From SEVERE Long Covid to Full Recovery (Jamie’s Story)

[@bio3m]

This story sounds almost identical to mine. Jeeesh! Hard to believe what we went through! Boy, i cant wait to enjoy showering again. It used to relax me, then it became a nightmare 😢

[@melaniemurphyofficial]

COMPLETELY relate to this lady! Healing is so beautiful!

[@Cindyscrossstitch]

These stories really give hope to so many people in this situation. The medical community needs to catch up. Thank you for sharing your story. Jamie🌻

[@ezza1236]

Gettting long Covid saved me life, If it wasn’t for it I would have lived a frantic life forever and never addressed any people pleasing traits,

[@AG-nn8lp]

This!!! Long COVID then a back blow out in debilitating pain and I couldn't do anything but lay face down for three weeks. I'm on week 10.....it really taught me that I DESERVE to be taken care of. It should have never been all on me. Never. My new word is no and not yes when I really mean NO. Boundaries are important

[@IronicUseOfElectrons]

I never would have believed it early on but I think you are right

[@ritamargherita]

Same!! ❤

[@hollirainwater2554]

Just what I needed. I'm having symptoms after not having them in a while and I was thinking "oh no! I've overdone it and I'm going to crash again!" I was forgetting to give myself messages of safety. Thanks for reminding me. ❤😊

[@honeywhite1]

Excellent discussion. So much resonates. Thank you so much Raelan & Jamie x

[@jim8779]

Jamie has so much courage! Such a good interview. "If your going through hell, keep going!" - Winston Churchill

[@fringeparnell9272]

Of all the videos I’ve watched and they all inspire, this resonates the most for me. Thank you so much Raelan and wow, Jamie, so brave to go back through all you suffered. I took the recognition that there is a way out, quite personally but that it doesn’t happen without understanding certain aspects. I’ve been working on my Vegas Nerve with meditation but have also sidestepped to depression meditation as well and together I saw slight improvements over time. This video reiterates that recovery is a possibility and with work can happen. All sorts of other topics that you’ve covered, Raelan, will help with recognising the small changes that need to be believed to reinforce your determination. Specifically, journals, as it’s easy to forget how you were feeling but also where the improvement has happened. Thanks for all the time and work that has and still is going in to provide the little connections and resonating messages that give a boost to everyone trying to recover. ❤ Fringe

[@sherylmarshall1444]

I cried listening to your incredible story I have that what if (I am not even recovered yet and I worry if I do recover my body will malfunction again. Although I was worse, I was terrified to go to bed or sleep, to walk up the stairs so I’d stay down the stairs and get others to get me things and hardly go up to pee as the sensation of my heart beat was frightening) I’m so impressed you’ve been through so much! I relate to the adrenaline surges (I used to call an ambulance on a regular basis and visited A&E several times). I used to have them at night when I tried to come off the beta blocker it was not pleasant to say the least. I will be 3 years post covid in January and my symptoms have changed they started as heart palpitations, fatigue and air hunger but now I have nerve pain , crushing heaviness in the body, tingling and numbness. Swallowing issues, neck pain, throat tightness. I also have dizziness most days, brain fog, reflux , heartburn and gastritis type symptoms. I believe I spent the past year and a bit training my self in fear, so I’m working on undoing this which is so difficult as I get pain and sensations from being active but I try to be fearless as I can to retrain that I’m safe. I am not off the beta blocker yet still take a 1/4 but I’m determined to eventually come off. I’m just going to wait until alot of my symptoms are better. I understand not wanting to be on meds I feel my beta blocker made me 1000% worse as I tried to come off it. I know I will get there but such a difficult experience. Take care and good luck with the meds as I’m sure there is a way to taper off. I still have fear but it’s alot better. I no longer believe I’m unwell (other than mind/ body apart from some wobble here and there) although I do get some fear of symptoms at times. I think the chronic nature of the condition is the most difficult because we get to a point where we feel like we can’t go on with these symptoms but I do hope I can get better soon. Thanks for sharing and take care ❤ Yes Raelan fear is everything - I’ve never been more terrified in my life!! But no matter how extreme our symptoms we are not broken ❤

[@merlinazz]

I have same symptoms than you but mine started with lyme disease which is very similar to long COVID. I thought it was just me being so afraid to move. Sorry to hear you are living same.

[@sherylmarshall1444]

@@merlinazz sorry to hear this guess we have to reprogram our nervous system ❤️

[@lalitaholmesstressfreefast1897]

Very proud of you Jamie. You were so courageous facing your past stressors and fears which were still signalling the danger response. Contine to use your tools to stay emotionally well now as you enjoy and love your life.

[@missingjamiejean]

Thank you Lalita ❤

[@fposhaughnessy]

I think we're starting to become more candid about the mental health aspect to this condition which is helpful, the more we talk about it, the more we normalize it, the less individuals will feel isolated and we can generate less fear as a community. Intense fear for good reasons, breeds psychologcal symptoms, that is normal. Thank you Raelan and Jamie for such a frank and open interview.

[@zakyvids6566]

Yep and the more we talk about this the more there is a chance that people catch or identify this earlier on and not suffer gaslighting and potentially prevents serious complication s

[@hilarysidwell8302]

Another fabulous interview. Another stepping stone the helps me on my recovery journey. Thank you Raelan and Jamie. Warm hugs to both. ❤❤

[@RaelanAgle]

Right back atcha! 🧡 🧡

[@Angelaangelat]

Such a beautiful and amazing interview. My favorite one so far. So encouraging and inspiring💖

[@legohouse4819]

Another brilliant interview. So authentic and unrelated so much especially to the fear of getting sick! I'm almost fully recovered from long covid after two years and your videos have been so helpful!

[@RaelanAgle]

That's wonderful to hear! So glad the interviews helped you on your recovery journey. 🧡 🧡

[@MyForestNymph]

You can make it through getting off the drug Jamie !!!! They gave me a drug like that during my long covid journey and I got off during the worst of it and made it t rough the withdrawals - realizing once I was off my mental health was WAY better even though it’s taken years to turn the physical health around . I believe you will feel so good when you get through that last hard part ❤️

[@kathy.7475]

You’re not stuck on Olansapine. Taper off slowly and you will get there. I tapered off Ativan and while it was not easy, I have been off 4 years now.

[@DaLeSy.]

I agree, I didn't have any problems weening off of olanzapine. Just did it very slowly.

[@drayanicole]

Did you taper while having ME/CFS?

[@kathy.7475]

@@drayanicole I tapered while having post concussion syndrome. Just go slowly and take tapering breaks as needed to let things calm down before your next dose decrease.

[@drayanicole]

@@kathy.7475 oh wow! Super inspiring! Thank you for response. I cold turkey’d klonopin and Paxil 5 years ago after 10 years! I know that messed up my CNS! Then I reinstated on Ativan almost 2 years ago and ready to come off. But I know with ME and dysautonomia and CNS damage that I’m hyper sensitive so I’ve been so scared to start tapering the Ativan!

[@heilam1954]

Thank you so much! I can totally relate with the story, the horror and the recovery path ❤ It's so powerful not to feel alone in this horrible human experience, so thank you for sharing

[@jvvallie]

Her story is so relatable to mine. Praise God for her recovery and GOd bless this channel

[@MariaSotiropoulou88]

As someone who is on the other side now I want to validate how real health anxiety is. I was struggling with that even before LC and it surely was one of the reasons why I crashed. Listening to your story Jamie I wanted to share that the first months after I recovered health anxiety was still heightened. However, the more I kept practising the tools that took me out of this condition the more I was finding purpose in life, building resilience and healing trauma, limiting beliefs and patterns. For me health anxiety appears in a certain pattern and it usually has to do with lack of purpose, orientation or connection with my needs...I can keep nerding out about it for hours hahahaha🙃 Thank you both for this honest and full of hope interview that addresses a huge aspect of this condition 🥰

[@missingjamiejean]

Thank you so much for your thoughtful response - luckily for me I’ve had several months of full health, and the anxiety is lessening over time. How did you heal?

[@MariaSotiropoulou88]

@@missingjamiejean exactly the more I was healing the more health anxiety was lessening over time. The most powerful thing was to learn to listen to the sensations without reacting with fear, and recognise patterns and emotions they represent. I would then use tools and practices to regulate and release them. Somatic Experiencing helped me the most, among other modalities, but also on my way to healing I discovered how powerful the Buddhist teachings are with the fear of illness and death. And how about you?

[@missingjamiejean]

@@MariaSotiropoulou88 I’m just living my life now and remind myself that it’s just anxiety, I am well and healthy now.

[@saralewismurre2134]

Really great interview. Congratulations, Jamie! Amazing!

[@Fantasticneuroplastic]

Jamie, you’re an absolute star! What a powerful & inspiring story (& person). 🎉

[@bio3m]

Wow, i was totally convinced i was being poisoned too!

[@jog5289]

Congratulations on your recovery, Jamie! So happy for you! Thanks for sharing your story! So sorry for all the hardships you went through, it really sounded absolutely horrendous! I believe you have the tools now to navigate any other situations in the future. It sounds like you were blessed with a very supportive partner. All the best! ❤

[@LoobyLoo71]

What a beautiful girl - fellow Aussie. Thanks for sharing. X

[@becoming_a_betty]

What an amazing inspiring journey. ❤Thank you so much for sharing Jamie. It bought up alot of emotions for me hearing what you went through at the beginning with your mental health, i was also suicidal, it was such a hard time. Its no suprise i guess when you think of the trauma of what we went through. I really appreciate you being so open about this. You described it so well as a separation of mind, body and soul! It's so inspiring to know you've come out the other side. Wishing you so much happiness 😊💕 xx

[@alexandrecouture2462]

Very good interview, thank you!

[@healingjourney722]

Thank you Jamie for sharing your story! Even though I've been working at LC recovery since late 2020 and I am getting much better with these kind of approaches, there is still so much to inspire me from the shorter recovery stories too. Wishing you the best!

[@missingjamiejean]

Some people find they need a bit more than brain retraining to get full recovery - sometimes Somatics is also needed. There’s also Nicole Sachs Journal Speak too. I wish you well!

[@mrjackolanterns]

She could be my Covid twin. Probably the most relatable guest yet. "Being poisoned" were the exact words I used also to describe my infection for over a year. I could never imagine sitting in a car for 8 hours during a crash either. 10 minutes used to set me off for days. That must have been hell for her. Good lord. Thank you so much for sharing, Jaimie.

[@StephanieAlice]

I had to take a 12hr flight back to my country as i could no longer work for visa overseas...pure panic and manual breathing pattern breakdown the entire time in the bathroom. Still sick from vax three years later plus MCAS anaphylaxis. Wouldve been better off with covid than vax what a farce.

[@Jennifer-gr7hn]

almost 5 years for me - not from the shot though. I had stroke, heart attack, lost vision, I couldn't even be bed bound because my oxygen dropped and I still never got help. Hospitalized 4 MONTHS later. It took me so long and had a lot of losses, and being alone in it, was horrid. I'm a nurse too and what I saw and knew..this was just horrible but I went outside the system and things start looking up. But almost 5 years later. Being abandoned by healthcare was hell on earth.

[@QuintEssential-sz2wn]

@missingjaimiejean This was a particular inspiring story, and right when I needed to see it! Congratulations and I’m so happy for you, Jamie. One question though: You often invoked the idea of thinking “ It’s OK I am safe.” I’m familiar with the Lightning Process (Doing it now). Since the LP employs NLP, they are very focussed on the effect words have on our neurology. For instance, you don’t want to say “ I Want to feel free of PAIN today” Because words like “pain” Invoke the very thing we are trying to get out of and that word actually lights up our pain centres. Along those lines, It’s generally recommended to avoid certain types of words, including wanting to “ Feel safe” because that word suggests threat to your safety. Sort of like saying you want to feel pain-free. Instead, one might reframe to say “ I want to feel confident” Or whatever. So I’m wondering, what are your thoughts On Incorporating “ I am safe” In terms of your experience with the Lightning Process? (Because I’ve also seen that term used quite a bit by other brain retraining, folks)

[@missingjamiejean]

Yes, my LP practitioner told me not to use safe for that exact reason. After I did the LP I stopped using the term safe - more “you’re ok”. It had been incredibly helpful before that point though!

[@QuintEssential-sz2wn]

@@missingjamiejean Thank you, Jamie that makes sense !

[@LoobyLoo71]

I’m also enjoying showering and driving too!

[@Freespirit038]

Such an inspiring story from a Jamie. The fear - I really connect with that - so hard to shake.

[@vanessawilhelm594]

Yes Jamie! So proud of you girl! xxxx

[@Dandelionsandbutterflies]

This is really inspiring! ❤️ I haven’t worked in almost 3 years. I want to go back so bad! Did she have a coach?

[@spruceysarah]

I also peed in a cup for a while! We should start a club! But seriously, so glad you found your way through the symptoms and are living the life you want now, thank you for sharing your story ❤

[@JacquiQ]

❣❣💖💖Beautiful young lady. So open and honest. Jamie you were so tenacious in your search for healing !! Bravo you !! I can relate to her story so much.

[@MrKelso85]

Thank you so much for sharing this was REAL shit and anyone who has experienced these illness had very similar or can relate! I myself had long Covid ex Pro athlete so really fucked my mind up being a loser zero lying in bed pissing in a bottle! Thank you for sharing

[@LoobyLoo71]

I was stuck on cymbalta and I ended up getting myself off it but I literally had to wean sooooooooo slowly but it’s possible

[@NoNo-zf6tz]

Amazing!!!

[@Jennifer-gr7hn]

Yes, that was poisoned.... from 2020 infection but with stroke, heart attack symptoms, concussions from passing out, no hospitalization until 4 months in - sounds like she had the shot. I wasn't even able to sleep.I couldn't walk, I was urinating on myself, it was brain to toes. Not getting hospital help with that hell was a major abandonment wound - but I was from the march gang -- they weren't doing anything for us so that people would think the shot was necessary. I really wonder if she got the shot. I'm still listening though so maybe it's coming.

[@JenniferCira]

Raelan, Can you do a video on how to trust your brain? I feel the same. Like my brain and soul have detached and I don’t know what is real sometimes. Does this go away completely or does it just get easier to deal with? Also, can you do a Q and A video where viewers submit questions and you answer them?

[@CharlieRascal]

Thanks guys. I'm confused? Did all this happen in a year? You got covid may last year? How long were you ill for? They're now calling it "short" long covid and "long" long covid. Everyone make a full recovery from SLC ina few months if it doesnt turn into LLC. I had SLC and almost fully recovered except I did too much physically which gave me LLC/CFS. Do you think you may have had short long covid?

[@missingjamiejean]

Yes, a year - six months getting progressively worse, then six months of healing.

[@Danchy082]

My experience also. When they say I was severe for 2 months I want to laugh about it. Very misleading interview.

[@markleonard4452]

My key takeaway from this interview was 'Recovery is Possible'!!!!!!!

[@missingjamiejean]

I’m so happy - this is exactly what I wanted the key takeaway to be.

[@markleonard4452]

@@missingjamiejean I am sure I will be next 🤞

[@missingjamiejean]

@@markleonard4452yes!! I can’t wait 🎉

[@gusrpg6669]

​@@missingjamiejeanThanks for your testimony. Is your tinnitus gone? Thank you, that and the noise sensitivity is the worst for me. 😔

[@missingjamiejean]

@@gusrpg6669tinnitus is the one thing that I still have, though it’s much better now. I have long periods where I don’t notice it at all and it’s not three types anymore.

[@chandyclove3335]

Jamie, if you read this, do you feel like you still have resentment with your mom? When I was getting divorced (and CFS was at it's worst, post-jab) and didn't have anywhere to go, my mom was reluctant to take me in. And once I lived there, she came into my room saying Doug (her husband) wanted me to leave...so he could walk around the house naked 🤦🏼‍♀️ I don't have kids, but can't fathom having that little of concern for your own daughter. I'm not sure what to do with these feelings.

[@AnrupB]

I’m sorry ❤ Do you have access to a counsellor or psychologist for support?

[@missingjamiejean]

Now that some time has passed, I don’t feel resentment. It was an impossible situation for all involved.

[@chandyclove3335]

@@AnrupB I have seen counselors. They don't seem to help...with any of this. That has been my experience anyway.

[@Truerealism747]

​@@chandyclove3335do you have hypomobility CFS fybromyalgia 27 years rccx theory good resource and Dr lenz also Dr silver

[@quisazaderak9257]

Guys, try hydrogen inhalation therapy! I just treated my grandmothers long covid dementia with this... she slept 12hrs a Day for the first 14 days.. now shes so much better!

[@Truerealism747]

Is that with tablets do the same thing

[@MeditationForSleepguided]

*Whoever reads this message I wish you a lot of peace, health, love and money. I hope you have a roof over your head, a healthy family and food in your stomach. If you don't have it, I wish it, I also wish you prosperity and work. May the universe bless you and fill you with opportunities. Greetings💜*

[@nektariosandmagdalena4985]

Anyone recover from blood pressure flucuations im assuming dysautonomia from long covid. I have over 30 symptoms but this me keeps me from leaving my house it scary spikes and drops but my baseline is normal low

[@222-i6o]

i really dont gt this thing about 'nt feeling safe ' with brain retraining ? iv had post viral fatigue since 2009 and i feel tierd frustrated but never unsafe, i dont think a pro biotic can send sum 1 into a deep depression? how do u knw if it was the depression or the medication tht made u better?

[@missingjamiejean]

The medication definitely helped, that’s why I mention it!

[@222-i6o]

@@missingjamiejean culd it of been wht cured u?

[@missingjamiejean]

@@222-i6oI believe recovery is a sum of parts. I don’t think I could’ve expanded activity without messages of safety, but the olanzapine does modulate the nervous system.

[@222-i6o]

@@missingjamiejean ok thnks

[@charityhair609]

Omg this is exactly what is happening to me. 😞 I am grateful to have ivermectin now finally and it helps so much, when I can get it. When I don’t get it, the hell in my mind comes right back

[@MachinesOfInterest]

Could you please reveal if you had the mRNA vaccine it will help me to make a comparison ? what you have described is EXACTLY down to fine detail what happened to me I got really bad covid in November 2021 but I did not take any Covid vaccines.

[@sparrowcrow]

If it helps, I had my second Moderna shot about 8 weeks before getting Covid, a close friend never had a vaccine, but got Covid, and another friend never had Covid, but got these symptoms within 24 hours of the mRNA vaccine. All three of us ended up with very similar debilitating symptoms, and have each had many years long recovery from it. I wouldn't let yourself spend too much time on "what if" I had had the vaccine.

[@fposhaughnessy]

@@sparrowcrow exactly they are both potential triggers, know that and move on to healing.

[@MachinesOfInterest]

@@sparrowcrow I was very sceptical about there being any virus at all,my wife and daughter attended a bonfire party 2021 and became ill then I myself a couple of days after we were very sick for two weeks at home both me and our nice who was also at the party was hospitalised on the same day ! which seemed strange.It took me weeks to recover to come out of the house I made something of a recovery but I was experiencing panc and this weird fear, fast forwards to mid 2023 I started to nose dive mentally and physically and had a big crash over last christmas fight or flight shaking on the bed for around three weeks solid anyway making slow progress from then to now but the anxiety from it all is something else.

[@sparrowcrow]

@@MachinesOfInterest The anxiety of it IS something else! I have never experienced such strong obsessive, intrusive, looping, and repetitive thoughts before in my life. But as Jamie talked about in the video, have confidence you can heal and it can get better. Although I believed I could get better, I honestly had doubts especially about the cognitive impairment and brain changes because they seemed so severe. But those too are resolving for me through the healing practices which are very similar to what is described in this video.

[@MachinesOfInterest]

@@sparrowcrow Thanks very much for your time good health to you.

[@angelbryan98]

Was the supplements protocol the Born Free protocol by Joshua Leisk?

[@nubbsgalore9016]

is the POTS and MCAS gone?

[@santeenl]

It heals with the other stuff

[@missingjamiejean]

Yes

[@StephanieAlice]

is it MCAS if youre not getting constant adrenaline and anaphylaxis? Ive eaten nothing but white rice and broccoli for 2yrs after the year before that bedbound with pots and daily anaphylaxis still being told its anxiety. and they still cant acknowledge us. thanks moderna

[@max-cs9ko]

❤❤❤

[@markleonard4452]

❤❤❤

[@stronzer59]

Long covid?? What about Long Flu?? Long Colds?? Long TB?? Right up to a certain product rollout Long anything never existed So when and who coined this Term and why?? Did they know something about a certain product??

[@DaLeSy.]

I'm so confused about how she healed without taking anything to get rid of it. Is she saying that you can heal from long covid simply by calming the nervous system down - and then the body heals itself? So nothing else is needed?

[@missingjamiejean]

Hello! The theory is that some forms of long Covid is the nervous system getting stuck in a fight or flight state. That’s why the symptoms are so far reaching - because the nervous system is. So therefore when we calm the nervous system, we calm the symptoms.

[@StephanieAlice]

yeah I hear this and I can believe it although I FEEL completely happy and calm but explain how I can do everything but EAT ANYTHING ...then all symptoms come back..go into anaphylaxis how is that JUST THE NERVOUS SYSTEM that would mean everyone with it could get cured and throw away their epipens.?

[@jakrismcfc]

@@missingjamiejeanI’m really happy you found something that worked for you. For me though I don’t think positive affirmations is going to cure my long COVID.

[@DaLeSy.]

@@missingjamiejean I am definitely in fight or flight some of the time. I knew that was what caused the insomnia, I didn't realize it could cause so many other symptoms. I'm going to have to research that to see what all symptoms it can cause. But you did say "some forms of long covid" so maybe some of us have other issues going on as well. None-the-less calming the nervous system is probably very important regardless.

[@missingjamiejean]

⁠@@DaLeSy. some people get organ damage from Covid, so it’s important to say some long Covid. I do believe the dysautonomia is the nervous system getting stuck in fight or flight though.

[@kellyberggren2007]

Fear has a huge effect on people. HUGE! That's what covid was all about. That was the governments goal. Sadly it worked. If they push fear then they can control us. I'm so glad you survived and you've discovered that fear is the enemy. Turn to Christ. Trust Him that He will see you through. "For God has not given the spirit of fear but of power and love and of a sound mind." 2 Timothy 1:7.

[@akashajones6079]

No. The goal was to save lives and stop the spread.

[@jackiegroden416]

@@akashajones6079crazy you still believe that

[@keylanoslokj1806]

​@@akashajones6079still holding onto the genociders' false narrative? Wow, some of you people are the perfect drone slaves of the system...

[@jenniferwishart2774]

⁠​⁠@@akashajones6079That was what majority of people thought; but it made us vulnerable to being manipulated and deceived. Looking back, without the pressure of fear and panic, has enabled many to see the bigger picture and reflect on all the harmful fallout from governments abandoning their established , well thought out emergency plans .

[@Truerealism747]

​@@jackiegroden416trouble is it will happen again control order depopulation awaiting next load who can't remember to start again maybe a bot

[@retiringfun]

Hello. Forgive me but as a sufferer of ME/CFS/PE (Long Covid) and having a sister who has Fibromyalgia for over 30 years, I can state quite confidently that you don't recover from either. There is no cure for either at this point and a nurse can not "pull" you out of Long Covid. You learn to manage and live with it. That's as good as it gets. Pacing is the best course of action so far and accept the good and bad days. I applaud your wanting to help others but "blowing sunshine ..." and false hope helps no one. Please stick to reality.

[@RaelanAgle]

Did you get a chance to listen to the interview?

[@fposhaughnessy]

There are hundreds of recovery stories online my friend.

[@shirin-md2539]

With this attitude you won’t heal of course! I had long covid for 2.5 years and did so many things and never gave up and now I’m healthier than before!

[@Danchy082]

@@RaelanAglelong covid and cfs are real biochemical illnesses. What this person has was post viral fatigue and many do recover from it after a while. Please do us a favor of not spreading misinformation, like being „severe“. Do you know what it even means? Being bed bound and unable to walk for years? I would love to hear such a recovery story, but it would not involve words like - feeling safe, mind-body and fear. Because that kind of crap has nothing to do with this illness.

[@shanepaarman5133]

Such an annoying comment, we come here to see the positive, if we wanted the pessimistic we would sit I those groups where everybody feels sorry for them selves. Why come here and spread that?

[@Danchy082]

Another story that I don‘t relate to, very disappointed. There is an enormous difference between being severe or being in crash as I come to realise after a year. When you crash with lots of rest you improve. But when you are severe that is it, that is your baseline. No matter what you do you stay there. I think Covid damaged my Vagus Nerve badly, and over night I could not stand any more. I stopped improving after a year or so. But most people do actually recover after a year or two. Mind- Body brain washing does nothing for this illness.

[@missingjamiejean]

You know every story isn’t going to be for you, and that’s ok?

[@Danchy082]

@@missingjamiejean I am yet to find one where the person really has ME/CFS and recovered. There are none. All this „severe“ to fully recovered bullshit is just annoying.

[@alexandrecouture2462]

There is this guy from the UK who has a YT channel called ''Vlad Vexler chat''. He has ME/CFS and has made a video, released today, about long covid, being ignored by our politicians. But this guy does nothing to get better and recover, and he also propagate lies about people not being able to recover from me/cfs and long covid, which is totally false. It's sad to see.

[@alexandrecouture2462]

@@aleksadupuy Many people here were in much, much worse condition than him, for multiple decades more than him. Everybody who at least honestly and diligently try will get at least some level of improvement.

[@AskenEman]

I dont know how anyone can say "covid" with a straight face much less "long covid". I mean, seriously, how brainwashed do you have to be? I can appreciate the young ladies story and courage. But, calling it "long covid" is just a weak attempt at bootlicking.

[@northernflicker1111]

Be grateful you haven't had to endure it. The term long covid and covid longhaul was coined by those of experiencing severe and prolonged symptoms early on in the pandemic and the name just kinda stuck. PACS is the official name nowadays.

[@AskenEman]

@@northernflicker1111 Interesting. Are the vaccinated less likely to get it?

[@northernflicker1111]

@@AskenEman there is conflicting data on that, and plenty of vaccinated and unvaccinated people are still getting it.

[@damiantow]

Not sure what you are talking about but clearly you haven't experienced the life changing effects of long Covid. A little bit of empathy and open mindedness goes a long way..

[@SunnyLilac09]

I love that! It’s what I have experienced as well ❤ @raelan: could you do a video on how to start working again? There are so many hard decisions around that topic and it’s talked about so little. Maybe also in the format of interviews? I really need inspiration for my next step 😇 Thank you for your endeavours!

[@KatyA-nx8gg]

Yes I would love to hear more about people returning to work. It feels like a massive milestone and feels difficult to imagine breaking back out into the working world where so much is expected of us and there is little understanding of chronic conditions like Long COVID