Protopic Withdrawal: A Personal Story | Dominika O'Sullivan

[@jenfugo]

Hope you enjoyed this episode! I'd love to hear what you thought. Leave your comments + questions below :) And if you want more information on this topic, check this out → Biologics - www.skinterrupt.com/?s=biologics

[@theresaavitabile2809]

Great episode which has hit so close to my heart and my life as I also am going through ProTopic withdrawal. Thank you!

[@jenfugo]

I'm sorry to hear you're going through that. How long were you using protopic for?

[@theresaavitabile2809]

@@jenfugo i used only for 9 months. 😫

[@georgiajoeb]

coming across this video has helped me so much mentally, i have all the symptoms of withdrawal from protopic/steroid after using both over the years and this video has brought me into to the light after being told my all over body rash was just eczema and to treat it with more steroids. thank you so much for this

[@jenfugo]

You're welcome! I'm sorry to hear that you're going through this. How long were you using protopic for?

[@georgiajoeb]

@@jenfugo been using it since april but sparingly, however stopped as my eczema cleared up, then went into full blown red rash for a few months which has seemed to move around my body mixed with other symptoms of tsw, with no help and not much evidence online about protopic withdrawal its been a nightmare!

[@angelajaramillo]

I’ve stopped the use of Protopic and my face looks really terrible . I have pain around my mouth and eyes … so I feel really bad with this situation … particularly when I look in the mirror …. I just wanna have a solution for that and the doctors don’t really help much because they always want to prescribe me steroids …. I suppose I have to use protopic again , but I don’t wanna do it because l my skin is very dependent on this cream . Does anyone have a recommendation? cream ? Maybe a diet?

[@Manginii]

Hey, are you still in the same situation now? So I wouldnt stop using the creme if you feel terrible about your whole appearance. What I would suggest is something like a absolut stop of eating sugar stuff... also everything that include sugars. fruits etc. something like a keto diet. Sugar is the best friend of inflamation. Also try to stop eating outside of you home. Cook your own stuff and maybe try something like a intermittent fasting. Eat one or 2 times a day. No snacking. I hope it gets better! I know how frustrating something like this can be. I can also recommend you some videos.

[@HardiSomal]

I know exactly how she feels because I’m going through the same thing at the moment with my alopecia. I was prescribed topical steroids but they didn’t work for me they just caused my condition to worsen with little results. I’ve now been prescribed protopic but I’m very hesitant with this ointment but I’ve been using it. Causing my head to itch and burn again which my head wasn’t doing while I wasn’t on treatment i was just losing a lot of hair regularly and still am. The UK health system has gone to crap and I’m on a massive waiting list to see a dermatologist face to face - they said they could see me in September…well over a year from when this issue started. At the moment I’m seeing GPs and non of them are specialists with alopecia and they’re just prescribing me a whole bunch of nonsense at the moment I feel like. Also they’re not taking my condition seriously…I just feel messed about by all these people tbh

[@jenfugo]

We are so sorry to hear this. Hang in there... we are sending a big virtual hug! Here's more on the topic if you're interested, too. www.skinterrupt.com/?s=alopecia -Team JF

[@shanecorr1694]

I never had eczema in my life till age 23 tiny bit on my arms and feet after 6 months on and off protopic I quit and was left disabled do not touch it

[@Feg1989]

How?! What happened?!

[@shanecorr1694]

​@@Feg1989 I used pro topic for a tiny bit of eczema on and off for 6 months then was left with severe eczema all over my body for 2 years after stopping

[@Feg1989]

@@shanecorr1694 oh wow sorry that happened to you, wouldn't wish severe eczema on my worst enemy. sounds like you experienced TSW

[@pikanoodle3410]

Correct me if I’m wrong - it kinda sounds more like protopic is unable to mask the surface inflammation which is triggered by other underlying causes, other than actually making the rashes worse…? Because the same thing happened to me - protopic worked for me 8 years ago where I only have to use sparely and was clear for 8 whole years. Then this year when I flared out of the blue, protopic is not as helpful anymore due to more severe underlying health issues. In other words, uncontrolled symptoms are not simply caused by the use of protopic i suppose ?

[@jenfugo]

That's certainly a possibility, but some of the issues people are dealing with could potentially be a side effect of the medication. As I said, there's a lot of unknowns here but there are enough people experiencing an issue at this point that I feel like the topic at least deserves consideration.

[@pikanoodle3410]

@@jenfugo I think it’s really important to mention that there’s a time and a place for these medication and so ppl won’t become too “drug phobia”, which I think, is just as bad as abusing the use of steroid or topical immunosuppressants. It’s sooo vital to have a derm who actually help investigating root causes and not abuse these medication & use them correctly!! Would be so helpful if you can have an episode to talk about how to find reliable medical help/what are red flags/ when do ppl HAVE to seek professional health when doing homeopathic remedies?

[@pikanoodle3410]

Also love all your interviews! So informative and helpful❤ love from Sweden

[@othmaniraja3199]

Hi so i am going to use the 0,03 for three week my dermatologist was scared from my atopic eczma i have it like 10 years it look bad but it have never hurt or bother me so i am not sur should i hear my dermatologist and jusg use protopic for those 3 week or should i not in my country it's expensive so I am not sure i payed for it and i have to use to give it a try but i am not going to use it again in my life i tried steroids bad memories for my mouth

[@kirstyleith5035]

Yes Protopic withdrawal is real

[@jenfugo]

Have you experienced this?

[@kirstyleith5035]

Yes I think so. I used it for only 10 days on my face. When I stopped, my skin became ten times worse than the original contact dermatitis for which I was using the Protopic to heal from in the first place! So my personal experience is that Protopic was horrendous for my skin (it did not even improve my dermatitis during the ten days that I used it) and certainly once I stopped using it my skin got very bad! I'm still really struggling but hoping in time it will heal. I will NEVER use Protopic again.

[@JuniorLlamas]

So if I use it for my face around eyes and just face I will lose hair?