Enjoy this video? WATCH THESE NEXT: Woman with feet like an elephant! kzbin.info/www/bejne/fYfLoZKDn5ycgKc Woman with 600 lb legs! kzbin.info/www/bejne/qpjTXp2boZKrpJI
@alexandralagou4487 ай бұрын
Dr youn are you shipping your products in europe?( I M WATCHING YOU THE LAST TWO YEARS ,I VISIT YOUR SITE BUT I COULDN T ORDER) thank you
@ViolentCabbage-ym7ko7 ай бұрын
The mental strength this man has must be extremely strong to live with such a condition. I have nothing but respect for this man
@greygremlin12487 ай бұрын
When you have a choice choose your best When you have no choice DO your best
@wrenbyrd10937 ай бұрын
👍👍
@MedicalBillz7 ай бұрын
40 years of constant agony isn't something I'd even wish on my worst enemy, he's a real trooper for toughing it out and living his life.
@janinegrey69377 ай бұрын
I can’t bear the thought of being forced to give birth to a child that will suffer all its life as well as the collapsed dreams of the parents. The heartache and torment is ungodly to me!
@101919277 ай бұрын
Lives in agony and he’s a power lifter, that’s raw AF!
@ithinkiwoulddie91967 ай бұрын
Agony is a part of life, and humans prevail.
@Asmodis47 ай бұрын
@@ithinkiwoulddie9196yes, of course, but there is agony and AGONY, you know?.
@ithinkiwoulddie91967 ай бұрын
@@Asmodis4 I say this because it is human to suffer, even if it’s caused by an uncommon factor.
@Danae427 ай бұрын
As soon as I saw him I thought he had been in a fire. My great, great, Grandmother, who lived 101 years, had just gotten married. Her and her husband had been married for only 3 months when they had a house fire. He tossed her out of the window into the snow, thereby saving her life. Unfortunately he passed. Grandmother was burned over 90% of her body and looked Exactly like this gentleman. Her eyes and lids were the same as was her skin, no hair, no ears. They could have been twins. Thanks to this wonderful gentleman, I have spent a great part of my day looking at old photos and remembering Great, Great Grandmother Louise, such wonderful memories.. Thank you kind Sir. May your life be as fulfilling as hers!
@artchic5287 ай бұрын
That’s such a bittersweet story. Her husband saved her but couldn’t save himself. Rather, he chose to use his last bit of strength to save her rather than himself. She was truly strong to have lived through the ordeal of losing so much. Especially since burn units back then could only clean and bandage the wounds, and hoped the patient had strength enough to heal. Now there are many more treatment options.
@dancingfirefly77617 ай бұрын
It's amazing she survived with that level of damage back then. What was her life like? Did she require constant care? Was her community kind to her?
@dottiepark7 ай бұрын
My niece with EB lost the ability to walk because the blisters on her feet were so painful. Also, an experimental medication caused premature closure of the growth plates in her knees and that impacted her gait. She died of sepsis at 25. God rest her sweet soul.
@who47437 ай бұрын
I'm sorry for the loss of your cherished niece. What is one of your fondest memories of her? If you don't mind sharing that is, if you don't that is perfectly fine and understandable.
@sapphirejade50297 ай бұрын
My deepest condolences to you, family, and friends that knew her well. May your beloved niece roam freely in Heaven.🫂
@fairysensitive15 ай бұрын
My she trust in peace! I’m so sorry for your loss :-(
@deborahallen33184 ай бұрын
My Condolence to you and all who loved her. 💔🥀
@JD-ny9qj4 ай бұрын
This is why everyone should get a dna test before they have children, it’s unethical not to now we have such easy access.
@theazurapristina7 ай бұрын
Im so fortunate to only have acne and eczema. I will NEVER publicly complain about my skin again knowing there are people who have suffered like him
@kathleenking477 ай бұрын
Try using xylitol for acne Wash face with it
@ShogoMakishimaxx7 ай бұрын
One thing that my Ex told me that is true: "Just because other people are going through something more severe than you are, doesn't diminish what it is that you're going through". You have your own problems just like they have their own. It's okay to get upset with your skin and complain sometimes. It's life and you're human. Take care.
@wrenbyrd10937 ай бұрын
Since you have eczema, have you ever tried homemade soap from sellers online that make allergen free bars that have their own farm? I saw some on Etsy the other day and thought that might help someone with the most sensitive skin out there. Looks good. 👍👍 I have some skin issues and can’t use a lot of stuff.
@essp36886 ай бұрын
@@ShogoMakishimaxxThat is so true. You can't really compare people's problems to each other, it's experienced differently from person to person. Even something that for most people would be "severe" (using the quotation marks because of how it would vary) doesn't necessarily have to be severe, and even "light" things might be experienced severe for others. I do have eczema and it can be tough, especially when it's visible and can be a real obsticle to perform everyday tasks.
@HaraDuran4 ай бұрын
@@ShogoMakishimaxxI guess kind of true,but still,if I ever struggle in life or something,I remember the hard times if others still,to remind,this is easier than what it seems.
@lavinaacrux18317 ай бұрын
Dogs don't care what you look like. Thanks for the additional educational commentary, I loved this video and he seems like a nice guy. I hope the remainder of his life is full of love.
@mindypatriotangel60647 ай бұрын
I grew up with Vitiligo and kids were so cruel to me, I can't imagine how kids were to him. God Bless him.
@brendaisthebomb.59107 ай бұрын
I have been rercently diagnosed with Vitaligo as well as lifetime of ED. I feel hit. lol It was hard because we were picked on for being slow walking when sore, and even when my brother had a wheelchair at times or crutches which blistered under his arms. My Vitaligo is hands arms and chest so far.
@KnockedupNout6 ай бұрын
I've never known anyone with this, just curious if you don't mind answering: How do you feel about the way media portrays some that have this? Like the "celebrate it!" attitude, are they doing a disservice to those that have to live with it without media attention? (If that makes sense)
@mindypatriotangel60646 ай бұрын
@@KnockedupNout I don’t think it needs to be celebrated. I think parents should teach their kids to be kind and not make fun of others. It’s an autoimmune disease that needs to be studied. It gets overlooked because it “supposedly” doesn’t kill you. When in fact you usually have other autoimmune diseases as well that get overlooked. Mine started after I received the small pox vaccine in the shoulder.
@mindypatriotangel60646 ай бұрын
@@KnockedupNout I don’t think it needs to be celebrated. I think parents should teach their kids to be kind and not make fun of others. It’s an autoimmune disease that needs to be studied. It gets overlooked. When in fact you usually have other autoimmune diseases as well that get overlooked. Mine started after I received the small pox vaccine in the shoulder.
@KnockedupNout6 ай бұрын
@@mindypatriotangel6064 That's crazy, I didn't even know it was autoimmune (I mean it makes sense) so I guess that's how helpful the propaganda I've seen is... I definitely teach my kids to not judge other people but honestly I think there's not much I actually teach them, they kind of accept others naturally. They are very friendly and they might ask questions but they're never rude and they sense if someone doesn't want to talk about not and they're like 'Ok cool. Let's go play!'
@leah__gail7 ай бұрын
What a lovely man! Hope he continues to thrive with his condition!
@liggerstuxin17 ай бұрын
His childhood pics are so sad. Hard to see a kid hurt so bad
@lillymurray84086 ай бұрын
Imagine all the crying and tears and how his mom must’ve felt seeing that and not being able to really help or make it go away. As a mom myself, that is the most helpless feeling when something is wrong with your baby and you can do nothing to help or make it stop and go away. So so difficult and the looming possibility of death upon your child has to be so scary.
@HaraDuran4 ай бұрын
True, it's crazy how he endured all that,mine cried as hard as I could when I got sunat'd by the doctor(basically cutting unnecessary skin on your pp on Islam)until the next day,but this dude endured all that everyday,I don't know if someone has a limit to get such pains and this dude was breaking it
@Aroma_11114 ай бұрын
I’d be so overprotective as a mother 😢 God bless him
@JourneyAlee7 ай бұрын
Dr Youn, your compassion and empathy are a blessing to behold.
@heidiowen94157 ай бұрын
I knew this was EB instantly. I used to b a paediatric plastic surgery nurse and we used to have children with EB admitted for syndactyly release (which Dr. Youn briefly mentioned) and I cannot tell you the constant pain and discomfort these children an adults are in. Any touch can cause skin shearing and blistering. My heart goes out to them and they deserve a huge shout out for their bravery.
@paulameeks1127 ай бұрын
The offer to carry the Olympic torch was imho, humanity at its highest levels. Look what that did for this man! Some strangers acceptance brought him to self acceptance which birthed hope & the determination to live a life of quality and purpose. Now he passes on his life’s lessons by offering the help to others that he was given. I mean, WOW! WHAT AN HONORABLE MAN!! I would love to hear him speak.
@barbaracarmichiel73697 ай бұрын
This dear man has an amazing attitude and strength.
@wallhagens20016 ай бұрын
I’ve got Rheumatoid Arthritis and it’s a mental battle as much as a physical one. I can’t imagine having this condition to deal with ever since childhood. This fellow is a psychological superhero for what he’s faced. ❤
@dextert81887 ай бұрын
This brings to tears for this young man...the courage and strength he displayed is remarkable. I wish I could meet him. God bless this man!
@caroljeanscott55717 ай бұрын
No matter what medical affliction you are delt with, you always see someone else who is worst off then yourself. I have been around people with chronic conditions pretty well all my life and these people seem to be able to adapt to their medical condition and live life to the fullest. Although some of these people may have to endure many medical procedures, they seem to be able to cope with that situation also. I can see that same drive in this gentleman despite everything he has to deal with. I think it is wonderful that he worked on getting out of a wheel chair so he could carry the Olympic torch and being able to lift a 150 kilos was really inspiring . I feel so bad that people were scared of him. People who live with a disability are always challenged in proving to everybody that they are just as capable of doing everything as an abled body person. This gentlemen has so much to deal with, the fact that as a child not knowing if he would die and the fact that doctors said he would be better off if he died because his condition would only get worst as he got older must of been devastating for his parents. Everybody wants to live no matter what. This man has so much to endure with, always having to deal with his skin condition but I watch his story and I personally think he is an inspiration. There are so many inspiring stories like his on KZbin of people are accomplishing so much despite their disability. 🥰
@spreest95377 ай бұрын
What a cool guy. I would love to have a conversation with him, he seems so wise, but also strong and kind.
@dextert81887 ай бұрын
You had the same reaction as me. A great inspiration for those of us who complain inconveniences in our daily lives.
@lindajohnson21497 ай бұрын
Kudos to Dean and his resilience!
@barbmoody48927 ай бұрын
Bless your heart for adopting senior dogs. I know they need homes too but health challenges can be expensive and losing your companion is more frequent. Thank you for taking on these challenges and bring love to these dogs.
@Bruxa12987 ай бұрын
Him cosplaying as Deadpool is just hilarious. What a great guy.
@brendaisthebomb.59107 ай бұрын
no way he cosplays Deadpool too and is a great Doc? Niiice Youn my guy!!
@tdelioncourt12686 ай бұрын
@@brendaisthebomb.5910 he meant the patient, there is a picture of him as deadpool, it's hillarious indeed!
@carmelbrain73997 ай бұрын
Dean is a terrific Ozzie
@HarryFlashmanVC2 ай бұрын
One of the bravest of men, he's an inspiration
@SleepyMoon987 ай бұрын
Oh my gosh… this actually made me cry. I can’t imagine how tough it is to live with this. But on the other hand, WHAT AN AMAZING MAN!!!!!! His outlook on life to keep going and to keep a healthy lifestyle with the odds against him is commendable. What an incredible inspiration
@Emily-the_funny_guys7 ай бұрын
Dean is well known here in Australia
@jemimalamb787 ай бұрын
He sure is. ❤😊
@zrrs28166 ай бұрын
Awesome
@riversong43117 ай бұрын
I am late to this story. I watched it with my adult daughters. We thought about his tenacity and his will to live his life on his terms was great. I loved this story.
@CringeLort7 ай бұрын
Bless this brave man. I cant imagine the constant pain.
@JiaPia37 ай бұрын
I feel so bad for this man and other people who have serious conditions like this. we should not take for granted that we can walk, talk, here, see, smell, and touch. Some people lose those senses, so remember how lucky you are to have them.
@lunaplata47267 ай бұрын
Dr. Youn you are such a compassionate human being. Thanks for bringing awareness to these conditions.
@constancehall12317 ай бұрын
Thank you for showing this video. The next time I feel like complaining about anything, I will remember him and count my blessings. He should be rewarded for his strength and fortitude, both physical and mental. And may God bless him.
@Youtuber5775-7 ай бұрын
After seeing this video of him struggling with a disease that is constantly challenging him and affecting his life, I literally don’t have anything to complain about after seeing this. He is a true inspiration to us all! ❤🎉
@greygremlin12487 ай бұрын
If any one deserves any kind of loving its this guy
@Pernille38417 ай бұрын
He is so strong, in every way, I hope there will be a cure soon! 🙏❤️.
@DravenGal7 ай бұрын
This man is an inspiration. And his dogs love him. That tells me everything I need to know about his heart.
@AdaTomas7 ай бұрын
I’m I the only one who can’t stop watching doctor youn videos? It really helps to educate about plastic surgery.
@callycharles25153 ай бұрын
I have so much respect for this man; nothing can stop him!
@GanondorfsWife4 ай бұрын
What an absolute wonderful guy! He's such a positive person who we can all learn from. Wishing all the best for him!
@erikaersland13057 ай бұрын
Thank you Dr. Youn for bringing these challenging skin subjects to our awareness. Also, the fact that you and your family focus on rescuing senior dogs says everything I need to know. Thank you!!!! 😊
@kristaj13927 ай бұрын
Bless his heart! He has a beautiful soul! ❤
@geebrewer81867 ай бұрын
good for him for just carrying on. When people whine and cry about their lives, they need to watch this video and be grateful.
@DeannaBrownlee7 ай бұрын
I wish all the happiness, comfort, peace and joy for this lovely, brave man.
@JiaPia37 ай бұрын
I love dogs so much. I can’t live without them. People with pets even live longer. They really do love you unconditionally no matter how horrible you treat them. That’s why I can’t stand it when anyone abuses a dog. They’re just so innocent and loyal.
@LadyVenus1257 ай бұрын
Jesus, poor man. I'm so proud that he has the strength to talk about his issues on TV. More power to him. ❤
@Bonnie_Mairead6 ай бұрын
I heard about this guy recently, he was on the news a while ago. I'm glad you talked about him so I wouldn't forget!!! What a nice guy, I hope he accomplishes many more feats in his years to come!!!
@pattyk7344 ай бұрын
Thank you for showing us this young man’s life. I appreciate that your channel is not just about plastic surgery.
@susanlong897828 күн бұрын
Dr Youn. Thank you for Just being so empathetic and a light...
@2katzroolАй бұрын
this man has a brave and strong outlook.
@garymucher40826 ай бұрын
He is one extremely strong human being. Amazing what he has gone through in his life time. We complain with illnesses that don't ever register as anything compared to this guy. We all need to be grateful and stop complaining about what life has dealt us when we see such a person to understand there are people with real diseases and problems...
@mattdeinken65807 ай бұрын
In 2018 I adopted a 9 year old 3 paw papillon,she is now 14
@mattdeinken65807 ай бұрын
She helped me out in bad times
@mattdeinken65806 ай бұрын
She turns 15 on September 9th
@sophiemerigold24496 ай бұрын
This is why the paralympics are so important ❤ Also, this is why animal assistant interventions are so important as well. Sports and animals are so good for our souls and mental health
@katherinekoza65367 ай бұрын
He sounds like he is an Aussie . What great courage he has to go on .
@tanana20706 ай бұрын
What an amazing attitude this man has. God bless him!
@deniseroe58917 ай бұрын
Bless this poor man. How horrible to live like this for over 40 years. He has to be a strong person both mentally and emotionally.
@sandyseibelhager71317 ай бұрын
I went to high school with a boy with this horrible condition. RIP Bobby!
@LoveMafae2 ай бұрын
Anthony Youn was born in Detroit in 1972 to Steve Youn and Kim Youn, who migrated to the US from South Korea.[7] Steve grew up in a family of nine in rural South Korea, where he earned his medical degree before migrating to the United States with his wife Kim.[1] He later relocated to Greenville, Michigan, where he served as the town’s ob-gyn doctor for over two decades before retiring.[7] Youn has a brother and sister[1] and grew up in Greenville in West Michigan.[8] He studied at Greenville High School (Michigan) and graduated in 1990,[7] after which he attended Kalamazoo College. Youn then entered Michigan State University College of Human Medicine, where he earned a Doctor of Medicine (MD) degree in 1998.[7][3] He completed the General and plastic surgery training at the Grand Rapids MERC Plastic Surgery Residency Program.[3] In Los Angeles, he completed a one-year aesthetic plastic Fellowship (medicine) with Dr. Richard Ellenbogen and returned to Michigan in 2004.[3][8] Youn met his wife Amy Elizebeth Youn (née Wolfe), a Board-certified pediatrics specialist, in medical school at Michigan State University.[9]) He lives in Birmingham, Detroit with his wife and two children.[2]
@SamSmithVev07 ай бұрын
Wow. Great, informative video. Thanks for the awareness.
@reneeblack27837 ай бұрын
What a fighter! ❤
@kdknice8887 ай бұрын
I just wanted to say that If you have suicidal thoughts, mental trauma, PTSD, or even if you don’t or just going through a thought time or neither just know that I love you and your loved by many and people and if you think that might not be loved by your family or people you know or just anyone just know they might even love you even more than your think. You have a purpose you are beautiful, kind, just be yourself and go after what you want to do. You are amazing, you got this, and things will get better in your life, you will do great things, and so many people and I are proud of you. Your future is bigger than your past and your past does not define you are awesome and a warrior. Don’t hate yourself simply because of your past, forgive yourself, love yourself no matter what because you deserve the world and the great things in it. I love you Have a wonderful beautiful nice day. Also how are you and your family doing today? Hope you feel better and your family.❤️ Be yourself no matter what you are, have, or what to be you are still amazing and you kind and beautiful always you are the light of the world. Stay safe. 💪🏽❤️. Have a beautiful day💯💯
@ghostdemon79366 ай бұрын
Dean is a brave man. What a lovely man too and a true fighter. Go Dean, you're an inspeiration 💪🤘😃
@lavenderwashington53377 ай бұрын
I believe when I first heard about this condition it was a young boy. I remember the video spoke about and showed how often he has to change his dressings, and how painful! I cried watching, and I legitimately wished that I could take his pain away.
@Watersart___7 ай бұрын
Wish you were MY Doctor. I love your compassion and you are soooo easy on the eyes.❤
@nicolecarter33607 ай бұрын
@Dr. Youn I've enjoyed your educational videos, they are very entertaining. I must say i love the way you explain medical things in a simple understanding way as if you're talking to an average person, and your video editing is perfect it's not edited like you like hearing yourself medical/big words talk. Thank you.
@pourquoipas9717 ай бұрын
What a resilient young man!
@dianetandy1757Ай бұрын
God bless him. No one could even imagine what this poor guy had gone through during his life and continues to go through
@magnetdesignandadver7 ай бұрын
What a strong person for living with this awful condition. It's just awful what some people are dealt. Makes me realise how grateful I should be
@ebellyfish42567 ай бұрын
Seriously amazing that he lived past childhood. Wow.
@DANIxDANGER7 ай бұрын
I used to follow a boy named Nicky who had EB, and the pain he would describe that he was in was unimaginable. He is the reason i even know what this disease even is.
@louishoyt51046 ай бұрын
This man, all props to him!!!!
@Mayayapayapa7 ай бұрын
Poor thing, as someone who has eczema and is super scared of infections, there's no doubt he's probably had a very rough time with them, at least twice. I feel for him, even if I don't understand his pain like he does.
@marybethsinn67924 ай бұрын
Good luck to you sir, what u have over come is tremendous!! Props to you!
@GenXfrom757 ай бұрын
My mother has Bullous Pemphigoid… it’s awful… blisters head to toe. Treated in a burn unit. She’s on prednisone the rest of her life.
@39houndsteps6 ай бұрын
My heart goes out to you and your mum. My dad had this in large areas in the 18 months before he died. It was extremely painful for him and for me to see him going through it. He was treated with high levels of prednisone which then caused his type 2 diabetes to go out of control and required hospitalisation. 🤦♀️ bizarrely enough, the doctors thought the bullous p was probably originally caused by a reaction to one of his diabetes drugs. 🤦♀️What a circular mess. Anyways after this he was always in al tight balance between enough prednisone to control the bullous pemphigoid, but not enough to cause his blood sugars to go out of control. I wish you and your mum some good fortune
@GenXfrom756 ай бұрын
@@39houndsteps it took the Medical University of South Carolina about three months to diagnose, as it’s rare. And you’re the first person out of many comments on BP to actually know what it is. It’s been an awful journey. They also believe another prescription medication set off the bullous. She was put on Keppra for a bladder infection and it ALSO set off dementia… wild 😢
@GenXfrom756 ай бұрын
@@39houndsteps and I’m so sorry about your dad. Nobody deserves this awful disease. Sorry for your loss , as well.
@fionascott32606 ай бұрын
@@GenXfrom75hello, I’m sure Debbie Harry’s partner Chris Stein had this in the late 80’s or 90’s it is a harsh and painful disease God bless 🙏❤️🙏
@EricWesolowski-g9t6 ай бұрын
Wow this guy is REAL tuff!!! No pretend about it!! Good for you bro
@DJ-wi9yk7 ай бұрын
I can not begin to imagine his experiences. He sounds like an Aussie. An Aussie trooper. ❤
@carissapaglino45912 ай бұрын
Any time I start to complain about my life I watch something like this and it snaps me right out of it
@philx200005 ай бұрын
So I saw the last section was labelled "lifting 150kg" and I thought wow that's an amazing deadlift for someone with such a severe condition and then I realised it was actually his bench press! I am in awe, what a guy!
@norasmith49397 ай бұрын
Thank you for reacting. Well explained.
@ea61027 ай бұрын
Im going through some horrible severe psoriasis right now... I can relate to this man but his is so much worse.skin diseases are horrible and people look at you like you're a monster. I really needed thie videos, treating people as people regardness of skin issues. The constant itching, burning, intense plaques and spots that look like the plague or something covering my entire body .. dealing with insurance... I have been too afraid to even leave my house becauae people just stare. Sorry for the rant but seeing someone being so compassionate to someone with a skin illness is making me emotional
@cazdaz38637 ай бұрын
Poor gentleman… he must have found it so debilitating as a child and very difficult to understand and has had to come to terms with it in adulthood. His parents have had the worry of losing him their entire life. I have to applaud his resilience in the face of such adversity in spite of the loneliness and rejection from prospective employers and having to live alone with his dog for company.
@MermaidMakes7 ай бұрын
I worked with someone who has this skin condition but not this severe. Her girlfriend was my supervisor. They were so cute, and my supervisor would help her get her jacket on and off every day, so it didn’t rub her the wrong way. So…you can have a fulfilling life. As Nightbird once put it “you don’t have to wait for life to get easier to do the things that make you happy”
@darlawittmier17937 ай бұрын
Is there no cure or just supportive measures? Poor guy
@TinkSalsa7 ай бұрын
Just supportive measures to help the skin heal blisters, like bandaging, and a high protein and calorie diet
@wrenbyrd10937 ай бұрын
@@TinkSalsaI wonder if taking a collagen supplement helps? 🤔
@sarahmughal56157 ай бұрын
I hope he can get cured. I hope he gets to live a healthy life
@Sk0p3r4207 ай бұрын
This really makes me appreciate that I don't have any condition of any kind. Disclaimer: This story isnt for the faint of heart: Since December I really appreciate life itself more than ever as I almost permanently died due to a severe combination of pneumonia, sepsis, gastritis which caused a bleeding tear in the lining of my stomach so I was losing a lot of blood to, had to get multiple blood infusions on top of the iv antibiotics I got 4-5 times a day and it was two different antibiotics I got (this actually turned my stool green and made me shed skin, a lot of skin and it was so dry. My finger tips, hands and feet became very sensitive because i lost the skin and had a pinkish color due to the fresh new skin underneath). The tear in the stomach made me throw up a lot of blood and some time later also defecating liquid blood which caused me to have lost a lot blood, thanks to that I also wasn't allowed to drink for the first day, the second day I was allowed to drink still water and few days later I was allowed to drink whatever, during that entire time and the time after the hospital I was only allowed to eat fluid meals like soup. Not that I could even drink w/o problem since due the pneumonia and sepsis my throat was so irritated and if just drank a small sip of water it would hurt like hell and burned for a few minutes after in my whole chest area, this caused another problem as during the time before I was admitted to hospital I was laying sick at home and wasn't able to drink really, as I said it was pure torture, due to that my kidneys started failing as well and I was on the verge of multiple organ failure and of course I was like 5"9feet in the grave at the point of admission. I had to be revived twice during my stay at the hospital since I went into septic shock and the blood loss + pneumonia caused my body a lot of stress which I probably wouldn't have survived if I wasn't this young and otherwise entirely . Before that all happened, around a week/week and a half I had just become covid negative and started back working but there I already was kinda short of breath and after two days a pain developed in my right shoulder. This then further developed into me getting as sick as i have never been before even calling the medics around christmas but they just claimed that it probably is just some strained muscle as well even though i was clearly confused and very weak. So then a day later I went to my doctor who first thought that it couldve been meningitis and sent me to a neurologist but luckily for me an internist also tested me which saved me tbh bc it was pneumonia + sepsis + gastritis + kidney failure. And you're probably wondering what I experienced while being revived and I'll be honest and scientific about it, so I just saw like glowing hands which kind of comforted me as they felt familiar but I attribute that whole experience to hallucinating bc my body probably sent out dmt at these moments and my brain was trying everything to survive
@fewbronzegames4 ай бұрын
it's very common for people with this condition to be wheelchair bound or even bed-ridden, this can be for a number of reasons, they might have developed blisters on they're feet making it super hard to walk, like you said they might have gotten an infection, it may have been done to try and avoid further skin damage, they might be in too much pain to walk, or they were unable to keep up with enough movement to keep the muscle mass needed to walk because of the previous reasons, this is a horrible condition that i hope one day people are able to cure, luckily research is starting to pick up on it so there are some options for people with the condition but not much yet
@honeybadgernasty7 ай бұрын
Doc, can you please make a video on the subject of lip lifts. Different types, such as the bullhorn technique, seagull, Italian, corner lip lift, V to Y, your personal experience, which one you'd recommend, etc? 🙏
@blackforest_fairy3 ай бұрын
we call his condition the "butterly condition" in my language, cause the the skin is as sensitive as the wings of a butterfly.
@evilsharkey89544 ай бұрын
I’m surprised the skin on his hands can handle the pressure of lifting so much weight. It must hurt like Hell to lift.
@carolc.7765 ай бұрын
Always puts my problems in perspective.
@Hatbox9487 ай бұрын
Poor guy. That must be excruciating. I feel so bad for him.
@elisavalero96047 ай бұрын
How does a doctor say that the patient, a child then, would be better off dead??? Even if your quality of life is not adequate and your life expectancy is not very long, don't you have the right to spend time with your parents, breathe, and feel alive and happy when you wake up grateful to have another day with your family? How cruel the doctor is to say that.
@suespiria95747 ай бұрын
People with this condition are in constant pain. There is a video on youtube about a mean in Great Britain who had this and in his forties he decided not to have his skin cancer treated (patients with EB often develop skin cancer), effectively ending his life because "it was enough". He still cried from the pain when his mother changed his bandages, even though he lived with it all his life. I would not want my child to live with this agony.
@elisavalero96047 ай бұрын
And what would you do if your child was born with this disease?@@suespiria9574
@StrawBerry-mm1iy7 ай бұрын
It's more like a punishment for him to live life with pain every day for years.. I can only imagine how hard each day must have been for him
@Fadingroses197 ай бұрын
EB - There is a documentary from a man named Johnny who had it it's such a hard disease
@nitamay35347 ай бұрын
I pray God heals this young man, I pray God gives you peace that surpasses all understanding.
@littleleah3107 ай бұрын
What a unique case 😍 what a beautiful man 🥰
@KingKyrool7 ай бұрын
Man everything i think and want to say would be controversial but ill say dear god this man is a trooper...
@candacehoover77537 ай бұрын
God bless him always ❤
@gabie46326 ай бұрын
Tears running down my Face right now. I feel so sorry for him but i knew, that he didnt whant anyone to feel sorry for him. We have some Heros in this World and he is one of them... When you think you have a Bad life or that you look Ugly or some People makes you allways sad what ever... Think of this Man, what he can Say or do for his Life or Healt.. He has always Pain and other People didnt whant to be near with him because of how he looks.. I think, he has a Heard of Gold and a verry nice Soul. But he is Alone all the Time. And he Smiles.. Hope he find real Friends and that he has a Good Life. He Diserve it! 💖💖 Sry for my English!
@MrScaryPasta6 ай бұрын
Ooh. 😣 Ouch. That poor poor man. I hope they find a cure for this disease or a way to treat it and reduce the pain. 😢
@Comeonlillyloo7 ай бұрын
We adopt the senior dog he’s lit. We adopted him last year when he was 10 years, a tiny silver poodle like your dog. If that is what you have tiny Silver poodle he’s 10 inch poodle. His name is Pip. He won a few things crufs the dog show in the UK.. I lost my own poodle of 13 years last year and we had him since he was eight weeks. it was a devastating blow to me as I am chronically unwell and he used to always come over to me when my pain was so bad and I would calm down whilst stroking him. He always knew when I was ill. The breed that we got him from. She said that she had a couple of poodles that we might be interested, but they are an old poodle. Mum was six and the other one was Pip and she matched me up perfectly with Pip, he’s got one tooth and he is the quietest poodle you’ve ever met. Where is my other poodle was the noisiest poodle. He wouldn’t allow anyone to go near parking spot or upper gate or anything. Pip comforts me quite a lot he’s there and he’s he’s just a lovely little thing so I understand what you said about the dogs. My cats they’re great too, but they like to go out and I don’t see them for hours and I’m stuck at home on my own so it’s nice to have company. I watch a lot of your videos and find them very interesting. Much love from the UK💖🐩🐩💖👍👍🕊🌈🇬🇧
@caliluv42447 ай бұрын
Poor fella.😞
@djstarrjunkie4 ай бұрын
Keep up with the lifting~ Do what makes you feel great about yourself! You are a beautiful human inside and out!~~~~~ :-)