Prader-Willi Syndrome: The Children Who Are Always Hungry

Prader-Willi Syndrome causes insatiable hunger, and there is no treatment available. These families have started a foundation to find a cure, while battling to help their children's dangerous obsession with food.
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[@nellen55]

Sounds like hell. Feeling of starving and never being self-sufficient

[@Vegetarianbull]

It is a hell! I have a similar condition and it is a hell!

[@t-alimichael3363]

Shout out to the neighbor and credit card. What a humble human finding a way to distract himself and gained independence. Thanks for sharing.

[@thefury4424]

A big shout out to all the other PWS families out there! Never easy telling others how our children are always hungry and them saying “sounds just like my child” when they have no idea. Routine is your best friend, my little girl just turned 12 and is kicking butt and amazing!

[@motorhead20]

Poor guy. So humble and self controlled while fighting one of our most intense urges on overdrive

[@melissalove2463]

OMG this is so wrong & so cruel ! We NEED more than anything to find a cure for this horrific disorder !

[@TJGAMINGSCOTLAND]

It’s heartbreaking ❤

[@PirateOfTheNorth]

I hope they can cure the constant hunger even if they can't cure PWS.

[@metime4325]

The young girl is so smart!

[@jflsdknf]

I've watch other docs on prader wili and they all talk, walk and act very very similar almost identical

[@elizabethrandellswart2397]

Heart breaking.

[@hardcorehunter9438]

Yeah I guess you know what it's like

[@roseynblack]

There MUST be a treatment for them.. either some sensation or hormone blocker because there is a hormone that causes hunger too. Apparently its also possible to become desensitized to that hormone.

[@Timbergal]

I notice that a large percentage of children with PWS live in AU and NZ. I wonder what the diagnosis/population is?

[@hayleylang7964]

My cat definitely has this

[@raumsogg]

In the 80s, many people used prescription, amphetamine-based appetite suppressants. As it turned out, as a diet, it was way more damaging than efficient on the long term, but the molecules do exist. I don't understand why science can't come up with some effective and inocuous appetite suppressant to help patients with PWS. I'm surely being naive, and hunger is only part of the problem of course, but I'd like to understand why this is not possible, I mean it would help a lot, wouldn't it?

[@Robohazrad]

Me too, I know they have ozempic that doctors will give fat people with diabetes and it keeps them from getting hungry. I wonder if they will work

[@kenwang9672]

Because it’s part of the plan to keep customers and keep making money.

[@turpasauna]

I'm sure it's possible. It's just not being researched. Science revolves around money.

[@wenchefauske6898]

There is a medication for diabetic using also to obesity people. The medications porpise is to stop people feel hunger

[@Vegetarianbull]

Yes liraglutida (saxenda) and metformina

[@shazanakhan9807]

Intermittent fasting helps

[@ThatUfOguy-cl9pb]

Ozempic

[@thatsnotright7260]

Imagine getting that credit card bill 💵 😮

[@kyunglee4548]

They should team up with the makers of Ozempic since the this medication makes you feel full and and release the harmonies in your body that you are full…

[@Vegetarianbull]

Yes they already use ozempic and saxenda at the same time with metformine. And better if they get the gastric sleeve at the same time while using that medications.

[@veronicamedina277]

PWS children suffer from constipation and it’s the brain that doesn’t stop sending signal to the belly that is full since it has to do with a chromosome which also can cause psychosis

[@stanleytran7044]

Ask maccas

[@hardcorehunter9438]

LMFAO the dude used his neighbors credit card to get pizzas delivered to his WINDOW at night 😂😂😂😂

[@ljmcdonald2703]

$500 worth of pizzas omg

[@Mandy-dw6ds]

Awesome neighbor!!

[@Vegetarianbull]

Not funny, actually sad and depressing

[@rebeccamccready1135]

This not a 😂 matter this a serious problem I know a person who got this and think before you comment