured your pudendal nerve "almost 2 years ago now", yet in this other video kzbin.info/www/bejne/ama7i2Owl8icjK8 which you posted on the 6th of August 2021 you stated that you injured your pudendal nerve "almost a year and a half ago now". I am not one who enjoys being skeptical of people's healing stories, actually I find them really helpful, but how can you get things so wrong time wise? I mean, you either injured your pudendal nerve in 2019 or in 2021, and the fact that you get these dates SO mixed up, does really make me doubt your content, sorry.